Is this TS?
Question:
Hi, all. I’m new here. I’ve recently realized, from reading cross-postings to alt.support.attn-deficit, that I may have a mild case of Tourette’s Syndrome (in addition to ADD, which I know I have). At least, TS would explain a lot of things about myself that I just thought were personal weirdnesses that I’ve tried to conceal. I’m not sure if these are truly TS symptoms, though. Perhaps some of you can help? I started taking a medication for my ADD (Adderall) about a year ago, with good results for my concentration and work life. However, I’ve noticed that when on it, I do more of what I’m now realizing might be TS "tics." Maybe you can advise me if these really are TS tics: Most problematicly, I talk to myself. Not at length, and certainly not all the time; but especially when I am embarassed about something (which is often), I often have moments of feeling a sudden, powerful mortification as I replay the scene repeatedly in my head, and to express or relieve the feeling, I’ll expostulate a brief phrase. Like "Oy" or "Yeesh" or "Aargh" or "Yi yi yi." Or some really random phrase that’s in my head, like "beer and skittles." This also happens when I’m stressed about something. Sometimes, as I’m walking down the street, I say brief phrases that just relate to something I’m thinking about ("cat food"), which gets me occasional odd looks from passers-by. Other times, I find myself softly singing or humming brief snatches of songs, in situations when it’s not especially appropriate to be singing, like in a subway station or walking through the halls at work. I also am prone to a certain motor restlessness, like frequent urges to move my neck and head, which I express in the form of neck stretches and neck-cracking. This is also worse when I’m stressed or embarassed about some recent incident. Is this all possibly Tourette’s; or am I just an eccentric? –Curious ———–== Posted via Deja News, The Discussion Network ==———- http://www.dejanews.com/ Search, Read, Discuss, or Start Your Own
Response:
Sywil wrote:
Is this all possibly Tourette’s; or am I just an eccentric?
It could be TS. What you describe sounds like tics, anyway 
) Hang around and read and learn more. This is a much nicer place than asa-d <grin
…
Here are some starter sites for learning about TS: http://members.xoom.com/lpacker/ http://www.eco.utexas.edu/~benedict/ http://tsa.mgh.harvard.edu/ BB2 Who Really Hopes Her Posts About Undiagnosed TS Enticed You to Join Us ))
Response:
I started taking a medication for my ADD (Adderall) about a year ago, with good results for my concentration and work life. However, I’ve noticed that when on it, I do more of what I’m now realizing might be TS "tics."
Were any of these symptoms around before taking Adderall? Stimulant meds can bring out underlying tics. If you go off the med and the tics go away it is a sure sign it was all med induced. Worth a thought…. Nannette
Response:
In article <19990228172934.21105.00001…@ng114.aol.com
,
net1…@aol.com (Net1964) wrote:
I started taking a medication for my ADD (Adderall) about a year ago, with good results for my concentration and work life. However, I’ve noticed that when on it, I do more of what I’m now realizing might be TS "tics." Were any of these symptoms around before taking Adderall? Stimulant meds can bring out underlying tics. If you go off the med and the tics go away it is a sure sign it was all med induced. Worth a thought…. Nannette
They existed before but the meds make them worse. ———–== Posted via Deja News, The Discussion Network ==———- http://www.dejanews.com/ Search, Read, Discuss, or Start Your Own
Response:
Steve, Thank you, but I do not need one. Thermometers are readily available here i n Scandinavia. I have described my observation, and will not do anything more about it. I will not start measuring temperatures around here. I do not see that I can contribute more to this than what I have already said. John Morten "Steve" <St…@smart-life.net
wrote in message
news:3D726626.E09BAAA9@smart-life.net… – Hide quoted text — Show quoted text -
John: Your throat is very near your hypothalamus, and mercury oral thermometers produce very consistent results IF you leave them in for 10 minutes or more. If you will email your address off-forum, I will send you one. There are quite legal to sell here in New Mexico. I agree regarding your comments about the ear thermometers. However, the object is to tell whether you are around 97.2F or 98.6F, and almost anything is good enough for this. The metastable point, where your body will quickly go either up or down from, is ~98.2F. If you are 98.4F or above while not feeling extremely HOT, then you have achieved your waking temperature, so this is not broken as it is in about 1/4 of the population. Steve Richfield ============================== John Morten Malerbakken wrote: And measuring the decimals has a lot to do with instrument accuracy and measurement technique. I would guess that agreeing to a single location
on
the human body to measure the temperature would cause a huge debate. The "modern" things that measure in the ears are useless, and electronic
devices
come in many makes. I would guess that there is no common methodology
for
calibration in force among the producers, nor that there is a standard
used
for describing the digitalisation of the range (bits per degree). And
this
is before we bring in the fact that there will be as many ways of
meassuring
the temperature as there are people using a thermometer. I will not comment on the need for analysing decimals, but in our case
there > > will be no measurements done, so no data will be supplied. (It will be > > easier to hand-feed the local bears here I believe 
) > > John Morten > > "Steve" <St…@smart-life.net
wrote in message
> > news:3D705DAA.A8AB5F38@smart-life.net… > > > John: > > > The whole story lies in the decimals, not in the degrees. Whether or not
your son has Wilson’s Syndrome or related condition, his temperature will be somewhere between 36C and 37C. Just where between 36C and 37C, and at what time of day, will narrow the possibilities down tremendously. It isn’t easy to measure to these accuracies, but it IS important to diagnose metabolic problems. Your brain tells your
systems
whether you are awake or asleep by shifting between 36.2C (sleeping)
to
37C (waking). Running around at 36.2C is a sure prescription for a LOT of problems. Steve ================ John Morten Malerbakken wrote: As I also stated in the personal mail, I have no numbers to offer.
My
observation is based on when he has been ill. I have no clue about
his,
my own or other people’s temperature characteristics. I believe that I
am
more or less constant at 37 degrees, and I have never worried about the decimals. I do not feel different until I hit around 38,5 when I usually have
to
go to bed with something (flu and soar throats runnning in the area right
now)
John Morten
Response:
John: Your throat is very near your hypothalamus, and mercury oral thermometers produce very consistent results IF you leave them in for 10 minutes or more. If you will email your address off-forum, I will send you one. There are quite legal to sell here in New Mexico. I agree regarding your comments about the ear thermometers. However, the object is to tell whether you are around 97.2F or 98.6F, and almost anything is good enough for this. The metastable point, where your body will quickly go either up or down from, is ~98.2F. If you are 98.4F or above while not feeling extremely HOT, then you have achieved your waking temperature, so this is not broken as it is in about 1/4 of the population. Steve Richfield ============================== – Hide quoted text — Show quoted text -John Morten Malerbakken wrote:
And measuring the decimals has a lot to do with instrument accuracy and measurement technique. I would guess that agreeing to a single location on the human body to measure the temperature would cause a huge debate. The "modern" things that measure in the ears are useless, and electronic devices come in many makes. I would guess that there is no common methodology for calibration in force among the producers, nor that there is a standard used for describing the digitalisation of the range (bits per degree). And this is before we bring in the fact that there will be as many ways of meassuring the temperature as there are people using a thermometer. I will not comment on the need for analysing decimals, but in our case there will be no measurements done, so no data will be supplied. (It will be easier to hand-feed the local bears here I believe
Response:
And measuring the decimals has a lot to do with instrument accuracy and measurement technique. I would guess that agreeing to a single location on the human body to measure the temperature would cause a huge debate. The "modern" things that measure in the ears are useless, and electronic devices come in many makes. I would guess that there is no common methodology for calibration in force among the producers, nor that there is a standard used for describing the digitalisation of the range (bits per degree). And this is before we bring in the fact that there will be as many ways of meassuring the temperature as there are people using a thermometer. I will not comment on the need for analysing decimals, but in our case there will be no measurements done, so no data will be supplied. (It will be easier to hand-feed the local bears here I believe ) John Morten "Steve" <St…@smart-life.net
wrote in message
news:3D705DAA.A8AB5F38@smart-life.net… – Hide quoted text — Show quoted text -
John: The whole story lies in the decimals, not in the degrees. Whether or not your son has Wilson’s Syndrome or related condition, his temperature will be somewhere between 36C and 37C. Just where between 36C and 37C, and at what time of day, will narrow the possibilities down tremendously. It isn’t easy to measure to these accuracies, but it IS important to diagnose metabolic problems. Your brain tells your systems whether you are awake or asleep by shifting between 36.2C (sleeping) to 37C (waking). Running around at 36.2C is a sure prescription for a LOT of problems. Steve ================ John Morten Malerbakken wrote: As I also stated in the personal mail, I have no numbers to offer. My observation is based on when he has been ill. I have no clue about his,
my
own or other people’s temperature characteristics. I believe that I am
more
or less constant at 37 degrees, and I have never worried about the
decimals.
I do not feel different until I hit around 38,5 when I usually have to
go to
bed with something (flu and soar throats runnning in the area right now) John Morten
Response:
Sandy: This sounds like yet another report of the carefully contrived study that the American Thyroid Association commissioned to "debunk" Wilson’s Syndrome. Here is what they did: They measured healthy people’s temperatures at 8:00AM in the morning, just when they were making their morning transition from 97.2F to 98.6F. Of course, the people had already gotten up and gotten around to taking their temperatures, so they didn’t see many/any clear down at 97.2F, but also, only a few people had made it all the way to 98.6F so soon after getting up. Then, completely ignoring the daily temperature cycles that all healthy people make, they jumped to the confusion that there is no "healthy" temperature. No, from what I have been able to determine, the people who did this are NOT incompetent, on the contrary, they used their expertise to devise this bogus experiment that was designed to show just what the ATA wanted. Note that many/most people treated for Wilson’s Syndrome are taking thyroid hormone pills, and will no longer need them once their temperature has been put back to 98.6F. Further the ATA is 100% financed by the manufacturers of those pills. Hence, these manufacturers stand to lose millions of dollars in business if Wilson’s Syndrome treatment ever becomes the norm. This just shows that you can find doctors who will do just about ANYTHING for money. Take it from someone who has been there and done that. I was unable to work until I reset my temperature up to 98.6F, and now a year later, I feel better than I have EVER felt in my entire life, and can now even outrun my teenagers! Steve ============== – Hide quoted text — Show quoted text -Sandy L wrote:
"Steve" <St…@smart-life.net wrote in message news:3D705DAA.A8AB5F38@smart-life.net… John: The whole story lies in the decimals, not in the degrees. Whether or not your son has Wilson’s Syndrome or related condition, his temperature will be somewhere between 36C and 37C. Just where between 36C and 37C, and at what time of day, will narrow the possibilities down tremendously. It isn’t easy to measure to these accuracies, but it IS important to diagnose metabolic problems. Your brain tells your systems whether you are awake or asleep by shifting between 36.2C (sleeping) to 37C (waking). Running around at 36.2C is a sure prescription for a LOT of problems. Steve Except that a study in the last year or so indicted that there was either an error in the early work that determined "normal" temperature or people are not as hot as they used to be. The norm moved from 98.6 F (37 C) to 97.8 F (36.6 C). ================ John Morten Malerbakken wrote: As I also stated in the personal mail, I have no numbers to offer. My observation is based on when he has been ill. I have no clue about his, my own or other people’s temperature characteristics. I believe that I am more or less constant at 37 degrees, and I have never worried about the decimals. I do not feel different until I hit around 38,5 when I usually have to go to bed with something (flu and soar throats runnning in the area right now) John Morten
Response:
"Steve" <St…@smart-life.net
wrote in message
news:3D705DAA.A8AB5F38@smart-life.net…
John: The whole story lies in the decimals, not in the degrees. Whether or not your son has Wilson’s Syndrome or related condition, his temperature will be somewhere between 36C and 37C. Just where between 36C and 37C, and at what time of day, will narrow the possibilities down tremendously. It isn’t easy to measure to these accuracies, but it IS important to diagnose metabolic problems. Your brain tells your systems whether you are awake or asleep by shifting between 36.2C (sleeping) to 37C (waking). Running around at 36.2C is a sure prescription for a LOT of problems. Steve
Except that a study in the last year or so indicted that there was either an error in the early work that determined "normal" temperature or people are not as hot as they used to be. The norm moved from 98.6 F (37 C) to 97.8 F (36.6 C). – Hide quoted text — Show quoted text -
================ John Morten Malerbakken wrote: As I also stated in the personal mail, I have no numbers to offer. My observation is based on when he has been ill. I have no clue about his,
my
own or other people’s temperature characteristics. I believe that I am
more
or less constant at 37 degrees, and I have never worried about the
decimals.
I do not feel different until I hit around 38,5 when I usually have to
go to
bed with something (flu and soar throats runnning in the area right now) John Morten
Response:
John: The whole story lies in the decimals, not in the degrees. Whether or not your son has Wilson’s Syndrome or related condition, his temperature will be somewhere between 36C and 37C. Just where between 36C and 37C, and at what time of day, will narrow the possibilities down tremendously. It isn’t easy to measure to these accuracies, but it IS important to diagnose metabolic problems. Your brain tells your systems whether you are awake or asleep by shifting between 36.2C (sleeping) to 37C (waking). Running around at 36.2C is a sure prescription for a LOT of problems. Steve ================ – Hide quoted text — Show quoted text -John Morten Malerbakken wrote:
As I also stated in the personal mail, I have no numbers to offer. My observation is based on when he has been ill. I have no clue about his, my own or other people’s temperature characteristics. I believe that I am more or less constant at 37 degrees, and I have never worried about the decimals. I do not feel different until I hit around 38,5 when I usually have to go to bed with something (flu and soar throats runnning in the area right now) John Morten
Response:
As I also stated in the personal mail, I have no numbers to offer. My observation is based on when he has been ill. I have no clue about his, my own or other people’s temperature characteristics. I believe that I am more or less constant at 37 degrees, and I have never worried about the decimals. I do not feel different until I hit around 38,5 when I usually have to go to bed with something (flu and soar throats runnning in the area right now) John Morten "Steve" <St…@smart-life.net
wrote in message
news:3D6C641A.22EA9D1F@smart-life.net… – Hide quoted text — Show quoted text -
John: I need some NUMBERS. What is his normal (afternoon, at least an hour after eating) temperature? What is his temperature when he is running a fever? Healthy people sleep at 97.something temperatures, and pop up to 98.6F during the day. If your son is at his sleeping temperature, no wonder he isn’t thinking right. Fortunately, there are quick and easy ways of PERMANENTLY putting things back as they should be. Done right this only involves a day of mild medication, and it can even sometimes be done with NO medication! If your son’s temperature tends to run in the 97s (or below), you should probably move over to Yahoo’s WS-Forum. And get rid of your doctor, and find one who has successful experience with "Wilson’s Syndrome". Steve ============================== John Morten Malerbakken wrote: But not unheard of. I have a boy here who has TS and ADHD. The few times that he has a fever, his ADHD problems seem to disappear. I asked a physician if a medication that raised his body temperature by about 0,5 degrees would be a good alternative to other treatments, but she brushed that away with no further expl. Anyway, we see two different persons
with
different temperatures. But, I cannot wish for him to have the flu all
the > > time. > > John Morten > > Steve wrote: > > > Jodi: > > > Hmmm. My situation is VERY unique – I might well have had problems in > > > my youth, if only I had a normal 98.6F body temperature after the age > > > of 5, when by body temperature was trashed by the anesthesia that was > > > used as part of a tonsillectomy. Note that MOST people with childhood > > > tonsillectomies have low daytime body temperatures, and ultimately die > > > 20-30 years sooner than others! Hence, my unique situation, where my > > > low temperature condition has been reversed after a half century, has > > > probably disturbed the TS recognition criteria. > > > Yes, get an expert. However, my experience with "experts" in other > > > medical areas has been VERY poor, as evidenced by the fact that I > > > could have 51 years of serious health problems without a single > > > "expert" connecting any of my many problems, some of which were > > > life-threatening, with my low body temperature. I was very active on > > > the related forums as I developed and executed my new method of > > > temperature resetting. Several doctors predicted that I would die or > > > worse, and they pleaded with me not to attempt what I did, which > > > promptly cured all of my problems in a single day. Are neurologists > > > any better with tics than other medical "experts" have been for me? > > > What is their cure rate – where they take a non-destructive action > > > that eliminates the problem at hand for once and for all? > > > I suppose that at least I could get the technical terms for my > > > problem, which would put me way ahead of where I am now, and provide > > > a starting point for a serious research effort. > > > I have cured several "incurable" conditions in myself and others over > > > the years, developing a non-destructive action that cures the problem > > > for once and for all. However, this usually requires around 4 months > > > of full-time research for each individual case. You see, it is the > > > clinical classification process that is usually at the heart of the > > > poor results from doctors, where doctors lump a lot of cases together > > > that are related only by their symptoms, where each patient has their > > > own semi-unique cause and effect chain that the doctors never get > > > around to understanding. Once you find the head of the cause and > > > effect chain – the external influence that messed everything up, > > > figuring out the cure is usually pretty easy. > > > Hence, due to the effort required, I have only done this for people > > > who were disabled or about to die, and not for minor problems like my > > > facial tic. However, this thing is annoying enough for me to start > > > investing my "spare" time into, if no one can provide a simple > > > solution. > > > Thanks for your help Jodi. > > > Steve > > > =========== > > > Jodi wrote: > > >> Hi Steve, > > >> Here are some good sites to learn about TS: > > >> http://tourettenowwhat.tripod.com/ > > >> http://www.eco.utexas.edu/~faulkner/tsfun/ > > >> I couldn’t seem to find the diagnostic criteria for TS, so will go > > >> from memory. (uh oh LOL) You must have multiple motor and at some > > >> point a vocal tic for more than one year, with the age of onset > > >> being 18 years old or before. > > >> There are alot of things that can cause tics. The best thing to do > > >> is go to a neurologist and have it checked out. > > >> Sorry i couldn’t be more help. > > >> Best Wishes, > > >> Jodi > > >> "Steve" <St…@smart-life.net
wrote in message
> > >> news:3D674A14.32714A78@smart-life.net… > > >>> Until a year ago, I had a LOT of health problems. Finally, I linked > > >>> my growing basket of problems to my low 97.something daytime body > > >>> temperature. I engineered a new way of resetting my daytime > > >>> temperature back up to 98.6F, and was miraculously cured in a > > >>> single day! > > >>> Then about 4 months later and about 8 months ago I developed a > > >>> "minor" back of neck and right lower jaw facial tic – like often > > >>> needing to stretch these muscles. However, this does NOT happen at > > >>> my 97.2F sleeping temp, only at my new 98.6F daytime temp! Some > > >>> mornings I am slow getting up to 98.6F, sometimes taking as long as > > >>> 2-3 hours after rising, which delays the start of my tics. Also, > > >>> some rare days my temperature will drop before I go to bed, and > > >>> sure enough, my tics stop when my temperature drops. Sure, my > > >>> morning coffee gets it going, but from what I can tell, that is > > >>> just because the coffee helps to bump my temperature up (which > > >>> often needs a little extra bumping). The tic seems to be no worse > > >>> in the morning, before my coffee wears off, than it is in the > > >>> evening when I haven’t had any coffee for 16 hours or so. > > >>> Hmmm, I wonder if everyone with TS has normal 98.6F daytime body > > >>> temperature, while a full quarter of the general population is > > >>> stuck at their 97.something normal sleeping temperature?! > > >>> My tic seems to be stress related, and may be subsiding a little > > >>> with time. > > >>> I recently saw a program on the Discovery channel linking tics to > > >>> TS, so I am now looking to see if there is something to learn from > > >>> TS that can help me. > > >>> Before I reset my temperature, I had atrial fibrillation and other > > >>> health problems so bad that I couldn’t work. Now I am quite healthy > > >>> and have no problem working, but it is hard for clients to take a > > >>> consultant seriously who makes faces at them, or justify to their > > >>> bosses paying triple-digit hourly fees. With kids to feed, this has > > >>> a major impact on life here. > > >>> Any thoughts, ideas, suggestions, pointers, speculation, etc., > > >>> would be GREATLY appreciated. One good idea offsets a thousand bad > > >>> ones, so I am open to anything. Please remember to CC your reply > > >>> directly to me. > > >>> Thanks in advance for your help. > > >>> Steve
Response:
John: I need some NUMBERS. What is his normal (afternoon, at least an hour after eating) temperature? What is his temperature when he is running a fever? Healthy people sleep at 97.something temperatures, and pop up to 98.6F during the day. If your son is at his sleeping temperature, no wonder he isn’t thinking right. Fortunately, there are quick and easy ways of PERMANENTLY putting things back as they should be. Done right this only involves a day of mild medication, and it can even sometimes be done with NO medication! If your son’s temperature tends to run in the 97s (or below), you should probably move over to Yahoo’s WS-Forum. And get rid of your doctor, and find one who has successful experience with "Wilson’s Syndrome". Steve ============================== – Hide quoted text — Show quoted text -John Morten Malerbakken wrote:
But not unheard of. I have a boy here who has TS and ADHD. The few times that he has a fever, his ADHD problems seem to disappear. I asked a physician if a medication that raised his body temperature by about 0,5 degrees would be a good alternative to other treatments, but she brushed that away with no further expl. Anyway, we see two different persons with different temperatures. But, I cannot wish for him to have the flu all the time. John Morten Steve wrote: Jodi: Hmmm. My situation is VERY unique – I might well have had problems in my youth, if only I had a normal 98.6F body temperature after the age of 5, when by body temperature was trashed by the anesthesia that was used as part of a tonsillectomy. Note that MOST people with childhood tonsillectomies have low daytime body temperatures, and ultimately die 20-30 years sooner than others! Hence, my unique situation, where my low temperature condition has been reversed after a half century, has probably disturbed the TS recognition criteria. Yes, get an expert. However, my experience with "experts" in other medical areas has been VERY poor, as evidenced by the fact that I could have 51 years of serious health problems without a single "expert" connecting any of my many problems, some of which were life-threatening, with my low body temperature. I was very active on the related forums as I developed and executed my new method of temperature resetting. Several doctors predicted that I would die or worse, and they pleaded with me not to attempt what I did, which promptly cured all of my problems in a single day. Are neurologists any better with tics than other medical "experts" have been for me? What is their cure rate – where they take a non-destructive action that eliminates the problem at hand for once and for all? I suppose that at least I could get the technical terms for my problem, which would put me way ahead of where I am now, and provide a starting point for a serious research effort. I have cured several "incurable" conditions in myself and others over the years, developing a non-destructive action that cures the problem for once and for all. However, this usually requires around 4 months of full-time research for each individual case. You see, it is the clinical classification process that is usually at the heart of the poor results from doctors, where doctors lump a lot of cases together that are related only by their symptoms, where each patient has their own semi-unique cause and effect chain that the doctors never get around to understanding. Once you find the head of the cause and effect chain – the external influence that messed everything up, figuring out the cure is usually pretty easy. Hence, due to the effort required, I have only done this for people who were disabled or about to die, and not for minor problems like my facial tic. However, this thing is annoying enough for me to start investing my "spare" time into, if no one can provide a simple solution. Thanks for your help Jodi. Steve =========== Jodi wrote: Hi Steve, Here are some good sites to learn about TS: http://tourettenowwhat.tripod.com/ http://www.eco.utexas.edu/~faulkner/tsfun/ I couldn’t seem to find the diagnostic criteria for TS, so will go from memory. (uh oh LOL) You must have multiple motor and at some point a vocal tic for more than one year, with the age of onset being 18 years old or before. There are alot of things that can cause tics. The best thing to do is go to a neurologist and have it checked out. Sorry i couldn’t be more help. Best Wishes, Jodi "Steve" <St…@smart-life.net wrote in message news:3D674A14.32714A78@smart-life.net… Until a year ago, I had a LOT of health problems. Finally, I linked my growing basket of problems to my low 97.something daytime body temperature. I engineered a new way of resetting my daytime temperature back up to 98.6F, and was miraculously cured in a single day! Then about 4 months later and about 8 months ago I developed a "minor" back of neck and right lower jaw facial tic – like often needing to stretch these muscles. However, this does NOT happen at my 97.2F sleeping temp, only at my new 98.6F daytime temp! Some mornings I am slow getting up to 98.6F, sometimes taking as long as 2-3 hours after rising, which delays the start of my tics. Also, some rare days my temperature will drop before I go to bed, and sure enough, my tics stop when my temperature drops. Sure, my morning coffee gets it going, but from what I can tell, that is just because the coffee helps to bump my temperature up (which often needs a little extra bumping). The tic seems to be no worse in the morning, before my coffee wears off, than it is in the evening when I haven’t had any coffee for 16 hours or so. Hmmm, I wonder if everyone with TS has normal 98.6F daytime body temperature, while a full quarter of the general population is stuck at their 97.something normal sleeping temperature?! My tic seems to be stress related, and may be subsiding a little with time. I recently saw a program on the Discovery channel linking tics to TS, so I am now looking to see if there is something to learn from TS that can help me. Before I reset my temperature, I had atrial fibrillation and other health problems so bad that I couldn’t work. Now I am quite healthy and have no problem working, but it is hard for clients to take a consultant seriously who makes faces at them, or justify to their bosses paying triple-digit hourly fees. With kids to feed, this has a major impact on life here. Any thoughts, ideas, suggestions, pointers, speculation, etc., would be GREATLY appreciated. One good idea offsets a thousand bad ones, so I am open to anything. Please remember to CC your reply directly to me. Thanks in advance for your help. Steve
Response:
But not unheard of. I have a boy here who has TS and ADHD. The few times that he has a fever, his ADHD problems seem to disappear. I asked a physician if a medication that raised his body temperature by about 0,5 degrees would be a good alternative to other treatments, but she brushed that away with no further expl. Anyway, we see two different persons with different temperatures. But, I cannot wish for him to have the flu all the time. John Morten – Hide quoted text — Show quoted text -Steve wrote:
Jodi: Hmmm. My situation is VERY unique – I might well have had problems in my youth, if only I had a normal 98.6F body temperature after the age of 5, when by body temperature was trashed by the anesthesia that was used as part of a tonsillectomy. Note that MOST people with childhood tonsillectomies have low daytime body temperatures, and ultimately die 20-30 years sooner than others! Hence, my unique situation, where my low temperature condition has been reversed after a half century, has probably disturbed the TS recognition criteria. Yes, get an expert. However, my experience with "experts" in other medical areas has been VERY poor, as evidenced by the fact that I could have 51 years of serious health problems without a single "expert" connecting any of my many problems, some of which were life-threatening, with my low body temperature. I was very active on the related forums as I developed and executed my new method of temperature resetting. Several doctors predicted that I would die or worse, and they pleaded with me not to attempt what I did, which promptly cured all of my problems in a single day. Are neurologists any better with tics than other medical "experts" have been for me? What is their cure rate – where they take a non-destructive action that eliminates the problem at hand for once and for all? I suppose that at least I could get the technical terms for my problem, which would put me way ahead of where I am now, and provide a starting point for a serious research effort. I have cured several "incurable" conditions in myself and others over the years, developing a non-destructive action that cures the problem for once and for all. However, this usually requires around 4 months of full-time research for each individual case. You see, it is the clinical classification process that is usually at the heart of the poor results from doctors, where doctors lump a lot of cases together that are related only by their symptoms, where each patient has their own semi-unique cause and effect chain that the doctors never get around to understanding. Once you find the head of the cause and effect chain – the external influence that messed everything up, figuring out the cure is usually pretty easy. Hence, due to the effort required, I have only done this for people who were disabled or about to die, and not for minor problems like my facial tic. However, this thing is annoying enough for me to start investing my "spare" time into, if no one can provide a simple solution. Thanks for your help Jodi. Steve =========== Jodi wrote: Hi Steve, Here are some good sites to learn about TS: http://tourettenowwhat.tripod.com/ http://www.eco.utexas.edu/~faulkner/tsfun/ I couldn’t seem to find the diagnostic criteria for TS, so will go from memory. (uh oh LOL) You must have multiple motor and at some point a vocal tic for more than one year, with the age of onset being 18 years old or before. There are alot of things that can cause tics. The best thing to do is go to a neurologist and have it checked out. Sorry i couldn’t be more help. Best Wishes, Jodi "Steve" <St…@smart-life.net wrote in message news:3D674A14.32714A78@smart-life.net… Until a year ago, I had a LOT of health problems. Finally, I linked my growing basket of problems to my low 97.something daytime body temperature. I engineered a new way of resetting my daytime temperature back up to 98.6F, and was miraculously cured in a single day! Then about 4 months later and about 8 months ago I developed a "minor" back of neck and right lower jaw facial tic – like often needing to stretch these muscles. However, this does NOT happen at my 97.2F sleeping temp, only at my new 98.6F daytime temp! Some mornings I am slow getting up to 98.6F, sometimes taking as long as 2-3 hours after rising, which delays the start of my tics. Also, some rare days my temperature will drop before I go to bed, and sure enough, my tics stop when my temperature drops. Sure, my morning coffee gets it going, but from what I can tell, that is just because the coffee helps to bump my temperature up (which often needs a little extra bumping). The tic seems to be no worse in the morning, before my coffee wears off, than it is in the evening when I haven’t had any coffee for 16 hours or so. Hmmm, I wonder if everyone with TS has normal 98.6F daytime body temperature, while a full quarter of the general population is stuck at their 97.something normal sleeping temperature?! My tic seems to be stress related, and may be subsiding a little with time. I recently saw a program on the Discovery channel linking tics to TS, so I am now looking to see if there is something to learn from TS that can help me. Before I reset my temperature, I had atrial fibrillation and other health problems so bad that I couldn’t work. Now I am quite healthy and have no problem working, but it is hard for clients to take a consultant seriously who makes faces at them, or justify to their bosses paying triple-digit hourly fees. With kids to feed, this has a major impact on life here. Any thoughts, ideas, suggestions, pointers, speculation, etc., would be GREATLY appreciated. One good idea offsets a thousand bad ones, so I am open to anything. Please remember to CC your reply directly to me. Thanks in advance for your help. Steve
Response:
Subject: Re: Is this TS? From: Steve St…@smart-life.net Date: 8/24/02
Steve: See below:
you should probably stick to more traditional methods (described in extreme detain in the WilsonsSyndrome literature) UNLESS there is a good reason to believe that they won’t work for you, e.g. unless you were probably low temp during your childhood, have been low temp for decades, etc. My method is the one-day, kill or cure, for when failure is NOT an option. You might want to try something a little more gentle unless you are a "hard case" and/or need to get the job done NOW to avoid dying next month.
Well, I am NOT dying next month as far as I know, but I have had low body temp my entire life, so, yes, for many decades.
Please, tell me a little more about your situation. Do you have tics while at 97F? If so, this would answer one question of mine: Is this possible?
I truly don’t know if I have tics at 97F, as I haven’t taken my temperature that frequently! I do get tics while on Zoloft and/or Sudafed, and as I stated earlier, when I drink a lot of coffee. I am very curious about this – has anyone else here heard anything about it? How about those of you who said you had low body temps the last time we were talking about it? Steve, how would I know if the "conventional" treatments would work for me or not? I’m pretty leary of trying something I don’t know anything about. Thanks, Sara
Response:
Sara: Low daytime body temperature, sometimes referred to as "Wilson’s Syndrome", can come from many sources, and some races like American Indians and Irish seems to get it spontaneously. While tonsillectomies cause a lot of these cases, so do a lot of prescription drugs, especially antidepressants. Healthy people sleep at ~97.2F, and pop up to 98.6F during the day. There are many ways that this can go wrong, the most common being an inability to pop up to 98.6F during the day. My daughter sometimes stays at 98.6F during the night, which causes different problems. These various metabolic problems appear to be at the root of around 50% of ALL medical problems! Various studies show that about a quarter of the general population is stuck low, and another quarter have any of a variety of other identifiable metabolic problems. If you ask the nurse who takes your temperature the next time you go to the doctor what fraction read 97.something or lower, she will tell you that around half do. There are two good sources of information about this. The best is the WS-Forum on About.com. Another good source is to send ~$50 to <http://www.WilsonsSyndrome.org
to get all of their literature.
As for my specific method of resetting temperatures, only a dozen or so people have tried it so far, so you should probably stick to more traditional methods (described in extreme detain in the WilsonsSyndrome literature) UNLESS there is a good reason to believe that they won’t work for you, e.g. unless you were probably low temp during your childhood, have been low temp for decades, etc. My method is the one-day, kill or cure, for when failure is NOT an option. You might want to try something a little more gentle unless you are a "hard case" and/or need to get the job done NOW to avoid dying next month. In my particular case, I met every single criteria for "don’t treat", and had every reason to expect the standard treatment to make me worse rather than better. Resetting temperatures initially trades one set of problems for another, e.g. for adrenal fatigue, and it appears, sometimes tics. I have contacted the others who have gone through this treatment, and I appear to be the only one who has picked up a tic. I had to also develop a new treatment for my expected disabling adrenal fatigue BEFORE I reset my temperature, betting that it would work, or leave me in a state of Chronic Fatigue if it failed. It takes nearly a year to fully recover from being low temp, as your body learns what it should have when you were a child. During most of this time, you must dress a little UNcomfortably warm to avoid adrenal fatigue. This all caused quite a stir among the medicine men, especially Dr. E. Denis Wilson, from whom "Wilson’s Syndrome" was originally named. We argue endlessly about how my method accomplishes what it does, but he is nonetheless incorporating my methods that obviously work better than other methods (for whatever reason) in the new book that he is now writing. My new method of treating adrenal fatigue ONLY works at 98.6F, a pretty rare situation, as adrenal fatigue usually dumps people’s temperatures back to 97.something. However, this is rapidly becoming the treatment option of choice for those people with adrenal fatigue who CAN make it to 98.6F. Please, tell me a little more about your situation. Do you have tics while at 97F? If so, this would answer one question of mine: Is this possible? Of course, it may be possible that when you drink coffee that you drive your temperature up, which brings on the tics. Steve ================= – Hide quoted text — Show quoted text -Sesgardner wrote:
Subject: Re: Is this TS? From: Steve St…@smart-life.net Date: 8/24/02 Note that MOST people with childhood tonsillectomies have low daytime body temperatures, and ultimately die 20-30 years sooner than others! Steve, I’d love to hear more about this. We had a discussion, probably a year ago at least, about low body temperature. My body temp has always been 97, but it was that way before I had my tonsils out at age 19. But I am curious as to how you raised your daytime temperature, if you’ve got time to talk about it. Just a thought about the tic that you describe. It could be induced by any number of things, including caffeine, or other medicinal remedies. I know I tic a lot on certain medications, and too much caffeine, and not at all at other times. Sara
Response:
Jodi: Hmmm. My situation is VERY unique – I might well have had problems in my youth, if only I had a normal 98.6F body temperature after the age of 5, when by body temperature was trashed by the anesthesia that was used as part of a tonsillectomy. Note that MOST people with childhood tonsillectomies have low daytime body temperatures, and ultimately die 20-30 years sooner than others! Hence, my unique situation, where my low temperature condition has been reversed after a half century, has probably disturbed the TS recognition criteria. Yes, get an expert. However, my experience with "experts" in other medical areas has been VERY poor, as evidenced by the fact that I could have 51 years of serious health problems without a single "expert" connecting any of my many problems, some of which were life-threatening, with my low body temperature. I was very active on the related forums as I developed and executed my new method of temperature resetting. Several doctors predicted that I would die or worse, and they pleaded with me not to attempt what I did, which promptly cured all of my problems in a single day. Are neurologists any better with tics than other medical "experts" have been for me? What is their cure rate – where they take a non-destructive action that eliminates the problem at hand for once and for all? I suppose that at least I could get the technical terms for my problem, which would put me way ahead of where I am now, and provide a starting point for a serious research effort. I have cured several "incurable" conditions in myself and others over the years, developing a non-destructive action that cures the problem for once and for all. However, this usually requires around 4 months of full-time research for each individual case. You see, it is the clinical classification process that is usually at the heart of the poor results from doctors, where doctors lump a lot of cases together that are related only by their symptoms, where each patient has their own semi-unique cause and effect chain that the doctors never get around to understanding. Once you find the head of the cause and effect chain – the external influence that messed everything up, figuring out the cure is usually pretty easy. Hence, due to the effort required, I have only done this for people who were disabled or about to die, and not for minor problems like my facial tic. However, this thing is annoying enough for me to start investing my "spare" time into, if no one can provide a simple solution. Thanks for your help Jodi. Steve =========== – Hide quoted text — Show quoted text -Jodi wrote:
Hi Steve, Here are some good sites to learn about TS: http://tourettenowwhat.tripod.com/ http://www.eco.utexas.edu/~faulkner/tsfun/ I couldn’t seem to find the diagnostic criteria for TS, so will go from memory. (uh oh LOL) You must have multiple motor and at some point a vocal tic for more than one year, with the age of onset being 18 years old or before. There are alot of things that can cause tics. The best thing to do is go to a neurologist and have it checked out. Sorry i couldn’t be more help. Best Wishes, Jodi "Steve" <St…@smart-life.net wrote in message news:3D674A14.32714A78@smart-life.net… Until a year ago, I had a LOT of health problems. Finally, I linked my growing basket of problems to my low 97.something daytime body temperature. I engineered a new way of resetting my daytime temperature back up to 98.6F, and was miraculously cured in a single day! Then about 4 months later and about 8 months ago I developed a "minor" back of neck and right lower jaw facial tic – like often needing to stretch these muscles. However, this does NOT happen at my 97.2F sleeping temp, only at my new 98.6F daytime temp! Some mornings I am slow getting up to 98.6F, sometimes taking as long as 2-3 hours after rising, which delays the start of my tics. Also, some rare days my temperature will drop before I go to bed, and sure enough, my tics stop when my temperature drops. Sure, my morning coffee gets it going, but from what I can tell, that is just because the coffee helps to bump my temperature up (which often needs a little extra bumping). The tic seems to be no worse in the morning, before my coffee wears off, than it is in the evening when I haven’t had any coffee for 16 hours or so. Hmmm, I wonder if everyone with TS has normal 98.6F daytime body temperature, while a full quarter of the general population is stuck at their 97.something normal sleeping temperature?! My tic seems to be stress related, and may be subsiding a little with time. I recently saw a program on the Discovery channel linking tics to TS, so I am now looking to see if there is something to learn from TS that can help me. Before I reset my temperature, I had atrial fibrillation and other health problems so bad that I couldn’t work. Now I am quite healthy and have no problem working, but it is hard for clients to take a consultant seriously who makes faces at them, or justify to their bosses paying triple-digit hourly fees. With kids to feed, this has a major impact on life here. Any thoughts, ideas, suggestions, pointers, speculation, etc., would be GREATLY appreciated. One good idea offsets a thousand bad ones, so I am open to anything. Please remember to CC your reply directly to me. Thanks in advance for your help. Steve
Response:
Subject: Re: Is this TS? From: Steve St…@smart-life.net Date: 8/24/02
Note that MOST people with childhood tonsillectomies have low daytime body temperatures, and ultimately die 20-30 years sooner than others!
Steve, I’d love to hear more about this. We had a discussion, probably a year ago at least, about low body temperature. My body temp has always been 97, but it was that way before I had my tonsils out at age 19. But I am curious as to how you raised your daytime temperature, if you’ve got time to talk about it. Just a thought about the tic that you describe. It could be induced by any number of things, including caffeine, or other medicinal remedies. I know I tic a lot on certain medications, and too much caffeine, and not at all at other times. Sara
Response:
Until a year ago, I had a LOT of health problems. Finally, I linked my growing basket of problems to my low 97.something daytime body temperature. I engineered a new way of resetting my daytime temperature back up to 98.6F, and was miraculously cured in a single day! Then about 4 months later and about 8 months ago I developed a "minor" back of neck and right lower jaw facial tic – like often needing to stretch these muscles. However, this does NOT happen at my 97.2F sleeping temp, only at my new 98.6F daytime temp! Some mornings I am slow getting up to 98.6F, sometimes taking as long as 2-3 hours after rising, which delays the start of my tics. Also, some rare days my temperature will drop before I go to bed, and sure enough, my tics stop when my temperature drops. Sure, my morning coffee gets it going, but from what I can tell, that is just because the coffee helps to bump my temperature up (which often needs a little extra bumping). The tic seems to be no worse in the morning, before my coffee wears off, than it is in the evening when I haven’t had any coffee for 16 hours or so. Hmmm, I wonder if everyone with TS has normal 98.6F daytime body temperature, while a full quarter of the general population is stuck at their 97.something normal sleeping temperature?! My tic seems to be stress related, and may be subsiding a little with time. I recently saw a program on the Discovery channel linking tics to TS, so I am now looking to see if there is something to learn from TS that can help me. Before I reset my temperature, I had atrial fibrillation and other health problems so bad that I couldn’t work. Now I am quite healthy and have no problem working, but it is hard for clients to take a consultant seriously who makes faces at them, or justify to their bosses paying triple-digit hourly fees. With kids to feed, this has a major impact on life here. Any thoughts, ideas, suggestions, pointers, speculation, etc., would be GREATLY appreciated. One good idea offsets a thousand bad ones, so I am open to anything. Please remember to CC your reply directly to me. Thanks in advance for your help. Steve
Response:
Hi Steve, Here are some good sites to learn about TS: http://tourettenowwhat.tripod.com/ http://www.eco.utexas.edu/~faulkner/tsfun/ I couldn’t seem to find the diagnostic criteria for TS, so will go from memory. (uh oh LOL) You must have multiple motor and at some point a vocal tic for more than one year, with the age of onset being 18 years old or before. There are alot of things that can cause tics. The best thing to do is go to a neurologist and have it checked out. Sorry i couldn’t be more help. Best Wishes, Jodi "Steve" <St…@smart-life.net
wrote in message
news:3D674A14.32714A78@smart-life.net… – Hide quoted text — Show quoted text -
Until a year ago, I had a LOT of health problems. Finally, I linked
my
growing basket of problems to my low 97.something daytime body temperature. I engineered a new way of resetting my daytime
temperature
back up to 98.6F, and was miraculously cured in a single day! Then about 4 months later and about 8 months ago I developed a
"minor"
back of neck and right lower jaw facial tic – like often needing to stretch these muscles. However, this does NOT happen at my 97.2F sleeping temp, only at my new 98.6F daytime temp! Some mornings I am slow getting up to 98.6F, sometimes taking as long as 2-3 hours after rising, which delays the start of my tics. Also, some rare days my temperature will drop before I go to bed, and sure enough, my tics
stop
when my temperature drops. Sure, my morning coffee gets it going, but from what I can tell, that is just because the coffee helps to bump
my
temperature up (which often needs a little extra bumping). The tic
seems
to be no worse in the morning, before my coffee wears off, than it is
in
the evening when I haven’t had any coffee for 16 hours or so. Hmmm, I wonder if everyone with TS has normal 98.6F daytime body temperature, while a full quarter of the general population is stuck
at
their 97.something normal sleeping temperature?! My tic seems to be stress related, and may be subsiding a little with time. I recently saw a program on the Discovery channel linking tics to TS,
so
I am now looking to see if there is something to learn from TS that
can
help me. Before I reset my temperature, I had atrial fibrillation and other health problems so bad that I couldn’t work. Now I am quite healthy
and
have no problem working, but it is hard for clients to take a
consultant
seriously who makes faces at them, or justify to their bosses paying triple-digit hourly fees. With kids to feed, this has a major impact
on
life here. Any thoughts, ideas, suggestions, pointers, speculation, etc., would
be
GREATLY appreciated. One good idea offsets a thousand bad ones, so I
am
open to anything. Please remember to CC your reply directly to me. Thanks in advance for your help. Steve
Response:
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