Posts belonging to Category 'High Thyroid'

Hypothyroid, Synthroid & high A1C ??

Question:

I have been assuming that a Thyroid problem would have signs and symptoms that are  - reasonably discernable and distinct. Ah well I shall just have to wait and see. You would think so.  But so many of the symptoms for thyroid can also be symptoms of something else.  And if you have additional health problems, it only muddies the waters.  My father in law had an undiagnosed thyroid problem for years!  He noticed that he was tired, had puffy eyes and was gaining weight.  But his Dr. kept telling him there was nothing wrong with him.  Finally my sister in law who is a nurse, went in to the Dr. with him and demanded they check his thyroid.  Bingo!

I hear of many similar tales. Thankfully, since becoming diabetic, I pay more attention to the little things which may or may not indicate something important. I am no longer content to amble along until something realy radical goes wrong and then rely upon the doc. But I think that is the trend for a lot of people now. The public are better informed than they used to be. Pete Diagnosed 20/03/03 Type II D&E + Metformin + Gliclazide + Asprin 210lbs at Dx to target 174lbs achieved. To mail: aspen3 at freeuk.com

Response:

I have been assuming that a Thyroid problem would have signs and symptoms that are  - reasonably discernable and distinct. Ah well I shall just have to wait and see.

You would think so.  But so many of the symptoms for thyroid can also be symptoms of something else.  And if you have additional health problems, it only muddies the waters.  My father in law had an undiagnosed thyroid problem for years!  He noticed that he was tired, had puffy eyes and was gaining weight.  But his Dr. kept telling him there was nothing wrong with him.  Finally my sister in law who is a nurse, went in to the Dr. with him and demanded they check his thyroid.  Bingo! — Type 2 http://users.bestweb.net/~jbove/

Response:

– Hide quoted text — Show quoted text – My doc thinks I might have a Thyroid problem. I have some tests next week to determine whether I have or not. I am of course concerned but am worried why? Since Dx all sorts of things are going wrong even though I have managed a fair degree of BG control etc. Is it possible that the meds I take might be causing a problem? I don’t think meds can cause a thyroid problem.  But certain meds can cause diabetes.  Beta Blockers have been linked to diabetes.  Certain steroids can bring on diabetes.  I’m sure there are others.  Thyroid problems can in some people bring on diabetes.  There used to be a poster here whose wife was diagnosed with diabetes and then a thyroid problem.  After the thyroid problem got under control, she no longer seemed to have diabetes.  I believe hers is probably a rare case though. I too have had a ton of things go wrong since being diagnosed with diabetes. Part of the problem is that when you have more than one medical problem, you are seeing a lot of different specialists.  Each one wants to focus on his or her specialty.  So many times I’ve been told "You have THIS!  You certainly don’t have THAT.  See?  I tested you.  THIS is what it is".  Then the next specialist I see will tell me "No!  You have this other thing.  It is THAT, but not what the other Dr. said it is."  And then I have the Drs. who don’t want to commit to anything.  "Well, if HE said you have THAT, then you have THAT!  Who am I to dispute him?"  Or, "Well, you might have THIS and you might also have THAT.  But let’s not worry about that now.  Lets just get you feeling better!"

I have been assuming that a Thyroid problem would have signs and symptoms that are  - reasonably discernable and distinct. Ah well I shall just have to wait and see. Pete Diagnosed 20/03/03 Type II D&E + Metformin + Gliclazide + Asprin 210lbs at Dx to target 174lbs achieved. To mail: aspen3 at freeuk.com

Response:

My doc thinks I might have a Thyroid problem. I have some tests next week to determine whether I have or not. I am of course concerned but am worried why? Since Dx all sorts of things are going wrong even though I have managed a fair degree of BG control etc. Is it possible that the meds I take might be causing a problem?

I don’t think meds can cause a thyroid problem.  But certain meds can cause diabetes.  Beta Blockers have been linked to diabetes.  Certain steroids can bring on diabetes.  I’m sure there are others.  Thyroid problems can in some people bring on diabetes.  There used to be a poster here whose wife was diagnosed with diabetes and then a thyroid problem.  After the thyroid problem got under control, she no longer seemed to have diabetes.  I believe hers is probably a rare case though. I too have had a ton of things go wrong since being diagnosed with diabetes. Part of the problem is that when you have more than one medical problem, you are seeing a lot of different specialists.  Each one wants to focus on his or her specialty.  So many times I’ve been told "You have THIS!  You certainly don’t have THAT.  See?  I tested you.  THIS is what it is".  Then the next specialist I see will tell me "No!  You have this other thing.  It is THAT, but not what the other Dr. said it is."  And then I have the Drs. who don’t want to commit to anything.  "Well, if HE said you have THAT, then you have THAT!  Who am I to dispute him?"  Or, "Well, you might have THIS and you might also have THAT.  But let’s not worry about that now.  Lets just get you feeling better!" — Type 2 http://users.bestweb.net/~jbove/

Response:

(cross-posted to both groups) I have probably had thyroid problems since diagnosis of diabetes (3 yrs.). Dr. has just started treating me for thyroid (2 mos.).  I am taking .5 Synthroid.  My A1c has risen from the 5’s to 6.1 (9 mos. ago) to 6.8 (3 months ago) to 7.1 (now).  We added more glucophage XR 3 months ago in hopes of knocking down my numbers.  My TSH went down a little, but my A1c continues to rise!?! Dr. keeps saying it is harder to control Diabetes when thyroid is out of whack. Any Hypos (thyroid) out there have this happen to them? Thanks, Julie E. T2 – 11/00

My doc thinks I might have a Thyroid problem. I have some tests next week to determine whether I have or not. I am of course concerned but am worried why? Since Dx all sorts of things are going wrong even though I have managed a fair degree of BG control etc. Is it possible that the meds I take might be causing a problem? Pete Diagnosed 20/03/03 Type II D&E + Metformin + Gliclazide + Asprin 210lbs at Dx to target 174lbs achieved. To mail: aspen3 at freeuk.com

Response:

– Hide quoted text — Show quoted text – Your Dr. is right.  I am hypo thyroid, but my former Endo. was giving me too much Synthroid and then when my insurance would no longer cover Synthroid, he switched me to Levoxyl, again too high a dose.  I did question him repeatedly because I was having all sorts of symptoms that I thought related to high thyroid.  He refused to let me see my labs and kept telling me that I was fine, and doing better than I was when I first saw him.  And during this period of time, I was having near constant hypos (BG). I have since moved to another state and have gotten a good team of Drs. Thyroid is right in range now.  In looking back, I can see that my low A1c and also my hypos (BG) were related to thyroid.  It was also very difficult for me to lose weight running hyper.  Go figure!  Since the move, my A1c has been 6.1, 6.3 and now 6.1 again.  Normal for my lab is <6.0. What I notice now is that my BG is not necessarily harder to control, but I must watch what I eat more carefully than I did before.  Now, foods are spiking me that didn’t spike me before.  And if I eat so much as one bite too many of certain foods, I have high BG.  When my thyroid was hyper, my main concern was eating enough carbs so I didn’t go hypo (BG)!  I still have a few hypos (BG) now, but they are infrequent.  And I am losing weight again.  So that’s good.  Another interesting thing I’ve noticed is that my psoriasis has cleared up.  I think when my thyroid was hyper, everything in my system was speeded up, including the rate in which my skin cells turned over. Makes it really difficult when you are battling more than one medical condition.  Seems like when you get one thing under control, another one gets out of whack. — Type 2 http://users.bestweb.net/~jbove/

I’m glad things are finally looking up in one area for you.  You are actually the one who got me to thinking about my Thyroid, well you and the fact that my hair was falling out – lol!  I keep telling DH that when my Thyroid is fixed, about 101 other things wrong with my body will start to heal.  Hey, a girl can hope!! Julie E

Response:

but, did you not say that you were running low BG’s?

Yes!  When I was hyper thyroid, I had low BG.  And this makes sense.  When the thyroid is hyper, everything in the body is speeded up.  When the thyroid is hypo, everything is slowed down.  So it also makes sense that hypo thyroid could lead to higher BG.  I have noticed having to change my diabetes meds and the amount of carbs I eat as my thyroid changes. — Type 2 http://users.bestweb.net/~jbove/

Response:

Julie, I am confused by your message…generally, we don’t run low BG’s if our TSH levels are low. If you are taking more thyroid medication your BG would go up, not down.

Low TSH = hyper thyroid.  High TSH = hypo thyroid.  Too much medication for hypo thyroid = hyper thyroid.  Confusing, but true. — Type 2 http://users.bestweb.net/~jbove/

Response:

but, did you not say that you were running low BG’s? — Steve Toronto, Canada

– Hide quoted text — Show quoted text – Julie, I am confused by your message…generally, we don’t run low BG’s if our TSH levels are low. If you are taking more thyroid medication your BG would go up, not down. Low TSH = hyper thyroid.  High TSH = hypo thyroid.  Too much medication for hypo thyroid = hyper thyroid.  Confusing, but true. — Type 2 http://users.bestweb.net/~jbove/

Response:

Julie, I am confused by your message…generally, we don’t run low BG’s if our TSH levels are low. If you are taking more thyroid medication your BG would go up, not down. — Steve Toronto, Canada

– Hide quoted text — Show quoted text – (cross-posted to both groups) I have probably had thyroid problems since diagnosis of diabetes (3 yrs.). Dr. has just started treating me for thyroid (2 mos.).  I am taking .5 Synthroid.  My A1c has risen from the 5’s to 6.1 (9 mos. ago) to 6.8 (3 months ago) to 7.1 (now).  We added more glucophage XR 3 months ago in hopes of knocking down my numbers.  My TSH went down a little, but my A1c continues to rise!?! Dr. keeps saying it is harder to control Diabetes when thyroid is out of whack. Any Hypos (thyroid) out there have this happen to them? Your Dr. is right.  I am hypo thyroid, but my former Endo. was giving me too much Synthroid and then when my insurance would no longer cover Synthroid, he switched me to Levoxyl, again too high a dose.  I did question him repeatedly because I was having all sorts of symptoms that I thought related to high thyroid.  He refused to let me see my labs and kept telling me that I was fine, and doing better than I was when I first saw him.  And during this period of time, I was having near constant hypos (BG). I have since moved to another state and have gotten a good team of Drs. Thyroid is right in range now.  In looking back, I can see that my low A1c and also my hypos (BG) were related to thyroid.  It was also very difficult for me to lose weight running hyper.  Go figure!  Since the move, my A1c has been 6.1, 6.3 and now 6.1 again.  Normal for my lab is <6.0. What I notice now is that my BG is not necessarily harder to control, but I must watch what I eat more carefully than I did before.  Now, foods are spiking me that didn’t spike me before.  And if I eat so much as one bite too many of certain foods, I have high BG.  When my thyroid was hyper, my main concern was eating enough carbs so I didn’t go hypo (BG)!  I still have a few hypos (BG) now, but they are infrequent.  And I am losing weight again.  So that’s good.  Another interesting thing I’ve noticed is that my psoriasis has cleared up.  I think when my thyroid was hyper, everything in my system was speeded up, including the rate in which my skin cells turned over. Makes it really difficult when you are battling more than one medical condition.  Seems like when you get one thing under control, another one gets out of whack. — Type 2 http://users.bestweb.net/~jbove/

Response:

(cross-posted to both groups) I have probably had thyroid problems since diagnosis of diabetes (3 yrs.). Dr. has just started treating me for thyroid (2 mos.).  I am taking .5 Synthroid.  My A1c has risen from the 5’s to 6.1 (9 mos. ago) to 6.8 (3 months ago) to 7.1 (now).  We added more glucophage XR 3 months ago in hopes of knocking down my numbers.  My TSH went down a little, but my A1c continues to rise!?! Dr. keeps saying it is harder to control Diabetes when thyroid is out of whack. Any Hypos (thyroid) out there have this happen to them?

Your Dr. is right.  I am hypo thyroid, but my former Endo. was giving me too much Synthroid and then when my insurance would no longer cover Synthroid, he switched me to Levoxyl, again too high a dose.  I did question him repeatedly because I was having all sorts of symptoms that I thought related to high thyroid.  He refused to let me see my labs and kept telling me that I was fine, and doing better than I was when I first saw him.  And during this period of time, I was having near constant hypos (BG). I have since moved to another state and have gotten a good team of Drs. Thyroid is right in range now.  In looking back, I can see that my low A1c and also my hypos (BG) were related to thyroid.  It was also very difficult for me to lose weight running hyper.  Go figure!  Since the move, my A1c has been 6.1, 6.3 and now 6.1 again.  Normal for my lab is <6.0. What I notice now is that my BG is not necessarily harder to control, but I must watch what I eat more carefully than I did before.  Now, foods are spiking me that didn’t spike me before.  And if I eat so much as one bite too many of certain foods, I have high BG.  When my thyroid was hyper, my main concern was eating enough carbs so I didn’t go hypo (BG)!  I still have a few hypos (BG) now, but they are infrequent.  And I am losing weight again.  So that’s good.  Another interesting thing I’ve noticed is that my psoriasis has cleared up.  I think when my thyroid was hyper, everything in my system was speeded up, including the rate in which my skin cells turned over. Makes it really difficult when you are battling more than one medical condition.  Seems like when you get one thing under control, another one gets out of whack. — Type 2 http://users.bestweb.net/~jbove/

Response:

(cross-posted to both groups) I have probably had thyroid problems since diagnosis of diabetes (3 yrs.). Dr. has just started treating me for thyroid (2 mos.).  I am taking .5 Synthroid.  My A1c has risen from the 5’s to 6.1 (9 mos. ago) to 6.8 (3 months ago) to 7.1 (now).  We added more glucophage XR 3 months ago in hopes of knocking down my numbers.  My TSH went down a little, but my A1c continues to rise!?! Dr. keeps saying it is harder to control Diabetes when thyroid is out of whack. Any Hypos (thyroid) out there have this happen to them? Thanks, Julie E. T2 – 11/00

Response:

Advice needed, please

Question:

We don’t have health insurance, so I don’t want to rack up a ton of medical bills, although I know I am going to have to soon.

Sherry — if you don’t have insurance — did someone mention that WalMart has a good meter and their strips are pretty cheap? Good luck. bj

– Hide quoted text — Show quoted text – I was diagnosed with type 2 diabetes about 4 years ago, I guess.  Well, the last time I checked my blood sugar was at least 2 years ago and it was probably 6 months before that that I saw my doctor. I have not been watching what I eat at all.  I keep telling myself that I need to be more careful, but I am too discouraged.

Response:

: I was diagnosed with type 2 diabetes about 4 years ago, I guess.  Well, the : last time I checked my blood sugar was at least 2 years ago and it was : probably 6 months before that that I saw my doctor. NOT GOOD : : I have not been watching what I eat at all.  I keep telling myself that I : need to be more careful, but I am too discouraged. NOT GOOD : : We don’t have health insurance, so I don’t want to rack up a ton of medical : bills, although I know I am going to have to soon. You do not want to rack up medical bills but yet you dont test your sugar, you dont watch what you eat.  seems to me you are taking the path to high medical bills. : : I ate 2 hotdogs in buns about 4 hours ago and washed it down with a nice : cold Coke. was it diet coke?  i am thinking NO… NOT GOOD : : I feel unusually tired and weak.  I get the courage to check my blood sugar. : It is 346.  346 four hours after eating. NOT GOOD : : I am now really scared that I have done damage to my organs. Pretty high price to pay for eating the wrong way? kinda takes the fun out of not watching what you eat.   Can anyone : tell me if it is possible to have this high of blood sugar for a long period : of time and NOT have damage? From what i know..IT DOES NOT LOOK GOOD.  :What would the symptoms be?  i am sure someone will tell you the symptoms. however they will be the least of your problems Is it possible : for me lower this blood sugar without going to the doctors? YES.  start by not drinking coke unless it is diet.  you only told us one meal wonder what your other meals and snacks look like. Any advice? where do you live that you do not have health insurance? : : Thank you!

Response:

Julie, I know I haven’t been smart about how I have handled my health, I am really just trying to find the courage inside to make the damned doctor appointment.  I need some kind of positive moral support and don’t know where to find it.  I need to find some encouragement to do the right thing. I am 34 years old and have 2 young children. I feel like the biggest loser

Not Julie, (sorry) Well I am a little older, and have no kids myself, so I can’t comment on that, but I know the rest of the feelings. Amongst my other ailments, I am agoraphobic with a side of bi-polar disorder. The one benefit I did have,( and quite the benefit it is I’ll tell ya) is having T1, and T2 on both sides of my family tree, so that, in and of itself, held no particular fear for me. My teeth were one of my things. I had so many abcesses, tooth aches, lost fillings, and everything else wrong with my teeth, that I never smiled, and I was afraid to go to the dentist because I was afraid of what he or she would think of me. Got so bad I had to go eventually, and ended up having all but 5 teeth pulled. No fun I assure you. and am SO depressed!  I don’t know if I can mentally face my doctor at all! I feel like they all look down on me because I have been so careless. I am not here looking for tough love, just some advice.  I feel like going to the doctor now is just hopeless and she will just give me a bad diagnosis.  After reading your reply, I feel even more stupid about going back to the doctor.  I am sure she will share your opinion.  I wish to god my kids were older, because if they were, I wouldn’t give a rats crap about just dying.

In some of my lower moments, I think the only thing keeping me alive, is that my mom is 78 and I couldn’t put her through it. I still think sometimes, that when she goes, I go, and even rationalize that the family would have to go through less mourning if we both die at the same time. Pretty morbid huh? The mind can do terrible things to us. I just really would like to know what the symptoms are?  If it is even heard of to allow your blood sugar to read very high numbers like this for a long period of time and have NO damage?  Is there a possibility?  Or am I doomed for sure?

Diabetes is a crap shoot all the way. Kinda like the guy that smokes 5 packs a day, lives on junk food, drinks like a fish, and get runs over by a beer truck leaping out of his girlfriends window, being chased by a jealous husband at age 103. Then there is the flip side, that being the person who does all the right things, and dies of a heart attack at 25.. Most certainly, taking care of yourself, and doing the right things will help minimize your chances of anything bad happening, but nothing is written. (sorry bad inside joke). You are by no means doomed. There are a lot of people here who suffer from depression and diabetes, amongst other things. You found your way here didn’t you? Sure as hell is a good start. Hang in there…. Sleepy – Hide quoted text — Show quoted text – I was diagnosed with type 2 diabetes about 4 years ago, I guess.  Well, the last time I checked my blood sugar was at least 2 years ago and it was probably 6 months before that that I saw my doctor. Oh dear.  That’s very bad.  You could have done all sorts of damage to your body and not even know it.  You really must get to the Dr. ASAP! I have not been watching what I eat at all.  I keep telling myself that I need to be more careful, but I am too discouraged. Why are you discouraged?  Do you value your legs?  Your eyes?  Your life? These are the things you can lose of you don’t get your BG under control. And dying of diabetes isn’t pretty.  It’s a slow and VERY painful death. We don’t have health insurance, so I don’t want to rack up a ton of medical bills, although I know I am going to have to soon. Yes, unfortunately you will have to. I ate 2 hotdogs in buns about 4 hours ago and washed it down with a nice cold Coke. A Coke?  Not a diet Coke?  Well, there was just NO excuse for that at all. That was a choice that you made. I feel unusually tired and weak.  I get the courage to check my blood sugar. It is 346.  346 four hours after eating. No doubt!  Did you use a strip that was not expired?  Since you say you haven’t checked your blood for 2 years, I would think you probably wouldn’t have a good strip.  If so, your BG could well be even higher than that. And if it was that high at 4 hours after eating, it was probably WAY higher at the 2 hour mark.  You should probably check your urine for ketones. I am now really scared that I have done damage to my organs.  Can anyone tell me if it is possible to have this high of blood sugar for a long period of time and NOT have damage?  What would the symptoms be?  Is it possible for me lower this blood sugar without going to the doctors?  Any advice? You might not have any symptoms at all.  Neuropathy tends to come on slowly. Kidney failure has no symptoms in the beginning.  Retinopathy has no symptoms wither.  My advice is to cut the carbs at least for now.  Test your BG and see your Dr. ASAP!  You should probably be on meds. or insulin. — Type 2 http://users.bestweb.net/~jbove/

"I don’t belong to any organized political party….. I’m a Democrat". Will Rogers

Response:

Sherry, I see that you are very depressed and that depression could be caused by consistent high blood sugars,  If I were you and have been you, being depressed is a very bad thing, I would see a doctor about that,  You seem to feel hopeless, and could care whether you  lived or died,  You are too young and you have two small children,  You dont mention a husband and perhaps that is part of the cause of the depression,  I do know that getting numbers under control lessewns the depressed feeling we have,  A professional who will give you therapy and perhaps medication willl make the sun shine about your head again,  Of all the diseases, even though it wont kill you, depressions is a horror. No one should have to live that way and with todays psychiatrists and meds, there is no reason to. Please see a professional and see your doctor,  You pay him. he doesnt pay you so you shouldnt be worrying what he will say because you have not been compliant,  He will be glad that you have returned sooner than later and will extend a helping hand. good luck and stay with us,  Welcome to our group , the one each of us never thought we would belong to, but are glad is here for us. Loretta — In tribute to the United States of America and the State of Israel, two bastions of strength in a world filled with strife and terrorism.

Response:

I do have a husband and he is a very good guy.  I don’t want to talk to him about how I feel because he gets too upset and worries about me. I do care that I live or die, because of my children!  I love my kids with all of my heart and don’t want them to be motherless.  I am going to go to my doctor, I am going to force myself to do it. Thank you Sherry

– Hide quoted text — Show quoted text – Sherry, I see that you are very depressed and that depression could be caused by consistent high blood sugars,  If I were you and have been you, being depressed is a very bad thing, I would see a doctor about that,  You seem to feel hopeless, and could care whether you  lived or died,  You are too young and you have two small children,  You dont mention a husband and perhaps that is part of the cause of the depression,  I do know that getting numbers under control lessewns the depressed feeling we have,  A professional who will give you therapy and perhaps medication willl make the sun shine about your head again,  Of all the diseases, even though it wont kill you, depressions is a horror. No one should have to live that way and with todays psychiatrists and meds, there is no reason to. Please see a professional and see your doctor,  You pay him. he doesnt pay you so you shouldnt be worrying what he will say because you have not been compliant,  He will be glad that you have returned sooner than later and will extend a helping hand. good luck and stay with us,  Welcome to our group , the one each of us never thought we would belong to, but are glad is here for us. Loretta — In tribute to the United States of America and the State of Israel, two bastions of strength in a world filled with strife and terrorism.

Response:

I do care.  I am just afraid.  Afraid of everything that has to do with making and going to a doctor appointment. I don’t know why I am so dang depressed! I know this is part of why I am taking this so bad!  I guess I was ok till I checked my blood sugar and when I saw it was crazy like that, omg, I couldn’t believe it!  I have no idea how long it has been like this, maybe for years. I will call my doctor tomorrow.  God, I hate even thinking about going in there!  I feel like I am going to have a panic attack just thinking about it! I do need to research more on diabetes, I mean, I know I shouldn’t eat carbs and sugary stuff, but don’t realy understand my more than that. Thank you all for your replies, maybe within the next few days I can feel "rational" again and post without so much emotions.  By the way, I quit smoking 2 weeks ago too, so perhaps this is another reason for my high blood sugar level and for my out of control emotions….. At any rate, I will be calling the doc. Blessings Sherry

– Hide quoted text — Show quoted text – My vision continually goes blurry then ok blurry then double vision…. it is awful.  I just tested my blood again and the only thing I have consumed since eating around 5 or so hours ago was water…. My blood sugar is now up to 367.  Why is it still going up? Oh, I checked the date on the strips and they are expired by a year. Could this cause it to read too high? You are probably getting readings that are *lower* than what you really are at if you’re using expired strips.  As for why your BG went up, it’s probably because you didn’t eat.  Keep in mind that with numbers that high, you probably have glucose poisoning and they might remain wacky until you get some meds or insulin.  oldAl could give you a better explanation of this than I could. Never skip a meal.  This will just make your BG go up.  For the time being, try to nix as many carbs as you can.  No bread, pasta, cereal, fruit, juice, milk, peas, corn, dried beans, sugar, etc.  Eat protein like meat, fish, chicken, cheese, eggs and add some non-starchy veggies like salad, green beans, celery, cucumbers, etc.  You are probably going to feel VERY hungry. High BG does that to you.  And you want to drink a LOT of fluid to prevent dehydration.  The best things to drink are water, hot tea, and hot broth. Do not go any longer than 4-5 hours between eating.  This will  help prevent your liver from dumping glucose and causing you to go higher.  Keep in mind that you are only doing this until you can get your BG down.  You’ll probably feel REALLY sick as your BG begins to come down.  If you do have neuropathy, you can expect that to cause you more pain as your BG goes down. But once you get things under control, your vision will come back, your pain (if any) will decrease, your energy level will go up and you’ll feel better in general.  You also should not try to exercise with BG that high.  Doing so could make it higher. Rest, cut the carbs, drink fluids, get some new strips, make an appointment with the Dr. and if you can’t get right in, you might consider going to the hospital.  There, you could get insulin to get your BG back down quickly. But you’ll still need to see your Dr. — Type 2 http://users.bestweb.net/~jbove/

Response:

I am really sorry that you have become your own worst enemy,  I have been told that we do damage to our body every time we go over 160 so I imagine you would do permanent damage with numbers running like that all the time,. You say you dont have insurance and therefore dont want to have to spend money on preventive care,  But I guess you havent thought about the consequences of that behavior  By  not going to the doctor and putting yourself in harms way,. you will surely have much. much higher medical bills had you been a controlled diabetic, Please see  a doctor asap and get on the program before you develoop those complications like blindness, kidney failure,. neuropathy, amputation that comes with terrible control.  You will be doing more harm to your family later than if you take charge now. Please see your doctor,  You have come to us because you need help,  We are here for that, but you have to take the first step and get the ball rolling,  We are here for support and information and ask us any question you want,  We have all been there and done that so we can help. Again, do yourself and your family a favor and go see a doctor . Please dont destroy your life. Loretta — In tribute to the United States of America and the State of Israel, two bastions of strength in a world filled with strife and terrorism.

Response:

I concur with all of Julie’s advice.  Once I started eating correctly, meaning more than one long binge in the evening on some very bad food, my numbers started leveling out, but not before they went crazy for a couple days.  Through the roof, then through the floor.  It was my body telling me it wasn’t used to getting nutrition in normal amounts at normal intervals.  Also, lots of water, keep hydrated. Main thing though is just to hang out here a lot, read the posts that help you, and ignore the ones that don’t.  Ask questions, lots of questions about anything.  The answers will come to you. Bonita

– Hide quoted text — Show quoted text – My vision continually goes blurry then ok blurry then double vision…. it is awful.  I just tested my blood again and the only thing I have consumed since eating around 5 or so hours ago was water…. My blood sugar is now up to 367.  Why is it still going up? Oh, I checked the date on the strips and they are expired by a year. Could this cause it to read too high? You are probably getting readings that are *lower* than what you really are at if you’re using expired strips.  As for why your BG went up, it’s probably because you didn’t eat.  Keep in mind that with numbers that high, you probably have glucose poisoning and they might remain wacky until you get some meds or insulin.  oldAl could give you a better explanation of this than I could. Never skip a meal.  This will just make your BG go up.  For the time being, try to nix as many carbs as you can.  No bread, pasta, cereal, fruit, juice, milk, peas, corn, dried beans, sugar, etc.  Eat protein like meat, fish, chicken, cheese, eggs and add some non-starchy veggies like salad, green beans, celery, cucumbers, etc.  You are probably going to feel VERY hungry. High BG does that to you.  And you want to drink a LOT of fluid to prevent dehydration.  The best things to drink are water, hot tea, and hot broth. Do not go any longer than 4-5 hours between eating.  This will  help prevent your liver from dumping glucose and causing you to go higher.  Keep in mind that you are only doing this until you can get your BG down.  You’ll probably feel REALLY sick as your BG begins to come down.  If you do have neuropathy, you can expect that to cause you more pain as your BG goes down. But once you get things under control, your vision will come back, your pain (if any) will decrease, your energy level will go up and you’ll feel better in general.  You also should not try to exercise with BG that high.  Doing so could make it higher. Rest, cut the carbs, drink fluids, get some new strips, make an appointment with the Dr. and if you can’t get right in, you might consider going to the hospital.  There, you could get insulin to get your BG back down quickly. But you’ll still need to see your Dr. — Type 2 http://users.bestweb.net/~jbove/

Response:

My vision continually goes blurry then ok blurry then double vision…. it is awful.  I just tested my blood again and the only thing I have consumed since eating around 5 or so hours ago was water…. My blood sugar is now up to 367.  Why is it still going up? Oh, I checked the date on the strips and they are expired by a year. Could this cause it to read too high?

You are probably getting readings that are *lower* than what you really are at if you’re using expired strips.  As for why your BG went up, it’s probably because you didn’t eat.  Keep in mind that with numbers that high, you probably have glucose poisoning and they might remain wacky until you get some meds or insulin.  oldAl could give you a better explanation of this than I could. Never skip a meal.  This will just make your BG go up.  For the time being, try to nix as many carbs as you can.  No bread, pasta, cereal, fruit, juice, milk, peas, corn, dried beans, sugar, etc.  Eat protein like meat, fish, chicken, cheese, eggs and add some non-starchy veggies like salad, green beans, celery, cucumbers, etc.  You are probably going to feel VERY hungry. High BG does that to you.  And you want to drink a LOT of fluid to prevent dehydration.  The best things to drink are water, hot tea, and hot broth. Do not go any longer than 4-5 hours between eating.  This will  help prevent your liver from dumping glucose and causing you to go higher.  Keep in mind that you are only doing this until you can get your BG down.  You’ll probably feel REALLY sick as your BG begins to come down.  If you do have neuropathy, you can expect that to cause you more pain as your BG goes down. But once you get things under control, your vision will come back, your pain (if any) will decrease, your energy level will go up and you’ll feel better in general.  You also should not try to exercise with BG that high.  Doing so could make it higher. Rest, cut the carbs, drink fluids, get some new strips, make an appointment with the Dr. and if you can’t get right in, you might consider going to the hospital.  There, you could get insulin to get your BG back down quickly. But you’ll still need to see your Dr. — Type 2 http://users.bestweb.net/~jbove/

Response:

Go to a doctor – do it today – don’t delay…… You are exhibiting classic diabetic symptoms…… Your blood sugar is high because of what you are eating and because you aren’t being treated……never mind the dates on the strips, you are looking for an "excuse"…..! You have a serious disease – get treated! Get to a doctor, get treated, watch your diet – you can EASILY control your disease….. It’s chronic, it won’t go away, but it can be treated…… See a doctor – TODAY! PC

| My vision continually goes blurry then ok blurry then double vision…. it | is awful.  I just tested my blood again and the only thing I have consumed | since eating around 5 or so hours ago was water…. My blood sugar is now up | to 367.  Why is it still going up? | Oh, I checked the date on the strips and they are expired by a year. Could | this cause it to read too high? |

| | I was diagnosed with type 2 diabetes about 4 years ago, I guess.  Well, | the | last time I checked my blood sugar was at least 2 years ago and it was | probably 6 months before that that I saw my doctor. | | I have not been watching what I eat at all.  I keep telling myself that I | need to be more careful, but I am too discouraged. | | We don’t have health insurance, so I don’t want to rack up a ton of | medical | bills, although I know I am going to have to soon. | | I ate 2 hotdogs in buns about 4 hours ago and washed it down with a nice | cold Coke. | | I feel unusually tired and weak.  I get the courage to check my blood | sugar. | It is 346.  346 four hours after eating. | | I am now really scared that I have done damage to my organs.  Can anyone | tell me if it is possible to have this high of blood sugar for a long | period | of time and NOT have damage?  What would the symptoms be?  Is it possible | for me lower this blood sugar without going to the doctors?  Any advice? | | Thank you! | | Gees uncontrolled BG’s for about 4 years.  BG of 346 after 4 hours. | Could you see anything?  I would say you need to see a doctor like | tomorrow. | | http://www.tcainternet.com/retired/index.html | | |

Response:

Sherry, I didn’t get your post but will post off Bonita just to let you know that I am beside you 100 percent. I know what it is like to be where you are now and how you feel so alone. Julie is a kind person and doesn’t mean to hurt you and I got to looking at my reply and thought how I sounded too and I am sorry. I know the physical and emotional pain I have when my numbers are really high. Sherry, just two months or so ago my numbers for a very very long time had stayed around the 500 range and I had such physical pain and swelling in my legs to the point I would pray that if I was saved for God to take me home. I was an emotional mess and an even bigger physical mess. My only support I felt was right here in ASD. I lurked for weeks and then would post and left for a while but kept coming back because I knew this group "really" cared about me. About two months ago I looked at my six year old Grandson, I am only 52 years old myself and I thought , Oh how the years have slipped by and I was missing out on his entire childhood by never feeling good. I then decided that I had to care about "me" before anyone could help me. "I" had to help "me" before others could join in and so I started on my venture to make Diana a well and healthy person and agreed to go on Insulin as well as oral meds and now I am doing really good. Just a couple weeks ago I started trying to walk to become stronger. I am determined to not miss out on any more of my Grandson’s life. I want to play with and take him places so he will enjoy his Memaw before it is too late. I tell you this because I have been you. I have insurance but I have NO co-pay and I have to pay for everything up front. My medications alone cost over 1000 dollars a month not counting the oxygen and the nebulizer breathing treatments I am on. My goal is to become medication free and I have that determination to make it happen. I hope with our help you too can find that same determination. Just don’t give up. Hang in here with us and let us help you. Some do lean toward tough love. I myself , like you, need a more gentle approach. Take care and know that you are not alone and we do not want you to die. God knows we have already lost three people we grew to care about and know from in here and we don’t want to lose more so sometimes we may sound harsh but it isn’t intended to hurt you. We want you to be well. So do your children. Di

Sherry, each of us here have a different way of expressing our

concern about you, and believe me, your message will have touched more than a few hearts. Do you know why? Because we were just like you, in the same boat, feeling just as lost, scared, and yes, even dumb. If someone’s answer may seem sharp, remember the love and

understanding that goes – Hide quoted text — Show quoted text – into that reaction.  If they didn’t care, they wouldn’t even bother to post a reply. Sometimes we need a big hug, and sometimes we need a boot in the ass.  I’m one of those who need the boot a bit more often than others because I’m a stubborn mule when it comes to my food. When I got more scared than stubborn, I didn’t even care whether I looked dumb or not.  I just wanted help.  And help I got, not always what I wanted to hear, sometimes things I wasn’t ‘ready’ to hear, but I stayed and I stayed and I listened even when it hurt me.  You stay too, okay?  We can be newbies together. Bonita Julie, I know I haven’t been smart about how I have handled my health, I am really just trying to find the courage inside to make the damned doctor appointment.  I need some kind of positive moral support and don’t know where to find it.  I need to find some encouragement to do the right thing. I am 34 years old and have 2 young children.  I feel like the biggest loser and am SO depressed!  I don’t know if I can mentally face my doctor at all! I feel like they all look down on me because I have been so careless. I am not here looking for tough love, just some advice.  I feel like going to the doctor now is just hopeless and she will just give me a bad diagnosis.  After reading your reply, I feel even more stupid about going back to the doctor.  I am sure she will share your opinion.  I wish to god my kids were older, because if they were, I wouldn’t give a rats crap about just dying. I just really would like to know what the symptoms are?  If it is even heard of to allow your blood sugar to read very high numbers like this for a long period of time and have NO damage?  Is there a possibility?  Or am I doomed for sure? I was diagnosed with type 2 diabetes about 4 years ago, I guess.  Well, the last time I checked my blood sugar was at least 2 years ago and it was probably 6 months before that that I saw my doctor. Oh dear.  That’s very bad.  You could have done all sorts of damage to your body and not even know it.  You really must get to the Dr. ASAP! I have not been watching what I eat at all.  I keep telling myself that I need to be more careful, but I am too discouraged. Why are you discouraged?  Do you value your legs?  Your eyes? Your life? These are the things you can lose of you don’t get your BG under control. And dying of diabetes isn’t pretty.  It’s a slow and VERY painful death. We don’t have health insurance, so I don’t want to rack up a ton of medical bills, although I know I am going to have to soon. Yes, unfortunately you will have to. I ate 2 hotdogs in buns about 4 hours ago and washed it down with a nice cold Coke. A Coke?  Not a diet Coke?  Well, there was just NO excuse for that at all. That was a choice that you made. I feel unusually tired and weak.  I get the courage to check my blood sugar. It is 346.  346 four hours after eating. No doubt!  Did you use a strip that was not expired?  Since you say you haven’t checked your blood for 2 years, I would think you probably wouldn’t have a good strip.  If so, your BG could well be even higher than that. And if it was that high at 4 hours after eating, it was probably WAY higher at the 2 hour mark.  You should probably check your urine for ketones. I am now really scared that I have done damage to my organs. Can anyone tell me if it is possible to have this high of blood sugar for a long period of time and NOT have damage?  What would the symptoms be?  Is it possible for me lower this blood sugar without going to the doctors? Any advice? You might not have any symptoms at all.  Neuropathy tends to come on slowly. Kidney failure has no symptoms in the beginning.  Retinopathy has no symptoms wither.  My advice is to cut the carbs at least for now.  Test your BG and see your Dr. ASAP!  You should probably be on meds. or insulin. — Type 2 http://users.bestweb.net/~jbove/

Response:

Julie, I know I haven’t been smart about how I have handled my health, I am really just trying to find the courage inside to make the damned doctor appointment.  I need some kind of positive moral support and don’t know where to find it.  I need to find some encouragement to do the right thing. I am 34 years old and have 2 young children.  I feel like the biggest loser and am SO depressed!  I don’t know if I can mentally face my doctor at all! I feel like they all look down on me because I have been so careless.

Your Dr. isn’t going to look down on you.  They are there to help you.  And you’d be surprised how many diabetics do NOT watch what they eat or check their BG.  Probably a lot more than those that do.  Those of us in this NG are really in the minority. The courage you need to find could stem from the fact that you *do* have two children.  You need to take care of yourself for their sake.  And another thing.  If your BG is out of countrol you may well not be thinking clearly. High BG can wreck havoc on the emotions. I am not here looking for tough love, just some advice.  I feel like going to the doctor now is just hopeless and she will just give me a bad diagnosis.  After reading your reply, I feel even more stupid about going back to the doctor.  I am sure she will share your opinion.  I wish to god my kids were older, because if they were, I wouldn’t give a rats crap about just dying.

It’s not my opinion.  I am just trying to spur you into getting this taken care of.  I have a friend who is elderly.  His is diabetic.  I am worried now because I haven’t heard from him in a while.  His kidneys are bad, he has CHF, neuropathy, and has been told on more than one occasion that they’ll probably have to amputate his leg.  He does not watch what he eats and he does not test his BG unless I hound him to do it.  And I *only* hound him to do it when his behavior starts getting really strange.  It’s not my place to tell him what to eat or when to test.  He doesn’t care.  He really doesn’t. It sounds to me like you *do* care.  That’s why you came here.  If you don’t want to carry on the path you’ve been on, there are only certain things you can do.  Those things are to watch what you eat.  More specifically cut the carbs WAY back until you get this under control.  See your Dr. ASAP.  And finally, test your blood frequently. I just really would like to know what the symptoms are?  If it is even heard of to allow your blood sugar to read very high numbers like this for a long period of time and have NO damage?  Is there a possibility?  Or am I doomed for sure?

Nobody here knows.  Unfortunately damage isn’t always diagnosed by symptoms. I had GD.  Was diagnosed just over a year after giving birth with type 2. And why was I diagnosed?  Because I couldn’t walk.  At least not very well. I had constant horrible pain.  My legs were swollen badly.  I had no sense of balance.  I could go on and on with symptoms.  But I won’t bore you with that.  Was eventually told I had moderate neuropathy (nerve damage) in my lower feet and legs due to the diabetes.  And yet I was also told that I didn’t fit the pattern of someone with neuropathy because I was young (41 at the time), never had a period of time where BG was wildly high, and had been recently diagnosed.  Later, a heart problem cropped up.  This too was said to have been caused by the neuropathy. Now I’ve since moved to another state and have been given totally different diagnosis’s.  Drs. here now tell me that I have stasis dermatitis caused by venous insufficiency.  This was the problem with my legs.  Not related to diabetes they said.  It was also discovered that the thyroid problem that cropped up during pregnancy was being overtreated making me hyper (high) thyroid.  After some dosage adjustments, no more hyper thyroid.  My symptoms went away.  No more heart problem.  Now, do I have neuropathy?  The Drs. here say I don’t.  And yet the standard test for it indicates that I did have it.  Could my nerves have been compressed from all the swelling? Perhaps. So you see, symptoms are really pretty meaningless.  For me to give you a list of possible symptoms (and there would be a ton) would do more harm than good.  You must get to the Dr. ASAP. There are a whole slew of things that can crop up if you let your BG rage out of control.  Some are merely bothersome and some are serious.  You could have yeast infections, boils, other infections and skin problems, heart problems, kidney problems, eye problems, nerve damage, the list goes on and on.  Nobody knows who is going to have the problems.  Some people do everything within their power and still have complications.  Others take the carefree approach and have no complications at all.  There is just so much we don’t know about diabetes. — Type 2 http://users.bestweb.net/~jbove/

Response:

Sherry, each of us here have a different way of expressing our concern about you, and believe me, your message will have touched more than a few hearts.  Do you know why? Because we were just like you, in the same boat, feeling just as lost, scared, and yes, even dumb. If someone’s answer may seem sharp, remember the love and understanding that goes into that reaction.  If they didn’t care, they wouldn’t even bother to post a reply. Sometimes we need a big hug, and sometimes we need a boot in the ass.  I’m one of those who need the boot a bit more often than others because I’m a stubborn mule when it comes to my food. When I got more scared than stubborn, I didn’t even care whether I looked dumb or not.  I just wanted help.  And help I got, not always what I wanted to hear, sometimes things I wasn’t ‘ready’ to hear, but I stayed and I stayed and I listened even when it hurt me.  You stay too, okay?  We can be newbies together. Bonita

– Hide quoted text — Show quoted text – Julie, I know I haven’t been smart about how I have handled my health, I am really just trying to find the courage inside to make the damned doctor appointment.  I need some kind of positive moral support and don’t know where to find it.  I need to find some encouragement to do the right thing. I am 34 years old and have 2 young children.  I feel like the biggest loser and am SO depressed!  I don’t know if I can mentally face my doctor at all! I feel like they all look down on me because I have been so careless. I am not here looking for tough love, just some advice.  I feel like going to the doctor now is just hopeless and she will just give me a bad diagnosis.  After reading your reply, I feel even more stupid about going back to the doctor.  I am sure she will share your opinion.  I wish to god my kids were older, because if they were, I wouldn’t give a rats crap about just dying. I just really would like to know what the symptoms are?  If it is even heard of to allow your blood sugar to read very high numbers like this for a long period of time and have NO damage?  Is there a possibility?  Or am I doomed for sure? I was diagnosed with type 2 diabetes about 4 years ago, I guess.  Well, the last time I checked my blood sugar was at least 2 years ago and it was probably 6 months before that that I saw my doctor. Oh dear.  That’s very bad.  You could have done all sorts of damage to your body and not even know it.  You really must get to the Dr. ASAP! I have not been watching what I eat at all.  I keep telling myself that I need to be more careful, but I am too discouraged. Why are you discouraged?  Do you value your legs?  Your eyes?  Your life? These are the things you can lose of you don’t get your BG under control. And dying of diabetes isn’t pretty.  It’s a slow and VERY painful death. We don’t have health insurance, so I don’t want to rack up a ton of medical bills, although I know I am going to have to soon. Yes, unfortunately you will have to. I ate 2 hotdogs in buns about 4 hours ago and washed it down with a nice cold Coke. A Coke?  Not a diet Coke?  Well, there was just NO excuse for that at all. That was a choice that you made. I feel unusually tired and weak.  I get the courage to check my blood sugar. It is 346.  346 four hours after eating. No doubt!  Did you use a strip that was not expired?  Since you say you haven’t checked your blood for 2 years, I would think you probably wouldn’t have a good strip.  If so, your BG could well be even higher than that. And if it was that high at 4 hours after eating, it was probably WAY higher at the 2 hour mark.  You should probably check your urine for ketones. I am now really scared that I have done damage to my organs.  Can anyone tell me if it is possible to have this high of blood sugar for a long period of time and NOT have damage?  What would the symptoms be?  Is it possible for me lower this blood sugar without going to the doctors?  Any advice? You might not have any symptoms at all.  Neuropathy tends to come on slowly. Kidney failure has no symptoms in the beginning.  Retinopathy has no symptoms wither.  My advice is to cut the carbs at least for now.  Test your BG and see your Dr. ASAP!  You should probably be on meds. or insulin. — Type 2 http://users.bestweb.net/~jbove/

Response:

I don’t have insurance either, so I know it’s a challenge, but you can do a great deal for yourself after the initial doctor visits. Start with learning all you can about foods and how they affect you by using Jennifer’s advice and testing often. Buy a cheap Relion Meter at Wal-Mart for that. Once you get your BG under better control, you won’t have to see a doctor as often as you need to at first. In a perfect world, you would be able to get the medical care you need without worrying about it, but this isn’t a perfect world, and sometimes cuts have to be made in other areas in order to make sure that you get vital things like testing supplies medications etc., Not developing some of the health problems which you are surely headed for if you don’t take action,  will be much cheaper in the long run. I wish you the best and reading the groups will be a big help, at least it has been for me. Cheri – Hide quoted text — Show quoted text – I was diagnosed with type 2 diabetes about 4 years ago, I guess.  Well, the last time I checked my blood sugar was at least 2 years ago and it was probably 6 months before that that I saw my doctor. I have not been watching what I eat at all.  I keep telling myself that I need to be more careful, but I am too discouraged. We don’t have health insurance, so I don’t want to rack up a ton of medical bills, although I know I am going to have to soon. I ate 2 hotdogs in buns about 4 hours ago and washed it down with a nice cold Coke. I feel unusually tired and weak.  I get the courage to check my blood sugar. It is 346.  346 four hours after eating. I am now really scared that I have done damage to my organs.  Can anyone tell me if it is possible to have this high of blood sugar for a long period of time and NOT have damage?  What would the symptoms be?  Is it possible for me lower this blood sugar without going to the doctors?  Any advice? Thank you!

Response:

Oh, Sherry, my heart just goes out to you, hon.  I’m you, two weeks ago.  I came in here to these people desperate but hoping I could continue to eat whatever I wanted to and ignore that I am a diabetic.  My serious spikes also went into the range you mentioned, sometimes even higher. All I can say to you is this — if you are serious about gaining control over your blood sugars, you will find a way, and it can be done.  I’m living proof, right here before you.  My numbers are falling on a daily basis, my average keeps creeping on down.  How?  I listened to these people and stopped trying to fool myself that if I just didn’t think about my diabetes, it didn’t matter. It does matter.  You know that.  It’s why you’re here.  Listen to these people, let them help you, and know that you can get better starting this very day, but only if you want it badly enough.  If you’re all finished playing around with diabetes, you do have more than a chance at a decent life.  You have a hope and all our prayers. Bonita

– Hide quoted text — Show quoted text – I was diagnosed with type 2 diabetes about 4 years ago, I guess.  Well, the last time I checked my blood sugar was at least 2 years ago and it was probably 6 months before that that I saw my doctor. I have not been watching what I eat at all.  I keep telling myself that I need to be more careful, but I am too discouraged. We don’t have health insurance, so I don’t want to rack up a ton of medical bills, although I know I am going to have to soon. I ate 2 hotdogs in buns about 4 hours ago and washed it down with a nice cold Coke. I feel unusually tired and weak.  I get the courage to check my blood sugar. It is 346.  346 four hours after eating. I am now really scared that I have done damage to my organs.  Can anyone tell me if it is possible to have this high of blood sugar for a long period of time and NOT have damage?  What would the symptoms be?  Is it possible for me lower this blood sugar without going to the doctors?  Any advice? Thank you!

Response:

Hi Sherry! It sounds like a grim situation.  I’m recently diagnosed, so I don’t think I have the answers to your questions and can just offer empathy and maybe some encouragement. First off, the Doctor isn’t going to give you a bad diagnosis — that happened four years ago when you were diagnosed with diabetes.  The only thing that’s going to happen this time is that the doctor is going to try to get you back "on the wagon," and give you an assessment of your health today.  In any event, my endo says that "many" of his patients don’t take good care of themselves, so you won’t be alone — many of us here in this newsgroup have been or are in the same situation.  Make the appointment and go.  It’s an excellent investment. Second, you need to make some lifestyle changes so that you’ll have a good quality of life as you (and your children) get older.  A dietitian or diabetes educator could give you good guidance on how you need to eat to lower your blood glucose, but if you can’t afford that, I know there are a number of places on the internet where you could begin a "self-help" plan. Perhaps the doctor will have some ideas when you see him. Finally, I don’t know if it’s possible to have high bG and no damage — but I do know that as soon as you get the blood glucose under control, the sooner your odds get much better. I’m glad you came to this newsgroup, and I hope you can find some inspiration to take action from the others here! — Will you sponsor me in the Tour de Cure? http://main.diabetes.org/site/TR?pg=personal&fr_id=1058&px=1626087

– Hide quoted text — Show quoted text – Julie, I know I haven’t been smart about how I have handled my health, I am really just trying to find the courage inside to make the damned doctor appointment.  I need some kind of positive moral support and don’t know where to find it.  I need to find some encouragement to do the right thing. I am 34 years old and have 2 young children.  I feel like the biggest loser and am SO depressed!  I don’t know if I can mentally face my doctor at all! I feel like they all look down on me because I have been so careless. I am not here looking for tough love, just some advice.  I feel like going to the doctor now is just hopeless and she will just give me a bad diagnosis.  After reading your reply, I feel even more stupid about going back to the doctor.  I am sure she will share your opinion.  I wish to god my kids were older, because if they were, I wouldn’t give a rats crap about just dying. I just really would like to know what the symptoms are?  If it is even heard of to allow your blood sugar to read very high numbers like this for a long period of time and have NO damage?  Is there a possibility?  Or am I doomed for sure? I was diagnosed with type 2 diabetes about 4 years ago, I guess. Well, the last time I checked my blood sugar was at least 2 years ago and it was probably 6 months before that that I saw my doctor. Oh dear.  That’s very bad.  You could have done all sorts of damage to your body and not even know it.  You really must get to the Dr. ASAP! I have not been watching what I eat at all.  I keep telling myself that I need to be more careful, but I am too discouraged. Why are you discouraged?  Do you value your legs?  Your eyes?  Your life? These are the things you can lose of you don’t get your BG under control. And dying of diabetes isn’t pretty.  It’s a slow and VERY painful death. We don’t have health insurance, so I don’t want to rack up a ton of medical bills, although I know I am going to have to soon. Yes, unfortunately you will have to. I ate 2 hotdogs in buns about 4 hours ago and washed it down with a nice cold Coke. A Coke?  Not a diet Coke?  Well, there was just NO excuse for that at all. That was a choice that you made. I feel unusually tired and weak.  I get the courage to check my blood sugar. It is 346.  346 four hours after eating. No doubt!  Did you use a strip that was not expired?  Since you say you haven’t checked your blood for 2 years, I would think you probably wouldn’t have a good strip.  If so, your BG could well be even higher than that. And if it was that high at 4 hours after eating, it was probably WAY higher at the 2 hour mark.  You should probably check your urine for ketones. I am now really scared that I have done damage to my organs.  Can anyone tell me if it is possible to have this high of blood sugar for a long period of time and NOT have damage?  What would the symptoms be?  Is it possible for me lower this blood sugar without going to the doctors?  Any advice? You might not have any symptoms at all.  Neuropathy tends to come on slowly. Kidney failure has no symptoms in the beginning.  Retinopathy has no symptoms wither.  My advice is to cut the carbs at least for now.  Test your BG and see your Dr. ASAP!  You should probably be on meds. or insulin. — Type 2 http://users.bestweb.net/~jbove/

Response:

My vision continually goes blurry then ok blurry then double vision…. it is awful.  I just tested my blood again and the only thing I have consumed since eating around 5 or so hours ago was water…. My blood sugar is now up to 367.  Why is it still going up? Oh, I checked the date on the strips and they are expired by a year.  Could this cause it to read too high?

– Hide quoted text — Show quoted text – I was diagnosed with type 2 diabetes about 4 years ago, I guess.  Well, the last time I checked my blood sugar was at least 2 years ago and it was probably 6 months before that that I saw my doctor. I have not been watching what I eat at all.  I keep telling myself that I need to be more careful, but I am too discouraged. We don’t have health insurance, so I don’t want to rack up a ton of medical bills, although I know I am going to have to soon. I ate 2 hotdogs in buns about 4 hours ago and washed it down with a nice cold Coke. I feel unusually tired and weak.  I get the courage to check my blood sugar. It is 346.  346 four hours after eating. I am now really scared that I have done damage to my organs.  Can anyone tell me if it is possible to have this high of blood sugar for a long period of time and NOT have damage?  What would the symptoms be?  Is it possible for me lower this blood sugar without going to the doctors?  Any advice? Thank you! Gees uncontrolled BG’s for about 4 years.  BG of 346 after 4 hours. Could you see anything?  I would say you need to see a doctor like tomorrow. http://www.tcainternet.com/retired/index.html

Response:

Di, Would you email me personally, please?  I wanted to ask a few questions, but feel foolish doing it publically.  My email is Thank you! Sherry

– Hide quoted text — Show quoted text – Hi Sherry, You ARE doing damage to your organs and the only way you will rack up medical bills is if you have hospital stays that are diabetes related. Trust me as one who knows. I wasn’t taking my medicine due to no insurance and stuff too and had my first hospital stay from my kidneys and I said then NO MORE !  I am not saying I started to take care of myself right away but now I am and it is so much cheaper to get the doctor bill and medicine than getting the five day stay at the hospital and the 8 hour stay in the emergency room. Please do yourself and your family the biggest favor ever and start NOW taking care of yourself. Please. Di I was diagnosed with type 2 diabetes about 4 years ago, I guess. Well, the last time I checked my blood sugar was at least 2 years ago and it was probably 6 months before that that I saw my doctor. I have not been watching what I eat at all.  I keep telling myself that I need to be more careful, but I am too discouraged. We don’t have health insurance, so I don’t want to rack up a ton of medical bills, although I know I am going to have to soon. I ate 2 hotdogs in buns about 4 hours ago and washed it down with a nice cold Coke. I feel unusually tired and weak.  I get the courage to check my blood sugar. It is 346.  346 four hours after eating. I am now really scared that I have done damage to my organs.  Can anyone tell me if it is possible to have this high of blood sugar for a long period of time and NOT have damage?  What would the symptoms be?  Is it possible for me lower this blood sugar without going to the doctors?  Any advice? Thank you!

Response:

Hi Sherry, You ARE doing damage to your organs and the only way you will rack up medical bills is if you have hospital stays that are diabetes related. Trust me as one who knows. I wasn’t taking my medicine due to no insurance and stuff too and had my first hospital stay from my kidneys and I said then NO MORE !  I am not saying I started to take care of myself right away but now I am and it is so much cheaper to get the doctor bill and medicine than getting the five day stay at the hospital and the 8 hour stay in the emergency room. Please do yourself and your family the biggest favor ever and start NOW taking care of yourself. Please. Di

– Hide quoted text — Show quoted text – I was diagnosed with type 2 diabetes about 4 years ago, I guess. Well, the last time I checked my blood sugar was at least 2 years ago and it was probably 6 months before that that I saw my doctor. I have not been watching what I eat at all.  I keep telling myself that I need to be more careful, but I am too discouraged. We don’t have health insurance, so I don’t want to rack up a ton of medical bills, although I know I am going to have to soon. I ate 2 hotdogs in buns about 4 hours ago and washed it down with a nice cold Coke. I feel unusually tired and weak.  I get the courage to check my blood sugar. It is 346.  346 four hours after eating. I am now really scared that I have done damage to my organs.  Can anyone tell me if it is possible to have this high of blood sugar for a long period of time and NOT have damage?  What would the symptoms be?  Is it possible for me lower this blood sugar without going to the doctors?  Any advice? Thank you!

Response:

Julie, I know I haven’t been smart about how I have handled my health, I am really just trying to find the courage inside to make the damned doctor appointment.  I need some kind of positive moral support and don’t know where to find it.  I need to find some encouragement to do the right thing. I am 34 years old and have 2 young children.  I feel like the biggest loser and am SO depressed!  I don’t know if I can mentally face my doctor at all! I feel like they all look down on me because I have been so careless. I am not here looking for tough love, just some advice.  I feel like going to the doctor now is just hopeless and she will just give me a bad diagnosis.  After reading your reply, I feel even more stupid about going back to the doctor.  I am sure she will share your opinion.  I wish to god my kids were older, because if they were, I wouldn’t give a rats crap about just dying. I just really would like to know what the symptoms are?  If it is even heard of to allow your blood sugar to read very high numbers like this for a long period of time and have NO damage?  Is there a possibility?  Or am I doomed for sure?

– Hide quoted text — Show quoted text – I was diagnosed with type 2 diabetes about 4 years ago, I guess.  Well, the last time I checked my blood sugar was at least 2 years ago and it was probably 6 months before that that I saw my doctor. Oh dear.  That’s very bad.  You could have done all sorts of damage to your body and not even know it.  You really must get to the Dr. ASAP! I have not been watching what I eat at all.  I keep telling myself that I need to be more careful, but I am too discouraged. Why are you discouraged?  Do you value your legs?  Your eyes?  Your life? These are the things you can lose of you don’t get your BG under control. And dying of diabetes isn’t pretty.  It’s a slow and VERY painful death. We don’t have health insurance, so I don’t want to rack up a ton of medical bills, although I know I am going to have to soon. Yes, unfortunately you will have to. I ate 2 hotdogs in buns about 4 hours ago and washed it down with a nice cold Coke. A Coke?  Not a diet Coke?  Well, there was just NO excuse for that at all. That was a choice that you made. I feel unusually tired and weak.  I get the courage to check my blood sugar. It is 346.  346 four hours after eating. No doubt!  Did you use a strip that was not expired?  Since you say you haven’t checked your blood for 2 years, I would think you probably wouldn’t have a good strip.  If so, your BG could well be even higher than that. And if it was that high at 4 hours after eating, it was probably WAY higher at the 2 hour mark.  You should probably check your urine for ketones. I am now really scared that I have done damage to my organs.  Can anyone tell me if it is possible to have this high of blood sugar for a long period of time and NOT have damage?  What would the symptoms be?  Is it possible for me lower this blood sugar without going to the doctors?  Any advice? You might not have any symptoms at all.  Neuropathy tends to come on slowly. Kidney failure has no symptoms in the beginning.  Retinopathy has no symptoms wither.  My advice is to cut the carbs at least for now.  Test your BG and see your Dr. ASAP!  You should probably be on meds. or insulin. — Type 2 http://users.bestweb.net/~jbove/

Response:

Julie, I know I haven’t been smart about how I have handled my health, I am really just trying to find the courage inside to make the damned doctor appointment.  I need some kind of positive moral support and don’t know where to find it.  I need to find some encouragement to do the right thing. I am 34 years old and have 2 young children.

Well, Sherry….. You just gave two excellent reasons to take control of your life and your health right now.  You are only 34 and have a lot of living to do….and most of all "2 young children". Keep on ignoring the problem and you can probably expect real trouble. When you make and keep your appointment…..remember that YOU are the consumer of his services he/ she is the provider…..He works for YOU. I wish you great strength to face what needs to be faced and get on with your healthier happier life. Fear can destroy any of us…if we let it. Best, Patricia

Response:

I was diagnosed with type 2 diabetes about 4 years ago, I guess.  Well, the last time I checked my blood sugar was at least 2 years ago and it was probably 6 months before that that I saw my doctor. I have not been watching what I eat at all.  I keep telling myself that I need to be more careful, but I am too discouraged. We don’t have health insurance, so I don’t want to rack up a ton of medical bills, although I know I am going to have to soon. I ate 2 hotdogs in buns about 4 hours ago and washed it down with a nice cold Coke. I feel unusually tired and weak.  I get the courage to check my blood sugar. It is 346.  346 four hours after eating. I am now really scared that I have done damage to my organs.  Can anyone tell me if it is possible to have this high of blood sugar for a long period of time and NOT have damage?  What would the symptoms be?  Is it possible for me lower this blood sugar without going to the doctors?  Any advice? Thank you!

Response:

I was diagnosed with type 2 diabetes about 4 years ago, I guess.  Well, the last time I checked my blood sugar was at least 2 years ago and it was probably 6 months before that that I saw my doctor.

Oh dear.  That’s very bad.  You could have done all sorts of damage to your body and not even know it.  You really must get to the Dr. ASAP! I have not been watching what I eat at all.  I keep telling myself that I need to be more careful, but I am too discouraged.

Why are you discouraged?  Do you value your legs?  Your eyes?  Your life? These are the things you can lose of you don’t get your BG under control. And dying of diabetes isn’t pretty.  It’s a slow and VERY painful death. We don’t have health insurance, so I don’t want to rack up a ton of medical bills, although I know I am going to have to soon.

Yes, unfortunately you will have to. I ate 2 hotdogs in buns about 4 hours ago and washed it down with a nice cold Coke.

A Coke?  Not a diet Coke?  Well, there was just NO excuse for that at all. That was a choice that you made. I feel unusually tired and weak.  I get the courage to check my blood sugar. It is 346.  346 four hours after eating.

No doubt!  Did you use a strip that was not expired?  Since you say you haven’t checked your blood for 2 years, I would think you probably wouldn’t have a good strip.  If so, your BG could well be even higher than that.  And if it was that high at 4 hours after eating, it was probably WAY higher at the 2 hour mark.  You should probably check your urine for ketones. I am now really scared that I have done damage to my organs.  Can anyone tell me if it is possible to have this high of blood sugar for a long period of time and NOT have damage?  What would the symptoms be?  Is it possible for me lower this blood sugar without going to the doctors?  Any advice?

You might not have any symptoms at all.  Neuropathy tends to come on slowly. Kidney failure has no symptoms in the beginning.  Retinopathy has no symptoms wither.  My advice is to cut the carbs at least for now.  Test your BG and see your Dr. ASAP!  You should probably be on meds. or insulin. — Type 2 http://users.bestweb.net/~jbove/

Response:

I was diagnosed with type 2 diabetes about 4 years ago, I guess.  Well, the last time I checked my blood sugar was at least 2 years ago and it was probably 6 months before that that I saw my doctor. I have not been watching what I eat at all.  I keep telling myself that I need to be more careful, but I am too discouraged. We don’t have health insurance, so I don’t want to rack up a ton of medical bills, although I know I am going to have to soon. I ate 2 hotdogs in buns about 4 hours ago and washed it down with a nice cold Coke. I feel unusually tired and weak.  I get the courage to check my blood sugar. It is 346.  346 four hours after eating. I am now really scared that I have done damage to my organs.  Can anyone tell me if it is possible to have this high of blood sugar for a long period of time and NOT have damage?  What would the symptoms be?  Is it possible for me lower this blood sugar without going to the doctors?  Any advice? Thank you!

Response:

I give you credit for deciding to do something.  You can only go forward and prevent what could become some major health problems.  A doctor will cost you a lot more the more you delay caring for yourself. I’m not going to go into the ins and outs of getting this under control because Jennifer will be posting her golden advice shortly and her post pretty well covers the basics of what you need to know. I can tell you this.  Making the changes necessary to get your diabetes under control will improve your life exponentially to the improvement in your health. There is no time like the present to start. Welcome to the group. c

– Hide quoted text — Show quoted text – I was diagnosed with type 2 diabetes about 4 years ago, I guess.  Well, the last time I checked my blood sugar was at least 2 years ago and it was probably 6 months before that that I saw my doctor. I have not been watching what I eat at all.  I keep telling myself that I need to be more careful, but I am too discouraged. We don’t have health insurance, so I don’t want to rack up a ton of medical bills, although I know I am going to have to soon. I ate 2 hotdogs in buns about 4 hours ago and washed it down with a nice cold Coke. I feel unusually tired and weak.  I get the courage to check my blood sugar. It is 346.  346 four hours after eating. I am now really scared that I have done damage to my organs.  Can anyone tell me if it is possible to have this high of blood sugar for a long period of time and NOT have damage?  What would the symptoms be?  Is it possible for me lower this blood sugar without going to the doctors?  Any advice? Thank you!

Response:

question

Question:

On Mon, 28 Jan 2002 16:26:06 +0000, Andy <a…@kitzbuhel.demon.co.uk

wrote:

The Lupus Book, 2nd edition, page 47 says the same, and I see that he does mention sun-sensitivity – I get the impression that it’s more like light sensivitity! KCat, would you care to comment?

nah… think you covered everything I know and then some.

Response:

In article <3C5462BE.113A8…@rogers.com

, J <jwoot…@rogers.com wrote Andy wrote:

[]

Could be urinary tract infection – in which case go see doctor BUT if you have (or might have) lupus beware because you will probably be prescribed Septrin and you are likely to react badly to it. Is that the sun-sensitivity part of the warning, Andy?  

I didn’t mention the sun!

Or is there somewhere that you know of that can describe the various problems which *could* occur when taking such meds?  

[snip impressive list] I was quoting from the a.s.l.FAQ which says: …your body may react differently than someone else’s to an any given substance. However, a few drugs are universally recognized as detrimental. These include Septrin & sulphonamides. These are often prescribed for urinary tract infections and are more commonly known as "Sulfa" drugs. Most lupus sufferers respond negatively to these drugs. NOTE: Because a drug contains sulfur does not make it a "sulfa" drug. Always pay attention to any medication’s effect on you as medications can quickly become allergens in autoimmune patients. The Lupus Book, 2nd edition, page 47 says the same, and I see that he does mention sun-sensitivity – I get the impression that it’s more like light sensivitity! KCat, would you care to comment? — Andy [Editor, Austrian Philatelic Society] For Austrian philately <URL:http://www.kitzbuhel.demon.co.uk/austamps

For Lupus <URL:http://www.kitzbuhel.demon.co.uk/lupus

For my other interests <URL:http://www.kitzbuhel.demon.co.uk

Response:

Hi Elle, I wondered if what you are describing might be related to the drugs the pulmonary doc prescribed for you. It seems to me that these symptoms appeared after starting those. Am I correct? BJ "Elle" <el…@surferie.net

wrote in message

news:u58cpc7lp3k1d2@corp.supernews.com… – Hide quoted text — Show quoted text -

ok guys….I have had some back/side pain, kinda bad at times….frequent urination….and I mean about 6 or 7 times during the night,   and almost every 5-7 minutes so far today…..not really running a temp, feel a

little

queasy…any suggestions?? could this be kidney involvement?

Response:

kidney involvement is not usually painful – at least not in the early stages (IIRC?) but it does sound a lot like an infection.  the pain and frequent voiding could be unrelated too so it’s important to get a UA.   have you changed meds recently at all?  Some meds will cause flank pain (though it’s rare). On Sun, 27 Jan 2002 12:03:53 -0500, "Elle" <el…@surferie.net

wrote: – Hide quoted text — Show quoted text -

ok guys….I have had some back/side pain, kinda bad at times….frequent urination….and I mean about 6 or 7 times during the night,   and almost every 5-7 minutes so far today…..not really running a temp, feel a little queasy…any suggestions?? could this be kidney involvement?

Response:

Elle, they are right on about the urinary infection.  It just could be that, but only if you have your urine checked will you know for sure. I also thought of something else, and that is maybe high sugar problems. That needs checked too. So get a urninalysis and dip to see if there is protein or sugar or albumen or just plain bugs in there. again if allergic to sulfa there are alternative antibiotics that treat urinary infection as well. janers

Response:

Yeah it just started lastnight, and the the doc put me on an antibiotic…augmentin, prednisone UGH and advair inhaler….I have urinated and this is not an exaggeration…at least 30-40 times today…not large amounts each time but I still went.  Some queasiness, and I vomited once. So I think it is an infection….slight temp elevation, 99.9, but I always run a low grade temp.  thanks for your concern.  will keep you posted. BJ <B…@sk.nojunk.ca

wrote in message

news:Ds%48.2580$iOo3.30605766@tomcat.sk.sympatico.ca… – Hide quoted text — Show quoted text -> Hi Elle, > I wondered if what you are describing might be related to the drugs the > pulmonary doc prescribed for you. It seems to me that these symptoms > appeared after starting those. Am I correct? > BJ > "Elle" <el…@surferie.net

wrote in message

> news:u58cpc7lp3k1d2@corp.supernews.com… > > ok guys….I have had some back/side pain, kinda bad at times….frequent

urination….and I mean about 6 or 7 times during the night,   and

almost

every 5-7 minutes so far today…..not really running a temp, feel a little queasy…any suggestions?? could this be kidney involvement?

Response:

ok guys….I have had some back/side pain, kinda bad at times….frequent urination….and I mean about 6 or 7 times during the night,   and almost every 5-7 minutes so far today…..not really running a temp, feel a little queasy…any suggestions?? could this be kidney involvement?

Response:

In article <u58cpc7lp3k…@corp.supernews.com

, Elle

<el…@surferie.net

wrote ok guys….I have had some back/side pain, kinda bad at times….frequent urination….and I mean about 6 or 7 times during the night,   and almost every 5-7 minutes so far today…..not really running a temp, feel a little queasy…any suggestions?? could this be kidney involvement?

Could be urinary tract infection – in which case go see doctor BUT if you have (or might have) lupus beware because you will probably be prescribed Septrin and you are likely to react badly to it. — Andy [Editor, Austrian Philatelic Society] For Austrian philately <URL:http://www.kitzbuhel.demon.co.uk/austamps

For Lupus <URL:http://www.kitzbuhel.demon.co.uk/lupus

For my other interests <URL:http://www.kitzbuhel.demon.co.uk

Response:

Andy wrote:

In article <u58cpc7lp3k…@corp.supernews.com, Elle <el…@surferie.net wrote ok guys….I have had some back/side pain, kinda bad at times….frequent urination….and I mean about 6 or 7 times during the night,   and almost every 5-7 minutes so far today…..not really running a temp, feel a little queasy…any suggestions?? could this be kidney involvement? Could be urinary tract infection – in which case go see doctor BUT if you have (or might have) lupus beware because you will probably be prescribed Septrin and you are likely to react badly to it.

Is that the sun-sensitivity part of the warning, Andy?  Or is there somewhere that you know of that can describe the various problems which *could* occur when taking such meds?  Just wondering…back to my reaction to same 3? years ago, and my Dad getting (temporarily) paralyzed when given same during the war. J http://www.nlm.nih.gov/medlineplus/druginfo/sulfonamidesandtrimethopr… Cotrimoxazole aka In the U.S.– Bactrim 2 Bactrim DS 2 Bactrim I.V. 2 Bactrim Pediatric 2 Cofatrim Forte 2 Cotrim 2 Cotrim DS 2 Cotrim Pediatric 2 Septra 2 Septra DS 2 Septra I.V. 2 Septra Suspension 2 Septra Grape Suspension 2 Sulfatrim 2 Sulfatrim-DS 2 Sulfatrim Pediatric 2 Sulfatrim S/S 2 Sulfatrim Suspension 2 In Canada– Apo-Sulfatrim 2 Apo-Sulfatrim DS 2 Bactrim 2 Bactrim DS 2 Coptin 1 Coptin 1 1 Novo-Trimel 2 Novo-Trimel D.S. 2 Nu-Cotrimox 2 Nu-Cotrimox DS 2 Roubac 2 Septra 2 Septra DS 2 Other commonly used names are: Cotrimazine Cotrimoxazole SMZ-TMP

Response:

Hi.  I would like to see if those of you who have been diagnosed with lupus think that my symptoms sound like they could be lupus.  I have not gone to see a doctor yet,  but I have wondered if I have had it for several years.  My symptoms: migraine headaches,  sometimes my eyes "flit" back and forth several times,  red cheeks (but not across the nose),  migrating joint and muscle ( one day it’s my elbow,  the next day it’s my knee,  the next day it’s my wrist etc.),  occaisional pleuritic pain,  occaisional abdominal cramping with diarrhea,  feverish-feelings (no actual fever,  just feel like I have one),  fatigue and malaise,  pains that seem to run along nerve pathways…  I have also been officially diagnosed with obsessive-compulsive disorder,  depression,  and panic attacks – I am on medication for these and they are fairly well controlled at this time. I know that this is long,  but I would appreciate any opinions you have to offer.

Response:

Hi: I really think you should leave this diagnosis to your doctor, apparently they say it is extremely difficult to diagnose. I have some of your symptoms, but they are so very different to each individual person, no two people with the same symptoms. I went to a Rheumatoligist for my diagnosis, you might want to try a specialist of that nature. Good-Luck. Take care. Suzzie

Response:

Hello friends, just wondering does anybody els have polymyositis and lupus.and the arthritis,h/b, please let me know!

Response:

Polymyositis isn’t common with lupus.  My daughter was told about three years ago though that she may have dermatomyositis with hers.  In retrospect, it may be the much more common myositis.  I Polymyositis and dermatomyositis are progressive diseases resulting in muscle loss.  Dermatomyositis is like polymyositis but with skin symptoms.  Myositis is similar but not necessarily progressive, and not nearly as severe.  The Muscular Dystrophy Assn. includes information and support for these conditions. http://www.mdausa.org/ Sandra

Response:

I have what is called MCTD and i think it is all part of the overlap syndrome related to this disease. I have RA and OA also. Does this help? Always, pam / cloud

Response:

thanks pam and sandra it did help out! E.R

Response:

When I got my records and was reading my latest labs, I had a BUN?CREATININE RATIO of 30. Now that is slightly elevated as the high end is 25. Now the Creatinine was only 0.7 which is normal. So what does the ratio mean.  It has something to do with the kidney, but I suppose that is in the normal range. I also run a little low on the Hematocrit, which is iron right. I always do. My TSH was a 4.5 which I read up on. It says that could be a high number. All doctors test me for Thyroid, but then they always say it is normal. I am always fatigued, but I guess now they think it is FM since I was dx with that. I guess the fact that my eyes are a little bugged :) points them in the direction of Thyroid problems, but it always comes out normal.  I am rambling, but just thought that I would ask. J always knows where to tell me to look.:) Have a good day. Cindy

Response:

Cindy wrote:

When I got my records and was reading my latest labs, I had a BUN?CREATININE RATIO of 30. Now that is slightly elevated as the high end is 25. Now the Creatinine was only 0.7 which is normal. So what does the ratio mean.  It has something to do with the kidney, but I suppose that is in the normal range.

http://www.prlnet.com/Kidney.htm Blood Urea Nitrogen (BUN) As described above, the major breakdown product of bodily protein (e.g., in that hamburger you had for lunch) is urea, which is first formed in the liver. Urea contains nitrogen and together, in excess quantity, they are both toxic to the body and must be removed. Kidneys normally do an excellent job of removing urea, but when they start to fail, the blood concentration of urea begins to rise. The reference range (or range within which most normal people’s test values fall) for BUN is 10-20 mg/dL. Other circumstances, such as blood in the intestinal tract, a big meal of cooked meat, simple dehydration (too little water in the tissues), or any condition which decreases blood flow to the kidneys, can cause the concentration of blood urea to rise and suggest there is something wrong in kidney function. Therefore, a second blood test is done at the same time. The second blood test measures the chemical creatinine. Blood Creatinine Creatinine is a normal blood chemical that is a breakdown product of muscle metabolism. Kidneys are normally very efficient filters of creatinine. Unlike urea, the blood creatinine concentration is much less sensitive to the degree of bodily hydration, blood or meat in the intestinal tract. The reference range for blood creatinine is 0.3-1.5 mg/dL. Considered together, the BUN, blood creatinine and their ratio give very good evidence of the filtering function of the kidneys and also, a measure of the degree of bodily hydration. The ratio of BUN: creatinine is normally 10:1. With dehydration, the ratio can increase to 20:1 or even higher. An increased BUN: creatinine ratio may also be due to certain types of kidney disease, breakdown of blood in the intestinal tract, increased dietary protein, or any clinical circumstance in which insufficient blood is flowing through the blood vessels to the kidneys (such as heart failure or kidney artery disease). The BUN: creatinine ratio is decreased in certain types of kidney disease, liver disease, malnutrition and in a condition known as Sickle Cell Anemia. If an abnormality is found in your urinalysis, BUN, blood creatinine, or BUN: creatinine ratio, you should review these results with a physician.

 I also run a little low on the Hematocrit, which is iron right. I always do.

http://www.labtestsonline.org/understanding/analytes/hematocrit/test….

My TSH was a 4.5 which I read up on. It says that could be a high number. All doctors test me for Thyroid, but then they always say it is normal.

http://www.labtestsonline.org/understanding/conditions/thyroid.html http://www.endocrineweb.com/index.html http://www.endocrineweb.com/tests.html Interpretations of the TSH level depends upon the level of thyroid hormone; therefore, the TSH is usually used in combination with other thyroid tests such as the T4 RIA and T3 RIA.

I am always fatigued, but I guess now they think it is FM since I was dx with that. I guess the fact that my eyes are a little bugged :) points them in the direction of Thyroid problems, but it always comes out normal.  I am rambling, but just thought that I would ask. J always knows where to tell me to look.:)

Hi Cindy, When my TSH (or anything) gets tested, there’s usually reference ranges right beside the lab values (for me). I’m really not a lab person (ie can’t figure out the "ins and outs" and values (what they mean or don’t). I had the full panel and biopsy when I first got sick with Hashi’s Thyroiditis, with some exceptions, over the years, now all they check is the TSH and if it’s between 1.1 and 5.0 I’m fairly happy on that front, if it starts going higher I start to feel cold and other hypothyroid symptoms and more pain, lower my doctor said "too hyperthyroid can bring out the same symptoms as too hypothyroid". When I see people with "buggy eyes" (even on TV), I wonder if they have Graves, which is another autoimmune form of thyroid. http://www.postgradmed.com/issues/1999/10_01_99/felz.htm (describes eyes vs various ailments, IIRC) Hope some of this helps you figure some of your labs out or ammo to discuss with your doctor. If you have Lupus, that can be the source of fatique alone, maybe talk to them about your iron levels and ranges. My iron levels and TIBT are fine now but my B12 was down. Doc said B12 comes from animal proteins so I’ve tried to increase my diet on that (and the shots got me back into normal ranges) and I’m "holding fine" on that. If I sleep good (which I usually don’t), I start off with energy but pain alone can be fatique-causing On a dreary non-sunny day like this, I yawn all day long.  The sun comes out, I feel more "energized" to at least try a project or go for a walk, so comparing me to you, is not helpful, I think. Hugs J -not a doctor

Response:

bruce wrote:

how is that for short??? So now I have it CGT for me.

:-) Congrats, Bruce ! J

Response:

bruce wrote:

(Your lucky J . The Titanic sailed awhile ago:)) I responded in order to try out cutting , or snipping or what ever the correct wording is to shorten:))

highlight then delete (or CTRL-X)? J

Response:

bruce wrote:

OOOOOOOOK , that was not shorter , GRRRRR. dislectic lefty Bruce , I’ll practice on e-mails Bruce On ." raining , cold , yuk  head and joint pain"

Why spoil our fun? do it here. I highlight with my mouse by clicking at the beginning of the text I want remove, (with right hand) then with left hand CTRL-X try ok? like riding a bike, once you learn, never forget. Hugs J

Response:

OOOOOOOOOOK , JJJJJJJJJJJ how is that for short??? I was trying to drag out the part to save instead of deleting the rest. So now I have it CGT for me. Tis funny though when I finish a sentence I turn it around and it reads correct . Bruce On. " my bank balance is fubar read either way:))) " "J" <nots…@spamNo.inv

wrote in message

news:3EEA0D27.737C5E3F@execulink.com… – Hide quoted text — Show quoted text -

bruce wrote: Why spoil our fun? do it here. I highlight with my mouse by clicking at the beginning of the text I want

Response:

OOOOOOOOK , that was not shorter , GRRRRR. dislectic lefty Bruce , I’ll practice on e-mails Bruce On ." raining , cold , yuk  head and joint pain" bruce" <mcode0…@rogers.com

wrote in message

news:69lGa.87215$3Sm.70182@news01.bloor.is.net.cable.rogers.com… – Hide quoted text — Show quoted text -> (Your lucky J . > The Titanic sailed awhile ago:)) > I responded in order to try out cutting , or snipping or what ever the > correct wording is to shorten:)) > {or did I "miss the boat" on my reply <go> > > Hugs > > I) > or did I "miss the boat" on my reply <g> > > Hugs > > J > "J" <nots…@spamNo.inv

wrote in message

> news:3EE943BD.16D53F5D@execulink.com… > > Marg Watson wrote: > > > [] > > > I just wanted to say Hi-ya & bring your post back up to the top as it > > > was precariously hanging near the bottom of the page.:-)  I had opened > > > it earlier & realized that I should at least know about Creatinine as my

Father was a dialysis patient, but my brain isn’t working today.  I am 99% positive that it is a kidney term though. J may be having a bad time this evening.  If I don’t see a link pop up soon, I’ll see what I can locate later tonight.  After a heat

treatment

& getting the dawgs inside. :-) Hi Maggie, Did I miss another question? or did you miss my reply?

<http://groups.google.com/groups?q=+%22question%22+group:alt.support.l… uthor:notspam%40spamNo.inv&hl=en&lr=&ie=UTF-8&scoring=d&selm=3EE8BFA0.2AB40 C – Hide quoted text — Show quoted text -

97%40execulink.com&rnum=1

Response:

(Your lucky J . The Titanic sailed awhile ago:)) I responded in order to try out cutting , or snipping or what ever the correct wording is to shorten:)) {or did I "miss the boat" on my reply <go

Hugs I)

or did I "miss the boat" on my reply <g

Hugs J

"J" <nots…@spamNo.inv

wrote in message

news:3EE943BD.16D53F5D@execulink.com… – Hide quoted text — Show quoted text -

Marg Watson wrote: [] I just wanted to say Hi-ya & bring your post back up to the top as it was precariously hanging near the bottom of the page.:-)  I had opened it earlier & realized that I should at least know about Creatinine as my Father was a dialysis patient, but my brain isn’t working today.  I am 99% positive that it is a kidney term though. J may be having a bad time this evening.  If I don’t see a link pop up soon, I’ll see what I can locate later tonight.  After a heat treatment & getting the dawgs inside. :-) Hi Maggie, Did I miss another question? or did you miss my reply?

<http://groups.google.com/groups?q=+%22question%22+group:alt.support.l… uthor:notspam%40spamNo.inv&hl=en&lr=&ie=UTF-8&scoring=d&selm=3EE8BFA0.2AB40 C 97%40execulink.com&rnum=1

– Hide quoted text — Show quoted text –

Response:

Not sure J.  LOL!  People have been saying they’re having trouble seeing the posts & maybe _I_ just didn’t see yours.  Cindy’s question was down at the bottom of my page, so I brought it up & told her that I’d do some searches tonight if you didn’t show up.:-)   Cindy, if it’s me that’s not getting the posts over here, then that link in J’s post is for you.  If this is the first you’ve (Cindy) seen of the link, then it’s time you grabbed your life jacket J!  Haw! Haw! Maggie

Response:

When I see people with "buggy eyes" (even on TV), I wonder if they have Graves, which is another autoimmune form of thyroid. http://www.postgradmed.com/issues/1999/10_01_99/felz.htm (describes eyes vs various ailments, IIRC)

Ah, yeah, J. I shoulda kept reading! Grace.

Response:

Hi Cindy! Don’t know too much about all that just yet. :-) I’m just about always tired too.  Ironically, I can’t fall asleep at night even though I yawn all day.  I guess that helped them to decide that I had Fibro.  My doc said that it was a manifestation of my autoimmune disorder, like the arthritis, but they have yet to actually name the disorder. I just wanted to say Hi-ya & bring your post back up to the top as it was precariously hanging near the bottom of the page.:-)  I had opened it earlier & realized that I should at least know about Creatinine as my Father was a dialysis patient, but my brain isn’t working today.  I am 99% positive that it is a kidney term though.   J may be having a bad time this evening.  If I don’t see a link pop up soon, I’ll see what I can locate later tonight.  After a heat treatment & getting the dawgs inside. :-) Huggy’s Maggie

Response:

Marg Watson wrote:

[] I just wanted to say Hi-ya & bring your post back up to the top as it was precariously hanging near the bottom of the page.:-)  I had opened it earlier & realized that I should at least know about Creatinine as my Father was a dialysis patient, but my brain isn’t working today.  I am 99% positive that it is a kidney term though. J may be having a bad time this evening.  If I don’t see a link pop up soon, I’ll see what I can locate later tonight.  After a heat treatment & getting the dawgs inside. :-)

Hi Maggie, Did I miss another question? or did you miss my reply? <http://groups.google.com/groups?q=+%22question%22+group:alt.support.l…

or did I "miss the boat" on my reply <g

Hugs J

Response:

Thank you so much for the help…. Hoping you all have a good day. Cindy "Cindy" <cmathes1nos…@cox.net

wrote in message

news:Cd0Ga.397422$vU3.43623@news1.central.cox.net… – Hide quoted text — Show quoted text -

When I got my records and was reading my latest labs, I had a

BUN?CREATININE

RATIO of 30. Now that is slightly elevated as the high end is 25. Now the Creatinine was only 0.7 which is normal. So what does the ratio mean.  It has something to do with the kidney, but I suppose that is in the normal range. I also run a little low on the Hematocrit, which is iron right. I always do. My TSH was a 4.5 which I read up on. It says that could be a high number. All doctors test me for Thyroid, but then they always say it is normal. I

am

always fatigued, but I guess now they think it is FM since I was dx with that. I guess the fact that my eyes are a little bugged :) points them in the direction of Thyroid problems, but it always comes out normal.  I am rambling, but just thought that I would ask. J always knows where to tell me to look.:) Have a good day. Cindy

Response:

Hi Cindy: A non-relevant point… as I understand it, bugged eyes go along with hyperactive (overactive) thyroid — bouncing off the wall people. But people who are fatigued, who are getting high Thyroid Stimulating Hormone readings (hormone trying to stimulate the thyroid), have hypothyroidism, or underactive thyroid, and they don’t have the buggy eyes (unless maybe their medication pushes them the other way!) Grace. – Hide quoted text — Show quoted text -

All doctors test me for Thyroid, but then they always say it is normal. I am always fatigued, but I guess now they think it is FM since I was dx with that. I guess the fact that my eyes are a little bugged :) points them in the direction of Thyroid problems, but it always comes out normal.  I am rambling, but just thought that I would ask. J always knows where to tell me to look.:) Have a good day. Cindy

Response:

I have also heard that Ultram is a good pain medication to use with FM, its not a heavy narcotic so it wont wipe you out. Paula from AL – Hide quoted text — Show quoted text -

From: "Janers" <rojak…@bright.net Organization: bright.net Ohio Newsgroups: alt.support.lupus Date: Mon, 3 Jun 2002 18:27:08 -0400 Subject: Re: question I am reading a new book on FM and CMFP, and in that book it mentions the use of anti depressants to treat FM.   Only because they NOW feel FM, is cause by a mal function in the central nervous system.  So hence antidepressants. I agree though that your friend, needs to find another opinion about this FM and the ways to treat it.  Muscle relaxers are sometimes used as well as "other:" types of drugs, so she needs to get that "second" opinion… janers

Response:

"Paula Love" <paulalo…@comcast.net

wrote in message

news:B9216093.8AAA%paulalove3@comcast.net…

I have also heard that Ultram is a good pain medication to use with FM,

its

not a heavy narcotic so it wont wipe you out.

It seemed to be helping me, before this latest "episode"

Response:

On Mon, 03 Jun 2002 23:02:57 GMT, Paula Love <paulalo…@comcast.net

wrote:

I have also heard that Ultram is a good pain medication to use with FM, its not a heavy narcotic so it wont wipe you out.

I highly recommend *trying* ultram for anyone that is having trouble with joint pain that just won’t let up.  It works best when taken daily at regular intervals as it is not a standard opiate like Vicodin or the like.  Some people get rapid relief from it, some of us see the most relief after a week or so.  If you try it and don’t feel like it’s helping right away, don’t take that to mean it isn’t working but give it time. It is not recommended for people on Serotonin Reuptake Inhibitors like Prozac or Zoloft.  in small doses it’s probably safe to combine them but if you take the max dose of an SRI then Ultram could put you at a slight risk for Serotonin Syndrome (essentially an "OD" of serotonin in the brain/body). I’ve been taking it for at least 3 years now – maybe longer as I’ve lost track.  I take it daily and missing a dose reminds me just how much joint pain I had before I started it.  I’ve only had to increase the dose a couple of times short-term. It doesn’t build a tolerance in most patients the way standard pain killers do. my .02 kcat

Response:

i have been taking it 5 years have not needed a dose increase yet and it still works great and yes i miss one dose and OUCHYYYYY :) – Hide quoted text — Show quoted text -

From: KC <kcdoc…@ghg.net Organization: http://extra.newsguy.com Newsgroups: alt.support.lupus Date: Tue, 04 Jun 2002 14:11:14 -0500 Subject: Re: question On Mon, 03 Jun 2002 23:02:57 GMT, Paula Love <paulalo…@comcast.net wrote: I have also heard that Ultram is a good pain medication to use with FM, its not a heavy narcotic so it wont wipe you out. I highly recommend *trying* ultram for anyone that is having trouble with joint pain that just won’t let up.  It works best when taken daily at regular intervals as it is not a standard opiate like Vicodin or the like.  Some people get rapid relief from it, some of us see the most relief after a week or so.  If you try it and don’t feel like it’s helping right away, don’t take that to mean it isn’t working but give it time. It is not recommended for people on Serotonin Reuptake Inhibitors like Prozac or Zoloft.  in small doses it’s probably safe to combine them but if you take the max dose of an SRI then Ultram could put you at a slight risk for Serotonin Syndrome (essentially an "OD" of serotonin in the brain/body). I’ve been taking it for at least 3 years now – maybe longer as I’ve lost track.  I take it daily and missing a dose reminds me just how much joint pain I had before I started it.  I’ve only had to increase the dose a couple of times short-term. It doesn’t build a tolerance in most patients the way standard pain killers do. my .02 kcat

Response:

Well aint that the biggest crock of crap I ever heard!! I would STRONGLY suggest your friend get a new doctor. Two of the conditions I have is lupus and fibromyalisa and this is my list of meds. ALL of which are safe together! Plaquneil 200 mg 2x daily Vlatrex 500 mg 2x daily Dertol 2 mg 2x daily Ultram 50 mg 2x daily Naproxen 500 mg 1x daily Macrobid 100 mg 1x daily Effexor 37.5 mg 1x daily Vivelle Patch 0.1 mg 2x wk Flexaril 10mg as needed – Hide quoted text — Show quoted text -

From: "Nicole H" <nhightowerREM…@bak.rr.com Organization: RoadRunner – West Newsgroups: alt.support.lupus Date: Mon, 03 Jun 2002 12:28:19 GMT Subject: question Hi everyone! I have a friend online that has fibromyalgia.  She takes Effexor XR… says her seretonin is almost zero if she doesn’t.  Well, the dr will not treat the fibro any other way and says any other meds will make the Effexor useless.  This can’t be right!  Many lupus, fibro, chronic pain patients take anti-depressants along w/lots of other meds. Can anyone explain this? Thanks Nicole

Response:

I am reading a new book on FM and CMFP, and in that book it mentions the use of anti depressants to treat FM.   Only because they NOW feel FM, is cause by a mal function in the central nervous system.  So hence antidepressants. I agree though that your friend, needs to find another opinion about this FM and the ways to treat it.  Muscle relaxers are sometimes used as well as "other:" types of drugs, so she needs to get that "second" opinion… janers

Response:

On Mon, 03 Jun 2002 12:28:19 GMT, "Nicole H" <nhightowerREM…@bak.rr.com

wrote: Hi everyone! I have a friend online that has fibromyalgia.  She takes Effexor XR… says her seretonin is almost zero if she doesn’t.  

well, as yet I don’t believe there is any way to determine how much serotonin we have and how many receptors we have and what’s working or not working (re: neurotransmitters).. short of a postmortem biopsy.

Well, the dr will not treat the fibro any other way and says any other meds will make the Effexor useless.  

sounds like BS to me.  Wish I could point to something other than experience to say why I think that.  I did get relief from EFXR for about 3-4 months.  Eventually though it just stopped working WRT joint pain (continued to work WRT depression however).  I didn’t add meds so I’m having a lot of trouble believing that this doc is right. He may think he’s dealing with someone who won’t check it out and may actually be saying in his way that FM is a psychological condition and that if he adds pain killers or sleep meds this will *potentially* counteract the AD effects.  Benzos and pain killers can certainly increase depression so if he is just not being open and telling her he thinks its depression (triggering the FMS) his logic about other med would be valid.   did that make sense?  It did in my head… :) KCat – I am not a medical professional.  The contents of this post are based soley on my experiences and opinions http://www.ghg.net/schwerpt/mypage.htm http://www.ghg.net/schwerpt/aslfaq30.htm   ("`-”-/").___..–”"`-._   (`6_ 6  )   `-.  (     ).`-.__.’`)    (_Y_.)’  ._   )  `._ `. “-..-”   _..`–’_..-_/  /–’_.’ ,’ (()),-”  (()),’    (((.-’

Response:

Hi Nicole, The doctors in Canada only treat fibro with anti-depressants. I wonder if the doc is just telling your friend that he can’t combine other drugs because he doesn’t want to say that he won’t give her anything else. BJ-Sk. Canada "Nicole H" <nhightowerREM…@bak.rr.com

wrote in message

news:DhJK8.34783$R53.14792480@twister.socal.rr.com… – Hide quoted text — Show quoted text -

Hi everyone! I have a friend online that has fibromyalgia.  She takes Effexor XR…

says

her seretonin is almost zero if she doesn’t.  Well, the dr will not treat the fibro any other way and says any other meds will make the Effexor useless.  This can’t be right!  Many lupus, fibro, chronic pain patients take anti-depressants along w/lots of other meds. Can anyone explain this? Thanks Nicole

Response:

In the U.S.

Albie update – he has chronic pancreatitis.

Question:

– Hide quoted text — Show quoted text – Hello all This is an update on Albie’s progress. The latest pathology results have come back and the result is that Albie does not have FIP nor cancer. He is sufferng from chronic pancreatitis which is serious enough in itself, but nowhere near as bad as the other two. I know he is still very sick, but at least we can treat this disease. Albie’s appetite was waning a little after having improved since the biopsy, but now we have started him on prednisone 1mg twice a day he continually wants food. He must have a very low fat diet, so if any of you have any ideas on diet, please let me know. He’s been prescribed Hills Sensitivity Control diet which he quite likes. The other thing is that my vet now thinks that Albie’s high thyroid results have been thrown out because of the pancreatitis. His whole system has been upset by this. It is possible that Alb hasn’t got a thyroid problem at all. We will keep up to date with regular blood tests for thyroid, liver and kidneys, and I understand that diabetes may rear it’s ugly head because of the pancreatitis. Samples of pancreas, liver and lymph glands and fluids from the stomach were analysed. The pathologists comment on the biopsy is as follows – "There is a steatitis and pancreatitis present here. One differential diagnosis for this would include feline infectious peritonitus but as there is evidence of chronic damage to the pancreas it seems more likely that this is a straightforward pancreatitis not of infectious aetiology. There is no evidence of neoplasia in the liver, just a hyperplastic nodule with some mild pericholangitis." I sure hope she’s right! I let him wander outside last night for about 10 minutes (I stayed with him the whole time , after all it’s only been just over a week since the biopsy) and my little black boy was so much like his old self.  He stretched out on the warm path and squirmed in delight in the sun. I cried because during the long diagnostic procedure of this disease I really thought I was going to lose him. There were days where he could barely lift his head. I want to say a big thank you to my vet who never let me give up hope while still warning me to "just wait till we get the results!" and who patiently stood by my Albie. Marilyn

I hope the good recovery continues. Purrs. Karen

Response:

This is an update on Albie’s progress. The latest pathology results have come back and the result is that Albie does not have FIP nor cancer. He is sufferng from chronic pancreatitis which is serious enough in itself, but nowhere near as bad as the other two. I know he is still very sick, but at least we can treat this disease.

Hi Marilyn, I’m glad to hear the test results aren’t as bad as you feared, and that this disease is treatable.   Hugs to Albie, Lauren =^..^= See my cats:   http://www.picturetrail.com/mickey4paws/703043

Response:

Marily, I hope Albie’s recovery is swift and complete.  I’m glad he’s enjoying his life again and I hope he shows continued improvement. Candace (take the litter out before replying by e-mail) See my cats: http://photos.yahoo.com/maccandace

Response:

Hi Marilyn, My cat fuga has a bout of pancreatitus about 2 years ago.  Fortunatley I’ve had no reoccurence.  I was feeding Fuga Science Diet I/D for about a year with great sucess. When he was initially diagnosed the vet put him on Baytril for three weeks. Albie’s appetite was waning a little after having improved since the biopsy, but now we have started him on prednisone 1mg twice a day he continually wants food. He must have a very low fat diet, so if any of you have any ideas on diet, please let me know. He’s been prescribed Hills Sensitivity Control diet which he quite likes.

I’m not sure about the prednisone though because my vet and a few other vets that I consulted with strongly recommended having fuga stay away from prednisone as it can aggravate pancreatitus.  Hopefully some others on the group maybe able to comment more on that as I have only had the experience with it. I sure hope she’s right!

I  hope she has a quick recovery, please keep us posted. Sharon

Response:

Hello all This is an update on Albie’s progress. The latest pathology results have come back and the result is that Albie does not have FIP nor cancer. He is sufferng from chronic pancreatitis which is serious enough in itself, but nowhere near as bad as the other two. I know he is still very sick, but at least we can treat this disease. Albie’s appetite was waning a little after having improved since the biopsy, but now we have started him on prednisone 1mg twice a day he continually wants food. He must have a very low fat diet, so if any of you have any ideas on diet, please let me know. He’s been prescribed Hills Sensitivity Control diet which he quite likes. The other thing is that my vet now thinks that Albie’s high thyroid results have been thrown out because of the pancreatitis. His whole system has been upset by this. It is possible that Alb hasn’t got a thyroid problem at all. We will keep up to date with regular blood tests for thyroid, liver and kidneys, and I understand that diabetes may rear it’s ugly head because of the pancreatitis. Samples of pancreas, liver and lymph glands and fluids from the stomach were analysed. The pathologists comment on the biopsy is as follows – "There is a steatitis and pancreatitis present here. One differential diagnosis for this would include feline infectious peritonitus but as there is evidence of chronic damage to the pancreas it seems more likely that this is a straightforward pancreatitis not of infectious aetiology. There is no evidence of neoplasia in the liver, just a hyperplastic nodule with some mild pericholangitis." I sure hope she’s right! I let him wander outside last night for about 10 minutes (I stayed with him the whole time , after all it’s only been just over a week since the biopsy) and my little black boy was so much like his old self.  He stretched out on the warm path and squirmed in delight in the sun. I cried because during the long diagnostic procedure of this disease I really thought I was going to lose him. There were days where he could barely lift his head. I want to say a big thank you to my vet who never let me give up hope while still warning me to "just wait till we get the results!" and who patiently stood by my Albie. Marilyn

Response:

– Hide quoted text — Show quoted text – Hello all This is an update on Albie’s progress. The latest pathology results have come back and the result is that Albie does not have FIP nor cancer. He is sufferng from chronic pancreatitis which is serious enough in itself, but nowhere near as bad as the other two. I know he is still very sick, but at least we can treat this disease. Albie’s appetite was waning a little after having improved since the biopsy, but now we have started him on prednisone 1mg twice a day he continually wants food. He must have a very low fat diet, so if any of you have any ideas on diet, please let me know. He’s been prescribed Hills Sensitivity Control diet which he quite likes. The other thing is that my vet now thinks that Albie’s high thyroid results have been thrown out because of the pancreatitis. His whole system has been upset by this. It is possible that Alb hasn’t got a thyroid problem at all. We will keep up to date with regular blood tests for thyroid, liver and kidneys, and I understand that diabetes may rear it’s ugly head because of the pancreatitis. Samples of pancreas, liver and lymph glands and fluids from the stomach were analysed. The pathologists comment on the biopsy is as follows – "There is a steatitis and pancreatitis present here. One differential diagnosis for this would include feline infectious peritonitus but as there is evidence of chronic damage to the pancreas it seems more likely that this is a straightforward pancreatitis not of infectious aetiology. There is no evidence of neoplasia in the liver, just a hyperplastic nodule with some mild pericholangitis." I sure hope she’s right! I let him wander outside last night for about 10 minutes (I stayed with him the whole time , after all it’s only been just over a week since the biopsy) and my little black boy was so much like his old self.  He stretched out on the warm path and squirmed in delight in the sun. I cried because during the long diagnostic procedure of this disease I really thought I was going to lose him. There were days where he could barely lift his head. I want to say a big thank you to my vet who never let me give up hope while still warning me to "just wait till we get the results!" and who patiently stood by my Albie. Marilyn

I hope the good recovery continues. Purrs. Karen

Response:

This is an update on Albie’s progress. The latest pathology results have come back and the result is that Albie does not have FIP nor cancer. He is sufferng from chronic pancreatitis which is serious enough in itself, but nowhere near as bad as the other two. I know he is still very sick, but at least we can treat this disease.

Hi Marilyn, I’m glad to hear the test results aren’t as bad as you feared, and that this disease is treatable.   Hugs to Albie, Lauren =^..^= See my cats:   http://www.picturetrail.com/mickey4paws/703043

Response:

Marily, I hope Albie’s recovery is swift and complete.  I’m glad he’s enjoying his life again and I hope he shows continued improvement. Candace (take the litter out before replying by e-mail) See my cats: http://photos.yahoo.com/maccandace

Response:

Hi Marilyn, My cat fuga has a bout of pancreatitus about 2 years ago.  Fortunatley I’ve had no reoccurence.  I was feeding Fuga Science Diet I/D for about a year with great sucess. When he was initially diagnosed the vet put him on Baytril for three weeks. Albie’s appetite was waning a little after having improved since the biopsy, but now we have started him on prednisone 1mg twice a day he continually wants food. He must have a very low fat diet, so if any of you have any ideas on diet, please let me know. He’s been prescribed Hills Sensitivity Control diet which he quite likes.

I’m not sure about the prednisone though because my vet and a few other vets that I consulted with strongly recommended having fuga stay away from prednisone as it can aggravate pancreatitus.  Hopefully some others on the group maybe able to comment more on that as I have only had the experience with it. I sure hope she’s right!

I  hope she has a quick recovery, please keep us posted. Sharon

Response:

Hello all This is an update on Albie’s progress. The latest pathology results have come back and the result is that Albie does not have FIP nor cancer. He is sufferng from chronic pancreatitis which is serious enough in itself, but nowhere near as bad as the other two. I know he is still very sick, but at least we can treat this disease. Albie’s appetite was waning a little after having improved since the biopsy, but now we have started him on prednisone 1mg twice a day he continually wants food. He must have a very low fat diet, so if any of you have any ideas on diet, please let me know. He’s been prescribed Hills Sensitivity Control diet which he quite likes. The other thing is that my vet now thinks that Albie’s high thyroid results have been thrown out because of the pancreatitis. His whole system has been upset by this. It is possible that Alb hasn’t got a thyroid problem at all. We will keep up to date with regular blood tests for thyroid, liver and kidneys, and I understand that diabetes may rear it’s ugly head because of the pancreatitis. Samples of pancreas, liver and lymph glands and fluids from the stomach were analysed. The pathologists comment on the biopsy is as follows – "There is a steatitis and pancreatitis present here. One differential diagnosis for this would include feline infectious peritonitus but as there is evidence of chronic damage to the pancreas it seems more likely that this is a straightforward pancreatitis not of infectious aetiology. There is no evidence of neoplasia in the liver, just a hyperplastic nodule with some mild pericholangitis." I sure hope she’s right! I let him wander outside last night for about 10 minutes (I stayed with him the whole time , after all it’s only been just over a week since the biopsy) and my little black boy was so much like his old self.  He stretched out on the warm path and squirmed in delight in the sun. I cried because during the long diagnostic procedure of this disease I really thought I was going to lose him. There were days where he could barely lift his head. I want to say a big thank you to my vet who never let me give up hope while still warning me to "just wait till we get the results!" and who patiently stood by my Albie. Marilyn

Response:

– Hide quoted text — Show quoted text – Hello all This is an update on Albie’s progress. The latest pathology results have come back and the result is that Albie does not have FIP nor cancer. He is sufferng from chronic pancreatitis which is serious enough in itself, but nowhere near as bad as the other two. I know he is still very sick, but at least we can treat this disease. Albie’s appetite was waning a little after having improved since the biopsy, but now we have started him on prednisone 1mg twice a day he continually wants food. He must have a very low fat diet, so if any of you have any ideas on diet, please let me know. He’s been prescribed Hills Sensitivity Control diet which he quite likes. The other thing is that my vet now thinks that Albie’s high thyroid results have been thrown out because of the pancreatitis. His whole system has been upset by this. It is possible that Alb hasn’t got a thyroid problem at all. We will keep up to date with regular blood tests for thyroid, liver and kidneys, and I understand that diabetes may rear it’s ugly head because of the pancreatitis. Samples of pancreas, liver and lymph glands and fluids from the stomach were analysed. The pathologists comment on the biopsy is as follows – "There is a steatitis and pancreatitis present here. One differential diagnosis for this would include feline infectious peritonitus but as there is evidence of chronic damage to the pancreas it seems more likely that this is a straightforward pancreatitis not of infectious aetiology. There is no evidence of neoplasia in the liver, just a hyperplastic nodule with some mild pericholangitis." I sure hope she’s right! I let him wander outside last night for about 10 minutes (I stayed with him the whole time , after all it’s only been just over a week since the biopsy) and my little black boy was so much like his old self.  He stretched out on the warm path and squirmed in delight in the sun. I cried because during the long diagnostic procedure of this disease I really thought I was going to lose him. There were days where he could barely lift his head. I want to say a big thank you to my vet who never let me give up hope while still warning me to "just wait till we get the results!" and who patiently stood by my Albie. Marilyn

I hope the good recovery continues. Purrs. Karen

Response:

This is an update on Albie’s progress. The latest pathology results have come back and the result is that Albie does not have FIP nor cancer. He is sufferng from chronic pancreatitis which is serious enough in itself, but nowhere near as bad as the other two. I know he is still very sick, but at least we can treat this disease.

Hi Marilyn, I’m glad to hear the test results aren’t as bad as you feared, and that this disease is treatable.   Hugs to Albie, Lauren =^..^= See my cats:   http://www.picturetrail.com/mickey4paws/703043

Response:

Marily, I hope Albie’s recovery is swift and complete.  I’m glad he’s enjoying his life again and I hope he shows continued improvement. Candace (take the litter out before replying by e-mail) See my cats: http://photos.yahoo.com/maccandace

Response:

Hi Marilyn, My cat fuga has a bout of pancreatitus about 2 years ago.  Fortunatley I’ve had no reoccurence.  I was feeding Fuga Science Diet I/D for about a year with great sucess. When he was initially diagnosed the vet put him on Baytril for three weeks. Albie’s appetite was waning a little after having improved since the biopsy, but now we have started him on prednisone 1mg twice a day he continually wants food. He must have a very low fat diet, so if any of you have any ideas on diet, please let me know. He’s been prescribed Hills Sensitivity Control diet which he quite likes.

I’m not sure about the prednisone though because my vet and a few other vets that I consulted with strongly recommended having fuga stay away from prednisone as it can aggravate pancreatitus.  Hopefully some others on the group maybe able to comment more on that as I have only had the experience with it. I sure hope she’s right!

I  hope she has a quick recovery, please keep us posted. Sharon

Response:

Hello all This is an update on Albie’s progress. The latest pathology results have come back and the result is that Albie does not have FIP nor cancer. He is sufferng from chronic pancreatitis which is serious enough in itself, but nowhere near as bad as the other two. I know he is still very sick, but at least we can treat this disease. Albie’s appetite was waning a little after having improved since the biopsy, but now we have started him on prednisone 1mg twice a day he continually wants food. He must have a very low fat diet, so if any of you have any ideas on diet, please let me know. He’s been prescribed Hills Sensitivity Control diet which he quite likes. The other thing is that my vet now thinks that Albie’s high thyroid results have been thrown out because of the pancreatitis. His whole system has been upset by this. It is possible that Alb hasn’t got a thyroid problem at all. We will keep up to date with regular blood tests for thyroid, liver and kidneys, and I understand that diabetes may rear it’s ugly head because of the pancreatitis. Samples of pancreas, liver and lymph glands and fluids from the stomach were analysed. The pathologists comment on the biopsy is as follows – "There is a steatitis and pancreatitis present here. One differential diagnosis for this would include feline infectious peritonitus but as there is evidence of chronic damage to the pancreas it seems more likely that this is a straightforward pancreatitis not of infectious aetiology. There is no evidence of neoplasia in the liver, just a hyperplastic nodule with some mild pericholangitis." I sure hope she’s right! I let him wander outside last night for about 10 minutes (I stayed with him the whole time , after all it’s only been just over a week since the biopsy) and my little black boy was so much like his old self.  He stretched out on the warm path and squirmed in delight in the sun. I cried because during the long diagnostic procedure of this disease I really thought I was going to lose him. There were days where he could barely lift his head. I want to say a big thank you to my vet who never let me give up hope while still warning me to "just wait till we get the results!" and who patiently stood by my Albie. Marilyn

Response:

does anyone overheat???

Question:

The Endo. said that he is not going to change my medication because

I am overweight.  Am not overheating now and do not have the jitters and exhaustion that I had before.  So I guess that’s okay. I’m not sure I understand — your endo wants you to be (slightly?) hyperthyroid because you’re overweight? My understanding is that hyper increases the risk of osteoporosis — which I have to watch out for since as a thyroid cancer survivor I take a suppression dose of thyroid med (suppress the tsh, lab test looks very hyper). I’ve also read (but can’t remember where) that "extra" thyroid med (making you hyper)  does not help with weight loss, even if being hypo does make you tend to gain! bj

Response:

"Julie Bove"  wrote … And my GP had given me a CBC that showed that I was being overmedicated for the thyroid. … CBC to check thyroid?? I think there must have been some other testing going on. What is/was your tsh and other thyroid specific tests?

She did order some other tests.  I really can’t remember which ones.  I’ve been to so many Drs. and had so many tests done, I can’t remember the specifics on that one.  I know she had the thyroid checked though, and she asked me if I knew why my Endo. was allowing me to run high.  When I mentioned it to him he said I had told him I wanted it like that because I felt better.  Boy was I steamed!  All the problems I had been having were related to high thyroid and I just didn’t know it!  Now I do!  From now on, I will never let a Dr. tell me my blood test results are fine.  I got a copy of the last results from the Neurologist and discovered that I have anemia. Was told all those were fine too.  And the thyroid still didn’t look right to me.  Can’t remember the specifics now.  One of the numbers was a bit low…which means it’s really high.  The Endo. said that he is not going to change my medication because I am overweight.  Am not overheating now and do not have the jitters and exhaustion that I had before.  So I guess that’s okay.  – Type 2 http://www.redshift.com/~juliebove/

Response:

I have to be very careful out in the heat or my BG readings go sky high!! YMMV

Response:

"Julie Bove"  wrote … And my GP had given me a CBC that showed that I was being

overmedicated for the thyroid. … CBC to check thyroid?? I think there must have been some other testing going on. What is/was your tsh and other thyroid specific tests?

Response:

– Hide quoted text — Show quoted text – Hi, I am wondering if anyone notices spells of overheating after doing very light things, such as going up and down stairs and walking around in a slightly warm environment, say 80 deg. Even te other day I was standing to cook dinner and the back of my shirt was soaked! I drink water all the time, because Im always thirsty, but not much comes back out, so must have a lot of vapor loss, because my weight stays constant for the most part. Going to the gym, a everyday occurence, usually makes me completely soaked if I do cardio. It is kind of odd though, because I am in extremely good shape. The odd thing is, if I go outside in the heat and do yardwork, or walk outside in the sun, I will be fine. Sometimes when I come into AC though, Ill start sweating, perhaps from overexhursion, perhaps from my body improperly sensing heat. Is it a possibility that my body doesnt absorb water properly? I thik it would come out the usual way then… I am intrigued bythis. I feel wonderful, it is more of an annoyance thing. I have a friend who just always has sweaty palms. It is odd, but I think it is s somewhat common occurrence to sweat profusely. ANy info would be most appreciated. Thanks

I used to have that problem, but don’t any more.  In my case, I think it was related to medication and not diabetes.  I went in to my Endo. and he was horrified to discover that I had a rapid heartbeat.  At the time, he had put me on a low dose of Desipramine to help with Fibromyalgia.  Desipramine is known to cause heart problems.  Was also taking Glucophage (for diabetes) and Synthroid (for thyroid).  I had been having frequent hypos, so he stopped the Glucophage.  And my GP had given me a CBC that showed that I was being overmedicated for the thyroid.  He had me stop the synthroid and start again at a lower dose.  Amazingly, I felt just fine after everything got out of my system.  Then when I restarted the Synthroid, the sweating began again.  Am now on yet a lower dose.  Has your thyroid been checked?  That’s where I’d start. — Type 2 http://www.redshift.com/~juliebove/

Response:

bother him, but often when he sits down he gets drenched from head to toe.  (Diagnosed with Type 2  about 2 years ago – is on Glucovance).

The first time I took Glucovance, my BG dreopped VERY low. For part of the time while we were trying to deal with the situation, although we were in an aic-conditioned office, and I did not feel hot, the sweat was dripping off more than one drop per second. — Wes Groleau http://freepages.rootsweb.com/~wgroleau

Response:

I do this all the time for apparently no reason. I’m in good physical shape, maybe 5-6 pounds overweight at the most, and have been a T1 for 45 years.  I can be sitting at the computer in an air-conditioned room and all of a sudden break into a sweat. It’s very annoying.  It is interesting to see that others have this problem and it isn’t "just me". Skye

– Hide quoted text — Show quoted text – Hi, I am wondering if anyone notices spells of overheating after doing very light things, such as going up and down stairs and walking around in a slightly warm environment, say 80 deg. Even te other day I was standing to cook dinner and the back of my shirt was soaked! I drink water all the time, because Im always thirsty, but not much comes back out, so must have a lot of vapor loss, because my weight stays constant for the most part. Going to the gym, a everyday occurence, usually makes me completely soaked if I do cardio. It is kind of odd though, because I am in extremely good shape. The odd thing is, if I go outside in the heat and do yardwork, or walk outside in the sun, I will be fine. Sometimes when I come into AC though, Ill start sweating, perhaps from overexhursion, perhaps from my body improperly sensing heat. Is it a possibility that my body doesnt absorb water properly? I thik it would come out the usual way then… I am intrigued bythis. I feel wonderful, it is more of an annoyance thing. I have a friend who just always has sweaty palms. It is odd, but I think it is s somewhat common occurrence to sweat profusely. ANy info would be most appreciated. Thanks JMH

Response:

I didn’t do this until I was put on an ACE inhibitor, now I do …. It is annoying … since I work out in a gym 4 days a week I noticed this change about a week after the med kicked in , Now understand, I live in Las Vegas, I walk to work and to the gym for extra exercise every. We have "dry" heat here and in the early a.m. around %am when I start out I am pretty wet when I arrive at work 1 1/2 miles away. I livenext door to the gym, so it/s back that way @ 1:45p.m. every day. Remember, an oven is also dry heat ? Well, I am beyond soaked. I do have "spells" and I am under 130lbs, when I used to be 314. I don’t do as bad as I used to but I don’t do well. I have to rest a bit before I work out. I start about 45 mins. before i leave home in the morning and drink at least a pint of water, and in the afternon at work I down about a quart and more when I arrive home or at the gym. I keep ahead of this all day, BTW.              Could you be having low bp or bg ? When my bp goes low I get the dizzies and the dr. told me to be especially careful to make sure my fluid intake is good. People used to tell me that when I lost weight I wouldn’t be so bad in the heat and it is, kinda, but I still get "sick" and I have to be careful. I wouldn ‘t ever dare to run outside …..                                  Rainbow

Response:

says… For me, it’s getting ready to go somewhere that will have me dripping sweat.  Doesn’t matter what the temperature in the room…if there are preparations that must be made (either packing for a trip or getting "dressed up"), I’ll be literally wringing wet.

<snip I have experienced this but not when I’m healthy.  When I had a bad upper respiratory infection/bronchitis, for several weeks afterward I had the sweats, as well as weakness/tiredness.  If I walked across the room I broke out in a heavy sweat.  Also when I was at Book Expo and was walking and looking at booths for hours, it happened again.  For me it seems to be linked to fatigue… Alison T2/4/01/500 mg. Glucophage/D/E

Response:

The stress of putting on your makeup and pantyhose??? :-) I don’t wear pantyhose but I do need my eye shadow.. :-) No fishnet stockings?

Only on Saturday nights and then only with a leather skirt — yup.. it’s me http://ntserver.at/rockcreek http://rockcreeknews.blogspot.com/

Response:

The stress of putting on your makeup and pantyhose??? :-) I don’t wear pantyhose but I do need my eye shadow.. :-)

No fishnet stockings?

Response:

- Hide quoted text — Show quoted text – says… For me, it’s getting ready to go somewhere that will have me dripping sweat.  Doesn’t matter what the temperature in the room…if there are preparations that must be made (either packing for a trip or getting "dressed up"), I’ll be literally wringing wet. I remember that my maternal grandmother (the one who DIDN’T have diabetes) also reacted like this for as long as I can remember. Anyone else sweat profusely in these circumstances? (It certainly makes it a challenge to put on either makeup or pantyhose!) I do, also when I am in a stressful situation.. For me I think it is stress..

Hmmm…maybe my "getting ready" is more stressful than I realize…but other situations which I recognize as stressful don’t trigger this reaction.  (yeah, I realize that you only said that it was the stress that triggered it for you) Carol P. – Hide quoted text — Show quoted text – — yup.. it’s me http://ntserver.at/rockcreek http://rockcreeknews.blogspot.com/

Response:

Anyone else sweat profusely in these circumstances? (It certainly makes it a challenge to put on either makeup or pantyhose!) I do, also when I am in a stressful situation.. For me I think it is stress..

The stress of putting on your makeup and pantyhose??? :-)

Response:

The stress of putting on your makeup and pantyhose??? :-)

I don’t wear pantyhose but I do need my eye shadow.. :-) — yup.. it’s me http://ntserver.at/rockcreek http://rockcreeknews.blogspot.com/

Response:

says… For me, it’s getting ready to go somewhere that will have me dripping sweat.  Doesn’t matter what the temperature in the room…if there are preparations that must be made (either packing for a trip or getting "dressed up"), I’ll be literally wringing wet.   I remember that my maternal grandmother (the one who DIDN’T have diabetes) also reacted like this for as long as I can remember. Anyone else sweat profusely in these circumstances? (It certainly makes it a challenge to put on either makeup or pantyhose!)

I do, also when I am in a stressful situation.. For me I think it is stress.. — yup.. it’s me http://ntserver.at/rockcreek http://rockcreeknews.blogspot.com/

Response:

I’m curious Ronnie, have you always done this in stressful situations, or has it just been since you have been dx’d? I’m really trying to find out if diabetics are more prone to this, since it seems a lot of people in the groups have the same problem.

I do, also when I am in a stressful situation.. For me I think it is – Hide quoted text — Show quoted text -stress.. — yup.. it’s me http://ntserver.at/rockcreek http://rockcreeknews.blogspot.com/

Response:

I’m curious Ronnie, have you always done this in stressful situations, or has it just been since you have been dx’d? I’m really trying to find out if diabetics are more prone to this, since it seems a lot of people in the groups have the same problem.

mmmmm… I notice it more now maybe because I am more in tune with my health than I was (read worry)… but I think I was always on to have physical signs of stress… — yup.. it’s me http://ntserver.at/rockcreek http://rockcreeknews.blogspot.com/

Response:

has any one had problems with foot getting cold i have one foot i have to wear wool sock on in summer and it still gets cold  any answers — thanks

– Hide quoted text — Show quoted text – I have tried to find answers to this in the past couple of years, but I still don’t know what causes it. In my case I can be sitting doing nothing and I will get this funny little flutter in my stomach, and within a minute or so I will be feeling very overheated and sweating like crazy. I weigh 150 5′4" and know I could stand to be 25 pounds lighter, but pre-diabetes I weighed 35 pounds more, and it never happened. It’s horrible and embarrassing and I hope someone has some answers. Hi, I am wondering if anyone notices spells of overheating after doing very light things, such as going up and down stairs and walking around in a slightly warm environment, say 80 deg. Even te other day I was standing to cook dinner and the back of my shirt was soaked! I drink water all the time, because Im always thirsty, but not much comes back out, so must have a lot of vapor loss, because my weight stays constant for the most part. Going to the gym, a everyday occurence, usually makes me completely soaked if I do cardio. It is kind of odd though, because I am in extremely good shape. The odd thing is, if I go outside in the heat and do yardwork, or walk outside in the sun, I will be fine. Sometimes when I come into AC though, Ill start sweating, perhaps from overexhursion, perhaps from my body improperly sensing heat. Is it a possibility that my body doesnt absorb water properly? I thik it would come out the usual way then… I am intrigued bythis. I feel wonderful, it is more of an annoyance thing. I have a friend who just always has sweaty palms. It is odd, but I think it is s somewhat common occurrence to sweat profusely. ANy info would be most appreciated. Thanks JMH JMH, I don’t have any info but I do exactly what you do. At work it is embarrassing. I think losing weight for me will help. I don’t know for sure. Just my idea of why I do this. Good luck on finding answers. I’ll be watching the postings to learn as well. — Theresa dx ‘98 t2 insulin, diet & exercise 6.1% An ulcer can cause those symptoms… — yup.. it’s me http://ntserver.at/rockcreek http://rockcreeknews.blogspot.com/

Response:

Hi, I am wondering if anyone notices spells of overheating after doing very light things, such as going up and down stairs and walking around in a slightly warm environment, say 80 deg.

For me, it’s getting ready to go somewhere that will have me dripping sweat.  Doesn’t matter what the temperature in the room…if there are preparations that must be made (either packing for a trip or getting "dressed up"), I’ll be literally wringing wet.   I remember that my maternal grandmother (the one who DIDN’T have diabetes) also reacted like this for as long as I can remember. Anyone else sweat profusely in these circumstances? (It certainly makes it a challenge to put on either makeup or pantyhose!) Carol P.

Response:

– Hide quoted text — Show quoted text – I have tried to find answers to this in the past couple of years, but I still don’t know what causes it. In my case I can be sitting doing nothing and I will get this funny little flutter in my stomach, and within a minute or so I will be feeling very overheated and sweating like crazy. I weigh 150 5′4" and know I could stand to be 25 pounds lighter, but pre-diabetes I weighed 35 pounds more, and it never happened. It’s horrible and embarrassing and I hope someone has some answers. Hi, I am wondering if anyone notices spells of overheating after doing very light things, such as going up and down stairs and walking around in a slightly warm environment, say 80 deg. Even te other day I was standing to cook dinner and the back of my shirt was soaked! I drink water all the time, because Im always thirsty, but not much comes back out, so must have a lot of vapor loss, because my weight stays constant for the most part. Going to the gym, a everyday occurence, usually makes me completely soaked if I do cardio. It is kind of odd though, because I am in extremely good shape. The odd thing is, if I go outside in the heat and do yardwork, or walk outside in the sun, I will be fine. Sometimes when I come into AC though, Ill start sweating, perhaps from overexhursion, perhaps from my body improperly sensing heat. Is it a possibility that my body doesnt absorb water properly? I thik it would come out the usual way then… I am intrigued bythis. I feel wonderful, it is more of an annoyance thing. I have a friend who just always has sweaty palms. It is odd, but I think it is s somewhat common occurrence to sweat profusely. ANy info would be most appreciated. Thanks JMH JMH, I don’t have any info but I do exactly what you do. At work it is embarrassing. I think losing weight for me will help. I don’t know for sure. Just my idea of why I do this. Good luck on finding answers. I’ll be watching the postings to learn as well. — Theresa dx ‘98 t2 insulin, diet & exercise 6.1%

An ulcer can cause those symptoms… — yup.. it’s me http://ntserver.at/rockcreek http://rockcreeknews.blogspot.com/

Response:

My husband suffers from this, too –  can work outside and it won’t bother him, but often when he sits down he gets drenched from head to toe.  (Diagnosed with Type 2  about 2 years ago – is on Glucovance). It’s intriguing that you all have it too.  Is it one symptom of diabetes?

I had this problem really bad prior to being diagnosed and getting my numbers under control.  It hasn’t been a big issue recently, though, and we’ve had some very hot weather.  The fun with this disease just never ends, does it? Damsel T2, DXed 5/15/2001 Glyburide, Exercise, Moderate-Carb Diet

Response:

My husband suffers from this, too –  can work outside and it won’t bother him, but often when he sits down he gets drenched from head to toe.  (Diagnosed with Type 2  about 2 years ago – is on Glucovance). It’s intriguing that you all have it too.  Is it one symptom of diabetes? – limey

Response:

I have tried to find answers to this in the past couple of years, but I still don’t know what causes it. In my case I can be sitting doing nothing and I will get this funny little flutter in my stomach, and within a minute or so I will be feeling very overheated and sweating like crazy. I weigh 150 5′4" and know I could stand to be 25 pounds lighter, but pre-diabetes I weighed 35 pounds more, and it never happened. It’s horrible and embarrassing and I hope someone has some answers. – Hide quoted text — Show quoted text – Hi, I am wondering if anyone notices spells of overheating after doing very light things, such as going up and down stairs and walking around in a slightly warm environment, say 80 deg. Even te other day I was standing to cook dinner and the back of my shirt was soaked! I drink water all the time, because Im always thirsty, but not much comes back out, so must have a lot of vapor loss, because my weight stays constant for the most part. Going to the gym, a everyday occurence, usually makes me completely soaked if I do cardio. It is kind of odd though, because I am in extremely good shape. The odd thing is, if I go outside in the heat and do yardwork, or walk outside in the sun, I will be fine. Sometimes when I come into AC though, Ill start sweating, perhaps from overexhursion, perhaps from my body improperly sensing heat. Is it a possibility that my body doesnt absorb water properly? I thik it would come out the usual way then… I am intrigued bythis. I feel wonderful, it is more of an annoyance thing. I have a friend who just always has sweaty palms. It is odd, but I think it is s somewhat common occurrence to sweat profusely. ANy info would be most appreciated. Thanks JMH JMH, I don’t have any info but I do exactly what you do. At work it is embarrassing. I think losing weight for me will help. I don’t know for sure. Just my idea of why I do this. Good luck on finding answers. I’ll be watching the postings to learn as well. — Theresa dx ‘98 t2 insulin, diet & exercise 6.1% Being happy doesn’t mean everything’s perfect, it just means you’ve decided to see beyond the imperfections.

Response:

– Hide quoted text — Show quoted text – Hi, I am wondering if anyone notices spells of overheating after doing very light things, such as going up and down stairs and walking around in a slightly warm environment, say 80 deg. Even te other day I was standing to cook dinner and the back of my shirt was soaked! I drink water all the time, because Im always thirsty, but not much comes back out, so must have a lot of vapor loss, because my weight stays constant for the most part. Going to the gym, a everyday occurence, usually makes me completely soaked if I do cardio. It is kind of odd though, because I am in extremely good shape. The odd thing is, if I go outside in the heat and do yardwork, or walk outside in the sun, I will be fine. Sometimes when I come into AC though, Ill start sweating, perhaps from overexhursion, perhaps from my body improperly sensing heat. Is it a possibility that my body doesnt absorb water properly? I thik it would come out the usual way then… I am intrigued bythis. I feel wonderful, it is more of an annoyance thing. I have a friend who just always has sweaty palms. It is odd, but I think it is s somewhat common occurrence to sweat profusely. ANy info would be most appreciated. Thanks JMH

JMH, I don’t have any info but I do exactly what you do. At work it is embarrassing. I think losing weight for me will help. I don’t know for sure. Just my idea of why I do this. Good luck on finding answers. I’ll be watching the postings to learn as well. — Theresa dx ‘98 t2 insulin, diet & exercise 6.1% Being happy doesn’t mean everything’s perfect, it just means you’ve decided to see beyond the imperfections.

Response:

Hi, I am wondering if anyone notices spells of overheating after doing very light things, such as going up and down stairs and walking around in a slightly warm environment, say 80 deg. Even te other day I was standing to cook dinner and the back of my shirt was soaked! I drink water all the time, because Im always thirsty, but not much comes back out, so must have a lot of vapor loss, because my weight stays constant for the most part. Going to the gym, a everyday occurence, usually makes me completely soaked if I do cardio. It is kind of odd though, because I am in extremely good shape. The odd thing is, if I go outside in the heat and do yardwork, or walk outside in the sun, I will be fine. Sometimes when I come into AC though, Ill start sweating, perhaps from overexhursion, perhaps from my body improperly sensing heat. Is it a possibility that my body doesnt absorb water properly? I thik it would come out the usual way then… I am intrigued bythis. I feel wonderful, it is more of an annoyance thing. I have a friend who just always has sweaty palms. It is odd, but I think it is s somewhat common occurrence to sweat profusely. ANy info would be most appreciated. Thanks JMH

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Divalproex Sodium

Question:

I often wonder if the high incidence of depression among migraine patients is at least partly attributable to how many depressant drugs we’re given. –Julianne

Hi Julianne, I HAD to comment on this one!  My close relationship to MANY antidepressant and psychiatric drugs began after I was treated for Graves disease which is a thyroid disorder. They used radioactive iodine to totally kill my thyroid and I am forever on hormone replacemnt Synthroid, Well, what they did NOT know was that my thyroid would never again become stable and I started having all sorts of odd symptoms that the doctors decided were emotional and thus the beginning of one antidepressant after another. This was 11 years ago. Now I finally have a doctor who discovered that my thyroid has never been stable for more than a few months and there never was a need for ANY of these medications. But, I now fight depression and an addiction to Klonopin – a tranquilizer that was given to me during a hyperthyroid (high thyroid) phase to calm me down. I was NOT agitated, I just had too much thyroid hormone. Anyway, long story short is that all the drugs I have been put on have resulted in far more side effects and dysfunction than any medical condition I suffer from. I have had migraines off and on since pupberty and am now 46. When the ha’s came back several years ago, AGAIN they pushed AD’s on me. Like you, I had so much trouble, I can’t imagine how these drugs can help a truly depressed person except that the brain chemistry thing must not apply to us. It is adding one more chemical to treat a symptom caused by yet another chemical.Yes, I did the Depakote too. (lost hair and got fat) I think I have been on everything. Now, I treat ONLY the migraines that break through each week or so. (Codeine and Phenergan) No more preventatives that make me sick and still trying to ease off this nasty tranquilizer that I never needed in the first place. I use low dose birth control pills on a continual basis (no placebo week) and the lack of PMS has been a big boost to my wellbeing. Oh my, I have ranted quite a bit here but that sentence about antidepressants contributing to depression in migraine patients really set me off :-) Debbie

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e high incidence of depression among migraine patients is at least partly attributable to how many depressant drugs we’re

I think it may be more related to the fact that depression AND migraine are related to the serontin  "system" so to speak in our brains…thus the anti-dep meds  CAN  sometimes help headaches….but not always,,as we all kknow!! On the other hand,,can you think of anything MORE depressing than having PAIN in your head on a regular,,if not. daily basis??  I can’t.. rb Hawki…the nurse practitioner If at first you don’t succeed,,destroy all evidence that you tried!!

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I’ve had really bad reactions, often including lethargy and depression, to most of the so-called preventive drugs. I responded so badly to the tricyclic antidepressants that I could not believe they could helpful to somebody who was ALREADY depressed (which I was not). However, I was able to tolerate both Paxil and Celexa. They didn’t help my headaches, and they did END my sex life (only while I was on them, I’m happy to say). But at least they didn’t make me want to kill myself. I often wonder if the high incidence of depression among migraine patients is at least partly attributable to how many depressant drugs we’re given. –Julianne

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Yeah;  I guess I knew that …  I just wanted to strike a cautionary note. – Hide quoted text — Show quoted text – That’s certainly not the impression I meant to leave, Catherine

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That’s certainly not the impression I meant to leave, Catherine, although I can see how a reader might take it that way…. For several people I know who’ve had deep depressions, antidepressants have been lifesavers. But for a person who’s not depressed to experience such overwhelming depression in response to an antidepressant…seems worth noting here, since a lot of migraineurs are given tricyclics as preventives and not for depression. –J

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Sorry, Debbie, about your nasty experiences with psychotropics … but under ordinary circumstances, in many patients,  antidepressants are very efficient in helping to reduce frequency/severity of migraine attacks, & their side effects are frequently minimal.  They can also be (literally) lifesavers to people with clinical depression.  It’s appropriate to be careful of what we take, but not to be frightened off  what can be good treatment options.

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Thanks Julianne;     Knowing that this reaction isn’t atypical helps a great deal.  None of the literature talks about depression as a possible side effect, even though it is used a great deal here in Canada as a treatment for bipolar disorder, especially during the manic phase.     Surely a drug that can cause someone that extremely agitated to calm down has to be able to depress the emotional state of someone who isn’t manic.     I know what you mean about preventatives working only short-term.  I’ve been through calcium channel blockers, (little help – caused me to be angry all the time), beta-blockers, (it’s hard to stand up when your pulse is in the 40’s), amitryptiline, (mouth so dry I couldn’t talk and it didn’t help the HA’s), and a few others I can’t even remember right now.     However, I (perhaps foolishly), live in hope.  I’m willing to try one of the newer antidepressants if there is even a slight chance it will work.  Who knows – it might even cheer me up a bit! Alex – Hide quoted text — Show quoted text – If that’s what we call Depakote, I had a reaction of lethargy and suicidal depression to a much smaller dose than that. Didn’t help my headaches either, which made it simple to quit. BTW, many so-called preventives quit working after a while. Maybe it’s time to try something else. I bet the depression goes away with the damn drug. –Julianne

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If that’s what we call Depakote, I had a reaction of lethargy and suicidal depression to a much smaller dose than that. Didn’t help my headaches either, which made it simple to quit. BTW, many so-called preventives quit working after a while. Maybe it’s time to try something else. I bet the depression goes away with the damn drug. –Julianne

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Hello All;     I’m looking for advice from anyone who’s used Epival for HA prevention.     I’ve been using it for about 18 months.  At first it seemed to decrease my HA frequency and intensity.  When the effect seemed to be wearing off my neuro increased the dose to 1,000 mg/day, (at which point I had to add 20 mg of Nadolol a day for tremor!).     Lately, I’ve been feeling terrible.  More lethargic than usual, and many alarming symptoms of depression.  On top of this my 20 plus migraines a month are back, 90% of which Imitrex takes care of – eventually.     My GP is having me withdraw from Epival over two weeks.  I’m one week in and feeling a bit better, (head still hurting, though).  Does anyone have any experience with this kind of withdrawal?  Is there anything I should be looking out for?     Also, GP is concerned about depression, (which, as far as I’m concerned is a side effect of Epival), and is hinting that he wants to put me on antidepressants.  I may agree to try it for HA relief.  I did try amytriptiline once, to no good effect.  Any suggestions?     I’d appreciate hearing from anyone with any advice/insights.  Please Best Regards; Alex

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I feel for you. One Neurologist I had about 10 years ago, put me on an anti-depressent, without telling me it was.  I occasionally have adverse reactions to drugs, valium makes me hyper.  So, I went an entire summer, thinking I was totally losing it.  Until I started doing some digging of my own on the subject. Needless to say, that "Doctor"  and I soon parted ways.  I have finally found a neurologist that listens, is willing to work with me, try and find new things, when the others stop or don’t work, and is not afraid to prescribe pain drugs.  Now if I could only get a pharmacy that stops second guessing the Dr. and insurance with a drug plan.  Man are those pain meds expensive.   – Hide quoted text — Show quoted text – Hi All;     Saw the GP yesterday.  I reported all the improvements in mood, etc., but I think he still believes I’m significantly depressed.  I don’t know how he could ever gather that since I was as jumpy and tremulous as I’ve ever been in my life.  It was like I was extremely nervous – my palms were even sweating!  (This is really out of character – I deal with stressful situations all the time and don’t feel the least bit nervous at all.)     He has suggested I start taking nadolol again to control all of this.  I did so last evening and, sure enough, I feel 100% better.  The plan is to taper this off as the side-effect diminishes, (assuming it ever does diminish.)     He’s suggesting an SSRI for me.  He has his eye on depression, I’m sure, but I’d be willing to try it since it might help with the HA’s.  Only, I can’t find anyone who’s got much good to say about Prozac, etc.     I’d appreciate it if anyone was willing to share their experiences with SSRI’s. Cheers; Alex Friends;     Thanks for the information, personal accounts and support.  It is greatly appreciated.     I see my GP tomorrow.  By then I will have been one week fully off of Divalproex Sodium, (Epival/Depakote), after tapering off for a week.  At this point I am feeling less lethargic; I am not experiencing the kinds of aches and pains I’d grown to expect – especially in the morning;  my mood is improved; and my memory is definitely beginning to function again.  I have also had a decreased number of headaches!     Along with the DS I also stopped taking nadolol, which I’d been using to suppress the tremor that the DS was causing.  Here’s the rub.  The tremor is back.  Much less that it was, but I feel that slightly nervous/jumpy feeling throughout my waking hours.  It makes writing, typing and other fine motor movements a little difficult.  From some poking around I’ve done, I understand that this can persist for months after the medication is withdrawn, (file this under, "stuff-they-don’t-tell-you").  My plan at this point is to just tough it out in hopes it will go away.     I’m not sure what the GP will recommend tomorrow, but I think I’ll pay my neuro a visit to ream him out a bit over all this.  I’ll keep you posted. Cheers; Alex

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Hi All;     Saw the GP yesterday.  I reported all the improvements in mood, etc., but I think he still believes I’m significantly depressed.  I don’t know how he could ever gather that since I was as jumpy and tremulous as I’ve ever been in my life.  It was like I was extremely nervous – my palms were even sweating!  (This is really out of character – I deal with stressful situations all the time and don’t feel the least bit nervous at all.)     He has suggested I start taking nadolol again to control all of this.  I did so last evening and, sure enough, I feel 100% better.  The plan is to taper this off as the side-effect diminishes, (assuming it ever does diminish.)     He’s suggesting an SSRI for me.  He has his eye on depression, I’m sure, but I’d be willing to try it since it might help with the HA’s.  Only, I can’t find anyone who’s got much good to say about Prozac, etc.     I’d appreciate it if anyone was willing to share their experiences with SSRI’s. Cheers; Alex – Hide quoted text — Show quoted text – Friends;     Thanks for the information, personal accounts and support.  It is greatly appreciated.     I see my GP tomorrow.  By then I will have been one week fully off of Divalproex Sodium, (Epival/Depakote), after tapering off for a week.  At this point I am feeling less lethargic; I am not experiencing the kinds of aches and pains I’d grown to expect – especially in the morning;  my mood is improved; and my memory is definitely beginning to function again.  I have also had a decreased number of headaches!     Along with the DS I also stopped taking nadolol, which I’d been using to suppress the tremor that the DS was causing.  Here’s the rub.  The tremor is back.  Much less that it was, but I feel that slightly nervous/jumpy feeling throughout my waking hours.  It makes writing, typing and other fine motor movements a little difficult.  From some poking around I’ve done, I understand that this can persist for months after the medication is withdrawn, (file this under, "stuff-they-don’t-tell-you").  My plan at this point is to just tough it out in hopes it will go away.     I’m not sure what the GP will recommend tomorrow, but I think I’ll pay my neuro a visit to ream him out a bit over all this.  I’ll keep you posted. Cheers; Alex

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Here’s the rub.  The tremor is back.  Much less that it was, but I feel that slightly nervous/jumpy feeling throughout my waking hours.  It makes writing, typing and other fine motor movements a little difficult

Hey Alex, that is exactly what happened to me on Depakote. My kids laughed because I missed my mouth with my fork and dropped stuff out of my sandwiches when I tried to eat.  No way to control a computer mouse at all.  Sad part is, it did ease off my migraines.  No way to win. Red

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Friends;     Thanks for the information, personal accounts and support.  It is greatly appreciated.     I see my GP tomorrow.  By then I will have been one week fully off of Divalproex Sodium, (Epival/Depakote), after tapering off for a week.  At this point I am feeling less lethargic; I am not experiencing the kinds of aches and pains I’d grown to expect – especially in the morning;  my mood is improved; and my memory is definitely beginning to function again.  I have also had a decreased number of headaches!     Along with the DS I also stopped taking nadolol, which I’d been using to suppress the tremor that the DS was causing.  Here’s the rub.  The tremor is back.  Much less that it was, but I feel that slightly nervous/jumpy feeling throughout my waking hours.  It makes writing, typing and other fine motor movements a little difficult.  From some poking around I’ve done, I understand that this can persist for months after the medication is withdrawn, (file this under, "stuff-they-don’t-tell-you").  My plan at this point is to just tough it out in hopes it will go away.     I’m not sure what the GP will recommend tomorrow, but I think I’ll pay my neuro a visit to ream him out a bit over all this.  I’ll keep you posted. Cheers; Alex

Response:

It would seem to suggest that you get depressed because you’re in pain a lot of the time; therefore the depression is situational rather than chemical. Or … perhaps there’s some kind of seratonin thing going on with both the headache & the depression.  Life can be a mystery. – Hide quoted text — Show quoted text -When my Ha take a vacation my depression lifts so what does that tell you…

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     I suffer from both depression and migraines and have been told by too many doctors that one will not get better until the other does.  So for now(the past 4 years) I remain at a stand off.  Recently was taperd off of effexor,over the course of 4 weeks.  That was a very unpleasant experience and was started on prozac, this change in medicine has resulted in an increase in both migraine and depression.  However I do know that they go hand in hand.  When my Ha take a vacation my depression lifts so what does that tell you…jan

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Response:

I know about those sorts of feelings.  a calcium channel blocker, "Sybelium", did that number on me a few years back.  It turned me into a rage filled monster.  Within a week of flushing that stuff I was back to normal.     This time around it’s taking much longer. After seeing my GP on Thursday, I started taking nadolol (a beta blocker) again for the tremor, and it’s pretty much taken care of the tremulous, jumpy feelings.  I’m pretty PO’d that no one told me that side effects could recur and then persist for as long as 6 months after discontinuing divalproex.     I find my mood generally improved, but I’m on a bit of a roller coaster too.  I’ve felt quite well emotionally, but also have been quite blue on occasion.  But, on the whole, I feel better than I did while on the DS.  And, get this, I haven’t had a HA for three days.  Something of a record for me in recent months.     All the aches and pains I’ve been experiencing for months have just gone away, but I’m sleeping extremely poorly and my ability to concentrate is still a long way from normal.  I find myself wondering just what that stuff was doing to my brain – and continues to do to it.     I’ll keep you posted on any new and wonderful developments. Cheers; Alex – Hide quoted text — Show quoted text – Some clinical depressions are of the "agitated" variety. he still believes I’m significantly depressed.  I don’t know how he could ever gather that since I was as jumpy and tremulous as I’ve ever been in my life

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Some clinical depressions are of the "agitated" variety. he still believes I’m significantly depressed.  I don’t know how he could ever gather that since I was as jumpy and tremulous as I’ve ever been in my

life

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embarassing question-women only

Question:

I must agree have thyroid checked, sounds like it could be graves disease. My mom was admitted into hospital because her heart was in fib, she arrested and was in ICU for a week, things did not look good. The Cardiologist could not control her fib and could not figure out why it was happening. It just so happens that a friend of my moms who taught at the hospitals nursing school came by to visit. After looking at the Chart and my mothers bulging eyes, she called the Endrocrinologist. sure enough it was graves disease, and was treated immidietly. Thyroid was removed and she has been on synthroid ever since and is healthy as can be, never even gained weight from it. It can be scary and Dangerous, better safe than sorry, Have it checked out. Peace and Love Lorraine

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Bulging eyes and hair loss? Has your thyroid been checked lately? ~Krissy

My thoughts exactly!! Char "Remember, I’m pulling for ya’.  We’re all in this together."  Red Green

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Mary MacTavish wrote "My grandma had quite a lot when she died at 84." I guess I never had the honor to meet your Grandma ;-) . Woodpecker

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I had same problem and brought it up with DR – she was sympathetic, said it meant I wasn’t getting enough estrogen in that area although I am taking hormones.  Suggested using an estrogen cream in crotch.  Said I was good to mention since it meant skin in area was also thinning and I was way too young for that.  Talk to your doc.

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Bulging eyes and hair loss? Has your thyroid been checked lately? ~Krissy My thoughts exactly!! Char

DITTO

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Annie, your age being 53, you being in the middle of menopause and your bush thinning could be because of menopause.     I used to be a nurse and as such I used to see a lot of woman’s (usually older) private parts and I could tell you while they all had some pubic hairs none of them had many. Woodpecker

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(woodpecker) said: Annie, your age being 53, you being in the middle of menopause and your bush thinning could be because of menopause.     I used to be a nurse and as such I used to see a lot of woman’s (usually older) private parts and I could tell you while they all had some pubic hairs none of them had many.

My grandma had quite a lot when she died at 84. . Mary MacTavish http://www.prado.com/~iris

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Someone mentioned in another thread that thyroid levels can fluctuate and that’s true — I had a bad bout with hyperthyroidism 12 years ago, then it was normal for a while, and a couple years ago it went really low.  I’m still on synthroid.  I’m diabetic too BTW.

Those autoimmune diseases do run in packs. My thyroid disease is apparently the source of my arthritis. I don’t understand, though, why a discussion of pubic hair loss is for women only. Most adult men I know have pubic hair, too :) Mary MacTavish http://www.prado.com/~iris

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I don’t understand, though, why a discussion of pubic hair loss is for women only. Most adult men I know have pubic hair, too :)

(OK…so I peeked)  It happens to us too….an age thing.

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Ask about getting your thyroid checked.  When I was younger I had high thyroid instead of low, and it made my eyes bulge out.  Someone mentioned in another thread that thyroid levels can fluctuate and that’s true — I had a bad bout with hyperthyroidism 12 years ago, then it was normal for a while, and a couple years ago it went really low.  I’m still on synthroid.  I’m diabetic too BTW.

I get my thyroid checked every year. I had Hashi’s, with low thyroid I got up to a full replacement dose of synthroid and was steady for about 4 years.  Then this year I became a little hyper-thyroid, so we increased the thyroid again to shut it down.  It can fluctuate even after you are on a full replacement dose. I was skeptical, but the increase did settle down my thyroid.

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Ever since I started using Enbrel I have had a lot of hair loss.  Top and bottom! I am concerned… Also have noticed my eyes are bulging and teeth are sensitive to cold.

Bulging eyes and hair loss? Has your thyroid been checked lately? ~Krissy See my pond: http://members.aol.com/KrissyJo/ponds.html Akron, Ohio http://arthritisinsight.com Knowledge is power…support is essential.

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Ask about getting your thyroid checked.  When I was younger I had high thyroid instead of low, and it made my eyes bulge out.  Someone mentioned in another thread that thyroid levels can fluctuate and that’s true — I had a bad bout with hyperthyroidism 12 years ago, then it was normal for a while, and a couple years ago it went really low.  I’m still on synthroid.  I’m diabetic too BTW. Becky – Hide quoted text — Show quoted text -Yes. Ever since I started using Enbrel I have had a lot of hair loss.  Top and bottom! I am concerned… Also have noticed my eyes are bulging and teeth are sensitive to cold. And I believe the enbrel raises my sugar. I am diabetic. Am going to see if the dr thinks we should change med. Polly

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LOL, it’s definately the arthritis – I figure that if the pain travels, then Jude — Free Music Theory Online:  http://iinet.net.au/~judy/jknee2.html

I meant to tell you that the hairs on my chin are making up for the lack of them elsewhere. ROFLOL Duckie Are any of you women losing your pubic hair? This isn’t a joke! I am

starting snip..

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Yes. Ever since I started using Enbrel I have had a lot of hair loss.  Top and bottom! I am concerned… Also have noticed my eyes are bulging and teeth are sensitive to cold. And I believe the enbrel raises my sugar. I am diabetic. Am going to see if the dr thinks we should change med. Polly

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Dear Annie: I’m almost three years into hypothyroidism.  Before that, I wasn’t very hairy. Not on my head; it’s always been baby fine but there’s been enough of it. Arms, legs, bush, not much. But after the diagnosis, whammo!  Nada.  Can’t find a hair to shave on my legs. Same with underarms.  The hairs on my head are numbered.  Just hope I don’t lose my eyebrows.

I’ve been diagnosed with Hashi’s hypothyroidism for a year now (and accompanying thyroid related arthritis) but my pubic hair has been thinning for about 5 years. I was probably developing Hashi’s that long ago (the unexplained weight gain started 3 years ago, the tiredness 2 years ago) but I think part of it was just age. I’d actually *love* to be hairless there for tidiness’ sake, and (is this too much info?) I grow hair really *fast* so it doesn’t make sense to remove hair there. I rarely shave my legs and armpits for similar reasons — if I do, I’ve got stubble within 5 hours. But it’s thinned out a lot down below. Up above, I’ve still got very thick hair, which I love. . Mary MacTavish http://www.prado.com/~iris

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I meant to tell you that the hairs on my chin are making up for the lack of them elsewhere. ROFLOL Duckie – Hide quoted text — Show quoted text – Are any of you women losing your pubic hair? This isn’t a joke! I am starting to look… well…girlish down there. I know some women are paying good money to have this done to them, but I’m not one of them. Can this be a side effect of Enbrel or RA or menopause? Thank you for listening! Annie

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Annie, I am 46 and have not gone through menopause yet.  I do believe I am peri-menopause.  This is a very interesting question.  I wonder myself, would it just come with age?  Is this something I will have to look forward to also.  LOL  Hope you find some good answers, and maybe some help. debbie m.

– Hide quoted text — Show quoted text – This is a great bunch of folks. I’ve been lurking here for awhile, but I’m a pretty quiet person. I have RA and am doing well on enbrel and a little (3 MG) prednisone. I am 53, in the middle of menopause, married with four grown kids. I finally have to speak up to ask a question that’s driving me crazy. Are any of you women losing your pubic hair? This isn’t a joke! I am starting to look… well…girlish down there. I know some women are paying good money to have this done to them, but I’m not one of them. Can this be a side effect of Enbrel or RA or menopause? Thank you for listening! Annie

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Dear Annie: I’m almost three years into hypothyroidism.  Before that, I wasn’t very hairy. Not on my head; it’s always been baby fine but there’s been enough of it. Arms, legs, bush, not much. But after the diagnosis, whammo!  Nada.  Can’t find a hair to shave on my legs.  Same with underarms.  The hairs on my head are numbered.  Just hope I don’t lose my eyebrows. What, besides the hypo, could be causing this?  Age, medication, OA, or just plain old evil ways? Quien sabe? I sure don’t. Joyce

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Mine has done that too except at the edges where it would show in a bathing suit. Figures!!  I think it is menopause. Welcome out of the bushes, BTW. Duckie – Hide quoted text — Show quoted text – This is a great bunch of folks. I’ve been lurking here for awhile, but I’m a pretty quiet person. I have RA and am doing well on enbrel and a little (3 MG) prednisone. I am 53, in the middle of menopause, married with four grown kids. I finally have to speak up to ask a question that’s driving me crazy. Are any of you women losing your pubic hair? This isn’t a joke! I am starting to look… well…girlish down there. I know some women are paying good money to have this done to them, but I’m not one of them. Can this be a side effect of Enbrel or RA or menopause? Thank you for listening! Annie

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I have not had this, but a totally healthy friend has. She thinks it is hereditary since her Mom has the same thing. – Hide quoted text — Show quoted text – Mine has done that too except at the edges where it would show in a bathing suit. Figures!!  I think it is menopause. Welcome out of the bushes, BTW. Duckie This is a great bunch of folks. I’ve been lurking here for awhile, but I’m a pretty quiet person. I have RA and am doing well on enbrel and a little (3 MG) prednisone. I am 53, in the middle of menopause, married with four grown kids. I finally have to speak up to ask a question that’s driving me crazy. Are any of you women losing your pubic hair? This isn’t a joke! I am starting to look… well…girlish down there. I know some women are paying good money to have this done to them, but I’m not one of them. Can this be a side effect of Enbrel or RA or menopause? Thank you for listening! Annie

– Bess This too shall pass.

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This is a great bunch of folks. I’ve been lurking here for awhile, but I’m a pretty quiet person. I have RA and am doing well on enbrel and a little (3 MG) prednisone. I am 53, in the middle of menopause, married with four grown kids. I finally have to speak up to ask a question that’s driving me crazy. Are any of you women losing your pubic hair? This isn’t a joke! I am starting to look… well…girlish down there. I know some women are paying good money to have this done to them, but I’m not one of them. Can this be a side effect of Enbrel or RA or menopause? Thank you for listening! Annie

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Oh man….I wish. Much better to lose it there than on my head! I’m getting very thin right up on the top and it’s driving me nuts. I think mine is from the Methotrexate. Kelly;o) – Hide quoted text — Show quoted text – This is a great bunch of folks. I’ve been lurking here for awhile, but I’m a pretty quiet person. I have RA and am doing well on enbrel and a little (3 MG) prednisone. I am 53, in the middle of menopause, married with four grown kids. I finally have to speak up to ask a question that’s driving me crazy. Are any of you women losing your pubic hair? This isn’t a joke! I am starting to look… well…girlish down there. I know some women are paying good money to have this done to them, but I’m not one of them. Can this be a side effect of Enbrel or RA or menopause? Thank you for listening! Annie

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any suggestions for treatment?

Question:

now seeing. From what I am hearing he’s only tried 2 new drugs (one is Enbrel, don’t know for sure what the other is)

Not sure what you are saying here.  Has your father tried Enbrel?  Enbrel is an anti-TNF drug. hasn’t tried any other drugs because the rheumatologist says he has to be on the meds for a certain amount of time before they work and since he is so bad it might take longer.

If he is on Enbrel, it should not take months for the meds to kick in.  However if he is using drugs like Methotrexate, or Sulfasalzind, they can take weeks to kick in, but if he has been on them for months, then, they probably are not going to work and it is time to try something new. I think it would be wise for you to go to the RD appointment with him, if you can talk him into it.  At least that way you can get a better idea of what is really going on with his medications. Does your father have medications for pain?  Control of pain is probably one of the most important concerns in chronic illness. Treating that, can help relieve depression, increase appetite, help you sleep better. improves mental clarity, and many other benefits. If what he has is not adequate to control the pain, ask for something stronger. The RD basically says well if this xxxxx doesn’t work, we can try something else, but that "trial period" seems to be longer than what my aunt (no relation to dad) has when she switches meds

How long?  Some of the drugs to treat RA can take weeks to kick in, but if he has been on these drugs for longer than 4 months without any improvement, then I would be questioning that RD. Dad’s grandmother died of RA in her late 50’s and was stick and bones at the time of her death – perhaps that’s all that Dad knows of RA??

If that is all he knows of RA, then he may very well be suffering severe depression, thinking that is the fate that awaits him. If we can help in anyway, just holler and we will do what we can. Char "Remember, I’m pulling for ya’.  We’re all in this together."  Red Green

Response:

Just a few thoughts about the low weight problem your Dad has and RA… Thyroid problems can sometimes cause arthritic symptoms, and if you have one autoimmune disease, like RA, it can make you more predisposed to others, like autoimmune thyroid problems.  I would suggest he asks to have his thyroid function checked.  High thyroid (Grave’s Disease is one autoimmune kind) can cause you to lose weight. Some other symptoms would be racing or pounding heart, jumpiness, protruding eyeballs..but have it checked even if the other symptoms are not obvious. Depression can also cause loss of appetite, as others here have already said, but I think it bears repeating.  If he is so reluctant to talk about other pain, maybe he is reluctant to talk about this also.  Some of the arthritis meds can cause appetite loss & depression in some people too. Celiac disease (allergy to wheat) can also cause arthritic symptoms, and weight loss. Other food allergies can play a part in weight loss too. Gut health is believed to be tied to arthritis by some.  For instance, low stomach acid, which leads to nutrients not being absorbed properly, since food is not fully digested.  There are tests for this.  Also, if it ocurrs in conjunction with leaky gut (increased intestinal wall permeability) that can happen either from inflammation or from drugs used to treat arthritis, undigested or partly digested food molecules and normal gut pathogens can get into the bloodstream, triggering immune responses or starting an auto-immune process.  Ask him if he has ever tried sulfasalazine (AKA Azulfidine) as this is used in several forms of arthritis, and consists of a sulfa antibiotic to reduce gut flora and an anti-inflammatory that works in the gut. Intestinal inflammation can sometimes lead to a syndrome of frequent diarrhea, known as Irritable Bowel Syndrome or IBS.  Perhaps that is also going on, and he is reluctant to talk about that too?  Mine went away after I started the antibiotic treatment for RA with tetracycline.  Info on this at www.rheumatic.org  I often had a big weight loss at times before, and could usually bring my weight back up with a high-cal diet,  adding lots of rich foods like milkshakes made with instant breakfast powder, soy powder added,  and promoting general intestinal health by eating lots of vegetables.  But antibiotics made it no longer a problem. Hope some of this helps!  I can supply further web reading references on some of this, if you need them, or try plugging some of these terms into a search engine.  Best wishes to you and your dad, he must be a great guy, because he has obviously done a great job raising you… :  )  Liz G

Response:

You have already gotten some wonderful advice from some very knowledgable people.  So I wont belabor those points. But I am curious.  You say your father has had RA for 20 plus years.  Has he gone untreated in that time?  Does he go to these Rheumatologist appointments alone? Is your father refusing the medications his RD is offering, or is the RD not offering any treatments? Yes, there are treatments out there that can improve the quality of your fathers life, but he has to be willing to take them. As for the weight loss—Are you sure that there is not some OTHER underlying cause for that weight loss?  Has he seen a GP for a phyisical in the last 2 years? It is difficult to help someone over the internet, but even more difficult to help someone help someone else. Please let us know what happens.  We care. Wishing you and Dad well. Char "Remember, I’m pulling for ya’.  We’re all in this together."  Red Green

Response:

Wondering if anyone here could offer some advice concerning my father’s RA.

Char, Rick, Leora, Lady Andy- You folks and your good and caring advice are what makes this newsgroup worth reading every day.  Thanks.  Jan in KC

Response:

snip… But I am curious.  You say your father has had RA for 20 plus years.  Has he gone untreated in that time?

Well yes and no. He did go to a rheumatologist when he was first diagnosed around age 36 (they figured he had RA for about 5 years at that time) and he was being told he needed to go in weekly for blood draw and he had a problem with that due to one phlebotomist being really rough. Eventually he quit going to the rheumatologist after about 5 years, but Dad’s business partner’s wife (a pharmacist) kept refilling the prescriptions (she didn’t know he wasn’t still seeing the rheumatologist – or so I am told). 5 years ago he finally saw a new rheumatologist (because his partner’s wife insisted), and got a new prescription and had to quit going to that guy because of insurance. But again he still stayed on the same prescription (same story as before).  1 1/2 to maybe 2 years ago he finally couldn’t bear the pain anymore and found a new rheumatologist who is the same guy he is now seeing. From what I am hearing he’s only tried 2 new drugs (one is Enbrel, don’t know for sure what the other is), and the rheumatologist has told him no weight lifting to gain weight because of his frail condition – but to try to gain back the weight. He’s been in for office visits every 2-3 months and gets cortisone shots into the joints at every visit, but hasn’t tried any other drugs because the rheumatologist says he has to be on the meds for a certain amount of time before they work and since he is so bad it might take longer. Dad seems to have a good rapor with this rheumatologist, but I just get the feeling that after hearing the rheumatologist has commented how Dad is his worst patient, he just doesn’t seem to be getting dad to try enough new meds for much relief. Does he go to these Rheumatologist appointments alone?

Yes. I’m thinking that maybe I will research all the drugs and see if he will allow me to go to his next visit with him…this should be fun trying to trick him into this ;)  Is your father refusing the medications his RD is offering, or is the RD not offering any treatments?

Dad will pretty much take anything given to him to help aleviate the pain, so it’s not that he doesn’t comply with instructions. The RD basically says well if this xxxxx doesn’t work, we can try something else, but that "trial period" seems to be longer than what my aunt (no relation to dad) has when she switches meds. I’m not in tune with the rheumatology field to know if this RD is doing the "right" thing. Yes, there are treatments out there that can improve the quality of your fathers life, but he has to be willing to take them. As for the weight loss—Are you sure that there is not some OTHER underlying cause for that weight loss?  Has he seen a GP for a phyisical in the last 2 years?

There could be another underlying cause, but if he is anything like me, any pain, exhaustion, stress extremely decreases our appetite. I’ve told him to make sure he gets a full physical before he starts on any drug that interferes with his immune system (ie. gold shots or TNF), and he has mentioned this to the RD and also told him I was a med tech with "some" access to other physicians. If my memory serves me right, Dad’s grandmother died of RA in her late 50’s and was stick and bones at the time of her death – perhaps that’s all that Dad knows of RA?? Thanks you and everyone else from the bottom of my heart for your heartfelt concerns. It’s heartbreaking when I feel so helpless, and even more depressing seeing so many other people suffering with this! All my best to everyone.

Response:

Anyways, can anyone offer what types of treatment out there are for the most severe cases?

Many new drugs and treatments have been approved in the past few years. Is your dad  taking a DMARD? How about trying Enbrel, Remicade or the Prosorba Column?  You can read about all of them  in our arthritis netlink library at: http://arthritis.about.com/mlibrary.htm Anyone know of any clinical trials at the Mayo Clinic in Rochester?

There are many trials going on all over the country. We have a clinical trial section in our library too.  Many new drugs and treatments are on the horizon.  Any suggestions to get his appetite back – there has to be some sort of drug The kids with JRA have a hard time with weight loss. In a session I attended once about it, the docs talked about adding more calories to the kids meals. You gotta think the opposite of weight loss and look for those things that are high in calories like oils/fats etc. It really just comes down to calories. He’s been a downward spiral and eventually will not be able to work or probably walk

A take charge attitude will reverse this spiral.  Surgery can maintain his walking ability and disability may a reality that hopefully he can plan for. Several statements in your post makes me think that your dad is more than somewhat in denial about his disease. You may want to read this article about denial vs. acceptance. Your dad most likely caused himself extra damage by not seeing a rhuemy earlier. Article at http://arthritis.about.com/library/weekly/aa052797.htm From the article: Facing the reality of arthritis becomes easier after learning as much as possible about the disease. Information and knowledge lead to understanding of the situation. It must be realized that life with arthritis can still be a good life. It must become the focus of the person with arthritis to learn all they can learn, to find a support network, to adapt their lifestyle, and to continually regenerate positive thinking. The arthritis should not be denied, and neither should the fact that arthritis is manageable. My best, Rick http://arthritis.about.com

Response:

I’m so sorry for what your father is going through, and for your suffering as you watch him in pain as well.  I know it must be a terrible situation for your father, and for everyone who loves him, including you.  I hope so much that things get better, and that healing comes for him, or at least relief from the pain. I wanted to suggest looking into the old tricyclic antidepressants.  Now, I’m not trying to say your father is nuts or depressed or anything, but antidepressants have a role in pain relief (they seem to act on the nerves to help quiet the pain signals down) and can also help with sleep patterns (getting a good night’s sleep) and with weight gain.  All the other arthritis meds are of course good and should be tried, but perhaps the tricyclic antidepressants (for example, desipramine or imipramine) might also be given as an adjunct. I wish you the best. Love, Leora

Response:

Geez, I am overwhelmed with your father’s condition.  It is so sad to hear of someone so stubborn that he will not ask for help.  I am sure it is his attitude rather than just the rheumatologist’s that is at the root of this problem. To begin with, YES, there are LOTS of effective new treatments out there.  I would ask about Enbrel, Remicade, the Prosorba column, combination therapy, all kinds of things.  I am wondering if your dad is now on any DMARD (disease modifying antirheumatic drug) at all?  Is he on methotrexate?  Gold? Sulfasalazine?   Why is he so afraid to consider real treatment options?   We have other people on this group who are equally severe, but they do attack their disease with all the means at their disposal. As to your father’s weight loss, I am wondering if this isn’t part of something more, maybe a combination of depression, pain, and disease making for a desperate situation.  He needs REAL food, eaten in normal amounts over the entire day, a balanced diet including all the range of foodstuffs that make up that balance.  If he needs medication to help stimulate his appetite, or if he is having problems with his stomach because of the years of NSAIDs, these are all topics for discussion with his physician. I would also worry that perhaps there is some other disease at work here. Again, this is a conversation for him (and maybe you too) with his physician. The Mayo Clinic should indeed have a department of rheumatology that can help. The following website may also give you some ideas: http://www.arthritis.co.za/ Start with the Index Pages. If his rheumatologist appears to have given up on your dad, then maybe it is time to shop for a new one.   As to your dad’s wanting to remain working, I can understand that and agree with him that it is a great goal if he can manage it.  However, he should not be afraid to try some accommodations to his decreasing strength and stamina, such as cutting back on the hours a bit, or reducing the amount of physical stuff he’s doing. Best of luck… and come back to this group for more information.  I feel certain your post will get lots and lots of responses. – Hide quoted text — Show quoted text -Wondering if anyone here could offer some advice concerning my father’s RA. He’s had it for several years (20+?) and in the past year or two finally has been going to a Rheumatologist since it’s getting to be unbearable for him (the guy NEVER complains how much pain he is in). However, he seems to keep running into problems with any of the medications out there – the main reason being that he his weight is too low for any of them to work properly. He’s 5′10" and last time I asked he was down to 125 lbs. Of course he has no energy and can’t seem to bring himself to eat a whole lot to regain the weight. Mother has tried "Ensure" and well balanced meals, but the weight isn’t coming back as hoped. I am concerned that the Rheumatologist doesn’t seem to be very aggressive in his treatment. Everytime he goes in for a visit, they give him cortisone shots, but that only lasts for so long. I guess the Dr. told Dad he is his worst case, and another male in his 40’s almost as bad. He’s also been advised to quit working, and have his toes, and knees replace along with 4 orange sized cysts removed (a small one fell off his head a few years back), but Dad refuses to take that much time off work – "pride" thing I suspect. Anyways, can anyone offer what types of treatment out there are for the most severe cases? Anyone know of any clinical trials at the Mayo Clinic in Rochester? Any suggestions to get his appetite back – there has to be some sort of drug with a side effect of weight gain, right? He’s been a downward spiral and eventually will not be able to work or probably walk, but if there was something to relieve some of the pain for just a little longer I’m sure he’d inquire about it.

Best regards,

Response:

Wondering if anyone here could offer some advice concerning my father’s RA. He’s had it for several years (20+?) and in the past year or two finally has been going to a Rheumatologist since it’s getting to be unbearable for him (the guy NEVER complains how much pain he is in). However, he seems to keep running into problems with any of the medications out there – the main reason being that he his weight is too low for any of them to work properly. He’s 5′10" and last time I asked he was down to 125 lbs. Of course he has no energy and can’t seem to bring himself to eat a whole lot to regain the weight. Mother has tried "Ensure" and well balanced meals, but the weight isn’t coming back as hoped. I am concerned that the Rheumatologist doesn’t seem to be very aggressive in his treatment. Everytime he goes in for a visit, they give him cortisone shots, but that only lasts for so long. I guess the Dr. told Dad he is his worst case, and another male in his 40’s almost as bad. He’s also been advised to quit working, and have his toes, and knees replace along with 4 orange sized cysts removed (a small one fell off his head a few years back), but Dad refuses to take that much time off work – "pride" thing I suspect. Anyways, can anyone offer what types of treatment out there are for the most severe cases? Anyone know of any clinical trials at the Mayo Clinic in Rochester? Any suggestions to get his appetite back – there has to be some sort of drug with a side effect of weight gain, right? He’s been a downward spiral and eventually will not be able to work or probably walk, but if there was something to relieve some of the pain for just a little longer I’m sure he’d inquire about it.

Response:

metabolism

Question:

What is the nedic website???  I want to learn more!  speck – Hide quoted text — Show quoted text – Hi Jane, I thought I had sent a reply to your posting yesterday but obviously I did something wrong. In the meantime I just accidentially came across something a little more definitive regarding metabolism while browsing on the NEDIC website so I hope it helps. "The human body has a metabolic set-point that enables it to adapt to                       both excess and insufficient food intake. The set-point is a reference                       point at which the body tries to keep weight stable, and in adults who do                       not consciously try to control their body size, weight stays remarkably                       stable over time. If weight is gained from excess caloric intake,                       metabolism (the rate at which calories are used) tends to speed up to                       compensate. Following a period of weight gain, it is relatively easy to                       revert to the previous set-point weight. However, trying to go below the                       set-point weight has the opposite affect. Metabolism tends to slow down                       as less food is eaten or as exercise is increased. For a dieter, this leads                       to a slow-down in weight loss, a plateau, or even weight regain on few                       calories. This is your body’s attempt to keep your weight stable. Your                       body does not distinguish the lower caloric intake of a diet from an                       actual famine and will lower metabolic rate to maintain set-point. When                       the dieter does eat, the body will put on fat to make up for any weight                       lost. Over repeated periods of dieting, the body will gain back extra                       weight (thus raising its set-point) to prepare for the possibility of another                       starvation period. A biological mechanism that is necessary for physical                       survival during times of famine becomes a source of distress in a                       fat-prejudiced, diet-oriented society. " Hi everyone, I haven’t been to this NG for ages. I feel like I shouldn’t even be posting here any more. Maybe a diet or weight loss group would be more appropriate. God, I never thought it’d come to that! Sit tight, it’s a rant. But please stick with me. In feel like I’ve lost the war. Won the battle against anorexia, but lost the war against appetite. I’m 28 and was anorexic from age 20 to 24. At my lowest I was under 4 stone (56lb, but I’m only 4′11") and was absolutely desperate for some way out of this prison of deprivation. It wasn’t me who was depriving myself; it was The Rule. You know the thing. Recovery has been difficult, with huge binges (and I’ve never been able to throw up, though I do use masses of laxatives, always will) and "anti-social" habits – I still find it uncomfortable to eat in front of other people, other than, at a push, my mum and my boyfriend. I also hate eating during the day – I don’t feel "allowed" until the evening. I only really enjoy eating after 6pm, squirreled away at home (I live alone), with clean hands, comfortable clothes, the right setting, all that stuff. Since forcing myself out of anorexia (not easy), I’ve spend one third of my time bingeing, one third eating "normally" (the absolute hardest to stick at) and one third eating about 800 calories per day, which is what makes me feel happiest. Well, happiest in the sense of being pleased with myself. About a year ago I got tired of the guilt-struggle caused by re-feeding myself and trying to stay at some "happy" medium. Occasionally I’d break into these super binges. The only way to avoid that temptation was to cut back properly again. So for several months I was on 800 a day. I lived on fruit, undressed salads and steamed veg, and I felt great. Of course I wanted to eat more, but my self-esteem was so strong, based on what I was eating, that I managed to avoid giving in to that scrummy-smelling bakery section in the supermarket. The weird thing is, even though I was almost back to the limitations of my anorexic days, I never lost weight over these many many months. This troubles me somewhat. Not because I want to be skinny – I like being slender, but I don’t want those bones to start sticking out again – but because it suggests that if I eat any more I’ll really start to pile on the weight. In other words, to stay at my normal weight (95lb), I have to stay on 800 cals. Q: Did my anorexia kill my metabolism? Can anyone give me some advice on that? Will I have to stay on 800 cals a day for the rest of my LIFE? My behaviour over the last few weeks has proved precisely that I’m incapable of such self-discipline. In August I went back on Prozac after a pretty low summer. I’d been bickering with my boyfriend and was completely self-obsessed, unable to have a conversation about anything other than myself and my problems. As my mood improved, I decided that I should start eating a little more, because it could only do me good. For the next few days I added a slice or two of toast to the 800. That toast was so great, too great – so I slipped. For the past few weeks I’ve been chucking back the bread so much that my daily intake is now about 1800-2000 calories. I’m absolutely disgusted with myself. And I’m angry, because I know that for many people, this is normal. I’ve been dealt a really unfair hand here. If I stop judging myself for a moment, I’d say I eat pretty healthily. I have tons of fruit and veg, maybe 8 apples a day, plus oranges, plums, carrots, broccoli. No meat, no sweets (I don’t much like chocolate), nothing friend, no cakes, no alcohol, very little dairy. A little steamed fish to provide some protein. My big downfall is bread. My binges are always, always focused on the stuff, always dry. Whatever kind I can get – fresh white loaves, bagels, crumpets, English muffins, wholemeal, rye, anything. What’s going to happen to me? I can’t go back to 800 cals a day for the rest of my life. I can’t do it. These days my body seems to be leading me on an eating odyssey every night, and I’ve not had less than 1,500 calories for a couple of weeks now. I know it’s not a binge in the true bulimic sense but it’s a binge to little me: tiny, short-ass me who puts on weight even if she *thinks* of a fresh baked crust. I feel awful. Can someone please give me some words of comfort? Please? thank you Jane xx

– For info about this service, see http://www.twwells.com/anon/ or e-mail:

Response:

NEDIC stands for National Eating Disorders Information Centre at www.nedic.on.ca I highly recommend it as a source of a wide variety of information and other links. Bluebells – Hide quoted text — Show quoted text – What is the nedic website???  I want to learn more!  speck Hi Jane, I thought I had sent a reply to your posting yesterday but obviously I did something wrong. In the meantime I just accidentially came across something a little more definitive regarding metabolism while browsing on the NEDIC website so I hope it helps. "The human body has a metabolic set-point that enables it to adapt to                       both excess and insufficient food intake. The set-point is a reference                       point at which the body tries to keep weight stable, and in adults who do                       not consciously try to control their body size, weight stays remarkably                       stable over time. If weight is gained from excess caloric intake,                       metabolism (the rate at which calories are used) tends to speed up to                       compensate. Following a period of weight gain, it is relatively easy to                       revert to the previous set-point weight. However, trying to go below the                       set-point weight has the opposite affect. Metabolism tends to slow down                       as less food is eaten or as exercise is increased. For a dieter, this leads                       to a slow-down in weight loss, a plateau, or even weight regain on few                       calories. This is your body’s attempt to keep your weight stable. Your                       body does not distinguish the lower caloric intake of a diet from an                       actual famine and will lower metabolic rate to maintain set-point. When                       the dieter does eat, the body will put on fat to make up for any weight                       lost. Over repeated periods of dieting, the body will gain back extra                       weight (thus raising its set-point) to prepare for the possibility of another                       starvation period. A biological mechanism that is necessary for physical                       survival during times of famine becomes a source of distress in a                       fat-prejudiced, diet-oriented society. " Hi everyone, I haven’t been to this NG for ages. I feel like I shouldn’t even be posting here any more. Maybe a diet or weight loss group would be more appropriate. God, I never thought it’d come to that! Sit tight, it’s a rant. But please stick with me. In feel like I’ve lost the war. Won the battle against anorexia, but lost the war against appetite. I’m 28 and was anorexic from age 20 to 24. At my lowest I was under 4 stone (56lb, but I’m only 4′11") and was absolutely desperate for some way out of this prison of deprivation. It wasn’t me who was depriving myself; it was The Rule. You know the thing. Recovery has been difficult, with huge binges (and I’ve never been able to throw up, though I do use masses of laxatives, always will) and "anti-social" habits – I still find it uncomfortable to eat in front of other people, other than, at a push, my mum and my boyfriend. I also hate eating during the day – I don’t feel "allowed" until the evening. I only really enjoy eating after 6pm, squirreled away at home (I live alone), with clean hands, comfortable clothes, the right setting, all that stuff. Since forcing myself out of anorexia (not easy), I’ve spend one third of my time bingeing, one third eating "normally" (the absolute hardest to stick at) and one third eating about 800 calories per day, which is what makes me feel happiest. Well, happiest in the sense of being pleased with myself. About a year ago I got tired of the guilt-struggle caused by re-feeding myself and trying to stay at some "happy" medium. Occasionally I’d break into these super binges. The only way to avoid that temptation was to cut back properly again. So for several months I was on 800 a day. I lived on fruit, undressed salads and steamed veg, and I felt great. Of course I wanted to eat more, but my self-esteem was so strong, based on what I was eating, that I managed to avoid giving in to that scrummy-smelling bakery section in the supermarket. The weird thing is, even though I was almost back to the limitations of my anorexic days, I never lost weight over these many many months. This troubles me somewhat. Not because I want to be skinny – I like being slender, but I don’t want those bones to start sticking out again – but because it suggests that if I eat any more I’ll really start to pile on the weight. In other words, to stay at my normal weight (95lb), I have to stay on 800 cals. Q: Did my anorexia kill my metabolism? Can anyone give me some advice on that? Will I have to stay on 800 cals a day for the rest of my LIFE? My behaviour over the last few weeks has proved precisely that I’m incapable of such self-discipline. In August I went back on Prozac after a pretty low summer. I’d been bickering with my boyfriend and was completely self-obsessed, unable to have a conversation about anything other than myself and my problems. As my mood improved, I decided that I should start eating a little more, because it could only do me good. For the next few days I added a slice or two of toast to the 800. That toast was so great, too great – so I slipped. For the past few weeks I’ve been chucking back the bread so much that my daily intake is now about 1800-2000 calories. I’m absolutely disgusted with myself. And I’m angry, because I know that for many people, this is normal. I’ve been dealt a really unfair hand here. If I stop judging myself for a moment, I’d say I eat pretty healthily. I have tons of fruit and veg, maybe 8 apples a day, plus oranges, plums, carrots, broccoli. No meat, no sweets (I don’t much like chocolate), nothing friend, no cakes, no alcohol, very little dairy. A little steamed fish to provide some protein. My big downfall is bread. My binges are always, always focused on the stuff, always dry. Whatever kind I can get – fresh white loaves, bagels, crumpets, English muffins, wholemeal, rye, anything. What’s going to happen to me? I can’t go back to 800 cals a day for the rest of my life. I can’t do it. These days my body seems to be leading me on an eating odyssey every night, and I’ve not had less than 1,500 calories for a couple of weeks now. I know it’s not a binge in the true bulimic sense but it’s a binge to little me: tiny, short-ass me who puts on weight even if she *thinks* of a fresh baked crust. I feel awful. Can someone please give me some words of comfort? Please? thank you Jane xx — For info about this service, see http://www.twwells.com/anon/ or e-mail:

Response:

hi there, spoilered below 4′4′4′4 4 4 4 4 4 4 4 4 4 4 4 4yes, my metabolism is very messed up.  seven years in ago in the hospital i could not gain weight on 4800 cals a day on complete bed rest.  today, i maintain on 400 – 700 calories a day with walking two miles a day :( shell

Response:

okay, i’ve listed here before.  i’m anorexic/bulimic and was dianosed with high thyroid.  that means my metab. is spinning out of control, however the only time i really start losing any weight is when i do not eat at all.  if i eat normal, i feel like i’m gaining it right back.  anyone else have problems with their metabolism. sinaia oh, one more thing.  i went to the doctors the other day and weighed122, then the week after i was weighed again at another doctor’s.  i weighed 112.  what the heck is going on!

Response:

Too much Vitamin E

Question:

Too be honest, I don’t know what Vit K does, so maybe I’m missing the very obvious.  Please elaborate.

Vit.K is essential to the proper clotting of blood.

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Moses here: Yes surgury. Look it up. Term partly explains it’s self. She wasn’t taking a small dose; in fact she was taking 1000 IU’s. She said that she saw surgury as hypoxic challenge or insult. Vitamin K reverses the anticlotting effect in birds and apparently humans. To explain the the clotting mechanism that is challenge. Vitamin K is require for the formation of prothrombin. Prothrombin is a plasma protein. It has to be continually made in the liver. That is why people with bum livers tend to be bleeders. To explain further in a more general way the mechanism follow these three steps…as crude as they are. First, prothrombin activator is formed in response to a rupture of a blood vessel or even some event in the blood itself. Second, the prpthrombin activator catalyzes the conversion of prothrombin into thrombin. The prothrombin splits to provide the thrombin. Third, the thrombin act as an enzyme for the conversion of fibrinogen into fibrin threads that enmesh erthrocytes and plasma to form the clot. Sincerely Moses Clarke PS ..it worries me you should know some of this. * Sent from RemarQ http://www.remarq.com The Internet’s Discussion Network * The fastest and easiest way to search and participate in Usenet – Free!

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In There are some times when too much Vit E is possible – it thins the blood same as aspirin & shouldn’t be taken immediately before & after surgery.

Moses here: As regards the "blood thinning" of vitamin E, when my wife had her Nissan funoplication, she chose to continue taking her vitamin E. However, she took large doses of vitamin K for a couple weeks of prior to the operation. High doses of vitamin E tends to lower one’s vitamin K levels. I should confirm this….though my wife tends to know ….. Sincerely Moses Clarke Maybe the wired feeling dali complains of in a previous post is actually a better energy level due to some benefits of the blood being thinned? I’d cut back grdually until I found that happy medium between ‘wired’ & ‘pain free’ from the fibrocysts.  Good luck, dali.

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There are some times when too much Vit E is possible – it thins the blood same as aspirin & shouldn’t be taken immediately before & after surgery. Moses here: As regards the "blood thinning" of vitamin E, when my wife had her Nissan funoplication, she chose to continue taking her vitamin E. However, she took large doses of vitamin K for a couple weeks of prior to the operation. High doses of vitamin E tends to lower one’s vitamin K levels. I should confirm this….though my wife tends to know

Hiya, Moses. Not trying to be intentionally obtuse, but I missed your point. Nissan funoplication is a surgical procedure? My understanding is that a Very Low Dose prior to & after surgery is okay. The rest of that is that surgeons i know/have worked for encounter way too many ‘bleeders’ on the table that followed instructions to lay off aspirin but not Vit E.  Being OTC, there isn’t a standard recommended dose, so many a surgeon will take the safe way out and say to hold off the Vit E for the time being, entirely, prior to surgery, and for a bit afterwards. Too be honest, I don’t know what Vit K does, so maybe I’m missing the very obvious.  Please elaborate.

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my pain from fibrocystic breast disease didn’t get relief until I got this high [dose] over time. As regards fibrocystic breast disease, I pretty sure you would know to quit all caffeine, but I repeat it again anyway.

Beat me to it, Moses.  Caffeine definitely exacerbates it and should be eliminated, if you suffer from fibrocysts.  [My doc doesn't call this a disease, she refers to it as a 'condition'.  Anyway ...] There are some times when too much Vit E is possible – it thins the blood same as aspirin & shouldn’t be taken immediately before & after surgery. Maybe the wired feeling dali complains of in a previous post is actually a better energy level due to some benefits of the blood being thinned? I’d cut back grdually until I found that happy medium between ‘wired’ & ‘pain free’ from the fibrocysts.  Good luck, dali.

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Because my chiropractor at the time told me that if I didn’t get resuls from what I was taking it for to increase the dose since some have trouble absorping it.  In other words, originally my pain from fibrocystic breast disease didn’t get relief until I got this high over time.  Anyway, I’m going to stop taking it for awhile and then start with a lower dose.

Moses here again: In your other post, you said you felt wired. Perhaps a sign of high thyroid; however, vitamin E is said to reduce the levels of thyroid hormones. This maybe research done at University of Michigan prior to 1987?? That is what the book, "The Right Dose" seems to say. I’ve yet to try a Medline search as you should also. Hence, at least by a superficial reading would seem to be something that should tend to help, rather than "hurt"? Had you said you felt sluggish and tended to low thyroid, this concept would indicate a possible concern. Oh. Try a posting on sci.med or perhaps in the pharmacy group in order to get some replies. As regards fibrocystic breast disease, I pretty sure you would know to quit all caffeine, but I repeat it again anyway. Sincerely Moses Clarke Share what you know. Learn what you don’t.

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Because my chiropractor at the time told me that if I didn’t get resuls from what I was taking it for to increase the dose since some have trouble absorping it.  In other words, originally my pain from fibrocystic breast disease didn’t get relief until I got this high over time.  Anyway, I’m going to stop taking it for awhile and then start with a lower dose. – Hide quoted text — Show quoted text – I don’t have high blood pressure or other cardiovascular problems. I haven’t checked it this week but had a full cardio work up less than a year ago and was fine.  When I first started taking vitamin E, I did go gradually and didn’t seem to absorb it so was told to go this high. Now, I take other supplements that work together to help absorb each other so maybe now it’s too much.  I stopped taking it and it’s gotten better.  Does anyone know if this will cause permanent damage?  I will check with my doctor of course. Thanks, Marci Moses here: It is a big jump from wired to permanent damage. In other words, I do not think there is much (or any)grounds to worry. It could be a false correlation. Or, an allergy to some ingredient in the capsules. Another question…how do you know that you weren’t absorbing your vitamin E? Share what you know. Learn what you don’t.

Share what you know. Learn what you don’t.

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I don’t have high blood pressure or other cardiovascular problems.  I haven’t checked it this week but had a full cardio work up less than a year ago and was fine.  When I first started taking vitamin E, I did go gradually and didn’t seem to absorb it so was told to go this high. Now, I take other supplements that work together to help absorb each other so maybe now it’s too much.  I stopped taking it and it’s gotten better.  Does anyone know if this will cause permanent damage?  I will check with my doctor of course. Thanks, Marci

Moses here: It is a big jump from wired to permanent damage. In other words, I do not think there is much (or any)grounds to worry. It could be a false correlation. Or, an allergy to some ingredient in the capsules. Another question…how do you know that you weren’t absorbing your vitamin E? Share what you know. Learn what you don’t.

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I don’t have high blood pressure or other cardiovascular problems.  I haven’t checked it this week but had a full cardio work up less than a year ago and was fine.  When I first started taking vitamin E, I did go gradually and didn’t seem to absorb it so was told to go this high. Now, I take other supplements that work together to help absorb each other so maybe now it’s too much.  I stopped taking it and it’s gotten better.  Does anyone know if this will cause permanent damage?  I will check with my doctor of course. Thanks, Marci – Hide quoted text — Show quoted text – Moses here: What is your blood pressure? Do you have a sphygmomanometer? There is a chance it has raised your pressure a bit since your body isn’t used to a high dose. The Shutes claimed years ago that those damaged by rheumatic fever….heart valve damage seemed to be at a risk with higher levels of vitamin E. Understand this was years ago when patients were often extremely damaged due to the medical science being less advanced. If I remember correctly, the risk was congestive heart failure? Whether this is valid…well how should I know. They would suggest gradually working the dose up (as John G. has already mentioned) to a desired level while watching the BP. Hopefully your taking the natural form not the racemic vitamin formulations. Check out the following link if in doubt on this point. http://www.veris-online.org Though I’ve taken 1200 IU’s for nearly thirty years, in fact, I believe  600 IU’s is likely as effective. Also the mixed tocopherols are to be preferred. Read the label many of the mixed tocopherol formulation are just the racemic product with a tiny dab on mixed tocopherols. Note, I believe that low doses of the racemic vitamin maybe worse than not taking this vitamin at all.  The multi-vitamins with 30 or 50 IU’s of the aforesaid are sorry jokes. Sincerely Moses Clarke PS I tried to keep my typos under control…but well… * Sent from RemarQ http://www.remarq.com The Internet’s Discussion Network * The fastest and easiest way to search and participate in Usenet – Free!

Share what you know. Learn what you don’t.

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Moses here: What is your blood pressure? Do you have a sphygmomanometer? There is a chance it has raised your pressure a bit since your body isn’t used to a high dose. The Shutes claimed years ago that those damaged by rheumatic fever….heart valve damage seemed to be at a risk with higher levels of vitamin E. Understand this was years ago when patients were often extremely damaged due to the medical science being less advanced. If I remember correctly, the risk was congestive heart failure? Whether this is valid…well how should I know. They would suggest gradually working the dose up (as John G. has already mentioned) to a desired level while watching the BP. Hopefully your taking the natural form not the racemic vitamin formulations. Check out the following link if in doubt on this point. http://www.veris-online.org Though I’ve taken 1200 IU’s for nearly thirty years, in fact, I believe  600 IU’s is likely as effective. Also the mixed tocopherols are to be preferred. Read the label many of the mixed tocopherol formulation are just the racemic product with a tiny dab on mixed tocopherols. Note, I believe that low doses of the racemic vitamin maybe worse than not taking this vitamin at all.  The multi-vitamins with 30 or 50 IU’s of the aforesaid are sorry jokes. Sincerely Moses Clarke PS I tried to keep my typos under control…but well… * Sent from RemarQ http://www.remarq.com The Internet’s Discussion Network * The fastest and easiest way to search and participate in Usenet – Free!

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I am taking 1000 IUs of Vitamin E a day and after several days I am feeling very wired, not able to sleep.  I’ve read that high doses of Vitamin E can cause overreactive thyroid.  Has anyone heard this or experienced this?

Vitamin E is not a vitamin where you can safely go from zero to 1,000 IU’s in one day. You could be one of those people who are sensitive to Vitamin E.  I would start with 200 IU’s a day for one week.  Then start doubling your dosage each week thereafter, until you reach your desired dosage level. John Gohde,  Health Nag http://www.quackwatch.com/ Anyone genuinely interested in diet, nutrition, and nutritional supplements should take a strong stand against Nutrition Quackery, Food Faddism, and Nutritional Supplements Quackery anywhere they see it.  If you don’t, no one will take your interests seriously.

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I don’t know for sure Marci. I take 800 IU’s and have for a long time and I feel great. Floyd – Hide quoted text — Show quoted text – I am taking 1000 IUs of Vitamin E a day and after several days I am feeling very wired, not able to sleep.  I’ve read that high doses of Vitamin E can cause overreactive thyroid.  Has anyone heard this or experienced this? Can you take too much Vitamin E? marci Share what you know. Learn what you don’t.

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I am taking 1000 IUs of Vitamin E a day and after several days I am feeling very wired, not able to sleep.  I’ve read that high doses of Vitamin E can cause overreactive thyroid.  Has anyone heard this or experienced this? Can you take too much Vitamin E? marci Share what you know. Learn what you don’t.

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