Question:
Claus, You’re a good friend. I don’t know how many older ladies have patted my hand and told me it would vanish with the onset of the big M. So far…screeching toward it, no.
She’s in the very same boat. However, there may be something to your friends’ use of Imitrex etc. When I had insurance and could get a lot of them – they seemed to increase –
Very interesting. Her headaches seemed to have increased as well without an explanation (I know *what* a surprise! <grin) and I’m trying to put the puzzle pieces together as best I can although I realize from lurking here for a few weeks that there’s really a lot that’s not very well understood about migraines. and we all know it’s not because Imitrex is fun.
They gave her an injector but that was *so much* fun she couldn’t bring herself to use it. I wish I had the solution – but that’s just my experience – use of imitrex type drugs, preventatives, and pain killers have me back to my "normal" range. I guess I was depending on them too much and had a reaction much like your asthma experience.
To see one’s symptoms completely disappear through cessation of medication is an eye-opening experience. And it wasn’t the first time that’s happened to me. But the difficult part is that I’m a scientist by training and know that I have great difficulty bringing myself to believe that non-pharmaceutical treatments aren’t any more than placebo. But even if they are just placebo if she can get relief without the vomiting and the exhaustion that Fiorinal and Imitrex cause her I’d be willing to hold my finger on a pressure point for hours if I could figure out where it was. (Maybe it doesn’t matter whether I know if she *believes* I know where they are! <grin) I’m going to go to the same therapist that was able to alter the course of two recent and very severe migraines to have her practice on me so I can attempt to learn and duplicate the technique. I’m afraid that part of the relief she gets may be a belief in the therapist’s skills or even the "rap" she gives during the session. My friend cheerfully admits it’s voodoo but for her, it’s voodoo that works. I’m still pretty skeptical but if there’s a chance that it could bring her some relief without tearing her up as much as some of the meds do then it seems the thing to do. Claus V.
Response:
It’s clear that’s a part of the problem. She’s also been taken a thyroid med for a long time (but the only thing coming to me mind is Syntec but I know that’s motor oil). Probably Synthroid. A good site on thyroid is http://thyroid.about.com/health/thyroid/
Thanks! Here is info about thyroid and menopause. http://www.thyroid-info.com/articles/thyroid-and-menopause.htm http://thyroid.about.com/health/thyroid/library/weekly/aa102499.htm http://thyroid.about.com/health/thyroid/library/weekly/aa040599.htm
I’ll pass these along to her. I’ve scanned them and they look quite interesting. There are two critical issues to consider in terms of the relationship between thyroid disease and menopause. First, the symptoms of thyroid disease and menopause are often the same, so thyroid disease may go undetected in women of menopausal age. Second, symptoms of thyroid disease often worsen during the onset of menopause, due to hormonal shifts.
She’s been on Synthroid for at least 14 years and I think she’s pretty attuned to the related health issues. *I* need to learn more, though, so I can be a useful partner in trying to determine why they’ve increased in frequency and severity within the last few years. She was describing a study to me about PET scans for hospital employees with migraines. The deal was their close proximity to the brainscan equipment as hospital workers made it possible to scan them when the aura appeared. Does anyone know anything more about that study? Claus V.
Response:
– Hide quoted text — Show quoted text – I’m a newbie here and have lurked in all three groups and this by far is the one with the least amount of flaming. Lots of trolls in the pain group trying to rile people up and lots of dogma wars in the ASA group that mostly concern alternative v. traditional treatments. I’m here because I have weepy eye migraines every few months but I really came here for my friend. She’s seeking info because she has been getting migraines more and more frequently as she approaches menopause despite more and more aggressive treatment with Inderal, Maltax, Imitrex, etc. She’s really unhappy because she really expected a diminution of the headaches as she approached menopause but the reverse would happen. She’s not very computer literate so I volunteered to act as a conduit. So I have a question. I used to have asthma. The more I was treated for it the more frequent and severe each attack was. Then I read something about this well-known rebound problem and stopped taking the meds and the asthma basically vanished. Is a similar phenomena known in the migraine world? Anyway, that’s my story and I’m sticking to it! Claus V.
Claus, You’re a good friend. I don’t know how many older ladies have patted my hand and told me it would vanish with the onset of the big M. So far…screeching toward it, no. However, there may be something to your friends’ use of Imitrex etc. When I had insurance and could get a lot of them – they seemed to increase – and we all know it’s not because Imitrex is fun. I wish I had the solution – but that’s just my experience – use of imitrex type drugs, preventatives, and pain killers have me back to my "normal" range. I guess I was depending on them too much and had a reaction much like your asthma experience. best, codeeee – Hide quoted text — Show quoted text – I know what you mean. I posted a few times in an arthritis ng, I have problems with lower spine, and they aren’t overly inviting. It’s hard when there’s an existing group, to get them to talk to a newbie. Take care, Gloria Not getting mushy here, if so sorry. This is a caring, nice group. Please never change. Has anyone been over to alt.chronic pain? Wow – I posted once and it was just like being in a really bad doctors’ office. I was accused of being a drug seeker, DEA, or just potentially dangerous. oh- and threatened. geeesh! Just wanted to say I appreciate you all, and will try not to cause trouble. codeee Before you buy.
Before you buy.
Response:
It’s clear that’s a part of the problem. She’s also been taken a thyroid med for a long time (but the only thing coming to me mind is Syntec but I know that’s motor oil).
Probably Synthroid. A good site on thyroid is http://thyroid.about.com/health/thyroid/ Here is info about thyroid and menopause. http://www.thyroid-info.com/articles/thyroid-and-menopause.htm http://thyroid.about.com/health/thyroid/library/weekly/aa102499.htm http://thyroid.about.com/health/thyroid/library/weekly/aa040599.htm There are two critical issues to consider in terms of the relationship between thyroid disease and menopause. First, the symptoms of thyroid disease and menopause are often the same, so thyroid disease may go undetected in women of menopausal age. Second, symptoms of thyroid disease often worsen during the onset of menopause, due to hormonal shifts. kadee
Response:
Claus, The ‘rebound effect’ is well-known in migraine patients. I’m surprised that it hasn’t been brought up in your friend’s case before.
Actually, yes, but not quite in the way I described it. I suppose that it’s not unusual that until recently I didn’t realize how bad things were getting for her. When she began vomiting from them it was really hard for her to deny the problem. A woman who is approaching menopause is considered to be perimenopausal. . . . the perimenopausal stage(s) has hormones that are going a little crazy.
It’s clear that’s a part of the problem. She’s also been taken a thyroid med for a long time (but the only thing coming to me mind is Syntec but I know that’s motor oil). I’m a little handicapped in getting all of the gruesome details because she’s a rather private person and a lot of the triggers are, well, kind of personal. I’ve been lurking here for a few week trying to get a feel for things. One thing hopeful we’re waiting to test out is dropping aspartame. She’s recently switched mainstream drinks from one that had sugar to one with aspartame. It’s something she can easily change back so we’re waiting to see if that reduces the recent upswing. Hormones are known to affect migraines. Even those who don’t have hormonal migraines can have migraine more often and more severe migraine during the perimenopausal years. I went through that, and also had a hysterectomy,
She’s had fibroid surgery and is now experiencing bleeding bad enough that there have been several times when her doctors have considered an emergency hysterectomy (ain’t getting old a blast?) but so far it hasn’t come to that but the migraines have really gotten worse. Also, since she started with Maltax the migraines now seem to often come with pretty profound vomiting. since I got stable on hormone replacement therapy, my migraines haven’t been as often nor as severe as they were
I’ll ask her what her drug load is in more detail. It doesn’t always happen that way, so I know I was lucky. But, I do remember the year and a half I was perimenopausal, and my migraines were really bad, with me in the ER quite often.
She’s avoided trips to the ER so far but she does lose 15 workdays every six months to migraines so bad she can’t work or do anything. I know that’s not bad compared to other folks I read about here but it’s now up to 20 days and she’s afraid that her company’s going to sack her (which is probably enough stress to account for the increase all by itself). But the really reason she is here is that she’s been having fairly good results with Jin Shein and I want to learn more about non-pharmaceutical ways to help her control her pain. I’ve been reading up on biofeedback and the like but I’m convinced that if she’s able to get relief from "chi" manipulation that’s so significant I’m ready to learn how to do it to help her. I really think the drugs are making her worse but I don’t want to say that to her because of the possible negative psychological effects. Anyone know where to look for information about meridians, chi, Jin Shein and accupressure and what I can possible do to help make her migraines more bearable for her? Rubbing her feet is about all I can do that has some effect but I know her massage therapist is able to do much more, if only because she believes more in what the therapist does. Where does one buy biofeedback training equipment? Does it really work? She did say one other interesting thing tonight. When she gets a migraine she also gets a tiny lump on the back of her neck. It feels almost fluid-filled rather than a muscle spasm or a boil. Any clues as to what that’s all about? Thanks for your reply, Astralynn, and to all in advance for any help! Claus V.
Response:
Claus, The ‘rebound effect’ is well-known in migraine patients. I’m surprised that it hasn’t been brought up in your friend’s case before. That being said, there are a couple of other things that need to be addressed. A woman who is approaching menopause is considered to be perimenopausal. A woman in the perimenopausal stage(s) has hormones that are going a little crazy. Hormones are known to affect migraines. Even those who don’t have hormonal migraines can have migraine more often and more severe migraine during the perimenopausal years. I went through that, and also had a hysterectomy, and since I got stable on hormone replacement therapy, my migraines haven’t been as often nor as severe as they were before. It doesn’t always happen that way, so I know I was lucky. But, I do remember the year and a half I was perimenopausal, and my migraines were really bad, with me in the ER quite often. — Take care and be well, Astralynn
– Hide quoted text — Show quoted text – I’m a newbie here and have lurked in all three groups and this by far is the one with the least amount of flaming. Lots of trolls in the pain group trying to rile people up and lots of dogma wars in the ASA group that mostly concern alternative v. traditional treatments. I’m here because I have weepy eye migraines every few months but I really came here for my friend. She’s seeking info because she has been getting migraines more and more frequently as she approaches menopause despite more and more aggressive treatment with Inderal, Maltax, Imitrex, etc. She’s really unhappy because she really expected a diminution of the headaches as she approached menopause but the reverse would happen. She’s not very computer literate so I volunteered to act as a conduit. So I have a question. I used to have asthma. The more I was treated for it the more frequent and severe each attack was. Then I read something about this well-known rebound problem and stopped taking the meds and the asthma basically vanished. Is a similar phenomena known in the migraine world? Anyway, that’s my story and I’m sticking to it! Claus V.
Response:
I’m a newbie here and have lurked in all three groups and this by far is the one with the least amount of flaming. Lots of trolls in the pain group trying to rile people up and lots of dogma wars in the ASA group that mostly concern alternative v. traditional treatments. I’m here because I have weepy eye migraines every few months but I really came here for my friend. She’s seeking info because she has been getting migraines more and more frequently as she approaches menopause despite more and more aggressive treatment with Inderal, Maltax, Imitrex, etc. She’s really unhappy because she really expected a diminution of the headaches as she approached menopause but the reverse would happen. She’s not very computer literate so I volunteered to act as a conduit. So I have a question. I used to have asthma. The more I was treated for it the more frequent and severe each attack was. Then I read something about this well-known rebound problem and stopped taking the meds and the asthma basically vanished. Is a similar phenomena known in the migraine world? Anyway, that’s my story and I’m sticking to it! Claus V. – Hide quoted text — Show quoted text – I know what you mean. I posted a few times in an arthritis ng, I have problems with lower spine, and they aren’t overly inviting. It’s hard when there’s an existing group, to get them to talk to a newbie. Take care, Gloria Not getting mushy here, if so sorry. This is a caring, nice group. Please never change. Has anyone been over to alt.chronic pain? Wow – I posted once and it was just like being in a really bad doctors’ office. I was accused of being a drug seeker, DEA, or just potentially dangerous. oh- and threatened. geeesh! Just wanted to say I appreciate you all, and will try not to cause trouble. codeee Before you buy.
Response:
– Hide quoted text — Show quoted text – I know what you mean. I posted a few times in an arthritis ng, I have problems with lower spine, and they aren’t overly inviting. It’s hard when there’s an existing group, to get them to talk to a newbie. Take care, Gloria Not getting mushy here, if so sorry. This is a caring, nice group. Please never change. Has anyone been over to alt.chronic pain? Wow – I posted once and it was just like being in a really bad doctors’ office. I was accused of being a drug seeker, DEA, or just potentially dangerous. oh- and threatened. geeesh! Just wanted to say I appreciate you all, and will try not to cause trouble. codeee Before you buy.
Thanks, all – just proved my point and made me smile. However, I’m fighting the urge to pop over there whenever I’m feeling particularly cranky and let fly. —- I know…..slowly back a-w-a-y from the keyboard. C. Before you buy.
Response:
I know what you mean. I posted a few times in an arthritis ng, I have problems with lower spine, and they aren’t overly inviting. It’s hard when there’s an existing group, to get them to talk to a newbie. Take care, Gloria
– Hide quoted text — Show quoted text – Not getting mushy here, if so sorry. This is a caring, nice group. Please never change. Has anyone been over to alt.chronic pain? Wow – I posted once and it was just like being in a really bad doctors’ office. I was accused of being a drug seeker, DEA, or just potentially dangerous. oh- and threatened. geeesh! Just wanted to say I appreciate you all, and will try not to cause trouble. codeee Before you buy.
Response:
hi codeee dont nind that other ’shower’,we dont mind u being dangerous lol my partner suffers from cronic pain,(botched operation on a breast lump). She is now on ‘Mexitil’ which is a heart treatment which they found also helps nerve damage. I only check this group once in a while,so if u need more bye for now * Sent from AltaVista http://www.altavista.com Where you can also find related Web Pages, Images, Audios, Videos, News, and Shopping. Smart is Beautiful
Response:
*blush* thanks (sheepish grin) We appreciate you, too . . . :=) – Hide quoted text — Show quoted text – Not getting mushy here, if so sorry. This is a caring, nice group. Please never change. Has anyone been over to alt.chronic pain? Wow – I posted once and it was just like being in a really bad doctors’ office. I was accused of being a drug seeker, DEA, or just potentially dangerous. oh- and threatened. geeesh! Just wanted to say I appreciate you all, and will try not to cause trouble. codeee Before you buy.
Response:
Not getting mushy here, if so sorry. This is a caring, nice group. Please never change. Has anyone been over to alt.chronic pain? Wow – I posted once and it was just like being in a really bad doctors’ office. I was accused of being a drug seeker, DEA, or just potentially dangerous. oh- and threatened. geeesh! Just wanted to say I appreciate you all, and will try not to cause trouble. codeee Before you buy.
Response:
- Hide quoted text — Show quoted text – However, there’s The American Chronic Association. This is not online but it has support groups that meet physically all around the USA and even some abroad. They’ve got a good newsletter and a handbook that’s good. It seems aimed more at back pain and things like that, but a lot of things about HA don’t fit. It has a lot more support groups than NHF and ACHE. Also, the meetings have no facilitator, like AA and AlAnon. I went to meetings in a nearby city for a while. It was a big help. Dennis
I might look them up but in the Metro DC area it’s almost complete gridlock trying get around for extracurricular activities. I suspect one of the things contributing to my friend’s overall stress level is the ever-increasing bite the terrible traffic takes out of her personal time. That means she has to push harder in every direction to keep up and she’s more likely to get stuck behind one of her # 1 triggers, a diesel powered bus and develop a migraine. That’s why I don’t think she’s likely to want to add to her miserable driving load. But I will suggest it to her. She’s been very happy about all the sites and information I’ve been able to send her as a result of reading through this newsgroup. Thanks again to everyone who’s responded to my questions. Claus V.
Response:
I’m a newbie here and have lurked in all three groups and this by far is the one with the least amount of flaming.
Aint that the truth. I never visited the chronic pain ng because of the bad press here. However, there’s The American Chronic Association. This is not online but it has support groups that meet physically all around the USA and even some abroad. They’ve got a good newsletter and a handbook that’s good. It seems aimed more at back pain and things like that, but a lot of things about HA don’t fit. It has a lot more support groups than NHF and ACHE. Also, the meetings have no facilitator, like AA and AlAnon. I went to meetings in a nearby city for a while. It was a big help. Dennis — For info about this service, see http://www.twwells.com/anon/ or e-mail:
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