Posts belonging to Category 'Thyroid Blood Test'

Question about symptoms

Question:

BJ wrote:

I do think that both feet would be involved if it were a cardiac problem. I have never had swelling with Raynaud’s, but who knows. I am not saying it can’t be that.

Well, it stands to reason that if a person has a (visible) blood vessel problem, it’s indicative that there may be more lurking elsewhere in the body. (depending on the cause). But then there’s nothing that I know of that says a person can’t have both vasculitis and athersclosis (hardening of the arteries) at the same time and I think the latter is a risk factor for the heart. Apparently (autoimmune) vasculitis does not (usually) affect the heart. http://www.hamline.edu/lupus/articles/vasculitis.html "Heart attacks rarely occur as a result of vasculitis." The diagnosis of vasculitis is based on a person’s medical history, current symptoms, a complete physical examination, and the results of specialized laboratory tests. Blood abnormalities which often occur when vasculitis is present include an elevated sedimentation rate, anemia, a high white blood count and a high platelet count. Blood tests can also be used to identify immune complexes or antibodies that cause vasculitis in the circulation and measure whether complement levels are abnormal. These tests take several days to complete. The physician may also order a urine analysis. If there are any symptoms that suggest heart involvement, tests that may be ordered include: IKG, ECHO cardiogram and hear scans. For lung symptoms, the physician may order a chest x-ray, obtain blood from an artery to measure the oxygen content, and schedule a pulmonary function test. A pulmonary function test uses a specialized machine to measure how well the lungs handle air and oxygen as you breathe into it. If there are abdominal symptoms, the physician may order ultrasound or CAT scans of the organs in the abdomen, or other special x-rays to see the intestines. For brain symptoms, CAT scans and magnetic resonance images are frequently useful. Sometimes, inflammation in medium and large-size arteries or veins can be seen by injecting dye into them and viewing the outlines of the blood vessels on x-ray. This procedure is called an "angiography." It can be done in any area of the body. The diagnosis is most firmly made y seeing vasculitis in involved tissue. This is done by taking a biopsy of the involved tissue and examining that tissue under a microscope. Your physician may suggest this procedure. Finally, it may be important for your physician to consult with other medical specialists about your case. For example, if your physician is a rheumatologist and you have visual complaints which could be indicative of vasculitis, you may be referred to an ophthalmologist. It is very important that one physician be in charge of your case, coordinating your care and helping you with decisions. Treating vasculitis The choice of treatment for vasculitis depends on the severity of the vasculitis, your general health, and your past reactions (positive and negative) to medications. Many cases of vasculitis do not require treatment. For example, a few spots on the skin now and then (if not combined with other symptoms) may not require any medications. Most physicians recommend cortisone-type medications, such as Prednisone, Prednisolone, or methylprednisolone (Medrol) as the initial treatment for vasculitis.

Response:

cloud wrote:

I had both feet x-rayed and it’s how I knew I had the bone spur.  She said there is some arthritis in the left foot. Right foot looked pretty good. Thing is, my left side IS my bad side.  I walk like a penguin (like on the movie Batman).  If I sit, I swell.  I swell EVERYWHERE, but the feet become the worst and then rest of me sort of chimes in.

The doctor said to try compression stockings (for me and put my feet up. Looks like my left sie is my bad side too. I wish we had a chance on newsgroup, to ask questions of specialist doctors. J

Response:

Shelagh wrote:

DITTO on the painful swelling top of foot behind toe joins; been told it is vasculitis with vessel inflammation creating pain cause of the fluid retention caused …. a vicious circle IMO!

Hi Shelagh, I’m not sure if my swelling is where yours is. It is on the top of the foot, but oddly not swollen right near where the toes join the foot, so when I take a bath, my toes and lower bottom of my foot goes reddish/purple (maybe Raynauds?) and the top of the foot (the swollen part), goes blanche white ! Hugs J

Response:

J wrote:

Sometimes, inflammation in medium and large-size arteries or veins can be seen by injecting dye into them and viewing the outlines of the blood vessels on x-ray. This procedure is called an "angiography." It can be done in any area of the body.

It’s strange to me why they can’t inject dye and visualize the whole body (not "area" by area). J

Response:

Beverley wrote:

I’m sorry, I failed to be very clear about taking tegratol. This is an anti-seizure drug usually used on juvenile epileptics. It is also commonly prescribed for those with trigeminal neuralgia. A very common side effect of this drug is loss of sensation in the fingers, hands, toes, etc. Bev

Well, you sure confused me. She didn’t even mention tegratol. – Hide quoted text — Show quoted text -

"Vicki" <mcse…@mchsi.com wrote in message  I take Relafen and Plaquenil.

Response:

Vicki wrote:

I read over one post that caught my attention. Beverley replied to a message about nodes saying: "I lost all feeling in my finger tips and had to be very careful not to burn myself".  I snipped this part out of her reply for brevity. Is this an undocumented symptom of Lupus or something else??

I think it’s me who wrote that. I’ve had Raynaud’s for years. My fingers go white and numb, but this fall around the same time as the arm surgery (when a bunch of unexpected stuff happened), my arm and fingers went numb. I have to have an EMG next week to see if it’s cause by something to do with the nerve. If not, then it’s vascular. Hugs J

I have been dealing with this disease for almost 10 years now. I also have the numbness in my fingertips and redness around the nail bed. Dr has tried to treat it but it gets no better or no worse. I also have to watch what I pickup. By the time it registers it’s burning it’s too late. I also have red palms and very dry hands. I take Relafen and Plaquenil.

I think I saw someone say that red palms and dry hands is thyroid.

Response:

Vicki wrote:

I was just curious in asking. It’s long been funny around the house when I stick my hands in the hot dish water or grab the coffee pot and not the handle. Most times it’s amusing but there have been a few times I’ve gotten burned because I didn’t realize how hot something was. My hands & feet never get cold and neither do I. I’m most always in short sleeve shirts and barefoot year round. I don’t know why but it baffling sometimes.

What happens to your hands if you soak them in cold water and ice? J

Response:

On Thu, 02 Dec 2004 05:45:56 -0500, J wrote:

Vicki wrote: I was just curious in asking. It’s long been funny around the house when I stick my hands in the hot dish water or grab the coffee pot and not the handle. Most times it’s amusing but there have been a few times I’ve gotten burned because I didn’t realize how hot something was. My hands & feet never get cold and neither do I. I’m most always in short sleeve shirts and barefoot year round. I don’t know why but it baffling sometimes. What happens to your hands if you soak them in cold water and ice? J

They get really really cold. ;-) Just kidding.. They do get cold and my rings will roll around but they don’t hurt alot or ache. They just get cold. Suprisingly that doesn’t even make me cold just my hands. Vicki

Response:

- Hide quoted text — Show quoted text -On Thu, 02 Dec 2004 05:36:56 -0500, J wrote:

Vicki wrote: I read over one post that caught my attention. Beverley replied to a message about nodes saying: "I lost all feeling in my finger tips and had to be very careful not to burn myself".  I snipped this part out of her reply for brevity. Is this an undocumented symptom of Lupus or something else?? I think it’s me who wrote that. I’ve had Raynaud’s for years. My fingers go white and numb, but this fall around the same time as the arm surgery (when a bunch of unexpected stuff happened), my arm and fingers went numb. I have to have an EMG next week to see if it’s cause by something to do with the nerve. If not, then it’s vascular. Hugs J I have been dealing with this disease for almost 10 years now. I also have the numbness in my fingertips and redness around the nail bed. Dr has tried to treat it but it gets no better or no worse. I also have to watch what I pickup. By the time it registers it’s burning it’s too late. I also have red palms and very dry hands. I take Relafen and Plaquenil. I think I saw someone say that red palms and dry hands is thyroid.

I have both of those symptoms. Now if I can get the doctor to see it. I’m also tired all the time and don’t feel like I’ve gotten a good rest. I know lupus causes that too. But lack of energy is also a symptom of thyroid problems. Maybe I can get the Dr’s to hear me someday. I’ve been told my thyroid test was borderline (to the unactive side, I believe), but not enough to do anything about. It’s the basic test they said that they run with my bi-yearly lupus blood work. I think it’s been awhile. Thanks for all your input! Vicki

Response:

"J"  wrote in message

Shelagh wrote: DITTO on the painful swelling top of foot behind toe joins; Hi Shelagh, I’m not sure if my swelling is where yours is. It is on the top of the foot, but oddly not swollen right near where the toes join the foot, so when I take a bath, my toes and lower bottom of my foot goes reddish/purple (maybe Raynauds?) and the top of the foot (the swollen part), goes blanche white ! Hugs J

Hi J yours sounds like it could be raynaud’s in your ‘bath coloration changes’ description…. and the top of my foot, like yours is the puffy and painful area, not the toes at all… oddly enough my left side is my bad side too; gotta wonder if there is something to all this? <g

doubtful… I have

always had vasculitis on both thighs and sometimes down my calves and the visual skin changes are not pretty; but in my foot it is strictly the swelling that is visual and painful and the doc. says it is the same as what is going on in my legs…. vasculitis. think we will all get different answers from our docs based on our health histories and our presenting symptoms; anyhow, good luck with your ‘bad foot’ ! hugs…….Shelagh

Response:

Hi Cloud, Can’t help but think that you must have some kind of problem with circulation, if sitting makes you swell. Is your doctor aware of that fact? I would love to head to Florida for the winter. It would cost too much, I’m afraid. I don’t go out any more than I have to in the winter. The cold actually hurts. I spend the cold months wishing for summer. Up here, that is like wishing your life away. It is cold for most of the year. BJ-Sk. Canada "cloud" <pjas…@cfl.rr.com

wrote in message

news:Ltwpd.74257$6w6.58659@tornado.tampabay.rr.com… – Hide quoted text — Show quoted text -

Hey BJ, I had both feet x-rayed and it’s how I knew I had the bone spur.  She said there is some arthritis in the left foot. Right foot looked pretty good. Thing is, my left side IS my bad side.  I walk like a penguin (like on the movie Batman).  If I sit, I swell.  I swell EVERYWHERE, but the feet

become

the worst and then rest of me sort of chimes in. BJ, I can imagine it is mighty cold up there in Canada, speaking of penguins.  I would have to take twice as much meds just to maintain my

wits

about me if I lived there.  How come you did not fly south to Florida with the rest of the snowbirds? Do you sleep with a lot of Polar Bears to keep warm?  : ) Always, ..

Labs

Question:

Russ wrote:

Hey thanks for the info! Even at that pace it still doesn’t take that long. perhaps he was just referring to the CBC. Hell what do I know, I’m just a feral cave dweller!!!!  ;) For an out of the way hospital they do have state of the art equipment. Anchorage has two excellent hospitals. — Russ

How many tubes of blood do they draw on you? If two, one is for CBC and the other one is for the TSH. The TSH takes 115 minutes.  If I read Firestar correctly. ( variable for me is the clotting time, so is Prothrombin routinely added to the TSH?  If that is not a routine test on TSH, then the time is around 95 minutes. ) Hoof – Hide quoted text — Show quoted text -

Remove "NOSPAM" for replies. "Firestar" <mara…@nzia.net wrote in message news:8cElc.2206$Ua5.1603410@monger.newsread.com… Russ, A CBC can easily be done within 20 minutes when run STAT.  However,  I’d be highly suspicious of a lab that can produce TSH and FT4 results in 20 minutes.  I have a high speed Immunoassay analyzer for those tests in my lab.  The on-analyzer time for a TSH and FT4 (run together on the same specimen) is 45 minutes.  Add 20 minutes for complete clotting of the specimen, 10-20 minutes centrifugation time (varies according the CF of the centrifuge), 5-10 minutes sample processing and computer time on to the on-analyzer time and you’ll have an idea of how long it takes to run a TSH and FT4 STAT.  Routine batch processing takes longer. Thom mara…@nzia.net If you want to email me, replace the "z" with a "c" "Russ" <NOSPAMsourd…@yahoo.com wrote in message news:109dhq0ndc3gc41@corp.supernews.com… Two hours to do your blood work?? It’s a 50 mile drive for me to go to the clinic in Anchorage. Sometimes I’ll go to the hospital in Palmer and have my blood work done there. The last time I went there (Valley Hospital)  the tech said it would take about 20 minutes for the results of a CBC, TSH and free T-4,s. I was impressed that it only took that long. But normally I’ll go in and see the nurse and every other appointment I see the doc. If there is a problem with my blood work they call me up. Usually that would be about changing my synthroid meds. Sitting around the doc’s office for two hours just don’t sound like much fun!!!! — Russ Remove "NOSPAM" for replies. "Kilowatt" <kilow…@charter.net wrote in message news:jrulc.27700$Xj6.467516@bgtnsc04-news.ops.worldnet.att.net… My doctors visits are now 3 months apart, but because I am taking Pegasus I have to get labs every other week.  I get them done at a local lab and they just fax the results to the doctor.  The days I do have to go to see the doctor they make me come in 2 hours early to get blood work so the doctor can have my lab results when he talks to me.  I thought that to keep from having to wait for 2 hours with nothing to do (no computer) I could just get the labs done locally and just make my appointment at the time to see the doctor. They say that for me to do that the I have to have my labs in my hand when I do see the doctor.  When I asked the lab if they could give them to me they said only if the doctor puts on the order that the patient can see their labs. That seems like a reasonable request, but the coordinator says that it would just be easier for me to wait 2 hours before each visit. That sounds to me like one of those "not easier for you silly, easier for us" situations. — Kilow…@charter.net  Put "private" in the subject line.

— { Disclaimer: Non Existent words contained within this poast were created in response to the Paperwork Reduction Act.} {If you have a problem with that, take it to the Environmentalists Complaint Dept.} A Free Thinker.

Response:

Your doctor-s office is full of crap.  Why is it so damn important to have them in hand when he sees you only every 3 months? Elmo http://community.webtv.net/elmoemerson/DocElmosHepFile

Response:

Just a guess but I am betting that is the only time he takes a look at them. The coordinator reads the ones I have sent in between doctor’s visits to make sure my blood counts don’t get too low. <elmoemer…@webtv.net

wrote in message

news:7804-409C2A45-891@storefull-3252.bay.webtv.net… – Hide quoted text — Show quoted text -

Your doctor-s office is full of crap.  Why is it so damn important to have them in hand when he sees you only every 3 months? Elmo http://community.webtv.net/elmoemerson/DocElmosHepFile

Response:

- Hide quoted text — Show quoted text -HoofPrints wrote:

Russ wrote: Hey thanks for the info! Even at that pace it still doesn’t take that long. perhaps he was just referring to the CBC. Hell what do I know, I’m just a feral cave dweller!!!!  ;) For an out of the way hospital they do have state of the art equipment. Anchorage has two excellent hospitals. — Russ How many tubes of blood do they draw on you? If two, one is for CBC and the other one is for the TSH. The TSH takes 115 minutes.  If I read Firestar correctly. ( variable for me is the clotting time, so is Prothrombin routinely added to the TSH?  If that is not a routine test on TSH, then the time is around 95 minutes. ) Hoof

Also keep in mind that those figures ‘only’ apply to the amount of time it takes to run the tests, it does NOT include the time to get the blood drawn and into the tube ( s) nor the time it takes to get it into the doctors office. Hoof – Hide quoted text — Show quoted text -

Remove "NOSPAM" for replies. "Firestar" <mara…@nzia.net wrote in message news:8cElc.2206$Ua5.1603410@monger.newsread.com… Russ, A CBC can easily be done within 20 minutes when run STAT.  However,  I’d be highly suspicious of a lab that can produce TSH and FT4 results in 20 minutes.  I have a high speed Immunoassay analyzer for those tests in my lab.  The on-analyzer time for a TSH and FT4 (run together on the same specimen) is 45 minutes.  Add 20 minutes for complete clotting of the specimen, 10-20 minutes centrifugation time (varies according the CF of the centrifuge), 5-10 minutes sample processing and computer time on to the on-analyzer time and you’ll have an idea of how long it takes to run a TSH and FT4 STAT.  Routine batch processing takes longer. Thom mara…@nzia.net If you want to email me, replace the "z" with a "c" "Russ" <NOSPAMsourd…@yahoo.com wrote in message news:109dhq0ndc3gc41@corp.supernews.com… Two hours to do your blood work?? It’s a 50 mile drive for me to go to the clinic in Anchorage. Sometimes I’ll go to the hospital in Palmer and have my blood work done there. The last time I went there (Valley Hospital)  the tech said it would take about 20 minutes for the results of a CBC, TSH and free T-4,s. I was impressed that it only took that long. But normally I’ll go in and see the nurse and every other appointment I see the doc. If there is a problem with my blood work they call me up. Usually that would be about changing my synthroid meds. Sitting around the doc’s office for two hours just don’t sound like much fun!!!! — Russ Remove "NOSPAM" for replies. "Kilowatt" <kilow…@charter.net wrote in message news:jrulc.27700$Xj6.467516@bgtnsc04-news.ops.worldnet.att.net… My doctors visits are now 3 months apart, but because I am taking Pegasus I have to get labs every other week.  I get them done at a local lab and they just fax the results to the doctor.  The days I do have to go to see the doctor they make me come in 2 hours early to get blood work so the doctor can have my lab results when he talks to me.  I thought that to keep from having to wait for 2 hours with nothing to do (no computer) I could just get the labs done locally and just make my appointment at the time to see the doctor. They say that for me to do that the I have to have my labs in my hand when I do see the doctor.  When I asked the lab if they could give them to me they said only if the doctor puts on the order that the patient can see their labs. That seems like a reasonable request, but the coordinator says that it would just be easier for me to wait 2 hours before each visit. That sounds to me like one of those "not easier for you silly, easier for us" situations. — Kilow…@charter.net  Put "private" in the subject line. — { Disclaimer: Non Existent words contained within this poast were created in response to the Paperwork Reduction Act.} {If you have a problem with that, take it to the Environmentalists Complaint Dept.} A Free Thinker.

— { Disclaimer: Non Existent words contained within this poast were created in response to the Paperwork Reduction Act.} {If you have a problem with that, take it to the Environmentalists Complaint Dept.} A Free Thinker.

Response:

Hey thanks for the info! Even at that pace it still doesn’t take that long. perhaps he was just referring to the CBC. Hell what do I know, I’m just a feral cave dweller!!!!  ;) For an out of the way hospital they do have state of the art equipment. Anchorage has two excellent hospitals. — Russ Remove "NOSPAM" for replies. "Firestar" <mara…@nzia.net

wrote in message

news:8cElc.2206$Ua5.1603410@monger.newsread.com… – Hide quoted text — Show quoted text -

Russ, A CBC can easily be done within 20 minutes when run STAT.  However,  I’d

be

highly suspicious of a lab that can produce TSH and FT4 results in 20 minutes.  I have a high speed Immunoassay analyzer for those tests in my lab.  The on-analyzer time for a TSH and FT4 (run together on the same specimen) is 45 minutes.  Add 20 minutes for complete clotting of the specimen, 10-20 minutes centrifugation time (varies according the CF of

the > centrifuge), 5-10 minutes sample processing and computer time on to the > on-analyzer time and you’ll have an idea of how long it takes to run a TSH > and FT4 STAT.  Routine batch processing takes longer. > Thom > mara…@nzia.net > If you want to email me, replace the "z" with a "c" > "Russ" <NOSPAMsourd…@yahoo.com

wrote in message

> news:109dhq0ndc3gc41@corp.supernews.com… > > Two hours to do your blood work?? It’s a 50 mile drive for me to go to the

clinic in Anchorage. Sometimes I’ll go to the hospital in Palmer and

have

my blood work done there. The last time I went there (Valley Hospital)  the tech said it would take about 20 minutes for the results of a CBC, TSH

and

free T-4,s. I was impressed that it only took that long. But normally I’ll go in and see the nurse and every other appointment I see the doc. If there is a problem with my blood work they call me up.

Usually > > that would be about changing my synthroid meds. > > Sitting around the doc’s office for two hours just don’t sound like much > > fun!!!! > > — > > Russ > > Remove "NOSPAM" for replies. > > "Kilowatt" <kilow…@charter.net

wrote in message

> > news:jrulc.27700$Xj6.467516@bgtnsc04-news.ops.worldnet.att.net… > > > My doctors visits are now 3 months apart, but because I am taking > Pegasus > > I > > > have to get labs every other week.  I get them done at a local lab and > > they > > > just fax the results to the doctor.  The days I do have to go to see the

doctor they make me come in 2 hours early to get blood work so the doctor can have my lab results when he talks to me.  I thought that to keep from having to wait for 2 hours with nothing to do (no computer) I could

just

get the labs done locally and just make my appointment at the time to see the doctor. They say that for me to do that the I have to have my labs in my hand when I do see the doctor.  When I asked the lab if they could give them to me they said only if the doctor puts on the order that the patient can see

their

labs. That seems like a reasonable request, but the coordinator says that it would just be easier for me to wait 2 hours before each visit. That sounds to me like one of those "not easier for you silly, easier for us" situations. — Kilow…@charter.net  Put "private" in the subject line.

Response:

Kilowatt wrote:

So all you have drawn at Emory is the LFT’s and CBC? Not even a full liver panel? Maybe…………I don’t know what all the letters are.  :) My guess is to get my liver numbers they do a liver panel. I should say standard tests for a liver transplant patient.

If there are more letters than CBC then it is not just a CBC. :) Hoof – Hide quoted text — Show quoted text -

"HoofPrints" <equsphotog…@hotmail.com wrote in message news:4097CAC5.72CAF51D@hotmail.com… Kilowatt wrote: The tests I have done at Emory are the same as the tests I have done at the local lab.  It is only liver/blood numbers.  Very standard test.  I only take them more frequent locally because of my blood count due to the hep meds.  It probably is a 20 min deal.   There are at least 20 people ahead of me every time I go is why they take 2 hrs. You’re joking?  I recall several different tests being drawn on me at 12 weeks, and 16 weeks. So all you have drawn at Emory is the LFT’s and CBC? Not even a full liver panel? Hoof "HoofPrints" <equsphotog…@hotmail.com wrote in message news:4096C926.50CF0F8C@hotmail.com… Russ wrote: Two hours to do your blood work?? It’s a 50 mile drive for me to go to the clinic in Anchorage. Sometimes I’ll go to the hospital in Palmer and have my blood work done there. The last time I went there (Valley Hospital) the tech said it would take about 20 minutes for the results of a CBC, TSH and free T-4,s. I was impressed that it only took that long. Good Point!! What tests is Emory doing for you every three months?? I cannot remember what tests I had drawn when I was in treatment, but some weeks were simple tests like CBC and some had to do with Iron Loads or something. I forget, and they never did a Thyroid blood test on me that I can recall. Hoof But normally I’ll go in and see the nurse and every other appointment I see the doc. If there is a problem with my blood work they call me up. Usually that would be about changing my synthroid meds. Sitting around the doc’s office for two hours just don’t sound like much fun!!!! — Russ Remove "NOSPAM" for replies. "Kilowatt" <kilow…@charter.net wrote in message news:jrulc.27700$Xj6.467516@bgtnsc04-news.ops.worldnet.att.net… My doctors visits are now 3 months apart, but because I am taking Pegasus I have to get labs every other week.  I get them done at a local lab and they just fax the results to the doctor.  The days I do have to go to see the doctor they make me come in 2 hours early to get blood work so the doctor can have my lab results when he talks to me.  I thought that to keep from having to wait for 2 hours with nothing to do (no computer) I could just get the labs done locally and just make my appointment at the time to see the doctor. They say that for me to do that the I have to have my labs in my hand when I do see the doctor.  When I asked the lab if they could give them to me they said only if the doctor puts on the order that the patient can see their labs. That seems like a reasonable request, but the coordinator says that it would just be easier for me to wait 2 hours before each visit. That sounds to me like one of those "not easier for you silly, easier for us" situations. — Kilow…@charter.net  Put "private" in the subject line. — { Disclaimer: Non Existent words contained within this poast were created in response to the Paperwork Reduction Act.} {If you have a problem with that, take it to the Environmentalists Complaint Dept.} A Free Thinker. — { Disclaimer: Non Existent words contained within this poast were created in response to the Paperwork Reduction Act.} {If you have a problem with that, take it to the Environmentalists Complaint Dept.} A Free Thinker.

— { Disclaimer: Non Existent words contained within this poast were created in response to the Paperwork Reduction Act.} {If you have a problem with that, take it to the Environmentalists Complaint Dept.} A Free Thinker.

Response:

So all you have drawn at Emory is the LFT’s and CBC? Not even a full liver panel?

Maybe…………I don’t know what all the letters are.  :) My guess is to get my liver numbers they do a liver panel. I should say standard tests for a liver transplant patient. "HoofPrints" <equsphotog…@hotmail.com

wrote in message

news:4097CAC5.72CAF51D@hotmail.com… – Hide quoted text — Show quoted text -

Kilowatt wrote: The tests I have done at Emory are the same as the tests I have done at

the

local lab.  It is only liver/blood numbers.  Very standard test.  I only take them more frequent locally because of my blood count due to the hep meds.  It probably is a 20 min deal.   There are at least 20 people

ahead of > > me every time I go is why they take 2 hrs. > You’re joking?  I recall several different tests being drawn on me at 12 > weeks, and 16 weeks.

So all you have drawn at Emory is the LFT’s and CBC? Not even a full liver panel?

> Hoof > > "HoofPrints" <equsphotog…@hotmail.com

wrote in message

> > news:4096C926.50CF0F8C@hotmail.com… > > > Russ wrote: > > > > Two hours to do your blood work?? It’s a 50 mile drive for me to go to

the clinic in Anchorage. Sometimes I’ll go to the hospital in Palmer and have my blood work done there. The last time I went there (Valley Hospital)

the

tech said it would take about 20 minutes for the results of a CBC,

TSH

and free T-4,s. I was impressed that it only took that long. Good Point!! What tests is Emory doing for you every three months?? I cannot remember what tests I had drawn when I was in treatment, but some weeks were simple tests like CBC and some had to do with Iron

Loads

or something. I forget, and they never did a Thyroid blood test on me that I can recall. Hoof But normally I’ll go in and see the nurse and every other

appointment I

see the doc. If there is a problem with my blood work they call me up. Usually that would be about changing my synthroid meds. Sitting around the doc’s office for two hours just don’t sound like

much > > > > fun!!!! > > > > — > > > > Russ > > > > Remove "NOSPAM" for replies. > > > > "Kilowatt" <kilow…@charter.net

wrote in message

> > > > news:jrulc.27700$Xj6.467516@bgtnsc04-news.ops.worldnet.att.net… > > > > > My doctors visits are now 3 months apart, but because I am taking > > Pegasus > > > > I > > > > > have to get labs every other week.  I get them done at a local lab and

they just fax the results to the doctor.  The days I do have to go to

see

the doctor they make me come in 2 hours early to get blood work so the doctor can have my lab results when he talks to me.  I thought that to

keep

from having to wait for 2 hours with nothing to do (no computer) I

could

just get the labs done locally and just make my appointment at the time to

see

the doctor. They say that for me to do that the I have to have my labs in my

hand

when I do see the doctor.  When I asked the lab if they could give them

to me

they said only if the doctor puts on the order that the patient can see their labs. That seems like a reasonable request, but the coordinator says

that it

would just be easier for me to wait 2 hours before each visit. That sounds to me like one of those "not easier for you silly,

easier

for us" situations. — Kilow…@charter.net  Put "private" in the subject line. — { Disclaimer: Non Existent words contained within this poast were created in response to the Paperwork Reduction Act.} {If you have a problem with that, take it to the Environmentalists Complaint Dept.} A Free Thinker. — { Disclaimer: Non Existent words contained within this poast were created in response to the Paperwork Reduction Act.} {If you have a problem with that, take it to the Environmentalists Complaint Dept.} A Free Thinker.

Response:

Firestar wrote:

Russ, A CBC can easily be done within 20 minutes when run STAT.  However,  I’d be highly suspicious of a lab that can produce TSH and FT4 results in 20 minutes.  I have a high speed Immunoassay analyzer for those tests in my lab.  The on-analyzer time for a TSH and FT4 (run together on the same specimen) is 45 minutes.  Add 20 minutes for complete clotting of the specimen, 10-20 minutes centrifugation time (varies according the CF of the centrifuge), 5-10 minutes sample processing and computer time on to the on-analyzer time and you’ll have an idea of how long it takes to run a TSH and FT4 STAT.  Routine batch processing takes longer. Thom

Thank you for that information.  I knew CBC’s could be done in less time, but it used to only be used in an emergency. Thanks, is there anyway to get results of PCR STAT? So technically, waiting 2 hours for results n a blood test is not out of line? Hoof – Hide quoted text — Show quoted text -

mara…@nzia.net If you want to email me, replace the "z" with a "c" "Russ" <NOSPAMsourd…@yahoo.com wrote in message news:109dhq0ndc3gc41@corp.supernews.com… Two hours to do your blood work?? It’s a 50 mile drive for me to go to the clinic in Anchorage. Sometimes I’ll go to the hospital in Palmer and have my blood work done there. The last time I went there (Valley Hospital)  the tech said it would take about 20 minutes for the results of a CBC, TSH and free T-4,s. I was impressed that it only took that long. But normally I’ll go in and see the nurse and every other appointment I see the doc. If there is a problem with my blood work they call me up. Usually that would be about changing my synthroid meds. Sitting around the doc’s office for two hours just don’t sound like much fun!!!! — Russ Remove "NOSPAM" for replies. "Kilowatt" <kilow…@charter.net wrote in message news:jrulc.27700$Xj6.467516@bgtnsc04-news.ops.worldnet.att.net… My doctors visits are now 3 months apart, but because I am taking Pegasus I have to get labs every other week.  I get them done at a local lab and they just fax the results to the doctor.  The days I do have to go to see the doctor they make me come in 2 hours early to get blood work so the doctor can have my lab results when he talks to me.  I thought that to keep from having to wait for 2 hours with nothing to do (no computer) I could just get the labs done locally and just make my appointment at the time to see the doctor. They say that for me to do that the I have to have my labs in my hand when I do see the doctor.  When I asked the lab if they could give them to me they said only if the doctor puts on the order that the patient can see their labs. That seems like a reasonable request, but the coordinator says that it would just be easier for me to wait 2 hours before each visit. That sounds to me like one of those "not easier for you silly, easier for us" situations. — Kilow…@charter.net  Put "private" in the subject line.

— { Disclaimer: Non Existent words contained within this poast were created in response to the Paperwork Reduction Act.} {If you have a problem with that, take it to the Environmentalists Complaint Dept.} A Free Thinker.

Response:

- Hide quoted text — Show quoted text -HoofPrints wrote:

Firestar wrote: Russ, A CBC can easily be done within 20 minutes when run STAT.  However,  I’d be highly suspicious of a lab that can produce TSH and FT4 results in 20 minutes.  I have a high speed Immunoassay analyzer for those tests in my lab.  The on-analyzer time for a TSH and FT4 (run together on the same specimen) is 45 minutes.  Add 20 minutes for complete clotting of the specimen, 10-20 minutes centrifugation time (varies according the CF of the centrifuge), 5-10 minutes sample processing and computer time on to the on-analyzer time and you’ll have an idea of how long it takes to run a TSH and FT4 STAT.  Routine batch processing takes longer. Thom Thank you for that information.  I knew CBC’s could be done in less time, but it used to only be used in an emergency. Thanks, is there anyway to get results of PCR STAT? So technically, waiting 2 hours for results n a blood test is not out of line? Hoof

Add Prothrombin time to that emergency blood work order/ Right? – Hide quoted text — Show quoted text -

mara…@nzia.net If you want to email me, replace the "z" with a "c" "Russ" <NOSPAMsourd…@yahoo.com wrote in message news:109dhq0ndc3gc41@corp.supernews.com… Two hours to do your blood work?? It’s a 50 mile drive for me to go to the clinic in Anchorage. Sometimes I’ll go to the hospital in Palmer and have my blood work done there. The last time I went there (Valley Hospital)  the tech said it would take about 20 minutes for the results of a CBC, TSH and free T-4,s. I was impressed that it only took that long. But normally I’ll go in and see the nurse and every other appointment I see the doc. If there is a problem with my blood work they call me up. Usually that would be about changing my synthroid meds. Sitting around the doc’s office for two hours just don’t sound like much fun!!!! — Russ Remove "NOSPAM" for replies. "Kilowatt" <kilow…@charter.net wrote in message news:jrulc.27700$Xj6.467516@bgtnsc04-news.ops.worldnet.att.net… My doctors visits are now 3 months apart, but because I am taking Pegasus I have to get labs every other week.  I get them done at a local lab and they just fax the results to the doctor.  The days I do have to go to see the doctor they make me come in 2 hours early to get blood work so the doctor can have my lab results when he talks to me.  I thought that to keep from having to wait for 2 hours with nothing to do (no computer) I could just get the labs done locally and just make my appointment at the time to see the doctor. They say that for me to do that the I have to have my labs in my hand when I do see the doctor.  When I asked the lab if they could give them to me they said only if the doctor puts on the order that the patient can see their labs. That seems like a reasonable request, but the coordinator says that it would just be easier for me to wait 2 hours before each visit. That sounds to me like one of those "not easier for you silly, easier for us" situations. — Kilow…@charter.net  Put "private" in the subject line. — { Disclaimer: Non Existent words contained within this poast were created in response to the Paperwork Reduction Act.} {If you have a problem with that, take it to the Environmentalists Complaint Dept.} A Free Thinker.

— { Disclaimer: Non Existent words contained within this poast were created in response to the Paperwork Reduction Act.} {If you have a problem with that, take it to the Environmentalists Complaint Dept.} A Free Thinker.

Response:

When I make my appointment the receptionist says……..when do you want your appointment? When I say xxx she say ok……..You know you need to be here 2 hours early for labs. The hospital doesn’t have a problem with my local labs because I always do them there on days I don’t need to see the doctor. My problem is that for me to use lab work local instead of at Emory, when I see the doctor,  they want me to have lab results in hand for the doctor. The lab here said they didn’t mind faxing me my lab results, but I have get new standing orders having the doctor say……the patient can see their labs. My coordinator would rather have me (and everyone else) wait those 2 hours each time than to ask the doctor to make new standing orders.  There should be no reason that the patient couldn’t see the results as they hand me the labs each time after the doctor’s visit anyway.  She says…….It would just be easier if you come in on the days you see the doctor.    (Easier for who?) They make all patients wait 2 hours.  I am only one of few that even send in labs from another lab.  They want everyone’s insurance to send THEM the cash, but because I live father away than most I get that exception. "Russ" <NOSPAMsourd…@yahoo.com

wrote in message

news:109dhq0ndc3gc41@corp.supernews.com… – Hide quoted text — Show quoted text -

Two hours to do your blood work?? It’s a 50 mile drive for me to go to the clinic in Anchorage. Sometimes I’ll go to the hospital in Palmer and have

my

blood work done there. The last time I went there (Valley Hospital)  the tech said it would take about 20 minutes for the results of a CBC, TSH and free T-4,s. I was impressed that it only took that long. But normally I’ll go in and see the nurse and every other appointment I

see > the doc. If there is a problem with my blood work they call me up. Usually > that would be about changing my synthroid meds. > Sitting around the doc’s office for two hours just don’t sound like much > fun!!!! > — > Russ > Remove "NOSPAM" for replies. > "Kilowatt" <kilow…@charter.net

wrote in message

> news:jrulc.27700$Xj6.467516@bgtnsc04-news.ops.worldnet.att.net… > > My doctors visits are now 3 months apart, but because I am taking Pegasus

I have to get labs every other week.  I get them done at a local lab and they just fax the results to the doctor.  The days I do have to go to see the doctor they make me come in 2 hours early to get blood work so the

doctor

can have my lab results when he talks to me.  I thought that to keep

from

having to wait for 2 hours with nothing to do (no computer) I could just get the labs done locally and just make my appointment at the time to see

the

doctor. They say that for me to do that the I have to have my labs in my hand

when

I do see the doctor.  When I asked the lab if they could give them to me they said only if the doctor puts on the order that the patient can see their labs. That seems like a reasonable request, but the coordinator says that it would just be easier for me to wait 2 hours before each visit. That sounds to me like one of those "not easier for you silly, easier

for

us" situations. — Kilow…@charter.net  Put "private" in the subject line.

Response:

The tests I have done at Emory are the same as the tests I have done at the local lab.  It is only liver/blood numbers.  Very standard test.  I only take them more frequent locally because of my blood count due to the hep meds.  It probably is a 20 min deal.   There are at least 20 people ahead of me every time I go is why they take 2 hrs. "HoofPrints" <equsphotog…@hotmail.com

wrote in message

news:4096C926.50CF0F8C@hotmail.com… – Hide quoted text — Show quoted text -

Russ wrote: Two hours to do your blood work?? It’s a 50 mile drive for me to go to

the

clinic in Anchorage. Sometimes I’ll go to the hospital in Palmer and

have my

blood work done there. The last time I went there (Valley Hospital)  the tech said it would take about 20 minutes for the results of a CBC, TSH

and

free T-4,s. I was impressed that it only took that long. Good Point!! What tests is Emory doing for you every three months?? I cannot remember what tests I had drawn when I was in treatment, but some weeks were simple tests like CBC and some had to do with Iron Loads or something. I forget, and they never did a Thyroid blood test on me that I can recall. Hoof But normally I’ll go in and see the nurse and every other appointment I

see

the doc. If there is a problem with my blood work they call me up.

Usually > > that would be about changing my synthroid meds. > > Sitting around the doc’s office for two hours just don’t sound like much > > fun!!!! > > — > > Russ > > Remove "NOSPAM" for replies. > > "Kilowatt" <kilow…@charter.net

wrote in message

> > news:jrulc.27700$Xj6.467516@bgtnsc04-news.ops.worldnet.att.net… > > > My doctors visits are now 3 months apart, but because I am taking Pegasus

I have to get labs every other week.  I get them done at a local lab and they just fax the results to the doctor.  The days I do have to go to see

the

doctor they make me come in 2 hours early to get blood work so the

doctor

can have my lab results when he talks to me.  I thought that to keep

from

having to wait for 2 hours with nothing to do (no computer) I could

just

get the labs done locally and just make my appointment at the time to see

the

doctor. They say that for me to do that the I have to have my labs in my hand

when

I do see the doctor.  When I asked the lab if they could give them to me they said only if the doctor puts on the order that the patient can see

their

labs. That seems like a reasonable request, but the coordinator says that it would just be easier for me to wait 2 hours before each visit. That sounds to me like one of those "not easier for you silly, easier

for

us" situations. — Kilow…@charter.net  Put "private" in the subject line. — { Disclaimer: Non Existent words contained within this poast were created in response to the Paperwork Reduction Act.} {If you have a problem with that, take it to the Environmentalists Complaint Dept.} A Free Thinker.

Response:

Kilowatt wrote:

The tests I have done at Emory are the same as the tests I have done at the local lab.  It is only liver/blood numbers.  Very standard test.  I only take them more frequent locally because of my blood count due to the hep meds.  It probably is a 20 min deal.   There are at least 20 people ahead of me every time I go is why they take 2 hrs.

You’re joking?  I recall several different tests being drawn on me at 12 weeks, and 16 weeks. So all you have drawn at Emory is the LFT’s and CBC? Not even a full liver panel? Hoof – Hide quoted text — Show quoted text -

"HoofPrints" <equsphotog…@hotmail.com wrote in message news:4096C926.50CF0F8C@hotmail.com… Russ wrote: Two hours to do your blood work?? It’s a 50 mile drive for me to go to the clinic in Anchorage. Sometimes I’ll go to the hospital in Palmer and have my blood work done there. The last time I went there (Valley Hospital)  the tech said it would take about 20 minutes for the results of a CBC, TSH and free T-4,s. I was impressed that it only took that long. Good Point!! What tests is Emory doing for you every three months?? I cannot remember what tests I had drawn when I was in treatment, but some weeks were simple tests like CBC and some had to do with Iron Loads or something. I forget, and they never did a Thyroid blood test on me that I can recall. Hoof But normally I’ll go in and see the nurse and every other appointment I see the doc. If there is a problem with my blood work they call me up. Usually that would be about changing my synthroid meds. Sitting around the doc’s office for two hours just don’t sound like much fun!!!! — Russ Remove "NOSPAM" for replies. "Kilowatt" <kilow…@charter.net wrote in message news:jrulc.27700$Xj6.467516@bgtnsc04-news.ops.worldnet.att.net… My doctors visits are now 3 months apart, but because I am taking Pegasus I have to get labs every other week.  I get them done at a local lab and they just fax the results to the doctor.  The days I do have to go to see the doctor they make me come in 2 hours early to get blood work so the doctor can have my lab results when he talks to me.  I thought that to keep from having to wait for 2 hours with nothing to do (no computer) I could just get the labs done locally and just make my appointment at the time to see the doctor. They say that for me to do that the I have to have my labs in my hand when I do see the doctor.  When I asked the lab if they could give them to me they said only if the doctor puts on the order that the patient can see their labs. That seems like a reasonable request, but the coordinator says that it would just be easier for me to wait 2 hours before each visit. That sounds to me like one of those "not easier for you silly, easier for us" situations. — Kilow…@charter.net  Put "private" in the subject line. — { Disclaimer: Non Existent words contained within this poast were created in response to the Paperwork Reduction Act.} {If you have a problem with that, take it to the Environmentalists Complaint Dept.} A Free Thinker.

— { Disclaimer: Non Existent words contained within this poast were created in response to the Paperwork Reduction Act.} {If you have a problem with that, take it to the Environmentalists Complaint Dept.} A Free Thinker.

Response:

- Hide quoted text — Show quoted text -HoofPrints wrote:

Kilowatt wrote: So there is a ’standing order’ for labs? The local lab here got standing orders from the doctor when I started doing labs locally.  I need blood work often without having to go all the way to Emory.  I don’t know what exactly the test is called but it is just the standard liver/blood numbers.   don’t see any reason for not wanting a standing order.  The test is the same each time.  I think the main reason for this test is for my white and red blood count because of the Pegasus but even after a year of treatment my blood numbers are normal. The "problem" is that on the days I do go to the doctor I would still like to have labs done here the day before.  That keeps me from having blood work done at Emory and then having to wait 2 hrs on the lab to finish so the doctor can have my labs with him when he sees me. Does your lab have the results back in the same amount of time as Emory? The way it is now every patient has to wait at least 2 hrs for each visit and it is because they have to wait on the labs before they see the doctor. They want you to wait on the labs even if you are not seeing the doctor in case your blood count is low they can give you the meds without having to call you back.  It is not a bad idea but in most cases it is a waste of a whole day to go to the doctor. Bite the bullet KWH and wait. If they are waiting for the report to come back so they know if they need to prescribe medication for you nothing you can do about that one. Although, when I broke my back (T-11 or T12), in the mid 80’s I didn’t wait around to find out the results of the X-Ray, but that was in the same town and the results resulted in a get in here STAT!!!

This is a case of I went to the Doctors office, not the ER, and he sent me to the hospital for X-rays, with no appointment made to return to his office to wait for the results.. Had I gone to my orthopedist, i would have been x-rayed there, and known right then about it.. – Hide quoted text — Show quoted text -

I guess it works the same way with all hospitals but because it is so much more convenient to have my labs done here I don’t see why everyone couldn’t have labs done more close to home. I have talked to many that live even closer to the hospital that also say that having them done closer to home would work for them too. "HoofPrints" <equsphotog…@hotmail.com wrote in message news:4096752B.2FD17D39@hotmail.com… Kilowatt wrote: My doctors visits are now 3 months apart, but because I am taking Pegasus I have to get labs every other week.  I get them done at a local lab and they just fax the results to the doctor.  The days I do have to go to see the doctor they make me come in 2 hours early to get blood work so the doctor can have my lab results when he talks to me. So there is a ’standing order’ for labs? I thought that to keep from having to wait for 2 hours with nothing to do (no computer) I could just get the labs done locally and just make my appointment at the time to see the doctor. They say that for me to do that the I have to have my labs in my hand when I do see the doctor.  When I asked the lab if they could give them to me they said only if the doctor puts on the order that the patient can see their labs. That seems like a reasonable request, but the coordinator says that it would just be easier for me to wait 2 hours before each visit. Ask the doctor if he will allow you to get your labs through the lab. However, he also needs to see you so he can evaluate your progress visually. I don’t understand this ’standing order’ for labs though. There is rarely a ’standing order for anything in my old field, mainly behavior meds or restraints, it is taboo in psych. Hoof That sounds to me like one of those "not easier for you silly, easier for us" situations. — Kilow…@charter.net  Put "private" in the subject line. — { Disclaimer: Non Existent words contained within this poast were created in response to the Paperwork Reduction Act.} {If you have a problem with that, take it to the Environmentalists Complaint Dept.} A Free Thinker. — { Disclaimer: Non Existent words contained within this poast were created in response to the Paperwork Reduction Act.} {If you have a problem with that, take it to the Environmentalists Complaint Dept.} A Free Thinker.

— { Disclaimer: Non Existent words contained within this poast were created in response to the Paperwork Reduction Act.} {If you have a problem with that, take it to the Environmentalists Complaint Dept.} A Free Thinker.

Response:

If your doctor is practicing out of the same place that does you labs, then it sounds like they are getting the most from you insurance company.  Your lab work shouldn’t change enough in 24 hours to make it preferable for one lab over the other.  I usually get my lab work done a few days in advance before seeing the doctor.  Of course this is where I go every two to three weeks for my normal lab work.  Now, if your local lab and the doctor’s lab have different testing procedures that may cause some differences.  I don’t know why it would make a difference, but it may. – Hide quoted text — Show quoted text -Kilowatt wrote:

So there is a ’standing order’ for labs? The local lab here got standing orders from the doctor when I started doing labs locally.  I need blood work often without having to go all the way to Emory.  I don’t know what exactly the test is called but it is just the standard liver/blood numbers.   don’t see any reason for not wanting a standing order.  The test is the same each time.  I think the main reason for this test is for my white and red blood count because of the Pegasus but even after a year of treatment my blood numbers are normal. The "problem" is that on the days I do go to the doctor I would still like to have labs done here the day before.  That keeps me from having blood work done at Emory and then having to wait 2 hrs on the lab to finish so the doctor can have my labs with him when he sees me. The way it is now every patient has to wait at least 2 hrs for each visit and it is because they have to wait on the labs before they see the doctor. They want you to wait on the labs even if you are not seeing the doctor in case your blood count is low they can give you the meds without having to call you back.  It is not a bad idea but in most cases it is a waste of a whole day to go to the doctor. I guess it works the same way with all hospitals but because it is so much more convenient to have my labs done here I don’t see why everyone couldn’t have labs done more close to home. I have talked to many that live even closer to the hospital that also say that having them done closer to home would work for them too. "HoofPrints" <equsphotog…@hotmail.com wrote in message news:4096752B.2FD17D39@hotmail.com… Kilowatt wrote: My doctors visits are now 3 months apart, but because I am taking Pegasus I have to get labs every other week.  I get them done at a local lab and they just fax the results to the doctor.  The days I do have to go to see the doctor they make me come in 2 hours early to get blood work so the doctor can have my lab results when he talks to me. So there is a ’standing order’ for labs? I thought that to keep from having to wait for 2 hours with nothing to do (no computer) I could just get the labs done locally and just make my appointment at the time to see the doctor. They say that for me to do that the I have to have my labs in my hand when I do see the doctor.  When I asked the lab if they could give them to me they said only if the doctor puts on the order that the patient can see their labs. That seems like a reasonable request, but the coordinator says that it would just be easier for me to wait 2 hours before each visit. Ask the doctor if he will allow you to get your labs through the lab. However, he also needs to see you so he can evaluate your progress visually. I don’t understand this ’standing order’ for labs though. There is rarely a ’standing order for anything in my old field, mainly behavior meds or restraints, it is taboo in psych. Hoof That sounds to me like one of those "not easier for you silly, easier for us" situations. — Kilow…@charter.net  Put "private" in the subject line. — { Disclaimer: Non Existent words contained within this poast were created in response to the Paperwork Reduction Act.} {If you have a problem with that, take it to the Environmentalists Complaint Dept.} A Free Thinker.

— Dwight Dragon Slayers’ Club:  http://geocities.com/dwightmspage/

Response:

Dwight wrote:

If your doctor is practicing out of the same place that does you labs, then it sounds like they are getting the most from you insurance company.  Your lab work shouldn’t change enough in 24 hours to make it preferable for one lab over the other.  I usually get my lab work done a few days in advance before seeing the doctor.  Of course this is where I go every two to three weeks for my normal lab work.  Now, if your local lab and the doctor’s lab have different testing procedures that may cause some differences.  I don’t know why it would make a difference, but it may.

The other side of that coin is that Emory has a ‘well working relationship’ with ‘their’ lab. The turn around time my be a factor. And the procedures may be a factor. If something were to come up as a result of the lab work, then the doctor can order more on the spot. Wouldn’t you rather have cutting edge than lesser than

 ( not knocking

labs now.  You all seem to be getting your share of the pie too) Hoof – Hide quoted text — Show quoted text -

Kilowatt wrote: So there is a ’standing order’ for labs? The local lab here got standing orders from the doctor when I started doing labs locally.  I need blood work often without having to go all the way to Emory.  I don’t know what exactly the test is called but it is just the standard liver/blood numbers.   don’t see any reason for not wanting a standing order.  The test is the same each time.  I think the main reason for this test is for my white and red blood count because of the Pegasus but even after a year of treatment my blood numbers are normal. The "problem" is that on the days I do go to the doctor I would still like to have labs done here the day before.  That keeps me from having blood work done at Emory and then having to wait 2 hrs on the lab to finish so the doctor can have my labs with him when he sees me. The way it is now every patient has to wait at least 2 hrs for each visit and it is because they have to wait on the labs before they see the doctor. They want you to wait on the labs even if you are not seeing the doctor in case your blood count is low they can give you the meds without having to call you back.  It is not a bad idea but in most cases it is a waste of a whole day to go to the doctor. I guess it works the same way with all hospitals but because it is so much more convenient to have my labs done here I don’t see why everyone couldn’t have labs done more close to home. I have talked to many that live even closer to the hospital that also say that having them done closer to home would work for them too. "HoofPrints" <equsphotog…@hotmail.com wrote in message news:4096752B.2FD17D39@hotmail.com… Kilowatt wrote: My doctors visits are now 3 months apart, but because I am taking Pegasus I have to get labs every other week.  I get them done at a local lab and they just fax the results to the doctor.  The days I do have to go to see the doctor they make me come in 2 hours early to get blood work so the doctor can have my lab results when he talks to me. So there is a ’standing order’ for labs? I thought that to keep from having to wait for 2 hours with nothing to do (no computer) I could just get the labs done locally and just make my appointment at the time to see the doctor. They say that for me to do that the I have to have my labs in my hand when I do see the doctor.  When I asked the lab if they could give them to me they said only if the doctor puts on the order that the patient can see their labs. That seems like a reasonable request, but the coordinator says that it would just be easier for me to wait 2 hours before each visit. Ask the doctor if he will allow you to get your labs through the lab. However, he also needs to see you so he can evaluate your progress visually. I don’t understand this ’standing order’ for labs though. There is rarely a ’standing order for anything in my old field, mainly behavior meds or restraints, it is taboo in psych. Hoof That sounds to me like one of those "not easier for you silly, easier for us" situations. — Kilow…@charter.net  Put "private" in the subject line. — { Disclaimer: Non Existent words contained within this poast were created in response to the Paperwork Reduction Act.} {If you have a problem with that, take it to the Environmentalists Complaint Dept.} A Free Thinker. — Dwight Dragon Slayers’ Club:  http://geocities.com/dwightmspage/

— { Disclaimer: Non Existent words contained within this poast were created in response to the Paperwork Reduction Act.} {If you have a problem with that, take it to the Environmentalists Complaint Dept.} A Free Thinker.

Response:

Two hours to do your blood work?? It’s a 50 mile drive for me to go to the clinic in Anchorage. Sometimes I’ll go to the hospital in Palmer and have my blood work done there. The last time I went there (Valley Hospital)  the tech said it would take about 20 minutes for the results of a CBC, TSH and free T-4,s. I was impressed that it only took that long. But normally I’ll go in and see the nurse and every other appointment I see the doc. If there is a problem with my blood work they call me up. Usually that would be about changing my synthroid meds. Sitting around the doc’s office for two hours just don’t sound like much fun!!!! — Russ Remove "NOSPAM" for replies. "Kilowatt" <kilow…@charter.net

wrote in message

news:jrulc.27700$Xj6.467516@bgtnsc04-news.ops.worldnet.att.net… – Hide quoted text — Show quoted text -

My doctors visits are now 3 months apart, but because I am taking Pegasus

I

have to get labs every other week.  I get them done at a local lab and

they

just fax the results to the doctor.  The days I do have to go to see the doctor they make me come in 2 hours early to get blood work so the doctor can have my lab results when he talks to me.  I thought that to keep from having to wait for 2 hours with nothing to do (no computer) I could just

get

the labs done locally and just make my appointment at the time to see the doctor. They say that for me to do that the I have to have my labs in my hand when

I

do see the doctor.  When I asked the lab if they could give them to me

they

said only if the doctor puts on the order that the patient can see their labs. That seems like a reasonable request, but the coordinator says that it

would

just be easier for me to wait 2 hours before each visit. That sounds to me like one of those "not easier for you silly, easier for us" situations. — Kilow…@charter.net  Put "private" in the subject line.

Response:

Russ wrote:

Two hours to do your blood work?? It’s a 50 mile drive for me to go to the clinic in Anchorage. Sometimes I’ll go to the hospital in Palmer and have my blood work done there. The last time I went there (Valley Hospital)  the tech said it would take about 20 minutes for the results of a CBC, TSH and free T-4,s. I was impressed that it only took that long.

Good Point!! What tests is Emory doing for you every three months?? I cannot remember what tests I had drawn when I was in treatment, but some weeks were simple tests like CBC and some had to do with Iron Loads or something. I forget, and they never did a Thyroid blood test on me that I can recall. Hoof – Hide quoted text — Show quoted text -

But normally I’ll go in and see the nurse and every other appointment I see the doc. If there is a problem with my blood work they call me up. Usually that would be about changing my synthroid meds. Sitting around the doc’s office for two hours just don’t sound like much fun!!!! — Russ Remove "NOSPAM" for replies. "Kilowatt" <kilow…@charter.net wrote in message news:jrulc.27700$Xj6.467516@bgtnsc04-news.ops.worldnet.att.net… My doctors visits are now 3 months apart, but because I am taking Pegasus I have to get labs every other week.  I get them done at a local lab and they just fax the results to the doctor.  The days I do have to go to see the doctor they make me come in 2 hours early to get blood work so the doctor can have my lab results when he talks to me.  I thought that to keep from having to wait for 2 hours with nothing to do (no computer) I could just get the labs done locally and just make my appointment at the time to see the doctor. They say that for me to do that the I have to have my labs in my hand when I do see the doctor.  When I asked the lab if they could give them to me they said only if the doctor puts on the order that the patient can see their labs. That seems like a reasonable request, but the coordinator says that it would just be easier for me to wait 2 hours before each visit. That sounds to me like one of those "not easier for you silly, easier for us" situations. — Kilow…@charter.net  Put "private" in the subject line.

— { Disclaimer: Non Existent words contained within this poast were created in response to the Paperwork Reduction Act.} {If you have a problem with that, take it to the Environmentalists Complaint Dept.} A Free Thinker.

Response:

Russ, A CBC can easily be done within 20 minutes when run STAT.  However,  I’d be highly suspicious of a lab that can produce TSH and FT4 results in 20 minutes.  I have a high speed Immunoassay analyzer for those tests in my lab.  The on-analyzer time for a TSH and FT4 (run together on the same specimen) is 45 minutes.  Add 20 minutes for complete clotting of the specimen, 10-20 minutes centrifugation time (varies according the CF of the centrifuge), 5-10 minutes sample processing and computer time on to the on-analyzer time and you’ll have an idea of how long it takes to run a TSH and FT4 STAT.  Routine batch processing takes longer. Thom mara…@nzia.net If you want to email me, replace the "z" with a "c" "Russ" <NOSPAMsourd…@yahoo.com

wrote in message

news:109dhq0ndc3gc41@corp.supernews.com… – Hide quoted text — Show quoted text -

Two hours to do your blood work?? It’s a 50 mile drive for me to go to the clinic in Anchorage. Sometimes I’ll go to the hospital in Palmer and have

my

blood work done there. The last time I went there (Valley Hospital)  the tech said it would take about 20 minutes for the results of a CBC, TSH and free T-4,s. I was impressed that it only took that long. But normally I’ll go in and see the nurse and every other appointment I

see > the doc. If there is a problem with my blood work they call me up. Usually > that would be about changing my synthroid meds. > Sitting around the doc’s office for two hours just don’t sound like much > fun!!!! > — > Russ > Remove "NOSPAM" for replies. > "Kilowatt" <kilow…@charter.net

wrote in message

> news:jrulc.27700$Xj6.467516@bgtnsc04-news.ops.worldnet.att.net… > > My doctors visits are now 3 months apart, but because I am taking Pegasus

I have to get labs every other week.  I get them done at a local lab and they just fax the results to the doctor.  The days I do have to go to see the doctor they make me come in 2 hours early to get blood work so the

doctor

can have my lab results when he talks to me.  I thought that to keep

from

having to wait for 2 hours with nothing to do (no computer) I could just get the labs done locally and just make my appointment at the time to see

the

doctor. They say that for me to do that the I have to have my labs in my hand

when

I do see the doctor.  When I asked the lab if they could give them to me they said only if the doctor puts on the order that the patient can see their labs. That seems like a reasonable request, but the coordinator says that it would just be easier for me to wait 2 hours before each visit. That sounds to me like one of those "not easier for you silly, easier

for

us" situations. — Kilow…@charter.net  Put "private" in the subject line.

Response:

My doctors visits are now 3 months apart, but because I am taking Pegasus I have to get labs every other week.  I get them done at a local lab and they just fax the results to the doctor.  The days I do have to go to see the doctor they make me come in 2 hours early to get blood work so the doctor can have my lab results when he talks to me.  I thought that to keep from having to wait for 2 hours with nothing to do (no computer) I could just get the labs done locally and just make my appointment at the time to see the doctor. They say that for me to do that the I have to have my labs in my hand when I do see the doctor.  When I asked the lab if they could give them to me they said only if the doctor puts on the order that the patient can see their labs. That seems like a reasonable request, but the coordinator says that it would just be easier for me to wait 2 hours before each visit. That sounds to me like one of those "not easier for you silly, easier for us" situations. — Kilow…@charter.net  Put "private" in the subject line.

Response:

Kilowatt wrote:

My doctors visits are now 3 months apart, but because I am taking Pegasus I have to get labs every other week.  I get them done at a local lab and they just fax the results to the doctor.  The days I do have to go to see the doctor they make me come in 2 hours early to get blood work so the doctor can have my lab results when he talks to me.

So there is a ’standing order’ for labs?

I thought that to keep from having to wait for 2 hours with nothing to do (no computer) I could just get the labs done locally and just make my appointment at the time to see the doctor. They say that for me to do that the I have to have my labs in my hand when I do see the doctor.  When I asked the lab if they could give them to me they said only if the doctor puts on the order that the patient can see their labs. That seems like a reasonable request, but the coordinator says that it would just be easier for me to wait 2 hours before each visit.

Ask the doctor if he will allow you to get your labs through the lab. However, he also needs to see you so he can evaluate your progress visually. I don’t understand this ’standing order’ for labs though. There is rarely a ’standing order for anything in my old field, mainly behavior meds or restraints, it is taboo in psych. Hoof

That sounds to me like one of those "not easier for you silly, easier for us" situations. — Kilow…@charter.net  Put "private" in the subject line.

— { Disclaimer: Non Existent words contained within this poast were created in response to the Paperwork Reduction Act.} {If you have a problem with that, take it to the Environmentalists Complaint Dept.} A Free Thinker.

Response:

So there is a ’standing order’ for labs?

The local lab here got standing orders from the doctor when I started doing labs locally.  I need blood work often without having to go all the way to Emory.  I don’t know what exactly the test is called but it is just the standard liver/blood numbers.   don’t see any reason for not wanting a standing order.  The test is the same each time.  I think the main reason for this test is for my white and red blood count because of the Pegasus but even after a year of treatment my blood numbers are normal. The "problem" is that on the days I do go to the doctor I would still like to have labs done here the day before.  That keeps me from having blood work done at Emory and then having to wait 2 hrs on the lab to finish so the doctor can have my labs with him when he sees me. The way it is now every patient has to wait at least 2 hrs for each visit and it is because they have to wait on the labs before they see the doctor. They want you to wait on the labs even if you are not seeing the doctor in case your blood count is low they can give you the meds without having to call you back.  It is not a bad idea but in most cases it is a waste of a whole day to go to the doctor. I guess it works the same way with all hospitals but because it is so much more convenient to have my labs done here I don’t see why everyone couldn’t have labs done more close to home. I have talked to many that live even closer to the hospital that also say that having them done closer to home would work for them too. "HoofPrints" <equsphotog…@hotmail.com

wrote in message

news:4096752B.2FD17D39@hotmail.com… – Hide quoted text — Show quoted text -

Kilowatt wrote: My doctors visits are now 3 months apart, but because I am taking

Pegasus I

have to get labs every other week.  I get them done at a local lab and

they

just fax the results to the doctor.  The days I do have to go to see the doctor they make me come in 2 hours early to get blood work so the

doctor > > can have my lab results when he talks to me.

So there is a ’standing order’ for labs?

> > I thought that to keep from > > having to wait for 2 hours with nothing to do (no computer) I could just get

the labs done locally and just make my appointment at the time to see

the

doctor. They say that for me to do that the I have to have my labs in my hand

when I

do see the doctor.  When I asked the lab if they could give them to me

they

said only if the doctor puts on the order that the patient can see their labs. That seems like a reasonable request, but the coordinator says that it

would

just be easier for me to wait 2 hours before each visit. Ask the doctor if he will allow you to get your labs through the lab. However, he also needs to see you so he can evaluate your progress visually. I don’t understand this ’standing order’ for labs though. There is rarely a ’standing order for anything in my old field, mainly behavior meds or restraints, it is taboo in psych. Hoof That sounds to me like one of those "not easier for you silly, easier

for

us" situations. — Kilow…@charter.net  Put "private" in the subject line. — { Disclaimer: Non Existent words contained within this poast were created in response to the Paperwork Reduction Act.} {If you have a problem with that, take it to the Environmentalists Complaint Dept.} A Free Thinker.

Response:

Kilowatt wrote:

So there is a ’standing order’ for labs? The local lab here got standing orders from the doctor when I started doing labs locally.  I need blood work often without having to go all the way to Emory.  I don’t know what exactly the test is called but it is just the standard liver/blood numbers.   don’t see any reason for not wanting a standing order.  The test is the same each time.  I think the main reason for this test is for my white and red blood count because of the Pegasus but even after a year of treatment my blood numbers are normal. The "problem" is that on the days I do go to the doctor I would still like to have labs done here the day before.  That keeps me from having blood work done at Emory and then having to wait 2 hrs on the lab to finish so the doctor can have my labs with him when he sees me.

Does your lab have the results back in the same amount of time as Emory?

The way it is now every patient has to wait at least 2 hrs for each visit and it is because they have to wait on the labs before they see the doctor. They want you to wait on the labs even if you are not seeing the doctor in case your blood count is low they can give you the meds without having to call you back.  It is not a bad idea but in most cases it is a waste of a whole day to go to the doctor.

Bite the bullet KWH and wait. If they are waiting for the report to come back so they know if they need to prescribe medication for you nothing you can do about that one. Although, when I broke my back (T-11 or T12), in the mid 80’s I didn’t wait around to find out the results of the X-Ray, but that was in the same town and the results resulted in a get in here STAT!!! – Hide quoted text — Show quoted text -

I guess it works the same way with all hospitals but because it is so much more convenient to have my labs done here I don’t see why everyone couldn’t have labs done more close to home. I have talked to many that live even closer to the hospital that also say that having them done closer to home would work for them too. "HoofPrints" <equsphotog…@hotmail.com wrote in message news:4096752B.2FD17D39@hotmail.com… Kilowatt wrote: My doctors visits are now 3 months apart, but because I am taking Pegasus I have to get labs every other week.  I get them done at a local lab and they just fax the results to the doctor.  The days I do have to go to see the doctor they make me come in 2 hours early to get blood work so the doctor can have my lab results when he talks to me. So there is a ’standing order’ for labs? I thought that to keep from having to wait for 2 hours with nothing to do (no computer) I could just get the labs done locally and just make my appointment at the time to see the doctor. They say that for me to do that the I have to have my labs in my hand when I do see the doctor.  When I asked the lab if they could give them to me they said only if the doctor puts on the order that the patient can see their labs. That seems like a reasonable request, but the coordinator says that it would just be easier for me to wait 2 hours before each visit. Ask the doctor if he will allow you to get your labs through the lab. However, he also needs to see you so he can evaluate your progress visually. I don’t understand this ’standing order’ for labs though. There is rarely a ’standing order for anything in my old field, mainly behavior meds or restraints, it is taboo in psych. Hoof That sounds to me like one of those "not easier for you silly, easier for us" situations. — Kilow…@charter.net  Put "private" in the subject line. — { Disclaimer: Non Existent words contained within this poast were created in response to the Paperwork Reduction Act.} {If you have a problem with that, take it to the Environmentalists Complaint Dept.} A Free Thinker.

— { Disclaimer: Non Existent words contained within this poast were created in response to the Paperwork Reduction Act.} {If you have a problem with that, take it to the Environmentalists Complaint Dept.} A Free Thinker.

Response:

So weak

Question:

Sharon wrote:

 he might put me on Synthyroid (if my thyroid blood test is borderline

There’s a "normal" range. If you are within a reasonable range (of TSH) unlikely Synthroid would be prescribed by most doctors. Besides taking thyroid medicine doens’t cause weight loss. Anyhow my main point for you or your partner, is this was on the "news" tonight http://www.heraldnet.com/Stories/03/10/13/17610869.cfm the implantable gastric stimulator (IGS) They say it’s not FDA=appproved yet a US doctor was saying he was putting them in, (perhaps studies or trials)? Seems like it’s being done in other States also. Perhaps something to look into, less invasive surgery http://tinyurl.com/qy4d Hugs J

Response:

I’m sorry you’ve been hit so hard.  I don’t know about all the anemia stuff and all, but I do know that after a very emotional thing,(good or bad)  I nose dive big time.  When this happens I could crawl in bed at 6pm. Just my two ’sense’ worth.  Hope you get some answers (((((Sharon)))) Dawn "Cindy" <cmath…@cox.net

wrote in message

news:gxphb.2239$_f.1584@news1.central.cox.net… – Hide quoted text — Show quoted text -

Hugs Sharon. I know that it can be overwhelming at times. I know that sometimes it is

all

I can do to get up and make my way through the house. Then I get really depressed and cry. Then I feel really stupid about it all when I am having good days…All of this for no apparent reason at all….Maybe your Rheumy can help you tomorrow. Good luck on going alone…It seems all too scarey for me. I don’t know if

I > could live in the city like that.  Id probably never leave home. > A pair of Angel Wings to help you through tomorrow. > Hugs Cindy > "Sharon" <noway…@hotmail.com

wrote in message

> news:bm4m8u$id4ri$1@ID-163463.news.uni-berlin.de… > > Hi everyone, > > This is a bit of a whine.  I am not doing good these days.  I am feeling > > so weak, like I want to pass out at any moment.  Right now I can barely > > sit in my chair in my cubicle.  It’s not like me to not work, but I am > > not up to doing anything, even just searching the web for free stock > > photos for some webpages I’m putting up. > > It’s got me really worried, I can’t really function like this.  I am > > afraid that I’m gonna end up a mush on my couch again like last summer. > >   I can’t afford to end up like that again.  I am graduating this > > spring, and I have a job that is going to get me hired full-time after I > > graduate.  If I can’t hold this job, how the heck am I going to get a > > real job when I graduate?  Who would hire me, and I would feel guilty > > applying knowing I am not what they want at all (dependable). > > I am a bit sad right now, thinking of these things.  I really like my > > job, and don’t want to lose it, but I’m not sure if it’s too much > > working and going to school.  But it could be that I’d be like this just > > with classes and no work. > > I am trying to think what would cause such weakness.  Maybe my B12 > > levels have gone extrememly low.  When I first went to my RD a year or > > so ago, he noted my B12 was on the low end of normal, so I got some > > shots and he gave me one everytime I saw him for whatever.  I haven’t > > seen him in quite some time, so maybe my levels have gone really low. > > If it’s not that, then what else could it be?  Eating doesn’t help or > > make it worse, so I don’t think it’s blood sugar related. > > This fatigue and weakness is driving me to tears.  I don’t know if you > > all know what I mean, but when I get too exhausted to speak, I get > > overwhelmed and have a good cry. > > Well I’m seeing my RD tomorrow, hopefully I can make it into Manhattan > > without too much trouble.  Hubby is driving me to the train station in > > Queens so I don’t have to do any walking and the train ride will be like > > 15 minutes, and then I take a bus that has a stop right outside of Penn > > Station, so no walking to the bus.  Then going back home I just take the > > bus back to the train and transfer usually once, then hubby will pick me > > up by our apt.  I don’t think I will have a problem, but I get nervous > > traveling alone when I’m not feeling this well. > > Anyway, that’s my whine.  Thanks for reading. > > -Sharon > > — > > "Don’t make me come down there…" > >                            -God

Response:

In article <0001HW.BBB2E7D10002E2B126320…@News.CIS.DFN.DE

,

herbwormwood <herbwormw…@lycos.co.uk

wrote

[

Mine actually came back normal, much to my surprise.

:) -- Andy [Chair, N E Lupus Group] See http://www.kitzbuhel.demon.co.uk/lupus for more!

Response:

In article <bm4m8u$id4r…@ID-163463.news.uni-berlin.de

, Sharon

<noway…@hotmail.com

wrote Hi everyone, This is a bit of a whine.  I am not doing good these days.  I am feeling so weak, like I want to pass out at any moment.  Right now I can barely sit in my chair in my cubicle.  It’s not like me to not work, but I am not up to doing anything, even just searching the web for free stock photos for some webpages I’m putting up.

Coincidentally, I’ve just been reading that if your adrenal gland doesn’t work properly you’ll fell amazingly tired. Isn’t that what long-term steroids affects? — Andy [Chair, N E Lupus Group] See http://www.kitzbuhel.demon.co.uk/lupus for more!

Response:

Hi Sharon, I have been reviewing your various posts, and would like to comment in this one. What type of anemia did you have, iron deficiency or something else? I don’t recall, so I hope you don’t mind refreshing my memory on that. Iron deficiency anemia and PA are totally unrelated. I spoke a bit about pernicious anemia in my reply to Nina under this same thread. Also you said your TSH was normal. I see an endocrinologist. He seems quite good as far as I can tell. He uses the TSH as the main indicator of thyroid function. That reading would go up if you were hypothryroid. I would want to be 100% sure that I had a low functioning thyroid before taking Synthroid. My thyroid reading would have to be below normal, not low normal first. Be careful with that. Let us know what else your tests show. BJ-Sk. Canada "Sharon" <noway…@hotmail.com

wrote in message

news:bm7lv7$jbkf8$1@ID-163463.news.uni-berlin.de… – Hide quoted text — Show quoted text -

herbwormwood wrote: Hi, Yes, I get very weak too. I also get very tired at times and then I feel bad temmpered and I can be a bit mean. Also like you I might start

crying!

Almost like a very brief depressive episode! I hope I am not stating the obviuous but have you considered it may be simply due to having lupus <maybe a flare?I used to get very upset by this tiredness and feel inadequate. This was particularly bad when I was

a

teenager and some people around me did not understand. Now I live on my own and am not in paid employment I can fit things I have to do around

my

tiredness a bit more. I usually sleep at least 9 hours at night and sometimes have day naps on top of this. Also have you considered the effect of your meds? Many can cause

tiredness

One more thing, have you been checked for aneimia? This can cause tiredness, particularly if you are female and having periods. Its my personal opinion that low iron levels which are not clinicallly significant can cause tiredness in some people. You write that "Eating doesn’t help or make it worse, so I don’t think it’s blood sugar related." I agree it probably isnt blood sugar, but it

is

normal for mayny people to feel sleepy and tired often after eating, particularly in the afternoon, its called the post lunch pause!  Try eating complex carbohydrates, fruit, veg, brown rice and pasta etc, and see if you feel any better. These foods release energy more slowly

and

gradually so they are better for feelings of tiredness. And accept you

are

quite likely to feel tired after eating for an hour or so. I hope you can sort it out soon, in the mean time take it easy if you

can!

You say you ae graduating. I assume you have been working pretty hard at your studies. This can be very stressful and perhaps accounts for part

of

the tiredness. So bear that in mind. I used to sit studying in those cubicles and I had to put my head on my arms and close my eyes. I was so tired! Particularly on a boring textbook I was trying to underrstand!

Dont

forget the brain works best for 20 minutes at  most then it needs a

break!

<snip Lynne <snip << If you can do your studies at school or college and graduate  you can probably do anything! LOL!  So true!  School s**ks bigtime.  Hubby said that he couldn’t get through college, but now he works at the college in the Tech department and he said it’s so much easier working than going to classes.  lol I do have anemia, B12 deficiency, but I still am trying to get out of my doc if I have pernicious anemia or not.  I also did just get my period a few days ago, so that could be why the dizziness got worse.  I was going to try to eat some iron rich foods like spinach, liver and raisins (not all at the same time  ;)  ) and see if it helps, but haven’t yet (combo of brain fog and too tired to eat.) My doc is testing my thyroid and if it’s borderline, I will get to try synthyroid.  If the thyroid isn’t the problem, then I get to try Provigil.  Hopefully one of the two will work! Yeah, I think it has to do with the UCTD flaring up, but I am hoping to get it under control so it doesn’t happen so easily.  Right now I don’t know if I can work a full-time job like this, which is not where I want to be if I can help it.  I really like my job, and don’t want to lose it if I can help it. I’ll update with how the bloods come out and which med I’m trying next. -Sharon — "Don’t make me come down there…"                            -God

Response:

Since I’m a little late to the party – sorry you’re feeling crappy Sharon, but good your RD is trying to sort things out. Tramadol (which is the best part of Ultracet – the other part is just acetaminophen) is a good drug. I have "pure" Tramadol, which I get to combine with NSAID:s or acetaminophen as I please. In my experience it’s OK for moderate pain, not for moderate to severe as the Swedish package insert states. For me, it’s also a bit less effective than codeine, but doesn’t cause the excessive farting codeine does. Also, shortly after I started posting here, I think I saw in a post that you had tested positive for antibodies in celiac disease. Since you also have low B12, you might want to ask your RD if you shouldn’t go on a very strict gluten-free diet for a couple of months to see whether some of your symptoms improve, or at least be referred to a gastro for a second opinion or a gluten challenge. It’s not uncommon to have several autoimmune diseases, which I think many of us here have, or the diseases feeding each other – ask my sister DiaBetty Crohns. Also, celiac disease can cause other serious problems if not treated properly. We’re in a similar situation regarding school/work (except that I don’t work and since I’m starting the biomedicine stuff it’ll take another 4 years before I graduate). Switching to not studying full-time and spreading the studying more evenly by delaying some exam from spring semester to write in late August instead has made life much easier for me. Don’t worry about work yet, most important now is getting your health under control and getting through college. Can you talk to the disability office or a guidance councelor or something? Good luck with the new dose of your med! Sometimes a simple bump in the dose will do the trick. Nina "Sharon" <noway…@hotmail.com

skrev i meddelandet

news:bm4m8u$id4ri$1@ID-163463.news.uni-berlin.de… – Hide quoted text — Show quoted text -

Hi everyone, This is a bit of a whine.  I am not doing good these days.  I am feeling so weak, like I want to pass out at any moment.  Right now I can barely sit in my chair in my cubicle.  It’s not like me to not work, but I am not up to doing anything, even just searching the web for free stock photos for some webpages I’m putting up. It’s got me really worried, I can’t really function like this.  I am afraid that I’m gonna end up a mush on my couch again like last summer.   I can’t afford to end up like that again.  I am graduating this spring, and I have a job that is going to get me hired full-time after I graduate.  If I can’t hold this job, how the heck am I going to get a real job when I graduate?  Who would hire me, and I would feel guilty applying knowing I am not what they want at all (dependable). I am a bit sad right now, thinking of these things.  I really like my job, and don’t want to lose it, but I’m not sure if it’s too much working and going to school.  But it could be that I’d be like this just with classes and no work. I am trying to think what would cause such weakness.  Maybe my B12 levels have gone extrememly low.  When I first went to my RD a year or so ago, he noted my B12 was on the low end of normal, so I got some shots and he gave me one everytime I saw him for whatever.  I haven’t seen him in quite some time, so maybe my levels have gone really low. If it’s not that, then what else could it be?  Eating doesn’t help or make it worse, so I don’t think it’s blood sugar related. This fatigue and weakness is driving me to tears.  I don’t know if you all know what I mean, but when I get too exhausted to speak, I get overwhelmed and have a good cry. Well I’m seeing my RD tomorrow, hopefully I can make it into Manhattan without too much trouble.  Hubby is driving me to the train station in Queens so I don’t have to do any walking and the train ride will be like 15 minutes, and then I take a bus that has a stop right outside of Penn Station, so no walking to the bus.  Then going back home I just take the bus back to the train and transfer usually once, then hubby will pick me up by our apt.  I don’t think I will have a problem, but I get nervous traveling alone when I’m not feeling this well. Anyway, that’s my whine.  Thanks for reading. -Sharon — "Don’t make me come down there…"                            -God

Response:

Hi Nina, I have to agree with you on the celiac thing. Sharon had a low normal B12 level and no megaloblastic red blood cells. That would rule out pernicious anemia, but it makes me wonder if some vitamins are not being absorbed properly. Also a low normal B12 level shouldn’t cause weakness. I think that has to be something else. Glad to hear the Tramadol is working out for you without all the farts. <g

You gave me a smile there.

BJ-Sk. Canada "NW" <ninb…@MJAUyahoo.se

wrote in message

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Since I’m a little late to the party – sorry you’re feeling crappy Sharon, but good your RD is trying to sort things out. Tramadol (which is the best part of Ultracet – the other part is just acetaminophen) is a good drug. I have "pure" Tramadol, which I get to

combine

with NSAID:s or acetaminophen as I please. In my experience it’s OK for moderate pain, not for moderate to severe as the Swedish package insert states. For me, it’s also a bit less effective than codeine, but doesn’t

cause

the excessive farting codeine does. Also, shortly after I started posting here, I think I saw in a post that

you

had tested positive for antibodies in celiac disease. Since you also have

low

B12, you might want to ask your RD if you shouldn’t go on a very strict gluten-free diet for a couple of months to see whether some of your

symptoms

improve, or at least be referred to a gastro for a second opinion or a

gluten

challenge. It’s not uncommon to have several autoimmune diseases, which I think many of us here have, or the diseases feeding each other – ask my

sister

DiaBetty Crohns. Also, celiac disease can cause other serious problems if

not

treated properly. We’re in a similar situation regarding school/work (except that I don’t

work

and since I’m starting the biomedicine stuff it’ll take another 4 years

before

I graduate). Switching to not studying full-time and spreading the

studying

more evenly by delaying some exam from spring semester to write in late

August

instead has made life much easier for me. Don’t worry about work yet, most important now is getting your health under control and getting through college. Can you talk to the disability office or a guidance councelor or something? Good luck with the new dose of your med! Sometimes a simple bump in the

dose

will do the trick. Nina "Sharon" <noway…@hotmail.com skrev i meddelandet news:bm4m8u$id4ri$1@ID-163463.news.uni-berlin.de… Hi everyone, This is a bit of a whine.  I am not doing good these days.  I am feeling so weak, like I want to pass out at any moment.  Right now I can barely sit in my chair in my cubicle.  It’s not like me to not work, but I am not up to doing anything, even just searching the web for free stock photos for some webpages I’m putting up. It’s got me really worried, I can’t really function like this.  I am afraid that I’m gonna end up a mush on my couch again like last summer.   I can’t afford to end up like that again.  I am graduating this spring, and I have a job that is going to get me hired full-time after I graduate.  If I can’t hold this job, how the heck am I going to get a real job when I graduate?  Who would hire me, and I would feel guilty applying knowing I am not what they want at all (dependable). I am a bit sad right now, thinking of these things.  I really like my job, and don’t want to lose it, but I’m not sure if it’s too much working and going to school.  But it could be that I’d be like this just with classes and no work. I am trying to think what would cause such weakness.  Maybe my B12 levels have gone extrememly low.  When I first went to my RD a year or so ago, he noted my B12 was on the low end of normal, so I got some shots and he gave me one everytime I saw him for whatever.  I haven’t seen him in quite some time, so maybe my levels have gone really low. If it’s not that, then what else could it be?  Eating doesn’t help or make it worse, so I don’t think it’s blood sugar related. This fatigue and weakness is driving me to tears.  I don’t know if you all know what I mean, but when I get too exhausted to speak, I get overwhelmed and have a good cry. Well I’m seeing my RD tomorrow, hopefully I can make it into Manhattan without too much trouble.  Hubby is driving me to the train station in Queens so I don’t have to do any walking and the train ride will be like 15 minutes, and then I take a bus that has a stop right outside of Penn Station, so no walking to the bus.  Then going back home I just take the bus back to the train and transfer usually once, then hubby will pick me up by our apt.  I don’t think I will have a problem, but I get nervous traveling alone when I’m not feeling this well. Anyway, that’s my whine.  Thanks for reading. -Sharon — "Don’t make me come down there…"                            -God

Response:

Hi everyone, This is a bit of a whine.  I am not doing good these days.  I am feeling so weak, like I want to pass out at any moment.  Right now I can barely sit in my chair in my cubicle.  It’s not like me to not work, but I am not up to doing anything, even just searching the web for free stock photos for some webpages I’m putting up. It’s got me really worried, I can’t really function like this.  I am afraid that I’m gonna end up a mush on my couch again like last summer.   I can’t afford to end up like that again.  I am graduating this spring, and I have a job that is going to get me hired full-time after I graduate.  If I can’t hold this job, how the heck am I going to get a real job when I graduate?  Who would hire me, and I would feel guilty applying knowing I am not what they want at all (dependable). I am a bit sad right now, thinking of these things.  I really like my job, and don’t want to lose it, but I’m not sure if it’s too much working and going to school.  But it could be that I’d be like this just with classes and no work. I am trying to think what would cause such weakness.  Maybe my B12 levels have gone extrememly low.  When I first went to my RD a year or so ago, he noted my B12 was on the low end of normal, so I got some shots and he gave me one everytime I saw him for whatever.  I haven’t seen him in quite some time, so maybe my levels have gone really low. If it’s not that, then what else could it be?  Eating doesn’t help or make it worse, so I don’t think it’s blood sugar related. This fatigue and weakness is driving me to tears.  I don’t know if you all know what I mean, but when I get too exhausted to speak, I get overwhelmed and have a good cry. Well I’m seeing my RD tomorrow, hopefully I can make it into Manhattan without too much trouble.  Hubby is driving me to the train station in Queens so I don’t have to do any walking and the train ride will be like 15 minutes, and then I take a bus that has a stop right outside of Penn Station, so no walking to the bus.  Then going back home I just take the bus back to the train and transfer usually once, then hubby will pick me up by our apt.  I don’t think I will have a problem, but I get nervous traveling alone when I’m not feeling this well. Anyway, that’s my whine.  Thanks for reading. -Sharon — "Don’t make me come down there…"                            -God

Response:

Sharon, I was on Ultracet…They gave me a little energy. I couldn’t take them after about 6pm, or I would be awake all night…. So then I got darvocet. About a month ago, I was in such a flare, that I called my doctor and told him the Darvocet was not working. He called in a prescription of Lortab…I can’t believe how easy that was. My old Rheumy wouldn’t give me anything for pain…She would just blame me for doing something to cause me to be in a flare…. I hope they make you feel better. Hugs Cindy "Sharon" <noway…@hotmail.com

wrote in message

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Cindy wrote: Hugs Sharon. I know that it can be overwhelming at times. I know that sometimes it is

all

I can do to get up and make my way through the house. Then I get really depressed and cry. Then I feel really stupid about it all when I am

having

good days…All of this for no apparent reason at all….Maybe your

Rheumy

can help you tomorrow. Good luck on going alone…It seems all too scarey for me. I don’t know

if I

could live in the city like that.  Id probably never leave home. A pair of Angel Wings to help you through tomorrow. Hugs Cindy <snip Hi Cindy, Fortunately I don’t live in the city, I am a suburban gal.  :)  But to get to the good docs, I have to go where they are, and that’s Manhattan.   It’s ok though, because everytime I go I leave that much more happy. He wants to up my Quinacrine to 150mg, and he gave me Ultracet for my pain along with Soma, and he might put me on Synthyroid (if my thyroid blood test is borderline,) or Provigil if my thyroid leves are fine.  I am praying for synthyroid so I can maybe lose some of this weight.  I kind of always wanted to try the stuff because I feel that I have a problem with my thyroid.  I have so many of the symptoms, it seems silly not to try it. -Sharon — "Don’t make me come down there…"                            -God

Response:

- Hide quoted text — Show quoted text -Marg Watson wrote:

(((Sharon))) I hope the doc can give you some answers today.  Also, are the lesions better?  You are to update us on that after the doc visit too, ‘member? : ) I’m with Lynne in that it could just be the Lupus. You’ve taken on a job *&* college & that’s bound to make your body do a check.  No matter what’s causing it, we have to slow down when our bod’s tell us to. Since you do know your boss kinda personally, or at least the one that hired you, could you talk to him?  Let him know that you *want* to work, but things aren’t happening for you right now.   Since you do a lot of searches for the web pages, would he allow you to do this at home or on the weekends to make up for your bad days?  Not to tell you to skip work all together, but if your lagging on Thurs & Fri, maybe you could go to him & let him know that you weren’t feeling well & you’ll work on searches over the weekend at home. Will be waiting for an update.  Hope you feel better soon! Maggie

Thanks so much Maggie.  The visit went great!  I’ve posted what happened a bunch, but to sum up, he doesn’t know what the lesions are because I didn’t have one at the time and the picture wasn’t good enough to tell, so he wants me to go to a dermy when it happens again and to get a biopsy. He is testing my thyroid to see if it’s borderline and if it is, then I get to try synthyroid.  If it’s normal, then I get to try Provigil for energy (stimulant free energy booster.) Got a B12 shot, but still wasn’t clear on whether or not I have pernicious anemia. Is upping the Quinacrine to 150mg, but not yet. Keeping the Pred at 10mg for now, and will try to lower it soon. Will be calling him on Wednesday to find out blood test results and what’s next with the meds. Also have me Ultracet for the pain!!  :)  Was nervous about requesting that, but he had no probs with it at all.  Phew! So it was a great visit overall!  Thanks so much for all of your support.  It helps! -Sharon — "Don’t make me come down there…"                            -God

Response:

- Hide quoted text — Show quoted text -J wrote:

Sharon wrote: I am trying to think what would cause such weakness.  Maybe my B12 levels have gone extrememly low.  When I first went to my RD a year or so ago, he noted my B12 was on the low end of normal, so I got some shots and he gave me one everytime I saw him for whatever.  I haven’t seen him in quite some time, so maybe my levels have gone really low. I think me and BJ told you once a month, if not more often, if yours is chronic like BJ’s. http://www.nlm.nih.gov/medlineplus/ency/article/002403.htm http://www.nlm.nih.gov/medlineplus/ency/article/000569.htm The other thing I noticed is most of these crises seem to occur on Thursday or Friday, so perhaps you need to cut back on something earlier in the week?  For instance, Wednesday,  skip the non-necessary and go to bed earlier so you can make it through the week.?? Hugs J

The week does kill me, but there’s really nothing I can cut back on at this time.  Hubby is helping me do the food shopping on the weekends, so that will help. As for the B12 deficiency, I tried to get my doc to tell me if I have pernicious anemia, but he wasn’t really clear.  He gave me another B12 shot, but he doesn’t seem to think I need it regularly.  If the weakness persists and his current plan doesn’t help, I will ask him for a script for regular B12 injections. -Sharon — "Don’t make me come down there…"                            -God

Response:

Mair wrote:

<snip

– Hide quoted text — Show quoted text -

Yeah, and I know you heard a lot of that from *me,* because I don’t want any other person to have to go with undetected thyroid disease.  I have never gone to an endocrinologist for my thyroid stuff.  Between my rheumie, who spotted my problem clinically before even ordering any tests, and my PCP, who does a good job of doctoring, too… they pretty well got me covered. But I remember that dizziness in particular.  I had just started a job in a laboratory.. I was on my feet all day, and I kept getting this feeling like I was going to fall straight over backwards.  And that is when I was having my very first lupus panel done… and the thing that came back positive were the thyroid tests. It’s worth a shot again… those test numbers can and do change, the little buggers! Good luck to you on your journey tomorrow.

<snip

lol, he checked the levels today, and he wants me to call on Wednesday for the results.  If my levels are borderline, he’s putting me on Synthyroid, if not then Provigil.  Also I am trying Ultracet for my pain.  Very happy with the visit indeed! -Sharon — "Don’t make me come down there…"                            -God

Response:

- Hide quoted text — Show quoted text -herbwormwood wrote:

Hi, Yes, I get very weak too. I also get very tired at times and then I feel bad temmpered and I can be a bit mean. Also like you I might start crying! Almost like a very brief depressive episode! I hope I am not stating the obviuous but have you considered it may be simply due to having lupus <maybe a flare?I used to get very upset by this tiredness and feel inadequate. This was particularly bad when I was a teenager and some people around me did not understand. Now I live on my own and am not in paid employment I can fit things I have to do around my tiredness a bit more. I usually sleep at least 9 hours at night and sometimes have day naps on top of this. Also have you considered the effect of your meds? Many can cause tiredness One more thing, have you been checked for aneimia? This can cause tiredness, particularly if you are female and having periods. Its my personal opinion that low iron levels which are not clinicallly significant can cause tiredness in some people. You write that "Eating doesn’t help or make it worse, so I don’t think it’s blood sugar related." I agree it probably isnt blood sugar, but it is normal for mayny people to feel sleepy and tired often after eating, particularly in the afternoon, its called the post lunch pause!  Try eating complex carbohydrates, fruit, veg, brown rice and pasta etc, and see if you feel any better. These foods release energy more slowly and gradually so they are better for feelings of tiredness. And accept you are quite likely to feel tired after eating for an hour or so. I hope you can sort it out soon, in the mean time take it easy if you can! You say you ae graduating. I assume you have been working pretty hard at your studies. This can be very stressful and perhaps accounts for part of the tiredness. So bear that in mind. I used to sit studying in those cubicles and I had to put my head on my arms and close my eyes. I was so tired! Particularly on a boring textbook I was trying to underrstand! Dont forget the brain works best for 20 minutes at  most then it needs a break!

<snip

Lynne

<snip

<< If you can do your studies at school or college and graduate  you can probably do anything! >

LOL!  So true!  School s**ks bigtime.  Hubby said that he couldn’t get through college, but now he works at the college in the Tech department and he said it’s so much easier working than going to classes.  lol I do have anemia, B12 deficiency, but I still am trying to get out of my doc if I have pernicious anemia or not.  I also did just get my period a few days ago, so that could be why the dizziness got worse.  I was going to try to eat some iron rich foods like spinach, liver and raisins (not all at the same time  ;)  ) and see if it helps, but haven’t yet (combo of brain fog and too tired to eat.) My doc is testing my thyroid and if it’s borderline, I will get to try synthyroid.  If the thyroid isn’t the problem, then I get to try Provigil.  Hopefully one of the two will work! Yeah, I think it has to do with the UCTD flaring up, but I am hoping to get it under control so it doesn’t happen so easily.  Right now I don’t know if I can work a full-time job like this, which is not where I want to be if I can help it.  I really like my job, and don’t want to lose it if I can help it. I’ll update with how the bloods come out and which med I’m trying next. -Sharon — "Don’t make me come down there…"                            -God

Response:

Cindy wrote:

Hugs Sharon. I know that it can be overwhelming at times. I know that sometimes it is all I can do to get up and make my way through the house. Then I get really depressed and cry. Then I feel really stupid about it all when I am having good days…All of this for no apparent reason at all….Maybe your Rheumy can help you tomorrow. Good luck on going alone…It seems all too scarey for me. I don’t know if I could live in the city like that.  Id probably never leave home. A pair of Angel Wings to help you through tomorrow. Hugs Cindy

<snip

Hi Cindy, Fortunately I don’t live in the city, I am a suburban gal.  :)  But to get to the good docs, I have to go where they are, and that’s Manhattan.   It’s ok though, because everytime I go I leave that much more happy. He wants to up my Quinacrine to 150mg, and he gave me Ultracet for my pain along with Soma, and he might put me on Synthyroid (if my thyroid blood test is borderline,) or Provigil if my thyroid leves are fine.  I am praying for synthyroid so I can maybe lose some of this weight.  I kind of always wanted to try the stuff because I feel that I have a problem with my thyroid.  I have so many of the symptoms, it seems silly not to try it. -Sharon — "Don’t make me come down there…"                            -God

Response:

(((Sharon))) I hope the doc can give you some answers today.  Also, are the lesions better?  You are to update us on that after the doc visit too, ‘member? : ) I’m with Lynne in that it could just be the Lupus. You’ve taken on a job *&* college & that’s bound to make your body do a check.  No matter what’s causing it, we have to slow down when our bod’s tell us to. Since you do know your boss kinda personally, or at least the one that hired you, could you talk to him?  Let him know that you *want* to work, but things aren’t happening for you right now.   Since you do a lot of searches for the web pages, would he allow you to do this at home or on the weekends to make up for your bad days?  Not to tell you to skip work all together, but if your lagging on Thurs & Fri, maybe you could go to him & let him know that you weren’t feeling well & you’ll work on searches over the weekend at home. Will be waiting for an update.  Hope you feel better soon! Maggie

Response:

Sharon wrote:

I am trying to think what would cause such weakness.  Maybe my B12 levels have gone extrememly low.  When I first went to my RD a year or so ago, he noted my B12 was on the low end of normal, so I got some shots and he gave me one everytime I saw him for whatever.  I haven’t seen him in quite some time, so maybe my levels have gone really low.

I think me and BJ told you once a month, if not more often, if yours is chronic like BJ’s. http://www.nlm.nih.gov/medlineplus/ency/article/002403.htm http://www.nlm.nih.gov/medlineplus/ency/article/000569.htm The other thing I noticed is most of these crises seem to occur on Thursday or Friday, so perhaps you need to cut back on something earlier in the week?  For instance, Wednesday,  skip the non-necessary and go to bed earlier so you can make it through the week.?? Hugs J

Response:

Mary Ann wrote:

Hi Sharon,  Sorry to hear you’re having more problems.  Does the B-12 injection seem to help you?  Have you been tested concerning the intrinsic factor?  Possibly you need a continual supply of B-12 in order to keep operating!  If you are seeing your doctor soon, perhaps that intrinsic factor test could be added.  It diagnoses pernicious anemia (which I have).  I give my own injections now.  I need them weekly at this point.  I understand that if you get built up, you usually can go to monthly injections.  Thus far, it hasn’t happened for me.  There are so many things that can "pop up" it seems impossible to keep up with them.  Good luck.  Mary Ann  

Hi Mary Ann, I asked my doc today about having Pernicious anemia, but he never said if I do or not.  He said my levels are low, but that I don’t have any antibodies, so I guess that means I don’t have pernicious anemia?? Unfortunately I didn’t read this before my appt, so I didn’t get a chance to ask about the intrisic factor, so I’ll save it for next time, esp if this continues. He did say that he will put me either on sinthyroid or provigil for my weakness, depending on if my thyroid levels are borderline or not.  If borderline, he’ll try the sinthyroid.  If they are fine, than Provigil.   He also gave me Ultracet for my pain, so maybe I’ll sleep better with that and the Soma.  Lala land for me!  lol Thanks for the support! -Sharon — "Don’t make me come down there…"                            -God

Response:

"Sharon" <noway…@hotmail.com

wrote in message

news:bm54t7$hgn74$1@ID-163463.news.uni-berlin.de…

I know I’ve had the TSH done, and mine’s normal, but I’ve read so many things that have said that a normal TSH means nothing, because there are so many other tests that need to be done to determine if there’s an endocrine problem, a full thyroid panel should be done, and even if those tests are normal, I could be one of the many who feel better with my numbers a little out of the ‘norm.’

Yeah, and I know you heard a lot of that from *me,* because I don’t want any other person to have to go with undetected thyroid disease.  I have never gone to an endocrinologist for my thyroid stuff.  Between my rheumie, who spotted my problem clinically before even ordering any tests, and my PCP, who does a good job of doctoring, too… they pretty well got me covered. But I remember that dizziness in particular.  I had just started a job in a laboratory.. I was on my feet all day, and I kept getting this feeling like I was going to fall straight over backwards.  And that is when I was having my very first lupus panel done… and the thing that came back positive were the thyroid tests. It’s worth a shot again… those test numbers can and do change, the little buggers! Good luck to you on your journey tomorrow. – Hide quoted text — Show quoted text -

Mair wrote: Sharon, Does he ever check your thyroid?  TSH, anti thyroid antibodies, and anti thyroglobulin?  One is called antithyroid peroxidase, but I forget which one.  A misbhavin’ thyroid gland has made me feel weak, dizzy,

depressed.  I

mean so week I will just lie there for days… Mair <snip Hi Mair, I asked my internist who referred me to my current RD if he thinks I should see an endocrinologist, and he said no, so I never went because I was sick of seeing doctors after a full summer of doctorama, but now I want to go if my RD can’t find anything else wrong with me and this weakness persists. -Sharon — "Don’t make me come down there…"                            -God

Response:

I’m sorry Sharon.  I hope the RD gets things sorted out tomorrow.  As for work after school, please try not to worry that far ahead.  I know that’s easy for me to say, but you need to think about now.  Sounds like you have a good husband.  Good for you! – Hide quoted text — Show quoted text -Sharon <noway…@hotmail.com

wrote in message <news:bm4m8u$id4ri$1@ID-163463.news.uni-berlin.de… Hi everyone, This is a bit of a whine.  I am not doing good these days.  I am feeling so weak, like I want to pass out at any moment.  Right now I can barely sit in my chair in my cubicle.  It’s not like me to not work, but I am not up to doing anything, even just searching the web for free stock photos for some webpages I’m putting up. It’s got me really worried, I can’t really function like this.  I am afraid that I’m gonna end up a mush on my couch again like last summer.   I can’t afford to end up like that again.  I am graduating this spring, and I have a job that is going to get me hired full-time after I graduate.  If I can’t hold this job, how the heck am I going to get a real job when I graduate?  Who would hire me, and I would feel guilty applying knowing I am not what they want at all (dependable). I am a bit sad right now, thinking of these things.  I really like my job, and don’t want to lose it, but I’m not sure if it’s too much working and going to school.  But it could be that I’d be like this just with classes and no work. I am trying to think what would cause such weakness.  Maybe my B12 levels have gone extrememly low.  When I first went to my RD a year or so ago, he noted my B12 was on the low end of normal, so I got some shots and he gave me one everytime I saw him for whatever.  I haven’t seen him in quite some time, so maybe my levels have gone really low. If it’s not that, then what else could it be?  Eating doesn’t help or make it worse, so I don’t think it’s blood sugar related. This fatigue and weakness is driving me to tears.  I don’t know if you all know what I mean, but when I get too exhausted to speak, I get overwhelmed and have a good cry. Well I’m seeing my RD tomorrow, hopefully I can make it into Manhattan without too much trouble.  Hubby is driving me to the train station in Queens so I don’t have to do any walking and the train ride will be like 15 minutes, and then I take a bus that has a stop right outside of Penn Station, so no walking to the bus.  Then going back home I just take the bus back to the train and transfer usually once, then hubby will pick me up by our apt.  I don’t think I will have a problem, but I get nervous traveling alone when I’m not feeling this well. Anyway, that’s my whine.  Thanks for reading. -Sharon

Response:

Hugs Sharon. I know that it can be overwhelming at times. I know that sometimes it is all I can do to get up and make my way through the house. Then I get really depressed and cry. Then I feel really stupid about it all when I am having good days…All of this for no apparent reason at all….Maybe your Rheumy can help you tomorrow. Good luck on going alone…It seems all too scarey for me. I don’t know if I could live in the city like that.  Id probably never leave home. A pair of Angel Wings to help you through tomorrow. Hugs Cindy "Sharon" <noway…@hotmail.com

wrote in message

news:bm4m8u$id4ri$1@ID-163463.news.uni-berlin.de… – Hide quoted text — Show quoted text -

Hi everyone, This is a bit of a whine.  I am not doing good these days.  I am feeling so weak, like I want to pass out at any moment.  Right now I can barely sit in my chair in my cubicle.  It’s not like me to not work, but I am not up to doing anything, even just searching the web for free stock photos for some webpages I’m putting up. It’s got me really worried, I can’t really function like this.  I am afraid that I’m gonna end up a mush on my couch again like last summer.   I can’t afford to end up like that again.  I am graduating this spring, and I have a job that is going to get me hired full-time after I graduate.  If I can’t hold this job, how the heck am I going to get a real job when I graduate?  Who would hire me, and I would feel guilty applying knowing I am not what they want at all (dependable). I am a bit sad right now, thinking of these things.  I really like my job, and don’t want to lose it, but I’m not sure if it’s too much working and going to school.  But it could be that I’d be like this just with classes and no work. I am trying to think what would cause such weakness.  Maybe my B12 levels have gone extrememly low.  When I first went to my RD a year or so ago, he noted my B12 was on the low end of normal, so I got some shots and he gave me one everytime I saw him for whatever.  I haven’t seen him in quite some time, so maybe my levels have gone really low. If it’s not that, then what else could it be?  Eating doesn’t help or make it worse, so I don’t think it’s blood sugar related. This fatigue and weakness is driving me to tears.  I don’t know if you all know what I mean, but when I get too exhausted to speak, I get overwhelmed and have a good cry. Well I’m seeing my RD tomorrow, hopefully I can make it into Manhattan without too much trouble.  Hubby is driving me to the train station in Queens so I don’t have to do any walking and the train ride will be like 15 minutes, and then I take a bus that has a stop right outside of Penn Station, so no walking to the bus.  Then going back home I just take the bus back to the train and transfer usually once, then hubby will pick me up by our apt.  I don’t think I will have a problem, but I get nervous traveling alone when I’m not feeling this well. Anyway, that’s my whine.  Thanks for reading. -Sharon — "Don’t make me come down there…"                            -God

Response:

Hi Sharon,  Sorry to hear you’re having more problems.  Does the B-12 injection seem to help you?  Have you been tested concerning the intrinsic factor?  Possibly you need a continual supply of B-12 in order to keep operating!  If you are seeing your doctor soon, perhaps that intrinsic factor test could be added.  It diagnoses pernicious anemia (which I have).  I give my own injections now.  I need them weekly at this point.  I understand that if you get built up, you usually can go to monthly injections.  Thus far, it hasn’t happened for me.  There are so many things that can "pop up" it seems impossible to keep up with them.  Good luck.  Mary Ann  

Response:

Sharon, Does he ever check your thyroid?  TSH, anti thyroid antibodies, and anti thyroglobulin?  One is called antithyroid peroxidase, but I forget which one.  A misbhavin’ thyroid gland has made me feel weak, dizzy, depressed.  I mean so week I will just lie there for days… Mair "Sharon" <noway…@hotmail.com

wrote in message

news:bm4m8u$id4ri$1@ID-163463.news.uni-berlin.de… – Hide quoted text — Show quoted text -

Hi everyone, This is a bit of a whine.  I am not doing good these days.  I am feeling so weak, like I want to pass out at any moment.  Right now I can barely sit in my chair in my cubicle.  It’s not like me to not work, but I am not up to doing anything, even just searching the web for free stock photos for some webpages I’m putting up. It’s got me really worried, I can’t really function like this.  I am afraid that I’m gonna end up a mush on my couch again like last summer.   I can’t afford to end up like that again.  I am graduating this spring, and I have a job that is going to get me hired full-time after I graduate.  If I can’t hold this job, how the heck am I going to get a real job when I graduate?  Who would hire me, and I would feel guilty applying knowing I am not what they want at all (dependable). I am a bit sad right now, thinking of these things.  I really like my job, and don’t want to lose it, but I’m not sure if it’s too much working and going to school.  But it could be that I’d be like this just with classes and no work. I am trying to think what would cause such weakness.  Maybe my B12 levels have gone extrememly low.  When I first went to my RD a year or so ago, he noted my B12 was on the low end of normal, so I got some shots and he gave me one everytime I saw him for whatever.  I haven’t seen him in quite some time, so maybe my levels have gone really low. If it’s not that, then what else could it be?  Eating doesn’t help or make it worse, so I don’t think it’s blood sugar related. This fatigue and weakness is driving me to tears.  I don’t know if you all know what I mean, but when I get too exhausted to speak, I get overwhelmed and have a good cry. Well I’m seeing my RD tomorrow, hopefully I can make it into Manhattan without too much trouble.  Hubby is driving me to the train station in Queens so I don’t have to do any walking and the train ride will be like 15 minutes, and then I take a bus that has a stop right outside of Penn Station, so no walking to the bus.  Then going back home I just take the bus back to the train and transfer usually once, then hubby will pick me up by our apt.  I don’t think I will have a problem, but I get nervous traveling alone when I’m not feeling this well. Anyway, that’s my whine.  Thanks for reading. -Sharon — "Don’t make me come down there…"                            -God

Response:

Mair wrote:

Sharon, Does he ever check your thyroid?  TSH, anti thyroid antibodies, and anti thyroglobulin?  One is called antithyroid peroxidase, but I forget which one.  A misbhavin’ thyroid gland has made me feel weak, dizzy, depressed.  I mean so week I will just lie there for days… Mair

<snip

Hi Mair, I know I’ve had the TSH done, and mine’s normal, but I’ve read so many things that have said that a normal TSH means nothing, because there are so many other tests that need to be done to determine if there’s an endocrine problem, a full thyroid panel should be done, and even if those tests are normal, I could be one of the many who feel better with my numbers a little out of the ‘norm.’ I asked my internist who referred me to my current RD if he thinks I should see an endocrinologist, and he said no, so I never went because I was sick of seeing doctors after a full summer of doctorama, but now I want to go if my RD can’t find anything else wrong with me and this weakness persists. -Sharon — "Don’t make me come down there…"                            -God

Response:

In article <bm4m8u$id4r…@ID-163463.news.uni-berlin.de

, Sharon

<noway…@hotmail.com

wrote:

Hi Sharon,  We know how you feel and it is really the pits.  You sign your name and then add  ’Don’t make me come down there,  God’  Even though it reminds me of some threats from my Parents when I was being outrageous did you ever visualize that some fluffy angels or some weight-lifter types could walk along beside you during those walks alone in the city?  Sending you most loving thoughts and my golden retrievers to walk with you [ in real life we have a 5 pound pomeranian but she wouldn’t inspire courage hugs   ruth – Hide quoted text — Show quoted text -

Hi everyone, This is a bit of a whine.  I am not doing good these days.  I am feeling so weak, like I want to pass out at any moment.  Right now I can barely sit in my chair in my cubicle.  It’s not like me to not work, but I am not up to doing anything, even just searching the web for free stock photos for some webpages I’m putting up. It’s got me really worried, I can’t really function like this.  I am afraid that I’m gonna end up a mush on my couch again like last summer.   I can’t afford to end up like that again.  I am graduating this spring, and I have a job that is going to get me hired full-time after I graduate.  If I can’t hold this job, how the heck am I going to get a real job when I graduate?  Who would hire me, and I would feel guilty applying knowing I am not what they want at all (dependable). I am a bit sad right now, thinking of these things.  I really like my job, and don’t want to lose it, but I’m not sure if it’s too much working and going to school.  But it could be that I’d be like this just with classes and no work. I am trying to think what would cause such weakness.  Maybe my B12 levels have gone extrememly low.  When I first went to my RD a year or so ago, he noted my B12 was on the low end of normal, so I got some shots and he gave me one everytime I saw him for whatever.  I haven’t seen him in quite some time, so maybe my levels have gone really low. If it’s not that, then what else could it be?  Eating doesn’t help or make it worse, so I don’t think it’s blood sugar related. This fatigue and weakness is driving me to tears.  I don’t know if you all know what I mean, but when I get too exhausted to speak, I get overwhelmed and have a good cry. Well I’m seeing my RD tomorrow, hopefully I can make it into Manhattan without too much trouble.  Hubby is driving me to the train station in Queens so I don’t have to do any walking and the train ride will be like 15 minutes, and then I take a bus that has a stop right outside of Penn Station, so no walking to the bus.  Then going back home I just take the bus back to the train and transfer usually once, then hubby will pick me up by our apt.  I don’t think I will have a problem, but I get nervous traveling alone when I’m not feeling this well. Anyway, that’s my whine.  Thanks for reading. -Sharon — "Don’t make me come down there…"                            -God

Response:

Wesley wrote:

I’m sorry Sharon.  I hope the RD gets things sorted out tomorrow.  As for work after school, please try not to worry that far ahead.  I know that’s easy for me to say, but you need to think about now.  Sounds like you have a good husband.  Good for you!

<snip

Thanks Wes!  Hubby is indeed a goodie.  Today’s doc visit went great! He’s such a great RD, I am so lucky to have found him.  He tells me everytime I see him that my attitude makes his job so easy.  What a nice thing to say to someone who is down.   And he is so willing to treat my symptoms, not my lab tests, which is what I’ve been searching for my whole life. Thanks everyone for the support.  It worked! -Sharon — "Don’t make me come down there…"                            -God

Response:

Hi Stephanie, I had this test done a couple of times after coming off high levels of prednisone. It was easy and my levels came back normal indicating that my adrenals were functioning well. Good luck to you. BJ-Sk. Canada "Steph571" <steph…@aol.com

wrote in message

news:20031018034007.13842.00001025@mb-m29.aol.com… – Hide quoted text — Show quoted text -

Hi….I saw that you posted about the adrenal stimulation test.  Is that

the

one where they give you the injection and see how your adrenal gland

reacts

with a rise in cortisol? I am having this done in a few weeks and was wondering if anyone had

experience

with adrenal problems/cortisol levels. Thank you, Stephanie

Response:

Hi….I saw that you posted about the adrenal stimulation test.  Is that the one where they give you the injection and see how your adrenal gland reacts with a rise in cortisol? I am having this done in a few weeks and was wondering if anyone had experience with adrenal problems/cortisol levels. Thank you, Stephanie

Response:

Wilson's Thyroid Syndrome?

Question:

Ah my old standby the DHE shots.  They work wonders in certain situations. But as you say…you get a tad sore at times. Michelle

Once again this group proves itself so very valuable, thanks for your help!  As an aside, I’m doing pretty well after doing a three day course of DHE-45 injections 3X a day.  Its painful, but it seems to be paying off. Thanks again. Jason

– Hide quoted text — Show quoted text – http://www.quackwatch.org/04ConsumerEducation/News/wilson.html Found this as well. Joy thanks for finding and posting this Joy I also pegged it to be a scam…but hadn’t done the legwork yet sounds like a pretty profitable "diagnosis"…. the TSH is primarily used as a screening test ,,esp if someone is already on Thyroid replacement…then the T3 T4 are done on a regular basis…hypo and hyper thryoid functions have totally different and opposite signs and symptoms..tho too much supplement can mask a hypo into a hyper.. glad you caught this.. hawki hawki

Response:

Jason, I looked it up on Google and just examined the first page I found for a moment…but looks like same old low thyroid, with a Dr. Wilson’s name attached; i.e., scam alert. That said, if you have any symptoms of low thyroid, you’ll do well to have three tests: TSH, free T4, and free T3. This condition can be corrected with cheap thyroid hormones, although it may take a while to see the results. And YES, you may experience a definite improvement in your migraines. I sure did. Good luck –Julianne

Response:

http://www.quackwatch.org/04ConsumerEducation/News/wilson.html Found this as well. Joy

– Hide quoted text — Show quoted text – Jason, I looked it up on Google and just examined the first page I found for a moment…but looks like same old low thyroid, with a Dr. Wilson’s name attached; i.e., scam alert. That said, if you have any symptoms of low thyroid, you’ll do well to have three tests: TSH, free T4, and free T3. This condition can be corrected with cheap thyroid hormones, although it may take a while to see the results. And YES, you may experience a definite improvement in your migraines. I sure did. Good luck –Julianne

Response:

Oh, that’s hilarious!  Explains why I couldn’t find it on the major sites! Ginnie – Hide quoted text — Show quoted text – http://www.quackwatch.org/04ConsumerEducation/News/wilson.html Found this as well. Joy Jason, I looked it up on Google and just examined the first page I found for a moment…but looks like same old low thyroid, with a Dr. Wilson’s name attached; i.e., scam alert. That said, if you have any symptoms of low thyroid, you’ll do well to have three tests: TSH, free T4, and free T3. This condition can be corrected with cheap thyroid hormones, although it may take a while to see the results. And YES, you may experience a definite improvement in your migraines. I sure did. Good luck –Julianne

Response:

http://www.quackwatch.org/04ConsumerEducation/News/wilson.html Found this as well. Joy

thanks for finding and posting this Joy I also pegged it to be a scam…but hadn’t done the legwork yet sounds like a pretty profitable "diagnosis"…. the TSH is primarily used as a screening test ,,esp if someone is already on Thyroid replacement…then the T3 T4 are done on a regular basis…hypo and hyper thryoid functions have totally different and opposite signs and symptoms..tho too much supplement can mask a hypo into a hyper.. glad you caught this.. hawki hawki

Response:

Once again this group proves itself so very valuable, thanks for your help!  As an aside, I’m doing pretty well after doing a three day course of DHE-45 injections 3X a day.  Its painful, but it seems to be paying off. Thanks again. Jason – Hide quoted text — Show quoted text – http://www.quackwatch.org/04ConsumerEducation/News/wilson.html Found this as well. Joy thanks for finding and posting this Joy I also pegged it to be a scam…but hadn’t done the legwork yet sounds like a pretty profitable "diagnosis"…. the TSH is primarily used as a screening test ,,esp if someone is already on Thyroid replacement…then the T3 T4 are done on a regular basis…hypo and hyper thryoid functions have totally different and opposite signs and symptoms..tho too much supplement can mask a hypo into a hyper.. glad you caught this.. hawki hawki

Response:

I can’t say much more than I’ve heard of it too, but don’t have anything additional. Michelle

– Hide quoted text — Show quoted text – At great risk of sounding like some of the other losers trying to sell something to this group, has anyone ever heard of Wilson’s Thyroid Syndrome?  My nutritionist mentioned it to me as a possible link to my migraines.  Just wondering if anyone has any experience with it?  For more info., see http://www.wilsonssyndrome.com/ Thanks in advance for any info.  Just searching and searching for a clue to these migraines… Jason

Response:

Hi, Jason, Thanks for bringing thyroid issues up. Meant to respond to you earlier, but my curiosity about your question led me on a wild goose chase for concrete information.  I’m interested in thyroid questions, too, because I had one major thyroid problem in the past, and kind of a 90-pound weakling of a thyroid ever since. I can’t seem to find anything about Wilson’s Thyroid Syndrome that isn’t directly related to Dr. Wilson’s work and his book.  Like, it doesn’t seem to exist unless it’s something or someone trying to sell me his book and his manual.  And I didn’t find it on some mainstream Thyroid professional sites, but then, it could be that I missed it.  Doesn’t mean AT ALL that it doesn’t exist – I just couldn’t find it, independently of what Dr. Wilson has to say about it. I pinged Hawki, ’cause chances are, she’s got medical journals and books at hand that might have it in there. Whatever Wilson’s is, it seems to be easily treated and fixed! One of the things I’m finding from friends’ experiences is that so many doctors are relying on a single thyroid blood test to acertain normal (or not) function.  But several friends have had some maddening thyroid problems not detected or fixed, based on the standard blood test.  When the docs are urged to go back and retest T3 and T4 function seperately, THEN they find the problems that Synthroid alone won’t correct. For instance, (and I forget the exact details here, so don’t quote me!) one friend doesn’t naturally convert enough T3 into T4 (or the other way around), and it wasn’t until her doc used older, more expensive tests to measure each seperately, that he found her problem.  Still a relatively simple to treat problem, but it means at least one drug that isn’t Synthroid.  And I’m about to have those same pickier tests done, because I don’t feel Synthroid alone is doing the job with me. Let’s see what anyone else thinks… Ginnie – Hide quoted text — Show quoted text – At great risk of sounding like some of the other losers trying to sell something to this group, has anyone ever heard of Wilson’s Thyroid Syndrome?  My nutritionist mentioned it to me as a possible link to my migraines.  Just wondering if anyone has any experience with it?  For more info., see http://www.wilsonssyndrome.com/ Thanks in advance for any info.  Just searching and searching for a clue to these migraines… Jason

Response:

At great risk of sounding like some of the other losers trying to sell something to this group, has anyone ever heard of Wilson’s Thyroid Syndrome?  My nutritionist mentioned it to me as a possible link to my migraines.  Just wondering if anyone has any experience with it?  For more info., see http://www.wilsonssyndrome.com/ Thanks in advance for any info.  Just searching and searching for a clue to these migraines… Jason

Response:

Vertigo and Migraines

Question:

Hej! I am curious to find out if anyone here experiences vertigo with their migraines?

I used to have some related symptoms.  They turned out to be related to my seizure problems — I had them even when I was NOT having migraines.  A lot of the migraine preventing medications that were prescribed for me, which have side effects of lowering the seizure threshold in people with epilepsy, made me complain of "dizziness." This baffled my doctors.  Anyhow, I think your physical problem is very different, and I didn’t hit "reply" because I know about vertigo.  I was referred to a neurologist for the headaches and have found the experience entirely frustrating. The first report written was 3 pages, and every paragraph had an inaccuracy, which I addressed with him at the next session; to which he said I was ‘too literal’.

You should not be treated by this neurologist.  Just forget it.  He doesn’t listen.  He doesn’t respect you.  He doesn’t pay attention to your symptoms.  There’s no way to get decent treatment from someone like that, except by dumb luck.  You’ll do better with a good general practioner. MAYBE you can get effective treatment from your ENT.  Based on your original post, that seems to be a reasonably good doctor.  But a reasonably good ENT specialist could perceive any kind of problem in the body as being related to your ears…even if something else is really going on. He is now saying that the entire past year has been a ‘migrainous event’, and doesn’t see why I am taking the serc medication, even though the last attack I had came when I had missed my morning medication.  Before that, I had gone a month and a half without an attack, and was thought to be in remission.[....] The most recent report was like reading about someone else. He didn’t take any notes at the time, so I quests he was drawing on memory when it came to dictating the report. As to going to another neuro, well I would, but not is he the top man in the area (supposedly) he is the only man.

Do you have a good primary care doctor?  I don’t mean someone who can write referrals for your insurance company…I mean someone who keeps track of your general health, and advocates for you with the rest of the medical system.  If not, you should look for one.  With chronic daily headache, you really need someone *good.*  Professional reputation is less important for this than treating you with respect, and sincerely wanting to control your symptoms.  If you have trouble judging that sort of thing when you meet a new doctor (especially when your head is bothering you), it’s perfectly ok to bring a friend or relative with you. Also, what do you mean by "in the area?"  How isolated are you?  Some people live in a small town with a few dozen doctors, 3 neurologists (of which 1 specializes in children and another in stroke recovery)…but they can drive 2 hours to a larger city, where there are more options.  It would be too far to go for a monthly office visit, but might be worth it for an occasional consultation. Best wishes, Adrian

Response:

Hej! I am curious to find out if anyone here experiences vertigo with their migraines?

I’m one, pretty much non-stop migraine with vertigo for the past 5 years.  Haven’t found a cure yet, but for me taking thyroid hormone (Synthroid) helps reduce the severity of the vertigo and motion sickness.  So does Prednisolone.   You’ll have a tough time finding a doctor to try those meds if your thyroid blood test results are normal, as were mine.  Doctors still don’t know why those two meds help me, which is making it difficult to figure out what other meds might help even more. Here’s the best description I’ve found on the Web.  This describes me perfectly: http://www.tchain.com/otoneurology/disorders/central/migraine/mav.html – Hide quoted text — Show quoted text – I have done the migraine ‘thing’ for years, since I was about 6 (now 38), so they are what I call my ‘familiar’, although they come in different types, the normal ones, and the neck ones, which translates into basilar artery migraine or brain stem migraine ( I understand that basilar artery migraine can have associated vertigo, but I haven’t experienced it) . I also have chronic daily headaches that run in phases. They are all very different and quite distinct from one another. Just over a year ago, I had an attack that at the time was devastating. Knocked me off my feet, literally, my balance was gone, I had screaming tinnitus of the cicada kind, rotational vertigo, dizziness, nausea and vomiting.  The attack lasted over 6 hours. Well, the attacks kept happening, and I saw an ENT who diagnosed Meneires Syndrome, and specifically endolymphatic hydrops. I was having 3 attacks a week for about 9 months, and found stemitil injections helped the nausea and the vertigo.  I was referred to a neurologist for the headaches and have found the experience entirely frustrating. The first report written was 3 pages, and every paragraph had an inaccuracy, which I addressed with him at the next session; to which he said I was ‘too literal’. He is now saying that the entire past year has been a ‘migrainous event’, and doesn’t see why I am taking the serc medication, even though the last attack I had came when I had missed my morning medication.  Before that, I had gone a month and a half without an attack, and was thought to be in remission. So back to the vertigo question, because I have never had the extreme rotational vertigo that I get with the attacks at anytime that I have had any type of migraine or headache. The most recent report was like reading about someone else. He didn’t take any notes at the time, so I quests he was drawing on memory when it came to dictating the report. As to going to another neuro, well I would, but not is he the top man in the area (supposedly) he is the only man. Thanks for your remarks, I am most interested. Curiositas

Response:

Minor corrections from a closet perfectionist! Hej! I am curious to find out if anyone here experiences vertigo with their migraines? I have done the migraine ‘thing’ for years, since I was about 6 (now 38), so they are what I call my ‘familiar’, although they come in different types, the normal ones, and the neck ones, which translates into basilar artery migraine or brain stem migraine ( I understand that basilar artery migraine can have associated vertigo, but I haven’t experienced it) . I also have chronic daily headaches that run in phases. They are all very different and quite distinct from one another. Just over a year ago, I had an attack that at the time was devastating. Knocked me off my feet, literally, my balance was gone, I had screaming tinnitus of the cicada kind, rotational vertigo, dizziness, nausea and vomiting.  The attack lasted over 6 hours. Well, the attacks kept happening, and I saw an ENT who diagnosed Meneires Syndrome, and specifically endolymphatic hydrops. I was having 3 attacks a week for about 9 months, and found stemitil injections helped the nausea and the vertigo.  I was referred to a neurologist for the headaches and have found the experience entirely frustrating. The first report written was 3 pages, and every paragraph had an inaccuracy, which I addressed with him at the next session; to which he said I was ‘too literal’. He is now saying that the entire past year has been a ‘migrainous event’, and doesn’t see why I am taking the serc medication, even though the last attack I had came when I had missed my morning medication.  Before that, I had gone a month and a half without an attack, and was thought to be in remission. So back to the vertigo question, because I have never had the extreme rotational vertigo that I get with the attacks at anytime that I have had any type of migraine or headache. The most recent report was like reading about someone else. He didn’t take any notes at the time, so I guess he was drawing on memory when it came to dictating the report. As to going to another neuro, well I would, but not only is he the top man in the area (supposedly) he is the only man. The only difference I experience now with my migraines, is that, since that first attack, my ears are always involved, in that they ache in harmony to whatever kind of head I have where they never did before. Thanks for your remarks, I am most interested. Curiositas

Response:

Hej! I am curious to find out if anyone here experiences vertigo with their migraines? I have done the migraine ‘thing’ for years, since I was about 6 (now 38), so they are what I call my ‘familiar’, although they come in different types, the normal ones, and the neck ones, which translates into basilar artery migraine or brain stem migraine ( I understand that basilar artery migraine can have associated vertigo, but I haven’t experienced it) . I also have chronic daily headaches that run in phases. They are all very different and quite distinct from one another. Just over a year ago, I had an attack that at the time was devastating. Knocked me off my feet, literally, my balance was gone, I had screaming tinnitus of the cicada kind, rotational vertigo, dizziness, nausea and vomiting.  The attack lasted over 6 hours. Well, the attacks kept happening, and I saw an ENT who diagnosed Meneires Syndrome, and specifically endolymphatic hydrops. I was having 3 attacks a week for about 9 months, and found stemitil injections helped the nausea and the vertigo.  I was referred to a neurologist for the headaches and have found the experience entirely frustrating. The first report written was 3 pages, and every paragraph had an inaccuracy, which I addressed with him at the next session; to which he said I was ‘too literal’. He is now saying that the entire past year has been a ‘migrainous event’, and doesn’t see why I am taking the serc medication, even though the last attack I had came when I had missed my morning medication.  Before that, I had gone a month and a half without an attack, and was thought to be in remission. So back to the vertigo question, because I have never had the extreme rotational vertigo that I get with the attacks at anytime that I have had any type of migraine or headache. The most recent report was like reading about someone else. He didn’t take any notes at the time, so I quests he was drawing on memory when it came to dictating the report. As to going to another neuro, well I would, but not is he the top man in the area (supposedly) he is the only man. Thanks for your remarks, I am most interested. Curiositas

Response:

I am curious to find out if anyone here experiences vertigo with their migraines?

large snip.. Ronnie’s son has Meuniere’s and I have bookmarked some links which I can send if you wish. Kadee

Thanks for the offer Kadee, but I spent a lot of time at the beginning of the attacks researching them, and found an excellent support group. In the area of Meniere’s I am confident in the diagnosis. It’s just the frustration of being told it may be something else, particularly when, in reading of the menier’s it is like reading about myself. To me, the two, meniers and migraine are quite distinct from one another. Interesting to hear about your experiences with the vertigo and migraine together. Thanks

Response:

Hej! I am curious to find out if anyone here experiences vertigo with their

migraines? snip Here’s the best description I’ve found on the Web.  This describes me perfectly: http://www.tchain.com/otoneurology/disorders/central/migraine/mav.html

Thanks very much for the link Steve, most enlightening, but it doesn’t descibe me! Where as the menieres one does.  Now though, I have an idea where the neuro is coming from. I have come to the conclusion that he hears what he expects to hear and disregards the rest. So it goes.

Response:

– Hide quoted text — Show quoted text – Hej! I am curious to find out if anyone here experiences vertigo with their migraines? I used to have some related symptoms.  They turned out to be related to my seizure problems — I had them even when I was NOT having migraines.  A lot of the migraine preventing medications that were prescribed for me, which have side effects of lowering the seizure threshold in people with epilepsy, made me complain of "dizziness." This baffled my doctors.  Anyhow, I think your physical problem is very different, and I didn’t hit "reply" because I know about vertigo.  I was referred to a neurologist for the headaches and have found the experience entirely frustrating.

snip You should not be treated by this neurologist.  Just forget it.  He doesn’t listen.  He doesn’t respect you.  He doesn’t pay attention to your symptoms.  There’s no way to get decent treatment from someone like that, except by dumb luck.  You’ll do better with a good general practioner.

I agree with you there Adrian, but I am not having better luck finding a suitable GP. GP’s are zoned here, and I don’t live in the area of the GP of choice, and the GP’s I would choose have closed their books to new patients because there is a chronic lack of GP’s. Catch 22 really. MAYBE you can get effective treatment from your ENT.  Based on your original post, that seems to be a reasonably good doctor.  But a reasonably good ENT specialist could perceive any kind of problem in the body as being related to your ears…even if something else is really going on.

ENT offered surgery which seemed invasive and unsuitable given that both ears are affected. Basically cutting the balance nerve in one ear. snip snip Also, what do you mean by "in the area?"  How isolated are you?  Some people live in a small town with a few dozen doctors, 3 neurologists (of which 1 specializes in children and another in stroke recovery)…but they can drive 2 hours to a larger city, where there are more options.  It would be too far to go for a monthly office visit, but might be worth it for an occasional consultation.

I live in New Zealand, top of the South Island. Options to go further afield are stymied presently in so far as I am not comfortable being driven because of the vertigo, and likewise found flying to be an absolute nightmare. Best wishes, Adrian

Thank you for you comments, Adrian, much appreciated.

Response:

I am curious to find out if anyone here experiences vertigo with their migraines? I can’t remember who posted this link, but as this is the major manifestation of my migraines I kept it. http://www.emedicine.com/ent/topic727.htm Liz

Thanks Liz, an excellent link!

Response:

I am curious to find out if anyone here experiences vertigo with their migraines?

I can’t remember who posted this link, but as this is the major manifestation of my migraines I kept it. http://www.emedicine.com/ent/topic727.htm Liz

Response:

ENT offered surgery which seemed invasive and unsuitable given that both ears are affected. Basically cutting the balance nerve in one ear. Ronnie’s son, David had that done on both sides. Kadee

How has he gone with it? My ENT said that they wouldn’t do both ears, so I would be interested to hear, thanks Kadee. Curiositas

Response:

Curiositas,  If you would like to discuss Meniere’s with me since it is my son David who Kadee is talking about with the disease you can email me.  David suffered with Meniere’s starting at the age of 15 (?) and is now 40… He was told it was everything from migraines,  veritgo, etc,  etc  etc…  he wouldnt be able to get out of bed and have to crawl to the bathroom.  He would have to lay down and would vomit and not be able to get out of the pool of it.  In the past years he had first one side balance disconnected  (by moving aside the brain to get to the inner ear) and then had the other side balance inner ear killed with drugs that they injected.  If he is in a dark room he wouldnt be able to walk because his eyes are his balance.  The hearing was also disconnected but he has *faint*  hearing in his right ear with the help of a very strong hearing aid. I have been in the Meniere’s Support Group and no one has had what David has had done.  He is the  *extreme*  case.  He was mis-diagnoised for years…  He can drive and is taking over the business so there is life after Meniere’s..  He still has attacks but no where near what he went through for  *years*…  Please use my email and we can talk…. Look forward to hearing from you…  :-) Ronnie

– Hide quoted text — Show quoted text – I am curious to find out if anyone here experiences vertigo with their migraines? large snip.. Ronnie’s son has Meuniere’s and I have bookmarked some links which I can send if you wish. Kadee Thanks for the offer Kadee, but I spent a lot of time at the beginning of the attacks researching them, and found an excellent support group. In the area of Meniere’s I am confident in the diagnosis. It’s just the frustration of being told it may be something else, particularly when, in reading of the menier’s it is like reading about myself. To me, the two, meniers and migraine are quite distinct from one another. Interesting to hear about your experiences with the vertigo and migraine together. Thanks

Response:

Long time no post..

Question:

Kristin, I ‘d love to meet you !  What a great idea ! — Nathalie from Belgium 134.1/112.3/minigoal 109.1 Goal 68 Kg 295.6/247.5/minigoal 240.5/Goal 150 pounds IFFC 245.9/247.5/234

– Hide quoted text — Show quoted text – Hi Nathalie, and thanks!  It’s so nice to be missed!  :)  I will most certainly let the group know as soon as I find out.  Thanks so much for your support.. Oh, and BTW, did I tell you that I’ll be in the Netherlands with hubby this year from July 7-22?  We should most definitely try and meet up somewhere… that would be SO fun! Take care, Kristin :) Hi there, I missed you ! Good luck with the test results, let us know how it turned out. Meanwhile, hang in there sweetie :-) — Nathalie from Belgium 134.1/112.3/minigoal 109.1 Goal 68 Kg 295.6/247.5/minigoal 240.5/Goal 150 pounds IFFC 245.9/247.5/234

Response:

Wish you luck with the appt., Kristin. Let us know how it turns out. — Joy 285/244.2/150 Started WW 1/1/02

– Hide quoted text — Show quoted text – I know it’s only been a few days, but man I feel like I’ve been gone forever… Reason being.. my computer is kind of out of commission right now.. hubby thinks it needs a new motherboard so we gotta wait for it to arrive Monday hopefully.. until then I won’t be online much if at all… but surprisingly it doesn’t feel too bad.. it’s kind of a nice break. IFFC update.. 232.6 this morning.. grrr.. SSC update.. star this week.. I’m going to the doctor Monday for a thyroid blood test thingy and then I’ll get the results on Friday.. hopefully that will be the reason for my stand-still.. it’s SO frustrating.. Anyway.. sorry I can’t write to everyone.. I just had to do a major catchup.. Take care and happy losing to all! Kristin 272/232.6/172

Response:

Good luck with the DR, Lee

– Hide quoted text — Show quoted text – I know it’s only been a few days, but man I feel like I’ve been gone forever… Reason being.. my computer is kind of out of commission right now.. hubby thinks it needs a new motherboard so we gotta wait for it to arrive Monday hopefully.. until then I won’t be online much if at all… but surprisingly it doesn’t feel too bad.. it’s kind of a nice break. IFFC update.. 232.6 this morning.. grrr.. SSC update.. star this week.. I’m going to the doctor Monday for a thyroid blood test thingy and then I’ll get the results on Friday.. hopefully that will be the reason for my stand-still.. it’s SO frustrating.. Anyway.. sorry I can’t write to everyone.. I just had to do a major catchup.. Take care and happy losing to all! Kristin 272/232.6/172

Response:

Hi there, I missed you ! Good luck with the test results, let us know how it turned out. Meanwhile, hang in there sweetie :-) — Nathalie from Belgium 134.1/112.3/minigoal 109.1 Goal 68 Kg 295.6/247.5/minigoal 240.5/Goal 150 pounds IFFC 245.9/247.5/234

– Hide quoted text — Show quoted text – I know it’s only been a few days, but man I feel like I’ve been gone forever… Reason being.. my computer is kind of out of commission right now.. hubby thinks it needs a new motherboard so we gotta wait for it to arrive Monday hopefully.. until then I won’t be online much if at all… but surprisingly it doesn’t feel too bad.. it’s kind of a nice break. IFFC update.. 232.6 this morning.. grrr.. SSC update.. star this week.. I’m going to the doctor Monday for a thyroid blood test thingy and then I’ll get the results on Friday.. hopefully that will be the reason for my stand-still.. it’s SO frustrating.. Anyway.. sorry I can’t write to everyone.. I just had to do a major catchup.. Take care and happy losing to all! Kristin 272/232.6/172

Response:

Hey, thanks Suzy.. I sure hope the doctor will find something at least.  I can’t tell you how frustrating this is week after week.. Kristin

– Hide quoted text — Show quoted text – glad to see you back, Kristin, I wondered where you were.  Congrats on the star anyway.  Maybe the doctor will figure out the standstill. — SuzyQ Weight 126.4 WW Lifetime Membership Feb 03 SSC http://www.chiefimaging.com/asdww/index.htm

Response:

Thanks so much, Elaine.. I’ll be sure and tell the group my results on Friday.  :)  As for my computer, the FedEx tracker indicates it is 50 miles away, in Omaha right now.. so hopefully it will arrive on our doorstep tomorrow.  :) Take care, Kristin :)

– Hide quoted text — Show quoted text – Hi Kristin. Sorry about the computer. Glad you’re seeing the doc about the thyroid, it sure can slow down a loss. Wish you luck. Elaine K 331.4/189.2/179

Response:

Hi Nathalie, and thanks!  It’s so nice to be missed!  :)  I will most certainly let the group know as soon as I find out.  Thanks so much for your support.. Oh, and BTW, did I tell you that I’ll be in the Netherlands with hubby this year from July 7-22?  We should most definitely try and meet up somewhere… that would be SO fun! Take care, Kristin :)

– Hide quoted text — Show quoted text – Hi there, I missed you ! Good luck with the test results, let us know how it turned out. Meanwhile, hang in there sweetie :-) — Nathalie from Belgium 134.1/112.3/minigoal 109.1 Goal 68 Kg 295.6/247.5/minigoal 240.5/Goal 150 pounds IFFC 245.9/247.5/234

Response:

Hi Catherine, and thanks for your support.. it means a lot to me.  :) Kristin

– Hide quoted text — Show quoted text – Hi, Kristin, Good luck with the tests. Take Care Catherine 154/134/126 WWLifetime 6/99

Response:

Hi Brenda, thanks for your message.  :)  I am finally starting to miss being online.. hehe.. at first it was a nice change, but now it’s like.. ahhhh.. gotta have my computer time.. lol crazy huh?  :) Thanks for the good luck wishes at the doc’s.. I’ll be sure and let ya know how it turns out. Kristin

– Hide quoted text — Show quoted text – Hi Kristin, sorry about your computer being down, it’ll be fixed soon and you’ll be posting again.  Good luck at the doctors. Brenda 209/185/150 IFFC goal 175

Response:

I know it’s only been a few days, but man I feel like I’ve been gone forever… Reason being.. my computer is kind of out of commission right now.. hubby thinks it needs a new motherboard so we gotta wait for it to arrive Monday hopefully.. until then I won’t be online much if at all… but surprisingly it doesn’t feel too bad.. it’s kind of a nice break. IFFC update.. 232.6 this morning.. grrr.. SSC update.. star this week.. I’m going to the doctor Monday for a thyroid blood test thingy and then I’ll get the results on Friday.. hopefully that will be the reason for my stand-still.. it’s SO frustrating.. Anyway.. sorry I can’t write to everyone.. I just had to do a major catchup.. Take care and happy losing to all! Kristin 272/232.6/172

Response:

glad to see you back, Kristin, I wondered where you were.  Congrats on the star anyway.  Maybe the doctor will figure out the standstill. — SuzyQ Weight 126.4 WW Lifetime Membership Feb 03 SSC http://www.chiefimaging.com/asdww/index.htm

– Hide quoted text — Show quoted text – I know it’s only been a few days, but man I feel like I’ve been gone forever… Reason being.. my computer is kind of out of commission right now.. hubby thinks it needs a new motherboard so we gotta wait for it to arrive Monday hopefully.. until then I won’t be online much if at all… but surprisingly it doesn’t feel too bad.. it’s kind of a nice break. IFFC update.. 232.6 this morning.. grrr.. SSC update.. star this week.. I’m going to the doctor Monday for a thyroid blood test thingy and then I’ll get the results on Friday.. hopefully that will be the reason for my stand-still.. it’s SO frustrating.. Anyway.. sorry I can’t write to everyone.. I just had to do a major catchup.. Take care and happy losing to all! Kristin 272/232.6/172

Response:

Hi, Kristin, Good luck with the tests. Take Care Catherine 154/134/126 WWLifetime 6/99

– Hide quoted text — Show quoted text – I know it’s only been a few days, but man I feel like I’ve been gone forever… Reason being.. my computer is kind of out of commission right now.. hubby thinks it needs a new motherboard so we gotta wait for it to arrive Monday hopefully.. until then I won’t be online much if at all… but surprisingly it doesn’t feel too bad.. it’s kind of a nice break. IFFC update.. 232.6 this morning.. grrr.. SSC update.. star this week.. I’m going to the doctor Monday for a thyroid blood test thingy and then I’ll get the results on Friday.. hopefully that will be the reason for my stand-still.. it’s SO frustrating.. Anyway.. sorry I can’t write to everyone.. I just had to do a major catchup.. Take care and happy losing to all! Kristin 272/232.6/172

Response:

Hi Kristin. Sorry about the computer. Glad you’re seeing the doc about the thyroid, it sure can slow down a loss. Wish you luck. Elaine K 331.4/189.2/179 – Hide quoted text — Show quoted text – I know it’s only been a few days, but man I feel like I’ve been gone forever… Reason being.. my computer is kind of out of commission right now.. hubby thinks it needs a new motherboard so we gotta wait for it to arrive Monday hopefully.. until then I won’t be online much if at all… but surprisingly it doesn’t feel too bad.. it’s kind of a nice break. IFFC update.. 232.6 this morning.. grrr.. SSC update.. star this week.. I’m going to the doctor Monday for a thyroid blood test thingy and then I’ll get the results on Friday.. hopefully that will be the reason for my stand-still.. it’s SO frustrating.. Anyway.. sorry I can’t write to everyone.. I just had to do a major catchup.. Take care and happy losing to all! Kristin 272/232.6/172

Response:

Hi Kristin, sorry about your computer being down, it’ll be fixed soon and you’ll be posting again.  Good luck at the doctors. Brenda 209/185/150 IFFC goal 175

– Hide quoted text — Show quoted text – I know it’s only been a few days, but man I feel like I’ve been gone forever… Reason being.. my computer is kind of out of commission right now.. hubby thinks it needs a new motherboard so we gotta wait for it to arrive Monday hopefully.. until then I won’t be online much if at all… but surprisingly it doesn’t feel too bad.. it’s kind of a nice break. IFFC update.. 232.6 this morning.. grrr.. SSC update.. star this week.. I’m going to the doctor Monday for a thyroid blood test thingy and then I’ll get the results on Friday.. hopefully that will be the reason for my stand-still.. it’s SO frustrating.. Anyway.. sorry I can’t write to everyone.. I just had to do a major catchup.. Take care and happy losing to all! Kristin 272/232.6/172

Response:

Question regarding mood stabilizers

Question:

– Hide quoted text — Show quoted text -Thanks Nancy for your helpful information.  I had wondered how good the basic thyroid blood test actually is at confirming such problems.  I have been through a host of health issues in recent months due to some heart and blood pressure problems combined with some negative effects of the Effexor I *was* on.  I am still waiting for results on the most recent tests I had at the cardiology clinic after which I may have yet more med changes.  Once I get past all this I will see how I am doing and if necessary I will ask for more thorough testing on my thyroid.  It sounds like you really went through a lot of problems with your thyroid in addition to the other health issues you have to deal with.  I admire your ability to stand up to all this and come out a winner which you show clearly that you have done!  One thing I have learned throughout some of the health issues I have – you *have* to learn to be ultimately responsible for your own health.  Yes, we must have our doctors but we also must research our individual conditions and not be afraid to ask or if necessary demand certain tests or treatments. Bonnie

Thanks Bonnie! I’m not sure how I did it! LOL  I was very angry for a long time, after I had to stop working.  I think that is why I fought so hard.  Besides, when you can’t eat and you have a lump you can see, you keep fighting until you get some proper help.   I’ll never forget the people along the way who tried to ignore me–or could care less that I had any issues.  They will be on my "black list" for a very long time. <g I also will never forget the wonderful people who took me seriously and just rolled their eyes when I told them my story of how I got to them.  My endo is one–he is the BEST! :) Hugs, Nancy administrator/creator/moderator alt.med.fibromyalgia.recovery.info (moderated) alt.support.depression.manic.moderated to email me from news groups, just remove the Z.

Response:

I recommended "cold pressed flax seed oil" which is liquid and MUST be kept refrigerated.  I do not eat breakfast and it also helps settle my stomach in the morning. :)  You can get flax seed oil in many forms, but the cold pressed form is the most potent, thus you need less of it. :)  You should be able to find it down the health food isle at the grocery store, or at any health food

store. Thanks.  I will look for it. If it helps–tell you doctor then you and he/she can decide how to proceed. :) Medications are a very individual thing. Do NOT forget to get adequate b vitamins.  200 mg or mcg of all of them. I can recommend a company and a product which I have not found a good replacement for. Although I heard that www.vitaminshoppe.com carries a close knock off. I’ve never checked it out.

I have tried to take additional B vitamins but I am so bad about remembering to keep up with vitamins.  It’s crazy because I hardly ever forget my prescription meds.  I guess I just need to form some better habits in this respect.  For me I have to take vitamins with dinner because they tend to upset my stomach in the mornings. If you start lithium.  You should start on a low dose and get your blood levels, creatine and liver checked at least every 3 months.  That will hopefully prevent any long term side effects.  Although it won’t prevent the potential for thyroid problems long down the road.  BTW, my thyroid problems are not from lithium. They are hereditary. HTH, Nancy

I won’t see my pdoc for another month or so since I just recently saw him to get off the Effexor and on the Celexa.  In the meantime I will try the flax seed oil and see what happens. Thanks again for your help Nancy, Bonnie

Response:

Another question, (sorry I’m full of them)  if you take a thyroid hormone as a treatment for BP is there a chance that it can eventually cause you to have thyroid problems?

There are two kinds of thyroid replacements.  Synthetic (synthroid and levothyroid and levoxine (not sure of spelling)) and natural (Cytomel and Armour).  AFAIK, the natural ones can be an on and off treatment and they will not have a long term effect on your thyroid.  However, they are less stable and must be dosed more carefully and usually you need blood work more often (like once a week at first). Both Cytomel and Armour are being used to treat chronic pain and chronic fatigue syndrome with some success. Synthetic thyroid will eventually, over the long run, eat your thyroid, thus making you dependant on them for the rest of your life.  For me, it is just one tiny pill a day–so not a big deal. Neither will cause thyroid disease. HTH, Nancy administrator/creator/moderator alt.med.fibromyalgia.recovery.info (moderated) alt.support.depression.manic.moderated to email me from news groups, just remove the Z.

Response:

Lamactil is an anticonvulsant being used as a  mood stabilizer that works well for some people; it has an anti-depressant effect that’s almost as significant as standard antidepressants. Can this be taken with a regular antidepressant?  I will ask my pdoc about it. Yes – I don’t know of any antidepressant that you can’t take with it, but ask your doctor just in case.

Thanks for your suggestion and help.  When I do see my pdoc next I know I will need to discuss mood stabilizers with him and I will ask about this one.  Does Lamactil have a tendency to make many sleepy or to gain weight? Those are two side effects I hope to avoid. – Hide quoted text — Show quoted text – Also, MAOI’s like Nardil and Parnate have been mentioned as being less likely to switch someone into a hypomania or mania, but the research evidence on this is not strong. Thyroid hormone can sometimes be beneficial in rapid cycling or resistant depression.  For more info on this, see: http://www.psycheducation.org/index.html You know I was thinking that I may have a thyroid problem due to some of the health problems I’ve been having and my regular (GP) doctor ran some blood work for it but it all came back OK. That doesn’t matter in the treatment of mood disorders – thyroid hormone is used as an adjunct to boost response of antidepressants or to "smooth out" rapid cycling.  See www.psychguides.com and click on the link "Bipolar Disorder 2000" for more info.  You can actually print out the pages re: treatment of bipolar with thyroid hormone and show your doctor, if he’s unfamiliar with using thyroid hormone.  That’s what I did.  It’s his and your decision together.

Another question, (sorry I’m full of them)  if you take a thyroid hormone as a treatment for BP is there a chance that it can eventually cause you to have thyroid problems? You can ask your doctor about these options if you wish. Good luck, Hoosier Thanks a lot for your suggestions Hoosier, I appreciate them. Bonnie You’re welcome.  As they say, "Knowledge is Power". Hoosier

Absolutely, we can never learn too much when we are dealing with our health. Thanks again and have a nice weekend, Bonnie

Response:

Thanks for your suggestion and help.  When I do see my pdoc next I know I will need to discuss mood stabilizers with him and I will ask about this one.  Does Lamactil have a tendency to make many sleepy or to gain weight? Those are two side effects I hope to avoid.

As far as gaining weight, it has less of a tendency to do that than other medications, but is still a problem for some people (how’s that for a nebulous answer?).  I didn’t gain any weight with it, but I take a lower dose than most people.  Everyone is different of course.  One anticonvulsant mood stabilizer that is known not to cause weight gain (even has a tendency to cause weight loss in some people) is Topamax. As far as sleepiness, again, I didn’t have any problem with it.  I haven’t heard this is a big problem, but it is listed in the package insert as being possible. Another question, (sorry I’m full of them)  if you take a thyroid hormone as a treatment for BP is there a chance that it can eventually cause you to have thyroid problems?

I’ve never heard of this happening, but you might want to ask an endocrinologist or your internist this question. A medication guidebook I would highly recommend is called "The Essential Guide to Psychiatric Drugs", by Jack Gorman, M.D. (third edition).  Even though it’s five years old, it still has plenty of good info in it.  Good luck. Hoosier

Response:

your comments indicate a mood disorder,hypomania but most of the time you`re very depressed.i`m like that,much longer depressions also,but i have had manic episodes.I take Lithium,which has been the best stabilizer for me(& that varies from one person to another,of course),you might or might not dom well on a small dosage of lithium(300 mgs. 3X daily)—-i also have the experience you related—the depressions last so long & are so severe that hypomania seems like a blessing.i get to feel good for awhile.

I’m glad to hear that the Lithium is helpful to you.  My depressions are much worse and longer than any hypomania and I don’t think I’ve been truly manic, although maybe close a few times.  Initially I had to think really hard about my feelings and reactions at various times in my life before I realized I had ever been hypomanic.  I then began to realize there were times in my life that I seemed to ‘lose control’ over my own reactions to experiences.  Times I said or did something that was very uncharacteristic with the way I normally act. I’ve had so much trouble finding ADs that help my depression that when one does help I feel like I have to "hurry up and enjoy it" before it stops working for me.  I can go through my house and say "That closet was cleaned and reorganized through the help of Prozac."  or some other accomplishment was reached through the help of Effexor, etc. etc. The initial hypomania I sometimes get is a blessing and I wish it would last but unfortunately it doesn’t.  Either I burn myself out and start stressing over things too much or I end up back in the throes of depression. then of course rger are the costs of hypomania &/or mania..fr an AD i take Wellbutrin.& like you I`ve been depressed most of my life(yes,throughout chilhood).It helps some,or i`d probably be in bed or elsewhere.(We may have come from the same planet)

I understand very well as I also was depressed even throughout childhood.  I never sought treatment for it until I was in my 40’s probably because depression runs strongly in my family and none of them were treated either. I guess it took some time for me to realize that it wasn’t normal. Good luck HH(i tried Dpakote & another antiseizure med-they all made me drowsy also)HH -that`s enough or too much..     while i`m here-Klonopin is an antianxiety medication,and can be addictive.

I only take it at bedtime and most of the time I take 1/2 of a .5 mg tablet – so just 1/2 of the lowest dose available.  I have a bad problem with jaw clenching and tooth grinding and the Klonopin along with a mouth guard at night helps a bit.  It also helps to have it on hand in case of the occasional trouble I have with PTSD or panic attacks. the line between hypomania & mania is quite unclear—i could not keep the hypomania from becoming mania.then everything (fr me) becomes out of control,unmanageable,with some terrible consequences-personal,financial,health–)that`s whyi said -if there`s a chance of mania-a mood stabilizer should be seriously considered.i hope this;made sense.HH                                             bmew -.  .dw)e

That line is unclear isn’t it?  Thanks for all your help Harry, I appreciate it. Bonnie

Response:

Thanks Nancy for your helpful information.  I had wondered how good the basic thyroid blood test actually is at confirming such problems.  I have been through a host of health issues in recent months due to some heart and blood pressure problems combined with some negative effects of the Effexor I *was* on.  I am still waiting for results on the most recent tests I had at the cardiology clinic after which I may have yet more med changes.  Once I get past all this I will see how I am doing and if necessary I will ask for more thorough testing on my thyroid.  It sounds like you really went through a lot of problems with your thyroid in addition to the other health issues you have to deal with.  I admire your ability to stand up to all this and come out a winner which you show clearly that you have done!  One thing I have learned throughout some of the health issues I have – you *have* to learn to be ultimately responsible for your own health.  Yes, we must have our doctors but we also must research our individual conditions and not be afraid to ask or if necessary demand certain tests or treatments. Bonnie

– Hide quoted text — Show quoted text – Lamactil is an anticonvulsant being used as a  mood stabilizer that works well for some people; it has an anti-depressant effect that’s almost as significant as standard antidepressants. Can this be taken with a regular antidepressant?  I will ask my pdoc about it. Yes. :) Also, MAOI’s like Nardil and Parnate have been mentioned as being less likely to switch someone into a hypomania or mania, but the research evidence on this is not strong. The problem with MAOI’s is you must avoid certain foods, so it is much more difficult to comply with the treatment regime.  Docs are not using MAOI’s so much anymore. Thyroid hormone can sometimes be beneficial in rapid cycling or resistant depression.  For more info on this, see: http://www.psycheducation.org/index.html You know I was thinking that I may have a thyroid problem due to some of the health problems I’ve been having and my regular (GP) doctor ran some blood work for it but it all came back OK. Normal is relative.  My thyroid was low normal and high normal for TSH. Yet, I had a baseball sized tumor on my thyroid, visible across the exam room. It took me 6 months and a formal grievance to get to an endocrinologist. <sigh Once there, and having further tests, I was diagnosed with Hashimoto’s Thyroiditis. I fancy way of saying my thyroid anti-bodies are eating too much thyroid hormone, leaving me hypo thyroid. If you do not feel well–get thee to an endocrinologist for further tests, such as a radio active iodine uptake exam and/or an ultra sound. A needle biopsy on my tumors (there are two from the ultra sound) showed they were benign.  But it surprised my endocrinologist, as he was certain they were cysts.  Had thyroid replacement not shrunk the tumors, I would have had them I must add that the tumors were so large, they interfered with my ability to swallow.  I lost 50 pound in that 6 months I had to wait.  I was down to 101 pounds and my regular (new) doc said if I lost any more weight, she would have to "do" something.  I have no idea what she meant. ;) I consulted my chiropractor (he has more time) and we decided I needed to drink soy protein drinks when I could not eat.  This kept me from loosing any more weight.  Drinking was much easier than eating. :) My problems were serious.  But my example shows how "normal" blood work may NOT be normal for YOU.  If you are not feeling well–get more testing done and really flesh out what is going on in your body. BTW, my DHEA is low normal.  So, I went on low dose replacement and I am getting SOME libido back, slowly but surely. :D JMAO, Nancy administrator/creator/moderator alt.med.fibromyalgia.recovery.info (moderated) alt.support.depression.manic.moderated to email me from news groups, just remove the Z.

Response:

our experiences have been somewhat sililiar,i/e.,long severe depresions with brief hypomania (in my case mania also).it tok yrs. for dx because they never saw me manic (& i didn`t know what it was).

Yes, how well I understand what you are saying here.  Depression has been something I’ve dealt with all my life however I  knew very little about bipolar until my son was diagnosed several years ago.  Funny, it took my son discovering his illness for me to more fully discover mine. I `ve been on Lithium (nithing else seems to work (antiseizure meds make me drowsy).I take L & an AD (presently Wellbutrin).if you`re having hypo- or mani you most likely will need mood stabilizer.I`ve never been free of both-usually verydepressed,or

briefly manic-not much in between.(After long D hypo- can seem like a blessing..but it gets worse)these are . some of my experiences.work with it,you never know what will work for you.It`s a difficult thing for some to find a balance-HH -there is that Bruce Cockburn-"the trouble with normal is it only gets worse-so "chronic normals" have their problems HH ——-loo frward to ms

I think what I’ve had is more hypomania and has not been that much of a problem most of the time.  However there are those other times when I’ve occasionally have severe negative mood changes and those were a problem. Thanks for your help Harry, Bonnie

Response:

your comments indicate a mood disorder,hypomania but most of the time you`re very depressed.i`m like that,much longer depressions also,but i have had manic episodes.I take Lithium,which has been the best stabilizer for me(& that varies from one person to another,of course),you might or might not dom well on a small dosage of lithium(300 mgs. 3X daily)—-i also have the experience you related—the depressions last so long & are so severe that hypomania seems like a blessing.i get to feel good for awhile.then of course rger are the costs of hypomania &/or mania..fr an AD i take Wellbutrin.& like you I`ve been depressed most of my life(yes,throughout chilhood).It helps some,or i`d probably be in bed or elsewhere.(We may have come from the same planet)Good luck HH(i tried Dpakote & another antiseizure med-they all made me drowsy also)HH -that`s enough or too much..     while i`m here-Klonopin is an antianxiety medication,and can be addictive.the line between hypomania & mania is quite unclear—i could not keep the hypomania from becoming mania.then everything (fr me) becomes out of control,unmanageable,with some terrible consequences-personal,financial,health–)that`s whyi said -if there`s a chance of mania-a mood stabilizer should be seriously considered.i hope this;made sense.HH                                             bmew -.  .dw)e

Response:

The problem with MAOI’s is you must avoid certain foods, so it is much more difficult to comply with the treatment regime.  Docs are not using MAOI’s so much anymore.

This is true – but I disagree that it is "much more difficult to comply with the treatment regime."  The list of foods is not comprehensive – but you have to watch some classes of medications that interact (namely, sympathomimetics – ephidrine, etc – things found in cold and sinus preparations).  I’m not going to go into the list, but it isn’t a mile long. I have been on an MAOI for 11 years and found it is not difficult to comply with the diet – and I don’t think it would be for your average person if they were motivated and somewhat vigilant about their treatment. The more important thing is watching out for what other doctors prescribe to you – such as dextromethorphan (found in many cough syrups – an MAOI no-no), or a decongestant that contains a sympathomimetic.  To summarize, physicians and patients have, in my opinion, largely overreacted to the dietary/medication requirements of an oftentimes useful class of medications that some people could benefit from. Another big myth is that you have to avoid all cheeses – not true – only the AGED variety.  Few people know about the following article published a few years back: Shulman, KI, Walker, SE.  Refining the MAOI Diet:  Tyramine Content of Pizzas and Soy Products.  Journal of Clinical Psychiatry, March 1999; 60:3. Pizzas from large chains (Dominoes, Pizza Hut, etc.) were measured for their tyramine content.  The tyramine in these freshly made pizzas averaged from 0.0 to 0.38 mg of tyramine (for a 1/2 medium double cheese, double pepperoni from Dominoes).  A tyramine level of 6 mg or less was considered safe. So basically, FRESH pizzas from chains are fine to eat, provided they ARE fresh and use mozzarella and American type cheeses, which most chains do. – Hide quoted text — Show quoted text – Thyroid hormone can sometimes be beneficial in rapid cycling or resistant depression.  For more info on this, see: http://www.psycheducation.org/index.html You know I was thinking that I may have a thyroid problem due to some of the health problems I’ve been having and my regular (GP) doctor ran some blood work for it but it all came back OK. Normal is relative.  My thyroid was low normal and high normal for TSH. Yet, I had a baseball sized tumor on my thyroid, visible across the exam room. It took me 6 months and a formal grievance to get to an endocrinologist. <sigh Once there, and having further tests, I was diagnosed with Hashimoto’s Thyroiditis. I fancy way of saying my thyroid anti-bodies are eating too much thyroid hormone, leaving me hypo thyroid. If you do not feel well–get thee to an endocrinologist for further tests, such as a radio active iodine uptake exam and/or an ultra sound. A needle biopsy on my tumors (there are two from the ultra sound) showed they were benign.  But it surprised my endocrinologist, as he was certain they were cysts.  Had thyroid replacement not shrunk the tumors, I would have had them I must add that the tumors were so large, they interfered with my ability to swallow.  I lost 50 pound in that 6 months I had to wait.  I was down to 101 pounds and my regular (new) doc said if I lost any more weight, she would have to "do" something.  I have no idea what she meant. ;)

I think this is a long shot, unless you clearly have a growth on your thyroid, or like acoftil, have definite symptoms (like difficulty swallowing).   If your internist suspects something (you can have him palpitate your thyroid, if you wish) or if you suspect something, he will most likely refer you to an endocrinologist (although there is a chance you might have the same problem as acoftil).  If you don’t have a tumor, the endocrinologist will most likely look at your TSH and T4 levels and tell you, "Sorry, can’t help you" if they are in the normal range.  If your thyroid gland is normal looking and feeling, and your TSH and other levels are normal, I would probably go directly to the psychiatrist and ask about a trial of T4 or T4/T3, but this is just my opinion.  You can go to an endocrinologist if you like, but I wouldn’t get my hopes up that he/she will help you if everything looks normal. I consulted my chiropractor (he has more time) and we decided I needed to drink soy protein drinks when I could not eat.  This kept me from loosing any more weight.  Drinking was much easier than eating. :)

I don’t put much faith in chiropractors, because few practice evidence-based medicine.  But some people insist they get help from them – whatever floats your boat, I guess. My problems were serious.  But my example shows how "normal" blood work may NOT be normal for YOU.  If you are not feeling well–get more testing done and really flesh out what is going on in your body.

I would agree that normal tests may not always mean the absence of a serious condition.  There are limits, however.  I would be cautious about approaching certain "homeopathic" clinics and practitioners.  Sometimes they want to put you through a log of very expensive tests that have no scientific relavance whatsoever.  Again, my opinion. Hoosier

Response:

Lamactil is an anticonvulsant being used as a  mood stabilizer that works well for some people; it has an anti-depressant effect that’s almost as significant as standard antidepressants.

Can this be taken with a regular antidepressant?  I will ask my pdoc about it. Yes. :) Also, MAOI’s like Nardil and Parnate have been mentioned as being less likely to switch someone into a hypomania or mania, but the research evidence on this is not strong.

The problem with MAOI’s is you must avoid certain foods, so it is much more difficult to comply with the treatment regime.  Docs are not using MAOI’s so much anymore. Thyroid hormone can sometimes be beneficial in rapid cycling or resistant depression.  For more info on this, see: http://www.psycheducation.org/index.html You know I was thinking that I may have a thyroid problem due to some of the health problems I’ve been having and my regular (GP) doctor ran some blood work for it but it all came back OK.

Normal is relative.  My thyroid was low normal and high normal for TSH.  Yet, I had a baseball sized tumor on my thyroid, visible across the exam room.  It took me 6 months and a formal grievance to get to an endocrinologist. <sigh  Once there, and having further tests, I was diagnosed with Hashimoto’s Thyroiditis. I fancy way of saying my thyroid anti-bodies are eating too much thyroid hormone, leaving me hypo thyroid.   If you do not feel well–get thee to an endocrinologist for further tests, such as a radio active iodine uptake exam and/or an ultra sound. A needle biopsy on my tumors (there are two from the ultra sound) showed they were benign.  But it surprised my endocrinologist, as he was certain they were cysts.  Had thyroid replacement not shrunk the tumors, I would have had them I must add that the tumors were so large, they interfered with my ability to swallow.  I lost 50 pound in that 6 months I had to wait.  I was down to 101 pounds and my regular (new) doc said if I lost any more weight, she would have to "do" something.  I have no idea what she meant. ;) I consulted my chiropractor (he has more time) and we decided I needed to drink soy protein drinks when I could not eat.  This kept me from loosing any more weight.  Drinking was much easier than eating. :) My problems were serious.  But my example shows how "normal" blood work may NOT be normal for YOU.  If you are not feeling well–get more testing done and really flesh out what is going on in your body. BTW, my DHEA is low normal.  So, I went on low dose replacement and I am getting SOME libido back, slowly but surely. :D JMAO, Nancy administrator/creator/moderator alt.med.fibromyalgia.recovery.info (moderated) alt.support.depression.manic.moderated to email me from news groups, just remove the Z.

Response:

Thank you for this suggestion.  I will try this.  Can you get the flax seed oil as a liquid not in capsule form?  Is it safe to use with other medications?  If this helps does that mean I need a mood stabilizer or that I could just stay on the flax seed oil?

I recommended "cold pressed flax seed oil" which is liquid and MUST be kept refrigerated.  I do not eat breakfast and it also helps settle my stomach in the morning. :)  You can get flax seed oil in many forms, but the cold pressed form is the most potent, thus you need less of it. :)  You should be able to find it down the health food isle at the grocery store, or at any health food store. If it helps–tell you doctor then you and he/she can decide how to proceed. :) Medications are a very individual thing. Do NOT forget to get adequate b vitamins.  200 mg or mcg of all of them.  I can recommend a company and a product which I have not found a good replacement for. Although I heard that www.vitaminshoppe.com carries a close knock off.  I’ve never checked it out. If you start lithium.  You should start on a low dose and get your blood levels, creatine and liver checked at least every 3 months.  That will hopefully prevent any long term side effects.  Although it won’t prevent the potential for thyroid problems long down the road.  BTW, my thyroid problems are not from lithium. They are hereditary. HTH, Nancy administrator/creator/moderator alt.med.fibromyalgia.recovery.info (moderated) alt.support.depression.manic.moderated to email me from news groups, just remove the Z.

Response:

Lamactil is an anticonvulsant being used as a  mood stabilizer that works well for some people; it has an anti-depressant effect that’s almost as significant as standard antidepressants. Can this be taken with a regular antidepressant?  I will ask my pdoc about it.

Yes – I don’t know of any antidepressant that you can’t take with it, but ask your doctor just in case. Also, MAOI’s like Nardil and Parnate have been mentioned as being less likely to switch someone into a hypomania or mania, but the research evidence on this is not strong. Thyroid hormone can sometimes be beneficial in rapid cycling or resistant depression.  For more info on this, see: http://www.psycheducation.org/index.html You know I was thinking that I may have a thyroid problem due to some of the health problems I’ve been having and my regular (GP) doctor ran some blood work for it but it all came back OK.

That doesn’t matter in the treatment of mood disorders – thyroid hormone is used as an adjunct to boost response of antidepressants or to "smooth out" rapid cycling.  See www.psychguides.com and click on the link "Bipolar Disorder 2000" for more info.  You can actually print out the pages re: treatment of bipolar with thyroid hormone and show your doctor, if he’s unfamiliar with using thyroid hormone.  That’s what I did.  It’s his and your decision together. You can ask your doctor about these options if you wish. Good luck, Hoosier Thanks a lot for your suggestions Hoosier, I appreciate them. Bonnie

You’re welcome.  As they say, "Knowledge is Power". Hoosier

Response:

Lamactil is an anticonvulsant being used as a  mood stabilizer that works well for some people; it has an anti-depressant effect that’s almost as significant as standard antidepressants.

Can this be taken with a regular antidepressant?  I will ask my pdoc about it. Also, MAOI’s like Nardil and Parnate have been mentioned as being less likely to switch someone into a hypomania or mania, but the research evidence on this is not strong. Thyroid hormone can sometimes be beneficial in rapid cycling or resistant depression.  For more info on this, see: http://www.psycheducation.org/index.html

You know I was thinking that I may have a thyroid problem due to some of the health problems I’ve been having and my regular (GP) doctor ran some blood work for it but it all came back OK. You can ask your doctor about these options if you wish. Good luck, Hoosier

Thanks a lot for your suggestions Hoosier, I appreciate them. Bonnie

Response:

our experiences have been somewhat sililiar,i/e.,long severe depresions with brief hypomania (in my case mania also).it tok yrs. for dx because they never saw me manic (& i didn`t know what it was).I `ve been on Lithium (nithing else seems to work (antiseizure meds make me drowsy).I take L & an AD (presently Wellbutrin).if you`re having hypo- or mani you most likely will need mood stabilizer.I`ve never been free of both-usually verydepressed,or briefly manic-not much in between.(After long D hypo- can seem like a blessing..but it gets worse)these are some of my experiences.work with it,you never know what will work for you.It`s a difficult thing for some to find a balance-HH -there is that Bruce Cockburn-"the trouble with normal is it only gets worse-so "chronic normals" have their problems HH ——-loo frward to ms

Response:

  You should ask your doctor these questions. Having said that, my opinion is that you need a mood stabilizer along with that anti depressant. Otherwise you risk the manic phase. BTW, most bipolars notice the depressive phase more than the manic phase. Your friends/spouse will notice the manic more. know

Thanks for your response Rich.  I do plan on going over this with my pdoc. I have been through so many medication changes and problems that I really dread each change and/or addition.  When I find an antidepressant that does help my depression it is like a gift even if I do eventually get a bit hypomanic.  But as you said I know I do risk the manic phase and that is my concern.  My husband does notice these tendancies in me more than I do even though I try very hard to be aware of my condition.  Maybe I’ll get lucky and find a mood stabilizer that does not have many side effects. Bonnie

Response:

I think you answered your own question. <g For most beepers, depression is the first symptom and the first thing treated.  Once on anti-depressants, the manic tendencies come about.  For most of us, left untreated, the manic tendencies will worsen over time.  So, the answer is, you will probably need a mood stabilizer, if not now, sometime in the future.

I think you are right.  There is a part of me that keeps fighting any new medication.  I’ve had so many problems with so many of them.  I do worry that the manic tendencies will worsen if not treated.  I have read about the "kindling theory" in regards to untreated bipolar getting worse. IMO, you probably need the mood stabilizer now.  You write very well how I felt when I first read about lithium.  I asked my pdoc to try it and he agreed. I felt a significant change for the better after about a week.

I think there is still a part of me that is not accepting the bipolar II diagnosis which I recieved last October.  I have known that I was severely depressed most of my life but it took a long time and a psychologist and psychiatrist to convince me to try antidepressants.  Even then I never even considered that I could be bipolar.  Several years ago my youngest son (in his 20’s) was diagnosed as bipolar II.  Both of my parents were alcoholics and my Mother was seriously depressed and suicidal.  There were other close relatives with similar tendencies but none of them were "officially" diagnosed.  Even with all this in the family I still did not think I could be bipolar.  When I try to look at myself and my own symptoms and feelings I just get confused.  I *know* the depression – all too well.  The other feelings still confuse me because while they do not seem bad enough to be an illness as such, they do seem to not be normal and others notice more in me than I do in myself. You can try a little experiment at home.  Try taking 2 teaspoons of flax seed oil, or 8 to 10 grams of fish oil a day for a week.  See if that helps. The therapeutic dose is 1 to 2 tablespoons of flax seed oil, or 10 to 15 grams of fish oil.

Thank you for this suggestion.  I will try this.  Can you get the flax seed oil as a liquid not in capsule form?  Is it safe to use with other medications?  If this helps does that mean I need a mood stabilizer or that I could just stay on the flax seed oil? Lithium may require a prescription, but it is a naturally occurring salt mineral used for thousands of years before any study was done on it.

I keep telling myself this but somehow I feel uneasy about taking it.  So far my pdoc has not suggested it and I have not asked.  I also worry about long term side effects.  I think maybe more than anything I am just still having difficulty accepting my diagnosis.  It is so hard, especially when so many of the people I am around tend to have negative feelings about anyone with "mental illness".  This has got to be one of the most misunderstood illnesses.  Too many people jump to too many bad conclusions over such illnesses.  It is because of this that I especially appreciate groups like this one. Thanks for your help Nancy.  I just turned 50 (geez) but at times I still feel like a confused child. Bonnie – Hide quoted text — Show quoted text – HTH, JMO, Nancy administrator/creator/moderator alt.med.fibromyalgia.recovery.info (moderated) alt.support.depression.manic.moderated to email me from news groups, just remove the Z.

Response:

Lamactil is an anticonvulsant being used as a  mood stabilizer that works well for some people; it has an anti-depressant effect that’s almost as significant as standard antidepressants. Also, MAOI’s like Nardil and Parnate have been mentioned as being less likely to switch someone into a hypomania or mania, but the research evidence on this is not strong. Thyroid hormone can sometimes be beneficial in rapid cycling or resistant depression.  For more info on this, see: http://www.psycheducation.org/index.html You can ask your doctor about these options if you wish. Good luck, Hoosier

– Hide quoted text — Show quoted text – I have dealt with depression, often extreme, most of my life.  I have also been diagnosed with PTSD, an anxiety disorder and bipolar II.  I fight depressive symptoms much more than manic symptoms, however I do get hypomanic at times. My question is –  if you have more depression than mania then can you get by with just an antidepressant and not a mood stabilizer?  I know, anything that works for each individual, but I’m kind of struggling with this for several reasons.  My depression is treatment resistant and I  get so tired of going through different meds for the depression that I really don’t want to add more pills in the mix.  Whenever I do find an AD that works for me I also tend to get a bit hypomanic.  For the most part I like this when compared to the non-functioning depression.  At least I get things done and feel somewhat better about the world.  However there are also times that I get a little uneasy about the way I am feeling.  Like recently I’ve been having the racing thoughts like crazy and I keep trying to plan out more things to get done than I would ever get done and each one of them seems almost urgent to me when in reality I know they are not. It’s like I have to run, run, run getting things done or at least trying to and I often end up with a lot of half finished projects while the whole time I am planning out more "have-to" projects to get done.  I also catch myself talking fast and coming across a little hyper at times.  Whenever I find an AD that does help my depression I start having these other symptoms.  I know for bipolars that is not an unusual reaction to ADs but I am hesitant to add a mood stabilizer to the mix.  I took Neurontin for awhile and it just made me sleepy.  I do take a small dose of klonopin every night and I think I read that can have some mood stabilizing properties?  I’ve had so much trouble with finding the right meds that I am afraid to add a mood stabilizer.  I can not live with the kind of depression that I get and I fear a mood stabilizer might take me back to that depression. Anyone have any helpful thoughts on maintaining BPII on antidepressants alone?  I’ve done it for the most part but I feel a little scared sometimes when the mania starts sneaking up on me like it has been recently.  How do you know where to draw the line with mania/hypomainia?  How do you know when you feel the mania symptoms that *this* won’t be the one that goes too far and leaves you regreting not doing something to prevent it? Thanks so much, Bonnie

Response:

- Hide quoted text — Show quoted text – Hi Bonnie, I’m BPII, and like you, my main problem is teetering on the depression side of the scale… now I *do* get hypomanic, but I’d prefer that to the depression where everything is so dark, so hopeless, so terrible and I often get suicidal… Antidepressant alone? Hmm, I was on prozac alone at one point, but that’s way back when I was diagnosed as unipolar depression.    I was acting REALLY weird on it though.    I guess looking back on it I started rapid cycling… one day I went through five distinct moods in the span of two hours and freaked the crap out of the friends who were the recpients of those mood swings.   Also, it didn’t do a damn thing for the depression or the suicidal urges.

Prozac helped me for a couple of years, although I was on Neurontin at the time too.  The Prozac suddenly stopped helping me – the old "Prozac poop-out" I guess.  I went through a bout with Effexor and it helped but also ran my blood pressure dangerously high.  I had previously been on Wellbutrin and Serzone and neither helped my depression.  I am now on Celexa and starting to feel better.  However as my depression gets further away I sense my hypomanic tendencies coming back.  You know, now that I think about it my first hint of being bipolar was the early weeks I was on Prozac…… – Hide quoted text — Show quoted text – Now, not all mood stabilizers are evil, evil, evil… <G and believe me I thought that for a while.  Yes, some have sleepiness as a side effect, but not all and if your needed dosage is on the low side then sleepiness shouldn’t be a problem with ANY mood stabilizer.    I was on neurontin for a while as well and it didn’t do much for me, depression wise either. Unfortuantely, there’s this medication game that we all have to play with bp, and it takes a few tries to find one that works or has side effects that aren’t disgusting. For example, some people on this board will tell you that depakote has changed their lives, others will groan about weight gain and sleepiness. Meds effect everyone differently, it’s all about your body chemistry and make up and unfortunately it’s really a trial and error kind of thing. As for mania/hypomania, I’ve never been full-blown manic, I’m more… "I feel like I’m going to jump out of my skin because I can’t sit STILL already!" that kind of thing… hmmm.   Well, the energy rush is fun, the feeling like I’m going to jump out of my skin isn’t.    Anyway, as I said above, when I was on AD alone, I was in a depressed phase and just spiraled down further so the above wasn’t really a concern.   Oh, and I kept acting… well, really strange.

How well I understand what you are saying here.  After years of depression the hypomania can be a welcome relief.  What gets to me is when I am overtaken by the rapid thoughts or when I become almost obsessed with getting certain things done even though I rarely get them all accomplished. I can tell when I find an AD that helps my depression – I suddenly want to redecorate every room in the house.  At first it is fun then I start feeling "driven" to do more than I can humanly do.  Or I start several new hobbies all at the same time but don’t get very far with any of them. I say, go for the mood stabilizer, anti-depressants alone don’t often allievate symptoms, or they cause funky moods (YMMV as always!) and talk with the pdoc, start small… and as always see how YOU feel on it because that’s the most important thing. — – Susan "Whatever tomorrow brings I’ll be there with open arms and open eyes" – Incubus

Thanks Susan, I appreciate your input.  It helps me to understand my feelings when I get feedback form others that understand all this. Bonnie

Response:

– Hide quoted text — Show quoted text -My question is –  if you have more depression than mania then can you get by with just an antidepressant and not a mood stabilizer?  I know, anything that works for each individual, but I’m kind of struggling with this for several reasons.  My depression is treatment resistant and I get so tired of going through different meds for the depression that I really don’t want to add more pills in the mix.  Whenever I do find an AD that works for me I also tend to get a bit hypomanic.  For the most part I like this when compared to the non-functioning depression.  At least I get things done and feel somewhat better about the world.  However there are also times that I get a little uneasy about the way I am feeling.  Like recently I’ve been having the racing thoughts like crazy and I keep trying to plan out more things to get done than I would ever get done and each one of them seems almost urgent to me when in reality I know they are not.  It’s like I have to run, run, run getting things done or at least trying to and I often end up with a lot of half finished projects while the whole time I am planning out more "have-to" projects to get done.  I also catch myself talking fast and coming across a little hyper at times.

I think you answered your own question. <g For most beepers, depression is the first symptom and the first thing treated.  Once on anti-depressants, the manic tendencies come about.  For most of us, left untreated, the manic tendencies will worsen over time.  So, the answer is, you will probably need a mood stabilizer, if not now, sometime in the future. IMO, you probably need the mood stabilizer now.  You write very well how I felt when I first read about lithium.  I asked my pdoc to try it and he agreed.  I felt a significant change for the better after about a week. You can try a little experiment at home.  Try taking 2 teaspoons of flax seed oil, or 8 to 10 grams of fish oil a day for a week.  See if that helps.  The therapeutic dose is 1 to 2 tablespoons of flax seed oil, or 10 to 15 grams of fish oil. Lithium may require a prescription, but it is a naturally occurring salt mineral used for thousands of years before any study was done on it. HTH, JMO, Nancy administrator/creator/moderator alt.med.fibromyalgia.recovery.info (moderated) alt.support.depression.manic.moderated to email me from news groups, just remove the Z.

Response:

– Hide quoted text — Show quoted text – I have dealt with depression, often extreme, most of my life.  I have also been diagnosed with PTSD, an anxiety disorder and bipolar II.  I fight depressive symptoms much more than manic symptoms, however I do get hypomanic at times. My question is –  if you have more depression than mania then can you get by with just an antidepressant and not a mood stabilizer?  I know, anything that works for each individual, but I’m kind of struggling with this for several reasons.  My depression is treatment resistant and I  get so tired of going through different meds for the depression that I really don’t want to add more pills in the mix.  Whenever I do find an AD that works for me I also tend to get a bit hypomanic.  For the most part I like this when compared to the non-functioning depression.  At least I get things done and feel somewhat better about the world.  However there are also times that I get a little uneasy about the way I am feeling.  Like recently I’ve been having the racing thoughts like crazy and I keep trying to plan out more things to get done than I would ever get done and each one of them seems almost urgent to me when in reality I know they are not. It’s like I have to run, run, run getting things done or at least trying to and I often end up with a lot of half finished projects while the whole time I am planning out more "have-to" projects to get done.  I also catch myself talking fast and coming across a little hyper at times.  Whenever I find an AD that does help my depression I start having these other symptoms.  I know for bipolars that is not an unusual reaction to ADs but I am hesitant to add a mood stabilizer to the mix.  I took Neurontin for awhile and it just made me sleepy.  I do take a small dose of klonopin every night and I think I read that can have some mood stabilizing properties?  I’ve had so much trouble with finding the right meds that I am afraid to add a mood stabilizer.  I can not live with the kind of depression that I get and I fear a mood stabilizer might take me back to that depression. Anyone have any helpful thoughts on maintaining BPII on antidepressants alone?  I’ve done it for the most part but I feel a little scared sometimes when the mania starts sneaking up on me like it has been recently.  How do you know where to draw the line with mania/hypomainia?  How do you know when you feel the mania symptoms that *this* won’t be the one that goes too far and leaves you regreting not doing something to prevent it? Thanks so much, Bonnie

Hi Bonnie, I’m BPII, and like you, my main problem is teetering on the depression side of the scale… now I *do* get hypomanic, but I’d prefer that to the depression where everything is so dark, so hopeless, so terrible and I often get suicidal… Antidepressant alone? Hmm, I was on prozac alone at one point, but that’s way back when I was diagnosed as unipolar depression.    I was acting REALLY weird on it though.    I guess looking back on it I started rapid cycling… one day I went through five distinct moods in the span of two hours and freaked the crap out of the friends who were the recpients of those mood swings.   Also, it didn’t do a damn thing for the depression or the suicidal urges. Now, not all mood stabilizers are evil, evil, evil… <G and believe me I thought that for a while.  Yes, some have sleepiness as a side effect, but not all and if your needed dosage is on the low side then sleepiness shouldn’t be a problem with ANY mood stabilizer.    I was on neurontin for a while as well and it didn’t do much for me, depression wise either. Unfortuantely, there’s this medication game that we all have to play with bp, and it takes a few tries to find one that works or has side effects that aren’t disgusting. For example, some people on this board will tell you that depakote has changed their lives, others will groan about weight gain and sleepiness. Meds effect everyone differently, it’s all about your body chemistry and make up and unfortunately it’s really a trial and error kind of thing. As for mania/hypomania, I’ve never been full-blown manic, I’m more… "I feel like I’m going to jump out of my skin because I can’t sit STILL already!" that kind of thing… hmmm.   Well, the energy rush is fun, the feeling like I’m going to jump out of my skin isn’t.    Anyway, as I said above, when I was on AD alone, I was in a depressed phase and just spiraled down further so the above wasn’t really a concern.   Oh, and I kept acting… well, really strange. I say, go for the mood stabilizer, anti-depressants alone don’t often allievate symptoms, or they cause funky moods (YMMV as always!) and talk with the pdoc, start small… and as always see how YOU feel on it because that’s the most important thing. — – Susan "Whatever tomorrow brings I’ll be there with open arms and open eyes" – Incubus

Response:

You should ask your doctor these questions. Having said that, my opinion is that you need a mood stabilizer along with that anti depressant. Otherwise you risk the manic phase. BTW, most bipolars notice the depressive phase more than the manic phase. Your friends/spouse will notice the manic more.

– Hide quoted text — Show quoted text – I have dealt with depression, often extreme, most of my life.  I have also been diagnosed with PTSD, an anxiety disorder and bipolar II.  I fight depressive symptoms much more than manic symptoms, however I do get hypomanic at times. My question is –  if you have more depression than mania then can you get by with just an antidepressant and not a mood stabilizer?  I know, anything that works for each individual, but I’m kind of struggling with this for several reasons.  My depression is treatment resistant and I  get so tired of going through different meds for the depression that I really don’t want to add more pills in the mix.  Whenever I do find an AD that works for me I also tend to get a bit hypomanic.  For the most part I like this when compared to the non-functioning depression.  At least I get things done and feel somewhat better about the world.  However there are also times that I get a little uneasy about the way I am feeling.  Like recently I’ve been having the racing thoughts like crazy and I keep trying to plan out more things to get done than I would ever get done and each one of them seems almost urgent to me when in reality I know they are not. It’s like I have to run, run, run getting things done or at least trying to and I often end up with a lot of half finished projects while the whole time I am planning out more "have-to" projects to get done.  I also catch myself talking fast and coming across a little hyper at times.  Whenever I find an AD that does help my depression I start having these other symptoms.  I know for bipolars that is not an unusual reaction to ADs but I am hesitant to add a mood stabilizer to the mix.  I took Neurontin for awhile and it just made me sleepy.  I do take a small dose of klonopin every night and I think I read that can have some mood stabilizing properties?  I’ve had so much trouble with finding the right meds that I am afraid to add a mood stabilizer.  I can not live with the kind of depression that I get and I fear a mood stabilizer might take me back to that depression. Anyone have any helpful thoughts on maintaining BPII on antidepressants alone?  I’ve done it for the most part but I feel a little scared sometimes when the mania starts sneaking up on me like it has been recently.  How do you know where to draw the line with mania/hypomainia?  How do you know when you feel the mania symptoms that *this* won’t be the one that goes too far and leaves you regreting not doing something to prevent it? Thanks so much, Bonnie

Response:

I have dealt with depression, often extreme, most of my life.  I have also been diagnosed with PTSD, an anxiety disorder and bipolar II.  I fight depressive symptoms much more than manic symptoms, however I do get hypomanic at times. My question is –  if you have more depression than mania then can you get by with just an antidepressant and not a mood stabilizer?  I know, anything that works for each individual, but I’m kind of struggling with this for several reasons.  My depression is treatment resistant and I  get so tired of going through different meds for the depression that I really don’t want to add more pills in the mix.  Whenever I do find an AD that works for me I also tend to get a bit hypomanic.  For the most part I like this when compared to the non-functioning depression.  At least I get things done and feel somewhat better about the world.  However there are also times that I get a little uneasy about the way I am feeling.  Like recently I’ve been having the racing thoughts like crazy and I keep trying to plan out more things to get done than I would ever get done and each one of them seems almost urgent to me when in reality I know they are not.  It’s like I have to run, run, run getting things done or at least trying to and I often end up with a lot of half finished projects while the whole time I am planning out more "have-to" projects to get done.  I also catch myself talking fast and coming across a little hyper at times.  Whenever I find an AD that does help my depression I start having these other symptoms.  I know for bipolars that is not an unusual reaction to ADs but I am hesitant to add a mood stabilizer to the mix.  I took Neurontin for awhile and it just made me sleepy.  I do take a small dose of klonopin every night and I think I read that can have some mood stabilizing properties?  I’ve had so much trouble with finding the right meds that I am afraid to add a mood stabilizer.  I can not live with the kind of depression that I get and I fear a mood stabilizer might take me back to that depression. Anyone have any helpful thoughts on maintaining BPII on antidepressants alone?  I’ve done it for the most part but I feel a little scared sometimes when the mania starts sneaking up on me like it has been recently.  How do you know where to draw the line with mania/hypomainia?  How do you know when you feel the mania symptoms that *this* won’t be the one that goes too far and leaves you regreting not doing something to prevent it? Thanks so much, Bonnie

Response:

Questions for those with thyroid disease

Question:

Thanks Donnah, I will talk to my pcp about it!!! Donna G

Response:

Hi Julie, Thanks again for the additional information.  I do have fairly good insurance, so cost isn’t really the issue.  My concern is more that the neck area is fairly swollen and I just want to make sure I cover all the bases.  The other concern is that if they do something like an ultrasound or would have to do surgery that I have some pretty bad lung problems and would be concerned with any swelling or pressure on my neck as it is already hard enough to breath.  Stupid fears I am sure, but it does freak me out just a little! Donna G

Response:

(Newsgroup Spambuster) whistled into the wind, melodiously: Hi Julie, Thanks again for the additional information.  I do have fairly good insurance, so cost isn’t really the issue.  My concern is more that the neck area is fairly swollen and I just want to make sure I cover all the bases.  The other concern is that if they do something like an ultrasound or would have to do surgery that I have some pretty bad lung problems and would be concerned with any swelling or pressure on my neck as it is already hard enough to breath.  Stupid fears I am sure, but it does freak me out just a little!

The ultrasound really didn’t involve much pressure.  The doctor I went to applied what seemed like a great deal of pressure with his fingers, and that was unpleasant.  But the ultrasound tech didn’t squish me at all. Good luck, and keep us posted. — Julie Carter You put Ohiohills in; you take the Yahoo out; you put Ohiohills in and you type your message out. You do the hokey pokey and you drop Julie a line. That’s what email’s about.

Response:

Donna, I have  too have nodules.  Had biopsy.  Not cancer.  Old Dr ordered it checked after 2 years. Retired,  New dr ignores it completely.  If you have concerns, see other Dr. RA and Sjogrens have nothing to do with it.  My TSH was normal.  I went to see an Endocrinologist (sp?) I have all the symptons. Dy hair, split nails, weight gain, tired, No body Hair.  He had my PCP put me on Synthroid. Many years ago.  Drs make too many mistakes , If you are not sure, go. get another opinion

Response:

Thanks Kathe for your input, I really appreciate it!!!  Will definitely discuss this with my pcp at my upcoming appointment! Donna G

Response:

Donna G, ask for a repeat and request that your T3 and T4 be measured. TSH is only part of the picture. Donnah – Hide quoted text — Show quoted text – Thanks Julie for the link and your personal input!!!  I really know very little about thyroid stuff, and my pcp seems of the thought that as long as the TSH is normal everything is fine.  I don’t know anything about T3 or T4.  TSH is the only test he did and said that would be the test that would show if there was a problem.  I do seem to have some symptoms that could be connected with thyroid, but I have so many other health issues, it is hard to know what is connected with what!!! Donna G

Response:

One more link. http://www.thyroid.ca/Guides/HG04.html This one is specifically on thyroid nodules. Julie Carter — You put Ohiohills in; you take the Yahoo out; you put Ohiohills in and you type your message out. You do the Hokey Pokey and you drop Julie a line. That’s what email’s about!

Response:

Thanks Julie for the link and your personal input!!!  I really know very little about thyroid stuff, and my pcp seems of the thought that as long as the TSH is normal everything is fine.  I don’t know anything about T3 or T4.  TSH is the only test he did and said that would be the test that would show if there was a problem.  I do seem to have some symptoms that could be connected with thyroid, but I have so many other health issues, it is hard to know what is connected with what!!! Donna G

Response:

(Newsgroup Spambuster) whistled into the wind, melodiously: Thanks Julie for the link and your personal input!!!  I really know very little about thyroid stuff, and my pcp seems of the thought that as long as the TSH is normal everything is fine.  I don’t know anything about T3 or T4.  

As far as I understand it, TSH is the hormone your pituitary sends to the thyroid in order to tell the thyroid to make its stuff.  The T3 or T4 tests are looking for the thyroid hormones themselves. When I’ve had thyroid tests, they’ve tested for all of these, but the TSH test on its own will tell whether there is an abnormal amount of the hormone, which would mean that there is probably a problem.  Then other tests would have to be run to find what the problem is. Since you just had the TSH test, that means that your pituitary thinks there is the right amount of thyroid hormone being produced.  That’s good. TSH is the only test he did and said that would be the test that would show if there was a problem.  I do seem to have some symptoms that could be connected with thyroid, but I have so many other health issues, it is hard to know what is connected with what!!!

The one site I posted seems to be claiming that thyroid nodules often don’t interfere with the thyroid gland, so that’s good.  And, like I said, I had a cyst that didn’t interfere with my thyroid function, though I was put on synthroid for a while in order to shut my thyroid down in the hopes that it would stop stimulating the cyst. And it looks as if hyperthyroidism is more likely than hypothyroidism if you have nodules.  I know so much less about hyperthyroidism!   But I would consider it a bit strange if no one, doctor-wise, wanted to take a close CLOSE look at any sort of lump or bump around the thyroid.  As I said, the tests they gave me were ultrasound and radioactive iodine (I think).  Both tests were painless and simple (actually, I like ultrasounds.  I’m weird), though I can’t remember anything about costs, if that’s an issue.  The ultrasound is likely fairly cheap, since it’s quick and doesn’t require any sort of extra preparation or super-fancy whizbangs. Hope all of these rambles have been of some help, and if I think of anything else, I’ll try to let you know. — Julie Carter

Response:

Hi everyone! Have a few questions for those of you who have thyroid disease/problems. When I had my MRI for the neck and shoulder injuries I got from my fall in the shower, the neck MRI showed that there were several 16-17 mm growths in my neck thought to be possibly thyroid ?nodules.  My pcp had me go get blood drawn for a TSH.  The TSH came back at 1.39 so the pcp said everything is fine and not to worry.   I just want to make sure that this is the standard way to deal with this and that I don’t need to be looking into anything else.  Can the RA and the sjogrens cause the growths on the thyroid?  As long as your TSH is normal, does that mean you can’t have any thyroid problems?  Are the growths generally not something to be concerned about?  I do have a fair amount of swelling in my neck, but that has been there for at least a year so the pcp says no need to worry.  I have also been told that if you prednisone can greatly alter the TSH and other thyroid tests—anyone know if this is true? Does it make a difference what time of day you get the test done? Any information or feed back would be greatly appreciated!!!   Donna G

Response:

– Hide quoted text — Show quoted text -Hi everyone! Have a few questions for those of you who have thyroid disease/problems. When I had my MRI for the neck and shoulder injuries I got from my fall in the shower, the neck MRI showed that there were several 16-17 mm growths in my neck thought to be possibly thyroid ?nodules.  My pcp had me go get blood drawn for a TSH.  The TSH came back at 1.39 so the pcp said everything is fine and not to worry.   I just want to make sure that this is the standard way to deal with this and that I don’t need to be looking into anything else.  Can the RA and the sjogrens cause the growths on the thyroid?  As long as your TSH is normal, does that mean you can’t have any thyroid problems?  Are the growths generally not something to be concerned about?  I do have a fair amount of swelling in my neck, but that has been there for at least a year so the pcp says no need to worry.  I have also been told that if you prednisone can greatly alter the TSH and other thyroid tests—anyone know if this is true? Does it make a difference what time of day you get the test done? Any information or feed back would be greatly appreciated!!!  

Hi, Donna. I do not have thyroid disease, but I have had a thyroid cyst, so I have some information. First, there is a LOT of argument about what the "normal" range for TSH and T3 and T4 should be.  A lot.  Many people argue that the so-called "normal" range is not nearly as narrow as it should be, and that there are lots of people who fall into the "normal" category who actually show signs of being hypo/hyper thyroid. So, while taking a thyroid cascade and comparing those results to "normal" is very much the standard way to test for thyroid problems, there is still debate about it. Second, when I developed the cyst, my thyroid was still functioning properly.  The fear was that it would stop and that the cyst was something less benign.  An MRI and thyroid blood test absolutely does NOT identify these nodules as being unconnected with the thyroid. Thyroid cysts are, apparently, fairly common. It would seem they are assuming that the nodules could be goiters, which are always (I think) caused by overproduction of TSH. Having it for a long time does not mean there is no cause for worry. Thyroid cancers (not to be alarmist, but any "nodules" could be something grim) are slow growing.  So you probably aren’t in immediate danger even if they are cancerous, but that doesn’t mean you want to ignore them! I’m very surprised they didn’t send you in for additional testing.  To diagnose my cyst, they gave me a radioactive drink (sorry that I can’t remember what) and I had both an ultrasound and some sort of radioactive imaging of my neck. Then, they aspirated it, and when those results came back negative, the surgeon wanted to do a biopsy.  I refused the biopsy, since he really couldn’t offer a good reason to have it done, but that shows how far they wanted to take the diagnosis. I guess this ramble is meant to say that I’m a bit concerned about the diagnosis you’ve gotten.  I know *nothing* about how thyroid might be influenced by arthritis, arthritis drugs, or even the time of day. Hope this helps. Julie Carter — Yahoo sucks.

Response:

– Hide quoted text — Show quoted text -Hi everyone! Have a few questions for those of you who have thyroid disease/problems. When I had my MRI for the neck and shoulder injuries I got from my fall in the shower, the neck MRI showed that there were several 16-17 mm growths in my neck thought to be possibly thyroid ?nodules.  My pcp had me go get blood drawn for a TSH.  The TSH came back at 1.39 so the pcp said everything is fine and not to worry.   I just want to make sure that this is the standard way to deal with this and that I don’t need to be looking into anything else.  Can the RA and the sjogrens cause the growths on the thyroid?  As long as your TSH is normal, does that mean you can’t have any thyroid problems?  Are the growths generally not something to be concerned about?  I do have a fair amount of swelling in my neck, but that has been there for at least a year so the pcp says no need to worry.  I have also been told that if you prednisone can greatly alter the TSH and other thyroid tests—anyone know if this is true? Does it make a difference what time of day you get the test done? Any information or feed back would be greatly appreciated!!!  

I found this site which does a good job of explaining the basics of thyroid diseases. I see one especially important line:  "Rarely the TSH level may be suppressed by drugs (such as corticosteroids) or by severe psychiatric or non-thyroidal illness. However, such circumstances are extremely rare in the out-patient setting." Again, hope this helps.  And if you have any symptoms of hypo/hyper thyroidism, be sure to let your doctor know. Julie Carter — Yahoo sucks.

Response:

Body temperature and Metabolism

Question:

What is that?  T-3 is the therapy of choice for Wilson’s Syndrome. — Desiree FAQ:  www.grossweb.com/asdlc/faq.htm or       www.people.we.mediaone.net/agross/asdlc visit:   www.lowcarb.org (for info, links and a host of other  stuff)

: I have Wilson’s and my body temp is 86 or 97 most of the time. i take : Eltroxin but it hasn’t made a difference. :

: : <snips : : Generally, body temp is an indicator of metabolism drops – ie – if body : temp drops, metabolism has as well. : : Cheers, : Nina : : : Diva

Response:

A constant low body temperature is an indication of a slow functioning thyroid. – Hide quoted text — Show quoted text – Anybody know if there is a link between body temp and metabolism (speed of)? Lynne Generally, body temp is an indicator of metabolism drops – ie – if body temp drops, metabolism has as well. Cheers, Nina Well, that explains a lot.  My normal temp is 97.something.  I wonder if my temp would be higher while stacking?                                  Ann Dyslexics of the world, "UNTIE"!! PP from roughly 01-01-02 185-ish/166 new goal -size 8 great session at the gym today total of 3" gone forever. Lower on scale too, but I don’t know if I trust theirs.

Miss Jaime (Hamilton Ontario Canada) ***The basic low carb is enough plainly cooked meat/fish/eggs/poultry to take away your hunger, plenty of oils to get adequate nutrition and calories and plenty of green, leafy vegetables, and water****

Response:

When I get stuck at a weight, my body temp drops 3-4 degrees. When I break the weight, the temp goes right back up. Or, you could just be underproducing thyroid.

– Hide quoted text — Show quoted text – Anybody know if there is a link between body temp and metabolism (speed of)? Lynne

Response:

Anybody know if there is a link between body temp and metabolism (speed of)? Lynne

Response:

Yes there is a link between temp and metabolism as they are both controlled by the Thyroid.  Low temp can indicate low thyroid function.  Check out the last link and look for Wilson’s Syndrome and anything on Thyroid. — Desiree FAQ:  www.grossweb.com/asdlc/faq.htm or       www.people.we.mediaone.net/agross/asdlc visit:   www.lowcarb.org (for info, links and a host of other  stuff)

: Anybody know if there is a link between body temp and metabolism : (speed of)? : : Lynne

Response:

Anybody know if there is a link between body temp and metabolism (speed of)? Lynne

Generally, body temp is an indicator of metabolism drops – ie – if body temp drops, metabolism has as well. Cheers, Nina — http://www.theslack.com "Nina likes to pretend that she knows anything about dieting. She suffers from Necesstaric Personality Disorder which does not allow her to incorporate the views of others. Estimated IQ: 100" — Ari Lindemann, aka Righteous Anger on alt.support.diet 4/8/02

Response:

Anybody know if there is a link between body temp and metabolism (speed of)? Lynne Generally, body temp is an indicator of metabolism drops – ie – if body temp drops, metabolism has as well. Cheers, Nina

Well, that explains a lot.  My normal temp is 97.something.  I wonder if my temp would be higher while stacking?                                   Ann Dyslexics of the world, "UNTIE"!! PP from roughly 01-01-02 185-ish/166 new goal -size 8 great session at the gym today total of 3" gone forever. Lower on scale too, but I don’t know if I trust theirs.

Response:

Well, that explains a lot.  My normal temp is 97.something.  I wonder if my temp would be higher while stacking?                                  Ann

I’ve been tracking my temp for the last week and it’s never above 96.5 – even after vigorous exercise. I have an appointment on the 25th for a complete physical. I’m hoping we can come up with an explanation for my snail-pace weight loss. I’m not complaining – I’d rather lose than gain, but I’m afraid to take a day away from exercise in case it all piles back on! *LOL* Lynne

Response:

<snips Generally, body temp is an indicator of metabolism drops – ie – if body temp drops, metabolism has as well. Cheers, Nina Well, that explains a lot.  My normal temp is 97.something.  I wonder if my temp would be higher while stacking?                                   Ann

Ann, FWIW, I tracked my temp for a while and it was only close to normal in the evening and when I was ovulating.  My doc gave me a prescription for Wilson’s syndrome meds and my temps turned normal.  Not permanently, 2 cycles of meds didn’t ‘reset’ my thyroid, but on the 98.6 days I felt great, like twice as good as when I got into LC.  That was last year, and this year my doc prescribed armour thyroid based on 1) hypothyroid symptoms on my health history, 2) my response to the Wilson’s meds, and 3) completely ‘normal’ thyroid blood test results.  My last TSH result showed me as hypERthyroid, but doc said the other numbers were right where they should be. Now I feel awsome and I’ve had 6 regular periods (my record is 2) in a row. Speck 210/160/145

Response:

I have Wilson’s and my body temp is 86 or 97 most of the time. i take Eltroxin but it hasn’t made a difference. <snips Generally, body temp is an indicator of metabolism drops – ie – if body temp drops, metabolism has as well. Cheers, Nina

Diva

Response:

See the last link my sig line.  Look for Wilson’s Syndrome and anything related to the thyroid.  Also visit www.about.thryoid.com  There a few quick home test you can do involving temp to check out your thyroid function. — Desiree FAQ:  www.grossweb.com/asdlc/faq.htm or       www.people.we.mediaone.net/agross/asdlc visit:   www.lowcarb.org (for info, links and a host of other  stuff)

: : Well, that explains a lot.  My normal temp is 97.something.  I wonder : if my temp would be higher while stacking? :                                  Ann : : I’ve been tracking my temp for the last week and it’s never above 96.5 : – even after vigorous exercise. I have an appointment on the 25th for : a complete physical. I’m hoping we can come up with an explanation for : my snail-pace weight loss. I’m not complaining – I’d rather lose than : gain, but I’m afraid to take a day away from exercise in case it all : piles back on! *LOL* : : Lynne

Response:

Very Sick Kitty

Question:

Tabitha is 17 years old (and lives with my parents since she is too old to move and has lived there for so long it wouldn’t be fair to her to uproot her but she is still MY BABY) and a couple of months ago we took her to the vet because she had lost over 1/3 of her body weight but was eating non-stop, her fur was matter, greasy and gross and she had taken to sleeping behind the furnace (a dark, dirty and quite place to hide). She only came out when noone was looking to eat and use the litter box. We spent $300 for them to keep her over night to rehidrate her since she was severely dehydrated and for blood work (they thought she had kidney failure). They found she had a thyroid problem and put her on medication. She seemed to do so much better after that… gained weight, was sleeping on the rec room couch, coming upstairs to ”talk” to us. We need to bath her every couple of weeks (she’s doesn’t bother to clean herself anymore, so the vet recommended we bath her) and 2 days ago when my Dad got home Tabitha had pooped on the rec room carpet a couple of times (diareah) but seemed fine otherwise… so he gave her a bath (she needed one) and noticed she had lost ALOT of weight again (she’s got so much fur it’s hard to tell sometimes if she’s lost weight since she doesn’t like to be picked up). She went to the vets today and they are keeping her for 48 hours for IV fluids (she’s severely dehydrated again) and a complete blood work-up. The vet doesn’t think this is related to her thyroid (she had a thyroid blood test a little while ago and she was great) so they are testing her for everything (cancer, kidney failure etc…)   They suspect bowel cancer may be the problem… not sure why?!?!  Or what the symptoms of this are??? Has anyone been through this? Could it be something easy to fix? Any idea if we are going to need to put her down?

Response:

It sounds like thyroid to me… Peace, Penelope

– Hide quoted text — Show quoted text – Tabitha is 17 years old (and lives with my parents since she is too old to move and has lived there for so long it wouldn’t be fair to her to uproot her but she is still MY BABY) and a couple of months ago we took her to the vet because she had lost over 1/3 of her body weight but was eating non-stop, her fur was matter, greasy and gross and she had taken to sleeping behind the furnace (a dark, dirty and quite place to hide). She only came out when noone was looking to eat and use the litter box. We spent $300 for them to keep her over night to rehidrate her since she was severely dehydrated and for blood work (they thought she had kidney failure). They found she had a thyroid problem and put her on medication. She seemed to do so much better after that… gained weight, was sleeping on the rec room couch, coming upstairs to ”talk” to us. We need to bath her every couple of weeks (she’s doesn’t bother to clean herself anymore, so the vet recommended we bath her) and 2 days ago when my Dad got home Tabitha had pooped on the rec room carpet a couple of times (diareah) but seemed fine otherwise… so he gave her a bath (she needed one) and noticed she had lost ALOT of weight again (she’s got so much fur it’s hard to tell sometimes if she’s lost weight since she doesn’t like to be picked up). She went to the vets today and they are keeping her for 48 hours for IV fluids (she’s severely dehydrated again) and a complete blood work-up. The vet doesn’t think this is related to her thyroid (she had a thyroid blood test a little while ago and she was great) so they are testing her for everything (cancer, kidney failure etc…)   They suspect bowel cancer may be the problem… not sure why?!?!  Or what the symptoms of this are??? Has anyone been through this? Could it be something easy to fix? Any idea if we are going to need to put her down?

Response:

It could be so many things. Blood work must be done and maybe other tests as well. It could be thyroid problems again, chronic renal failure, cancer, diabetes, etc. The first thing they must do is diagnose the problem before it can be treated. Gail – Hide quoted text — Show quoted text – Tabitha is 17 years old (and lives with my parents since she is too old to move and has lived there for so long it wouldn’t be fair to her to uproot her but she is still MY BABY) and a couple of months ago we took her to the vet because she had lost over 1/3 of her body weight but was eating non-stop, her fur was matter, greasy and gross and she had taken to sleeping behind the furnace (a dark, dirty and quite place to hide). She only came out when noone was looking to eat and use the litter box. We spent $300 for them to keep her over night to rehidrate her since she was severely dehydrated and for blood work (they thought she had kidney failure). They found she had a thyroid problem and put her on medication. She seemed to do so much better after that… gained weight, was sleeping on the rec room couch, coming upstairs to ”talk” to us. We need to bath her every couple of weeks (she’s doesn’t bother to clean herself anymore, so the vet recommended we bath her) and 2 days ago when my Dad got home Tabitha had pooped on the rec room carpet a couple of times (diareah) but seemed fine otherwise… so he gave her a bath (she needed one) and noticed she had lost ALOT of weight again (she’s got so much fur it’s hard to tell sometimes if she’s lost weight since she doesn’t like to be picked up). She went to the vets today and they are keeping her for 48 hours for IV fluids (she’s severely dehydrated again) and a complete blood work-up. The vet doesn’t think this is related to her thyroid (she had a thyroid blood test a little while ago and she was great) so they are testing her for everything (cancer, kidney failure etc…)   They suspect bowel cancer may be the problem… not sure why?!?!  Or what the symptoms of this are??? Has anyone been through this? Could it be something easy to fix? Any idea if we are going to need to put her down?

Response:

Tabitha is 17 years old (and lives with my parents since she is too old to move and has lived there for so long it wouldn’t be fair to her to uproot her but she is still MY BABY) and a couple of months ago we took her to the vet because she had lost over 1/3 of her body weight but was eating non-stop, her fur was matter, greasy and gross and she had taken to sleeping behind the furnace (a dark, dirty and quite place to hide). She only came out when noone was looking to eat and use the litter box. We spent $300 for them to keep her over night to rehidrate her since she was severely dehydrated and for blood work (they thought she had kidney failure). They found she had a thyroid problem and put her on medication. She seemed to do so much better after that… gained weight, was sleeping on the rec room couch, coming upstairs to ”talk” to us. We need to bath her every couple of weeks (she’s doesn’t bother to clean herself anymore, so the vet recommended we bath her) and 2 days ago when my Dad got home Tabitha had pooped on the rec room carpet a couple of times (diareah) but seemed fine otherwise… so he gave her a bath (she needed one) and noticed she had lost ALOT of weight again (she’s got so much fur it’s hard to tell sometimes if she’s lost weight since she doesn’t like to be picked up). She went to the vets today and they are keeping her for 48 hours for IV fluids (she’s severely dehydrated again) and a complete blood work-up. The vet doesn’t think this is related to her thyroid (she had a thyroid blood test a little while ago and she was great) so they are testing her for everything (cancer, kidney failure etc…)   They suspect bowel cancer may be the problem… not sure why?!?!  Or what the symptoms of this are??? Has anyone been through this? Could it be something easy to fix? Any idea if we are going to need to put her down?

Response:

It sounds like thyroid to me… Peace, Penelope

– Hide quoted text — Show quoted text – Tabitha is 17 years old (and lives with my parents since she is too old to move and has lived there for so long it wouldn’t be fair to her to uproot her but she is still MY BABY) and a couple of months ago we took her to the vet because she had lost over 1/3 of her body weight but was eating non-stop, her fur was matter, greasy and gross and she had taken to sleeping behind the furnace (a dark, dirty and quite place to hide). She only came out when noone was looking to eat and use the litter box. We spent $300 for them to keep her over night to rehidrate her since she was severely dehydrated and for blood work (they thought she had kidney failure). They found she had a thyroid problem and put her on medication. She seemed to do so much better after that… gained weight, was sleeping on the rec room couch, coming upstairs to ”talk” to us. We need to bath her every couple of weeks (she’s doesn’t bother to clean herself anymore, so the vet recommended we bath her) and 2 days ago when my Dad got home Tabitha had pooped on the rec room carpet a couple of times (diareah) but seemed fine otherwise… so he gave her a bath (she needed one) and noticed she had lost ALOT of weight again (she’s got so much fur it’s hard to tell sometimes if she’s lost weight since she doesn’t like to be picked up). She went to the vets today and they are keeping her for 48 hours for IV fluids (she’s severely dehydrated again) and a complete blood work-up. The vet doesn’t think this is related to her thyroid (she had a thyroid blood test a little while ago and she was great) so they are testing her for everything (cancer, kidney failure etc…)   They suspect bowel cancer may be the problem… not sure why?!?!  Or what the symptoms of this are??? Has anyone been through this? Could it be something easy to fix? Any idea if we are going to need to put her down?

Response:

It could be so many things. Blood work must be done and maybe other tests as well. It could be thyroid problems again, chronic renal failure, cancer, diabetes, etc. The first thing they must do is diagnose the problem before it can be treated. Gail – Hide quoted text — Show quoted text – Tabitha is 17 years old (and lives with my parents since she is too old to move and has lived there for so long it wouldn’t be fair to her to uproot her but she is still MY BABY) and a couple of months ago we took her to the vet because she had lost over 1/3 of her body weight but was eating non-stop, her fur was matter, greasy and gross and she had taken to sleeping behind the furnace (a dark, dirty and quite place to hide). She only came out when noone was looking to eat and use the litter box. We spent $300 for them to keep her over night to rehidrate her since she was severely dehydrated and for blood work (they thought she had kidney failure). They found she had a thyroid problem and put her on medication. She seemed to do so much better after that… gained weight, was sleeping on the rec room couch, coming upstairs to ”talk” to us. We need to bath her every couple of weeks (she’s doesn’t bother to clean herself anymore, so the vet recommended we bath her) and 2 days ago when my Dad got home Tabitha had pooped on the rec room carpet a couple of times (diareah) but seemed fine otherwise… so he gave her a bath (she needed one) and noticed she had lost ALOT of weight again (she’s got so much fur it’s hard to tell sometimes if she’s lost weight since she doesn’t like to be picked up). She went to the vets today and they are keeping her for 48 hours for IV fluids (she’s severely dehydrated again) and a complete blood work-up. The vet doesn’t think this is related to her thyroid (she had a thyroid blood test a little while ago and she was great) so they are testing her for everything (cancer, kidney failure etc…)   They suspect bowel cancer may be the problem… not sure why?!?!  Or what the symptoms of this are??? Has anyone been through this? Could it be something easy to fix? Any idea if we are going to need to put her down?

Response:

Tabitha is 17 years old (and lives with my parents since she is too old to move and has lived there for so long it wouldn’t be fair to her to uproot her but she is still MY BABY) and a couple of months ago we took her to the vet because she had lost over 1/3 of her body weight but was eating non-stop, her fur was matter, greasy and gross and she had taken to sleeping behind the furnace (a dark, dirty and quite place to hide). She only came out when noone was looking to eat and use the litter box. We spent $300 for them to keep her over night to rehidrate her since she was severely dehydrated and for blood work (they thought she had kidney failure). They found she had a thyroid problem and put her on medication. She seemed to do so much better after that… gained weight, was sleeping on the rec room couch, coming upstairs to ”talk” to us. We need to bath her every couple of weeks (she’s doesn’t bother to clean herself anymore, so the vet recommended we bath her) and 2 days ago when my Dad got home Tabitha had pooped on the rec room carpet a couple of times (diareah) but seemed fine otherwise… so he gave her a bath (she needed one) and noticed she had lost ALOT of weight again (she’s got so much fur it’s hard to tell sometimes if she’s lost weight since she doesn’t like to be picked up). She went to the vets today and they are keeping her for 48 hours for IV fluids (she’s severely dehydrated again) and a complete blood work-up. The vet doesn’t think this is related to her thyroid (she had a thyroid blood test a little while ago and she was great) so they are testing her for everything (cancer, kidney failure etc…)   They suspect bowel cancer may be the problem… not sure why?!?!  Or what the symptoms of this are??? Has anyone been through this? Could it be something easy to fix? Any idea if we are going to need to put her down?

Response:

It sounds like thyroid to me… Peace, Penelope

– Hide quoted text — Show quoted text – Tabitha is 17 years old (and lives with my parents since she is too old to move and has lived there for so long it wouldn’t be fair to her to uproot her but she is still MY BABY) and a couple of months ago we took her to the vet because she had lost over 1/3 of her body weight but was eating non-stop, her fur was matter, greasy and gross and she had taken to sleeping behind the furnace (a dark, dirty and quite place to hide). She only came out when noone was looking to eat and use the litter box. We spent $300 for them to keep her over night to rehidrate her since she was severely dehydrated and for blood work (they thought she had kidney failure). They found she had a thyroid problem and put her on medication. She seemed to do so much better after that… gained weight, was sleeping on the rec room couch, coming upstairs to ”talk” to us. We need to bath her every couple of weeks (she’s doesn’t bother to clean herself anymore, so the vet recommended we bath her) and 2 days ago when my Dad got home Tabitha had pooped on the rec room carpet a couple of times (diareah) but seemed fine otherwise… so he gave her a bath (she needed one) and noticed she had lost ALOT of weight again (she’s got so much fur it’s hard to tell sometimes if she’s lost weight since she doesn’t like to be picked up). She went to the vets today and they are keeping her for 48 hours for IV fluids (she’s severely dehydrated again) and a complete blood work-up. The vet doesn’t think this is related to her thyroid (she had a thyroid blood test a little while ago and she was great) so they are testing her for everything (cancer, kidney failure etc…)   They suspect bowel cancer may be the problem… not sure why?!?!  Or what the symptoms of this are??? Has anyone been through this? Could it be something easy to fix? Any idea if we are going to need to put her down?

Response:

It could be so many things. Blood work must be done and maybe other tests as well. It could be thyroid problems again, chronic renal failure, cancer, diabetes, etc. The first thing they must do is diagnose the problem before it can be treated. Gail – Hide quoted text — Show quoted text – Tabitha is 17 years old (and lives with my parents since she is too old to move and has lived there for so long it wouldn’t be fair to her to uproot her but she is still MY BABY) and a couple of months ago we took her to the vet because she had lost over 1/3 of her body weight but was eating non-stop, her fur was matter, greasy and gross and she had taken to sleeping behind the furnace (a dark, dirty and quite place to hide). She only came out when noone was looking to eat and use the litter box. We spent $300 for them to keep her over night to rehidrate her since she was severely dehydrated and for blood work (they thought she had kidney failure). They found she had a thyroid problem and put her on medication. She seemed to do so much better after that… gained weight, was sleeping on the rec room couch, coming upstairs to ”talk” to us. We need to bath her every couple of weeks (she’s doesn’t bother to clean herself anymore, so the vet recommended we bath her) and 2 days ago when my Dad got home Tabitha had pooped on the rec room carpet a couple of times (diareah) but seemed fine otherwise… so he gave her a bath (she needed one) and noticed she had lost ALOT of weight again (she’s got so much fur it’s hard to tell sometimes if she’s lost weight since she doesn’t like to be picked up). She went to the vets today and they are keeping her for 48 hours for IV fluids (she’s severely dehydrated again) and a complete blood work-up. The vet doesn’t think this is related to her thyroid (she had a thyroid blood test a little while ago and she was great) so they are testing her for everything (cancer, kidney failure etc…)   They suspect bowel cancer may be the problem… not sure why?!?!  Or what the symptoms of this are??? Has anyone been through this? Could it be something easy to fix? Any idea if we are going to need to put her down?

Response: