Posts belonging to Category 'Thyroid Hormone Levels'

ATTN: Margrove

Question:

I was told that you might have some helpfull insight into my siutation. To make it short and sweet for you, I have OCD Generalized Anixeity Disorder Major Depressive Disorder ADHD IBS Migranes Fatty Liver Disorder PLMD I am on: 75mg effexxor for migrane controal 150 MG of Luvox for OCD / depression Xanax for anixeity PRN Atarat to help me sleep.  (I am tolerant to all of the hyponotics, and it takes me about 2mgs of fast acting xanax to put me to sleep) Right now my Biggest concers are: In this Order Addressing the underlying issue of PLMD Getting the OCD / Anixeity / Depression More under controal. Dealing with the ADHD Dealing with IBS Dealing with Fatty Liver disorder. I am planning to use more xanax to get me though a rough time here for a while, but then I would rather not relay on them permently. I am taking several natural suplments that larry has suggested (Note: I am very greatful for all his help) , that seem to help me feel better, but they are not a cure for these serious problems. I know some of this may be out of your scope, but I was told to ask you because my understanding is you are the "drug" "GOD" SIDE NOTE: MY THOUGH ARE TO UP THE LUVOX TO 300, THEN DECRESE XANAX TO LIGHT PRN USE. THEN ADD IN PAXIL. THEN ADD IN SOMETHING FOR ADHD THANKS IN ADVANCE AND MERRY CHRISTMAS! — -Jamie

Response:

<<  am taking several natural suplments that larry has suggested Larry who? << (Note: I am very greatful for all his help) , that seem to help me feel better, but they are not a cure for these serious problems. I know some of this may be out of your scope, but I was told to ask you because my understanding is you are the "drug" "GOD" Who? And who’s Margrove? Are you in Westchster, Or are you a Jester? Or just a Quester? If so, try here ~ http://www.themodernantiquarian.com/home/ _______ Blog, or dog? Who knows. But if you see my lost pup, please ping me! <A HREF="http://journals.aol.com/virginiaz/DreamingofLeonardo"http://journal s.aol.com/virginiaz/DreamingofLeonardo</A

Response:

Larry who?

Larry Hover from ASDM I received the referance to Mangrove from the following e-mail: Below you will see my current decission making process for my depression, OCD, Anixeity that I am going though.  Since I also have ADHD, I am wondering if this group also might have some additional feed back that I should take into consideration as I am changing my medications aroeound:

Hi Jamie, I know you’ve already asked this on ASAPM but I think at the time Margrove wasn’t online… if he didn’t respond that time it probably was posted during that time period. It might be a good question for him since he does have a lot of medical/psychiatry knowledge, if you put his name in the subject line he’ll usually reply. I don’t think he has time to read *everything* so it’s a good way to catch his attention. I’m sorry I don’t have any ideas on the med front, right now my own ADHD isn’t medicated. Good luck anyway! Vashti So that is why I wrote this message here to Mangrove.  And anyone else that is intrested is welcome to post. Jamie – Hide quoted text — Show quoted text – << (Note: I am very greatful for all his help) , that seem to help me feel better, but they are not a cure for these serious problems. I know some of this may be out of your scope, but I was told to ask you because my understanding is you are the "drug" "GOD" Who? And who’s Margrove? Are you in Westchster, Or are you a Jester? Or just a Quester? If so, try here ~ http://www.themodernantiquarian.com/home/ _______ Blog, or dog? Who knows. But if you see my lost pup, please ping me! <A HREF="http://journals.aol.com/virginiaz/DreamingofLeonardo"http://journal s.aol.com/virginiaz/DreamingofLeonardo</A

Response:

– Hide quoted text — Show quoted text – I was told that you might have some helpfull insight into my siutation. To make it short and sweet for you, I have OCD Generalized Anixeity Disorder Major Depressive Disorder ADHD IBS Migranes Fatty Liver Disorder PLMD I am on: 75mg effexxor for migrane controal 150 MG of Luvox for OCD / depression Xanax for anixeity PRN Atarat to help me sleep.  (I am tolerant to all of the hyponotics, and it takes me about 2mgs of fast acting xanax to put me to sleep) Right now my Biggest concers are: In this Order Addressing the underlying issue of PLMD Getting the OCD / Anixeity / Depression More under controal. Dealing with the ADHD Dealing with IBS Dealing with Fatty Liver disorder. I am planning to use more xanax to get me though a rough time here for a while, but then I would rather not relay on them permently. I am taking several natural suplments that larry has suggested (Note: I am very greatful for all his help) , that seem to help me feel better, but they are not a cure for these serious problems. I know some of this may be out of your scope, but I was told to ask you because my understanding is you are the "drug" "GOD" SIDE NOTE: MY THOUGH ARE TO UP THE LUVOX TO 300, THEN DECRESE XANAX TO LIGHT PRN USE. THEN ADD IN PAXIL. THEN ADD IN SOMETHING FOR ADHD THANKS IN ADVANCE AND MERRY CHRISTMAS!

Is your fatty liver disorder from ingestion of significant quantities of ethanol? ADHD stimulant treatment can increase anxiety, but individual responses are highly variable.  Stims increase my anxiety but you might be different. Strattera has been associated with some liver problems and we are still in the process of finding out the extent of this problem. Looks like it is not an option for you. Methylphenidate (generic Ritalin) would probably be the ADHD med of choice for you because of the anxiety issue. Paxil treats anxiety/depression but can worsen attention problems. You need to address cytochrome 450 issues when you have liver problems and mix meds.  Drugs could have a longer 1/2 life in your system than for a "normal" person. Paxil is a drug that affects cytochrome 450 potentially causing other drugs to not break down in your system. Have you had your thyroid hormone levels checked? _george

Response:

Is your fatty liver disorder from ingestion of significant quantities of ethanol?

NO.  This is NASH   or non achollic systematic hepatic something something… ADHD stimulant treatment can increase anxiety, but individual responses are highly variable.  Stims increase my anxiety but you might be different. Strattera has been associated with some liver problems and we are still in the process of finding out the extent of this problem. Looks like it is not an option for you.

I am going to stary away from streterra. Methylphenidate (generic Ritalin) would probably be the ADHD med of choice for you because of the anxiety issue.

Is that the same as Focalin  or similar ? Paxil treats anxiety/depression but can worsen attention problems. You need to address cytochrome 450 issues when you have liver problems and mix meds.  Drugs could have a longer 1/2 life in your system than for a "normal" person. Paxil is a drug that affects cytochrome 450 potentially causing other drugs to not break down in your system. Have you had your thyroid hormone levels checked?

Yes.  All normal. Thanks, Jamie – Hide quoted text — Show quoted text – _george

Response:

– Hide quoted text — Show quoted text – Is your fatty liver disorder from ingestion of significant quantities of ethanol? NO.  This is NASH   or non achollic systematic hepatic something something… ADHD stimulant treatment can increase anxiety, but individual responses are highly variable.  Stims increase my anxiety but you might be different. Strattera has been associated with some liver problems and we are still in the process of finding out the extent of this problem. Looks like it is not an option for you. I am going to stary away from streterra. Methylphenidate (generic Ritalin) would probably be the ADHD med of choice for you because of the anxiety issue. Is that the same as Focalin  or similar ?

Focalin is dextromethylphenidate.  Ritalin (methylphenidate)is a racemic mixture – a mixture of mirror image molecules. Focalin is just the "right handed" molecule.  Focalin primarily affects the striatum. It is a more focused drug.  Ritalin affects the frontal lobes and the striatum and is more dispersed than Focalin.  At least that’s what I have read. Generic methylphenidate, which is cheap, works well for many people but not all generics are created equal. _george

Response:

Right now my Biggest concers are: In this Order Addressing the underlying issue of PLMD

You might see about getting a serum ferritin test.  RLS and PLMD can be exacerbated by low levels of iron – while it’s a bit unusual for males to have low iron levels, it’s not unheard of, and getting ferritin back up into the 30s or 40s can make PLMD a whole lot better.  I’m assuming you were diagnosed with PLMD via a sleep test – if you weren’t, you should have one, since hypoxia related to sleep apnea can make the legs twitch in a fair imitation of PLMD. Getting the OCD / Anixeity / Depression More under controal. Dealing with the ADHD

I don’t know enough about meds for comorbid disorders to feel confident about making any drug suggestions, but I suspect some daily exercise would help all these.  If you can get yourself out for a walk sometime in the day that would be a start. Dealing with IBS Dealing with Fatty Liver disorder.

Probably the only cogent thing I could say about IBS is find out your big triggers and avoid them.  For me it’s eggs.  Once I stopped eating them for breakfast everything else pretty much calmed down. I am planning to use more xanax to get me though a rough time here for a while, but then I would rather not relay on them permently.

Probably a good idea not to rely on xanax for more than a little while. I am taking several natural suplments that larry has suggested (Note: I am very greatful for all his help) , that seem to help me feel better, but they are not a cure for these serious problems.

Just out of curiosity, would you care to share what you’re taking for supplements? I know some of this may be out of your scope, but I was told to ask you because my understanding is you are the "drug" "GOD"

Heh, am I the only person for whom "drug GOD" brings back just a hint of that wildly well-spent hippie youth? ;-) Katherine

Response:

[snip] I received the referance to Mangrove from the following e-mail:

[snip email] Heya Jamie, In this instance it doesn’t matter much since what I emailed you about wasn’t really sensitive but normally it is considered to be *very* wrong/rude to post emails to newsgroups. I only emailed you because I didn’t think it would be of interest to ADHDers. Best if you try to remember not to post emails in the future: a lot of people can get quite upset about it. So that is why I wrote this message here to Mangrove.  And anyone else that is intrested is welcome to post.

<g That would be *Margrove* though I tend to get Mangrove stuck in my head myself… I think he only reads the anxiety newsgroups (both alt.support.anxiety-panic and alt.support.anxiety-panic.moderated) but I see you’ve already posted in the first group… hope his response is helpful as well as the others, those are good people. Good luck! :) Vashti

Response:

[snip] I know some of this may be out of your scope, but I was told to ask you because my understanding is you are the "drug" "GOD" Heh, am I the only person for whom "drug GOD" brings back just a hint of that wildly well-spent hippie youth? ;-)

LOL! Well I never said he was a drug GOD, just that might be a good idea for Jamie to direct his question to him. I’m not in a position to comment on his youth<g, he just happens to be a psychiatrist who posts to the anxiety-panic newsgroups and learned about panic and anxiety the hard way: personal experience. He’s helped countless people over the years including myself,  to be sure he sees a message it’s usually best to add his name in the headers as no one can be expected to read everything. A few years ago when my panic started out of the blue he was the one who made me realise that my own thoughts about what was happening were perpetuating and increasing my panic. He isn’t infallible or a saint and isn’t known for mollycoddling folk but he can be trusted to give his honest opinion as to what would be helpful for an individual. He doesn’t peddle snake-oil or offer quick fixes… lol, I guess I could have just said that I think he’s one of the good guys! ;) Sorry… I didn’t *mean* to wax lyrical! :D The Vashti of Too Many Words

Response:

Heh, am I the only person for whom "drug GOD" brings back just a hint of that wildly well-spent hippie youth? ;-) LOL! Well I never said he was a drug GOD, just that might be a good idea for Jamie to direct his question to him. I’m not in a position to comment on his youth<g, he just happens to be a psychiatrist who posts to the anxiety-panic newsgroups and learned about panic and anxiety the hard way: personal experience. He’s helped countless people over the years including myself,  to be sure he sees a message it’s usually best to add his name in the headers as no one can be expected to read

everything. There’s nothing like personal experience to show you what something is like, is there?  I go to a dentist who has a hard time getting anesthetized, just like I do, and he’s great – he’s never said "Oh, *that* can’t hurt!", not even once! Speaking of drug gods (this is an "Oh look, a moth!" moment) I’m also reminded a bit of the anesthesiologist who handled the anesthesia for Susan’s ankle surgery.  He showed up in the pre-op room with a syringe full of heavy drugs and a BIG smile on his face!   You just knew he was the guy in medical school who was always huffing the nitrous oxide.  Now *he* was a drug god…. ;-) A few years ago when my panic started out of the blue he was the one who made me realise that my own thoughts about what was happening were perpetuating and increasing my panic.

Yes, it’s worse to be panicked about being panicked than it is to just be panicked, isn’t it?  I used to call them "adrenaline power surges", and try to breathe slowly and evenly until it went away, but jeez, it’s hard to maintain your equanimity sometimes. He isn’t infallible or a saint and isn’t known for mollycoddling folk but he can be trusted to give his honest opinion as to what would be helpful for an individual. He doesn’t peddle snake-oil or offer quick fixes… lol, I guess I could have just said that I think he’s one of the good guys! ;)

Sounds like a good man – it’s wonderful that Usenet still has people like that around. Katherine

Response:

Hey, I am really really sorry. I though I sniped your info out of it and just used a piece of the e-mail message. This was completely my fault, I only ment to make an anonymous exerpt from your e-mail. Again, My sincerest applogies.. Jamie — -Jamie

– Hide quoted text — Show quoted text – [snip] I received the referance to Mangrove from the following e-mail: [snip email] Heya Jamie, In this instance it doesn’t matter much since what I emailed you about wasn’t really sensitive but normally it is considered to be *very* wrong/rude to post emails to newsgroups. I only emailed you because I didn’t think it would be of interest to ADHDers. Best if you try to remember not to post emails in the future: a lot of people can get quite upset about it.

Response:

Speaking of drug gods (this is an "Oh look, a moth!" moment) I’m also reminded a bit of the anesthesiologist who handled the anesthesia for Susan’s ankle surgery.  He showed up in the pre-op room with a syringe full of heavy drugs and a BIG smile on his face!   You just knew he was the guy in medical school who was always huffing the nitrous oxide.  Now *he* was a drug god…. ;-)

LOL.  Might not even have been a doctor.  65% of general is done by Registered nurses, with special training. A few years ago when my panic started out of the blue he was the one who made me realise that my own thoughts about what was happening were perpetuating and increasing my panic.

That is a good point, and a lot of people here have help me start to realize this.  But I am still working on it. Yes, it’s worse to be panicked about being panicked than it is to just be panicked, isn’t it?  I used to call them "adrenaline power surges", and try to breathe slowly and evenly until it went away, but jeez, it’s hard to maintain your equanimity sometimes.

Yes.  I know exactly what you mean. He isn’t infallible or a saint and isn’t known for mollycoddling folk but he can be trusted to give his honest opinion as to what would be helpful for an individual. He doesn’t peddle snake-oil or offer quick fixes… lol, I guess I could have just said that I think he’s one of the good guys! ;)

He did recomend someone that he said is good, less than 2 hours away. Sounds like a good man – it’s wonderful that Usenet still has people like that around.

Yes It is. Thank You Jamie – Hide quoted text — Show quoted text – Katherine

Response:

Hey, I am really really sorry.

No worries Jamie! :) I though I sniped your info out of it and just used a piece of the e-mail message. This was completely my fault, I only ment to make an anonymous exerpt from your e-mail.

Well it would be better still not to do even that: an email is personal even if you snip names out. Generally it just isn’t the done thing on newsgroups. Again, My sincerest applogies..

Really don’t worry about it, we all have to learn. I once sent an email intended for my mother to a mailing list… these things do happen! ;) Vashti

Response:

He did recomend someone that he said is good, less than 2 hours away.

He’s helped quite a few folks find good docs, I’d trust his recommendation. Are you ok with travelling to see a doc? You’re asking a lot of questions on the groups, have you been looking things up on internet as well? Normally I’d say it’s great that you want to learn as much as you can about your conditions but right now it looks like you may be trying *too* hard to find answers… I’ve been there myself and it wasn’t all that good for me. Are you becoming more anxious or more driven to find a solution lately? If you can see this doc I think you should make an appointment as soon as possible: let them know all your conditions(also physical ones) and how anxious you are about this. Your best bet to finding proper treatment is in finding a *good* doc and trusting him to look after you, I know that can be hard to do after having had a doc who wasn’t perhaps very good but I think it’s important for you to realise that this is too complicated for you to figure out on your own. {{{Jamie}}} Vashti

Response:

[snip] There’s nothing like personal experience to show you what something is like, is there?  I go to a dentist who has a hard time getting anesthetized, just like I do, and he’s great – he’s never said "Oh, *that* can’t hurt!", not even once!

Wow, can you ship that guy over to me? ;) Speaking of drug gods (this is an "Oh look, a moth!" moment) I’m also reminded a bit of the anesthesiologist who handled the anesthesia for Susan’s ankle surgery.  He showed up in the pre-op room with a syringe full of heavy drugs and a BIG smile on his face!   You just knew he was the guy in medical school who was always huffing the nitrous oxide.  Now *he* was a drug god…. ;-)

LOL! BTW(Oh look, a moth!), that’s an actual Dutch word meaning something like "fun" which is also used as an exclamation. :) Another moth: on an upside-down calculator L0L+L0L=hIhI I’ve only had one local anesthetic which required my arm to have the blood pushed out and replaced by what the guy called "coolant". He and the male nurse had a lot of fun waving my bloodless, numb arm around going: "It’s dead, it’s dead!"… they may have been trying to make me laugh but at the time I wondered just what they’d been smoking!;) A few years ago when my panic started out of the blue he was the one who made me realise that my own thoughts about what was happening were perpetuating and increasing my panic. Yes, it’s worse to be panicked about being panicked than it is to just be panicked, isn’t it?  I used to call them "adrenaline power surges", and try to breathe slowly and evenly until it went away, but jeez, it’s hard to maintain your equanimity sometimes.

It’s been easier for me since I found out that I was right all along when I said the attacks felt hormonal: I was getting hot flashes along with palpitations and my periods were rapidly disappearing. I did develop panic disorder quite quickly and it took about 3 years for it to become apparent to the docs that it wasn’t the panic causing my periods to go and that I had a pituitary tumour… I think I’m past the worst now I no longer Google every symptom! He isn’t infallible or a saint and isn’t known for mollycoddling folk but he can be trusted to give his honest opinion as to what would be helpful for an individual. He doesn’t peddle snake-oil or offer quick fixes… lol, I guess I could have just said that I think he’s one of the good guys! ;) Sounds like a good man – it’s wonderful that Usenet still has people like that around.

Yep! :) Vashti

Response:

He’s helped quite a few folks find good docs, I’d trust his recommendation. Are you ok with travelling to see a doc?

I dont mind, depending on how often I have to see the doc.  I mean if a doc wants to meet with me 2, 3, 4 times thats cool, if he wants to meet with me every week for 6 months, well that is a little too much travel for me. You’re asking a lot of questions on the groups, have you been looking things up on internet as well? Normally I’d say it’s great that you want to learn as much as you can about your conditions but right now it looks like you may be trying *too* hard to find answers… I’ve been there

Yes. I deffinatly obsess about finding answers. myself and it wasn’t all that good for me. Are you becoming more anxious or more driven to find a solution lately?

No.  I am pretty much always like this.  I am always looking to find solutions. If you can see this doc I think you should make an appointment as soon as possible: let them know all your conditions(also physical ones) and how anxious you are about this. Your best bet to finding proper treatment is in finding a *good* doc and trusting him to look after you,

I have am apointment with my regular MD on monday. The doc that Margrove suggested moved, but he said to call that center and talk to them again and find out who is there now.  I will do that on monday. I know that can be hard to do after having had a doc who wasn’t perhaps very good but I think it’s important for you to realise that this is too complicated for you to figure out on your own.

I like a good challange… :-) jamie – Hide quoted text — Show quoted text – {{{Jamie}}} Vashti

Response:

Really don’t worry about it, we all have to learn. I once sent an email intended for my mother to a mailing list… these things do happen! ;)

At least it was not an e-mail to a secret lover! LOL – Hide quoted text — Show quoted text – Vashti

Response:

Help. Still having startle awake at sleep-onset problems

Question:

Answers inline…

In all honesty this looks to me like its to do with having the cancer, if not the cancer itself.

Could be, but my endo and surgeon are adamant that is not. My endo just brushes it off as not his problem, he said I should talk to my PCP. In all fairness he works for a big cancer hospital and cant be expected to go chasing after problem origin that could be something else  What has happened there?  Has it been

removed?  How much of your thyroid is left?  Are you hyperthyroid? (in which case the palpitations are immediately explained).

Total thyroidectomy, some lymph nodes removed, scheduled to have RAI soon. They did an ACTH stimulation test my local endo said it was in the normal range.

adrenal and thyroid disease, sometimes.  All things being equal, you might just be psychologically vulnerable (hell, I would be) as you fall asleep ("what if I don’t wake up" kind of stuff) in which case you need to find someone who can help you with the fears you must have under the circumstances.

I have considered this and ruled it out. When my symptoms first appeared in Apr 2003, I had no idea about any thyroid cancer or hashimotos, I had just gotten married and was VERY happy, content and excited about life. The only thing not usual was that I moved to a different time zone 5 hrs behind where I lived. This was about 20 days after the move. I also correlate this to a day when I was exposed to a LOT of cigarette smoke after a long time of quitting. So I am grasping at straws here- cant find anything… As for "what if I dont wake up" kind of thing, I am so desperate that I dont CARe if I dont wake up- I just want to SLEEP peacefully….

Recommendation: get a new doctor who will listen to you.  If the sleep

Two sleep studies in two different locations, suggested by two different doctors. Now I am back in a stable location and am not moving around so I hope I will have someone to follow my case. Thanks Anita

Response:

FWIW I too used to do this and I also had 2 negative sleep studies. Persistance paid off as I was adamant that I did have sleep Apnea…my hubby would stay awake half the night prodding me to start breathing again! I have Mixed Sleep Apnea with the central apneas kicking in at the begining of my sleep pattern. I would often wake myself up aware that I had not breathed for some time and gasping for air, heart racing etc It did not make any difference if I was sitting upright or lying down. The obstructive part and hypopneas happen once I am in a deeper sleep and I was rarely aware of these events. I am now on CPAP. I don’t know my AHI but do know that I have Moderate Sleep Apnea …will find out more when I see the sleep doc in April for my first visit since my sleep study/titration Frankie To Reply By E-Mail Remove  ’MY SPLEEN’ http://uk.msnusers.com/LivingWithSleepApnea ————————————————————————- FIGHT BACK AGAINST SPAM! Download Spam Inspector, the Award Winning Anti-Spam Filter http://mail.giantcompany.com "anita" <anita1…@yahoo.com

wrote in message

news:1a1fc02.0403110940.482b8043@posting.google.com… > "Tal" <goer…@hotmail.com

wrote in message

<news:c2ml8f$1v24ot$1@ID-148111.news.uni-berlin.de

– Hide quoted text — Show quoted text -

if it’s at all possible, i’d recommend another sleep study…….they

dont’

always show everything that’s going on – at least that’s what happened

with

me.  Two tests showed I had apnea, one showed i didn’t…… but i definately do. my point is…..perhaps there’s something going on that the first study didn’t pick up. It was my second study. both neg. btw what was your apnea index ? which do u have- csa or osa ? ani

Response:

Do you think the sleeplessness due to pain and the startling awake are two different things… maybe ? My startling awake problem started all of a sudden -no reason at all, I had not taken a nap for a long time so I decided to take one and to my unpleasant surprise I had this problem. It was when I finally after a period of intense stress, about 6 months of it. After I experienced for the first time ( a nap) I could not sleep even at night for a few days and even had to go to the ER for chest pains. The intense flushing etc., tapered off after a little, now I get it only on bad days. I now think that it may have caused a panic reaction in me and thus the sleeplessness for the first few days. These are some possibilities that have occured to me. I am still looking. 1. Acid reflux: This may or may not have be the cause of the original startling. What I do know is that I know I have some sort of reflux now. But that does not prove it one way or the other because chronic panic and adrenaline rushing actually causes reflux. OTOH on some days when its not too bad, I CAN manage to fall asleep if I sit upright. So I think its a combination of a) X-the mystery reason and b) reflux causing the same symptoms Have you tried to take a nap sitting upright ? How do you feel ? Can you fall asleep ? 2. Thyroid hormone levels: This again I dont think could be the primary cause because I have had this issue at all levels of thyroid hormone (TSH hig, low, normal etc.,) OTOH my thyroid hormone levels appears to influence the intensity of these attacks. Eg: if I skip a couple of doses, first couple of days- I feel better then I feel worse . This leads me to think that this thyroid hormone levels are changing my cortisol levels (cortisol clearance), I dont know what this means. 3. thyroid cancer is somehow messing with my brain/nerves/spine: The cancer doctors say its not so, but my sleep doctor is still unconvinced. So thats that.  I am constantly trying to monitor my symptoms and find the cause. I have started a diary where I keep a note of symptoms… So far I dont see any pattern… :( Please let me know if you find out anything else. Anita

Response:

"Tal" <goer…@hotmail.com

wrote in message <news:c2ml8f$1v24ot$1@ID-148111.news.uni-berlin.de… if it’s at all possible, i’d recommend another sleep study…….they dont’ always show everything that’s going on – at least that’s what happened with me.  Two tests showed I had apnea, one showed i didn’t…… but i definately do. my point is…..perhaps there’s something going on that the first study didn’t pick up.

It was my second study. both neg. btw what was your apnea index ? which do u have- csa or osa ? ani

Response:

On 2004-03-10 18:15:17 +1100, anita1…@yahoo.com (anita) said:

I cannot take day-time naps. I startle awake. It starts first thing in the morning when I wake (usually 8.5 hrs after sleeping regardless of what time I sleep at night) If I wake up earlier that 8.5 hrs, I can easily fall asleep. But after 8.5 hrs, I still feel sleepy but keep startling awake. If I continue to try to sleep, I get palpitations, flushing, funny feeling below ribs, sharp headaches on the left side of head, jaw reflex (not TMJ or grinding) etc., NOT to mention an awful fear feeling which is driving me crazy. I am constantly sleepy during the day and of course tired. I have NO apnea and I startled awake and eventually fell asleep (not according to me, but my sleep study says I slept) in every one of my nap studies. I was very tired at the end of it.

In all honesty this looks to me like its to do with having the cancer, if not the cancer itself.  What has happened there?  Has it been removed?  How much of your thyroid is left?  Are you hyperthyroid? (in which case the palpitations are immediately explained).  Have your adrenal glands ever been checked?  there are correlations between adrenal and thyroid disease, sometimes.  All things being equal, you might just be psychologically vulnerable (hell, I would be) as you fall asleep ("what if I don’t wake up" kind of stuff) in which case you need to find someone who can help you with the fears you must have under the circumstances. Recommendation: get a new doctor who will listen to you.  If the sleep study says you dont have OSA, twice, then you have to question the abilities of those doctors who keep sending you back. HTH Sue — http://www.hamarana.com http://www.mindlessblather.com

Response:

In article <1a1fc02.0403092315.3e792…@posting.google.com

,

– Hide quoted text — Show quoted text - anita1…@yahoo.com (anita) wrote:

I cannot take day-time naps. I startle awake. It starts first thing in the morning when I wake (usually 8.5 hrs after sleeping regardless of what time I sleep at night) If I wake up earlier that 8.5 hrs, I can easily fall asleep. But after 8.5 hrs, I still feel sleepy but keep startling awake. If I continue to try to sleep, I get palpitations, flushing, funny feeling below ribs, sharp headaches on the left side of head, jaw reflex (not TMJ or grinding) etc., NOT to mention an awful fear feeling which is driving me crazy. I am constantly sleepy during the day and of course tired. I have NO apnea and I startled awake and eventually fell asleep (not according to me, but my sleep study says I slept) in every one of my nap studies. I was very tired at the end of it. My sleep neurologist sent me off to get my throat checked by ENT thinking it could be because of the thyroid cancer. She says she has no idea. It is very scary to not have a diagnosis. My thyroid surgeon and endo say it cannot possibly be because of the thyroid cancer, the surgeon looked into my throat through my nose and said everything is ok. They say I have to go back to the sleep doctor. I am going crazy because this problem seems to persist and I cant take day-time naps when its obvious I am dying to. Please please someone help me and point me in the right direction, this is too much a burden with everything else that is going on. Thanks a million Anita

I have this same problem. Yesterday I was told I have a disc protrusion, which is putting pressure on nerves that control my colon and bladder, effectively putting these organs to sleep. So, I don’t get good sleep at night. If I try to nap during the daytime, no matter how quiet, I startle awake. I don’y even try now, due to the feeling I am left with. The lesser of the two evils is being tired. I have no apnea. —–= Posted via Newsfeeds.Com, Uncensored Usenet News =—– http://www.newsfeeds.com – The #1 Newsgroup Service in the World! —–==  Over 100,000 Newsgroups – 19 Different Servers! =—–

Response:

In article <1a1fc02.0403092315.3e792…@posting.google.com

,

– Hide quoted text — Show quoted text - anita1…@yahoo.com (anita) wrote:

I cannot take day-time naps. I startle awake. It starts first thing in the morning when I wake (usually 8.5 hrs after sleeping regardless of what time I sleep at night) If I wake up earlier that 8.5 hrs, I can easily fall asleep. But after 8.5 hrs, I still feel sleepy but keep startling awake. If I continue to try to sleep, I get palpitations, flushing, funny feeling below ribs, sharp headaches on the left side of head, jaw reflex (not TMJ or grinding) etc., NOT to mention an awful fear feeling which is driving me crazy. I am constantly sleepy during the day and of course tired. I have NO apnea and I startled awake and eventually fell asleep (not according to me, but my sleep study says I slept) in every one of my nap studies. I was very tired at the end of it. My sleep neurologist sent me off to get my throat checked by ENT thinking it could be because of the thyroid cancer. She says she has no idea. It is very scary to not have a diagnosis. My thyroid surgeon and endo say it cannot possibly be because of the thyroid cancer, the surgeon looked into my throat through my nose and said everything is ok. They say I have to go back to the sleep doctor. I am going crazy because this problem seems to persist and I cant take day-time naps when its obvious I am dying to. Please please someone help me and point me in the right direction, this is too much a burden with everything else that is going on. Thanks a million Anita

We are in the same boat. I have this too. No apnea, either. How do you sleep at night? Get enough? —–= Posted via Newsfeeds.Com, Uncensored Usenet News =—– http://www.newsfeeds.com – The #1 Newsgroup Service in the World! —–==  Over 100,000 Newsgroups – 19 Different Servers! =—–

Response:

Hello Jeepers, Thanks for replying. Yes, it does appear like we have the same problem- at least the daytime napping part of it. I sleep ok at night. Not great enough to feel wide awkae the next day. Its almost as if I have a switch that turns off this problem at night, and turns it on as soon as I wake up in the morning. When the problem first started though I had this problem even at night. I did not get more than a few hrs of sleep for days and then it subsided somewhat to allow me to sleep at night. I have noticed that there seems to be some correlation to eating a lot of carbs…or maybe not I am tired of trying to find a correlation to my activities. Can you tell me exactly when this problem started and how ? What happens exactly and if it is related to the onset of your bad sleep at night ? Anita

Response:

In article <1a1fc02.0403102059.783bc…@posting.google.com

,

– Hide quoted text — Show quoted text - anita1…@yahoo.com (anita) wrote:

Hello Jeepers, Thanks for replying. Yes, it does appear like we have the same problem- at least the daytime napping part of it. I sleep ok at night. Not great enough to feel wide awkae the next day. Its almost as if I have a switch that turns off this problem at night, and turns it on as soon as I wake up in the morning. When the problem first started though I had this problem even at night. I did not get more than a few hrs of sleep for days and then it subsided somewhat to allow me to sleep at night. I have noticed that there seems to be some correlation to eating a lot of carbs…or maybe not I am tired of trying to find a correlation to my activities. Can you tell me exactly when this problem started and how ? What happens exactly and if it is related to the onset of your bad sleep at night ? Anita

I hurt my back in 1998. Not seriously, but enough to cause sleep problems for me. I have a ‘disc protrusion’, not quite a herniated disc, but enough to cause pressure on nerves that control my bowels. IOW my bladder and colon fall asleep and no movement occurs and tremendous pressure/cramping occurs, especially if there is gas present. I haven’t slept through the night since my injury, mainly 4 hours. This leads to the real need for a daytime nap. I don’t know why it happens. As a matter of fact I started a short thread on this, here, a week or so ago. The consensus was apnea. But I don’t have that. As for the naps, typically any sound or movement (my own even) will startle me back awake. I get really aggrivated. I live in the country, miles from a neighbor. The sounds that would wake me, shouldn’t. I have gone and made my laptop make a sound loop of "white" sound, a hiss. I put it on the head board and turn it up. But that really doesn’t help, I’ll end up having my hand twitch and jerking me awake. I have no problem falling asleep at night. I just only sleep til 3 then I have to get up. Funny thing is, I’m fine as soon as I stand up. My intestines relax and my bladder will have the feeling come back and my back pain goes away almost instantly. How about you? —–= Posted via Newsfeeds.Com, Uncensored Usenet News =—– http://www.newsfeeds.com – The #1 Newsgroup Service in the World! —–==  Over 100,000 Newsgroups – 19 Different Servers! =—–

Response:

I cannot take day-time naps. I startle awake. It starts first thing in the morning when I wake (usually 8.5 hrs after sleeping regardless of what time I sleep at night) If I wake up earlier that 8.5 hrs, I can easily fall asleep. But after 8.5 hrs, I still feel sleepy but keep startling awake. If I continue to try to sleep, I get palpitations, flushing, funny feeling below ribs, sharp headaches on the left side of head, jaw reflex (not TMJ or grinding) etc., NOT to mention an awful fear feeling which is driving me crazy. I am constantly sleepy during the day and of course tired. I have NO apnea and I startled awake and eventually fell asleep (not according to me, but my sleep study says I slept) in every one of my nap studies. I was very tired at the end of it. My sleep neurologist sent me off to get my throat checked by ENT thinking it could be because of the thyroid cancer. She says she has no idea. It is very scary to not have a diagnosis. My thyroid surgeon and endo say it cannot possibly be because of the thyroid cancer, the surgeon looked into my throat through my nose and said everything is ok. They say I have to go back to the sleep doctor. I am going crazy because this problem seems to persist and I cant take day-time naps when its obvious I am dying to. Please please someone help me and point me in the right direction, this is too much a burden with everything else that is going on. Thanks a million Anita

Response:

if it’s at all possible, i’d recommend another sleep study…….they dont’ always show everything that’s going on – at least that’s what happened with me.  Two tests showed I had apnea, one showed i didn’t…… but i definately do. my point is…..perhaps there’s something going on that the first study didn’t pick up. "anita" <anita1…@yahoo.com

wrote in message

news:1a1fc02.0403092315.3e7923a5@posting.google.com… – Hide quoted text — Show quoted text -

I cannot take day-time naps. I startle awake. It starts first thing in the morning when I wake (usually 8.5 hrs after sleeping regardless of what time I sleep at night) If I wake up earlier that 8.5 hrs, I can easily fall asleep. But after 8.5 hrs, I still feel sleepy but keep startling awake. If I continue to try to sleep, I get palpitations, flushing, funny feeling below ribs, sharp headaches on the left side of head, jaw reflex (not TMJ or grinding) etc., NOT to mention an awful fear feeling which is driving me crazy. I am constantly sleepy during the day and of course tired. I have NO apnea and I startled awake and eventually fell asleep (not according to me, but my sleep study says I slept) in every one of my nap studies. I was very tired at the end of it. My sleep neurologist sent me off to get my throat checked by ENT thinking it could be because of the thyroid cancer. She says she has no idea. It is very scary to not have a diagnosis. My thyroid surgeon and endo say it cannot possibly be because of the thyroid cancer, the surgeon looked into my throat through my nose and said everything is ok. They say I have to go back to the sleep doctor. I am going crazy because this problem seems to persist and I cant take day-time naps when its obvious I am dying to. Please please someone help me and point me in the right direction, this is too much a burden with everything else that is going on. Thanks a million Anita

Response:

Hi all, newbie here. Long post

Question:

By the way, what made you think of Lupus?  Does autoimmune run in your family? or did I miss something in your other posts. Best, J

Hi J, Just to let you know, my doctor is calling my condition connective tissue disorder because he hasn’t pinned down exactly what I have. He hasn’t ruled out lupus even though many if not all of my outward symptoms and blood work suggest that. I think the problem is that he is having a very difficult time documenting the condition. That’s why it takes soooo long to diagnose the disease. For an example, when I was having a good case of seizures, often several times a day for 2-3 weeks, it took three weeks to get an appointment for an MRI and EEG. Well, by that time they were non existent. So what is he to do? They haven’t been that bad since because I stay out of the sunlight. So according to any documentation, it looks like I’ve haven’t experienced any seizures when in fact I had. And according to the medical field, of all the symptoms of lupus, a patient must have a experienced at least four of them. These symptoms need to be documented and that’s the crux right now as to what disease I do have. So I hope this explains to you why I and my doctor suspect lupus and he has been trying to follow some of the remedies to treat lupus but so far little if any success. As for other symptoms, I spelled that out in my initial post (look under Rose) so if there is something there you don’t understand let me know and I’ll restate it so we can come to an understanding. Rose

Response:

Rose wrote:

Just to let you know, my doctor is calling my condition connective tissue disorder because he hasn’t pinned down exactly what I have. He hasn’t ruled out lupus even though many if not all of my outward symptoms and blood work suggest that. I think the problem is that he is having a very difficult time documenting the condition. That’s why it takes soooo long to diagnose the disease.

No problems Rose, then obviously he could tag you – UCTD undifferentiated connective tissue disorder Tell/show him PubMed says so <http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd=Retrieve&db=PubMed&…

or if you have another (connective tissue disorder) diagnosis as well – MCTD mixed connective tissue disorder. That’s probably in the Dr. Wallace book. Then treat you symptomatically. Your chest pain could be GERD, heart or pleurisy. The naproxen could be making this worse, there’s Mobic or Sulindac, then there’s others that the others here might be able to tell you help with joint pain. I don’t think effexor is the med for joint pain nor headaches. Perhaps if you read what others take (for Lupus or UCTD or MCTD), tell your doctor you want to try a low dose of it to see if it helps. Obviously you have to avoid the sun, there’s clothing and other protective tips in the FAQ. Act like a patient who has Lupus or UCTD, let your doctor know you have to do this to protect your health. Also get and keep copies of all your labwork and tests. If that doctor isn’t happy to treat your symptoms and monitor you regularly for problems that are mentioned in "The Lupus Book", then find another one who will. My opinion. HTH J

Response:

J wrote:

Rose wrote: Just to let you know, my doctor is calling my condition connective tissue disorder because he hasn’t pinned down exactly what I have. He hasn’t ruled out lupus even though many if not all of my outward symptoms and blood work suggest that. I think the problem is that he is having a very difficult time documenting the condition. That’s why it takes soooo long to diagnose the disease.

<snip

Hi Rose, My name is Sharon, and I have UCTD.  My bloodwork shows no antibodies but does show a lot of systemic inflammation and low B12 levels.  I have tons of lupus-like symptoms, and they have rendered me incapacitated last summer, and it took all summer to find an RD to take me seriously and treat me accordingly.  But now that I have searched and found my RD, he treats me with Prednisone and an antimalarial called Quinacrine (also known as Atabrine).  Both have helped me incredibly, making it possible for me to finish college this year (hopefully!)  He has given me most of my life back. If you can find a doc who can treat your symptoms accordingly, I think it will help you tremendously.  Good luck to you! -Sharon — "Don’t make me come down there…"                            -God

Response:

- Hide quoted text — Show quoted text -Sharon wrote:

J wrote: Just to let you know, my doctor is calling my condition connective tissue disorder because he hasn’t pinned down exactly what I have. He hasn’t ruled out lupus even though many if not all of my outward symptoms and blood work suggest that. I think the problem is that he is having a very difficult time documenting the condition. That’s why it takes soooo long to diagnose the disease. <snip Hi Rose, My name is Sharon, and I have UCTD.  My bloodwork shows no antibodies but does show a lot of systemic inflammation and low B12 levels.  I have tons of lupus-like symptoms, and they have rendered me incapacitated last summer, and it took all summer to find an RD to take me seriously and treat me accordingly.  But now that I have searched and found my RD, he treats me with Prednisone and an antimalarial called Quinacrine (also known as Atabrine).

Hi ya Sharon, Yes, do tell about Celiac Disease antibody(ies?) and Sjogrens overlap. It takes persistance and a good RD to sort out diagnoses and they’re all related eh? (some) Similar symptoms http://digestive.niddk.nih.gov/ddiseases/pubs/celiac/index.htm recurring abdominal bloating and pain chronic diarrhea weight loss pale, foul-smelling stool unexplained anemia (low count of red blood cells) gas bone pain behavior changes muscle cramps fatigue delayed growth failure to thrive in infants pain in the joints seizures tingling numbness in the legs (from nerve damage) pale sores inside the mouth, called aphthus ulcers painful skin rash, called dermatitis herpetiformis tooth discoloration or loss of enamel missed menstrual periods (often because of excessive weight loss) [end quote] I saw you posting about your blood sugar earlier… same url People with celiac disease tend to have other autoimmune diseases as well, including dermatitis herpetiformis thyroid disease systemic lupus erythematosus type 1 diabetes liver disease collagen vascular disease rheumatoid arthritis Sj

Tourettes – There is a solution

Question:

- Hide quoted text — Show quoted text -

Subject: Re: Tourettes – There is a solution From: "Major Malfunction" MajMalfu…@hotmail.com Date: 8/14/03 3:48 AM Pacific Daylight Time Message-id: <pOJ_a.1727$Nc.980…@news1.news.adelphia.net "Joanne Cohen" <joco…@comcast.net wrote in message news:YOC_a.96007$Oz4.23122@rwcrnsc54… While my son does not have Tourettes, he has dealt with a series of eye ticks. Doctor wanted to put him on some medication to stop the ticks, but the side effects sounded gruesome. I did some searching and found that Brewer’s Yeast (in pill form) can help. To believe brewers yeast might alleviate tics,   the person hypothesising it might  must have a unique theory about what causes Tics and TS. Why must they have a unique theory just because they believe something helps? I believe regular sex helps tics, but I don’t have any unique theory! heh! I’ve hear before from some Shaklee die-hards that several symptoms, including tics, anxiousness, muscle spasms, etc can be helped not by taking yeast, but by REMOVING it from one’s system! There was some Shaklee concept that too much yeast in a person’s system can cause such symptoms. I asked my neuro and she said that was ridiculous. Is taking yeast for tics any more counterintuitive than taking Ritalin, a stimulant, to treat ADHD? Taking a stimulant to control a hyperactivity disorder makes no sense to me, yet it is the accepted sales scheme, uh excuse me, medical practice today for treating ADHD and ADD.

The labelling of a psychotropic drug is function of how neurotypicals react to it…hence stimulants are labeled stimulants because they produce a stimulating effect on the average person who takes them. People with ADHD .have atypical neurology….leading to their having atypical or paradoxical responses to those very same drugs. So a stimulant isn’t a stimulant to those people who have atypical neurologies which in they have paradoxical response to psychotropic drugs….its a tranquilizer of the hyperREactivity of the CNS in those having ADD. I learned ALL about how people with atypical neurologies have atypical or paradoxical responses to psychotropic meds,  the hard way,   by taking SSRI’s for stressful circumstances,  and their triggering depression and OCD like behaviors in me,  they are USUALLY used to treat in others. my paradoxical reactions to SSRI’s  caused me to be very reluctant to try any other psychotropic meds…until I understand exactly what they might do for me… But,  I have ADD which is only getting worse as the years go by. I was tested again last friday…for my hypoT….and IF my thyroid hormone levels in my blood  reflect my hypoT is being adequately treated…treatment of my ADD…is going to commence shortly afterwards.

Response:

"Randall Bart" <Barti…@att.spam.net

wrote in message

news:0u3mjv86fvuddnajlogsa9ir1b3h0rtbao@4ax.com… – Hide quoted text — Show quoted text -

‘Twas 14 Aug 2003 03:54:03 GMT when all alt.support.tourette stood in awe as lindaglasve…@aol.comnojunk (Linda) uttered: Which, your statements below indicate you too are well aware that yeast

is more

commonly touted as associated as a  "cause"  of a constellation of

symptoms,

therefore,  I am real curious as to what the hypothesis wrt cause of

someone

who believes yeast "alleviate" such symptoms . Though I know nothing about the relationship between yeast and tics, it is plausible that both theories are correct.  It could be the brewers yeast relieves tics by displacing the yeast that causes tics. Just speaking about theory.  I know nothing about the specifics. —

Don’t you mean "hypotheses"? A theory is something that has, I believe, been proven. My recollection from college days is that once a theory is disproven, it can no longer be a theory. I could be wrong!  Derek???? Jo – Hide quoted text — Show quoted text -

RB |  

Weight & Migraines

Question:

Can you tell me where to get this migraine diet? Also, I know there is a way to search for older messages but I have no idea how – can someone tell me please? Thanks, Marty (+30 pounds in 6 months and increase in migraines)

Response:

Hi,     I’ve been on the migraine diet for about a 4-6 weeks. I’ve lost 8 pounds, and I don’t know if it’s the elimination of triggers that I wasn’t aware of or if it’s the wt. loss, but my headaches have been reduced in both frequency and intensity. Or maybe it’s a combination of both. I’ve also een able to exercise regularly which wasn’t possible before because of my migraines and CDH. Long story short, life is good and I wish the same for everyone on this list! Stephanie

– Hide quoted text — Show quoted text – I was wondering if my weight could have something to do with my headaches.  My weight goes up and down.  I have noticed recently that when my weight is down, I have fewer headaches and when my weight is up, I have more headaches and they are more intense. I know that it is not the meds causing the weight. I have battled my weight all my life and had headaches ever since I can remember.  Any opinions on the idea would be helpful. I thought I would ask my doc at my next appt. Thanks for any opinions you give.

Response:

Ginnie, what level of carbs are you working at? Michelle

– Hide quoted text — Show quoted text – I am trying to go on a strict, lower carb diet, lower cal (but not so low as to mess up my metabolism) and lose the weight slowly. I’m having good luck with a modified version of Atkins – lost at least 10+ pounds over several months, and believe me, it ain’t water weight. Check out the ankles when my back and knee have kept me sedentary too long!  I’m following the basic tenets, but indulging my love? need? addiction? to rye bread and the occasional pasta/rice.  So far, so good. my doctor asked me point blank…when you were in your early 20’s what was your bra size? And what is it now? She said "Jesus!" and just about fell over. When she was out of the room dictating to her nurse/transcriptionist, I heard the same from her "Oh MY GOD!" Embarassing….but true. I am not huge, but I am fairly busty…no longer a 34b! I’m a lot further up  the alphabet from there, too. I’ve gone down 1 bra size and almost 1 cup size on this modified Atkins, which is FINE with me! Big boobs are NOT all they’re cracked up to be.  I’d like to strap a pair on those "breast men" who love ‘em so much.  Make THEM haul these things around for a month or so, and see how much "fun" it is. …I have a great male buddy who PLEADED with me years ago, to stop a former diet I’d been on, because he was afraid my "charms" were going to disappear!  You know the type…  they guy who talks to you like your eyes are on your chest?!?  <vbwg Ginnie

Response:

I am trying to go on a strict, lower carb diet, lower cal (but not so low as to mess up my metabolism) and lose the weight slowly.

I’m having good luck with a modified version of Atkins – lost at least 10+ pounds over several months, and believe me, it ain’t water weight. Check out the ankles when my back and knee have kept me sedentary too long!  I’m following the basic tenets, but indulging my love? need? addiction? to rye bread and the occasional pasta/rice.  So far, so good. my doctor asked me point blank…when you were in your early 20’s what was your bra size? And what is it now? She said "Jesus!" and just about fell over. When she was out of the room dictating to her nurse/transcriptionist, I heard the same from her "Oh MY GOD!" Embarassing….but true. I am not huge, but I am fairly busty…no longer a 34b!

I’m a lot further up  the alphabet from there, too. I’ve gone down 1 bra size and almost 1 cup size on this modified Atkins, which is FINE with me! Big boobs are NOT all they’re cracked up to be.  I’d like to strap a pair on those "breast men" who love ‘em so much.  Make THEM haul these things around for a month or so, and see how much "fun" it is. …I have a great male buddy who PLEADED with me years ago, to stop a former diet I’d been on, because he was afraid my "charms" were going to disappear!  You know the type…  they guy who talks to you like your eyes are on your chest?!?  <vbwg Ginnie

Response:

How is your blood sugar levels?  Just another thing to check.  You might have them run some of the more standard tests for that. Michelle

– Hide quoted text — Show quoted text – I was wondering if my weight could have something to do with my headaches.  My weight goes up and down.  I have noticed recently that when my weight is down, I have fewer headaches and when my weight is up, I have more headaches and they are more intense. I know that it is not the meds causing the weight. I have battled my weight all my life and had headaches ever since I can remember.  Any opinions on the idea would be helpful. I thought I would ask my doc at my next appt. Thanks for any opinions you give.

Response:

Jill, I certainly understand.  I’m 41 and it’s been a struggle since we realized I was perimenopausal.  I feel healthier, but I struggle with weight.  I never struggled up until about 3 years ago when we had to get on the hormones.  I think for some women the hormones are difficult and hard on us.  I also watch very closely what I eat and exercise regularly as well, aerobic and weights…what a struggle.  What I do know is that with my hormones I feel 100 percent better and other health issues got under control. But I do understand…oh, and the bra thing…me too :-) Michelle

– Hide quoted text — Show quoted text – I can say honestly that when I was at the "medically ideal" (if there is such a standard) weight I had a LOT less headaches. I was barely over a hundred pounds and felt great. After struggling with female problems, I started a cycle fo weight gain and sluggishness, and increased headaches. When they started having me try all these birth control pills my weight balloonned…it’s been terrible, just awful trying to get back down to what I was. BCP DID cause the start of my weight gain, I went up 20 pounds in no time- really, like 2-3 months. Ahem, other things disproportionately increased in size and I feel TERRIBLE. Over 5 years I gained over 50lbs, mostly in 2-3 big chunks..my headaches are much worse mostly because I have been disabled due to my headaches. I simply cannot exercise, for example, when I get these cycles of weeks-on-end of headaches. I am trying to go on a strict, lower carb diet, lower cal (but not so low as to mess up my metabolism) and lose the weight slowly. it’s so hard…and I NEVER had any kind of weight problem until my mid-twenties. I know it’s hormonal, and physical..it’s not been a case of the lazy-ass and big appetite…that’s what makes it worse! Ugh…for anyone who doesn’t believe it, trust me, there can be causes for weight gain that are not your "fault" and those are worse to deal with. I should get my thyroid checked and demand the thorouigh test….they checked it once but did not do the full workup, I know…I FEEL so sluggish. I am forcing myself to exercise to videos and walk as many miles as I can log in a week, every week,..and give up sugar/most carbs. I firmly believe that if i can get my headaches under control enough to exercise, I will lose weight and THUS the headaches will be better. I’m not making excuses for myself but I swear to god….when I complained of weight gain and , um, side effects of the hormonal nature my doctor asked me point blank…when you were in your early 20’s what was your bra size? And what is it now? She said "Jesus!" and just about fell over. When she was out of the room dictating to her nurse/transcriptionist, I heard the same from her "Oh MY GOD!" Embarassing….but true. I am not huge, but I am fairly busty…no longer a 34b! This has corresponded with my headaches directly. My doctor describes me as "slightly" overweight….yeah. 50 pounds is slightly? And I am the Easter Bunny.

Response:

I can say honestly that when I was at the "medically ideal" (if there is such a standard) weight I had a LOT less headaches. I was barely over a hundred pounds and felt great. After struggling with female problems, I started a cycle fo weight gain and sluggishness, and increased headaches. When they started having me try all these birth control pills my weight balloonned…it’s been terrible, just awful trying to get back down to what I was. BCP DID cause the start of my weight gain, I went up 20 pounds in no time- really, like 2-3 months. Ahem, other things disproportionately increased in size and I feel TERRIBLE. Over 5 years I gained over 50lbs, mostly in 2-3 big chunks..my headaches are much worse mostly because I have been disabled due to my headaches. I simply cannot exercise, for example, when I get these cycles of weeks-on-end of headaches. I am trying to go on a strict, lower carb diet, lower cal (but not so low as to mess up my metabolism) and lose the weight slowly. it’s so hard…and I NEVER had any kind of weight problem until my mid-twenties. I know it’s hormonal, and physical..it’s not been a case of the lazy-ass and big appetite…that’s what makes it worse! Ugh…for anyone who doesn’t believe it, trust me, there can be causes for weight gain that are not your "fault" and those are worse to deal with. I should get my thyroid checked and demand the thorouigh test….they checked it once but did not do the full workup, I know…I FEEL so sluggish. I am forcing myself to exercise to videos and walk as many miles as I can log in a week, every week,..and give up sugar/most carbs. I firmly believe that if i can get my headaches under control enough to exercise, I will lose weight and THUS the headaches will be better. I’m not making excuses for myself but I swear to god….when I complained of weight gain and , um, side effects of the hormonal nature my doctor asked me point blank…when you were in your early 20’s what was your bra size? And what is it now? She said "Jesus!" and just about fell over. When she was out of the room dictating to her nurse/transcriptionist, I heard the same from her "Oh MY GOD!" Embarassing….but true. I am not huge, but I am fairly busty…no longer a 34b! This has corresponded with my headaches directly. My doctor describes me as "slightly" overweight….yeah. 50 pounds is slightly? And I am the Easter Bunny.

Response:

Increased weight often includes higher blood pressure, water retention, less energy, which can contribute in various ways to migraine.  I seem to have slightly worse migraines when I’ve got a lot of water retained, whether the extra water is from inactivity, too much intake, too much salt (which I don’t use anymore), or drinking die soft drinks (which I seldom do anymore). As for the weight yo-yo, have you been tested for thyroid problems BEYOND the now-standard TSH-only test?  Many thyroid issues elude detection in some people unless they get their T3 and their T4 functions tested as separate values.  Some docs and some insurance companies don’t want to use the older, more expensive tests that are needed to analyze T3 and T4 separately. Thyroid disorders themselves can cause major headaches!  I had a benign collagen goiter 32+ years ago, that my then-PCP hadn’t even considered.  He just kept throwing bigger and bigger pain pills at the headache problem, until he nearly got me addicted.  (I was almost totally medically naive at that age.) Luckily, the addiction worries forced me to changed docs, and the new doc, on the first visit, FELT and SAW the swelling in my neck that was the goiter growing on my throid gland.  That goiter was messing severely with my thyroid hormone levels, which caused severe hypOthyroid, with the headaches as a symptom. A radioactive thyroid scan cinched the diagnosis, and taking synthetic thyroid hormone for a year (Synthroid) both starved the goiter into disappearing, and fixed *those* headaches.  Never did see that goiter again, although my thyroid has gone hypo again in recent years. Let us know what you find out, and if they’ll be able to "fix" it. Ginnie – Hide quoted text — Show quoted text – I was wondering if my weight could have something to do with my headaches.  My weight goes up and down.  I have noticed recently that when my weight is down, I have fewer headaches and when my weight is up, I have more headaches and they are more intense. I know that it is not the meds causing the weight. I have battled my weight all my life and had headaches ever since I can remember.  Any opinions on the idea would be helpful. I thought I would ask my doc at my next appt. Thanks for any opinions you give.

Response:

I was wondering if my weight could have something to do with my headaches.  My weight goes up and down.  I have noticed recently that when my weight is down, I have fewer headaches and when my weight is up, I have more headaches and they are more intense. I know that it is not the meds causing the weight. I have battled my weight all my life and had headaches ever since I can remember.  Any opinions on the idea would be helpful. I thought I would ask my doc at my next appt. Thanks for any opinions you give.

Response:

Something I haven't seen discussed here

Question:

- Hide quoted text — Show quoted text -Charles Perrin wrote:

On Sun, 20 Jul 2003 20:19:18 GMT, NormC <no…@socal.rr.com wrote: There are, at least, three different thyroid tests, the most common of which is the TSH test.  It is the cheapest and least accurate.  Which test are they giving you? TSH has improved greatly over the years: In fact, it’s the standard of care now. Twenty years ago I had to tell my doctor I wanted a T2.   T3? The only thing I can find about "T2" is a supplement.

Interesting!  I decided to research further, and I agree GOOGLEing for a thyroid T2 test doesn’t show any thyroid T2 test, just a T2 supplement.  So I decided to research a bit more. I didn’t realize that TSH stands for ‘thyroid stimulating hormone’.  And I didn’t realize that T2, T3, and T4 are thyroid hormone levels.  I though they were just names of tests.  Either they were testing for T2 levels 20 years ago and aren’t anymore, or I asked for a T3 or T4.  Sure thought it was T2. Since the thyroid issue and inadequacy of TSH has come up often here, I am providing and interesting link to show that using only the TSH (thyroid stimulating hormone) level as a diagnostic tool does not identify many cases of hypothyroidism, and that if it is used, the current acceptable range is to be questioned. These findings come from Europe and North America. http://www.thyroid.bravepages.com/tsh/tshrefs.html http://www.thyroid.bravepages.com/tsh/tshrefs.html

Response:

- Hide quoted text — Show quoted text -Charles Perrin wrote:

On Sun, 20 Jul 2003 20:19:18 GMT, NormC <no…@socal.rr.com wrote: debbie wrote: Thanks Tal, for the info.  I have all those symptoms for sure, unfortunately!   But when I have my blood test done every year on my physical, it always shows that my thryroid is within normal range There are, at least, three different thyroid tests, the most common of which is the TSH test.  It is the cheapest and least accurate.  Which test are they giving you? Twenty years ago I had to tell my doctor I wanted a T2.   Update on my looking for "T2" as a thyroid hormone: YES, I indeed found the missing T2 and it is a thyroid hormone. However, it’s NOT a common test — neither LabCorp nor Quest do it and I thought they did just about everything.

Quest is currently my internist’s lab of choice.  I’ll try to remember to inquire when I return in a couple weeks.

Response:

- Hide quoted text — Show quoted text -Anna LeBlanc wrote:

in article 3F1AF974.2070…@socal.rr.com, NormC at no…@socal.rr.com wrote on 7/20/2003 1:19 PM: There are, at least, three different thyroid tests, the most common of which is the TSH test.  It is the cheapest and least accurate.  Which test are they giving you? Twenty years ago I had to tell my doctor I wanted a T2.  As a result, I’ve been taking synthroid for 20 years. This spring I had a TSH done. MD said, "It’s in normal range, so no problem" My friend/naturapath ordered T3 and T4 as well for fuller picture. She explained that TSH measures the hormone, and therefore how hard the thyroid is working to get the results shown on T# and T4.             First tests   Normal range        Naturapath

TAT and Thyroid

Question:

I have read with interest the new Thyroid Augmentation information posted by James. I have been through the cycle of anti-depressants. I am currently on 100mg of Effexor, which has been the best to date. Yet still, I have constant ups and downs, in cycles of three to four days, and many days where I literally totally lethargic. Though the anti-depressants have kept my moods in check, I rarely write anymore (my job and career) and I have difficulty being productive. I have suspected for more than a year that it is my thyroid that is causing my problems, and today — as I have bottomed out — decided to seriously check — only to see James’comments posted yesterday !!! I thank you for the information, James. I need to investigate the background of t3 and t4. I wonder if any of this can be accomplished with vitamins and supplements.

If you have less than adequate selenium in your diet, it may lead to thyroid problems, but the evidence for that consequence is unclear, except in the elderly. The human body is so dependent on selenium for conversion of T4 to T3 that selenium is highly conserved. Yet, selenium supplementation has mood elevating effects, and it is often postulated that this is mediated by enhanced thyroid-hormone activity. I’d strongly recommend that anyone would benefit from 200 mcg (that’s micrograms) of selenium/day, if for no other reason than to ensure adequate antioxidant activity and anti-viral protection. The most bio-available supplemental form comes from selenium yeast. Regards, Lar Biol Trace Elem Res. 1996 Jan;51(1):31-41. Selenium, zinc, and thyroid hormones in healthy subjects: low T3/T4 ratio in the elderly is related to impaired selenium status. Olivieri O, Girelli D, Stanzial AM, Rossi L, Bassi A, Corrocher R. Institute of Medical Pathology, University of Verona, Italy. Iodothyronine 5′ deiodinase, which is mainly responsible for peripheral T3 production, has recently been demonstrated to be a selenium (Se)-containing enzyme. The structure of nuclear thyroid hormone receptors contains Zinc (Zn) ions, crucial for the functional properties of the protein. In the elderly, reduced peripheral conversion of T4 to T3 with a lower T3/T4 ratio and overt hypothyroidism are frequently observed. We measured serum Se and RBC GSH-Px (as indices of Se status), circulating and RBC Zinc (as indices of Zn status), thyroid hormones and TSH in 109 healthy euthyroid subjects (52 women, 57 men), carefully selected to avoid abnormally low thyroid hormone levels induced by acute or chronic diseases or calorie restriction. The subjects were subdivided into three age groups. To avoid under- or malnutrition conditions, dietary records were obtained for a sample of 24 subjects, randomly selected and representative of the whole population for age and sex. Low T3/T4 ratios and reduced Se and RBC GSH-Px activity were observed only in the older group. A highly significant linear correlation between the T3/T4 ratio and indices of Se status was observed in the older group of subjects (r = 0.54; p < 0.002, for Se; r = 0.50; p < 0.002, for RBC GSH-Px). Indices of Zn status did not correlate with thyroid hormones, but RBC Zn was decreased in older as compared with younger subjects. We concluded that reduced peripheral T4 conversion is related to impaired Se status in the elderly. Br Med Bull. 1999;55(3):658-68. Thyroid function. Arthur JR, Beckett GJ. Division of Micronutrient and Lipid Metabolism, Rowett Research Institute, Aberdeen, UK. Normal thyroid status is dependent on the presence of many trace elements for both the synthesis and metabolism of thyroid hormones. Iodine is most important as a component of the hormones, thyroxine and 3,3′,5-tri-iodothyronine (T3) and iodine deficiency may affect approximately one billion people throughout the world. Selenium is essential for normal thyroid hormone metabolism being involved with selenium-containing iodothyronine de-iodinases that control the synthesis and degradation of the biologically active thyroid hormone, T3. Additionally, selenoperoxidases and thioredoxin reductase protect the thyroid gland from peroxides produced during the synthesis of hormones. The roles of iron, zinc and copper in the thyroid are less well defined but sub- or supraoptimal dietary intakes of all these elements can adversely affect thyroid hormone metabolism. Med Hypotheses. 2002 Jul;59(1):89-91. Role of selenium depletion in the effects of dialysis on mood and behavior. Sher L. Depression and behavioral problems are common in patients undergoing dialysis. Researchers have reported that serum selenium concentrations are generally lower in dialysis patients than in healthy controls. Considerable evidence suggests that selenium deprivation leads to depressed mood, and high dietary or supplementary selenium seems to improve mood. Low plasma selenium concentrations in the elderly are significantly associated with senility and cognitive decline. The author suggests that dialysis-related selenium loss may play a role in biological mechanisms of psychiatric disorders in dialysis patients. Med Hypotheses. 2001 Oct;57(4):480-3. Role of thyroid hormones in the effects of selenium on mood, behavior, and cognitive function. Sher L. Changes in thyroid function may affect mood, behavior, and cognitive function. Selenium is required for appropriate thyroid hormone synthesis, activation, and metabolism. Selenium status influences thyroid function. Selenium status also affects psychological condition and cognitive function. The author suggests that the effects of selenium status on mood, behavior, and cognition may be partly mediated by changes induced by selenium deficiency or selenium supplementation in thyroid function. Selenium deficiency decreases immunocompetence and promotes viral infections. The author proposes that patients who have a combination of depression, hypothyroidism, and increased susceptibility to viral infections, could reasonably be assessed for selenium deficiency, especially if they live in an area where the soil is low in selenium. Biol Psychiatry. 1991 Jun 1;29(11):1092-8. The impact of selenium supplementation on mood. Benton D, Cook R. Department of Psychology, University College, Swansea, Wales, UK. The possibility that a subclinical deficiency of the trace element selenium might exist in a sample of the British population was examined by giving a selenium supplement for 5 weeks. Using a double-blind cross-over design, 50 subjects received either a placebo or 100 mcg selenium on a daily basis. On three occasions they filled in the Profile of Moods States. A food frequency questionnaire was used to estimate the intake of selenium in the diet. Intake was associated with a general elevation of mood and in particular, a decrease in anxiety. The change in mood when taking the active tablet was correlated with the level of selenium in the diet, which was estimated from a food frequency questionnaire. The lower the level of selenium in the diet the more reports of anxiety, depression, and tiredness, decreased following 5 weeks of selenium therapy. The results are discussed in terms of the low level of selenium in the food chain in some parts of the world.

Response:

I have read with interest the new Thyroid Augmentation information posted by James. I have been through the cycle of anti-depressants. I am currently on 100mg of Effexor, which has been the best to date. Yet still, I have constant ups and downs, in cycles of three to four days, and many days where I literally totally lethargic. Though the anti-depressants have kept my moods in check, I rarely write anymore (my job and career) and I have difficulty being productive. I have suspected for more than a year that it is my thyroid that is causing my problems, and today — as I have bottomed out — decided to seriously check — only to see James’comments posted yesterday !!! I thank you for the information, James. I need to investigate the background of t3 and t4. I wonder if any of this can be accomplished with vitamins and supplements.

Response:

I have read with interest the new Thyroid Augmentation information posted by James. I have been through the cycle of anti-depressants. I am currently on 100 mg of Effexor, which has been the best to date.

I presume that you are referring to Effexor XR (which comes in capsules) rather than immediate release Effexor (which comes in tablets). Although the Prescribing Information for Effexor XR does say that you can take it only once per day. I strongly recommend that you do NOT!!! A person with a rapid metabolism and taking Effexor XR once daily can actually induce ultra rapid cycling as venlafaxine and its active metabolite ODV levels fluctuate excessively. For more information on Effexor XR please see: http://www.wyeth.com/content/ShowLabeling.asp?id=100 Yet still, I have constant ups and downs, in cycles of three to four days, and many days where I am literally totally lethargic. Though the anti-depressants have kept my moods in check, I rarely write anymore (my job and career) and I have difficulty being productive.

That is indeed most unfortunate! I am sorry to learn that!!! I suggest that you speak with your pdoc about taking 37.5 mg of Effexor XR twice daily or 75 mg/day (as nearly 12 hours apart as you can manage it) and see if that does not stabilize your cycling and your depression. Effexor XR comes in 37.5, 75, and 150 mg capsules. (Frankly I don’t understand how you are taking 100 mg.) The next suggested titration increment would be 37.5 mg 3 times daily (every 8 hours) or 112.5 mg/day. If your depression is still with you, then go to 75 mg twice daily or 150 mg/day. Many people find that 225 mg/day to be the optimal dose for them – however this amount is highly variable. I suggest 75 mg 3 times daily or 225 mg/day if necessary. PRIOR TO INCREASING YOUR DOSAGE, ALLOW A MINIMUM OF AT LEAST ONE WEEK IN ORDER TO ALLOW SUFFICIENT TIME FOR THE PLASMA LEVELS OF VENLAFAXINE AND ODV TO COME TO A STEADY STATE. Effexor XR should be taken along with food but be sure to swallow the capsule whole so that the tiny time release pills are not crushed. I have suspected for more than a year that it is my thyroid that is causing my problems, and today — as I have bottomed out — decided to seriously check — only to see James’ comments posted yesterday!!! I thank you for the information, James. I need to investigate the background of T3 and T4.

Of course there are NO guarantees with any type of treatment, but Thyroid Augmentation Therapy (TAT) offers the best hope IMO where many antidepressants have been tried without notable success. TAT has done wonders for me! But I also have to take an antidepressant (Effexor XR – 37.5 mg BID). I wonder if any of this can be accomplished with vitamins and supplements.

I’m afraid not. However I do take one multiple vitamin and mineral supplement daily for general health purposes. I do hope that this information helps! James

Response:

– Hide quoted text — Show quoted text – I have read with interest the new Thyroid Augmentation information posted by James. I have been through the cycle of anti-depressants. I am currently on 100mg of Effexor, which has been the best to date. Yet still, I have constant ups and downs, in cycles of three to four days, and many days where I literally totally lethargic. Though the anti-depressants have kept my moods in check, I rarely write anymore (my job and career) and I have difficulty being productive. I have suspected for more than a year that it is my thyroid that is causing my problems, and today — as I have bottomed out — decided to seriously check — only to see James’comments posted yesterday !!! I thank you for the information, James. I need to investigate the background of T3 and T4. I wonder if any of this can be accomplished with vitamins and supplements. If you have less than adequate selenium in your diet, it may lead to thyroid problems, but the evidence for that consequence is unclear, except in the elderly. The human body is so dependent on selenium for conversion of T4 to T3 that selenium is highly conserved. Yet, selenium supplementation has mood elevating effects, and it is often postulated that this is mediated by enhanced thyroid-hormone activity. I’d strongly recommend that anyone would benefit from 200 mcg (that’s micrograms) of selenium/day, if for no other reason than to ensure adequate antioxidant activity and anti-viral protection. The most bio-available supplemental form comes from selenium yeast.

I take a multi vitamin and mineral supplement that contains 200 mcg (286% of DV) of selenium and 17 mg (113% of DV) of zinc as well as numerous others. One can never tell whether one’s diet is deficient in some trace element or another – so it is best to take a good supplement. Regards, Lar

Thanks for the interesting articles! James

Response:

Thyroid Augmentation Therapy – A Possible Solution for Refractory Depression

Question:

So that’s why my doctor had perscribed "synthroid." – Hide quoted text — Show quoted text –   Thyroid Augmentation Therapy – A Possible Solution for Refractory Depression                       By James D. Milton, Ph.D., Sc.D.                                 June 17, 2003 INTRODUCTION Thyroid Augmentation Therapy (TAT) is not new. It was pioneered by Drs. Whybrow and Bauer. I have known about it since 1985 when it was successfully used on me by my psychiatrist, Dr. Dean Ackley. Since TAT’s effectiveness has been proven beyond question for many patients, it remains a Total Mystery to me why it is not a standard psychiatric tool for alleviating depression when patients do not satisfactorily respond to antidepressants. Since many papers have been published on the success of TAT, the only explanations I can come up with are either (1) an unwillingness to try a new approach to controlling depression or (2) ignorance of TAT. The only real disadvantage of TAT is that there is no test that can be made beforehand to determine whether or not a patient will respond favorably. The same holds true for ALL antidepressants. It is known that females outnumber males by approximately 8 to 1 who successfully alleviate their depression by using TAT. Whether that ratio is influenced by a greater number of females undergoing TAT, I do not know. Refractory or treatment-resistant depression occurs with those who are clinically depressed as well as those who have unipolar depression and bipolar disorder. It unfortunately turns out that the existing antidepressants are not the complete answer for everyone. It is my firm belief that Thyroid Augmentation Therapy should be tried for every patient who does not respond well to standard antidepressant therapy. It may well turn out that all that is needed is TAT for a person in order to control his/her depression. Another may require TAT plus an antidepressant – but without TAT that same antidepressant would be totally ineffective. I fall in this latter category. WHAT IS THYROID AUGMENTATION THERAPY? TAT consists of simply taking sufficient amounts of artificial thyroid hormones (T3 and T4) to raise the Free T3 and Free T4 levels to be in the 125-150% ranges of their respective normal maximum amounts. It is Totally Inadequate for a doctor to say that your thyroid panel is "normal" and therefore you have nothing to worry about. What TAT does is to make your thyroid hormone levels abnormal – thereby controlling many patient’s depression! HOW IS THYROID AUGMENTATION THERAPY ACCOMPLISHED? Some doctors make the mistake of only adjusting the Free T4 level by giving Synthroid, Levoxyl, or another artificial source of T4. This will somewhat increase the Free T3 level since T4 is naturally converted into T3. However IMO it is unlikely that a sufficiently high Free T3 level will be achieved by this means. What needs to be done is to add artificial T3 (Cytomel) to the artificial T4 dose. The T4 dose should be titrated first before starting upon adding the Cytomel. All that really needs to be measured is the Free T3 and Free T4 levels. It has been found that once these reach 125-150% of the laboratory’s maximum values (each lab values vary slightly), depression will begin to lift for those whom TAT is effective. Doctors will insist on wasting money on measuring your TSH (Thyroid Stimulating Hormone) level which will go practically to zero. They will invariably panic not understanding that is precisely what it should be since you are taking thyroid supplements and there is absolutely No Need for your thyroid to be producing any hormones whatsoever! They will also want to waste more money getting the Total T3 and Total T4 levels. These are also meaningless because these are BOUND hormones and therefore not available to your brain! Only the FREE levels have any meaning! Why pay for anything else? Your best bet is to get your psychiatrist or a knowledgeable endocrinologist to adjust your Free T3 and Free T4 levels. I would not even bother with a family practitioner or an internist. It is highly unlikely they will have even heard of TAT. They will also worship at the Shrine of TSH. FINAL THOUGHTS For your information I take 25 micrograms of Cytomel, 112 micrograms of Levoxyl each once daily, and 37.5 mg of Effexor XR twice daily. My depression is history! Potential adverse side effects if you get too much T3 or T4 are headaches and heart irregularities. I have never experienced either. If you do, I suggest reducing your dosage. Both pills are scored. I had a bunch of references on this subject – but they got lost when my operating system died. I do hope that you will discuss Thyroid Augmentation Therapy with your pdoc. What have you got to lose – except your depression? James

Response:

So that’s why my doctor had prescribed "Synthroid."

Were Free T3 and Free T4 levels measured after you took Synthroid? Without those tests, your pdoc is effectively shooting in the dark – not knowing how much to prescribe. You can overdo a Good Thing! Did your depression lift as a result? If you get sufficient levels of T3 and T4, it takes less than an hour to notice the difference! The dark clouds of depression will roll back like fog dissipating before a hot sun. :0))) James

Response:

  Thyroid Augmentation Therapy – A Possible Solution for Refractory Depression                       By James D. Milton, Ph.D., Sc.D.                                 June 17, 2003 INTRODUCTION Thyroid Augmentation Therapy (TAT) is not new. It was pioneered by Drs. Whybrow and Bauer. I have known about it since 1985 when it was successfully used on me by my psychiatrist, Dr. Dean Ackley. Since TAT’s effectiveness has been proven beyond question for many patients, it remains a Total Mystery to me why it is not a standard psychiatric tool for alleviating depression when patients do not satisfactorily respond to antidepressants. Since many papers have been published on the success of TAT, the only explanations I can come up with are either (1) an unwillingness to try a new approach to controlling depression or (2) ignorance of TAT. The only real disadvantage of TAT is that there is no test that can be made beforehand to determine whether or not a patient will respond favorably. The same holds true for ALL antidepressants. It is known that females outnumber males by approximately 8 to 1 who successfully alleviate their depression by using TAT. Whether that ratio is influenced by a greater number of females undergoing TAT, I do not know. Refractory or treatment-resistant depression occurs with those who are clinically depressed as well as those who have unipolar depression and bipolar disorder. It unfortunately turns out that the existing antidepressants are not the complete answer for everyone. It is my firm belief that Thyroid Augmentation Therapy should be tried for every patient who does not respond well to standard antidepressant therapy. It may well turn out that all that is needed is TAT for a person in order to control his/her depression. Another may require TAT plus an antidepressant – but without TAT that same antidepressant would be totally ineffective. I fall in this latter category. WHAT IS THYROID AUGMENTATION THERAPY? TAT consists of simply taking sufficient amounts of artificial thyroid hormones (T3 and T4) to raise the Free T3 and Free T4 levels to be in the 125-150% ranges of their respective normal maximum amounts. It is Totally Inadequate for a doctor to say that your thyroid panel is "normal" and therefore you have nothing to worry about. What TAT does is to make your thyroid hormone levels abnormal – thereby controlling many patient’s depression! HOW IS THYROID AUGMENTATION THERAPY ACCOMPLISHED? Some doctors make the mistake of only adjusting the Free T4 level by giving Synthroid, Levoxyl, or another artificial source of T4. This will somewhat increase the Free T3 level since T4 is naturally converted into T3. However IMO it is unlikely that a sufficiently high Free T3 level will be achieved by this means. What needs to be done is to add artificial T3 (Cytomel) to the artificial T4 dose. The T4 dose should be titrated first before starting upon adding the Cytomel. All that really needs to be measured is the Free T3 and Free T4 levels. It has been found that once these reach 125-150% of the laboratory’s maximum values (each lab values vary slightly), depression will begin to lift for those whom TAT is effective. Doctors will insist on wasting money on measuring your TSH (Thyroid Stimulating Hormone) level which will go practically to zero. They will invariably panic not understanding that is precisely what it should be since you are taking thyroid supplements and there is absolutely No Need for your thyroid to be producing any hormones whatsoever! They will also want to waste more money getting the Total T3 and Total T4 levels. These are also meaningless because these are BOUND hormones and therefore not available to your brain! Only the FREE levels have any meaning! Why pay for anything else? Your best bet is to get your psychiatrist or a knowledgeable endocrinologist to adjust your Free T3 and Free T4 levels. I would not even bother with a family practitioner or an internist. It is highly unlikely they will have even heard of TAT. They will also worship at the Shrine of TSH. FINAL THOUGHTS For your information I take 25 micrograms of Cytomel, 112 micrograms of Levoxyl each once daily, and 37.5 mg of Effexor XR twice daily. My depression is history! Potential adverse side effects if you get too much T3 or T4 are headaches and heart irregularities. I have never experienced either. If you do, I suggest reducing your dosage. Both pills are scored. I had a bunch of references on this subject – but they got lost when my operating system died. I do hope that you will discuss Thyroid Augmentation Therapy with your pdoc. What have you got to lose – except your depression? James

Response:

Distance from one. Blind to the other (long)

Question:

You don’t say what treatment for hyperthyroid you have just started, but it will take a while to return to normal levels.   You should *start* getting out from in under the thyroid problems almost right away, but getting back to normal will take longer.  And the psycho-drugs withdrawal issues are likely to take a while.  However, you have started the road to recovery.  You should be past the bottom and on the way back up. As for your wife, it can be hard to deal with thyroid problems from the outside also.  While I’m not, both my wife and son are hypo-thyroid.  I will say to you and to her — once the medical problems are back under control, it will be good again.   Things to consider — both hypo- and hyper- tend to cause reductions in muscle mass and muscle tone.  In a few weeks, when you start getting closer to normal, you may want to consider adding a light but regular exercise routine.  I know this must sound insane and inane when your body hurts and is disfunctional — but when you start getting better, exercise can make an incredible difference in how good you can eventually feel.  Make sure you coordinate any exercise plans with your doctor.   And it can be a great way to reconnect with your wife.  We had a personal trainer come to the house twice a week for almost three years, and Thomas, Nora and I all worked out together under Bob’s guidance.  Both Thomas and Nora felt much better, retriaining and strengthening muscles that had been weaked by hypo-.  And it was quality time for us all as a family.  While it is too soon for you to start exercising right away, you can start planning it now.  Invite your wife to join in the planning — seeing you making plans to aid your recovery will be a positive thing for her also.  Joining in those plans could be incredibly good.  Having positive goals and acting on them will be support of both your personal psychological recovery from misdiagnosis and mistreatment and also supportive in helping you rebuild your marital relationship. Best wishes & good luck! Kevin

Response:

    Igor, is that you? What are you doing in AST? "Ignoramus375" <ignoramus…@NOSPAM.375.invalid

wrote in message

news:slrnbb2hd1.5cg.ignoramus375@manifold.algebra.com… – Hide quoted text — Show quoted text -

I am so sad that so many thyroid problems are misdiagnosed by various psychologists. I feel that a TSH test should be a standard thing to do when dealing with any depression or whatever. ignoramus Matt Thomas <thom…@bellsouth.net wrote:  I’m 30.  Married two years, no kids.  I was misdiagnosed with severe

anxiety

 about 4 years ago.  I suffered constant anxiety about everything.  It  started with my job performance; I’d call in sick because my stomach

was in

 knots and my heart was going a hundred miles an hour.  I sought

psychiatric

 help fearing I was developing anxiety.  Immediately I was put on xanax

and

 things seemed to settle down until the anxiety overcame the medicine.

I was

 given more xanax.  Again it helped in the short term.  The doctor felt

I was

 also becoming depressed so I went through a multitude of SSRI’s

(prozac,

 paxil, effexor, etc) as well as an MAOI (Nardil).  I went to the ER

twice

 from food interactions which could have killed me.  Then another  antidepressant: remeron.  The side effects of most of the medication

all at

 once and the increasing anxiety were overwhelming.  I was switched to

valium

 (30mg a day *alot*).  I was so sedated I couldn’t even smile or talk in  anything but a mumbling monotone voice.  I was afraid to drive to work

for

 the sedation yet I was still racked with anxiety.  I became tolerant to

the

 valium and the constant anxiety grew to levels so high I thought I was  losing my mind.  My heartrate was 120bpm at rest.  I was losing weight

so

 fast my clothes didn’t fit anymore.  At that point I went to a GP which ordered a TSH (thyroid scan).  It

came

 back "TSH= .3".  I’m 7 days into treatment for Grave’s Disease  (hyperthyroidism) after 4 years of taking unnecessary psychiatric meds.

I

 now have to taper off 30mg valium a day.  It’s a hellish withdrawal and

I’m

 only at 25mg/day.  I’m in constant pain and numbness at the same time.

I’ve

 threatened suicide to my wife but never attempted.  I’m not working

because

 I’m a f-ing zombie who can only walk and talk like I’m half asleep.

All I

 can do is sit in my dark apartment and ache.  I’ve lost control of my

temper

 a few times and broken things..  I’m not an angry person at all.  I

feel as

 if the world is drifting away and so is my wife. -Part 2-  My wife has been there for most of my doctor’s visits as she is a

research

 scientist.  Now that everything is going wrong for me (valium

addiction,

 severe hyperthyroidism which is debilitating) she’s distancing herself

from

 me; not speaking to me.  Not that I have much to say anymore I’m so

doped

 up.  She hasn’t touched me in weeks and we haven’t made love in months.

The

 loneliness is worse than the addiction/hyperthyroid.  I do have one

good

 friend who calls almost every day and is truly a kind soul.  I don’t

have a

 relationship with my wife anymore yet we still live together..in

silence.  I

 crave any human contact in my time of hurting.  If for nothing else I want to tell someone how I feel inside.  Matt

Response:

This is a tangent, but, in addition to the thyroid issue, psychologists (and other medical professionals) would do well to consider the effects of poor sleep (such as from undiagnosed apnea, for example) on one’s mental state. I speaketh from experience. "Ignoramus375" <ignoramus…@NOSPAM.375.invalid

wrote in message

news:slrnbb2hd1.5cg.ignoramus375@manifold.algebra.com… – Hide quoted text — Show quoted text -

I am so sad that so many thyroid problems are misdiagnosed by various psychologists. I feel that a TSH test should be a standard thing to do when dealing with any depression or whatever. ignoramus

Response:

I’m 30.  Married two years, no kids.  I was misdiagnosed with severe anxiety about 4 years ago.  I suffered constant anxiety about everything.  It started with my job performance; I’d call in sick because my stomach was in knots and my heart was going a hundred miles an hour.  I sought psychiatric help fearing I was developing anxiety.  Immediately I was put on xanax and things seemed to settle down until the anxiety overcame the medicine.  I was given more xanax.  Again it helped in the short term.  The doctor felt I was also becoming depressed so I went through a multitude of SSRI’s (prozac, paxil, effexor, etc) as well as an MAOI (Nardil).  I went to the ER twice from food interactions which could have killed me.  Then another antidepressant: remeron.  The side effects of most of the medication all at once and the increasing anxiety were overwhelming.  I was switched to valium (30mg a day *alot*).  I was so sedated I couldn’t even smile or talk in anything but a mumbling monotone voice.  I was afraid to drive to work for the sedation yet I was still racked with anxiety.  I became tolerant to the valium and the constant anxiety grew to levels so high I thought I was losing my mind.  My heartrate was 120bpm at rest.  I was losing weight so fast my clothes didn’t fit anymore. At that point I went to a GP which ordered a TSH (thyroid scan).  It came back "TSH= .3".  I’m 7 days into treatment for Grave’s Disease (hyperthyroidism) after 4 years of taking unnecessary psychiatric meds.  I now have to taper off 30mg valium a day.  It’s a hellish withdrawal and I’m only at 25mg/day.  I’m in constant pain and numbness at the same time.  I’ve threatened suicide to my wife but never attempted.  I’m not working because I’m a f-ing zombie who can only walk and talk like I’m half asleep.  All I can do is sit in my dark apartment and ache.  I’ve lost control of my temper a few times and broken things..  I’m not an angry person at all.  I feel as if the world is drifting away and so is my wife. -Part 2- My wife has been there for most of my doctor’s visits as she is a research scientist.  Now that everything is going wrong for me (valium addiction, severe hyperthyroidism which is debilitating) she’s distancing herself from me; not speaking to me.  Not that I have much to say anymore I’m so doped up.  She hasn’t touched me in weeks and we haven’t made love in months.  The loneliness is worse than the addiction/hyperthyroid.  I do have one good friend who calls almost every day and is truly a kind soul.  I don’t have a relationship with my wife anymore yet we still live together..in silence.  I crave any human contact in my time of hurting. If for nothing else I want to tell someone how I feel inside. Matt

Response:

On Thu, 1 May 2003 00:46:17 -0400, "Matt Thomas" – Hide quoted text — Show quoted text -<thom…@bellsouth.net

wrote: I’m 30.  Married two years, no kids.  I was misdiagnosed with severe anxiety about 4 years ago.  I suffered constant anxiety about everything.  It started with my job performance; I’d call in sick because my stomach was in knots and my heart was going a hundred miles an hour.  I sought psychiatric help fearing I was developing anxiety.  Immediately I was put on xanax and things seemed to settle down until the anxiety overcame the medicine.  I was given more xanax.  Again it helped in the short term.  The doctor felt I was also becoming depressed so I went through a multitude of SSRI’s (prozac, paxil, effexor, etc) as well as an MAOI (Nardil).  I went to the ER twice from food interactions which could have killed me.  Then another antidepressant: remeron.  The side effects of most of the medication all at once and the increasing anxiety were overwhelming.  I was switched to valium (30mg a day *alot*).  I was so sedated I couldn’t even smile or talk in anything but a mumbling monotone voice.  I was afraid to drive to work for the sedation yet I was still racked with anxiety.  I became tolerant to the valium and the constant anxiety grew to levels so high I thought I was losing my mind.  My heartrate was 120bpm at rest.  I was losing weight so fast my clothes didn’t fit anymore. At that point I went to a GP which ordered a TSH (thyroid scan).  It came back "TSH= .3".  I’m 7 days into treatment for Grave’s Disease (hyperthyroidism) after 4 years of taking unnecessary psychiatric meds.  I now have to taper off 30mg valium a day.  It’s a hellish withdrawal and I’m only at 25mg/day.  I’m in constant pain and numbness at the same time.  I’ve threatened suicide to my wife but never attempted.  I’m not working because I’m a f-ing zombie who can only walk and talk like I’m half asleep.  All I can do is sit in my dark apartment and ache.  I’ve lost control of my temper a few times and broken things..  I’m not an angry person at all.  I feel as if the world is drifting away and so is my wife. -Part 2- My wife has been there for most of my doctor’s visits as she is a research scientist.  Now that everything is going wrong for me (valium addiction, severe hyperthyroidism which is debilitating) she’s distancing herself from me; not speaking to me.  Not that I have much to say anymore I’m so doped up.  She hasn’t touched me in weeks and we haven’t made love in months.  The loneliness is worse than the addiction/hyperthyroid.  I do have one good friend who calls almost every day and is truly a kind soul.  I don’t have a relationship with my wife anymore yet we still live together..in silence.  I crave any human contact in my time of hurting. If for nothing else I want to tell someone how I feel inside. Matt

Matt –  maybe you and I should get together.  Ha! I’m kidding. Smile. Just hang in there and keep talking about it.  There are some nice people on this group that will help you out.  They may not always tell you want you want to hear, but when they write a 50 line response at 2AM, you know they genuinely like to help.  Sometimes you’ll get a one line response of encouragement like the one you just got from Sub.  It may be all you need at the time to know someone out there is hearing you. –Brian

Response:

On Thu, 1 May 2003 00:46:17 -0400, "Matt Thomas" <thom…@bellsouth.net

wrote: If for nothing else I want to tell someone how I feel inside. Matt

Good luck, man.  I hope you feel better soon.  

Response:

"Matt Thomas" wrote in part: : At that point I went to a GP which ordered a TSH (thyroid scan).  It came : back "TSH= .3".  I’m 7 days into treatment for Grave’s Disease : (hyperthyroidism) after 4 years of taking unnecessary psychiatric meds.  I : now have to taper off 30mg valium a day.  It’s a hellish withdrawal and I’m : only at 25mg/day.  I’m in constant pain and numbness at the same time. I’ve : threatened suicide to my wife but never attempted. Matt, I know it sounds trite, but please hang in there. A lot of us know what it’s like to feel like there’s no hope. Now that you’ve got the correct diagnosis and have begun treatment, there is a lot of hope for your future. It’ll take time for your health to return to normal, but you will get there. Spend time in alt.support.thyroid, and you’ll find people who have been through hell with their health and are now doing better. Unfortunately, thyroid problems are often misdiagnosed at first, and anxiety and depression are common symptoms because of the hormone imbalance. Your emotions will get better when your thyroid hormone levels are brought back to the correct levels for you. Learn as much about this disease as you can, and you’ll feel more in control of your health and your life. A good starting point is our website at www.thyroid.bravepages.com. You’ll find lots of support from other posters too. I don’t know the NG alt.support.marriage, but it looks like you went to the right place for some of the other things that are happening in your life. You and your wife may want to read the book _The Thyroid Solution_ by Dr. Ridha Arem. He discusses various thyroid problems and has a whole section on common emotional and physical interactions, with a couple of chapters on relationships. This book might help your wife understand what you’re going through. Lois (posting from alt.support.thyroid)

Response:

request for amateur diagnosis

Question:

If your doctor diagnosed you without a blood test then he’s a quack….I believe a blood test is the only way to conclusively diagnose diabetes. I was diagnosed very quickly, my reading was 14.0 (252) about 2 hours after reading, the ER doc said that by definition I was diabetic…a non-diabetic would not have such high numbers.

Response:

– Hide quoted text — Show quoted text – cc’d by email sheesh, the standard diet fraud’s line "ALL the world is lying, listen to my phony anecdotes" Typical bullshit It’s history. It happened. It’s documented. Even the former Secretary of the Agriculture when the USDA developed its pyramid admits things have changed now, and so should the pyramid. Did you even read the posted links or are you just so caught up in the government’s party line nutrition politics that you don’t care about what’s true and what’s not? Jerry

I wish someone could tell me which diet is proper and offer some real data on the validity of the claims.  There are about 10,000 conflicting claims.  If I don’t like any of them, I need to wait a year or two and a new set will come up.  Of course you need to buy the book which are all well  written by an English major. As far as titles, I worked with a fellow with a doctorate,  he was a professional witness and claimed he doubled his income this way.  He testified for the people paying the fee. "Why old people are so cynical"              Guy

Response:

cc’d by email sheesh, the standard diet fraud’s line "ALL the world is lying, listen to my phony anecdotes" Typical bullshit

<crap snipped

Response:

cc’d by email sheesh, the standard diet fraud’s line "ALL the world is lying, listen to my phony anecdotes" Typical bullshit

It’s history. It happened. It’s documented. Even the former Secretary of the Agriculture when the USDA developed its pyramid admits things have changed now, and so should the pyramid. Did you even read the posted links or are you just so caught up in the government’s party line nutrition politics that you don’t care about what’s true and what’s not? Jerry

Response:

That may be fine in court but in the medical world scientific proof is what is accepted.

Oh, if that were only the case. The entire nutritional program advocated by the USDA, including what was to later become the Food Pyramid, was based on very questionable conclusions of limited research. The powers that were at the time simply needed something within the established timeline. And since Dr. Ancel Keys of the University of Minnesota advocated his "diet-heart" recommendations based on faulty research in the ’50s, the government hung its hat on that research, much to the chagrin of a few (but minority) of more prudent authorities. Only within the past 5 years or so has the truth of these early studies come out. And finally, even the former Secretary of the Agriculture who was in charge when the USDA came out with its bogus guidelines has admitted that it’s not as simple as once promoted. No, anecdotal evidence is not proof. And many times it’s simply false. But sometimes it’s just as valid as "real" evidence that has been manipulated to fit the expectations. For further reading: http://www.second-opinions.co.uk/taubes.html http://www.westonaprice.org/know_your_fats/skinny.html http://www.ravnskov.nu/myth4.htm Jerry

Response:

This is my first post to a diabetes group.  I want to preface this with the fact that I know I need to get a 2nd opinion and that my current doctor may or may not have inaccurately diagnosised me.  (In other words, don’t waste your keystrokes telling me this–I’m well aware of this and plan to seek out other opinions, especially in light of my recent research.)  My reasoning in requesting your opinions is that you live with this every day and sometimes know more inimately the idiosyncrasies of the disease.  That being said …

Could be a brain tumour.  You are about to die. On the other hand, it seems you are a hypochondriac.  Don’t worry, be happy and all of that stuff. See your doctor.  Trust him.

Response:

Wow!  That’s quite a post!  I have dealt with panic issues for many years. If your thinking your blood sugar is out of wack, you may want to invest in a tester so that you can test during those attacks(~$15).  Panic is so hard to control, because you fear the panic attacks, and that fear sets them off. Coffee should be out for you, and I mean none!  Consider aerobic exercise of some sort.  Relaxation techniques are also helpful. I was much the same as you, but with different systems.  By all means check with the doctors, but you need to develop the tools to deal with the stress in your life.  I thought I was going to die.  I took rivotril for years, and only stopped recently.  I feel that your doing what I was.  I was trying to fit different diseases to my symptoms.  Diabetes is not hard to diagnose, so I encourage you to eliminate that as quickly as possible and move on to dealing with your other issues. Glenn

– Hide quoted text — Show quoted text – Hi all- This is my first post to a diabetes group.  I want to preface this with the fact that I know I need to get a 2nd opinion and that my current doctor may or may not have inaccurately diagnosised me.  (In other words, don’t waste your keystrokes telling me this–I’m well aware of this and plan to seek out other opinions, especially in light of my recent research.)  My reasoning in requesting your opinions is that you live with this every day and sometimes know more inimately the idiosyncrasies of the disease.  That being said … I’m 27 years old.  My grandmother died of complications from a diabetic stroke.  My cousin (on my mother’s side) also has diabetes. I believe mother does as well (when I visit home, I see literature on it and she is very careful about her diet, e.g. eats turnips at sunday dinner while the rest of the family eats ridiculous amounts of mashed potatoes).  My father exhibits characteristics very much like mine, but does not have a diabetes diagnosis. My current diagnosis from my doctor is anxiety/panic disorder (as I would suppose my father’s is as he has been on ativan for over a decade–he’s never made it clear what the symptoms are though and doesn’t encourage inquiries into them).  My symptoms, however, don’t present like those that I’ve discussed with my friend and friend’s friends who have anxiety/panic, nor like that of those I’ve discourced with on anxiety support sites. Brief history: Age 22: While driving home 3 hours Sunday nights from visit with girlfriend’s house, I would start off by filling the gas tank and getting a large coffee (with no dinner).  Then, along the way, my vision would blur and my head would have an intense pressure.  Driving straight was bearable, but the curves would cause some sort of confusion and I would have to slow down and the head pressure would escalate to the point where it felt as if something in there might burst.  I developed a habit of stopping along the way at a Burger King for a double cheeseburger (not my normal cuisine) and I seemed to feel much better thereafter.  At this time I also had a stressful job with a startup company in the northeast. For some time (maybe 6 mos) this was the only time I noticed this feeling.  Then I started noticing it occasionally and it seemed to correlate with lack of sleep. Then my girlfriend graduated from college and we travelled for almost 6 mos.  During this time, I had almost no experience of the head pressure.  Then we moved out to a part of the country foreign to us. Here is where it became chronic (about age 24). I became aware that caffeine was not OK for me.  The head pressure would skyrocket.  I also noticed that I craved orange juice in the morning, but would feel worse an hour or so after drinking it on a empty stomach.  The head pressure would also lessen with a carbohydrate (a muffin, a small bag of chips).  Temporary solution I realized though.  I started regulating my diet.  I cut my caffeine intake to the bone.  I cut out sugars and started eating protein for every meal (I now crave almost nothing but protein). Sleep became huge.  A good night sleep would set up a good day for me.  A bad night sleep would make for a nightmare of a day.  I developed ‘dawn phenomenon’ (just read about that tonight), waking up at 4 every morning with my head about to explode.  I had numbness in the limbs and sometimes noticed a difference between left side and right side in terms of nerves. At one point along the way (about 2 years ago) I was out walking with my girlfriend (who had no idea I was going through this) and felt like my head was about to explode.  I told her what was going on and then took on a doctor.  He sent me off for a seizure test and looked into brain tumors.  Negative.  He also did a blood test where I hadn’t eaten for 12 hours before.  His answer was panic disorder and the solution was xanax (which does work quite well, but I only take it when absolutely necessary ~.5mg week) Another thing I read about tonight is the ’sweetness of breath’.  I’ve noticed that when I have the head pressure, I take deep, sighing breaths and when I exhale it is sweet and almost as if I had been drinking.  I first started noticing this when I was about 20 and never thought much of it.  I also have had sores, off and on, on my chest and then thighs.  Finally, confusion often preceeds and coincides with my head pressure.  Somebody will be talking to me and I get bored and then uncomfortable and then I can’t remember what they are talking about and the pressure sky rockets.  Sometimes I’ll start a thought and lose it and be confused why and the pressure returns. So that’s the symptoms.  The regiment I’ve developed in response to my observations is: Walk to work (2 miles) (every other day) Whole milk single latte (with sugar) for breakfast High protein lunch (e.g. roast beef & cheddar sandwich, no chips or fries) Sometimes walk home High protein dinner (steak, chicken, fish) with dark green veg (spinach or asparagus)(I still do love potatos, rice and noodles and will indulge once a week or so) Glass of wine or a beer with dinner and another before bed Bed around 12; wake around 8 Anyway, I realize it’s impossible to tell from a newsgroup post if a person has diabetes vs. an overactive adrenal gland vs. anything else.  I am curious about your opinions though and would like to be more knowledgable when I meet my next doctor.

Response:

IMHO, a good doctor will carefully check out all the possible causes for the symptoms the patient presents, before making their best conclusion as to the primary cause of the distress. As someone else said, the process of elimination is part of that method.  I can see why you are concerned about diabetes, with a family history of the disease.  I do second the idea of getting a cheap meter and strips, even if it only relieves your fears, or gives you a record to take to the doctor.  Test as recommended by Al, and keep a careful diary of food intake and results.  If diabetes is ruled out, and you are still not happy with your doctors dx, see another doctor, and be patient and persistant in seeking an answer. As for the suggestion of hypochondria made here – that is also a medical diagnosis, and a serious disorder that only a qualified doctor is in a position to make.  Sadly, it is oftened bandied about like an accusation, by people who don’t know what they are talking about. You do appear very distressed and worried, but that’s understandable.  Once you get a correct diagnosis and helpful therapy, you are going to feel a lot better. In the meantime, go with the current dx, and look for therapies that prove helpful. Your current diet seems to me to be a bit unbalanced, you could add more fruit and veges to it, and really try and have something to eat for breakfast – even if you don’t feel like it. Only having a latte with sugar is something that those with diabetes just couldn’t handle, for instance. All the best, Annette

Response:

I think I just made it up, or I could very well have stolen it. I am getting forgetfull in my old age. LOL!  shits and giggles.   never heard this one before!  love it. Judy Type 1, 25+ years

So Many Cats… So Few Good Recipies…

Response:

Really?  care to post some science on that one. I wish to see how carbs affect seritonin levels in the brain.  Most researchers believe panic disorders to be genetic and mostly affect women. The evidence is mostly anecdotal

Kinda thought so. — Ronnie Ruff skippin’ stones, we know the price now. Any sin will do how much further, if you can spin? how much further, if you are smooth?     -indigo girls-        

Response:

Really?  care to post some science on that one. I wish to see how carbs affect seritonin levels in the brain.  Most researchers believe panic disorders to be genetic and mostly affect women. The evidence is mostly anecdotal Kinda thought so.

Anectodal evidence is kind of like circumstantial evidence in court. If you have enough of it, you can convince the jury. If there are no clinical studies designed to specifically measure the effects of carbohydrates on anxiety level (which I know of none), then you use what works for you and others like you. But you don’t dismiss it out of hand just because there’s no solid proof. — http://LowCarbDiet.us

Response:

Anectodal evidence is kind of like circumstantial evidence in court. If you have enough of it, you can convince the jury. If there are no clinical studies designed to specifically measure the effects of carbohydrates on anxiety level (which I know of none), then you use what works for you and others like you. But you don’t dismiss it out of hand just because there’s no solid proof.

That may be fine in court but in the medical world scientific proof is what is accepted. With many so called dietary remedies the list of illnesses cured is sometimes endless. Manytimes there is a mind body connection, one wants the cure to work so it does. — Ronnie Ruff skippin’ stones, we know the price now. Any sin will do how much further, if you can spin? how much further, if you are smooth?     -indigo girls-        

Response:

 Consuming fewer carbs often reduces panic disorder, which seems to have happened in your case. Really?  care to post some science on that one. I wish to see how carbs affect seritonin levels in the brain.  Most researchers believe panic disorders to be genetic and mostly affect women.

The evidence is mostly anecdotal, but there is a lot of it. I am one glaring example. I used to consider myself lucky if I could walk a block without going into a panic attack. I could drive and go to work, etc., but I couldn’t go shopping or do almost anything else. After I was diagnosed with diabetes and was recommended a low-carb diet, my panic attacks virtually stopped and my anxiety decreased greatly, almost instantly after starting the diet. Here are a couple of sites that link anxiety to syndrome-x, which is caused by insulin resistance and is improved by a reduced carbohydrate diet: http://www.wrc.net/encyclopedia_details.asp?ID=14 http://www.positivehealth.com/Reviews/books/kenton75.htm

Response:

 Consuming fewer carbs often reduces panic disorder, which seems to have happened in your case.

Really?  care to post some science on that one. I wish to see how carbs affect seritonin levels in the brain.  Most researchers believe panic disorders to be genetic and mostly affect women.   — Ronnie Ruff skippin’ stones, we know the price now. Any sin will do how much further, if you can spin? how much further, if you are smooth?     -indigo girls-        

Response:

This post not CC’d by email Hi all- This is my first post to a diabetes group.  I want to preface this with the fact that I know I need to get a 2nd opinion and that my current doctor may or may not have inaccurately diagnosised me.  . . .[snip]. . . I am curious about your opinions though and would like to be more knowledgable when I meet my next doctor.  1.  Doesn’t sound like diabetes  2.  Maybe, just maybe, just the tiny’est maybe, you have       Reactive Hypoglycemia IN ADDITION to something else

The sweet breath seems like ketones from a low carb intake.   Some of the symptoms sound like reactive hypoglycemia, a possible precursor of diabetes.  Some people go through this stage, some don’t.  That is a major problem with symptoms … there is considerable overlap between the symptoms associated with one illness and another. People doing self diagnosis or diagnosis by friend tend to notice every symptom that fits.   What is often more indicative is which symptoms are missing. Doctors work on process of elimination, eliminating the most serious first. Oh and there is all the stuff you haven’t told us that would be obvious to a GP.  You don’t mention weight, blood pressure, thyroid hormone levels etc, etc.   That said, just on fifty percent of Americans currently have one or more chronic illnesses.  Don’t be too surprised if you have several things at once.  Dealing with one will often help dealing with the other.  At least it will help with the diagnosis. It makes good sense to eliminate reactive hypoglycemia … the method is the same as Old Al has suggested for diabetes.  If you get rapid falls in blood glucose to below fasting levels after meals then you have something to discuss with your doctor.   – Hide quoted text — Show quoted text –  3.  Our diabetic syndrome is one of the easiest to to diagnose:       a.  Cheap Way:          i.  Run down to the nearest Wal-mart          ii.  Buy their Relion (House Brand) Blood Glucose                testing meter and testing strips          iii.  Test your (fasting)blood glucose upon first                awakening, and two hours after each meal.          iv.  Test your blood glucose when you have these               "attacks" , or "episodes"        Normies fall in the range 80 – 120 mg/dL        Undiagnosed us’en’s exhibit 300’s and 40’s        In any case, write the numbers down and show them to        the doc.     b.  Expensive way        i.  Go to K-mart, Costco, Meijer’s, or any large,           discount store with a Pharmacy       ii.  Buy any manufacturers blood testing meter with            strips,  (Hint:  try for LifeScan Ultra or            Accu-Check Advantage)       iii.  See instructions in "Cheap Way" shown above. Regards  Old Al

– Quentin Grady       ^  ^  / New Zealand,       #,#< [                     / /     "... and the blind dog was leading." http://homepages.paradise.net.nz/quentin

Response:

It sounds to ME like you have a bit of hypochondria. It happens; I tended toward it too when I was younger. Your diet sounds very good. Consuming fewer carbs often reduces panic disorder, which seems to have happened in your case.  I agree with your doctor. If Xanax works, take it as needed and don't worry about it. -- http://LowCarbDiet.us

- Hide quoted text -- Show quoted text - Hi all- This is my first post to a diabetes group.  I want to preface this with the fact that I know I need to get a 2nd opinion and that my current doctor may or may not have inaccurately diagnosised me.  (In other words, don't waste your keystrokes telling me this--I'm well aware of this and plan to seek out other opinions, especially in light of my recent research.)  My reasoning in requesting your opinions is that you live with this every day and sometimes know more inimately the idiosyncrasies of the disease.  That being said ... I'm 27 years old.  My grandmother died of complications from a diabetic stroke.  My cousin (on my mother's side) also has diabetes. I believe mother does as well (when I visit home, I see literature on it and she is very careful about her diet, e.g. eats turnips at sunday dinner while the rest of the family eats ridiculous amounts of mashed potatoes).  My father exhibits characteristics very much like mine, but does not have a diabetes diagnosis. My current diagnosis from my doctor is anxiety/panic disorder (as I would suppose my father's is as he has been on ativan for over a decade--he's never made it clear what the symptoms are though and doesn't encourage inquiries into them).  My symptoms, however, don't present like those that I've discussed with my friend and friend's friends who have anxiety/panic, nor like that of those I've discourced with on anxiety support sites. Brief history: Age 22: While driving home 3 hours Sunday nights from visit with girlfriend's house, I would start off by filling the gas tank and getting a large coffee (with no dinner).  Then, along the way, my vision would blur and my head would have an intense pressure.  Driving straight was bearable, but the curves would cause some sort of confusion and I would have to slow down and the head pressure would escalate to the point where it felt as if something in there might burst.  I developed a habit of stopping along the way at a Burger King for a double cheeseburger (not my normal cuisine) and I seemed to feel much better thereafter.  At this time I also had a stressful job with a startup company in the northeast. For some time (maybe 6 mos) this was the only time I noticed this feeling.  Then I started noticing it occasionally and it seemed to correlate with lack of sleep. Then my girlfriend graduated from college and we travelled for almost 6 mos.  During this time, I had almost no experience of the head pressure.  Then we moved out to a part of the country foreign to us. Here is where it became chronic (about age 24). I became aware that caffeine was not OK for me.  The head pressure would skyrocket.  I also noticed that I craved orange juice in the morning, but would feel worse an hour or so after drinking it on a empty stomach.  The head pressure would also lessen with a carbohydrate (a muffin, a small bag of chips).  Temporary solution I realized though.  I started regulating my diet.  I cut my caffeine intake to the bone.  I cut out sugars and started eating protein for every meal (I now crave almost nothing but protein). Sleep became huge.  A good night sleep would set up a good day for me.  A bad night sleep would make for a nightmare of a day.  I developed 'dawn phenomenon' (just read about that tonight), waking up at 4 every morning with my head about to explode.  I had numbness in the limbs and sometimes noticed a difference between left side and right side in terms of nerves. At one point along the way (about 2 years ago) I was out walking with my girlfriend (who had no idea I was going through this) and felt like my head was about to explode.  I told her what was going on and then took on a doctor.  He sent me off for a seizure test and looked into brain tumors.  Negative.  He also did a blood test where I hadn't eaten for 12 hours before.  His answer was panic disorder and the solution was xanax (which does work quite well, but I only take it when absolutely necessary ~.5mg week) Another thing I read about tonight is the 'sweetness of breath'.  I've noticed that when I have the head pressure, I take deep, sighing breaths and when I exhale it is sweet and almost as if I had been drinking.  I first started noticing this when I was about 20 and never thought much of it.  I also have had sores, off and on, on my chest and then thighs.  Finally, confusion often preceeds and coincides with my head pressure.  Somebody will be talking to me and I get bored and then uncomfortable and then I can't remember what they are talking about and the pressure sky rockets.  Sometimes I'll start a thought and lose it and be confused why and the pressure returns. So that's the symptoms.  The regiment I've developed in response to my observations is: Walk to work (2 miles) (every other day) Whole milk single latte (with sugar) for breakfast High protein lunch (e.g. roast beef & cheddar sandwich, no chips or fries) Sometimes walk home High protein dinner (steak, chicken, fish) with dark green veg (spinach or asparagus)(I still do love potatos, rice and noodles and will indulge once a week or so) Glass of wine or a beer with dinner and another before bed Bed around 12; wake around 8 Anyway, I realize it's impossible to tell from a newsgroup post if a person has diabetes vs. an overactive adrenal gland vs. anything else.  I am curious about your opinions though and would like to be more knowledgable when I meet my next doctor.

Response:

This is my first post to a diabetes group.  I want to preface this with the fact that I know I need to get a 2nd opinion and that my current doctor may or may not have inaccurately diagnosised me.  (In other words, don't waste your keystrokes telling me this--I'm well aware of this and plan to seek out other opinions, especially in light of my recent research.)  My reasoning in requesting your opinions is that you live with this every day and sometimes know more inimately the idiosyncrasies of the disease.  That being said ...

----snipped ---- All that and nothing about BG levels - Tests? You know how they say "It is the economy stupid?"  Well you are not stupid of course but a diagnosis is all about blood tests. WO them no diagnosis. BTW your symptoms are alligned with the Dr's diagnosis. Panic attacks simulate low blood sugar because a hypo is in essence a panic attack your body starts to warn you your blood sugar levels are low. -- Ronnie Ruff skippin' stones, we know the price now. Any sin will do how much further, if you can spin? how much further, if you are smooth?     -indigo girls-        

Response:

- Hide quoted text -- Show quoted text - Hi all- This is my first post to a diabetes group.  I want to preface this with the fact that I know I need to get a 2nd opinion and that my current doctor may or may not have inaccurately diagnosised me.  (In other words, don't waste your keystrokes telling me this--I'm well aware of this and plan to seek out other opinions, especially in light of my recent research.)  My reasoning in requesting your opinions is that you live with this every day and sometimes know more inimately the idiosyncrasies of the disease.  That being said ... I'm 27 years old.  My grandmother died of complications from a diabetic stroke.  My cousin (on my mother's side) also has diabetes. I believe mother does as well (when I visit home, I see literature on it and she is very careful about her diet, e.g. eats turnips at sunday dinner while the rest of the family eats ridiculous amounts of mashed potatoes).  My father exhibits characteristics very much like mine, but does not have a diabetes diagnosis. My current diagnosis from my doctor is anxiety/panic disorder (as I would suppose my father's is as he has been on ativan for over a decade--he's never made it clear what the symptoms are though and doesn't encourage inquiries into them).  My symptoms, however, don't present like those that I've discussed with my friend and friend's friends who have anxiety/panic, nor like that of those I've discourced with on anxiety support sites. Brief history: Age 22: While driving home 3 hours Sunday nights from visit with girlfriend's house, I would start off by filling the gas tank and getting a large coffee (with no dinner).  Then, along the way, my vision would blur and my head would have an intense pressure.  Driving straight was bearable, but the curves would cause some sort of confusion and I would have to slow down and the head pressure would escalate to the point where it felt as if something in there might burst.  I developed a habit of stopping along the way at a Burger King for a double cheeseburger (not my normal cuisine) and I seemed to feel much better thereafter.  At this time I also had a stressful job with a startup company in the northeast. For some time (maybe 6 mos) this was the only time I noticed this feeling.  Then I started noticing it occasionally and it seemed to correlate with lack of sleep. Then my girlfriend graduated from college and we travelled for almost 6 mos.  During this time, I had almost no experience of the head pressure.  Then we moved out to a part of the country foreign to us. Here is where it became chronic (about age 24). I became aware that caffeine was not OK for me.  The head pressure would skyrocket.  I also noticed that I craved orange juice in the morning, but would feel worse an hour or so after drinking it on a empty stomach.  The head pressure would also lessen with a carbohydrate (a muffin, a small bag of chips).  Temporary solution I realized though.  I started regulating my diet.  I cut my caffeine intake to the bone.  I cut out sugars and started eating protein for every meal (I now crave almost nothing but protein). Sleep became huge.  A good night sleep would set up a good day for me.  A bad night sleep would make for a nightmare of a day.  I developed 'dawn phenomenon' (just read about that tonight), waking up at 4 every morning with my head about to explode.  I had numbness in the limbs and sometimes noticed a difference between left side and right side in terms of nerves. At one point along the way (about 2 years ago) I was out walking with my girlfriend (who had no idea I was going through this) and felt like my head was about to explode.  I told her what was going on and then took on a doctor.  He sent me off for a seizure test and looked into brain tumors.  Negative.  He also did a blood test where I hadn't eaten for 12 hours before.  His answer was panic disorder and the solution was xanax (which does work quite well, but I only take it when absolutely necessary ~.5mg week) Another thing I read about tonight is the 'sweetness of breath'.  I've noticed that when I have the head pressure, I take deep, sighing breaths and when I exhale it is sweet and almost as if I had been drinking.  I first started noticing this when I was about 20 and never thought much of it.  I also have had sores, off and on, on my chest and then thighs.  Finally, confusion often preceeds and coincides with my head pressure.  Somebody will be talking to me and I get bored and then uncomfortable and then I can't remember what they are talking about and the pressure sky rockets.  Sometimes I'll start a thought and lose it and be confused why and the pressure returns. So that's the symptoms.  The regiment I've developed in response to my observations is: Walk to work (2 miles) (every other day) Whole milk single latte (with sugar) for breakfast High protein lunch (e.g. roast beef & cheddar sandwich, no chips or fries) Sometimes walk home High protein dinner (steak, chicken, fish) with dark green veg (spinach or asparagus)(I still do love potatos, rice and noodles and will indulge once a week or so) Glass of wine or a beer with dinner and another before bed Bed around 12; wake around 8 Anyway, I realize it's impossible to tell from a newsgroup post if a person has diabetes vs. an overactive adrenal gland vs. anything else.  I am curious about your opinions though and would like to be more knowledgable when I meet my next doctor.

The pressure sounds to me like a panic attack but....  I have had it and so has a friend.  Do you also get the feeling your going to die or the feeling of doom? You never mentioned what your Glucose results are that would be helpfull.  However if your not happy with your Dr. find another one. Ken

Response:

- Hide quoted text -- Show quoted text -   3.  Our diabetic syndrome is one of the easiest to to diagnose:        a.  Cheap Way:           i.  Run down to the nearest Wal-mart           ii.  Buy their Relion (House Brand) Blood Glucose                 testing meter and testing strips           iii.  Test your (fasting)blood glucose upon first                 awakening, and two hours after each meal.           iv.  Test your blood glucose when you have these                "attacks" , or "episodes"         Normies fall in the range 80 - 120 mg/dL         Undiagnosed us'en's exhibit 300's and 400's

Hi Al I've never seen a test over 200, myself, and only 2 or 3 near 180. My dx fasting bgs were 150 & 140. Still, I earned my DM DX with those numbers. - Hide quoted text -- Show quoted text -         In any case, write the numbers down and show them to         the doc.      b.  Expensive way         i.  Go to K-mart, Costco, Meijer's, or any large,            discount store with a Pharmacy        ii.  Buy any manufacturers blood testing meter with             strips,  (Hint:  try for LifeScan Ultra or             Accu-Check Advantage)        iii.  See instructions in "Cheap Way" shown above.

That's great advice!  I really wish I had done this when I first suspected I might the DM about a year prior to my DX.  I had the head knowledge to do it, but I was in denial. Best regards and good health to us! == Kosta, T2 www.oznik.com

Response:

Hi all- This is my first post to a diabetes group.  I want to preface this with the fact that I know I need to get a 2nd opinion and that my current doctor may or may not have inaccurately diagnosised me.  . . .[snip]. . . I am curious about your opinions though and would like to be more knowledgable when I meet my next doctor.

  1.  Doesn’t sound like diabetes   2.  Maybe, just maybe, just the tiny’est maybe, you have        Reactive Hypoglycemia IN ADDITION to something else   3.  Our diabetic syndrome is one of the easiest to to diagnose:        a.  Cheap Way:           i.  Run down to the nearest Wal-mart           ii.  Buy their Relion (House Brand) Blood Glucose                 testing meter and testing strips           iii.  Test your (fasting)blood glucose upon first                 awakening, and two hours after each meal.           iv.  Test your blood glucose when you have these                "attacks" , or "episodes"         Normies fall in the range 80 – 120 mg/dL         Undiagnosed us’en’s exhibit 300’s and 40’s         In any case, write the numbers down and show them to         the doc.      b.  Expensive way         i.  Go to K-mart, Costco, Meijer’s, or any large,            discount store with a Pharmacy        ii.  Buy any manufacturers blood testing meter with             strips,  (Hint:  try for LifeScan Ultra or             Accu-Check Advantage)        iii.  See instructions in "Cheap Way" shown above.  Regards   Old Al

Response:

The easiest way for you to check your own blood glucose levels during the day is to go to your nearest Wal-Mart and buy their $8.88 ReliOn meter. – Hide quoted text — Show quoted text – Hi all- This is my first post to a diabetes group.  I want to preface this with the fact that I know I need to get a 2nd opinion and that my current doctor may or may not have inaccurately diagnosised me.  (In other words, don’t waste your keystrokes telling me this–I’m well aware of this and plan to seek out other opinions, especially in light of my recent research.)  My reasoning in requesting your opinions is that you live with this every day and sometimes know more inimately the idiosyncrasies of the disease.  That being said … I’m 27 years old.  My grandmother died of complications from a diabetic stroke.  My cousin (on my mother’s side) also has diabetes. I believe mother does as well (when I visit home, I see literature on it and she is very careful about her diet, e.g. eats turnips at sunday dinner while the rest of the family eats ridiculous amounts of mashed potatoes).  My father exhibits characteristics very much like mine, but does not have a diabetes diagnosis. My current diagnosis from my doctor is anxiety/panic disorder (as I would suppose my father’s is as he has been on ativan for over a decade–he’s never made it clear what the symptoms are though and doesn’t encourage inquiries into them).  My symptoms, however, don’t present like those that I’ve discussed with my friend and friend’s friends who have anxiety/panic, nor like that of those I’ve discourced with on anxiety support sites. Brief history: Age 22: While driving home 3 hours Sunday nights from visit with girlfriend’s house, I would start off by filling the gas tank and getting a large coffee (with no dinner).  Then, along the way, my vision would blur and my head would have an intense pressure.  Driving straight was bearable, but the curves would cause some sort of confusion and I would have to slow down and the head pressure would escalate to the point where it felt as if something in there might burst.  I developed a habit of stopping along the way at a Burger King for a double cheeseburger (not my normal cuisine) and I seemed to feel much better thereafter.  At this time I also had a stressful job with a startup company in the northeast. For some time (maybe 6 mos) this was the only time I noticed this feeling.  Then I started noticing it occasionally and it seemed to correlate with lack of sleep. Then my girlfriend graduated from college and we travelled for almost 6 mos.  During this time, I had almost no experience of the head pressure.  Then we moved out to a part of the country foreign to us. Here is where it became chronic (about age 24). I became aware that caffeine was not OK for me.  The head pressure would skyrocket.  I also noticed that I craved orange juice in the morning, but would feel worse an hour or so after drinking it on a empty stomach.  The head pressure would also lessen with a carbohydrate (a muffin, a small bag of chips).  Temporary solution I realized though.  I started regulating my diet.  I cut my caffeine intake to the bone.  I cut out sugars and started eating protein for every meal (I now crave almost nothing but protein). Sleep became huge.  A good night sleep would set up a good day for me. A bad night sleep would make for a nightmare of a day.  I developed ‘dawn phenomenon’ (just read about that tonight), waking up at 4 every morning with my head about to explode.  I had numbness in the limbs and sometimes noticed a difference between left side and right side in terms of nerves. At one point along the way (about 2 years ago) I was out walking with my girlfriend (who had no idea I was going through this) and felt like my head was about to explode.  I told her what was going on and then took on a doctor.  He sent me off for a seizure test and looked into brain tumors.  Negative.  He also did a blood test where I hadn’t eaten for 12 hours before.  His answer was panic disorder and the solution was xanax (which does work quite well, but I only take it when absolutely necessary ~.5mg week) Another thing I read about tonight is the ’sweetness of breath’.  I’ve noticed that when I have the head pressure, I take deep, sighing breaths and when I exhale it is sweet and almost as if I had been drinking.  I first started noticing this when I was about 20 and never thought much of it.  I also have had sores, off and on, on my chest and then thighs.  Finally, confusion often preceeds and coincides with my head pressure.  Somebody will be talking to me and I get bored and then uncomfortable and then I can’t remember what they are talking about and the pressure sky rockets.  Sometimes I’ll start a thought and lose it and be confused why and the pressure returns. So that’s the symptoms.  The regiment I’ve developed in response to my observations is: Walk to work (2 miles) (every other day) Whole milk single latte (with sugar) for breakfast High protein lunch (e.g. roast beef & cheddar sandwich, no chips or fries) Sometimes walk home High protein dinner (steak, chicken, fish) with dark green veg (spinach or asparagus)(I still do love potatos, rice and noodles and will indulge once a week or so) Glass of wine or a beer with dinner and another before bed Bed around 12; wake around 8 Anyway, I realize it’s impossible to tell from a newsgroup post if a person has diabetes vs. an overactive adrenal gland vs. anything else. I am curious about your opinions though and would like to be more knowledgable when I meet my next doctor.

Response:

LOL!  shits and giggles.   never heard this one before!  love it. Judy Type 1, 25+ years

– Hide quoted text — Show quoted text – Ted’s answer sounds correct to me, but just for shits and giggles, have you had your blood glucose checked? SM we are not physicians, AND, we have not examined you. It does NOT sound like diabetes, and it DOES sound like anxiety attacks. If you are unhappy with your doctor, get a NEW doctor and ask him or her.  There are lots of possibilities as to what it could be, and, from your description, your doctor seems to be running what sound like appropriate tests. Possibly a different med would help. Hi all- This is my first post to a diabetes group.  I want to preface this with the fact that I know I need to get a 2nd opinion and that my current doctor may or may not have inaccurately diagnosis ed me.  (In other words, don’t waste your keystrokes telling me this–I’m well aware of this and plan to seek out other opinions, especially in light of my recent research.)  My reasoning in requesting your opinions is that you live with this every day and sometimes know more inimately the idiosyncrasies of the disease.  That being said … I’m 27 years old.  My grandmother died of complications from a diabetic stroke.  My cousin (on my mother’s side) also has diabetes. I believe mother does as well (when I visit home, I see literature on it and she is very careful about her diet, e.g. eats turnips at sunday dinner while the rest of the family eats ridiculous amounts of mashed potatoes).  My father exhibits characteristics very much like mine, but does not have a diabetes diagnosis. My current diagnosis from my doctor is anxiety/panic disorder (as I would suppose my father’s is as he has been on ativan for over a decade–he’s never made it clear what the symptoms are though and doesn’t encourage inquiries into them).  My symptoms, however, don’t present like those that I’ve discussed with my friend and friend’s friends who have anxiety/panic, nor like that of those I’ve discourced with on anxiety support sites. Brief history: Age 22: While driving home 3 hours Sunday nights from visit with girlfriend’s house, I would start off by filling the gas tank and getting a large coffee (with no dinner).  Then, along the way, my vision would blur and my head would have an intense pressure.  Driving straight was bearable, but the curves would cause some sort of confusion and I would have to slow down and the head pressure would escalate to the point where it felt as if something in there might burst.  I developed a habit of stopping along the way at a Burger King for a double cheeseburger (not my normal cuisine) and I seemed to feel much better thereafter.  At this time I also had a stressful job with a startup company in the northeast. For some time (maybe 6 mos) this was the only time I noticed this feeling.  Then I started noticing it occasionally and it seemed to correlate with lack of sleep. Then my girlfriend graduated from college and we travelled for almost 6 mos.  During this time, I had almost no experience of the head pressure.  Then we moved out to a part of the country foreign to us. Here is where it became chronic (about age 24). I became aware that caffeine was not OK for me.  The head pressure would skyrocket.  I also noticed that I craved orange juice in the morning, but would feel worse an hour or so after drinking it on a empty stomach.  The head pressure would also lessen with a carbohydrate (a muffin, a small bag of chips).  Temporary solution I realized though.  I started regulating my diet.  I cut my caffeine intake to the bone.  I cut out sugars and started eating protein for every meal (I now crave almost nothing but protein). Sleep became huge.  A good night sleep would set up a good day for me.  A bad night sleep would make for a nightmare of a day.  I developed ‘dawn phenomenon’ (just read about that tonight), waking up at 4 every morning with my head about to explode.  I had numbness in the limbs and sometimes noticed a difference between left side and right side in terms of nerves. At one point along the way (about 2 years ago) I was out walking with my girlfriend (who had no idea I was going through this) and felt like my head was about to explode.  I told her what was going on and then took on a doctor.  He sent me off for a seizure test and looked into brain tumors.  Negative.  He also did a blood test where I hadn’t eaten for 12 hours before.  His answer was panic disorder and the solution was xanax (which does work quite well, but I only take it when absolutely necessary ~.5mg week) Another thing I read about tonight is the ’sweetness of breath’.  I’ve noticed that when I have the head pressure, I take deep, sighing breaths and when I exhale it is sweet and almost as if I had been drinking.  I first started noticing this when I was about 20 and never thought much of it.  I also have had sores, off and on, on my chest and then thighs.  Finally, confusion often preceeds and coincides with my head pressure.  Somebody will be talking to me and I get bored and then uncomfortable and then I can’t remember what they are talking about and the pressure sky rockets.  Sometimes I’ll start a thought and lose it and be confused why and the pressure returns. So that’s the symptoms.  The regiment I’ve developed in response to my observations is: Walk to work (2 miles) (every other day) Whole milk single latte (with sugar) for breakfast High protein lunch (e.g. roast beef & cheddar sandwich, no chips or fries) Sometimes walk home High protein dinner (steak, chicken, fish) with dark green veg (spinach or asparagus)(I still do love potatos, rice and noodles and will indulge once a week or so) Glass of wine or a beer with dinner and another before bed Bed around 12; wake around 8 Anyway, I realize it’s impossible to tell from a newsgroup post if a person has diabetes vs. an overactive adrenal gland vs. anything else.  I am curious about your opinions though and would like to be more knowledgable when I meet my next doctor. So Many Cats…. So Few Good Recipes

Response:

Ted’s answer sounds correct to me, but just for shits and giggles, have you had your blood glucose checked? SM – Hide quoted text — Show quoted text – we are not physicians, AND, we have not examined you. It does NOT sound like diabetes, and it DOES sound like anxiety attacks. If you are unhappy with your doctor, get a NEW doctor and ask him or her.  There are lots of possibilities as to what it could be, and, from your description, your doctor seems to be running what sound like appropriate tests. Possibly a different med would help. Hi all- This is my first post to a diabetes group.  I want to preface this with the fact that I know I need to get a 2nd opinion and that my current doctor may or may not have inaccurately diagnosis ed me.  (In other words, don’t waste your keystrokes telling me this–I’m well aware of this and plan to seek out other opinions, especially in light of my recent research.)  My reasoning in requesting your opinions is that you live with this every day and sometimes know more inimately the idiosyncrasies of the disease.  That being said … I’m 27 years old.  My grandmother died of complications from a diabetic stroke.  My cousin (on my mother’s side) also has diabetes. I believe mother does as well (when I visit home, I see literature on it and she is very careful about her diet, e.g. eats turnips at sunday dinner while the rest of the family eats ridiculous amounts of mashed potatoes).  My father exhibits characteristics very much like mine, but does not have a diabetes diagnosis. My current diagnosis from my doctor is anxiety/panic disorder (as I would suppose my father’s is as he has been on ativan for over a decade–he’s never made it clear what the symptoms are though and doesn’t encourage inquiries into them).  My symptoms, however, don’t present like those that I’ve discussed with my friend and friend’s friends who have anxiety/panic, nor like that of those I’ve discourced with on anxiety support sites. Brief history: Age 22: While driving home 3 hours Sunday nights from visit with girlfriend’s house, I would start off by filling the gas tank and getting a large coffee (with no dinner).  Then, along the way, my vision would blur and my head would have an intense pressure.  Driving straight was bearable, but the curves would cause some sort of confusion and I would have to slow down and the head pressure would escalate to the point where it felt as if something in there might burst.  I developed a habit of stopping along the way at a Burger King for a double cheeseburger (not my normal cuisine) and I seemed to feel much better thereafter.  At this time I also had a stressful job with a startup company in the northeast. For some time (maybe 6 mos) this was the only time I noticed this feeling.  Then I started noticing it occasionally and it seemed to correlate with lack of sleep. Then my girlfriend graduated from college and we travelled for almost 6 mos.  During this time, I had almost no experience of the head pressure.  Then we moved out to a part of the country foreign to us. Here is where it became chronic (about age 24). I became aware that caffeine was not OK for me.  The head pressure would skyrocket.  I also noticed that I craved orange juice in the morning, but would feel worse an hour or so after drinking it on a empty stomach.  The head pressure would also lessen with a carbohydrate (a muffin, a small bag of chips).  Temporary solution I realized though.  I started regulating my diet.  I cut my caffeine intake to the bone.  I cut out sugars and started eating protein for every meal (I now crave almost nothing but protein). Sleep became huge.  A good night sleep would set up a good day for me.  A bad night sleep would make for a nightmare of a day.  I developed ‘dawn phenomenon’ (just read about that tonight), waking up at 4 every morning with my head about to explode.  I had numbness in the limbs and sometimes noticed a difference between left side and right side in terms of nerves. At one point along the way (about 2 years ago) I was out walking with my girlfriend (who had no idea I was going through this) and felt like my head was about to explode.  I told her what was going on and then took on a doctor.  He sent me off for a seizure test and looked into brain tumors.  Negative.  He also did a blood test where I hadn’t eaten for 12 hours before.  His answer was panic disorder and the solution was xanax (which does work quite well, but I only take it when absolutely necessary ~.5mg week) Another thing I read about tonight is the ’sweetness of breath’.  I’ve noticed that when I have the head pressure, I take deep, sighing breaths and when I exhale it is sweet and almost as if I had been drinking.  I first started noticing this when I was about 20 and never thought much of it.  I also have had sores, off and on, on my chest and then thighs.  Finally, confusion often preceeds and coincides with my head pressure.  Somebody will be talking to me and I get bored and then uncomfortable and then I can’t remember what they are talking about and the pressure sky rockets.  Sometimes I’ll start a thought and lose it and be confused why and the pressure returns. So that’s the symptoms.  The regiment I’ve developed in response to my observations is: Walk to work (2 miles) (every other day) Whole milk single latte (with sugar) for breakfast High protein lunch (e.g. roast beef & cheddar sandwich, no chips or fries) Sometimes walk home High protein dinner (steak, chicken, fish) with dark green veg (spinach or asparagus)(I still do love potatos, rice and noodles and will indulge once a week or so) Glass of wine or a beer with dinner and another before bed Bed around 12; wake around 8 Anyway, I realize it’s impossible to tell from a newsgroup post if a person has diabetes vs. an overactive adrenal gland vs. anything else.  I am curious about your opinions though and would like to be more knowledgable when I meet my next doctor.

So Many Cats…. So Few Good Recipes

Response:

we are not physicians, AND, we have not examined you. It does NOT sound like diabetes, and it DOES sound like anxiety attacks. If you are unhappy with your doctor, get a NEW doctor and ask him or her.  There are lots of possibilities as to what it could be, and, from your description, your doctor seems to be running what sound like appropriate tests. Possibly a different med would help. – Hide quoted text — Show quoted text – Hi all- This is my first post to a diabetes group.  I want to preface this with the fact that I know I need to get a 2nd opinion and that my current doctor may or may not have inaccurately diagnosis ed me.  (In other words, don’t waste your keystrokes telling me this–I’m well aware of this and plan to seek out other opinions, especially in light of my recent research.)  My reasoning in requesting your opinions is that you live with this every day and sometimes know more inimately the idiosyncrasies of the disease.  That being said … I’m 27 years old.  My grandmother died of complications from a diabetic stroke.  My cousin (on my mother’s side) also has diabetes. I believe mother does as well (when I visit home, I see literature on it and she is very careful about her diet, e.g. eats turnips at sunday dinner while the rest of the family eats ridiculous amounts of mashed potatoes).  My father exhibits characteristics very much like mine, but does not have a diabetes diagnosis. My current diagnosis from my doctor is anxiety/panic disorder (as I would suppose my father’s is as he has been on ativan for over a decade–he’s never made it clear what the symptoms are though and doesn’t encourage inquiries into them).  My symptoms, however, don’t present like those that I’ve discussed with my friend and friend’s friends who have anxiety/panic, nor like that of those I’ve discourced with on anxiety support sites. Brief history: Age 22: While driving home 3 hours Sunday nights from visit with girlfriend’s house, I would start off by filling the gas tank and getting a large coffee (with no dinner).  Then, along the way, my vision would blur and my head would have an intense pressure.  Driving straight was bearable, but the curves would cause some sort of confusion and I would have to slow down and the head pressure would escalate to the point where it felt as if something in there might burst.  I developed a habit of stopping along the way at a Burger King for a double cheeseburger (not my normal cuisine) and I seemed to feel much better thereafter.  At this time I also had a stressful job with a startup company in the northeast. For some time (maybe 6 mos) this was the only time I noticed this feeling.  Then I started noticing it occasionally and it seemed to correlate with lack of sleep. Then my girlfriend graduated from college and we travelled for almost 6 mos.  During this time, I had almost no experience of the head pressure.  Then we moved out to a part of the country foreign to us. Here is where it became chronic (about age 24). I became aware that caffeine was not OK for me.  The head pressure would skyrocket.  I also noticed that I craved orange juice in the morning, but would feel worse an hour or so after drinking it on a empty stomach.  The head pressure would also lessen with a carbohydrate (a muffin, a small bag of chips).  Temporary solution I realized though.  I started regulating my diet.  I cut my caffeine intake to the bone.  I cut out sugars and started eating protein for every meal (I now crave almost nothing but protein). Sleep became huge.  A good night sleep would set up a good day for me.  A bad night sleep would make for a nightmare of a day.  I developed ‘dawn phenomenon’ (just read about that tonight), waking up at 4 every morning with my head about to explode.  I had numbness in the limbs and sometimes noticed a difference between left side and right side in terms of nerves. At one point along the way (about 2 years ago) I was out walking with my girlfriend (who had no idea I was going through this) and felt like my head was about to explode.  I told her what was going on and then took on a doctor.  He sent me off for a seizure test and looked into brain tumors.  Negative.  He also did a blood test where I hadn’t eaten for 12 hours before.  His answer was panic disorder and the solution was xanax (which does work quite well, but I only take it when absolutely necessary ~.5mg week) Another thing I read about tonight is the ’sweetness of breath’.  I’ve noticed that when I have the head pressure, I take deep, sighing breaths and when I exhale it is sweet and almost as if I had been drinking.  I first started noticing this when I was about 20 and never thought much of it.  I also have had sores, off and on, on my chest and then thighs.  Finally, confusion often preceeds and coincides with my head pressure.  Somebody will be talking to me and I get bored and then uncomfortable and then I can’t remember what they are talking about and the pressure sky rockets.  Sometimes I’ll start a thought and lose it and be confused why and the pressure returns. So that’s the symptoms.  The regiment I’ve developed in response to my observations is: Walk to work (2 miles) (every other day) Whole milk single latte (with sugar) for breakfast High protein lunch (e.g. roast beef & cheddar sandwich, no chips or fries) Sometimes walk home High protein dinner (steak, chicken, fish) with dark green veg (spinach or asparagus)(I still do love potatos, rice and noodles and will indulge once a week or so) Glass of wine or a beer with dinner and another before bed Bed around 12; wake around 8 Anyway, I realize it’s impossible to tell from a newsgroup post if a person has diabetes vs. an overactive adrenal gland vs. anything else.  I am curious about your opinions though and would like to be more knowledgable when I meet my next doctor.

Response:

Hi all- This is my first post to a diabetes group.  I want to preface this with the fact that I know I need to get a 2nd opinion and that my current doctor may or may not have inaccurately diagnosised me.  (In other words, don’t waste your keystrokes telling me this–I’m well aware of this and plan to seek out other opinions, especially in light of my recent research.)  My reasoning in requesting your opinions is that you live with this every day and sometimes know more inimately the idiosyncrasies of the disease.  That being said … I’m 27 years old.  My grandmother died of complications from a diabetic stroke.  My cousin (on my mother’s side) also has diabetes. I believe mother does as well (when I visit home, I see literature on it and she is very careful about her diet, e.g. eats turnips at sunday dinner while the rest of the family eats ridiculous amounts of mashed potatoes).  My father exhibits characteristics very much like mine, but does not have a diabetes diagnosis. My current diagnosis from my doctor is anxiety/panic disorder (as I would suppose my father’s is as he has been on ativan for over a decade–he’s never made it clear what the symptoms are though and doesn’t encourage inquiries into them).  My symptoms, however, don’t present like those that I’ve discussed with my friend and friend’s friends who have anxiety/panic, nor like that of those I’ve discourced with on anxiety support sites. Brief history: Age 22: While driving home 3 hours Sunday nights from visit with girlfriend’s house, I would start off by filling the gas tank and getting a large coffee (with no dinner).  Then, along the way, my vision would blur and my head would have an intense pressure.  Driving straight was bearable, but the curves would cause some sort of confusion and I would have to slow down and the head pressure would escalate to the point where it felt as if something in there might burst.  I developed a habit of stopping along the way at a Burger King for a double cheeseburger (not my normal cuisine) and I seemed to feel much better thereafter.  At this time I also had a stressful job with a startup company in the northeast. For some time (maybe 6 mos) this was the only time I noticed this feeling.  Then I started noticing it occasionally and it seemed to correlate with lack of sleep. Then my girlfriend graduated from college and we travelled for almost 6 mos.  During this time, I had almost no experience of the head pressure.  Then we moved out to a part of the country foreign to us. Here is where it became chronic (about age 24). I became aware that caffeine was not OK for me.  The head pressure would skyrocket.  I also noticed that I craved orange juice in the morning, but would feel worse an hour or so after drinking it on a empty stomach.  The head pressure would also lessen with a carbohydrate (a muffin, a small bag of chips).  Temporary solution I realized though.  I started regulating my diet.  I cut my caffeine intake to the bone.  I cut out sugars and started eating protein for every meal (I now crave almost nothing but protein). Sleep became huge.  A good night sleep would set up a good day for me.  A bad night sleep would make for a nightmare of a day.  I developed ‘dawn phenomenon’ (just read about that tonight), waking up at 4 every morning with my head about to explode.  I had numbness in the limbs and sometimes noticed a difference between left side and right side in terms of nerves. At one point along the way (about 2 years ago) I was out walking with my girlfriend (who had no idea I was going through this) and felt like my head was about to explode.  I told her what was going on and then took on a doctor.  He sent me off for a seizure test and looked into brain tumors.  Negative.  He also did a blood test where I hadn’t eaten for 12 hours before.  His answer was panic disorder and the solution was xanax (which does work quite well, but I only take it when absolutely necessary ~.5mg week) Another thing I read about tonight is the ’sweetness of breath’.  I’ve noticed that when I have the head pressure, I take deep, sighing breaths and when I exhale it is sweet and almost as if I had been drinking.  I first started noticing this when I was about 20 and never thought much of it.  I also have had sores, off and on, on my chest and then thighs.  Finally, confusion often preceeds and coincides with my head pressure.  Somebody will be talking to me and I get bored and then uncomfortable and then I can’t remember what they are talking about and the pressure sky rockets.  Sometimes I’ll start a thought and lose it and be confused why and the pressure returns. So that’s the symptoms.  The regiment I’ve developed in response to my observations is: Walk to work (2 miles) (every other day) Whole milk single latte (with sugar) for breakfast High protein lunch (e.g. roast beef & cheddar sandwich, no chips or fries) Sometimes walk home High protein dinner (steak, chicken, fish) with dark green veg (spinach or asparagus)(I still do love potatos, rice and noodles and will indulge once a week or so) Glass of wine or a beer with dinner and another before bed Bed around 12; wake around 8 Anyway, I realize it’s impossible to tell from a newsgroup post if a person has diabetes vs. an overactive adrenal gland vs. anything else.  I am curious about your opinions though and would like to be more knowledgable when I meet my next doctor.

Response: