Posts belonging to Category 'Thyroid Treatment'

has anyone had any experience with Estrin-D?

Question:

"Innocent One" <iminnoc…@nomail.invalid

wrote in message

news:113cmt92k28n69f@corp.supernews.com…

12 lbs. in a month? I don’t think that is very slow – just my opinion ;-)

I agree – when losing weight, I lost 3 – 4 pounds/month. Cathy

Response:

I have gone through surgical menopause(5 years ago)due to cancer and cannot use any hrt. In the past year i have also found out that my tyroid decided to stop working. I am taking medication for the thyroid, and the doc said that i should be losing weight now that the thyroid is on track, but it hasn’t happened. i was concidering Estrin-D. Has anyone used it? What were the results?

Response:

<jjmn…@comcast.net

wrote in message

news:1109695037.953089.139600@f14g2000cwb.googlegroups.com…

I have gone through surgical menopause(5 years ago)due to cancer and cannot use any hrt. In the past year i have also found out that my tyroid decided to stop working. I am taking medication for the thyroid, and the doc said that i should be losing weight now that the thyroid is on track, but it hasn’t happened. i was concidering Estrin-D. Has anyone used it? What were the results?

I’ve not used Estrin D, so I cannot speak to that part of your question. I do have Auto Immune Thyroid Disease ( dx in 2001) and I can tell you that getting optimized on thyroid meds is not an easy proposition.  You lab work may look just dandy to the doc,  but you may still not be feeling your best.  For some people it takes longer than a year to sort  out their optimal thyroid treatment among the choices of synthetic and natural meds. I can recommend you hop to  alt.support.thyroid, or to http://thyroid.about.com/ ( if you haven’t already). Sue Western  Maine

Response:

Thank you for the link Sue, I haven’t been there yet. – Hide quoted text — Show quoted text -sue and dave wrote:

<jjmn…@comcast.net wrote in message news:1109695037.953089.139600@f14g2000cwb.googlegroups.com… I have gone through surgical menopause(5 years ago)due to cancer

and

cannot use any hrt. In the past year i have also found out that my tyroid decided to stop working. I am taking medication for the

thyroid,

and the doc said that i should be losing weight now that the

thyroid is

on track, but it hasn’t happened. i was concidering Estrin-D. Has anyone used it? What were the results? I’ve not used Estrin D, so I cannot speak to that part of your

question.

I do have Auto Immune Thyroid Disease ( dx in 2001) and I can tell

you that

getting optimized on thyroid meds is not an easy proposition.  You

lab work

may look just dandy to the doc,  but you may still not be feeling

your

best.  For some people it takes longer than a year to sort  out their optimal thyroid treatment among the choices of synthetic and natural

meds.

I can recommend you hop to  alt.support.thyroid, or to http://thyroid.about.com/ ( if you haven’t already). Sue Western  Maine

Response:

I have been taking Estrin D for a month now…When you take this, when it says do not use caffeine products with it,, don’t.  I take 1 pill per day (instead of the 2 to 4), because I am real sensitive to any kind of pills like this.. But after taking this for this long, Ihave had no problems with side effects.. Just the opposite.. I love Estrin D and will continue to take it.. My weight loss has been slow, but I have lost 12 lbs. but I now have the energy to work out 45 minutes a day, 5 days a week… I allow myself 1 caffeine free diet drink per day, then drink 7 pints of water per day.. I have changed my way of eating.  I just feel all around better. I have not had any of my mood swings since I have been taking this,and my hot flashes have really, really, really settled down…It was a $30 investment and too me well worth it, and will continue to invest in it… I also lowered my blood pressure from 154/95 to 129/83 within  one months time…. So I have had really good results from Estrin D and would recommend it. You just have to take it exactly as directed, and adjust the dosage to what your body can handle…

Response:

- Hide quoted text — Show quoted text -luckiemom wrote:

I have been taking Estrin D for a month now…When you take this, when it says do not use caffeine products with it,, don’t.  I take 1 pill per day (instead of the 2 to 4), because I am real sensitive to any kind of pills like this.. But after taking this for this long, Ihave had no problems with side effects.. Just the opposite.. I love Estrin D and will continue to take it.. My weight loss has been slow, but I have lost 12 lbs. but I now have the energy to work out 45 minutes a day, 5 days a week… I allow myself 1 caffeine free diet drink per day, then drink 7 pints of water per day.. I have changed my way of eating.  I just feel all around better. I have not had any of my mood swings since I have been taking this,and my hot flashes have really, really, really settled down…It was a $30 investment and too me well worth it, and will continue to invest in it… I also lowered my blood pressure from 154/95 to 129/83 within  one months time…. So I have had really good results from Estrin D and would recommend it. You just have to take it exactly as directed, and adjust the dosage to what your body can handle…

Hi, and welcome to asm! It’s nice to be feeling better, eh?  But Estrin-D might not be the cause.  It sounds like you took the bull by the horns, so to speak, and began changing a lot of things that could lead to feeling better. You’ve lost 12 lbs. (in a month?  That’s not slow!), cut out caffeine, begun an exercise program, and changed your diet.  Wow! That’s a lot of positive changes!  All these taken together would probably make you feel a lot better, even if you hadn’t taken Estrin-D. And if that’s correct, you may be able to save yourself $30 a month just by keeping up your new program. BTW – congratulations!  It’s not easy to make a lifestyle change. FurPaw — Born to live a life of leisure, still waiting for it to happen. To reply, unleash the dog

Response:

- Hide quoted text — Show quoted text -luckiemom wrote:

I have been taking Estrin D for a month now…When you take this, when it says do not use caffeine products with it,, don’t.  I take 1 pill per day (instead of the 2 to 4), because I am real sensitive to any kind of pills like this.. But after taking this for this long, Ihave had no problems with side effects.. Just the opposite.. I love Estrin D and will continue to take it.. My weight loss has been slow, but I have lost 12 lbs. but I now have the energy to work out 45 minutes a day, 5 days a week… I allow myself 1 caffeine free diet drink per day, then drink 7 pints of water per day.. I have changed my way of eating.  I just feel all around better. I have not had any of my mood swings since I have been taking this,and my hot flashes have really, really, really settled down…It was a $30 investment and too me well worth it, and will continue to invest in it… I also lowered my blood pressure from 154/95 to 129/83 within  one months time…. So I have had really good results from Estrin D and would recommend it. You just have to take it exactly as directed, and adjust the dosage to what your body can handle…

12 lbs. in a month? I don’t think that is very slow – just my opinion ;-)

Response:

- Hide quoted text — Show quoted text -kathryn wrote:

On Tue, 08 Mar 2005 23:24:19 -0500, "luckiemom" <luckiemo…@aol.com wrote: I have been taking Estrin D for a month now…When you take this,

when it

says do not use caffeine products with it,, don’t. Estrin D is a mixture of herbs containing caffeine, that’s why. I take 1 pill per day (instead of the 2 to 4), because I am real sensitive to any kind of

pills

like this.. But after taking this for this long, Ihave had no

problems

with side effects.. Just the opposite.. I love Estrin D and will

continue

to take it.. My weight loss has been slow, but I have lost 12 lbs.

but I

now have the energy to work out 45 minutes a day, 5 days a week… I

allow

myself 1 caffeine free diet drink per day, then drink 7 pints of

water per

day.. I have changed my way of eating.  I just feel all around

better. I

have not had any of my mood swings since I have been taking this,and

my

hot flashes have really, really, really settled down…It was a $30 investment and too me well worth it, and will continue to invest in

it…

I also lowered my blood pressure from 154/95 to 129/83 within  one

months

time…. So I have had really good results from Estrin D and would recommend it. You just have to take it exactly as directed, and

adjust the

dosage to what your body can handle. Couldn’t you change our way of eating and drink lots of water without using caffeine? Has anyone seen the new "got milk" advertisments? Seems the dariy council  no longer busy hyping milk for teenagers, if they ever did. Dieting is the new action. [ Disclaimer, I don't drink milk, and am not advocating others here to try it, but I must say it makes more sense to me to try something that has some scientific evidence behind it than to use some majik mystery mixture that turns out to be mainly caffeine ] PLUS dairy as a part of the DASH diet helps blood pressure. according to another well designed scientific study. got milk has ads about

that

one too.

The DASH diet takes the protein content of dairy into account and recommends fewer servings of meat and poulry (2 or less/day), and 4-5 servings of nuts/seeds/ including dried beans/peas/lentils per week to prevent excess protein intake. This diet is heavy on whole grains, veggies. fruits. – Hide quoted text — Show quoted text -

www.2424milk.com  Saw the url in a magazine ad. Kathryn

Response:

On Tue, 08 Mar 2005 23:24:19 -0500, "luckiemom" <luckiemo…@aol.com

wrote:

I have been taking Estrin D for a month now…When you take this, when it says do not use caffeine products with it,, don’t.  

Estrin D is a mixture of herbs containing caffeine, that’s why.

I take 1 pill per day (instead of the 2 to 4), because I am real sensitive to any kind of pills like this.. But after taking this for this long, Ihave had no problems with side effects.. Just the opposite.. I love Estrin D and will continue to take it.. My weight loss has been slow, but I have lost 12 lbs. but I now have the energy to work out 45 minutes a day, 5 days a week… I allow myself 1 caffeine free diet drink per day, then drink 7 pints of water per day.. I have changed my way of eating.  I just feel all around better. I have not had any of my mood swings since I have been taking this,and my hot flashes have really, really, really settled down…It was a $30 investment and too me well worth it, and will continue to invest in it… I also lowered my blood pressure from 154/95 to 129/83 within  one months time…. So I have had really good results from Estrin D and would recommend it. You just have to take it exactly as directed, and adjust the dosage to what your body can handle.

Couldn’t you change our way of eating and drink lots of water without using caffeine? Has anyone seen the new "got milk" advertisments? Seems the dariy council  no longer busy hyping milk for teenagers, if they ever did. Dieting is the new action. [ Disclaimer, I don't drink milk, and am not advocating others here to try it, but I must say it makes more sense to me to try something that has some scientific evidence behind it than to use some majik mystery mixture that turns out to be mainly caffeine ] PLUS dairy as a part of the DASH diet helps blood pressure. according to another well designed scientific study. got milk has ads about that one too. www.2424milk.com  Saw the url in a magazine ad. Kathryn

Response:

- Hide quoted text — Show quoted text -FurPaw wrote:

luckiemom wrote: I have been taking Estrin D for a month now…When you take this, when it says do not use caffeine products with it,, don’t.  I take 1 pill per day (instead of the 2 to 4), because I am real sensitive to any kind of pills like this.. But after taking this for this long, Ihave had no problems with side effects.. Just the opposite.. I love Estrin D and will continue to take it.. My weight loss has been slow, but I have lost 12 lbs. but I now have the energy to work out 45 minutes a day, 5 days a week… I allow myself 1 caffeine free diet drink per day, then drink 7 pints of water per day.. I have changed my way of eating.  I just feel all around better. I have not had any of my mood swings since I have been taking this,and my hot flashes have really, really, really settled down…It was a $30 investment and too me well worth it, and will continue to invest in it… I also lowered my blood pressure from 154/95 to 129/83 within  one months time…. So I have had really good results from Estrin D and would recommend it. You just have to take it exactly as directed, and adjust the dosage to what your body can handle… Hi, and welcome to asm! It’s nice to be feeling better, eh?  But Estrin-D might not be the cause.  It sounds like you took the bull by the horns, so to speak, and began changing a lot of things that could lead to feeling better. You’ve lost 12 lbs. (in a month?  That’s not slow!), cut out caffeine, begun an exercise program, and changed your diet.  Wow! That’s a lot of positive changes!  All these taken together would probably make you feel a lot better, even if you hadn’t taken Estrin-D. And if that’s correct, you may be able to save yourself $30 a month just by keeping up your new program. BTW – congratulations!  It’s not easy to make a lifestyle change. FurPaw

Whoops, I guess you didn’t cut out caffeine completely – only from your diet.  Estrin-D is full of ingredients that contain caffeine and caffeine-like chemicals.  See this article: http://www.ultimatefatburner.com/estrin-d-review.html FurPaw — Born to live a life of leisure, still waiting for it to happen. To reply, unleash the dog

Response:

I'm back- need support

Question:

Thanks for the wisdom.  It’s 4:30 and I haven’t deviated from good behavior all day.  As a ran a couple errands it was amazing how I wanted to "drive thru" and get something to snack on.  Traditionally I’m not a snacker, but I think I need to start planning for those moments consciously.  Now I at least feel some accountability to others.  And this week I WILL make my own fried jalapenos! — Phyllis Started 7/31/01 185/150/130   5′-1.25" WAS 185/141 fr. 8/02-6/03

– Hide quoted text — Show quoted text – Hey there Phyllis, I can understand where you’ve been and are. I had a very similar experience with low back and leg pain, surgery and epidurals, stopping the gym and using carby foods as a drug. The way I approached getting back into a healthier frame of mind was the way I approached going to the gym. Don’t think about it, just do it. Step by step if neccessary . If for example, I didn’t want to go to the gym one morning, I’d tell myself just get into the clothes and see how you feel. Then just go for the spa. Then just do 10 minutes on the treadmill. I’d always endup with a full workout and feeling great. Same with the food. Just have a lo-carb breakfast. Lunch comes around, same thing. Just eat this sensible lunch and for dinner have what you want. Dinner same thing. Coaxing myself through each meal until the full effect of lo-carb eating hit at around 5 days. YMMV of course. Welcome back and hang in there. BTW since you can cook, why not buy some jalepenos, gut them, stuff them with cheese and bake them of fry them yourself without the breading crap. Have your *cake* and eat it too! Good luck. — Bear- Grrrrrrrrrrrr  :o) 297/257/210 "She lives on prison grub…it consists of starches instead of proteins. She gets fat. Her tissues become water-logged." Perry Mason – The Glamous Ghost

Response:

Jenny- thanks for the kind words- your pictures are GREAT!! You are RIGHT about the cortisone/steriods messing w/ the metabolism– I forgot that(!)–longterm lack of sleep does that to a person.  I believe it can also cause an increase in appetite, possibly spurring my deep fried jalapeno craving- concentrated calories, etc.  While I always liked those (avail. at a party, etc.)-honest to God- I never ordered them until this past Fall.  Because I was very fastidious w/ not "cheating" for over 2 years, I am still astounded that I went the way of breaded and fried.  I wondered if/when I would reach a point where I would struggle w/such things. I’ve got to break away from them, though, and maybe start carrying around a teeny lunchbox size cooler w/ those boxy low-carb drinks- they taste good and won’t go bad if my ice goes south.  Better than the deep-fryer. My injury is 20 yrs old and in last 2 yrs has degenerated rapidly.  Always have had some degree of pain, but recently it is front and center in my life– a total bummer.  But I am working on getting my hands around it and finding the right docs and treatments… and I’m sure you know from having your own probs that I’ve seen A LOT of different practitioners and tried a lotta stuff. — Phyllis Started 7/31/01 185/150/130   5′-1.25" WAS 185/141 fr. 8/02-6/03

– Hide quoted text — Show quoted text – Phyllis, Welcome back.   I have serious long-term disc problems and know what you’re talking about and also how difficult it makes exercise.  If there’s one thing I’ve learned it is that disc injuries are a case where you DON’T push though and pain does not lead to gain. You have to learn what your body can tolerate and work around it.  Pushing things can end up making the damage worse. Also, I’m not sure what shots they are giving you, but if it is a form of cortisone, be aware that it really messes up blood sugar and makes it extremely hard to avoid weight gain. It also stays in the body for a long time. I got some three weeks ago and cut my food and carbs way back to 1200 calories for 2 weeks and still gained a pound. The stuff they gave me takes 2 weeks to get out of the blood stream . Pain itself can raise your blood sugar too, which raises insulin and makes it tougher to lose. So the smartest thing at this stage is probably to work on maintaining rather than losing, and give the injury time to calm down. You can’t do everything all at once, and if you manage to avoid gaining 20 lbs while dealing with the disc issue you are way ahead of most of us who have that kind of problem. Beyond that  it helps to keep problem foods out of the house and stay away from restaurants where you get into trouble. Ask your family to be supportive and explain how important it is to you. If that means they eat those foods when you aren’t there, well, that’s how they help you out. Also, I got down very low for me, too, but seemed to have slowed down my thyroid in the process. I’m starting to think that a bit higher than the "dream" weight, but 15% lower than where you started is a safer weight if you have thyroid issues. You don’t want to teach your body to live at a starvation level because it may keep slowing if you do that. When the neck gets better, you can work on the weight with more concentration. Don’t try to be superhuman.  People who don’t have disc injuries and nerve damage cannot imagine just how completely they take over your life or how difficult they are to heal from. Mine hasn’t healed but it has become very manageable and I am only in pain if I do stupid things when I try to forget my back is messed up. — Jenny  - Low Carbing for 4 years. At goal for weight. Type 2 diabetes, hba1c 5.2. Cut the carbs to respond to my  email address! Low carb facts and figures, my weight-loss photos, tips, recipes, strategies for dealing with diabetes and more at http://www.geocities.com/jenny_the_bean/ Looking for help controlling your blood sugar? Visit  http://www.alt-support-diabetes.org/Newly%20Diagnosed.htm

Response:

Looking forward to any butt-kicking needed, wisdom, personal chef & fitness trainer donations ;-) ,etc.

Hi Phyllis, welcome back!  (I didn’t start posting until 6/03, so you wouldn’t have seen my posts back when you were a regular.)   — Saffire 205/162/125  -  5′2.5" Atkins since 6/14/03 Progress photo:  http://photos.yahoo.com/saffire333

Response:

Hey there Phyllis, I can understand where you’ve been and are. I had a very similar experience with low back and leg pain, surgery and epidurals, stopping the gym and using carby foods as a drug. The way I approached getting back into a healthier frame of mind was the way I approached going to the gym. Don’t think about it, just do it. Step by step if neccessary . If for example, I didn’t want to go to the gym one morning, I’d tell myself just get into the clothes and see how you feel. Then just go for the spa. Then just do 10 minutes on the treadmill. I’d always endup with a full workout and feeling great. Same with the food. Just have a lo-carb breakfast. Lunch comes around, same thing. Just eat this sensible lunch and for dinner have what you want. Dinner same thing. Coaxing myself through each meal until the full effect of lo-carb eating hit at around 5 days. YMMV of course. Welcome back and hang in there. BTW since you can cook, why not buy some jalepenos, gut them, stuff them with cheese and bake them of fry them yourself without the breading crap. Have your *cake* and eat it too! Good luck. — Bear- Grrrrrrrrrrrr  :o) 297/257/210 "She lives on prison grub…it consists of starches instead of proteins. She gets fat. Her tissues become water-logged." Perry Mason – The Glamous Ghost

– Hide quoted text — Show quoted text – For combined reasons, I quit posting and reading group 5/03.  Long-term on group.  Now I’m back- recognizing my incredible need for support & ready to ignore the silly OT goofballs that come and go.  Was reading posts this AM, and saw many familiar names– wonderful people that I’m glad to see are still around and many insightful, great posts from the unfamiliar.  Here’s my history: Started 7/31/01 at 185#  size 16- pushing into size 18 As of 4/02, I was at 160, and weight didn’t change until about 6/02, I went from about 156-150 betw. June-beginning of August 02 in 2 wk time frame weight jumped up to 150#- no discernable reason apparent to me, ((except major long-term multi cystic goiter untreated))- started thyroid treatment & meds. 7/03–it has helped hypo-thyr. symptoms.  Pretty much have stayed around the 150# mark tho’. Have been able to get as low as 146#, but **excuse time now, folks**, just haven’t been able to get back into the groove of it all.  I simply feel burnt out, come down on myself for blowing my previously frustrating plateau, then have to remind myself that I still have maintained a great deal of weight loss.  My most recently bad habits are "picking" at higher carb foods (as when making kids’ meals, lunches, etc.)— ALSO– *kiss of death* at least 2x a week for last couple months I’ve been buying fried on hectic days !!! and I know better!!!  I cook, know how to cook, know what I SHOULD be eating, etc… I’m so frustrated w/ myself!!  I actually had to get bigger pants this Fall (got rid of all larger sizes previously)– did I say I’m frustrated w/myself?!? I still exercised regularly, hiking 3x a wk.  Did Curves but haven’t been for MONTHS.  Been suffering in recent months w/ruptured disks in neck, getting epid. injections, which have been ugly, due to complexity of damage in neck, etc.  Have had pain issues for years, but it has become a HUGE issue for me– I’m frequently awakened by pain etc. Looking forward to any butt-kicking needed, wisdom, personal chef & fitness trainer donations ;-) ,etc. — Phyllis Started 7/31/01 185/150/130   5′-1.25" WAS 185/141 fr. 8/02-6/03

Response:

I still exercised regularly, hiking 3x a wk.  Did Curves but haven’t been for MONTHS.  Been suffering in recent months w/ruptured disks in neck, getting epid. injections, which have been ugly, due to complexity of damage in neck, etc.  Have had pain issues for years, but it has become a HUGE issue for me– I’m frequently awakened by pain etc. Looking forward to any butt-kicking needed, wisdom, personal chef & fitness trainer donations ;-) ,etc.

On the pain issue go to the doctor,  I waited a year to go using it as an excuse to do almost nothing.  True that there was a real diagnosis of sciatica and now that I have been medicated its all but gone, but I wasted a YEAR making excuses for myself and why I would get thin if I could but my hip hurts today.  Suprisingly the pain got a lot better the more I stretched and excersized anyway when I finally got around to no more excuses! As for butt kickin this isnt the place for THAT I dont think though there are probably several waiting to do just that (close your mouth then….stop eating then etc.)  Personally it took reading posts here and downloading HealthKick ( I know many here also use the fitday but healthkick was free and for now I wasnt sure I would use it if I paid for something like that) to keep track of everything I eat and do to get myself back on track from a stall.  I have been at the 178 for about three weeks now and yesterday when I weighed for my new week weigh in i was down two pounds FINALLY! — low carbing since 11/12/03 235ish/178/135

Response:

Phyllis, Welcome back.   I have serious long-term disc problems and know what you’re talking about and also how difficult it makes exercise.  If there’s one thing I’ve learned it is that disc injuries are a case where you DON’T push though and pain does not lead to gain. You have to learn what your body can tolerate and work around it.  Pushing things can end up making the damage worse. Also, I’m not sure what shots they are giving you, but if it is a form of cortisone, be aware that it really messes up blood sugar and makes it extremely hard to avoid weight gain. It also stays in the body for a long time. I got some three weeks ago and cut my food and carbs way back to 1200 calories for 2 weeks and still gained a pound. The stuff they gave me takes 2 weeks to get out of the blood stream . Pain itself can raise your blood sugar too, which raises insulin and makes it tougher to lose. So the smartest thing at this stage is probably to work on maintaining rather than losing, and give the injury time to calm down. You can’t do everything all at once, and if you manage to avoid gaining 20 lbs while dealing with the disc issue you are way ahead of most of us who have that kind of problem. Beyond that  it helps to keep problem foods out of the house and stay away from restaurants where you get into trouble. Ask your family to be supportive and explain how important it is to you. If that means they eat those foods when you aren’t there, well, that’s how they help you out. Also, I got down very low for me, too, but seemed to have slowed down my thyroid in the process. I’m starting to think that a bit higher than the "dream" weight, but 15% lower than where you started is a safer weight if you have thyroid issues. You don’t want to teach your body to live at a starvation level because it may keep slowing if you do that. When the neck gets better, you can work on the weight with more concentration. Don’t try to be superhuman.  People who don’t have disc injuries and nerve damage cannot imagine just how completely they take over your life or how difficult they are to heal from. Mine hasn’t healed but it has become very manageable and I am only in pain if I do stupid things when I try to forget my back is messed up. — Jenny  - Low Carbing for 4 years. At goal for weight. Type 2 diabetes, hba1c 5.2. Cut the carbs to respond to my  email address! Low carb facts and figures, my weight-loss photos, tips, recipes, strategies for dealing with diabetes and more at http://www.geocities.com/jenny_the_bean/ Looking for help controlling your blood sugar? Visit  http://www.alt-support-diabetes.org/Newly%20Diagnosed.htm

– Hide quoted text — Show quoted text – For combined reasons, I quit posting and reading group 5/03.  Long-term on group.  Now I’m back- recognizing my incredible need for support & ready to ignore the silly OT goofballs that come and go.  Was reading posts this AM, and saw many familiar names– wonderful people that I’m glad to see are still around and many insightful, great posts from the unfamiliar.  Here’s my history: Started 7/31/01 at 185#  size 16- pushing into size 18 As of 4/02, I was at 160, and weight didn’t change until about 6/02, I went from about 156-150 betw. June-beginning of August 02 in 2 wk time frame weight jumped up to 150#- no discernable reason apparent to me, ((except major long-term multi cystic goiter untreated))- started thyroid treatment & meds. 7/03–it has helped hypo-thyr. symptoms.  Pretty much have stayed around the 150# mark tho’. Have been able to get as low as 146#, but **excuse time now, folks**, just haven’t been able to get back into the groove of it all.  I simply feel burnt out, come down on myself for blowing my previously frustrating plateau, then have to remind myself that I still have maintained a great deal of weight loss.  My most recently bad habits are "picking" at higher carb foods (as when making kids’ meals, lunches, etc.)— ALSO– *kiss of death* at least 2x a week for last couple months I’ve been buying fried on hectic days !!! and I know better!!!  I cook, know how to cook, know what I SHOULD be eating, etc… I’m so frustrated w/ myself!!  I actually had to get bigger pants this Fall (got rid of all larger sizes previously)– did I say I’m frustrated w/myself?!? I still exercised regularly, hiking 3x a wk.  Did Curves but haven’t been for MONTHS.  Been suffering in recent months w/ruptured disks in neck, getting epid. injections, which have been ugly, due to complexity of damage in neck, etc.  Have had pain issues for years, but it has become a HUGE issue for me– I’m frequently awakened by pain etc. Looking forward to any butt-kicking needed, wisdom, personal chef & fitness trainer donations ;-) ,etc. — Phyllis Started 7/31/01 185/150/130   5′-1.25" WAS 185/141 fr. 8/02-6/03

Response:

For combined reasons, I quit posting and reading group 5/03.  Long-term group.  Now I’m back- recognizing my incredible need for support & ready to ignore the silly OT goofballs that come and go.  Was reading posts this AM, and saw many familiar names– wonderful people that I’m glad to see are still around and many insightful, great posts from the unfamiliar.  Here’s my history: Started 7/31/01 at 185#  size 16- pushing into size 18 As of 4/02, I was at 160, and weight didn’t change until about 6/02, I went from about 156-150 betw. June-beginning of August 02 in 2 wk time frame weight jumped up to 150#- no discernable reason apparent to me, ((except major long-term multi cystic goiter untreated))- started thyroid treatment & meds. 7/03–it has helped hypo-thyr. symptoms.  Pretty much have stayed around the 150# mark tho’. Have been able to get as low as 146#, but **excuse time now, folks**, just haven’t been able to get back into the groove of it all.  I simply feel burnt out, come down on myself for blowing my previously frustrating plateau, then have to remind myself that I still have maintained a great deal of weight loss.  My most recently bad habits are "picking" at higher carb foods (as when making kids’ meals, lunches, etc.)— ALSO– *kiss of death* at least 2x a week for last couple months I’ve been buying fried on hectic days !!! and I know better!!!  I cook, know how to cook, know what I SHOULD be eating, etc… I’m so frustrated w/ myself!!  I actually had to get bigger pants this Fall (got rid of all larger sizes previously)– did I say I’m frustrated w/myself?!? I still exercised regularly, hiking 3x a wk.  Did Curves but haven’t been for MONTHS.  Been suffering in recent months w/ruptured disks in neck, getting epid. injections, which have been ugly, due to complexity of damage in neck, etc.  Have had pain issues for years, but it has become a HUGE issue for me– I’m frequently awakened by pain etc. Looking forward to any butt-kicking needed, wisdom, personal chef & fitness trainer donations ;-) ,etc. — Phyllis Started 7/31/01 185/150/130   5′-1.25" WAS 185/141 fr. 8/02-6/03

Response:

combonation

Question:

So what happens if you mistakenly take seroquel (for sleeping) after having drunk alcohol? Paul

Response:

permanently into the ether: So what happens if you mistakenly take seroquel (for sleeping) after having drunk alcohol? Paul

I found a form of seroquel that is liquid and contains some alcohol.  So, I don’t think there is an immediate danger–but long term it could lead to diabetes or even worse. http://www.rxlist.com/cgi/generic2/quetiap_wcp.htm WARNINGS Neuroleptic Malignant Syndrome (NMS) A potentially fatal symptom complex sometimes referred to as Neuroleptic Malignant Syndrome (NMS) has been reported in association with administration of antipsychotic drugs. Two possible cases of NMS [(2/2387 (0.1%)] have been reported in clinical trials with SEROQUEL. Clinical manifestations of NMS are hyperpyrexia, muscle rigidity, altered mental status, and evidence of autonomic instability (irregular pulse or blood pressure, tachycardia, diaphoresis, and cardiac dysrhythmia). Additional signs may include elevated creatinine phosphokinase, myoglobinuria (rhabdomyolysis) and acute renal failure. The diagnostic evaluation of patients with this syndrome is complicated. In arriving at a diagnosis, it is important to exclude cases where the clinical presentation includes both serious medical illness (e.g., pneumonia, systemic infection, etc.) and untreated or inadequately treated extrapyramidal signs and symptoms (EPS). Other important considerations in the differential diagnosis include central anticholinergic toxicity, heat stroke, drug fever and primary central nervous system (CNS) pathology. From Our Sponsors The management of NMS should include: 1) immediate discontinuation of antipsychotic drugs and other drugs not essential to concurrent therapy; 2) intensive symptomatic treatment and medical monitoring; and 3) treatment of any concomitant serious medical problems for which specific treatments are available. There is no general agreement about specific pharmacological treatment regimens for NMS. If a patient requires antipsychotic drug treatment after recovery from NMS, the potential reintroduction of drug therapy should be carefully considered. The patient should be carefully monitored since recurrences of NMS have been reported. Tardive Dyskinesia A syndrome of potentially irreversible, involuntary, dyskinetic movements may develop in patients treated with antipsychotic drugs. Although the prevalence of the syndrome appears to be highest among the elderly, especially elderly women, it is impossible to rely upon prevalence estimates to predict, at the inception of antipsychotic treatment, which patients are likely to develop the syndrome. Whether antipsychotic drug products differ in their potential to cause tardive dyskinesia is unknown. The risk of developing tardive dyskinesia and the likelihood that it will become irreversible are believed to increase as the duration of treatment and the total cumulative dose of antipsychotic drugs administered to the patient increase. However, the syndrome can develop, although much less commonly, after relatively brief treatment periods at low doses. There is no known treatment for established cases of tardive dyskinesia, although the syndrome may remit, partially or completely, if antipsychotic treatment is withdrawn. Antipsychotic treatment, itself, however, may suppress (or partially suppress) the signs and symptoms of the syndrome and thereby may possibly mask the underlying process. The effect that symptomatic suppression has upon the long-term course of the syndrome is unknown. Given these considerations, SEROQUEL should be prescribed in a manner that is most likely to minimize the occurrence of tardive dyskinesia. Chronic antipsychotic treatment should generally be reserved for patients who appear to suffer from a chronic illness that (1) is known to respond to antipsychotic drugs, and 2) for whom alternative, equally effective, but potentially less harmful treatments are not available or appropriate. In patients who do require chronic treatment, the smallest dose and the shortest duration of treatment producing a satisfactory clinical response should be sought. The need for continued treatment should be reassessed periodically. If signs and symptoms of tardive dyskinesia appear in a patient on SEROQUEL, drug discontinuation should be considered. However, some patients may require treatment with SEROQUEL despite the presence of the syndrome. PRECAUTIONS General Orthostatic Hypotension: SEROQUEL may induce orthostatic hypotension associated with dizziness, tachycardia and in some patients, syncope, especially during the initial dose-titration period, probably reflecting its a1-adrenergic antagonist properties. Syncope was reported in 1% (22/2162) of the patients treated with SEROQUEL, compared with 0% (0/206) on placebo and about 0.5% (2/420) on active control drugs. The risk of orthostatic hypotension and syncope may be minimized by limiting the initial dose to 25 mg bid (See DOSAGE AND ADMINISTRATION). If hypotension occurs during titration to the target dose, a return to the previous dose in the titration schedule is appropriate. SEROQUEL should be used with particular caution in patients with known cardiovascular disease (history of myocardial infarction or ischemic heart disease, heart failure or conduction abnormalities), cerebrovascular disease or conditions which would predispose patients to hypotension (dehydration, hypovolemia and treatment with antihypertensive medications). Cataracts: The development of cataracts was observed in association with quetiapine treatment in chronic dog studies (see Animal Toxicology). Lens changes have also been observed in patients during long-term SEROQUEL treatment, but a causal relationship to SEROQUEL use has not been established. Nevertheless, the possibility of lenticular changes cannot be excluded at this time. Therefore, examination of the lens by methods adequate to detect cataract formation, such as slit lamp exam or other appropriately sensitive methods, is recommended at initiation of treatment or shortly thereafter, and at 6-month intervals during chronic treatment. Seizures: During clinical trials, seizures occurred in 0.8% (18/2387) of patients treated with SEROQUEL compared to 0.5% (1/206) on placebo and 1% (4/420) on active control drugs. As with other antipsychotics SEROQUEL should be used cautiously in patients with a history of seizures or with conditions that potentially lower the seizure threshold, e.g., Alzheimer’s dementia. Conditions that lower the seizure threshold may be more prevalent in a population of 65 years or older. Hypothyroidism: Clinical trials with SEROQUEL demonstrated a dose-related decrease in total and free thyroxine (T4) of approximately 20% at the higher end of the therapeutic dose range that was apparent early on during treatment and maintained without adaptation or progression during more chronic therapy. Generally, these changes were of no clinical significance and TSH was unchanged in most patients, but about 0.4% (10/2386) of SEROQUEL patients did experience TSH increases. Six of the patients with TSH increases needed replacement thyroid treatment. Cholesterol and Triglyceride Elevations: In a p.o. of 3- to 6-week placebo-controlled trials, SEROQUEL-treated patients had increases from baseline in cholesterol and triglyceride of 11% and 17%, respectively, compared to slight decreases for placebo patients. These changes were only weakly related to the increases in weight observed in SEROQUEL-treated patients. Hyperprolactinemia: Although an elevation of prolactin levels was not demonstrated in clinical trials with SEROQUEL, increased prolactin levels were observed in rat studies with this compound, and were associated with an increase in mammary gland neoplasia in rats (see Carcinogenesis). Tissue culture experiments indicate that approximately one-third of human breast cancers are prolactin dependent in vitro, a factor of potential importance if the prescription of these drugs is contemplated in a patient with previously detected breast cancer. Although disturbances such as galactorrhea, amenorrhea, gynecomastia, and impotence have been reported with prolactin-elevating compounds, the clinical significance of elevated serum prolactin levels is unknown for most patients. Neither clinical studies nor epidemiologic studies conducted to date have shown an association between chronic administration of this class of drugs and tumorigenesis in humans; the available evidence is considered too limited to be conclusive at this time. Transaminase Elevations: Asymptomatic, transient and reversible elevations in serum transaminases (primarily ALT) have been reported. The proportions of patients with transaminase elevations of 3 times the upper limits of the normal reference range in a p.o. of 3- to 6-week placebo-controlled trials were approximately 6% for SEROQUEL compared to 1% for placebo. These hepatic enzyme elevations usually occurred within the first 3 weeks of drug treatment and promptly returned to pre-study levels with ongoing treatment with SEROQUEL. Potential for Cognitive and Motor Impairment: Somnolence was a commonly reported adverse event reported in patients treated with SEROQUEL especially during the 3-5 day period of initial dose-titration. In the 3- to 6-week placebo-controlled trials, somnolence was reported in 18% of patients on SEROQUEL compared to 11% of placebo patients. Since SEROQUEL has the potential to impair judgment, thinking, or motor skills, patients should be cautioned about performing activities requiring mental alertness, such as operating a motor vehicle (including automobiles) or operating hazardous machinery until they are reasonably certain that SEROQUEL therapy does not affect them adversely. Priapism: One case of priapism in a patient receiving SEROQUEL has been reported prior to market introduction. While a causal … read more »

Response:

Maybe not so expensive after all

Question:

I just clicked on one of the ads to the right of the threads. I could probably afford $30/month for Acyclovir. Recommendations anyone? Is it a good idea to just grab a bottlof the off the web shelf or is a doc visit absolutely Necessary? JB

Response:

I just clicked on one of the ads to the right of the threads. I could probably afford $30/month for Acyclovir. Recommendations anyone? Is it a good idea to just grab a bottlof the off the web shelf or is a doc visit absolutely Necessary?

Naturally, the most responsible recommendations have to include getting a prescription from a real doctor, and if you’re going to order in the U.S. I think you pretty much have to have one.   Only you and a doctor know if there’s anything in your chart that would contraindicate use of Acyclovir. Aside from that, however, the only other worry is in dealing with a reputable supplier.  Use a place with a real business address, and use a credit card in case the delivered product isn’t what was promised. If you’re crazy enough to order the Dermaseptic you just might be able to enjoy prescription-free prescription drugs.  ;-) Mike

Response:

Aside from that, however, the only other worry is in dealing with a reputable supplier.  Use a place with a real business address, and use a credit card in case the delivered product isn’t what was promised. If you’re crazy enough to order the Dermaseptic you just might be able to enjoy prescription-free prescription drugs.  ;-)

Crazy or brave, it’s all perspective. By the way, the lesion on my upper lip is almost healed. 5 days now. the ones on my bottom lip are still bubbling away. Well, I got a prescription for Acyclovir. 200mg, I have to take it every day, twice a day. I can skip a dose if I want,  and increase that to two pills twice a day if I get a lesion. I’ll start it after this OB. I hate the idea to have to take pills for the rest of my life. and this before I’m 40! I feel old. JB

Response:

Aside from that, however, the only other worry is in dealing with a reputable supplier.  Use a place with a real business address, and use a credit card in case the delivered product isn’t what was promised. If you’re crazy enough to order the Dermaseptic you just might be able to enjoy prescription-free prescription drugs.  ;-) Crazy or brave, it’s all perspective. By the way, the lesion on my upper lip is almost healed. 5 days now. the ones on my bottom lip are still bubbling away. Well, I got a prescription for Acyclovir. 200mg, I have to take it every day, twice a day. I can skip a dose if I want,  and increase that to two pills twice a day if I get a lesion. I’ll start it after this OB. I hate the idea to have to take pills for the rest of my life. and this before I’m 40! I feel old.

Mmmmmmm, JB, if you only get an outbreak every third or fourth month, why not wait until the prodrome and take your Acyclovir then?  There’s no need to take it suppressively if you don’t have a chronic HSV problem. I presume you don’t use the Dermaseptic the 85% of the time when you’re not experiencing an outbreak.  Acyclovir can be used the same way, and should give better results.  In the long run, of course, it will be more expensive, but you may be pleasantly surprised with the results. Take care, Mike

Response:

– Hide quoted text — Show quoted text – Anyone can go into a Costco pharmacy (if one’s in your area) with a doc’s prescription and buy 90 tabs of 400mg Acyclovir for about $24 US (last time I bought some, and that was about a year ago).  Gotta have a Costco in the area of course.  But you DON’T have to be a member to use the pharmacy. Cheapest place I’ve found for meds (of ANY kind). Hang in -G Yeah Costco in the area would be nice. I took two of the 200s and no probs. I read your post. called my Doc, and he said to go ahead and try to do a single dose of four pills. I did. No problems. Thanks for the advice. I asked him why he prescribed such a low dose, he said it was because of my history of reacting negatively, both physically and intellectually to prescription drugs, and my recent bout with food poisoning. He played it safer than sorry.

Sheez!  Those docs.  Always playing is safe rather than sorry.  ::grin:: He sent a new prescription to my walgreens and bam 800mg tablets! I took four yesterday spaced evenly throughout the day and no problems. They were about $90.00 but with my ins. that came to $30.00 so price-wise it’s totally affordable if I treat by outbreak. Cool. JB

Hope it helps.  Keep us posted with how it’s going. Hang in -G

Response:

Anyone can go into a Costco pharmacy (if one’s in your area) with a doc’s prescription and buy 90 tabs of 400mg Acyclovir for about $24 US (last time I bought some, and that was about a year ago).  Gotta have a Costco in the area of course.  But you DON’T have to be a member to use the pharmacy. Cheapest place I’ve found for meds (of ANY kind). Hang in -G

Yeah Costco in the area would be nice. I took two of the 200s and no probs. I read your post. called my Doc, and he said to go ahead and try to do a single dose of four pills. I did. No problems. Thanks for the advice. I asked him why he prescribed such a low dose, he said it was because of my history of reacting negatively, both physically and intellectually to prescription drugs, and my recent bout with food poisoning. He played it safer than sorry. He sent a new prescription to my walgreens and bam 800mg tablets! I took four yesterday spaced evenly throughout the day and no problems. They were about $90.00 but with my ins. that came to $30.00 so price-wise it’s totally affordable if I treat by outbreak. Cool. JB

Response:

Shucks, Guy, you are such a sweetie.  :) ar

– Hide quoted text — Show quoted text – "quite active" here too.  Good ol’ ar here answered my first post to this NG some 6 years ago.  Thanks again, ar!  ::smile:: Hang in -G Hey there, Jay, I’m hypo. I am quite active on the thyroid newsgroup and also am involved in setting up the thyroid newsgroup website.  So, sure, I’ll be more than happy to answer your questions. You can email me at: ar Oh, you have NO idea.  :)  When I was diagnosed with thyroid disease at the age of 30 and realized that I would have to take a pill every day to live…well, that sucked!  You  may or may not have to take the antivirals for the rest of your life.  I look at herpes meds as temporary. It’s that damn thyroid treatment that’s forever.  :( Take care, ar Oh I have an Idea! : ) Every woman in my wife’s family, including her is taking some form of synthroid. They sit around comparing dosages and stuff. It’s kinda kooky. You were "DIAGNOSED" at thirty?!? Ouch! It probably ewxplained alot for you then, huh? Hypo or hyper? I have some off topic questions about the effects of x-Thyroidism for ya, nothing too wacky, can we email off board? Jay

Response:

Anyone can go into a Costco pharmacy (if one’s in your area) with a doc’s prescription and buy 90 tabs of 400mg Acyclovir for about $24 US (last time I bought some, and that was about a year ago).  Gotta have a Costco in the area of course.  But you DON’T have to be a member to use the pharmacy. Cheapest place I’ve found for meds (of ANY kind). Hang in -G

– Hide quoted text — Show quoted text – I just clicked on one of the ads to the right of the threads. I could probably afford $30/month for Acyclovir. Recommendations anyone? Is it a good idea to just grab a bottlof the off the web shelf or is a doc visit absolutely Necessary? JB

Response:

"quite active" here too.  Good ol’ ar here answered my first post to this NG some 6 years ago.  Thanks again, ar!  ::smile:: Hang in -G

– Hide quoted text — Show quoted text – Hey there, Jay, I’m hypo. I am quite active on the thyroid newsgroup and also am involved in setting up the thyroid newsgroup website.  So, sure, I’ll be more than happy to answer your questions. You can email me at: ar Oh, you have NO idea.  :)  When I was diagnosed with thyroid disease at the age of 30 and realized that I would have to take a pill every day to live…well, that sucked!  You  may or may not have to take the antivirals for the rest of your life.  I look at herpes meds as temporary.  It’s that damn thyroid treatment that’s forever.  :( Take care, ar Oh I have an Idea! : ) Every woman in my wife’s family, including her is taking some form of synthroid. They sit around comparing dosages and stuff. It’s kinda kooky. You were "DIAGNOSED" at thirty?!? Ouch! It probably ewxplained alot for you then, huh? Hypo or hyper? I have some off topic questions about the effects of x-Thyroidism for ya, nothing too wacky, can we email off board? Jay

Response:

"nauseate easily"?  Shoot, if you "nauseate" at 200mg x2 you probably get a little sick lookin’ at mexican food ads, eh? My 1st herpes aware doc prescribed 800mg x4 for outbreaks and 800mg x2 for suppression.  He is on the leading edge though… he’s had oral herpes for 20 years and has always treated himself thusly.  Hardly ever had outbreaks once he went on the 800mg x2. Seriously… the recommended dosage for suppression is 400mg x2.  Like I said…200mg x2 won’t do much for you…not enough umph! Hang in -G

– Hide quoted text — Show quoted text – There’s a mistake in the following section, it’s one (1) tablet daily, with food. Well, I got a prescription for Acyclovir. 200mg, I have to take it every day, twice a day. I can skip a dose if I want,  and increase that to two pills twice a day if I get a lesion. I’ll start it after this OB. Mmmmmmm, JB, if you only get an outbreak every third or fourth month, why not wait until the prodrome and take your Acyclovir then?  There’s no need to take it suppressively if you don’t have a chronic HSV problem. 3-4 monts historically, Recently it’s been pretty much constant. May 12-19, May 29-Jun 9, Oct 5-13, Oct, 21-27 and Nov 1-present (Chandler’s Appointment notebook) No THEY’re not paying me either, Mike! I was told to use the low  daily dose because of my history of recurrence and persistence, and to increase dosage by as much as 6X (4x precisely) at prodrome. I was nearly prescribed a 400mg version, but I nauseate easily. ; )

Response:

There’s no ‘recommended dosage’ for 200mg x2 a day.  The only recommended dosage I’ve seen is 400mg x2 for suppression, and 400mg x5 for outbreaks. I don’t think 200mg x2 will do squat for you. Hang in -G

– Hide quoted text — Show quoted text – Aside from that, however, the only other worry is in dealing with a reputable supplier.  Use a place with a real business address, and use a credit card in case the delivered product isn’t what was promised. If you’re crazy enough to order the Dermaseptic you just might be able to enjoy prescription-free prescription drugs.  ;-) Crazy or brave, it’s all perspective. By the way, the lesion on my upper lip is almost healed. 5 days now. the ones on my bottom lip are still bubbling away. Well, I got a prescription for Acyclovir. 200mg, I have to take it every day, twice a day. I can skip a dose if I want,  and increase that to two pills twice a day if I get a lesion. I’ll start it after this OB. I hate the idea to have to take pills for the rest of my life. and this before I’m 40! I feel old. JB

Response:

Hey there, Jay, I’m hypo. I am quite active on the thyroid newsgroup and also am involved in setting up the thyroid newsgroup website.  So, sure, I’ll be more than happy to answer your questions. You can email me at: ar

– Hide quoted text — Show quoted text – Oh, you have NO idea.  :)  When I was diagnosed with thyroid disease at the age of 30 and realized that I would have to take a pill every day to live…well, that sucked!  You  may or may not have to take the antivirals for the rest of your life.  I look at herpes meds as temporary.  It’s that damn thyroid treatment that’s forever.  :( Take care, ar Oh I have an Idea! : ) Every woman in my wife’s family, including her is taking some form of synthroid. They sit around comparing dosages and stuff. It’s kinda kooky. You were "DIAGNOSED" at thirty?!? Ouch! It probably ewxplained alot for you then, huh? Hypo or hyper? I have some off topic questions about the effects of x-Thyroidism for ya, nothing too wacky, can we email off board? Jay

Response:

Oh, you have NO idea.  :)  When I was diagnosed with thyroid disease at the age of 30 and realized that I would have to take a pill every day to live…well, that sucked!  You  may or may not have to take the antivirals for the rest of your life.  I look at herpes meds as temporary.  It’s that damn thyroid treatment that’s forever.  :( Take care, ar

Oh I have an Idea! : ) Every woman in my wife’s family, including her is taking some form of synthroid. They sit around comparing dosages and stuff. It’s kinda kooky. You were "DIAGNOSED" at thirty?!? Ouch! It probably ewxplained alot for you then, huh? Hypo or hyper? I have some off topic questions about the effects of x-Thyroidism for ya, nothing too wacky, can we email off board? Jay

Response:

Oh, you have NO idea.  :)  When I was diagnosed with thyroid disease at the age of 30 and realized that I would have to take a pill every day to live…well, that sucked!  You  may or may not have to take the antivirals for the rest of your life.  I look at herpes meds as temporary.  It’s that damn thyroid treatment that’s forever.  :( Take care, ar

– Hide quoted text — Show quoted text – I hate the idea to have to take pills for the rest of my life. and this before I’m 40! I feel old. JB

Response:

There’s a mistake in the following section, it’s one (1) tablet daily, with food. Well, I got a prescription for Acyclovir. 200mg, I have to take it every day, twice a day. I can skip a dose if I want,  and increase that to two pills twice a day if I get a lesion. I’ll start it after this OB. Mmmmmmm, JB, if you only get an outbreak every third or fourth month, why not wait until the prodrome and take your Acyclovir then?  There’s no need to take it suppressively if you don’t have a chronic HSV problem.

3-4 monts historically, Recently it’s been pretty much constant. May 12-19, May 29-Jun 9, Oct 5-13, Oct, 21-27 and Nov 1-present (Chandler’s Appointment notebook) No THEY’re not paying me either, Mike! I was told to use the low  daily dose because of my history of recurrence and persistence, and to increase dosage by as much as 6X (4x precisely) at prodrome. I was nearly prescribed a 400mg version, but I nauseate easily. ; )

Response:

New TSH guidelines

Question:

- Hide quoted text — Show quoted text -Steve Green wrote:

On Sun, 31 Aug 2003 18:30:30 -0400, Terri <vl-hb…@erols.com wrote: <snip Under the new guidelines I would have been deemed to be hypothyroid as opposed to having synthroid prescribed for mild goiter with normal functioning.  I am not hypothyroid. I have no symptoms of hypothyroidism. <snip That’s the whole point. The TSH test is an imperfect indicator of whether someone needs more, less, or no medication — not much good for midrange tweaking IMO but does help identify severe problems. And, it gives doctors something they can write down and point to, so they like it  :/ There are quite a few thyroid patients who manage their own doses according to symptoms and physical signs such as resting pulse rate and morning temperature among others, with the blessings of their (few) enlightened doctors. Many have eliminated their meds. Some, like me, have increased them. Some, stuck with doctors who bow only to the TSH test, are miserable. (BTW I’ve been treated with RAI twice for Graves’ Disease. I tried to avoid this but it was a roaring case with 100% uptake and eye involvement — double vision, protrusion and the whole thing — and a resting pulse of ~100 day and night. This went undiagnosed for about eighteen months until I went to my doc with fatigue and edema. I didn’t respond well to PTU, unfortunately. The docs all told me my thyroid would burn out anyway over a period of years, and the RAI would help avoid more trouble along the way. Retrospectively, I wonder if surgery would have been a better route…) Steve Green

I agree with much of what you’ve said above, although I’d like to see access to thyroid drugs restricted a bit more. I think it’s prescribed too often to deal with problems that are not really thyroid related and that lowering the "norms" is likely to increase this practice. I’m horrified to hear how often Graves is missed by doctors. This is a very serious disease that shouldn’t be that hard for a decent physician to diagnose.

Response:

- Hide quoted text — Show quoted text -Frankenmel wrote:

I have no URL for this post. It came from a friend of mine. I wish I could find the source,but here goes: "According to the American Association of Clinical Endocrinologists (AACE), what was normal last year, thyroid-wise, may now be abnormal. According to the AACE, doctors have typically been basing their diagnoses on the "normal" range for the TSH test. The typical normal levels at most laboratories has fallen in the 0.5 to 5.0 range. The new guidelines narrow the range for acceptable thyroid function, and the AACE is now encouraging doctors to consider thyroid treatment for patients who test the target TSH level of 0.3 to 3.04, a far narrower range. AACE believes the new range will result in proper diagnosis for millions of Americans who suffer from a mild thyroid disorder, but have gone untreated until now."

And it will result in millions more people requiring the services of endocrinologists, many of whom probably bought stock in the companies that manufacture the drugs in anticipation of this announcement. More money for them at the expense of the people who are given thyroid hormone when they don’t need it. This is especially pernicious when you consider that giving unnecessary exogenous thyroid hormone will injure the thyroid and cause hypothyroidism. Thyroid hormone used to be prescribed quite regularly for weight loss. It did a lot of damage that way and tighter controls were placed on it. Looks to me as though this is a new way to do the same thing – sell more drugs. I’m very suspicious of attempts to put more and more people into a "diseased and in need of lifelong drugs and medical care" category merely by changing the norms on a lab test. – Hide quoted text — Show quoted text -

Sharon…………A warm toll-house cookie is an experience not unlike a religious epiphany.

Response:

"Terri" <vl-hb…@erols.com

wrote in message

news:bisopc$i9g$1@bob.news.rcn.net…

And it will result in millions more people requiring the services of endocrinologists, many of whom probably bought stock in the

companies

that manufacture the drugs in anticipation of this announcement.

More

money for them at the expense of the people who are given thyroid hormone when they don’t need it. This is especially pernicious when

you

consider that giving unnecessary exogenous thyroid hormone will

injure

the thyroid and cause hypothyroidism.

WRONG, giving unnecessary thyroid hormone results in hypErthyroidism and/or supressed TSH . Most Dr’s don’t take into account how a person feels, they just look at the test results and see ‘within normal ref. range’ and there is quite a difference between how a person may feel with a TSH result of 0.5 and one of  5. Here’s the link to the article Sharon was talking about http://www.aace.com/pub/tam2003/press.php and another http://thyroid.about.com/library/weekly/aanewTSHrange.htm and you may like to have a look at this site too. http://www.thyroid.org.au/Information/NormalTSH.html

Thyroid hormone used to be prescribed quite regularly for weight

loss.

It did a lot of damage that way and tighter controls were placed on

it.

Looks to me as though this is a new way to do the same thing – sell

more

drugs.

So because some Dr’s prescribed inappropriately people who are ill should suffer !

I’m very suspicious of attempts to put more and more people into a "diseased and in need of lifelong drugs and medical care" category merely by changing the norms on a lab test.

If the reference range is wrong ie arrived at by using the wrong/skewed data then I don’t understand why it shouldn’t be corrected and if this means more people will recieve treatment that will make them well surely that is a good thing ? I’m guessing you don’t have a thyroid problem Terri and so don’t understand how having thyroid hormones  even slightly out of your own personal ‘normal’ range can impact on your QOL. http://www.thyroid.org.au/Information/NormalTSH.html

Response:

- Hide quoted text — Show quoted text -Shirley wrote:

"Terri" <vl-hb…@erols.com wrote in message news:bisopc$i9g$1@bob.news.rcn.net… And it will result in millions more people requiring the services of endocrinologists, many of whom probably bought stock in the companies that manufacture the drugs in anticipation of this announcement. More money for them at the expense of the people who are given thyroid hormone when they don’t need it. This is especially pernicious when you consider that giving unnecessary exogenous thyroid hormone will injure the thyroid and cause hypothyroidism. WRONG, giving unnecessary thyroid hormone results in hypErthyroidism and/or supressed TSH .

Initially it will cause hyperthyroid symptoms not true hyperthyroidism which is overproduction of thyroid hormone by the thyroid gland.. Once the pituitary gets the chemically altered  signals from the bloodstream it secretes less TSH to signal the thyroid to secrete less hormone. Now the person is hypothyroid unless s/he takes his/her pills. The damage may be irreversible just as it may be in a similar situation with the adrenals and corisone use.

Most Dr’s don’t take into account how a person feels, they just look at the test results and see ‘within normal ref. range’ and there is quite a difference between how a person may feel with a TSH result of 0.5 and one of  5.

Now let’s talk about "subclinical hypothyroidism" the precursor to these new norms…. – Hide quoted text — Show quoted text -

Here’s the link to the article Sharon was talking about http://www.aace.com/pub/tam2003/press.php and another http://thyroid.about.com/library/weekly/aanewTSHrange.htm and you may like to have a look at this site too. http://www.thyroid.org.au/Information/NormalTSH.html Thyroid hormone used to be prescribed quite regularly for weight loss. It did a lot of damage that way and tighter controls were placed on it. Looks to me as though this is a new way to do the same thing – sell more drugs. So because some Dr’s prescribed inappropriately people who are ill should suffer ! I’m very suspicious of attempts to put more and more people into a "diseased and in need of lifelong drugs and medical care" category merely by changing the norms on a lab test. If the reference range is wrong ie arrived at by using the wrong/skewed data then I don’t understand why it shouldn’t be corrected and if this means more people will recieve treatment that will make them well surely that is a good thing ?

Normal people will receive treatments that will make them dependent on drugs and doctors in response to these new levels. There’s little evidence to suggest that the levels that have been in use for decades are suddenly wrong so millions more people are now in the category of diseased people who need tteatment. When the levels of osteoporosis and heart disease rise in response to this overuse of thyroid hormone, there will be still more drugs to treat these drug-induced diseases.

I’m guessing you don’t have a thyroid problem Terri and so don’t understand how having thyroid hormones  even slightly out of your own personal ‘normal’ range can impact on your QOL.

I was told I had a thyroid problem. I was told I needed thyroid hormone for my thyroid problem. I was prescribed thyroid hormone for my thyroid problem. I didn’t take the thyroid hormone for my thyroid problem. I took iodine .15mg a day instead for a period of several months since the mildly enlarged thyroid was the result of growing up in an area where the soil was iodine poor and as a farmer’s child I ate the food and drank the milk that was produced on the iodine poor soil and consequently had a very mild iodine deficiency goiter exacerbated by my avoidance of salt in any form for many years. I don’t have a thyroid problem. Had I taken the pills I probably would have one now. – Hide quoted text — Show quoted text -

http://www.thyroid.org.au/Information/NormalTSH.html

Response:

- Hide quoted text — Show quoted text -Chakolate wrote:

"Shirley" <s.holla…@ntlworld.com wrote in news:bitsra$d48gr$1@ID- 145712.news.uni-berlin.de: And you are happy with the fact that untreated/undertreated hypothyroidism causes heart failure, depression, raised cholesterol levels, gall bladder disease, gut motility problems and dementia, not to mention the myriad of drugs used to treat those conditions. Is it really a question of not treating an actual condition?  It sounded like Terri’s concern is those doctors who will just look at the ‘normal’ range and prescribe, without regard for how the patient is feeling.  Then people whose personal range may be a little off will be treated when they don’t need it.  

Exactly. Over the past few years we’ve seen all kinds of norms tweaked a bit to put more people into the diseased and need drug and other medical treatment category. The first one was cholesterol where the "good level"   has been adjusted so far down that more than 50% of people over the age of 40 now have "hyperlipidemia" and need statins. Blood glucose norms have been adjusted to include tens of millions of people into a new category called pre-diabetics who need glucometers and test strips at the bare minimum. More recently normal blood pressure has been redefined to include tens of millions who have normal blood pressure in the group who need regular monitoring by doctors and drug treatment. If I wait long enough my normal B/P of 80-90/50-60 will be hypertension. The percentage  of overweight people who once again need medical supervision and medical care skyrocketed by the simple expedient of changing the numbers. One norm that should be questioned (and lowered but won’t be because lowering it will reduce drug sales) is hemoglobin which some doctors are coming to realize are set too high for men in particular and might account for their increased risk of heart disease.

When I first came here, I thought Terri’s posts were full of paranoia.   More and more they sound to me like totally justifiable skepticism.   Chakolate

As the old saying goes, even a paranoid *can* have real enemies who really are out to get him/her (grinning), but I think a lot more skepticism and a lot less trust in the medical industry is totally justified.

Response:

"And guess who produces synthroid…..what a surprise. Guess who produces the reageants used to test TSH and T3 and T4….right again…" Citations please. TIA. Sue Hashimoto’s thyroiditis dx 1998.

Response:

On Mon, 1 Sep 2003 00:12:46 -0400, "Sue" <sdhbm…@prexar.com.net

wrote:

"And guess who produces synthroid…..what a surprise. Guess who produces the reageants used to test TSH and T3 and T4….right again…" Citations please. TIA.

I’m assuming this was directed to me as I brought Abbott Laboratories’ name into this thread. http://www.abbottdiagnostics.com/medical_conditions/thyroid/testing/l… Kathryn – Hide quoted text — Show quoted text -

Sue Hashimoto’s thyroiditis dx 1998.

Response:

- Hide quoted text — Show quoted text -gs wrote:

"Terri" <vl-hb…@erols.com wrote in message news:biu3dr$4oj$1@bob.news.rcn.net… Shirley wrote: "Terri" <vl-hb…@erols.com wrote in message news:bitu0u$p29$1@bob.news.rcn.net… Shirley wrote: "Terri" <vl-hb…@erols.com wrote in message news:bitn8g$dho$1@bob.news.rcn.net… Shirley wrote: "Terri" <vl-hb…@erols.com wrote in message news:bisopc$i9g$1@bob.news.rcn.net… snipped<<<<<< Because it’s basic physiology. It follows the rules of basic physiology…but you don’t have to believe it. I have a lot of problem with claims involving biological and physiological impossibilities. For example your statement that something that increases the risk of heart attack doesn’t increase the risk of heart failure suggests that you don’t really know what heart failure is or the underlying cause – anything that impedes the heart’s ability to pump blood which in turn leads to fluid build-up in the lung (pulmonary edema). Heart failure is actually possible in extremely advanced hypothyroidism where the heart rate and sluggish circulation combine to result in fluid build-up in the lung. However, it’s rare (I’d argue damn near impossible) for anyone to remain undiagnosed until that happens. It certainly isn’t going to happen to someone with a TSH higher than 3 but lower than 5 who isn’t being "treated." My Mom and her sister both died from the same thing. Untreated hypothyroidism. They both went into a coma. My aunt had never had her thyroid levels checked. My Mom on the other hand, had been having her levels checked for over 10 years. My Mom’s TSH had never been over 2.8. They both had all the symptoms and had for years. I have symptoms and all 3 of my kids have symptoms. The test doesn’t show us having thyroid problems…so it isn’t thyroid. Gwen

I’m not buying it. I believe you may have been told this, but I’m not buying it.

Response:

"Terri" <vl-hb…@erols.com

wrote in message

news:biu3dr$4oj$1@bob.news.rcn.net… – Hide quoted text — Show quoted text -> Shirley wrote: > > "Terri" <vl-hb…@erols.com

wrote in message

> > news:bitu0u$p29$1@bob.news.rcn.net… > >>Shirley wrote: > >>>"Terri" <vl-hb…@erols.com

wrote in message

> >>>news:bitn8g$dho$1@bob.news.rcn.net… > >>>>Shirley wrote: > >>>>>"Terri" <vl-hb…@erols.com

wrote in message

> >>>>>news:bisopc$i9g$1@bob.news.rcn.net… > >>>>>snipped<<<<<< > Because it’s basic physiology. It follows the rules of basic > physiology…but you don’t have to believe it. > I have a lot of problem with claims involving biological and > physiological impossibilities. For example your statement that something > that increases the risk of heart attack doesn’t increase the risk of > heart failure suggests that you don’t really know what heart failure is > or the underlying cause – anything that impedes the heart’s ability to > pump blood which in turn leads to fluid build-up in the lung (pulmonary > edema). Heart failure is actually possible in extremely advanced > hypothyroidism where the heart rate and sluggish circulation combine to > result in fluid build-up in the lung. However, it’s rare (I’d argue damn > near impossible) for anyone to remain undiagnosed until that happens. > It certainly isn’t going to happen to someone with a TSH higher than 3 > but lower than 5 who isn’t being "treated."

My Mom and her sister both died from the same thing. Untreated hypothyroidism. They both went into a coma. My aunt had never had her thyroid levels checked. My Mom on the other hand, had been having her levels checked for over 10 years. My Mom’s TSH had never been over 2.8. They both had all the symptoms and had for years. I have symptoms and all 3 of my kids have symptoms. The test doesn’t show us having thyroid problems…so it isn’t thyroid. Gwen – Hide quoted text — Show quoted text -

I’m guessing you don’t have a thyroid problem Terri and so don’t understand how having thyroid hormones  even slightly out of your own personal ‘normal’ range can impact on your QOL. I was told I had a thyroid problem. I was told I needed thyroid hormone for my thyroid problem. I was prescribed thyroid hormone for my thyroid problem. I didn’t take the thyroid hormone for my thyroid problem. I took iodine .15mg a day instead for a period of several months since the mildly enlarged thyroid was the result of growing up in an area where the soil was iodine poor and as a farmer’s child I ate the food and drank the milk that was produced on the iodine poor soil and consequently had a very mild iodine deficiency goiter exacerbated by my avoidance of salt in any form for many years. I don’t have a thyroid problem. Had I taken the pills I probably would have one now. So because you were prescribed an inappropriate treatment for iodine deficiency caused by poor diet Not a poor diet at all. Actually something that is seldom considered in middle aged goiter – the area where you grew up. In New York, IIRC, there used to be a large area where goiter and even cretinism were very common. There are other such areas throughout North America and probably  throughout the world. This problem was the driving force behind adding iodine to salt so that almost everyone would get their iodine requirement. It appears that people who grow up in these iodine-poor areas where the local produce, milk, meat, and water are all iodine deficient may not build up enough iodine stores in childhood. Unfortunately most of the people who develop this problem take the prescribed thyroid hormone and so develop an iatrogenic form of hypothyroidism. If your goitre was caused by a lack of iodine it was because of poor diet (that doesn’t mean you were eating junk food just that it didn’t contain all the essential minerals etc). You didn’t have a thyroid disease but a chemical deficiency which was easily reversed, that isn’t the case for people with an autoimmune thyroid condition they need additional thyroid  hormones as their thyroids are unable to produce enough hormone for their bodies to function properly. I’m not the only person who’s been prescribed thyroid hormone when the RDA of iodine would have solved the problem. I did my research – books and articles because no internet at the time – and learned that in 90% of cases of miuld benign goiter, iodine supplementation – with only the RDA, no megadoses – solved the problem over a period of 6-12 months. Fad diets, and an emphasis on reducing salt intake has contributed to an increase in goiter btw. — Shirley see my cats at http://communities.msn.co.uk/Friendsfamilyandfelines2 http://uk.msnusers.com/friendsfamilyandfelines3

Response:

"Shirley" <s.holla…@ntlworld.com

wrote in news:bitsra$d48gr$1@ID-

145712.news.uni-berlin.de:

And you are happy with the fact that untreated/undertreated hypothyroidism causes heart failure, depression, raised cholesterol levels, gall bladder disease, gut motility problems and dementia, not to mention the myriad of drugs used to treat those conditions.

Is it really a question of not treating an actual condition?  It sounded like Terri’s concern is those doctors who will just look at the ‘normal’ range and prescribe, without regard for how the patient is feeling.  Then people whose personal range may be a little off will be treated when they don’t need it.   When I first came here, I thought Terri’s posts were full of paranoia.   More and more they sound to me like totally justifiable skepticism.   Chakolate

Response:

- Hide quoted text — Show quoted text -Shirley wrote:

"Terri" <vl-hb…@erols.com wrote in message news:bitu0u$p29$1@bob.news.rcn.net… Shirley wrote: "Terri" <vl-hb…@erols.com wrote in message news:bitn8g$dho$1@bob.news.rcn.net… Shirley wrote: "Terri" <vl-hb…@erols.com wrote in message news:bisopc$i9g$1@bob.news.rcn.net… And it will result in millions more people requiring the services of endocrinologists, many of whom probably bought stock in the companies that manufacture the drugs in anticipation of this announcement. More money for them at the expense of the people who are given thyroid hormone when they don’t need it. This is especially pernicious when you consider that giving unnecessary exogenous thyroid hormone will injure the thyroid and cause hypothyroidism. WRONG, giving unnecessary thyroid hormone results in hypErthyroidism and/or supressed TSH . Initially it will cause hyperthyroid symptoms not true hyperthyroidism which is overproduction of thyroid hormone by the thyroid gland.. Once the pituitary gets the chemically altered  signals from the bloodstream it secretes less TSH to signal the thyroid to secrete less hormone. Now the person is hypothyroid unless s/he takes his/her pills. The damage may be irreversible just as it may be in a similar situation with the adrenals and corisone use. Most Dr’s don’t take into account how a person feels, they just look at the test results and see ‘within normal ref. range’ and there is quite a difference between how a person may feel with a TSH result of 0.5 and one of  5. Now let’s talk about "subclinical hypothyroidism" the precursor to these new norms…. Where a person has thyroid antibodies and only very slightly abnormal thyroid test results ? http://www.merck.com/pubs/mmanual/section2/chapter8/8e.htm <snipped Thyroid hormone used to be prescribed quite regularly for weight loss. It did a lot of damage that way and tighter controls were placed on it. Looks to me as though this is a new way to do the same thing – sell more drugs. So because some Dr’s prescribed inappropriately people who are ill should suffer ! I’m very suspicious of attempts to put more and more people into a "diseased and in need of lifelong drugs and medical care" category merely by changing the norms on a lab test. If the reference range is wrong ie arrived at by using the wrong/skewed data then I don’t understand why it shouldn’t be corrected and if this means more people will recieve treatment that will make them well surely that is a good thing ? Normal people will receive treatments that will make them dependent on drugs and doctors in response to these new levels. There’s little evidence to suggest that the levels that have been in use for decades are suddenly wrong so millions more people are now in the category of diseased people who need tteatment. The data used to decide the reference ranges included people with thyroid problems (there weren’t  the sensitive tests there are today to be able to exclude them) this skewed the results. Prior to TSH testing (and this should not be used on it’s own to determine if someone has a thyroid problem, FT4 and FT3 need to be added to get a broader picture) But the article makes clear that the TSH alone is to be used to decide on whether or not treatment is required. That happens now with most Dr’s using the wider ref range and many people with sub-clinical thyroid problems are missed. By narrowing the range and picking up these people early many health problems can be avoided  Dr’s were more inclined to take note of a patients clinical presentation and symptoms, sadly this doesn’t happen very often now. Just because person ‘A’ feels well with a TSH of 5 doesn’t mean that person ‘B’, ‘C’, ‘D’ or ‘E’ will and that is what you seem to be advocating – a one size fits all – policy. Read this it explains it so much better than I can. http://www.thyroid.org.au/Information/NormalTSH.html or (scroll down to pge 34) http://www.nacb.org/lmpg/thyroid/3c_thyroid.pdf When the levels of osteoporosis and heart disease rise in response to this overuse of thyroid hormone, there will be still more drugs to treat these drug-induced diseases. And you are happy with the fact that untreated/undertreated hypothyroidism causes heart failure, depression, raised cholesterol levels, gall bladder disease, gut motility problems and dementia, not to mention the myriad of drugs used to treat those conditions. HypER causes stroke, and heart disease which are of course far more likely to cause heart failure than hypo. The other connections you make are possibilities but they don’t occur in the absence of symptoms. Raised cholesterol isn’t a disease. Hyper doesn’t cause heart failure, it may cause an enlarged heart and/or arrythmias.

Basic physiology again. A heart failure is more likely to occur in someone with a diseased heart. This includes, but is not limited to people with enlarged hearts or who have had heart attacks and whose heart muscle has been weakened or people with arrythmias who are more likely to suffer heart attacks and thus more likely to develop hart failure. Depending on the type of arrythmia, they may also be more likely to suffer from stroke- (for example atrial fib).   I haven’t read that stroke is any more likely with

hyperthyroidism (and I have read very extensively in this area as I have Graves Disease)

Basic physiology.Hyperthroidism frequently causes hypertension which is a very strong  risk factor for stroke. Atrial fib increases risk for stroke and atrial fib is very common in hyperthyroidism –   unless you are confusing it with a heart attack

which is a much more likely occurance with severe hypethyroidism. Raised cholesterol isn’t a disease  but it certainly isn’t healthy and is a contributory factor to many conditions which need drug and/or sugical treatment.

That’s very much open to debate.

I see you haven’t supplied links to any research that supports your view. I don’t need to research it. It’s basic physiology. Hmmm…. and I should believe what you say because ?

Because it’s basic physiology. It follows the rules of basic physiology…but you don’t have to believe it. I have a lot of problem with claims involving biological and physiological impossibilities. For example your statement that something that increases the risk of heart attack doesn’t increase the risk of heart failure suggests that you don’t really know what heart failure is or the underlying cause – anything that impedes the heart’s ability to pump blood which in turn leads to fluid build-up in the lung (pulmonary edema). Heart failure is actually possible in extremely advanced hypothyroidism where the heart rate and sluggish circulation combine to result in fluid build-up in the lung. However, it’s rare (I’d argue damn near impossible) for anyone to remain undiagnosed until that happens. It certainly isn’t going to happen to someone with a TSH higher than 3 but lower than 5 who isn’t being "treated." – Hide quoted text — Show quoted text -

I’m guessing you don’t have a thyroid problem Terri and so don’t understand how having thyroid hormones  even slightly out of your own personal ‘normal’ range can impact on your QOL. I was told I had a thyroid problem. I was told I needed thyroid hormone for my thyroid problem. I was prescribed thyroid hormone for my thyroid problem. I didn’t take the thyroid hormone for my thyroid problem. I took iodine .15mg a day instead for a period of several months since the mildly enlarged thyroid was the result of growing up in an area where the soil was iodine poor and as a farmer’s child I ate the food and drank the milk that was produced on the iodine poor soil and consequently had a very mild iodine deficiency goiter exacerbated by my avoidance of salt in any form for many years. I don’t have a thyroid problem. Had I taken the pills I probably would have one now. So because you were prescribed an inappropriate treatment for iodine deficiency caused by poor diet Not a poor diet at all. Actually something that is seldom considered in middle aged goiter – the area where you grew up. In New York, IIRC, there used to be a large area where goiter and even cretinism were very common. There are other such areas throughout North America and probably  throughout the world. This problem was the driving force behind adding iodine to salt so that almost everyone would get their iodine requirement. It appears that people who grow up in these iodine-poor areas where the local produce, milk, meat, and water are all iodine deficient may

… read more »

Response:

"Terri" <vl-hb…@erols.com

wrote in message

news:bitp3q$gl0$1@bob.news.rcn.net… – Hide quoted text — Show quoted text -

Just for the hell of it I went to check the TSH levels on the tests

that

were done 14 years ago. Sho’ nuf….I’ve been hypothyroid all these years – and with a mild goiter I should have been seeing an endocrinologist all those years to treat it. Gee, I don’t have any

of

the problems I should have – and I weigh 118 (hmm…where’d those 4

lbs

go) at 5′7." ….maybe I’m headed for coma and even death? The really cute thing about the article Sharon quoted is that the

dread

diseases that might result from not treating mild thyroid disease

except

for infertility which is caused by both hypo and hyper are the ones

that

result from hypERthyroidism while the article goes on to say that

80% of

those they are recommending for treatment are hypothyroid according

to

these new guidelines.

Elevated cholesterol, heart disease (heart failure) depression and osteoporosis are all typical findings in people with undertreated/untreated hypOthyroidism, please supply links  to data that indicates they are not. — Shirley see my cats at http://communities.msn.co.uk/Friendsfamilyandfelines2 http://uk.msnusers.com/friendsfamilyandfelines3

Response:

Kathryn wrote:

On Sun, 31 Aug 2003 21:22:28 +0100, "Shirley" <s.holla…@ntlworld.com wrote: Here’s the link to the article Sharon was talking about http://www.aace.com/pub/tam2003/press.php [small quote] Thyroid Awareness Month is supported through an unrestricted grant from Abbott Laboratories.

And guess who produces synthroid…..what a surprise. Guess who produces the reageants used to test TSH and T3 and T4….right again…

See also: http://www.aace.com/CAP.php

my, my my my my….might be easier to list the drug manufacturers who aren’t listed among their corporate partners "THE FOLLOWING PHARMACEUTICAL AND MEDICAL EQUIPMENT manufacturers serve as members of the Corporate AACE Partnership. Their generous support and valuable input helps make possible the many educational programs and activities that AACE provides for its members, including this highly effective resource (AACE Online)." I really like this part: "Please demonstrate your appreciation for their support of AACE by visiting the individual company web sites via the links provided below." followed by links to every multinational drug company in the world.

Corporate AACE Partnership but if you look at the published AACE guidelines, (not the scripted press releases),  on the AACE webpage, there is a note that the changes in the treatment recommendations are controversial. http://www.aace.com/clin/guidelines/hypo_hyper.pdf

Too bad that didn’t make it into the papers. I can imagine doctors being deluged with patients clasping these new guidelines clipped from a press release and demanding prescriptions once they see their test results. – Hide quoted text — Show quoted text -

Kathryn

Response:

- Hide quoted text — Show quoted text -Shirley wrote:

"Terri" <vl-hb…@erols.com wrote in message news:bitp3q$gl0$1@bob.news.rcn.net… Just for the hell of it I went to check the TSH levels on the tests that were done 14 years ago. Sho’ nuf….I’ve been hypothyroid all these years – and with a mild goiter I should have been seeing an endocrinologist all those years to treat it. Gee, I don’t have any of the problems I should have – and I weigh 118 (hmm…where’d those 4 lbs go) at 5′7." ….maybe I’m headed for coma and even death? The really cute thing about the article Sharon quoted is that the dread diseases that might result from not treating mild thyroid disease except for infertility which is caused by both hypo and hyper are the ones that result from hypERthyroidism while the article goes on to say that 80% of those they are recommending for treatment are hypothyroid according to these new guidelines. Elevated cholesterol, heart disease (heart failure) depression and osteoporosis are all typical findings in people with undertreated/untreated hypOthyroidism, please supply links  to data that indicates they are not.

Huh? I can’t find a site that does say this, but then it’s really hard to find one that lists non symptoms/findings. The following list the symptoms of early and late hypothyroidism – nary a mention of osteoporosis, heart disease, or cholesterol although they do mention depression. http://www.endocrineweb.com/hypo1.html http://www.nlm.nih.gov/medlineplus/ency/article/000353.htm – Hide quoted text — Show quoted text -

— Shirley see my cats at http://communities.msn.co.uk/Friendsfamilyandfelines2 http://uk.msnusers.com/friendsfamilyandfelines3

Response:

"Terri" <vl-hb…@erols.com

wrote in message

news:bitu0u$p29$1@bob.news.rcn.net… – Hide quoted text — Show quoted text -> Shirley wrote: > > "Terri" <vl-hb…@erols.com

wrote in message

> > news:bitn8g$dho$1@bob.news.rcn.net… > >>Shirley wrote: > >>>"Terri" <vl-hb…@erols.com

wrote in message

> >>>news:bisopc$i9g$1@bob.news.rcn.net… > >>>>And it will result in millions more people requiring the services

of endocrinologists, many of whom probably bought stock in the companies that manufacture the drugs in anticipation of this announcement. More money for them at the expense of the people who are given

thyroid

hormone when they don’t need it. This is especially pernicious when you consider that giving unnecessary exogenous thyroid hormone will injure the thyroid and cause hypothyroidism. WRONG, giving unnecessary thyroid hormone results in hypErthyroidism and/or supressed TSH . Initially it will cause hyperthyroid symptoms not true hyperthyroidism which is overproduction of thyroid hormone by the thyroid gland.. Once the pituitary gets the chemically altered  signals from the bloodstream it secretes less TSH to signal the thyroid to secrete less

hormone.

Now the person is hypothyroid unless s/he takes his/her pills. The damage may be irreversible just as it may be in a similar situation with the adrenals and corisone use. Most Dr’s don’t take into account how a person feels, they just look at the test results and see ‘within normal ref. range’ and there is quite a difference between how a person may feel with a TSH result of 0.5 and one of  5. Now let’s talk about "subclinical hypothyroidism" the precursor to these new norms…. Where a person has thyroid antibodies and only very slightly

abnormal

thyroid test results ? http://www.merck.com/pubs/mmanual/section2/chapter8/8e.htm <snipped Thyroid hormone used to be prescribed quite regularly for weight loss. It did a lot of damage that way and tighter controls were placed on it. Looks to me as though this is a new way to do the same thing – sell more drugs. So because some Dr’s prescribed inappropriately people who are

ill

should suffer ! I’m very suspicious of attempts to put more and more people into

a

"diseased and in need of lifelong drugs and medical care"

category

merely by changing the norms on a lab test. If the reference range is wrong ie arrived at by using the wrong/skewed data then I don’t understand why it shouldn’t be corrected and if this means more people will recieve treatment that will make them well surely that is a good thing ? Normal people will receive treatments that will make them

dependent

on drugs and doctors in response to these new levels. There’s little evidence to suggest that the levels that have been in use for decades are suddenly wrong so millions more people are now in the category of diseased people who need tteatment. The data used to decide the reference ranges included people with thyroid problems (there weren’t  the sensitive tests there are

today

to be able to exclude them) this skewed the results. Prior to TSH testing (and this should not be used on it’s own to determine if someone has a thyroid problem, FT4 and FT3 need to be added to get

a

broader picture) But the article makes clear that the TSH alone is to be used to

decide

on whether or not treatment is required.

That happens now with most Dr’s using the wider ref range and many people with sub-clinical thyroid problems are missed. By narrowing the range and picking up these people early many health problems can be avoided – Hide quoted text — Show quoted text -

  Dr’s were more inclined to take note of a patients clinical presentation and symptoms, sadly this doesn’t happen very often now. Just because person ‘A’ feels well with a TSH of 5

doesn’t

mean that person ‘B’, ‘C’, ‘D’ or ‘E’ will and that is what you

seem

to be advocating – a one size fits all – policy. Read this it explains it so much better than I can. http://www.thyroid.org.au/Information/NormalTSH.html or (scroll down to pge 34) http://www.nacb.org/lmpg/thyroid/3c_thyroid.pdf When the levels of osteoporosis and heart disease rise in response to this overuse of thyroid hormone, there will be still more drugs to treat these drug-induced diseases. And you are happy with the fact that untreated/undertreated hypothyroidism causes heart failure, depression, raised

cholesterol

levels, gall bladder disease, gut motility problems and dementia,

not

to mention the myriad of drugs used to treat those conditions. HypER causes stroke, and heart disease which are of course far more likely to cause heart failure than hypo. The other connections you

make

are possibilities but they don’t occur in the absence of symptoms. Raised cholesterol isn’t a disease.

Hyper doesn’t cause heart failure, it may cause an enlarged heart and/or arrythmias. I haven’t read that stroke is any more likely with hyperthyroidism (and I have read very extensively in this area as I have Graves Disease) unless you are confusing it with a heart attack which is a much more likely occurance with severe hypethyroidism. Raised cholesterol isn’t a disease  but it certainly isn’t healthy and is a contributory factor to many conditions which need drug and/or sugical treatment.

I see you haven’t supplied links to any research that supports

your

view. I don’t need to research it. It’s basic physiology.

Hmmm…. and I should believe what you say because ? – Hide quoted text — Show quoted text -

I’m guessing you don’t have a thyroid problem Terri and so don’t understand how having thyroid hormones  even slightly out of your own personal ‘normal’ range can impact on your QOL. I was told I had a thyroid problem. I was told I needed thyroid hormone for my thyroid problem. I was prescribed thyroid hormone for my thyroid problem. I didn’t take the thyroid hormone for my thyroid problem.

I

took iodine .15mg a day instead for a period of several months

since

the mildly enlarged thyroid was the result of growing up in an area where the soil was iodine poor and as a farmer’s child I ate the food

and

drank the milk that was produced on the iodine poor soil and consequently had a very mild iodine deficiency goiter exacerbated

by

my avoidance of salt in any form for many years. I don’t have a

thyroid

problem. Had I taken the pills I probably would have one now. So because you were prescribed an inappropriate treatment for

iodine

deficiency caused by poor diet Not a poor diet at all. Actually something that is seldom considered

in

middle aged goiter – the area where you grew up. In New York, IIRC, there used to be a large area where goiter and even cretinism were

very

common. There are other such areas throughout North America and

probably

  throughout the world. This problem was the driving force behind

adding

iodine to salt so that almost everyone would get their iodine requirement. It appears that people who grow up in these iodine-poor areas where the local produce, milk, meat, and water are all iodine deficient may not build up enough iodine stores in childhood. Unfortunately most of the people who develop this problem take the prescribed thyroid hormone and so develop an iatrogenic form of hypothyroidism.

If your goitre was caused by a lack of iodine it was because of poor diet (that doesn’t mean you were eating junk food just that it didn’t contain all the essential minerals etc). You didn’t have a thyroid disease but a chemical deficiency which was easily reversed, that isn’t the case for people with an autoimmune thyroid condition they need additional thyroid  hormones as their thyroids are unable to produce enough hormone for their bodies to function properly. — Shirley see my cats at http://communities.msn.co.uk/Friendsfamilyandfelines2 http://uk.msnusers.com/friendsfamilyandfelines3

Response:

"Terri" <vl-hb…@erols.com

wrote in message

news:bitp3q$gl0$1@bob.news.rcn.net… – Hide quoted text — Show quoted text -

Just for the hell of it I went to check the TSH levels on the tests

that

were done 14 years ago. Sho’ nuf….I’ve been hypothyroid all these years – and with a mild goiter I should have been seeing an endocrinologist all those years to treat it. Gee, I don’t have any

of

the problems I should have – and I weigh 118 (hmm…where’d those 4

lbs

go) at 5′7." ….maybe I’m headed for coma and even death? The really cute thing about the article Sharon quoted is that the

dread

diseases that might result from not treating mild thyroid disease

except

for infertility which is caused by both hypo and hyper are the ones

that

result from hypERthyroidism while the article goes on to say that

80% of

those they are recommending for treatment are hypothyroid according

to

these new guidelines. The most pernicious part of the article is the suggestion one should treat lab tests even in the absence of symptoms because apparently

the

goal is to have lab tests within normal limits.

Most Dr’s see TSH tests as the only indicator of thyroid disfunction and take no acount of symptoms. TSH alone is not a good indicator of thyroid disease. As I said in another post just because your thyroid levels are right for you it doesn’t mean they are right for everyone else – Hide quoted text — Show quoted text -

"New clinical guidelines published by AACE in November 20023 not

only

enable doctors to more easily identify patients with thyroid

disease,

but also provide treatment standards. Using a simple blood test

called

the thyroid stimulating hormone (TSH) test, any physician can

determine

whether someone is suffering from an overactive or underactive

thyroid -

in many cases, even before patients begin to experience symptoms4."

Response:

On Sun, 31 Aug 2003 21:22:28 +0100, "Shirley" <s.holla…@ntlworld.com

wrote: Here’s the link to the article Sharon was talking about http://www.aace.com/pub/tam2003/press.php

[small quote]

Thyroid Awareness Month is supported through an unrestricted grant from Abbott Laboratories.

See also: http://www.aace.com/CAP.php

Corporate AACE Partnership

but if you look at the published AACE guidelines, (not the scripted press releases),  on the AACE webpage, there is a note that the changes in the treatment recommendations are controversial. http://www.aace.com/clin/guidelines/hypo_hyper.pdf Kathryn

Response:

- Hide quoted text — Show quoted text -Shirley wrote:

"Terri" <vl-hb…@erols.com wrote in message news:bitn8g$dho$1@bob.news.rcn.net… Shirley wrote: "Terri" <vl-hb…@erols.com wrote in message news:bisopc$i9g$1@bob.news.rcn.net… And it will result in millions more people requiring the services of endocrinologists, many of whom probably bought stock in the companies that manufacture the drugs in anticipation of this announcement. More money for them at the expense of the people who are given thyroid hormone when they don’t need it. This is especially pernicious when you consider that giving unnecessary exogenous thyroid hormone will injure the thyroid and cause hypothyroidism. WRONG, giving unnecessary thyroid hormone results in hypErthyroidism and/or supressed TSH . Initially it will cause hyperthyroid symptoms not true hyperthyroidism which is overproduction of thyroid hormone by the thyroid gland.. Once the pituitary gets the chemically altered  signals from the bloodstream it secretes less TSH to signal the thyroid to secrete less hormone. Now the person is hypothyroid unless s/he takes his/her pills. The damage may be irreversible just as it may be in a similar situation with the adrenals and corisone use. Most Dr’s don’t take into account how a person feels, they just look at the test results and see ‘within normal ref. range’ and there is quite a difference between how a person may feel with a TSH result of 0.5 and one of  5. Now let’s talk about "subclinical hypothyroidism" the precursor to these new norms…. Where a person has thyroid antibodies and only very slightly abnormal thyroid test results ? http://www.merck.com/pubs/mmanual/section2/chapter8/8e.htm <snipped Thyroid hormone used to be prescribed quite regularly for weight loss. It did a lot of damage that way and tighter controls were placed on it. Looks to me as though this is a new way to do the same thing – sell more drugs. So because some Dr’s prescribed inappropriately people who are ill should suffer ! I’m very suspicious of attempts to put more and more people into a "diseased and in need of lifelong drugs and medical care" category merely by changing the norms on a lab test. If the reference range is wrong ie arrived at by using the wrong/skewed data then I don’t understand why it shouldn’t be corrected and if this means more people will recieve treatment that will make them well surely that is a good thing ? Normal people will receive treatments that will make them dependent on drugs and doctors in response to these new levels. There’s little evidence to suggest that the levels that have been in use for decades are suddenly wrong so millions more people are now in the category of diseased people who need tteatment. The data used to decide the reference ranges included people with thyroid problems (there weren’t  the sensitive tests there are today to be able to exclude them) this skewed the results. Prior to TSH testing (and this should not be used on it’s own to determine if someone has a thyroid problem, FT4 and FT3 need to be added to get a broader picture)

But the article makes clear that the TSH alone is to be used to decide on whether or not treatment is required.   Dr’s were more inclined to take note of a patients – Hide quoted text — Show quoted text -

clinical presentation and symptoms, sadly this doesn’t happen very often now. Just because person ‘A’ feels well with a TSH of 5 doesn’t mean that person ‘B’, ‘C’, ‘D’ or ‘E’ will and that is what you seem to be advocating – a one size fits all – policy. Read this it explains it so much better than I can. http://www.thyroid.org.au/Information/NormalTSH.html or (scroll down to pge 34) http://www.nacb.org/lmpg/thyroid/3c_thyroid.pdf When the levels of osteoporosis and heart disease rise in response to this overuse of thyroid hormone, there will be still more drugs to treat these drug-induced diseases. And you are happy with the fact that untreated/undertreated hypothyroidism causes heart failure, depression, raised cholesterol levels, gall bladder disease, gut motility problems and dementia, not to mention the myriad of drugs used to treat those conditions.

HypER causes stroke, and heart disease which are of course far more likely to cause heart failure than hypo. The other connections you make are possibilities but they don’t occur in the absence of symptoms. Raised cholesterol isn’t a disease.

I see you haven’t supplied links to any research that supports your view.

I don’t need to research it. It’s basic physiology. – Hide quoted text — Show quoted text -

I’m guessing you don’t have a thyroid problem Terri and so don’t understand how having thyroid hormones  even slightly out of your own personal ‘normal’ range can impact on your QOL. I was told I had a thyroid problem. I was told I needed thyroid hormone for my thyroid problem. I was prescribed thyroid hormone for my thyroid problem. I didn’t take the thyroid hormone for my thyroid problem. I took iodine .15mg a day instead for a period of several months since the mildly enlarged thyroid was the result of growing up in an area where the soil was iodine poor and as a farmer’s child I ate the food and drank the milk that was produced on the iodine poor soil and consequently had a very mild iodine deficiency goiter exacerbated by my avoidance of salt in any form for many years. I don’t have a thyroid problem. Had I taken the pills I probably would have one now. So because you were prescribed an inappropriate treatment for iodine deficiency caused by poor diet

Not a poor diet at all. Actually something that is seldom considered in middle aged goiter – the area where you grew up. In New York, IIRC, there used to be a large area where goiter and even cretinism were very common. There are other such areas throughout North America and probably   throughout the world. This problem was the driving force behind adding iodine to salt so that almost everyone would get their iodine requirement. It appears that people who grow up in these iodine-poor areas where the local produce, milk, meat, and water are all iodine deficient may not build up enough iodine stores in childhood. Unfortunately most of the people who develop this problem take the prescribed thyroid hormone and so develop an iatrogenic form of hypothyroidism.   you assume that other people will be – Hide quoted text — Show quoted text -

prescribed thyroid medications inappropriately ! Shirley

Response:

"Steve Green" <sgreen…@hotmail.com

wrote in message

news:9rs4lv4peqdk0deqig1uufbvu0j3h5jf8p@4ax.com…

On Sun, 31 Aug 2003 17:27:30 -0400, Terri <vl-hb…@erols.com wrote: <snip The most pernicious part of the article is the suggestion one should treat lab tests even in the absence of symptoms because apparently the goal is to have lab tests within normal limits. <snip You’ve touched upon the real problem here. Before the advent of the TSH test, thyroid problems were treated in accordance with symptoms. IMO the TSH test, while it has its uses, is mostly for the benefit of doctors who must treat within a certain protocol (correct term?) not unlike some aspects of mammography.

Yeah, I’ve wondered about this.  For several years doctors noted that my thyroid was enlarged, & in the same time frame my bp went up (for no apparent reason), a couple of nurses commented that my resting pulse was sort of fast, & I was always warmer/hotter than anyone around me.  I had 3 thyroid tests over the years (7 – 8 years) & all said I was fine.  Finally, the 4th one came back, in ‘98, saying I was slightly hyper-T.  I went for further tests, which confirmed it, & was finally prescribed medication. Cathy — "Staccato signals of constant information…" ("The Boy in the Bubble")  Paul Simon – Hide quoted text — Show quoted text -

Even so, the new range is generally seen by longtime thyroid patients like me as a step in the right direction. There’s been a lot of discussion about it on alt.support.thyroid. –Rhymie, still waiting for "Steve" to fix her computer :) Steve Green

Response:

- Hide quoted text — Show quoted text -Steve Green wrote:

On Sun, 31 Aug 2003 17:27:30 -0400, Terri <vl-hb…@erols.com wrote: <snip The most pernicious part of the article is the suggestion one should treat lab tests even in the absence of symptoms because apparently the goal is to have lab tests within normal limits. <snip You’ve touched upon the real problem here. Before the advent of the TSH test, thyroid problems were treated in accordance with symptoms. IMO the TSH test, while it has its uses, is mostly for the benefit of doctors who must treat within a certain protocol (correct term?) not unlike some aspects of mammography.

Under the new guidelines I would have been deemed to be hypothyroid as opposed to having synthroid prescribed for mild goiter with normal functioning.  I am not hypothyroid. I have no symptoms of hypothyroidism. And if I’d taken the prescribed drugs I damn well would be hypothyroid by now and doomed to a life of thyroid hormones and doctor’s offices – another iatragenic illness just waiting to happen (and avoided through careful research on my part) from where I sit. I suspect this will happen to a lot of people, especially women with these new "norms." – Hide quoted text — Show quoted text -

Even so, the new range is generally seen by longtime thyroid patients like me as a step in the right direction. There’s been a lot of discussion about it on alt.support.thyroid. –Rhymie, still waiting for "Steve" to fix her computer :) Steve Green

Response:

"Terri" <vl-hb…@erols.com

wrote in message

news:bitn8g$dho$1@bob.news.rcn.net… – Hide quoted text — Show quoted text -> Shirley wrote: > > "Terri" <vl-hb…@erols.com

wrote in message

> > news:bisopc$i9g$1@bob.news.rcn.net… > >>And it will result in millions more people requiring the services of

endocrinologists, many of whom probably bought stock in the companies that manufacture the drugs in anticipation of this announcement. More money for them at the expense of the people who are given thyroid hormone when they don’t need it. This is especially pernicious

when

you consider that giving unnecessary exogenous thyroid hormone will injure the thyroid and cause hypothyroidism. WRONG, giving unnecessary thyroid hormone results in

hypErthyroidism

and/or supressed TSH . Initially it will cause hyperthyroid symptoms not true

hyperthyroidism

which is overproduction of thyroid hormone by the thyroid gland..

Once

the pituitary gets the chemically altered  signals from the

bloodstream

it secretes less TSH to signal the thyroid to secrete less hormone.

Now

the person is hypothyroid unless s/he takes his/her pills. The

damage

may be irreversible just as it may be in a similar situation with

the

adrenals and corisone use. Most Dr’s don’t take into account how a person feels, they just look at the test results and see ‘within normal

ref.

range’ and there is quite a difference between how a person may

feel

with a TSH result of 0.5 and one of  5. Now let’s talk about "subclinical hypothyroidism" the precursor to

these

new norms….

Where a person has thyroid antibodies and only very slightly abnormal thyroid test results ? http://www.merck.com/pubs/mmanual/section2/chapter8/8e.htm – Hide quoted text — Show quoted text -

<snipped Thyroid hormone used to be prescribed quite regularly for weight loss. It did a lot of damage that way and tighter controls were placed

on

it. Looks to me as though this is a new way to do the same thing –

sell

more drugs. So because some Dr’s prescribed inappropriately people who are ill should suffer ! I’m very suspicious of attempts to put more and more people into a "diseased and in need of lifelong drugs and medical care" category merely by changing the norms on a lab test. If the reference range is wrong ie arrived at by using the wrong/skewed data then I don’t understand why it shouldn’t be corrected and if this means more people will recieve treatment

that

will make them well surely that is a good thing ? Normal people will receive treatments that will make them dependent

on

drugs and doctors in response to these new levels. There’s little evidence to suggest that the levels that have been in use for

decades

are suddenly wrong so millions more people are now in the category

of

diseased people who need tteatment.

The data used to decide the reference ranges included people with thyroid problems (there weren’t  the sensitive tests there are today to be able to exclude them) this skewed the results. Prior to TSH testing (and this should not be used on it’s own to determine if someone has a thyroid problem, FT4 and FT3 need to be added to get a broader picture) Dr’s were more inclined to take note of a patients clinical presentation and symptoms, sadly this doesn’t happen very often now. Just because person ‘A’ feels well with a TSH of 5 doesn’t mean that person ‘B’, ‘C’, ‘D’ or ‘E’ will and that is what you seem to be advocating – a one size fits all – policy. Read this it explains it so much better than I can. http://www.thyroid.org.au/Information/NormalTSH.html or (scroll down to pge 34) http://www.nacb.org/lmpg/thyroid/3c_thyroid.pdf

When the levels of osteoporosis and heart disease rise in response to this overuse of thyroid hormone,

there

will be still more drugs to treat these drug-induced diseases.

And you are happy with the fact that untreated/undertreated hypothyroidism causes heart failure, depression, raised cholesterol levels, gall bladder disease, gut motility problems and dementia, not to mention the myriad of drugs used to treat those conditions. I see you haven’t supplied links to any research that supports your view. – Hide quoted text — Show quoted text -

I’m guessing you don’t have a thyroid problem Terri and so don’t understand how having thyroid hormones  even slightly out of your

own

personal ‘normal’ range can impact on your QOL. I was told I had a thyroid problem. I was told I needed thyroid

hormone

for my thyroid problem. I was prescribed thyroid hormone for my

thyroid

problem. I didn’t take the thyroid hormone for my thyroid problem. I took iodine .15mg a day instead for a period of several months since

the

mildly enlarged thyroid was the result of growing up in an area

where

the soil was iodine poor and as a farmer’s child I ate the food and drank the milk that was produced on the iodine poor soil and consequently had a very mild iodine deficiency goiter exacerbated by

my

avoidance of salt in any form for many years. I don’t have a thyroid problem. Had I taken the pills I probably would have one now.

So because you were prescribed an inappropriate treatment for iodine deficiency caused by poor diet you assume that other people will be prescribed thyroid medications inappropriately ! Shirley

Response:

Just for the hell of it I went to check the TSH levels on the tests that were done 14 years ago. Sho’ nuf….I’ve been hypothyroid all these years – and with a mild goiter I should have been seeing an endocrinologist all those years to treat it. Gee, I don’t have any of the problems I should have – and I weigh 118 (hmm…where’d those 4 lbs go) at 5′7." ….maybe I’m headed for coma and even death? The really cute thing about the article Sharon quoted is that the dread diseases that might result from not treating mild thyroid disease except for infertility which is caused by both hypo and hyper are the ones that result from hypERthyroidism while the article goes on to say that 80% of those they are recommending for treatment are hypothyroid according to these new guidelines. The most pernicious part of the article is the suggestion one should treat lab tests even in the absence of symptoms because apparently the goal is to have lab tests within normal limits. "New clinical guidelines published by AACE in November 20023 not only enable doctors to more easily identify patients with thyroid disease, but also provide treatment standards. Using a simple blood test called the thyroid stimulating hormone (TSH) test, any physician can determine whether someone is suffering from an overactive or underactive thyroid – in many cases, even before patients begin to experience symptoms4." – Hide quoted text — Show quoted text -

"Terri" <vl-hb…@erols.com wrote in message news:bisopc$i9g$1@bob.news.rcn.net… And it will result in millions more people requiring the services of endocrinologists, many of whom probably bought stock in the companies that manufacture the drugs in anticipation of this announcement. More money for them at the expense of the people who are given thyroid hormone when they don’t need it. This is especially pernicious when you consider that giving unnecessary exogenous thyroid hormone will injure the thyroid and cause hypothyroidism. WRONG, giving unnecessary thyroid hormone results in hypErthyroidism and/or supressed TSH . Most Dr’s don’t take into account how a person feels, they just look at the test results and see ‘within normal ref. range’ and there is quite a difference between how a person may feel with a TSH result of 0.5 and one of  5. Here’s the link to the article Sharon was talking about http://www.aace.com/pub/tam2003/press.php and another http://thyroid.about.com/library/weekly/aanewTSHrange.htm and you may like to have a look at this site too. http://www.thyroid.org.au/Information/NormalTSH.html Thyroid hormone used to be prescribed quite regularly for weight loss. It did a lot of damage that way and tighter controls were placed on it. Looks to me as though this is a new way to do the same thing – sell more drugs. So because some Dr’s prescribed inappropriately people who are ill should suffer ! I’m very suspicious of attempts to put more and more people into a "diseased and in need of lifelong drugs and medical care" category merely by changing the norms on a lab test. If the reference range is wrong ie arrived at by using the wrong/skewed data then I don’t understand why it shouldn’t be corrected and if this means more people will recieve treatment that will make them well surely that is a good thing ? I’m guessing you don’t have a thyroid problem Terri and so don’t understand how having thyroid hormones  even slightly out of your own personal ‘normal’ range can impact on your QOL. http://www.thyroid.org.au/Information/NormalTSH.html

Response:

I have no URL for this post. It came from a friend of mine. I wish I could find the source,but here goes: "According to the American Association of Clinical Endocrinologists (AACE), what was normal last year, thyroid-wise, may now be abnormal. According to the AACE, doctors have typically been basing their diagnoses on the "normal" range for the TSH test. The typical normal levels at most laboratories has fallen in the 0.5 to 5.0 range. The new guidelines narrow the range for acceptable thyroid function, and the AACE is now encouraging doctors to consider thyroid treatment for patients who test the target TSH level of 0.3 to 3.04, a far narrower range. AACE believes the new range will result in proper diagnosis for millions of Americans who suffer from a mild thyroid disorder, but have gone untreated until now." Sharon…………A warm toll-house cookie is an experience not unlike a religious epiphany.

Response:

Any 60+ People Here?

Question:

Hi, I’m 73 and have been on Atkins since July 3, 2001.  I’ve lost 60 pounds so far with another 40 to go.  Right now I’ve been kind of at a standstill for the past couple of months, going between 190-192.  I started at 250 and would like to get down to 150 as I am 5′8". I do take medications for high blood pressure and don’t do any special exercising.  I’ve been heavy most of my life and have tried just about every diet under the sun including some kind of shots back in the 60s.  I even tried Dr Atkins when it first came out in the 70s but that didn’t last long because there was no support for it at all. I am very happy with this WOE and have no trouble at all staying on it, averaging about 18 grams of carbs.  I just wish the pounds would drop a little faster, as do most of us, but I know I will be eating this way for the rest of my life so don’t worry about it. Julia 250/190/150 Atkins July 2001

– Hide quoted text — Show quoted text – I have been eating low carb or at least selective carbs for several years. I started about five years ago and managed to lose weight and keep it off. Then I started gaining it back and am about 143 – almost 10 lbs over what I had been – and just cannot seem to get it off again.  I still walk almost every day – weather permitting. Just wondered if anyone else here was about my age.  When I was younger I had no problem controlling my weight when I really tried – just been the last few years (I’m now 65) that’s its been a real problem.  Wondered if there was a way to speed up metabolism? Dorothy

Response:

I have been eating low carb or at least selective carbs for several years.  I started about five years ago and managed to lose weight and keep it off.  Then I started gaining it back and am about 143 – almost 10 lbs over what I had been – and just cannot seem to get it off again.  I still walk almost every day – weather permitting. Just wondered if anyone else here was about my age.  When I was younger I had no problem controlling my weight when I really tried – just been the last few years (I’m now 65) that’s its been a real problem.  Wondered if there was a way to speed up metabolism?   Dorothy

Response:

Hi!  I am 69, and wasted too many years eating as the food pyramid suggested.  Now I have lost 35 pounds and have about 32 or so more to go, having been on Atkins since July 14th, 2002. I am really feeling great, and am eating lots of good stuff.  Tonite’s supper was steak, broccoli, and sf jello. I don’t do any unusual exercise, just normal living. Jackie

– Hide quoted text — Show quoted text – I have been eating low carb or at least selective carbs for several years. I started about five years ago and managed to lose weight and keep it off. Then I started gaining it back and am about 143 – almost 10 lbs over what I had been – and just cannot seem to get it off again.  I still walk almost every day – weather permitting. Just wondered if anyone else here was about my age.  When I was younger I had no problem controlling my weight when I really tried – just been the last few years (I’m now 65) that’s its been a real problem.  Wondered if there was a way to speed up metabolism? Dorothy

Response:

I have been eating low carb or at least selective carbs for several years.  I started about five years ago and managed to lose weight and keep it off.  Then I started gaining it back and am about 143 – almost 10 lbs over what I had been – and just cannot seem to get it off again.  I still walk almost every day – weather permitting. Just wondered if anyone else here was about my age.  When I was younger I had no problem controlling my weight when I really tried – just been the last few years (I’m now 65) that’s its been a real problem.  Wondered if there was a way to speed up metabolism?   Dorothy

   Yes Dorothy. I’m 67. Started LC last July 10. Have not been this light since 1958. I have about 10 pounds to go to be where the book says I should be but they are not coming off!! Told myself maybe I am in Lifetime Maintanence by default. Then the carb creep began and I put on a couple of pounds. So now I know what my limit of carbs is…about 50-60 grams. Am returning to semi-induction determined to reach goal. I work out at the YMCA 3-5 days a week. 30 min on treadmill and 15 min on weight machines. Found out from Dr this week that light headedness when working out is low blood pressure. Must go slower and wait to recover between repititions.    When Atkins was on TV the other week, the question was asked about weight not coming off fast enough. He suggested a slow thyroid might be the problem. A blood test might say the thyroid is OK but actually not fully functional. He said take your temp 3 times during the course of the day and if the average is below 97.8, thyroid treatment might be warranted. I think this info also is in one of his books. My Dr said he would do this for me. Am still collecting temp data and will finish a current unrelated treatment program before considering thyroid medication.    Hello all seniors out there in LC land!!

Response:

So glad you are here, Jane!  I will be 70 in Oct, and I never felt better! (and aren’t we a different 70 than our parents were!) Jackie, a happy Atkins way of lifer

– Hide quoted text — Show quoted text – Just wondered if anyone else here was about my age.  When I was younger I had no problem controlling my weight when I really tried – just been the last few years (I’m now 65) that’s its been a real problem. I am 70 (71 in May).  I started Atkins last September and have lost 23 pounds.  I feel better than I have felt in years.  Even my arthritis seems better.  I consider Atkins a true miracle.  I had tried for 20 years to lose weight (really ballooned up after quiting smoking) with absolutely no permanent success.  With Atkins I found that everyone had had it backwards all these years – it isn’t fat that causes fat.   I have settled into a pretty good pattern and have my favorite recipes.  I also find that an occasional slip-up doesn’t set me back at all.  It really seems very forgiving.  My doctor approves and watches her own carbs. Jane S.

Response:

Dear Dorothy, I’m 60 and have been on low-carb for about a year.  And yes, the weight problem does change as one gets older, so we had better get it where we want it while we are still able to do so! No telling about the 70s (but I’d be happy to find out!). Barbara – Hide quoted text — Show quoted text – I have been eating low carb or at least selective carbs for several years.  I started about five years ago and managed to lose weight and keep it off.  Then I started gaining it back and am about 143 – almost 10 lbs over what I had been – and just cannot seem to get it off again.  I still walk almost every day – weather permitting. Just wondered if anyone else here was about my age.  When I was younger I had no problem controlling my weight when I really tried – just been the last few years (I’m now 65) that’s its been a real problem.  Wondered if there was a way to speed up metabolism? Dorothy

Response:

Just wondered if anyone else here was about my age.  When I was younger I had no problem controlling my weight when I really tried – just been the last few years (I’m now 65) that’s its been a real problem.

I am 70 (71 in May).  I started Atkins last September and have lost 23 pounds.  I feel better than I have felt in years.  Even my arthritis seems better.  I consider Atkins a true miracle.  I had tried for 20 years to lose weight (really ballooned up after quiting smoking) with absolutely no permanent success.  With Atkins I found that everyone had had it backwards all these years – it isn’t fat that causes fat.   I have settled into a pretty good pattern and have my favorite recipes.  I also find that an occasional slip-up doesn’t set me back at all.  It really seems very forgiving.  My doctor approves and watches her own carbs. Jane S.

Response:

Dorothy, this is my second time on the diet  too.  I can’t say I really understood the physiology of it back in the 70s.  And I think losing weight at our age would just be harder anyway, second time or first.  I am on prozac which added lots of pounds but saved my life.  And I take meds for hypertension too.  I see the doc Monday to hear how my blood work is doing, and I plan to do the temp check 3xdaily to see if my thyroid  is one of my factors… I love this WOL and this group. Jackie (since July 14, 2002) 232/197/160ish maybe

– Hide quoted text — Show quoted text – Everybody – thanks!  You know I had read that it’s harder the second time around and it really has been.  I have to watch not only the carbs this time but the calories.  I’m going to keep trying but it sure is discouraging. Dorothy

Response:

Everybody – thanks!  You know I had read that it’s harder the second time around and it really has been.  I have to watch not only the carbs this time but the calories.  I’m going to keep trying but it sure is discouraging. Dorothy

Response:

Julia, Sixty pounds in a year and a half–wow!  That’s encouraging news for all of us middle aged ladies. — Jenny 168.5/148.5/145 Second Goal 9/1998 – 8/2001 and 11/10/02 – Now http://www.geocities.com/jenny_the_bean Facts and Figures about Low Carb Dieting

– Hide quoted text — Show quoted text – Hi, I’m 73 and have been on Atkins since July 3, 2001.  I’ve lost 60 pounds so far with another 40 to go.  Right now I’ve been kind of at a standstill for the past couple of months, going between 190-192.  I started at 250 and would like to get down to 150 as I am 5′8". I do take medications for high blood pressure and don’t do any special exercising.  I’ve been heavy most of my life and have tried just about every diet under the sun including some kind of shots back in the 60s.  I even tried Dr Atkins when it first came out in the 70s but that didn’t last long because there was no support for it at all. I am very happy with this WOE and have no trouble at all staying on it, averaging about 18 grams of carbs.  I just wish the pounds would drop a little faster, as do most of us, but I know I will be eating this way for the rest of my life so don’t worry about it. Julia 250/190/150 Atkins July 2001 I have been eating low carb or at least selective carbs for several years. I started about five years ago and managed to lose weight and keep it off. Then I started gaining it back and am about 143 – almost 10 lbs over what I had been – and just cannot seem to get it off again.  I still walk almost every day – weather permitting. Just wondered if anyone else here was about my age.  When I was younger I had no problem controlling my weight when I really tried – just been the last few years (I’m now 65) that’s its been a real problem.  Wondered if there was a way to speed up metabolism? Dorothy

Response:

Hospitalization

Question:

thanks i will try to let you know ahead of time melissa

– Hide quoted text — Show quoted text – well, my hospital date is set. feb 10th for 3 to 5 days they said it is IV of depakote and some nausea med. the depakote that i was on, like 1500mg was seemed like it was causing some of my headaches after a while i get daily headaches and i have food triggers and weather triggers, sleep triggers.  Will be thinking about you, Melissa. Hope to hear some good news when you return. Please remind us before you leave so we can send good thoughts. Kadee

Response:

well, my hospital date is set. feb 10th for 3 to 5 days they said it is IV of depakote and some nausea med. the depakote that i was on, like 1500mg was seemed like it was causing some of my headaches after a while i get daily headaches and i have food triggers and weather triggers, sleep triggers. i am kind of dreading it since i get menstrual migraines as well (esp at that time of the month) and it will be the worst part of it and then they will want to keep me longer than i have time set up for someone to watch my kids. i guess i am torn between going and getting fixed up and what happens if they keep me anyone else been in the hospital for migraines? melissa/WI

Response:

Yep. I’ve been in MHNI twice. Which one are you going to? Ginnie – Hide quoted text — Show quoted text – well, my hospital date is set. feb 10th for 3 to 5 days they said it is IV of depakote and some nausea med. the depakote that i was on, like 1500mg was seemed like it was causing some of my headaches after a while i get daily headaches and i have food triggers and weather triggers, sleep triggers. i am kind of dreading it since i get menstrual migraines as well (esp at that time of the month) and it will be the worst part of it and then they will want to keep me longer than i have time set up for someone to watch my kids. i guess i am torn between going and getting fixed up and what happens if they keep me anyone else been in the hospital for migraines? melissa/WI

Response:

Ah yes. Well, how many kids do you have? Maybe it will be a treat, just having migraines. Seriously, I hope it helps you, Melissa, but like many treatments for migraine, it seems to be a hit-or-miss kind of thing. I haven’t heard a great many long-term success stories. I’ve been much better for several years now, but that was because a few months later I started getting thyroid treatment. Seems strange to give you IV Depakote if that has caused you problems by mouth. I’ve only heard of dihydroergotamine, steroids, anti-inflammatories, and anti-nauseants, and sometimes Imitrex…but my information may be rather out of date. Since I was hospitalized, I’ve had occasional "flurries" of migraine, which I’ve treated with a kind of home hospitalization that was more comfortable and more effective than the real thing. I’ve gone to bed and just really knocked myself out for two or three days using promethazine. Seems to break the pain cycle, is cheaper, and while not a picnic, the staff is kinder. You might talk to your doc about trying something like that, if you have the strength to stay away from the triptans and pain pills. Still need someone to take the kiddies. Good luck –Julianne

Response:

Hope it works out for  you.  I was hospitalized in 1998, and it was tremendously helpful to me, though a pretty awful experience.  I got round the clock DHE IV for 5 days, and it really broke the cycle of daily migraines. Best of luck!

Response:

they won’t give me DHE because of me supposily having Raynaud’s syndrome and even though i have had a second opininon my neuro refuses to go back and give me Midrin or any of the triptans i know she is being cautious and i thank her for that but you woudl think that if i have been on these med since april of 2002 and sometimes they do actually work, she would let me keep them but then i don’t want  a new problem to creep up either because of it

– Hide quoted text — Show quoted text – Hope it works out for  you.  I was hospitalized in 1998, and it was tremendously helpful to me, though a pretty awful experience.  I got round the clock DHE IV for 5 days, and it really broke the cycle of daily migraines. Best of luck!

Response:

what now

Question:

FWIW, I had only partial success origionally with Cpap. Then I went to a really good specialist, and they found out that I also had Restless Leg Syndrome Disorder, and was kicking and jerking all night, riuning my sleep quality. They got me on meds for that, and now, with BiPap  and meds, I’m getting some pretty quality sleep. (It was still a sleep quality problem, just not something that OSA and CSA and BiPap could help on) Best– Ron "Brad Harris" <bradleyhar…@optushome.com.au

wrote in message

news:3dd6c0c5$0$12778$afc38c87@news.optusnet.com.au… – Hide quoted text — Show quoted text -

Just a question. You have a sleep test done, get a cpap machine, try it for 6 months, no benefit. Back to the specialist, another sleep test, their not really

sure,

you didn’t really sleep enough. They play with different pressures on the machine, nothing. You have a day time sleep test, nothing there. So what now?????????????????

Response:

Brad Harris wrote:

Just a question. You have a sleep test done, get a cpap machine, try it for 6 months, no benefit. Back to the specialist, another sleep test, their not really sure, you didn’t really sleep enough. They play with different pressures on the machine, nothing. You have a day time sleep test, nothing there. So what now?????????????????

Try a recording pulse oximeter at home, using your cpap, for a night or two (depending on the storage capability of the oximeter).  If your blood oxy sat levels are low, your pressure may not be high enough or you may also be having central apneas.

Response:

Just a question. You have a sleep test done, get a cpap machine, try it for 6 months, no benefit. Back to the specialist, another sleep test, their not really sure, you didn’t really sleep enough. They play with different pressures on the machine, nothing. You have a day time sleep test, nothing there. So what now?????????????????

Response:

You have a sleep test done, get a cpap machine, try it for 6 months, no benefit. Back to the specialist, another sleep test, their not really

sure,

you didn’t really sleep enough. They play with different pressures on the machine, nothing. You have a day time sleep test, nothing there.

I’d personally recommend trying to get loan of an autopap machine for a month or two…..that will automatically adjust the pressure for you as you sleep…. you can then get readings that will give you an indication of what sufficient pressure you need – or better still….. see if you can acutally purchase an autopap. sleeping with it regularly in your usual environment will likely give more accurate results than an overnight titration study. — Beth in Australia =================== FAQ for alt.support.sleep-disorder can be found here www.anchorweb.com.au/sleepdisorders this site is a work in progress – feel free to submit info/articles

Response:

Hi Brad Just wanted to let you know you are not alone. I am on CPAP now for 2 years and have not noticed any benefit from it. I had 3 sleep tests in that time and actually the last one noted I would be fine on a pressure of 8 instead of the 10 I am on. We decided not to change. As it was obvious I have apnea and the cpap solves this problem, I am sure it does something for me( even if it means not getting worse). There are various other medical problems however which have similar symptoms as OSA. I am also being treated now for hypo thyroid, something you should have checked out as well. Be aware that "being in the normal range" does not mean you are not hypo. If they will test you for TSH, T3 and T4 ( and hopefully more) get the actual test results and join alt. support thyroid. There are many very knowledgeable people who can help you further. For me the thyroid treatment has helped about 50 % of he severity of my symptoms so far, so I expect something else might yet be wrong with me, or the situations ( thyroid/ osa) have existed so long that it takes a very long time to feel any results. And, some people recoup much faster then others, others are much slower then average. maybe you and I are in the extreme slow category. One thing is sure, giving up when you have OSA does not help for sure!   – Hide quoted text — Show quoted text -

So what now?????????????????

Response:

- Hide quoted text — Show quoted text -paula wrote:

Hi Brad Just wanted to let you know you are not alone. I am on CPAP now for 2 years and have not noticed any benefit from it. I had 3 sleep tests in that time and actually the last one noted I would be fine on a pressure of 8 instead of the 10 I am on. We decided not to change. As it was obvious I have apnea and the cpap solves this problem, I am sure it does something for me( even if it means not getting worse). There are various other medical problems however which have similar symptoms as OSA. I am also being treated now for hypo thyroid, something you should have checked out as well. Be aware that "being in the normal range" does not mean you are not hypo. If they will test you for TSH, T3 and T4 ( and hopefully more) get the actual test results and join alt. support thyroid. There are many very knowledgeable people who can help you further. For me the thyroid treatment has helped about 50 % of he severity of my symptoms so far, so I expect something else might yet be wrong with me, or the situations ( thyroid/ osa) have existed so long that it takes a very long time to feel any results. And, some people recoup much faster then others, others are much slower then average. maybe you and I are in the extreme slow category. One thing is sure, giving up when you have OSA does not help for sure! So what now?????????????????

Try a recording pulse oximeter at home, using your cpap, for a night or two (depending on the storage capability of the oximeter).  If your blood oxy sat levels are low, your pressure may not be high enough or you may also be having central apneas.

Response:

Wilson's Thyroid Syndrome

Question:

"Steve" <St…@smart-life.net

wrote in message

news:3DAF6DD9.375E429D@smart-life.net…

Joanne: It wasn’t that my tic stopped as I predicted that was my BIG surprise. It was the muscle tensing that replace it, later followed by the tic effectively treating those sore muscles. When you are expecting one of two results depending upon whether your hypothesis is correct, and something completely unexpected happens, then that gets a LOT of attention because it just doesn’t fit any of the prevailing models. Steve

I think a good massage therapist could give you some ideas about why that happened. For that matter, so could a PT or any number of people with TS. You seem to want to subject matter to fit the hypothesis. The whole thing sounds a bit ‘off’ to me. It also sounds a bit perseverative on this one tic. Sorry. Just my opinion, as negative as it is. Jo

Response:

Joanne: In answer to issues raised in several of your emails: In the real world, doctors must stick to "standard procedure" or risk losing their license. First, they wanted to just ignore my atrial fibrillation, as it was NOT life threatening or "disabling", I just couldn’t compete in my profession. Two months of intensive research later, I connected my problems with some sort of low metabolism. The doctor rejected this, as "standard procedure" said that this could only come from hypERthyroidism, so I took a TSH test which came out at 2.7 – a marginally treatable hypothyroidism, so he prescribed an assortment of thyroid meds for me to try. They worked great – for about a month. Someone pointed me toward Wilson’s Syndrome, and it fit me like a glove, with just one problem – I had been stuck at a low temp for way too long for it to work on me. I read EVERYTHING that had ever been written about it, and concluded that Wilson’s observations were good, but his explanation was wrong. I came up with another theory that better seemed to fit Wilson’s own observations, and which suggested a rather different treatment, which I could do with the some of the pills I had left over from my thyroid treatment. I posted my proposed treatment all over the Internet, and got mostly negative reactions, but NO theory as to why it should NOT work, so I tried it, and it worked. In the real world, doctors cure very little – they just provide symptomatic treatment as "standard procedure". However, really curing most conditions is possible, though seldom simple enough to be done in a few brief visits to a doctor. In the real world, the most dangerous thing you can do is leave a destructive process in place. If you do so, you WILL eventually die of it, because it will outrun your other aging processes. My temperature resetting only involved 20 mcg of T3 given 5 mcg at a time, whereas the lowest known fatal dosage was around 100 mcg (given to a woman about my age with the same atrial fibrillation that I had, so I WAS paying careful attention). Since I was the first to do this, I gave myself a ~2% chance of not surviving a cure with a ~50% chance of working – an acceptable risk for someone who was no longer able to earn a living, and if the cure worked, I would be able to earn a living. That it worked exactly as planned is a testament to my prior homework. I can tell from your writings that you haven’t been involved in medical research. No, I don’t mean just reading the stuff that others have written, but doing the experiments to really understand exactly what is happening in a particular person, and synthesizing an intervention to STOP an ongoing destructive process. This typically takes months of failed experiments and wrong theories to get to a successful conclusion in a particular patient. The term "patient" should apply to the researcher, and not the person with the problem. From what I have read about Tourette’s, NONE of the authors has really gotten to the bottom of what they are writing about. Their lack of successful cures (not treatments) only further supports this. I have yet to meet one single doctor who has been through this process with a single patient. If you go into a university medical research environment, you will notice a sharp division between researchers and doctors, with NO ONE in the middle. Doctors can cure what they know how to cure, which is very little. Otherwise, they are pretty useless, unless of course you want your symptoms suppressed while you are headed for an early grave. If "out there" is insisting on cures rather than treatments, and doing it myself where I cannot find adequate professional help to do the job, then I guess that I must be "out there". When I first got serious about doing something about my tic, I found my way to this group and hoped someone would identify just what was wrong and what to do about it, so that I could select a suitable doctor, but that didn’t happen. Another damn research project. With luck and some help from you and others on the web, maybe I can crack this by Christmas. Thanks for ALL of your comments, both positive and negative. I carefully consider everyone’s comments. The most valuable comments are those off-the-wall comments that first sound ridiculous, but upon further consideration, redirect inquiry into a more productive direction. Thanks again for your comments. Steve =================== – Hide quoted text — Show quoted text -Joanne Cohen wrote:

"Steve" <St…@smart-life.net wrote in message news:3DAF73CF.39B26CD0@smart-life.net… Lara: The referenced articles concern tics DURING heating. Mine seemed pretty much unaffected during my hot shower. It was what happened AFTER my shower that was so remarkable. My temperature resetting was a ONE DAY cure that only involved 20 mcg of T3 and an Alaskan parka on a really hot day, followed by no more thyroid supplements. The tic started up a couple of months later. Steve =========== This sounds awfully out-there and possibly dangerous. Did you do this under any medical supervision? Also, you say the tics started months later…wonder why? I have to say it sounds like you are doing a lot of attributing, and already have your result in mind. Tics have a mind of their own, sometimes, and everyone reacts so differently, I bet people here could give you lots of reasons why you got a certain tic at a certain time…..aside from the somewhat strange Alaskan Parka solution. Sorry, I had a hard day and this type of self-treatment just rattled my cage. Rrrr….. Jo

Response:

Joanne: It wasn’t that my tic stopped as I predicted that was my BIG surprise. It was the muscle tensing that replace it, later followed by the tic effectively treating those sore muscles. When you are expecting one of two results depending upon whether your hypothesis is correct, and something completely unexpected happens, then that gets a LOT of attention because it just doesn’t fit any of the prevailing models. Steve =================== – Hide quoted text — Show quoted text -Joanne Cohen wrote:

Steve, you seem to randomly attribute the waxing and waning of tics…..as in your comment below about temperatures. Many people will report that heat, cold, change in weather or season (and sometimes the necessary change in type of clothing) itself will trigger or calm tics. Jo "Steve" <St…@smart-life.net wrote in message news:3DAF3F4D.64A2760D@smart-life.net… Blurt: Hmmm, they must have updated their site since I last looked at it. I stand corrected. Their comments apply mostly to Wilson’s original treatment. Newer treatment methods use MUCH less T3 – less in total than some thyroid patients take every day of their lives! Their comments about looking at one thing (Wilson’s Syndrome) blinding people to other things could be made about ANY potential diagnosis for ANY condition. I have said many times that most problem come from the intersection of multiple causative factors, so any competent physician should be working all recognizable problems, and not just low body temperature when it is low. Note also that Wilson’s original methods often took months, whereas the latest methods work in just one day, so any vision narrowing would be very short lived. My tic ALSO seems worse when I am cooled. It seems to be at its extreme when I am out walking in cooler air. I (rightly or wrongly) associated this with adrenaline level, as it responds to stress, exercise, and the need to boost body temperature – just when adrenaline would be metered out. Of course, none of this explains why my particular tic goes away when I am low temp. Further, when I used to be low temp all of the time, my adrenaline levels were much higher. No, I don’t have all the answers, for if I did, I wouldn’t have a problem to discuss. Steve

Response:

Steve, you seem to randomly attribute the waxing and waning of tics…..as in your comment below about temperatures. Many people will report that heat, cold, change in weather or season (and sometimes the necessary change in type of clothing) itself will trigger or calm tics. Jo "Steve" <St…@smart-life.net

wrote in message

news:3DAF3F4D.64A2760D@smart-life.net… – Hide quoted text — Show quoted text -

Blurt: Hmmm, they must have updated their site since I last looked at it. I stand corrected. Their comments apply mostly to Wilson’s original treatment. Newer treatment methods use MUCH less T3 – less in total than some thyroid patients take every day of their lives! Their comments about looking at one thing (Wilson’s Syndrome) blinding people to other things could be made about ANY potential diagnosis for ANY condition. I have said many times that most problem come from the intersection of multiple causative factors, so any competent physician should be working all recognizable problems, and not just low body temperature when it is low. Note also that Wilson’s original methods often took months, whereas the latest methods work in just one day, so any vision narrowing would be very short lived. My tic ALSO seems worse when I am cooled. It seems to be at its extreme when I am out walking in cooler air. I (rightly or wrongly) associated this with adrenaline level, as it responds to stress, exercise, and the need to boost body temperature – just when adrenaline would be metered out. Of course, none of this explains why my particular tic goes away when I am low temp. Further, when I used to be low temp all of the time, my adrenaline levels were much higher. No, I don’t have all the answers, for if I did, I wouldn’t have a problem to discuss. Steve ===================== Blurt Durtwurd wrote: On Thu, 17 Oct 2002 12:41:13 -0600, Steve <St…@smart-life.net wrote: Blurt: No, the ATA does not say that Wilson’s treatment is bad. From the ATA webpage that Derek posted at the beginning of this thread, which you are supposedly commenting on: <http://www.thyroid.org/publications/statements/99_11_16_wilsons.html "Fourth, T3 therapy results in wide fluctuations in T3 concentrations in blood and body tissues. This produces symptoms and cardiovascular complications in some patients, and is potentially dangerous." …………… "It does not consider the impact of other potential illnesses and psychosocial factors on how we feel. In doing so, attributing one or more of these symptoms to "Wilson’s syndrome" may delay recognition of treatable medical illnesses and potentially addressable life stresses." …………… "Treatment with T3 produces an unnaturally large amount of T3 in some organs. This may be inappropriate, especially in times of illness or nutritional deficiency. Long-term T3 treatment may cause harm. Excessive T3 treatment can affect the heart and skeleton. These effects can be serious and even life-threatening." …………… "Diagnostic criteria for "Wilson’s syndrome" are imprecise and could lead to misdiagnosis of many other conditions." …………… "Furthermore, administration of T3 can produce abnormally high concentrations of T3 in the blood, subjecting patients to new symptoms and potentially harmful effects on the heart and bones.  " …………… For you to respond to their criticism by saying that the ATA does not say that Wilson’s treatment is bad, is bad.  Bad, bad, bad. Also, the ATA says on that webpage: "The Wilson syndrome website reports only success stories. Responsible medical research into a new treatment keeps track of, and reports, not only successes, but also success rates, and how often there are inconclusive responses, failures, and side effects." I read a bit about the ATA, and yes they are funded by pharmaceutical companies.  That does make it difficult for me to trust them, but does not necessarily indicate that they don’t have a healthy independence from the hands that feed them.  It is enough to be highly skeptical about their word. For all I know, you could be onto the cure for all ills.  But I see no evidence of such, or anything even remotely approaching that. Interesting stuff, yeah, I guess, but I wish you’d present it more intelligently.  Your presentation up ’til now has been rather silly. BTW, I’m not sure, but I think my temp runs slightly higher than most people’s, and I tic at any time of day.  I feel cold very easily, and that stresses me, and I think I tic more when I’m stressed from feeling cold. Blurt They simply claim that the condition that he identifies by low temperature simply doesn’t exist. Then there is a remaining dispute about one elderly lady who heard

about

this, overmedicated herself, and died. This one death, not really a

part

of any competent treatment, has been used by some to discredit Wilson’s methods. Steve ================= Blurt Durtwurd wrote: On Tue, 15 Oct 2002 19:01:34 -0600, Steve <St…@smart-life.net wrote: Sandy: Dr. E. Denis Wilson is but one of many who has lost their medical licenses for performing or advocating this treatment. Meanwhile,

there

are several thousand people (including me) who have had their temperatures reset with spectacular results. Now, there are few

places

like California where doctors can do this without the expectation of reprisal. No peer would dare put their name to this, as I explained in an

earlier

email, this would end their career in research by damaging a large revenue stream for several major drug companies. If the "system" were honest and fair, and not willing to leave

thousands

to slow death for political reasons, then your expectation of peer review would be valid. Think for a moment. He does plenty of thinking. Many people say that Wilson’s treatment is terrific. No one says that it is bad. As has been being discussed, the American Thyroid Association says it’s bad. Maybe there is something to it?

Response:

"Steve" <St…@smart-life.net

wrote in message

news:3DAF73CF.39B26CD0@smart-life.net…

Lara: The referenced articles concern tics DURING heating. Mine seemed pretty much unaffected during my hot shower. It was what happened AFTER my shower that was so remarkable. My temperature resetting was a ONE DAY cure that only involved 20 mcg of T3 and an Alaskan parka on a really hot day, followed by no more thyroid supplements. The tic started up a couple of months later. Steve ===========

This sounds awfully out-there and possibly dangerous. Did you do this under any medical supervision? Also, you say the tics started months later…wonder why? I have to say it sounds like you are doing a lot of attributing, and already have your result in mind. Tics have a mind of their own, sometimes, and everyone reacts so differently, I bet people here could give you lots of reasons why you got a certain tic at a certain time…..aside from the somewhat strange Alaskan Parka solution. Sorry, I had a hard day and this type of self-treatment just rattled my cage. Rrrr….. Jo

Response:

Lara: The referenced articles concern tics DURING heating. Mine seemed pretty much unaffected during my hot shower. It was what happened AFTER my shower that was so remarkable. My temperature resetting was a ONE DAY cure that only involved 20 mcg of T3 and an Alaskan parka on a really hot day, followed by no more thyroid supplements. The tic started up a couple of months later. Steve =========== – Hide quoted text — Show quoted text -Lara wrote:

"Joanne Cohen" <joco…@attbi.com wrote in message <snip Many people will report that heat, cold, change in weather or season (and sometimes the necessary change in type of clothing) itself will trigger or calm tics. Jo Steve, Jo is right.  Also seasonal changes if someone has allergy problems. Depends on the individual. I had meant to send you the address where you can read some abstracts concerning thermal sensitivity and TS.  However, I got busy and didn’t get back last night. If you go to Pubmed <http://www.ncbi.nlm.nih.gov/entrez/query.fcgi and then type in .. temperature and tourette .. you’ll bring up a few articles you might be interested in reading. Many moons ago I had investigations for a Pituitary tumour. Thankfully I didn’t have such but I was put on thyroxine for a time. It felt like I was on speed.  Never ironed so much in my life.   Spent about 4 weeks taking the stuff and that was it.  I couldn’t stand it. I read the site you mentioned and a few others but still have concerns about someone taking even natural thyroid hormones.   If your tic/s started when you were taking heaps of thyroid hormones, I’d have to wonder if you were doing the right thing or not by messing around like that.    I know you say you’re really well now and that’s a great thing, but there’s just too much of this stuff I don’t understand.

Response:

"Joanne Cohen" <joco…@attbi.com

wrote in message <snip Many people will report that heat, cold, change in weather or season

(and

sometimes the necessary change in type of clothing) itself will

trigger or

calm tics. Jo

Steve, Jo is right.  Also seasonal changes if someone has allergy problems. Depends on the individual. I had meant to send you the address where you can read some abstracts concerning thermal sensitivity and TS.  However, I got busy and didn’t get back last night. If you go to Pubmed <http://www.ncbi.nlm.nih.gov/entrez/query.fcgi

and then type in .. temperature and tourette .. you’ll bring up a few articles you might be interested in reading. Many moons ago I had investigations for a Pituitary tumour. Thankfully I didn’t have such but I was put on thyroxine for a time. It felt like I was on speed.  Never ironed so much in my life.   Spent about 4 weeks taking the stuff and that was it.  I couldn’t stand it. I read the site you mentioned and a few others but still have concerns about someone taking even natural thyroid hormones.   If your tic/s started when you were taking heaps of thyroid hormones, I’d have to wonder if you were doing the right thing or not by messing around like that.    I know you say you’re really well now and that’s a great thing, but there’s just too much of this stuff I don’t understand.

Response:

On Thu, 17 Oct 2002 12:41:13 -0600, Steve <St…@smart-life.net

wrote:

Blurt: No, the ATA does not say that Wilson’s treatment is bad.

From the ATA webpage that Derek posted at the beginning of this thread, which you are supposedly commenting on: <http://www.thyroid.org/publications/statements/99_11_16_wilsons.html

"Fourth, T3 therapy results in wide fluctuations in T3 concentrations in blood and body tissues. This produces symptoms and cardiovascular complications in some patients, and is potentially dangerous." …………… "It does not consider the impact of other potential illnesses and psychosocial factors on how we feel. In doing so, attributing one or more of these symptoms to "Wilson’s syndrome" may delay recognition of treatable medical illnesses and potentially addressable life stresses."   …………… "Treatment with T3 produces an unnaturally large amount of T3 in some organs. This may be inappropriate, especially in times of illness or nutritional deficiency. Long-term T3 treatment may cause harm. Excessive T3 treatment can affect the heart and skeleton. These effects can be serious and even life-threatening." …………… "Diagnostic criteria for "Wilson’s syndrome" are imprecise and could lead to misdiagnosis of many other conditions." …………… "Furthermore, administration of T3 can produce abnormally high concentrations of T3 in the blood, subjecting patients to new symptoms and potentially harmful effects on the heart and bones.  " …………… For you to respond to their criticism by saying that the ATA does not say that Wilson’s treatment is bad, is bad.  Bad, bad, bad. Also, the ATA says on that webpage: "The Wilson syndrome website reports only success stories. Responsible medical research into a new treatment keeps track of, and reports, not only successes, but also success rates, and how often there are inconclusive responses, failures, and side effects." I read a bit about the ATA, and yes they are funded by pharmaceutical companies.  That does make it difficult for me to trust them, but does not necessarily indicate that they don’t have a healthy independence from the hands that feed them.  It is enough to be highly skeptical about their word. For all I know, you could be onto the cure for all ills.  But I see no evidence of such, or anything even remotely approaching that. Interesting stuff, yeah, I guess, but I wish you’d present it more intelligently.  Your presentation up ’til now has been rather silly. BTW, I’m not sure, but I think my temp runs slightly higher than most people’s, and I tic at any time of day.  I feel cold very easily, and that stresses me, and I think I tic more when I’m stressed from feeling cold. Blurt – Hide quoted text — Show quoted text ->They simply >claim that the condition that he identifies by low temperature simply >doesn’t exist. >Then there is a remaining dispute about one elderly lady who heard about >this, overmedicated herself, and died. This one death, not really a part >of any competent treatment, has been used by some to discredit Wilson’s >methods. >Steve >================= >Blurt Durtwurd wrote: >> On Tue, 15 Oct 2002 19:01:34 -0600, Steve <St…@smart-life.net

>> wrote: >> >Sandy: >> >Dr. E. Denis Wilson is but one of many who has lost their medical >> >licenses for performing or advocating this treatment. Meanwhile, there >> >are several thousand people (including me) who have had their >> >temperatures reset with spectacular results. Now, there are few places >> >like California where doctors can do this without the expectation of >> >reprisal. >> >No peer would dare put their name to this, as I explained in an earlier >> >email, this would end their career in research by damaging a large >> >revenue stream for several major drug companies. >> >If the "system" were honest and fair, and not willing to leave thousands >> >to slow death for political reasons, then your expectation of peer >> >review would be valid. >> >Think for a moment. >> He does plenty of thinking. >> >Many people say that Wilson’s treatment is terrific. >> >No one says that it is bad. >> As has been being discussed, the American Thyroid Association says >> it’s bad. >> >Maybe there is something to it?

Response:

Blurt: Hmmm, they must have updated their site since I last looked at it. I stand corrected. Their comments apply mostly to Wilson’s original treatment. Newer treatment methods use MUCH less T3 – less in total than some thyroid patients take every day of their lives! Their comments about looking at one thing (Wilson’s Syndrome) blinding people to other things could be made about ANY potential diagnosis for ANY condition. I have said many times that most problem come from the intersection of multiple causative factors, so any competent physician should be working all recognizable problems, and not just low body temperature when it is low. Note also that Wilson’s original methods often took months, whereas the latest methods work in just one day, so any vision narrowing would be very short lived. My tic ALSO seems worse when I am cooled. It seems to be at its extreme when I am out walking in cooler air. I (rightly or wrongly) associated this with adrenaline level, as it responds to stress, exercise, and the need to boost body temperature – just when adrenaline would be metered out. Of course, none of this explains why my particular tic goes away when I am low temp. Further, when I used to be low temp all of the time, my adrenaline levels were much higher. No, I don’t have all the answers, for if I did, I wouldn’t have a problem to discuss. Steve ===================== – Hide quoted text — Show quoted text -Blurt Durtwurd wrote:

On Thu, 17 Oct 2002 12:41:13 -0600, Steve <St…@smart-life.net wrote: Blurt: No, the ATA does not say that Wilson’s treatment is bad. From the ATA webpage that Derek posted at the beginning of this thread, which you are supposedly commenting on: <http://www.thyroid.org/publications/statements/99_11_16_wilsons.html "Fourth, T3 therapy results in wide fluctuations in T3 concentrations in blood and body tissues. This produces symptoms and cardiovascular complications in some patients, and is potentially dangerous." …………… "It does not consider the impact of other potential illnesses and psychosocial factors on how we feel. In doing so, attributing one or more of these symptoms to "Wilson’s syndrome" may delay recognition of treatable medical illnesses and potentially addressable life stresses." …………… "Treatment with T3 produces an unnaturally large amount of T3 in some organs. This may be inappropriate, especially in times of illness or nutritional deficiency. Long-term T3 treatment may cause harm. Excessive T3 treatment can affect the heart and skeleton. These effects can be serious and even life-threatening." …………… "Diagnostic criteria for "Wilson’s syndrome" are imprecise and could lead to misdiagnosis of many other conditions." …………… "Furthermore, administration of T3 can produce abnormally high concentrations of T3 in the blood, subjecting patients to new symptoms and potentially harmful effects on the heart and bones.  " …………… For you to respond to their criticism by saying that the ATA does not say that Wilson’s treatment is bad, is bad.  Bad, bad, bad. Also, the ATA says on that webpage: "The Wilson syndrome website reports only success stories. Responsible medical research into a new treatment keeps track of, and reports, not only successes, but also success rates, and how often there are inconclusive responses, failures, and side effects." I read a bit about the ATA, and yes they are funded by pharmaceutical companies.  That does make it difficult for me to trust them, but does not necessarily indicate that they don’t have a healthy independence from the hands that feed them.  It is enough to be highly skeptical about their word. For all I know, you could be onto the cure for all ills.  But I see no evidence of such, or anything even remotely approaching that. Interesting stuff, yeah, I guess, but I wish you’d present it more intelligently.  Your presentation up ’til now has been rather silly. BTW, I’m not sure, but I think my temp runs slightly higher than most people’s, and I tic at any time of day.  I feel cold very easily, and that stresses me, and I think I tic more when I’m stressed from feeling cold. Blurt They simply claim that the condition that he identifies by low temperature simply doesn’t exist. Then there is a remaining dispute about one elderly lady who heard about this, overmedicated herself, and died. This one death, not really a part of any competent treatment, has been used by some to discredit Wilson’s methods. Steve ================= Blurt Durtwurd wrote: On Tue, 15 Oct 2002 19:01:34 -0600, Steve <St…@smart-life.net wrote: Sandy: Dr. E. Denis Wilson is but one of many who has lost their medical licenses for performing or advocating this treatment. Meanwhile, there are several thousand people (including me) who have had their temperatures reset with spectacular results. Now, there are few places like California where doctors can do this without the expectation of reprisal. No peer would dare put their name to this, as I explained in an earlier email, this would end their career in research by damaging a large revenue stream for several major drug companies. If the "system" were honest and fair, and not willing to leave thousands to slow death for political reasons, then your expectation of peer review would be valid. Think for a moment. He does plenty of thinking. Many people say that Wilson’s treatment is terrific. No one says that it is bad. As has been being discussed, the American Thyroid Association says it’s bad. Maybe there is something to it?

Response:

On Tue, 15 Oct 2002 19:01:34 -0600, Steve <St…@smart-life.net

wrote: – Hide quoted text — Show quoted text -

Sandy: Dr. E. Denis Wilson is but one of many who has lost their medical licenses for performing or advocating this treatment. Meanwhile, there are several thousand people (including me) who have had their temperatures reset with spectacular results. Now, there are few places like California where doctors can do this without the expectation of reprisal. No peer would dare put their name to this, as I explained in an earlier email, this would end their career in research by damaging a large revenue stream for several major drug companies. If the "system" were honest and fair, and not willing to leave thousands to slow death for political reasons, then your expectation of peer review would be valid. Think for a moment.

He does plenty of thinking.

Many people say that Wilson’s treatment is terrific. No one says that it is bad.

As has been being discussed, the American Thyroid Association says it’s bad. – Hide quoted text — Show quoted text -

Maybe there is something to it?

Response:

Blurt: No, the ATA does not say that Wilson’s treatment is bad. They simply claim that the condition that he identifies by low temperature simply doesn’t exist. Then there is a remaining dispute about one elderly lady who heard about this, overmedicated herself, and died. This one death, not really a part of any competent treatment, has been used by some to discredit Wilson’s methods. Steve ================= – Hide quoted text — Show quoted text -Blurt Durtwurd wrote:

On Tue, 15 Oct 2002 19:01:34 -0600, Steve <St…@smart-life.net wrote: Sandy: Dr. E. Denis Wilson is but one of many who has lost their medical licenses for performing or advocating this treatment. Meanwhile, there are several thousand people (including me) who have had their temperatures reset with spectacular results. Now, there are few places like California where doctors can do this without the expectation of reprisal. No peer would dare put their name to this, as I explained in an earlier email, this would end their career in research by damaging a large revenue stream for several major drug companies. If the "system" were honest and fair, and not willing to leave thousands to slow death for political reasons, then your expectation of peer review would be valid. Think for a moment. He does plenty of thinking. Many people say that Wilson’s treatment is terrific. No one says that it is bad. As has been being discussed, the American Thyroid Association says it’s bad. Maybe there is something to it?

Response:

Ellen: After reading all of the contradictory literature, I started taking temperatures, both in myself and in my captive audience (my family). I quickly noticed that while I was "stuck low", that my temperature directly correlated with how I felt – the warmer the better. I felt SO much better at 98.0F (the warmest that I could get) compared to 97.0F, that it was hard to imagine how good I might feel at 98.6F. Upon resetting, where I can now operate over a MUCH wider range, I feel terrific at 98.6F. People have a wide range of responses to having their temperatures reset, but one comment that nearly everyone makes goes something like "I had absolutely no idea just how bad off I was." If you were to survey 70 year olds, I suspect that you would find that nearly all have low body temperatures! Is this optimal, or even good? If we started resetting them, I suspect that a few would probably die on the spot of the stress of resetting. Yes, you CAN live OK at a low temp, as I did until I was 55. Of course, other stressing factors will determine just how long you can go along this way. A doctor friend of mine operates a gerontology practice. I asked him if he had any Type II diabetes patients who were NOT low temp. His surprising answer: Steve, ALL of my patients are low temp! No, I do NOT want to be normal (my friends tell me that I have nothing to worry about). I want to be optimal. There has been some studies of Olympic athletes, though maintaining yourself in this sort of conditioning is also probably life-shortening, as it increases metabolism. Unfortunately, the manufacturer failed to include engineering notes or maintenance documentation along with the product (me), so I am left to do the best I can to figure this stuff out. The real argument over Wilson’s Syndrome has more to do with normal vs. optimal than anything else. There is NO survey of a population that hasn’t been VERY carefully screened that will tell you anything about optimal. No, I don’t think there has been any low-temp Olympic athletes. Steve ============ – Hide quoted text — Show quoted text -Ellen wrote:

Again, this is anecdotal, not scientific. I know of a 70 year old woman in perfect health who plays tennis 4 times a week, lifts weights and walks daily, and has an average temp of 96 to 97 in a doctors office. I know another with SLE who has many of the symptoms ascribed to Wilson’s syndrome whose average temp during a flare up is 99 to 100. When the Lupus is in remission, her temps average 96 or 97. This is anecdotal too. I wouldn’t make any conclusions based upon this sample, or any sample if I measured every person I know. I’m not a scientist, but I know enough about scientific procedure to know that I have a biased population (by geography and climate if nothing else) and an imprecised method of measuring temperatures. As for asking a nurse, what one is getting is a nurse’s estimate or perception, unless he or she is keeping accurate statistical records with some description of each patient, using rigorous methods of taking the temps. At most MDs offices and hospitals I’ve been to, a digital probe is shoved into my mouth, without any notice of whether I’d just eaten or had a cup of ice or hot tea immediately prior to measurement. And it’s rarely a nurse taking the temps- usually a med tech or asst. of some sort. Further, what is the history of the acceptance of 98.6 as the ideal human temp, or even as the average human temp? Can you produce the source? Steve at St…@smart-life.net wrote on 15.10.02 1:46 PM: Ellen: About half of the population are healthy. Surely, you must know some. Just take a thermometer and take their temperatures! This is exactly what I did to sort through all of the conflicting "professional opinions", all of whom seem to have an ax to grind. If you talk to a nurse at a doctor’s office, they’ll tell you that about half of their patients have 98.6F temperatures, with most of the other half having 97.something temperatures. However, only about 1/4 of the general population has low temp, so the low temp people have about twice the rate of visits to the doctor’s office. In short, there is far more misinformation than information in this area, so the only thing that will be convincing to YOU is to take some healthy people’s temperatures and form your own opinion. If you have some kids (like I do), then you have available victims, oops, I mean subjects to verify this. Steve ============ Ellen wrote: Steve at St…@smart-life.net wrote on 14.10.02 9:20 PM: The ATA "study" ignored all of these effects and concluded that people don’t have any particularly precise body temperature, and that 98.6F is just a fantasy. This is just plain lunacy. Why lunacy? What proof do you have, other than your own intuition and anecdotes, that 98.6 is an ideal and not just a statistical average? Just curious… E

Response:

On Mon, 14 Oct 2002 20:20:37 -0600, Steve <St…@smart-life.net

wrote: – Hide quoted text — Show quoted text -

Derek, et al: The ATA is running a scam. Here is what they did: The commissioned a "study" of healthy people’s temperatures at 8:00AM. Healthy people sleep at around 97.2F, and come up to 98.6F an hour or so after getting up. Hence, by sampling at 8:00AM they will get some near 97.2F, some near 98.6F, and lots in between, who are in the process of "making the jump". The ATA "study" ignored all of these effects and concluded that people don’t have any particularly precise body temperature, and that 98.6F is just a fantasy. This is just plain lunacy. Now consider, the ATA is 100% supported by drug companies who sell thyroid supplements, and a days worth of supplements in the hands of someone who knows what they are doing will CURE most people PERMANENTLY of their low body temperature and hypothyroid symptoms. No, there is no "incompetence" involved with the ATA’s "study". This is a willful fraud to scam people to keep taking their expensive prescription thyroid meds. Dr. Wilson and others who used his method were 85% successful using Wilson’s original method. I developed a different method that has yet to fail, except for one person who failed to respond at all to T3 (space alien?), the drug of choice for resetting people’s temperatures. I subsequently worked with this person to reset his temperature without using drugs at all – pretty rough and unpleasant, but he was rapidly running out of time and choices. The "snag" in all this comes from Dr. Wilson’s way overblown claims that resetting your temperature will cure everything there is including a broken heart and the common cold. It has cured all of these things in some people, but the overall success rate on a per-symptom basis is maybe 70%. I have myself seen this completely cure serious out-of-control Type II diabetes in one week flat. I have also seen it utterly fail to help. This fixes a lot of things in a lot of people, but certainly not everything in everybody. NOBODY else is talking about the problems in resetting, because both sides see it to their advantage to ignore such effects. Dr. Wilson doesn’t want to admit that his method can cause problems, and the ATA doesn’t want to admit that temperature IS important. The number of people with problems from resetting is now very small, but I expect it to grow as my method continues to be used to reset really "hard cases" – people who have been low temp since early childhood, and who have grown up without learning how to live at 98.6F. I am apparently the first such person to be reset. I just received an email from the fellow with the autoimmune problem, and he says that it is very gradually getting better on its own. Now, if you go and take the temperatures of elderly people in poor health, nearly 100% have lowered body temperatures, and most are dying of conditions known to be directly associated with low body temperatures. It seems that even healthy people usually run into problems somewhere along the line and drop their temperature, and typically die within a few months or years thereafter. This is crazy, to leave our population to die this way when a few pills and/or changing some habits can correct this in anyone, all just to keep a little more money flowing to the drug companies. This effect probably shortens the average life span by 20 years or so. This IS a crime against humanity.

You say that one out of four people have low body temperatures.  You say that if a person stays at low temp, they’ll probably die 20-30 years sooner than if they reset their temp.  If they had the potential to add years of life to billions of people, the pharmaceutical companies would jump on the chance to make vast fortunes far greater than they already do, and would almost certainly succeed (in the financial part, though they might leave out a billion or two poor people in the healing part), since they’re already manufacturing the drugs to do it, according to you. I, too, don’t like drug companies having so much control over medical research, but your reasoning is off here.

Also behind this denial is the fact that most causes of low body temperatures involve medical procedures and drugs of various sorts, e.g. anti-depressants and anesthesia. Admitting that this is true would open up just about every doctor in the world to malpractice suits.

No it wouldn’t. – Hide quoted text — Show quoted text -

There has been much discussion regarding why American medicine men average little better than African medicine men (with their beads and rattles). From what I can tell, denial of medically induced problems like low body temperature is probably adequate to explain most of the losses of our present medical system. No, there is nothing you can do about all this, EXCEPT to monitor your own and your family’s afternoon temperatures, and take prompt action if it should drop below 98.2F. If you react quickly enough (days or a few weeks), a really long and hot shower or few is often enough to turn things around. You can usually recognize when your temperature drops, because "brain fog" will set in. If you notice your thinking has gone downhill, take your temperature. Every 0.6F your temperature drops below 98.6F is the mental equivalent of having another drink. About a quarter of our entire population is impaired this way, to the tune of about 2 drinks. This really IS dumbing down of America.

Shhh…   …we don’t want employers to start using thermometers for making hiring decisions, do we? Blurt – Hide quoted text — Show quoted text -

Steve ================== Derek Wills wrote: I’m not saying that Steve knows not whereof he speaks re body temperature, but Wilson’s Syndrome has its detractors too – e.g.    http://www.thyroid.org/publications/statements/99_11_16_wilsons.html The American Thyroid Assocn claims that there is no scientific basis for the existence of the syndrome. Steve, do you have any comments on their criticism? Derek

Response:

On Mon, 14 Oct 2002 17:48:38 -0400, TSNW <t…@optonline.net

wrote: Derek Wills wrote: The American Thyroid Assocn claims that there is no scientific basis for the existence of the syndrome. I was wondering after Steve posted information that the Wilson’s syndrome website had something available for a fee, can’t remember what that was …

Kinda like the TSA website.  A bunch of stuff that used to be free there, you now have to pay to see. Blurt

Response:

Sandy: Dr. E. Denis Wilson is but one of many who has lost their medical licenses for performing or advocating this treatment. Meanwhile, there are several thousand people (including me) who have had their temperatures reset with spectacular results. Now, there are few places like California where doctors can do this without the expectation of reprisal. No peer would dare put their name to this, as I explained in an earlier email, this would end their career in research by damaging a large revenue stream for several major drug companies. If the "system" were honest and fair, and not willing to leave thousands to slow death for political reasons, then your expectation of peer review would be valid. Think for a moment. Many people say that Wilson’s treatment is terrific. No one says that it is bad. Maybe there is something to it? This is all complicated by the fact that Wilson’s own explanation is bull crap. It appears that what is really happening is that the process retrains your metabolic control system neurons, and has nothing at all to do with an excessive rT3 diversion as Dr. Wilson explains. As with all such things, I have learned to carefully examine the observations while taking the proposed explanations with a grain of salt. My alternative explanation of what was happening with Wilson’s treatment led to a treatment that works in hours instead of weeks, and worked on ME, on whom Wilson’s treatment had little prospect of working. Wilson has been unable to improve on his original treatment. Explanations must be judged on their ability to go for (better) cures. "Know them by their fruits." THIS is why I am tentatively rejecting the prevailing explanations of TS while I look for one on which effective (no continuing meds) action can be based. Steve ============== – Hide quoted text — Show quoted text -Sandy L wrote:

"Derek Wills" <o…@astro.as.utexas.edu wrote in message news:aof6u9$qun$1@geraldo.cc.utexas.edu… I’m not saying that Steve knows not whereof he speaks re body temperature, but Wilson’s Syndrome has its detractors too – e.g.    http://www.thyroid.org/publications/statements/99_11_16_wilsons.html The American Thyroid Assocn claims that there is no scientific basis for the existence of the syndrome. Steve, do you have any comments on their criticism? Derek I had no luck finding anything in the peer-reviewed literature about Wilson’s Thyroid Syndrome.  I presume advocates would hold that there is a conspiracy to block publication of Dr. Wilson’s (presumably) well-designed and executed studies establishing the scientific basis, but I’ve never been a great fan of conspiracy theories. What troubled me most in reading posts here and in contacting the website is the cult-like zeal of advocates.  One could argue that possessers of a unique Truth would naturally and logically also possess enthusiasm for disseminating the Truth, but, to me, it has more the flavor of seeking converts to a belief system. JMHO

Response:

Ellen: About half of the population are healthy. Surely, you must know some. Just take a thermometer and take their temperatures! This is exactly what I did to sort through all of the conflicting "professional opinions", all of whom seem to have an ax to grind. If you talk to a nurse at a doctor’s office, they’ll tell you that about half of their patients have 98.6F temperatures, with most of the other half having 97.something temperatures. However, only about 1/4 of the general population has low temp, so the low temp people have about twice the rate of visits to the doctor’s office. In short, there is far more misinformation than information in this area, so the only thing that will be convincing to YOU is to take some healthy people’s temperatures and form your own opinion. If you have some kids (like I do), then you have available victims, oops, I mean subjects to verify this. Steve ============ – Hide quoted text — Show quoted text -Ellen wrote:

Steve at St…@smart-life.net wrote on 14.10.02 9:20 PM: The ATA "study" ignored all of these effects and concluded that people don’t have any particularly precise body temperature, and that 98.6F is just a fantasy. This is just plain lunacy. Why lunacy? What proof do you have, other than your own intuition and anecdotes, that 98.6 is an ideal and not just a statistical average? Just curious… E

Response:

"Derek Wills" <o…@astro.as.utexas.edu

wrote in message

news:aof6u9$qun$1@geraldo.cc.utexas.edu…

I’m not saying that Steve knows not whereof he speaks re body temperature, but Wilson’s Syndrome has its detractors too – e.g.    http://www.thyroid.org/publications/statements/99_11_16_wilsons.html The American Thyroid Assocn claims that there is no scientific basis for the existence of the syndrome. Steve, do you have any comments on their criticism? Derek

I had no luck finding anything in the peer-reviewed literature about Wilson’s Thyroid Syndrome.  I presume advocates would hold that there is a conspiracy to block publication of Dr. Wilson’s (presumably) well-designed and executed studies establishing the scientific basis, but I’ve never been a great fan of conspiracy theories. What troubled me most in reading posts here and in contacting the website is the cult-like zeal of advocates.  One could argue that possessers of a unique Truth would naturally and logically also possess enthusiasm for disseminating the Truth, but, to me, it has more the flavor of seeking converts to a belief system. JMHO

Response:

‘Twas Mon, 14 Oct 2002 20:20:37 -0600 when all alt.support.tourette stood in awe as Steve <St…@smart-life.net

uttered: The ATA is running a scam. Here is what they did: The commissioned a "study" of healthy people’s temperatures at 8:00AM. Healthy people sleep at around 97.2F, and come up to 98.6F an hour or so after getting up. Hence, by sampling at 8:00AM they will get some near 97.2F, some near 98.6F, and lots in between, who are in the process of "making the jump". The ATA "study" ignored all of these effects and concluded that people don’t have any particularly precise body temperature, and that 98.6F is just a fantasy. This is just plain lunacy.

I don’t know about this study in particular, but what you describe is just like many medical studies which have been done.  Everyone designs their experiments to prove what they want to prove.  Figures can’t lie, but liars can figure. ‘Twas Tue, 15 Oct 2002 19:01:34 -0600 when all alt.support.tourette stood in awe as Steve <St…@smart-life.net

uttered: No peer would dare put their name to this, as I explained in an earlier email, this would end their career in research by damaging a large revenue stream for several major drug companies. If the "system" were honest and fair, and not willing to leave thousands to slow death for political reasons, then your expectation of peer review would be valid.

Having been a participant in the medical marijuana movement in California, I can say this is completely true.  People can grow there own marijuana (hemp), so it’s impossible for the drug companies to make money from it. All medical research is controlled by the drug companies, therefore there can never be honest medical research about marijuana. — RB |  

What are some of your preventive meds or routines?

Question:

Drink water rather that pop, soda or coffee. Dehydration and artificial sweeteners can cause headaches. If your urine is a dark yellow you are dehydrated. Get plenty of sleep. Sleep depravation can cause headaches and is a form of torture. Wear sunglasses on sunny days. If you wear glasses make sure the prescription is correct. If you don’t wear glasses you should have your eyes checked anyway, someday you will need glasses. Eye strain can cause headaches. Loose weight. Get checked for allergies. They can cause headaches too. Stress can cause headaches. I haven’t found a way to minimize stress, but I’m still looking. Stay off the pill pushing doctor merry go round, it will lead you nowhere. JAM I am headed to the neuro tomorrow for the followup, nag me to death routine. I usually try to come with some form of idea to show them I am interested in finding a preventive.  I thought I saved some of the posts over the last few months, but can’t find them. I am wondering what some of you are taking for preventives?  How has that worked for you overall?  And also wondered if anyone has tried Protriptyline and if so, what were the results? Any thoughts are helpful. Thanks all, Michelle

Response:

Hi Michelle! I take 5mg of Emconcor (beta-blocker) and 50mg of Saroten Retard (amitriptylin) daily. These are the names used in Finland, I’m sorry but I have no idea what they are called in other countries :-( . This combination has decreased my  migraines from 5-7 to 3-5/week. I’m grateful for the lesser attacks, of course, but the main benefit is that the migraines start "slower" (don’t know any better way to describe it) and I have a bit more time to take a triptan. I hope the neuro can help you. I’ll keep my fingers crossed! Didi – Hide quoted text — Show quoted text – I am headed to the neuro tomorrow for the followup, nag me to death routine. I usually try to come with some form of idea to show them I am interested in finding a preventive.  I thought I saved some of the posts over the last few months, but can’t find them. I am wondering what some of you are taking for preventives?  How has that worked for you overall?  And also wondered if anyone has tried Protriptyline and if so, what were the results? Any thoughts are helpful. Thanks all, Michelle

Response:

I’ve been there and found it extremely helpful.  In fact, I printed one of your studies and a case and brought them with me today on my appt. Unfortunately, she wasn’t in the mood to discuss any of it.  Too bad, she missed an opportunity to really discuss the treatments. I use your site all the time! Michelle

– Hide quoted text — Show quoted text – we have alot of info on this on www.headachedrugs.com  Lawrence Robbins M.D. author, Headache Help

Response:

we have alot of info on this on www.headachedrugs.com  Lawrence Robbins M.D. author, Headache Help

Response:

Great advice.  I’m a healthy maniac and actually get in a good amount of water 10-12 glasses a day, don’t drink soda except when I have pizza (not often at all).  I have been looking at my allergies and I will take your advice and stay off the merry go rounds.  Those darn things make me sick anyway ;-) Michelle Drink water rather that pop, soda or coffee. Dehydration and artificial

sweeteners can cause headaches. If your urine is a dark yellow you are dehydrated. Get plenty of sleep. Sleep depravation can cause headaches and is a form of torture. Wear sunglasses on sunny days. If you wear glasses make sure the

prescription is correct. If you don’t wear glasses you should have your eyes checked anyway, someday you will need glasses. Eye strain can cause headaches. – Hide quoted text — Show quoted text – Loose weight. Get checked for allergies. They can cause headaches too. Stress can cause headaches. I haven’t found a way to minimize stress, but I’m still looking. Stay off the pill pushing doctor merry go round, it will lead you nowhere. JAM I am headed to the neuro tomorrow for the followup, nag me to death routine. I usually try to come with some form of idea to show them I am interested in finding a preventive.  I thought I saved some of the posts over the last few months, but can’t find them. I am wondering what some of you are taking for preventives?  How has that worked for you overall?  And also wondered if anyone has tried Protriptyline and if so, what were the results? Any thoughts are helpful. Thanks all, Michelle —

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Preventives: Thyroid treatment; over-the-counter 5-HTP (not taken within 12 hrs of triptan) Routines: Sunglasses; relaxation techniques; exercise, water & healthy eating Pretty good results except under unusual circumstances – such as recent 28-day trip in a Runnamucka with 5 grandchildren. I had four triptans during that period…mostly because the temp was 100+ during several days. The trip was a blast. Still resting. –Julianne

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Hi Michelle All of these actions have help me. The most effective was loosing 50lbs and drinking water instead of soft drinks. I cut my pain from twice a week to once a month! Now if I can find a doctor to check me for allergies instead of pushing pills I think I can reduce the pain even more. I know Dan Rather bashes HMOs at least once a week, but I haven’t found a good doctor in the "traditional" heath care system since I was forced out of the Health America HMO. JAM – Hide quoted text — Show quoted text – Great advice.  I’m a healthy maniac and actually get in a good amount of water 10-12 glasses a day, don’t drink soda except when I have pizza (not often at all).  I have been looking at my allergies and I will take your advice and stay off the merry go rounds.  Those darn things make me sick anyway ;-) Michelle Drink water rather that pop, soda or coffee. Dehydration and artificial sweeteners can cause headaches. If your urine is a dark yellow you are dehydrated. Get plenty of sleep. Sleep depravation can cause headaches and is a form of torture. Wear sunglasses on sunny days. If you wear glasses make sure the prescription is correct. If you don’t wear glasses you should have your eyes checked anyway, someday you will need glasses. Eye strain can cause headaches. Loose weight. Get checked for allergies. They can cause headaches too. Stress can cause headaches. I haven’t found a way to minimize stress, but I’m still looking. Stay off the pill pushing doctor merry go round, it will lead you nowhere. JAM I am headed to the neuro tomorrow for the followup, nag me to death routine. I usually try to come with some form of idea to show them I am interested in finding a preventive.  I thought I saved some of the posts over the last few months, but can’t find them. I am wondering what some of you are taking for preventives?  How has that worked for you overall?  And also wondered if anyone has tried Protriptyline and if so, what were the results? Any thoughts are helpful. Thanks all, Michelle —

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Michelle: I get allergy shots every 2 weeks and once I asked one of the doctors my Allergist office if allergies can cause migraines and she said that they can lead to them. I also get bad sinus headaches and they can also lead to migraines. Barbara Booth

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I agree about the allergy thing.  I’ve avoided an allergist like the plague. I just don’t want to hear about all the things in the whole wide world that I am allergic to.  I get my allergy meds from my internist–they’ve been pretty good about trying different medications.  Although, I am certain a good doctor knowledgable in this area would have other techniques as well…one can hope. I’ve been fortunate enough to be in good PPO systems that have a ton of doctors.  I have really good doctors overall I think.  The neuro is the hit or miss. Michelle Hi Michelle All of these actions have help me. The most effective was loosing 50lbs

and drinking water instead of soft drinks. I cut my pain from twice a week to once a month! Now if I can find a doctor to check me for allergies instead of pushing

pills I think I can reduce the pain even more. I know Dan Rather bashes HMOs at least once a week, but I haven’t found a

good doctor in the "traditional" heath care system since I was forced out of the Health America HMO. – Hide quoted text — Show quoted text – JAM Great advice.  I’m a healthy maniac and actually get in a good amount of water 10-12 glasses a day, don’t drink soda except when I have pizza (not often at all).  I have been looking at my allergies and I will take your advice and stay off the merry go rounds.  Those darn things make me sick anyway ;-) Michelle Drink water rather that pop, soda or coffee. Dehydration and artificial sweeteners can cause headaches. If your urine is a dark yellow you are dehydrated. Get plenty of sleep. Sleep depravation can cause headaches and is a form of torture. Wear sunglasses on sunny days. If you wear glasses make sure the prescription is correct. If you don’t wear glasses you should have your eyes checked anyway, someday you will need glasses. Eye strain can cause headaches. Loose weight. Get checked for allergies. They can cause headaches too. Stress can cause headaches. I haven’t found a way to minimize stress, but I’m still looking. Stay off the pill pushing doctor merry go round, it will lead you nowhere. JAM I am headed to the neuro tomorrow for the followup, nag me to death routine. I usually try to come with some form of idea to show them I am interested in finding a preventive.  I thought I saved some of the posts over the last few months, but can’t find them. I am wondering what some of you are taking for preventives?  How has that worked for you overall?  And also wondered if anyone has tried Protriptyline and if so, what were the results? Any thoughts are helpful. Thanks all, Michelle — —

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I’ve had great success with Tenormin.  It’s the only preventative that’s worked for me. WB

: I am headed to the neuro tomorrow for the followup, nag me to death routine. : I usually try to come with some form of idea to show them I am interested in : finding a preventive.  I thought I saved some of the posts over the last few : months, but can’t find them. : : I am wondering what some of you are taking for preventives?  How has that : worked for you overall?  And also wondered if anyone has tried Protriptyline : and if so, what were the results? : : Any thoughts are helpful. : : Thanks all, : Michelle : :

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I am wondering what some of you are taking for preventives?  How has that worked for you overall?

Here’s what I take now, that seems to be working well for me. Every night: Neurontin, 300 mgs. Elavil, 30 mgs. Zanaflex, not sure of the dosage. 5 mgs I think. More makes me hallucinate. Klonazapam .5 mgs, I think. (Very small dose) Progesterone cream, 10 days a month. Bite plate when I’m in teeth grinding mode. (Sorry Dr. Jimbo, the NTI just didn’t work for me. The regular bite plate does, but it’s very uncomfortable, so I probably don’t wear it as much as I should.) Tibetan black and yellow incense when my abortives aren’t working well, like for weather related headaches. My abortives are Imitrex, Zomig (never within 24 hours of each other) and demerol. On the rare occasion aspirin or ibuprofen will work. I *think* that’s all. I may be forgetting something. And also wondered if anyone has tried Protriptyline and if so, what were the results?

No, I’ve tried amitriptylene and nortriptyline, but not the other. Dana

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My abortives are Imitrex, Zomig (never within 24 hours of each other) and demerol. On the rare occasion aspirin or ibuprofen will work.

This is a thing that has bothered me for some time: how much/how many triptans one can/should take during for example 24 hours? My migraines are often quite persistent and one triptan/migraine isn’t enough. Usually two different triptans are enough but sometimes "monsters" need three. I circulate the meds (Zomig, Imigran tablets & sprays, Relert) because for example two Imigrans taken during the same attack have no more effect than one. One doctor told me that I should wait at least two hours before I take the second triptan. Once I happened to tell a pharmacist that one triptan isn’t enough and she looked at me like I were some freak from outer space and asked did my doctor know what I was doing. As I said, this has bothered me for quite a long time and I would really appreciate it if people could tell me how they manage stubborn migraines and what kind of instructions they’ve got from their doctors. Thanks!  Didi

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Yeah, well, I wouldn’t be surprised you got funny looks.  We always get funny looks because I think everyone has some routine they find that works the best.  I typically won’t take more than a couple of my Zomig in a 4-hour space just because I know if one doesn’t work, typically the second won’t matter.  In those cases I’ll limp through with either a couple of Excedrin or Vicodin if I know it’s a wambanger.  But that is just me and how my migraines will react.  If it’s really bad, I’ll switch over to my ergotomine, DHE 45, shots the next day and stay away from my triptan.  I used to take my triptan and then do the shot if the triptan didn’t work.  I seemed to have good results, but I really got chewed out for doing that. I knew you weren’t supposed to, but it sure worked :-) You can read the insert to see what they say for the dosage.  I used to have to give myself a couple of Imitrex shots to do the trick.  Zomig says after two hours you can repeat a dosage, but you shouldn’t take more than 10 mg in 24 hours.  That’s just the insert. Also, I don’t think you’re supposed to mix your triptans.  I’m not certain about that…maybe someone else will know. Hope that helps some… Michelle

– Hide quoted text — Show quoted text – My abortives are Imitrex, Zomig (never within 24 hours of each other) and demerol. On the rare occasion aspirin or ibuprofen will work. This is a thing that has bothered me for some time: how much/how many triptans one can/should take during for example 24 hours? My migraines are often quite persistent and one triptan/migraine isn’t enough. Usually two different triptans are enough but sometimes "monsters" need three. I circulate the meds (Zomig, Imigran tablets & sprays, Relert) because for example two Imigrans taken during the same attack have no more effect than one. One doctor told me that I should wait at least two hours before I take the second triptan. Once I happened to tell a pharmacist that one triptan isn’t enough and she looked at me like I were some freak from outer space and asked did my doctor know what I was doing. As I said, this has bothered me for quite a long time and I would really appreciate it if people could tell me how they manage stubborn migraines and what kind of instructions they’ve got from their doctors. Thanks!  Didi

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This is a thing that has bothered me for some time: how much/how many triptans one can/should take during for example 24 hours? My migraines are often quite persistent and one triptan/migraine isn’t enough. Usually two different triptans are enough but sometimes "monsters" need three. I circulate the meds (Zomig, Imigran tablets & sprays, Relert) because for example two Imigrans taken during the same attack have no more effect than one. One doctor told me that I should wait at least two hours before I take the second triptan. Once I happened to tell a pharmacist that one triptan isn’t enough and she looked at me like I were some freak from outer space and asked did my doctor know what I was doing. As I said, this has bothered me for quite a long time and I would really appreciate it if people could tell me how they manage stubborn migraines and what kind of instructions they’ve got from their doctors.

ok, my doctor and two pharmacists have told me to NEVER take different triptans within 24 hours of each other. The way is was explained to me is that because triptans have a tendency to raise your blood pressure, the cumulative effect of different ones can be very dangerous. If I were you I’d ask your doctor again about taking different triptans for the same headache. And ask your pharmacist about it too. I don’t remember exactly the instructions for each triptan, but for Zomig (I think) you take one dose, if it doesn’t work, don’t take more. (Which you obviously have experienced.) If it does work, but the headache comes back, you can take another dose in 2 hours. I find that a combination of a triptan and an antiinflammatory like ibuprofen sometimes works better than just the triptan. If that still doesn’t work I’ll take a demerol, if that still doesn’t work I know it’s pretty much hopeless and go to bed. (And light the Tibetan incense.) Sometimes that works-the dark room thing, combined with relaxation-meditation type activity. I think we all have headaches that just don’t respond to medication and we have to wait those out. Best of luck to you… Dana

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I have also done what is noted below.  The triptan I use is imitrex, but I only need about 1/3 of the injectable dosage.  Like others, I’ve found that if it isn’t going to work, there’s no point in taking more.  It just won’t work on that particular occasion.  I also use cafergot suppositories at about 1/3 of the usual dose.  Using partial doses gave me the idea that it wasn’t quite so awful to use both a triptan & an ergot within the same 24 hr. period. I’ve done it several times without bad effects.  In fact, it’s a pretty sure fire "cure", hard not to do when you’ve got a real headbanger. But then you don’t necessarily get hit by a car when you run into traffic; Nevertheless it’s not such a good idea to run into traffic, is it? – Hide quoted text — Show quoted text – If it’s really bad, I’ll switch over to my ergotomine, DHE 45, shots the next day and stay away from my triptan.  I used to take my triptan and then do the shot if the triptan didn’t work. I seemed to have good results, but I really got chewed out for doing that.

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Yeah, I think it tends to run in the range of the first we try a triptan alone…doesn’t work, we try the triptan with some additional med like an anti-inflammatory or Excedrin…doesn’t work, drastic then we go to the pain meds and wait it out.  Even with the pain medication, if it isn’t going to get rid of the pain, then I need to knock myself out somehow and sleep it off.  Otherwise, I take too much medications and end up sleeping in the bathroom on the floor :-) Michelle

– Hide quoted text — Show quoted text – This is a thing that has bothered me for some time: how much/how many triptans one can/should take during for example 24 hours? My migraines are often quite persistent and one triptan/migraine isn’t enough. Usually two different triptans are enough but sometimes "monsters" need three. I circulate the meds (Zomig, Imigran tablets & sprays, Relert) because for example two Imigrans taken during the same attack have no more effect than one. One doctor told me that I should wait at least two hours before I take the second triptan. Once I happened to tell a pharmacist that one triptan isn’t enough and she looked at me like I were some freak from outer space and asked did my doctor know what I was doing. As I said, this has bothered me for quite a long time and I would really appreciate it if people could tell me how they manage stubborn migraines and what kind of instructions they’ve got from their doctors. ok, my doctor and two pharmacists have told me to NEVER take different triptans within 24 hours of each other. The way is was explained to me is that because triptans have a tendency to raise your blood pressure, the cumulative effect of different ones can be very dangerous. If I were you I’d ask your doctor again about taking different triptans for the same headache. And ask your pharmacist about it too. I don’t remember exactly the instructions for each triptan, but for Zomig (I think) you take one dose, if it doesn’t work, don’t take more. (Which you obviously have experienced.) If it does work, but the headache comes back, you can take another dose in 2 hours. I find that a combination of a triptan and an antiinflammatory like ibuprofen sometimes works better than just the triptan. If that still doesn’t work I’ll take a demerol, if that still doesn’t work I know it’s pretty much hopeless and go to bed. (And light the Tibetan incense.) Sometimes that works-the dark room thing, combined with relaxation-meditation type activity. I think we all have headaches that just don’t respond to medication and we have to wait those out. Best of luck to you… Dana

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But then you don’t necessarily get hit by a car when you run into traffic; Nevertheless it’s not such a good idea to run into traffic, is it?

A prefect analogy! Dana (who has been known to "run into traffic" on occasion. Hey, we’re all human, right?)  :^)

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Wow, that’s great.  I think I tried that years ago.  I’m about ready to start trying things over since it’s been ten years for some medications and so many things have changed with my body. I’m certainly glad you’ve had such relief.  I get the headaches after surgery, too.  It must be the anesthesia. Michelle

– Hide quoted text — Show quoted text – I have a 22 year history of migrains that began with projectile vomiting…and some lasted 2 weeks in the beginning. I tried bio feedback training and just about every med out there, including Midrin, which works after the symptoms begin, Feorinol and Feoriset, which helped but not as much as the midrin. I now take 10mg of Proprananol OL HCl twice a day and have been migrain free for over 18 months….with the exception of right after a surgery. I can’t tell you what it means to have the freedom of being pain free. This has been a miracle after all the years I suffered with them    http://www.newsfeed.com       The #1 Newsgroup Service in the World! —–= Over 100,000 Newsgroups – Unlimited Fast Downloads – 19 Servers

=—–

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Michelle, I’m taking Verapamil and Effexor XR. I’m also taking Diamox, but that’s because my spinal fluid pressure is too high, and the Diamox keeps it down. The supplements I’m taking for prevention are 400 mg of Vitamin B2 and 150 mb of Coenzyme Q10 Good luck. Please let us know how your appointment goes? Hugs, Teri

– Hide quoted text — Show quoted text – I am headed to the neuro tomorrow for the followup, nag me to death routine. I usually try to come with some form of idea to show them I am interested in finding a preventive.  I thought I saved some of the posts over the last few months, but can’t find them. I am wondering what some of you are taking for preventives?

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Hi Michelle… I’m on elavil (25 mg./day) and verapamil (240 mg./day).  As you may remember, I am also in the process of "tweaking" my hormones and am seriously feeling much better.  I can’t say which of these helped, but since it’s working I ain’t gonna mess with it. I still get headaches, but they can be headed off at the pass with 1 or 2 fiorinal – a big improvement!! Let us know what you and your doc decide to do. Liz

– Hide quoted text — Show quoted text – I am headed to the neuro tomorrow for the followup, nag me to death routine. I usually try to come with some form of idea to show them I am interested in finding a preventive.  I thought I saved some of the posts over the last few months, but can’t find them. I am wondering what some of you are taking for preventives?  How has that worked for you overall?  And also wondered if anyone has tried Protriptyline and if so, what were the results? Any thoughts are helpful. Thanks all, Michelle

Response:

I am headed to the neuro tomorrow for the followup, nag me to death routine. I usually try to come with some form of idea to show them I am interested in finding a preventive.  I thought I saved some of the posts over the last few months, but can’t find them. I am wondering what some of you are taking for preventives?  How has that worked for you overall?  And also wondered if anyone has tried Protriptyline and if so, what were the results? Any thoughts are helpful. Thanks all, Michelle

Response:

I have a 22 year history of migrains that began with projectile vomiting…and some lasted 2 weeks in the beginning. I tried bio feedback training and just about every med out there, including Midrin, which works after the symptoms begin, Feorinol and Feoriset, which helped but not as much as the midrin. I now take 10mg of Proprananol OL HCl twice a day and have been migrain free for over 18 months….with the exception of right after a surgery. I can’t tell you what it means to have the freedom of being pain free. This has been a miracle after all the years I suffered with them    http://www.newsfeed.com       The #1 Newsgroup Service in the World! —–= Over 100,000 Newsgroups – Unlimited Fast Downloads – 19 Servers =—–

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