Posts belonging to Category 'Vioxx Vs Celebrex'

Marijuana ?

Question:

Begining an adventure I will never believe at age 58 … Well … I

hope it will add to my

total life experiences …..

dove, that’s not much older than the age my oldest sister was the first time she smoked pot! she was dx’d with rheumatoid arthritis when she was in her 50s. her doc had told her she wasn’t a good candidate for some anti-rheumatic — is that correct? — drug that was much in the news at the time, so she did the vioxx/celebrex/mobic thing, used a TENS unit, had physical therapy, and her doc finally put her on Lortabs — i believe it’s either an opiate or a synth opiate. she and ihad talked about medical MJ before, but only to the extent that she knew i used it. my oldest sister was married at 17, a mom at 18, married to a career air force guy, living on bases in various countries and bringing up 3 kids — she just kind of skipped over the 60s/70s dope stuff. my sis didn’t liike the lortabs because of side FX. she’d talked with her doc about medpot, and the oc didn’t seem to be oppsed, but she figured it wasn’t something she’d ever try, because she didn’t know where to get some. then one day her husband’s neice showed up with a baggie…LOL. i found out the whole story whenshe came to visit us a year or so ago. she’d asked the neice how much it cost because she wanted to reimburse her; the neice refused; my sister told her she might want to get some of her own someday, so how much did it cost??? the neice finally told her she’d paid $50 for what she had. i hav  no idea how much or what kind it was, but my sister — of course, LOL! — slipped the neice 50 bucks, and after our visit, i found that she’d left a $50 bill on the table wrapped up in a note that said ‘for medicine.’ the funny part — because she’d never been a recreational user, she didn’t know much about price — she got it into her head that ‘pot costs 50 dollars.’  ;-

the part that may be pertinent to your sitch — my sister said it worked aces for pain,  the docs weaned her off the lortabs, and even tho she was a lifelong non-user, absolutely no psycho-freakout stuff happened when she began using medpot. i wish you the best and hope it works as well for you!  :-

rose

Response:

an ounce of leaves crushed and dried to look like spices do –

Response:

On Sat, 19 Feb 2005 06:18:00 -0500, Yon…@webtv.net (Dove 1) wrote:

an ounce of leaves crushed and dried to look like spices do –

Then it probably won’t contain any parts of the plant that will produce a high. Remember only the female buds or their extracts will get you stoned. $110 an once for just the leaves is too expensive.

Response:

st…@tropheus.demon.co.uk wrote:

On Sat, 19 Feb 2005 06:18:00 -0500, Yon…@webtv.net (Dove 1) wrote: an ounce of leaves crushed and dried to look like spices do – Then it probably won’t contain any parts of the plant that will produce a high. Remember only the female buds or their extracts will get you stoned. $110 an once for just the leaves is too expensive.

steve, i’m wondering — since dove has said that she’s COMPLETELY inexperienced with marijuana, perhaps there’s some confusion about ‘leaves’ vs. buds/flowers. $110 for an oz. of just leaf would be insanely expensive! the ‘crushed and dried to look like spices do’ part — dove, do you just mean MJ that looks like oregano or something when it’s in a baggie? if so, it probably IS crushed up buds, rather than leaves. when you grow your own plants, there are leaves — they look pretty much like the leaves [leafs? brain-fart this morning] of any flowering plant. i mean they have a distincitve appearance, but when looking at the plant itself, they stick off te branches like the leaves of other plants do. the buds, if the plant is not harvested, would eventually flower. male plants have really pretty flowers — if pot was legal across the board, i’d keep some ‘boyz’ around just because i like the way they look.  ;-

just crossed my mind that people who have never used pot before, ever, may not understand that the plants have buds and leaves, but just think of it as ‘marijuana,’ and not understand that the unfamiliar terms they hear others use are not necessarily interchangeable. rose

Response:

Oy – now there are male and female plants — and oils — and

blossoms —

I think I am not up to doing this properly !

dove, i think it’s possible that many of us didn’t/don’t realize HOW inexperienced you were with cannabis when we first started talking to you. once a person gets the hang of it, it’s really NOT all that hard to learn to grow one’s own, but folks need to learn their ABCs before they’re ready to start reading. yes, there are male and female plants — just as there are with all plants that reproduce ’sexually.’ the female plants are the ones that produce the cannabis that gives you both the high, and the medical benefits. there are hermaphrodite pot plants as well — if they fertilize themselves, all the seeds will be female. it can get extremely complicated, but i don’t reckon you need to concern yourself with all the specifics — it could end up something like trying to do calculus problems before you’ve learned basic addition and subtraction. just think of flowering plants generally — they’ve got stems with leaves sticking off them, and they’ve also got flowers. the terms ‘buds’ and ‘flowers’ are used fairly interchangeably when talking about growing medical MJ, but they’ll be the buds harvested before the plant has actually flowered. the leaves and stems will contain small amounts of THC, but the highest concentration is in the buds.

I am very glad to hear that it takes only 1 or 2 puffs for the spasms

to subside — while i tend to smoke the bud, rather than the leaf as steve does, my experience with speed of efficacy is identical. there’s no waiting time — i start to feel the muscles relaxing and the spasms easing up almost immediately. it’s much easier for me to tell if i’m going to need more or not than it has ever been taking a pill, waiting for the effects to kick in, taking another pill or half-pill, etc.

If you were buying already dried – how do you know that this is a

reputable source

?

me personally, i buy from 2 people — my former compassionate care provider [prop 215, california-specific term, i believe -- the volunteer who helped me back in the old days], and a personal friend of the family who i’ve known and trusted for a long time. if i was going to buy some from someone whose opinion and intentions i didn’t trust absolutely — it would be proper pot smokers’ etiquette for that person to roll a joint and let me have a taste. obviously, neither of those situations applies to you, though! in your case, maybe start by thinking of the people in your life who you DO trust, and explain your situation to them. if they realize you’re not looking to turn stoner late in life, but rather seeking symptomatic relief, i doubt they’d look down on you for that. in my experience, most people DO know folks who smoke, or who at least know where to get smoke, even if they don’t realize it. maybe someone could steer you toward a reputable source. i’d also advise getting in touch with a local medical MJ group, but since i don’t personally know anyone in florida, or anything about your local law enforcement’s attitudes, it’s possible that could bring more attention than you want. excuse me for a momentary mini-rant — dammit, you’re exactly the kind of person medical use laws were designed for, and it BITES that your area doesn’t have any! if someone already knows a lot about pot and knows 10 different people they could call who are likely to have some, there’s not much of a problem, but someone who has NEVER smoked it and has no idea where to get it needs people who really do want to HELP, not take advantage of naivete. sadly, there are all too many of those latter kinds of people in the world.  /mini-rant

How much of this ounce would I need to use at one time ? About how

much

would be necessary for 1 month – each night so I could SLEEP ? It

does help you

sleep right ???

it sure helps ME sleep!! while everyone’s physiology is different, considering the effects you’re interested in and the fact that you’re not a recreational user, it seems like an oz. is likely to last you a good long time. that being the case, you’ll also want to make sure it’s sealed up tightly in a ziplock baggie and stored someplace out of direct sunlight so it will stay fresh — LOL, but i am being serious. all the best, rose

Response:

Oh No — Rob – ! I want to sleep – really sleep — cartoons and unusual movies are for people who are awake — My body is so exhausted — but my mind will not shut off — THIS is why I am wanting to know about everyones thoughts and experiences with the medical use of mj — make the pain stop for a bit — and relax me enough to SLEEP — But I will look online for bongs ??? Will I be arrested for that in Florida ??? Wow – it really is me writing about being arrested !!!!  Amazing what can happen in a lifetime ! ….. dove

Response:

Begining an adventure I will never believe at age 58 … Well … I hope it will add to my total life experiences ….. Enough has been taken away …. thanks for responding … Stay safe .. be well … dove

Response:

"DCI" <d…@cheetah.mess

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On Mon, 21 Feb 2005 00:42:29 -0500, Yon…@webtv.net (Dove 1) wrote: Just what is STONED ? And – what is a bong ?and is this a beter way than tea ? which I had just decided would work best to try – and than read your post again …. LOL … Starting to wish I had had a more exciting youth ! 58 is a strange age to be learning about MJ !!! Dove, At 58, you are beginning a learning adventure you’ll never believe. Donn

Dove, buy a cartoon to watch for your first try.  You know, if money is a factor I think smoking may be less expensive as I think making tea requires more, if I remember right.  Rent a Cheech and Chong move!  Enjoy.  :*)  A bong is a water pipe that filters the smoke and cools it down so it doesnt burn your lungs.  I wouldnt have a clue how to go about getting one though. Ill bet a million bucks that stores here in Oregon sell them online.  This is a BIG pot-state. Rob

Response:

Just what is STONED ? And – what is a bong ?and is this a beter way than tea ? which I had just decided would work best to try – and than read your post again …. LOL … Starting to wish I had had a more exciting youth ! 58 is a strange age to be learning about MJ !!!

Response:

On Mon, 21 Feb 2005 00:42:29 -0500, Yon…@webtv.net (Dove 1) wrote:

Just what is STONED ? And – what is a bong ?and is this a beter way than tea ? which I had just decided would work best to try – and than read your post again …. LOL … Starting to wish I had had a more exciting youth ! 58 is a strange age to be learning about MJ !!!

Dove, At 58, you are beginning a learning adventure you’ll never believe. Donn

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<st…@tropheus.demon.co.uk

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On Sat, 19 Feb 2005 06:18:00 -0500, Yon…@webtv.net (Dove 1) wrote: an ounce of leaves crushed and dried to look like spices do – Then it probably won’t contain any parts of the plant that will produce a high. Remember only the female buds or their extracts will get you stoned. $110 an once for just the leaves is too expensive.

Dont know about the price, but leaves off of male plants can certainly get you stoned.  Why do you say it cant?  I understand that experienced pot smokers like to smoke female buds, because of the higher THC content, but that doesnt mean the leaves of male plants dont have it. Rob

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"Dove 1" <Yon…@webtv.net

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Oy – now there are male and female plants — and oils — and blossoms — I think I am not up to doing this properly ! I am very glad to hear that it takes only 1 or 2 puffs for the spasms to subside — so – do you grow your own plants — or buy from someone else ??? If you were buying already dried – how do you know that this is a reputable source ? I have been told that here – to purchase from a repudable person ( who is selling for recreational use ) it will cost $110.00 an ounce — I am — on a limited income – How much of this ounce would I need to use at one time ? About how much would be necessary for 1 month – each night so I could SLEEP ? It does help you sleep right ??? Thanks for your help Steve … Be safe and well … Dove

Dove I think an ounce is a lot.  A LOT!  Id bet that would last a non-stoner 6 months.  As Steve said, if you only take a couple of drags through a pipe, or a bong, each night, an ounce would last you forever. When I did it Im pretty sure it was for a gram.  ($10.00)  Theres 20 or 30… (cant recall at the moment) in an ounce.  A gram lasted me a long time.  But Im the ultimate light-weight in regard to pot.  Most would use more I think.  But still, an ounce should last you a long, long, time. Make sure you tell NOBODY you are using it.  NOBODY.  (you could ask your doc if hes willling to discuss your "hypothetical" use of it, off the record.)  Just so he knows why you may no longer be needing some other med you might be taking. Just getting a bit stoned makes you feel better.  That alone is good enough for me in regard to legalizing it for medical use.  Hmmm…  Its been a while, but Im thinking I may get some, lol. Rob

Response:

st…@tropheus.demon.co.uk wrote:

My experience is that one or two puffs on a pipe full of cannabis

leaf

cures muscle spasms almost instantly. Dried, young leaf is very mild and does not produce a high. Only the buds from female flowering plants, resin or oil will produce a turn on but dried leaf from either the male or female plant cures spasms. I don’t mix it with the legal but highly addictive tobacco. Fresh leaf makes a pleasant tea. Steve

steve, is it leaf from some kind of special medical-use strain that you’re talking about, or just plain old leaf? when i smoked leaf, it did nothing for my spasms — only FX I noticed were my lips got slightly numb and i had a headache. consuming it in baked goods was slightly better, but again, didn’t cure the spasms. i’m not doubting you or anything — wish i had the same leaf you’ve had is all! rose

Response:

On 18 Feb 2005 14:05:47 -0800, "rose" <rosedawn_sc…@yahoo.com

wrote: – Hide quoted text — Show quoted text -

st…@tropheus.demon.co.uk wrote: My experience is that one or two puffs on a pipe full of cannabis leaf cures muscle spasms almost instantly. Dried, young leaf is very mild and does not produce a high. Only the buds from female flowering plants, resin or oil will produce a turn on but dried leaf from either the male or female plant cures spasms. I don’t mix it with the legal but highly addictive tobacco. Fresh leaf makes a pleasant tea. Steve steve, is it leaf from some kind of special medical-use strain that you’re talking about, or just plain old leaf?

Just plain leaf but I only use the newly growing small ones. It may make a difference. I’ve never tried the older leaf.

when i smoked leaf, it did nothing for my spasms — only FX I noticed were my lips got slightly numb and i had a headache. consuming it in baked goods was slightly better, but again, didn’t cure the spasms.

I’m talking about 100% leaf in a pipe – no tobacco.

i’m not doubting you or anything — wish i had the same leaf you’ve had is all!

Another possibility is the theory that my wife has. She reckons it’s all in my mind and I could smoke anything to get relief from spasms! Steve

Response:

Oy – now there are male and female plants — and oils — and blossoms — I think I am not up to doing this properly ! I am very glad to hear that it takes only 1 or 2 puffs for the spasms to subside — so – do you grow your own plants — or buy from someone else ??? If you were buying already dried – how do you know that this is a reputable source ? I have been told that here – to purchase from a repudable person ( who is selling for recreational use ) it will cost $110.00 an ounce — I am — on a limited income – How much of this ounce would I need to use at one time ? About how much would be necessary for 1 month – each night so I could SLEEP ? It does help you sleep right ??? Thanks for your help Steve … Be safe and well … Dove

Response:

On Fri, 18 Feb 2005 12:56:04 -0500, Yon…@webtv.net (Dove 1) wrote:

Oy – now there are male and female plants — and oils — and blossoms — I think I am not up to doing this properly ! I am very glad to hear that it takes only 1 or 2 puffs for the spasms to subside — so – do you grow your own plants — or buy from someone else ??? If you were buying already dried – how do you know that this is a reputable source ?

I have grown my own but these days it’s easier to let someone else do it. I know it is a reputable source by just looking at the leaves. If I was buying resin or oil then it would be more difficult to test the quality.

I have been told that here – to purchase from a repudable person ( who is selling for recreational use ) it will cost $110.00 an ounce — I am — on a limited income – How much of this ounce would I need to use at one time ? About how much would be necessary for 1 month – each night so I could SLEEP ? It does help you sleep right ???

An ounce of what? An ounce is quite a lot but the preparation is different for different types.

Response:

On Thu, 17 Feb 2005 02:26:42 -0500, Yon…@webtv.net (Dove 1) wrote:

Has anyone here tried marijuana for symptom control ? If you have – what were the effects ? Positive and negetive ? What form did you use ? Which was most and least effective ? Have you continued to use it ? I am 58 yr old female – trying to manage symptoms with less Rxs daily – I do not want to break laws or get "high" This truely is a serious post …. Thank you

My experience is that one or two puffs on a pipe full of cannabis leaf cures muscle spasms almost instantly. Dried, young leaf is very mild and does not produce a high. Only the buds from female flowering plants, resin or oil will produce a turn on but dried leaf from either the male or female plant cures spasms. I don’t mix it with the legal but highly addictive tobacco. Fresh leaf makes a pleasant tea. Steve

Response:

Oy Vey ! I was so NOT happy to read your very kind mail Rose :( Now I understand why my Dr was so strange – when he is usually very open to my suggestions — We have been using Rxs to simply treat each symptom as they come and go – In the begining 3yrs ago – he did not know me yet — so was very cautious about prescribing things for me to use "as needed" — but now he knows that I am VERY cautious — even to the point where HE increased my vicodin before my surgery a month ago – the pain was causing my muscle spasms to be much worse — than I could not sleep — than YOU Know — the whole cycle goes nuts – I will go to the site you gave me — do you know if even the pill form of cannibus is not legal in Florida ? ( I think it has a different name ) I do not want to go to jail – I do want something that will ease my symptoms and pain — Do you know which States have better laws ? OK – Thanks – look forward to hearing back from you — but if I am being a pain – do not feel obligated Rose —  Be safe and well …. Dove

Response:

hi abdi, yup, even in states with a medical use provision, that means it can be used as a DEFENSE, but not necessarily that you won’t be arrested in the first place, even if your county has a program and you’re in complete compliance with all the regs. the way the state provision is viewed by law enforcement in each specific county — cali has 58 separae counties IIRC — will liikely play a big role in how the first responders treat medical users. in pre-prop-215 days, the law made a distinction between misdemeanor and felony cultivation — 5 plants or fewer was a misdemeanor; any more than 6 was a felony. after the counties got rolling — hee, no pun intended! — with their own medical use provisions [each county comes up with its own rules re the number of plants one is allowed, the method of joining the medical use program, etc.], the ‘generic’ rules were tightened up, so that now growing even one plant is a felony — no longer such a thing as misdemeanor cultivation now that prop 215 supposedly took care of the medical users. the city of san diego came up with its own program, no. of plants/amount of ‘dried marijuana’ permitted, acceptable medical conditions, a system with plastic ID cards and registration numbers, etc. since i live within the COUNTY of S.D., but not the city limits, i’m ineligible for the CITY program. the county had money set aside with which they’d PLANNED to establish their own medical use provisions, but when the county went broke [after the city went broke, which was after the state went broke!!], the money was used for something else and the county program put on hold. because california ‘generic’ drug law is lenient regarding cannabis, ie simple possession of 1 oz. or less is an infraction, not even a misdemeanor, no mandated jail time at all, $100 fine — very similar to a traffic ticket — and because cultivation laws have been tightened, and because the county has no program whose rules I CAN abide by, it really makes more sense for me to just buy my MEDICAL marijuana, an oz. at a time, from any old pot dealer, than to grow my own, which was the major point of prop 215 in the first place. it’s a conundrum, and i’d much prefer to just do what i’d done previously — grow my 5 little ‘girls’ myself and start on 5 new ones post-harvest — but i’d be in much more potential trouble doing it that way, than just buying weed from a dealer. i think that’s SAD, but OTOH, I also realize how fortunate i am compared to some folks who have to deal with draconian drug laws and no medical use exemptions. if your state doesn’t have medical use provisions, and you’ve got the energy and cognitive ability [generic 'you'], lobby for them! there’s no reason any sensible person should be unable to separate medical users from stoners, even if said person is extremely anti-drug in general. i think it’s generally recognized that a person taking morphine for intractable pain due to brain cancer [for instance] is very different from a junkie on the street slamming heroin. why shouldn’t it be generally recognized and acknowledged that the same is true for medical MJ? I’ve heard some supposed explanations, but they’ve never made sense to me. i’d like to see medical use provisions in every county in every state, but it takes effort to get the legislation proposed, and even more effort to get it passed. i’m glad to have been physcally and mentally healthy enough to have volunteered and helped get the prop 215 message across. if your state has no medical exemption, and if you’re [again, generic 'you'] able to even write a letter, then you can be a volunteer for such legislation. there are probably groups with that aim already in place in your area — check them out first, if they seem legit, contact them and ask what you can do. i realize ‘grass-roots’ makes a funny little pun, but i feel very strongly about this issue. we, the people, have a responsibility to get the word out — well ok, IMHO we do. rose

Response:

Thanks for your replies – :-) )) Actually I now have more questions than answers — First off – I know little about this whole issue — I have serious cognitive disabilities — I have been hearing that studies were done – they seemed to show good results and less side effects — I live in N-E-Central Florida — I would like to grow the plants myself — I have heard that it is expensive to purchase — I do not – as Abdi said – want to go to jail – The tea idea sounds like I could benefit from it and control the dosage most easily I am also worried about interactions with medicines I must take – synthroid – premarin -……. My doctor would not discuss any of this – I read each of your posts – It sounds like this would at least be worth trying if only for muscle spasm pain —- I hope you all will have the patience to help me work through this since you are all more knowledgable than I — Thanks :-) )) ….. Dove

Response:

dove, yikes, florida. no medical use provision, and you can get 5 years in prison and a $5,000 fine for growing even ONE plant, AND y’all have got mandatory minimums out there. you’re in a BAD area for medical use, and i’m very sorry about that — but i can see why your doc isn’t even willing to discuss any of it with you!  :{ there is a yahoo group that you might want to take a look at — http://health.groups.yahoo.com/group/MSMarijuana/  – as you can probably guess from the title, it deals specifically with M.S. and medical marijuana. it’s a very good place to get information. i’m not sure what i would do in your situation, to be honest. florida drug laws have even misdemeanor possession of less than 20 grams of marijuana showing sentences of a year in jail/$1,000 fine. it’s definitely a factor that needs to be weighed, the benefits you’d likely receive from medical use vs. the jail time and fines you’d likely receive for medical use in a state with no medical use provision.  and it flat sucks! but it’s best to be realistic. i know there are groups in florida dedicated to getting medical use recognized, but i don’t know anyone from those groups personally, and am unfamiliar with them — maybe someone reading who’s closer to the area could give you some feedback about local groups. in the early prop 215 days, i learned a lot from working with ‘grow-ops,’ cooperative efforts to assist people with no experience in growing, but when the ‘grow-ops’ were the first to go down, the ‘medpot movement’ became somewhat fragmentary, with ‘authorized sellers’ who charged ripoff prices that no street dealer would dare to charge, people wanting to get licensed as compassionate providers simply so they could grow their own weed and have a defense — the kind of person who’s willing to name every name he knows because he was never interested in helping sick people to begin with, but only trying to play the system for his own benefit — in an area without a well-established medical MJ movement, there are various things that can pop up and cause trouble, and it’s always best to have someone who knows the area and the folks involved who can give you tips on what to watch out for, who wants to help vs. who just wants to take your money, that kind of thing. i’m more than happy to help you work through specifics re growing and such, but it would probably be wiser to take things slow, because of your area and the risks involved…and lso because, as you admit you’re inexperienced, i’d hate to see profiteering jerks take advantage of you or others in your situation. all the best, rose

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I am jealous of you. I did not take any medication when I had the chance :-( and now I regret it, but alas a joint would be good when I cannot move any limbs, but here in the Empire State, a wanna be fascist (Rockefeller) has past some draconian laws. Essentially they can release murderers, rapers, mother rapers, father rapers, but if you have been found with a joint they will send you to hell. Go figure. — Quaecomque sunt vera —- "rose" <rosedawn_sc…@yahoo.com

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Dove 1 wrote: Has anyone here tried marijuana for symptom control ? If you have – what were the effects ? Positive and negetive ? What form did you use ? Which was most and least effective ? Have you continued to use it ? I am 58 yr old female – trying to manage symptoms with less Rxs daily – I do not want to break laws or get "high" This truely is a serious post …. Thank you hi dove1, yes, i use medical MJ for symptom control, and have been regularly since the passage of california’s prop 215. as with other meds, it does affect some of us differently, but i’ll give you my personal experiences. in addition to spasticity, i have very painful muscle spasms, and hands-down, there’s NOTHING I’ve tried that works better for the spasms. it works to an extent with spasticity — i’d say approximately the same as valium or zanaflex, the anti-spasticity drugs the neuro prescribes. also in my own case, weight loss has been a problem, so i use MJ for appetite stimulation and as an anti-nausea agent, again very effective, but i realize that the munchies are not a desireable side effect for everyone! in my case it’s effective to a degree with neuropathic pain, but i must admit this is the one area where i’ve found prescription drugs to work better — i generally do a ‘combination treatment’ thing there, using cannabis as an adjunct. it relaxes me and helps with my quality of sleep — i don’t wake up with a ’stoned hangover’ feeling when using marijuana, while i DO wake up with that ‘hung over’ feeling when using prescription meds. in my case, it also has mood elevating effects, one of the things i like the best about medpot is that it does cover many symptoms all by itself, rather than having a pill for each separate one. i know some folks have trouble with paranoia — i actually analyzed this, LOL, and found that my ‘paranoia’ is the kind that stems from heightened senses — you hear a car door slam up the street, it sounds like it’s right out front, you jump and wonder who the hell is out there — look out the window, and see that the neighbor 4 doors down has just got home. once i realized this, it no longer ‘bothered’ me. for some people, possibly those predisposed in some way, the paranoia is much worse — unfortunately, i don’t really know any way to predict how it ight affect any given person — if you’ve had problems with paranoia and such previously, i would guess adding MJ would increase those feelings. i do use smoking as my primary method, because it seems much easier to ‘titrate’ the doses with inhaled cannabis. my lungs are ok, but i definitely understand many folks might not want to risk lung damage. i’ve also brewed it up into a traditional indian [hindu] drink called ‘bhang’ [it is the word that we get the word 'bong' from, LOL]. i have a recipe if you’re interested, but it makes use of an entire ounce of marijuana. i’ve also baked it in food — among stoners, it’s common to use the leaf to make brownies and such, but when i’ve made them, i used the buds rather than the leaves — BECAUSE I’m not looking for just a high, but for pain and spasticity relief, and the buds have a higher THC content than the leaf. the bad side effects, the only one for me is that smoking pot gets me high. since i’m retired and have no need to be regularly ‘on,’ it’s not such a problem for me, tho if i was still working, most likely i’d be using pot much less frequently and counting on less-effective prescription meds that don’t make me feel/act quite as goofy! i imagine the munchies would be an unwanted side effect for many, although in my case, it’s a benefit. if you live in an area with a medical use provision, there are folks on the NG who could help you with tips on how to grow your own plants, all you’ve gotta do is ask!  :- i’m a 41-year-old woman who’s had M.S. for 15 years. i didn’t even start using medpot till the prop 215 days — i was very much a ‘citizen’ at the time — and i’ve continued using it since. the benefits i receive from it — THE best muscle relaxer i’ve ever had, including prescription pills, and minus the tolerance and addiction issues. spasticity control — to a degree, and easier to find the line between too much spasticity and not enough spasticity when using cannabis than when using prescription pills. sleep aid — works very well, but if fatigue is a big issue for you, be prepared to get sleepy after a certain point. mood elevator — for me, yes. appetite stimulant — oh yeah, LOL, and as i said before, a good thing for me, but probably an unwanted side effect for many.  ;-  anti-nausea — again, THE best i’ve ever found, including prescription compazine, whch i had after a case of food poisoning. the bad parts — smoking causes lung damage. this can be gotten around by using brewed or baked cannabis. i made some delicious chocolate chip canna-cookies, using a recipe from ‘the joy of cooking’ and just adding crumbled-up buds to the mix. smoking often makes me feel lazy and/or sleepy. if one is buying the weed, the strength will be variable — growing one’s own is my preference anyway. it gives me the munchies — i actually DO try to eat healthy stuff when i’m munching. for some folks whose paranoia gets kicked up in a way that goes beyond the heightened senses, it could be a problem, so use care if you’re inexperienced. that’s all i can think of off the top — if you have further questions or want more details, feel free to ask! not everyone in the NG is a medical user, but there are plenty of folks who are, and who are willing to share the knowledge. rose

Response:

Has anyone here tried marijuana for symptom control ? If you have – what were the effects ? Positive and negetive ? What form did you use ? Which was most and least effective ? Have you continued to use it ? I am 58 yr old female – trying to manage symptoms with less Rxs daily – I do not want to break laws or get "high" This truely is a serious post …. Thank you

Response:

"Dove 1" <Yon…@webtv.net

wrote in message

news:26081-42144732-86@storefull-3354.bay.webtv.net…

Has anyone here tried marijuana for symptom control ? If you have – what were the effects ? Positive and negetive ? What form did you use ? Which was most and least effective ? Have you continued to use it ? I am 58 yr old female – trying to manage symptoms with less Rxs daily – I do not want to break laws or get "high" This truely is a serious post …. Thank you

Well, Ive tried it.  Smoking it is just too strong for me.  It hits me to strongly.  But I think Im becoming more accustomed to it as I had some a couple of months ago and I didnt get sick. However, I have used it for my MS in the past.  Knowing I couldnt smoke it, I experimented.  Eventually ending up with me grinding some up in a coffee been grinder.  Take a cup and a half of water, pour it into a pan, dump in a little ground up pot, bring to a boil, boil for at least 5 minutes, Poor the water into a coffee mug, place your favorite tea bag or two in there.  Let it cool and then drink.  Its as simple as that.  The chems are activated at much higher temps than boiling, so you get a different effect by boiling and drinking it.  Not nearly as harsh, it hits you slower, and lasts longer. I wouldnt even say it stones you, but it still made life fun when I did it. LOL.  It never once made me sick, in fact, I always found it to be a relaxing and pleasent experience.  In regard to coordination effects… after drinking some I felt particularly giddy and went to the park with Stef’s identical twin sisters boyfriend, a friend who was a linebacker at Willamete Universtiy, and promptly kicked his ass in a one-on-one basketball game.  And I hadnt touched a basketball in 5 years.  Probably could never have done that straight.  LOL I think twice, well meaning friends gave me brownies, and THOSE really stone ya.  But they didnt make me sick, it felt heavily buzzy, but not unpleasently so.  Much different than smoking and making tea.  I recomend tea.  But people who are experienced smokers may not even notice such effects, but I sure can.  Sorry for yammering. Oh yeah, when you get to the bottom of the cup, swirl it around and drink the ground up pot.  If you dont do that youde lose much, if not most, of the desired effect.  It works like a charm. Rob

Response:

Dove 1 wrote:

Has anyone here tried marijuana for symptom control ? If you have – what were the effects ? Positive and negetive ? What form did you use ? Which was most and least effective ? Have you continued to use it ? I am 58 yr old female – trying to manage symptoms with less Rxs daily

-

I do not want to break laws or get "high" This truely is a serious post …. Thank you

hi dove1, yes, i use medical MJ for symptom control, and have been regularly since the passage of california’s prop 215. as with other meds, it does affect some of us differently, but i’ll give you my personal experiences. in addition to spasticity, i have very painful muscle spasms, and hands-down, there’s NOTHING I’ve tried that works better for the spasms. it works to an extent with spasticity — i’d say approximately the same as valium or zanaflex, the anti-spasticity drugs the neuro prescribes. also in my own case, weight loss has been a problem, so i use MJ for appetite stimulation and as an anti-nausea agent, again very effective, but i realize that the munchies are not a desireable side effect for everyone! in my case it’s effective to a degree with neuropathic pain, but i must admit this is the one area where i’ve found prescription drugs to work better — i generally do a ‘combination treatment’ thing there, using cannabis as an adjunct. it relaxes me and helps with my quality of sleep — i don’t wake up with a ’stoned hangover’ feeling when using marijuana, while i DO wake up with that ‘hung over’ feeling when using prescription meds. in my case, it also has mood elevating effects, one of the things i like the best about medpot is that it does cover many symptoms all by itself, rather than having a pill for each separate one. i know some folks have trouble with paranoia — i actually analyzed this, LOL, and found that my ‘paranoia’ is the kind that stems from heightened senses — you hear a car door slam up the street, it sounds like it’s right out front, you jump and wonder who the hell is out there — look out the window, and see that the neighbor 4 doors down has just got home. once i realized this, it no longer ‘bothered’ me. for some people, possibly those predisposed in some way, the paranoia is much worse — unfortunately, i don’t really know any way to predict how it ight affect any given person — if you’ve had problems with paranoia and such previously, i would guess adding MJ would increase those feelings. i do use smoking as my primary method, because it seems much easier to ‘titrate’ the doses with inhaled cannabis. my lungs are ok, but i definitely understand many folks might not want to risk lung damage. i’ve also brewed it up into a traditional indian [hindu] drink called ‘bhang’ [it is the word that we get the word 'bong' from, LOL]. i have a recipe if you’re interested, but it makes use of an entire ounce of marijuana. i’ve also baked it in food — among stoners, it’s common to use the leaf to make brownies and such, but when i’ve made them, i used the buds rather than the leaves — BECAUSE I’m not looking for just a high, but for pain and spasticity relief, and the buds have a higher THC content than the leaf. the bad side effects, the only one for me is that smoking pot gets me high. since i’m retired and have no need to be regularly ‘on,’ it’s not such a problem for me, tho if i was still working, most likely i’d be using pot much less frequently and counting on less-effective prescription meds that don’t make me feel/act quite as goofy! i imagine the munchies would be an unwanted side effect for many, although in my case, it’s a benefit. if you live in an area with a medical use provision, there are folks on the NG who could help you with tips on how to grow your own plants, all you’ve gotta do is ask!  :-

i’m a 41-year-old woman who’s had M.S. for 15 years. i didn’t even start using medpot till the prop 215 days — i was very much a ‘citizen’ at the time — and i’ve continued using it since. the benefits i receive from it — THE best muscle relaxer i’ve ever had, including prescription pills, and minus the tolerance and addiction issues. spasticity control — to a degree, and easier to find the line between too much spasticity and not enough spasticity when using cannabis than when using prescription pills. sleep aid — works very well, but if fatigue is a big issue for you, be prepared to get sleepy after a certain point. mood elevator — for me, yes. appetite stimulant — oh yeah, LOL, and as i said before, a good thing for me, but probably an unwanted side effect for many.  ;-

 anti-nausea —

again, THE best i’ve ever found, including prescription compazine, whch i had after a case of food poisoning. the bad parts — smoking causes lung damage. this can be gotten around by using brewed or baked cannabis. i made some delicious chocolate chip canna-cookies, using a recipe from ‘the joy of cooking’ and just adding crumbled-up buds to the mix. smoking often makes me feel lazy and/or sleepy. if one is buying the weed, the strength will be variable — growing one’s own is my preference anyway. it gives me the munchies — i actually DO try to eat healthy stuff when i’m munching. for some folks whose paranoia gets kicked up in a way that goes beyond the heightened senses, it could be a problem, so use care if you’re inexperienced. that’s all i can think of off the top — if you have further questions or want more details, feel free to ask! not everyone in the NG is a medical user, but there are plenty of folks who are, and who are willing to share the knowledge. rose

Response:

colitis and ibuprofin

Question:

I was diagnosed with collagenous colitis last April. Nsaids are a no-no. I also have very bad osteoarthritis so have to have pain meds. I take Darvocet every six hrs. sometimes I supplement it with aspirin. Every once in a while if I know I’m going to be on my feet a lot I will take ibuprofen–but rarely. Vioxx, Celebrex,etc. worked for me but gave me such bad insomnia that I couldn’t tolerate it. Guess I was lucky before the fact.

Response:

My dr has always told me NO ibuprofen for my CD.  No Aleve, Advil, etc.  I can use coated (enteric) aspirin in moderation, tylenol, etc. I have always been told the others are a defintie No for IBD. – Hide quoted text — Show quoted text – Thanks for the replies everyone. I did ask my GI dr about Celebrex he said def. no. I lowered the advil quantity I was taking and it seems to have helped my strained neck, but still not perfect. UC is not perfect either, but then again neither is this world :) A friend mentioned a muscle relaxant may help, going to call dr tomorrow and ask I think I’m lucky as until the crazy intake of ibuprofin I was taking(600mg/6 hours) I never noticed a problem with Aspirin or Alleve, taken in mild amounts. Will have to look into Lodine as well Joel Thanks Jeff but I just got the renewal for the Celebrex and it should be in the mail.  It works and I am not worried about them yet anyways.  UM MOM Susan you may want to read up on nsaid’s.  they are not all created equal. some actually have fewer gi side effects than the cox 2. jeffy I take Celebrex and just ordered a  90 day supply because they are talking about removing both Celebrex and Bextra.  I had surgery two weeks ago and had to stop the Celebrex and my vitamin a week before the surgery and I don’t want to be without.  I can’t take the nsaids.  You do need an RX for this.  UM MOM Susan what do people take as anti-inflamitory meds?  Seems ibuprofin is causing a flare up with me but i pulled a neck muscle earlier this week and acetominaphine does nothing for me. thanks Joel

Response:

Thanks for the replies everyone. I did ask my GI dr about Celebrex he said def. no. I lowered the advil quantity I was taking and it seems to have helped my strained neck, but still not perfect. UC is not perfect either, but then again neither is this world :) A friend mentioned a muscle relaxant may help, going to call dr tomorrow and ask I think I’m lucky as until the crazy intake of ibuprofin I was taking(600mg/6 hours) I never noticed a problem with Aspirin or Alleve, taken in mild amounts. Will have to look into Lodine as well Joel

– Hide quoted text — Show quoted text – Thanks Jeff but I just got the renewal for the Celebrex and it should be in the mail.  It works and I am not worried about them yet anyways.  UM MOM Susan you may want to read up on nsaid’s.  they are not all created equal. some actually have fewer gi side effects than the cox 2. jeffy I take Celebrex and just ordered a  90 day supply because they are talking about removing both Celebrex and Bextra.  I had surgery two weeks ago and had to stop the Celebrex and my vitamin a week before the surgery and I don’t want to be without.  I can’t take the nsaids.  You do need an RX for this.  UM MOM Susan what do people take as anti-inflamitory meds?  Seems ibuprofin is causing a flare up with me but i pulled a neck muscle earlier this week and acetominaphine does nothing for me. thanks Joel

Response:

I know that my joints hurt alot since being off the vioxx .. I have been on Celebrex in the past also Peace and Love Maryjo

Response:

Thanks Jeff but I just got the renewal for the Celebrex and it should be in the mail.  It works and I am not worried about them yet anyways.  UM MOM Susan – Hide quoted text — Show quoted text – you may want to read up on nsaid’s.  they are not all created equal.  some actually have fewer gi side effects than the cox 2. jeffy I take Celebrex and just ordered a  90 day supply because they are talking about removing both Celebrex and Bextra.  I had surgery two weeks ago and had to stop the Celebrex and my vitamin a week before the surgery and I don’t want to be without.  I can’t take the nsaids.  You do need an RX for this.  UM MOM Susan what do people take as anti-inflamitory meds?  Seems ibuprofin is causing a flare up with me but i pulled a neck muscle earlier this week and acetominaphine does nothing for me. thanks Joel

Response:

I’ll take that as a "no". As I said and the links I posted show, the study Merck cited was at 25 mg / day not 50 mg and everyone was at risk not just some small sub populations. You can always do the online research yourself to back up your claims and not ask someone who disagrees with your claims to do the work. www.pubmed.com is a good place to start and I recommend using Scirus search too (http://www.scirus.com/srsapp/advanced/index.jsp).  Google is your friend too especially if you learn some of the advanced search features. BTW: Many colleges/universities are required to limit online access to journals due to the contracts.  Sadly this is actually reducing public access to scientific journals as few places are carrying the published versions any more. – Hide quoted text — Show quoted text – The information was a combination of what I read in the newspapers following the story and in talks with my GI, who said the findings were at 50 mg used daily and above, which was considered a normal dose.  You can always access your local college or university to locate the actual scientific publications or they may be available through online access with your local public library.       Can you post links to any scientific research to support this claim? I’ve been following this for personal reasons and what I found was that anyone on it (either a high dose or a low dose for a long time) was at risk.  Anyone, not just an "at risk" sub population.

Response:

The information was a combination of what I read in the newspapers following the story and in talks with my GI, who said the findings were at 50 mg used daily and above, which was considered a normal dose.  You can always access your local college or university to locate the actual scientific publications or they may be available through online access with your local public library. :)  mgbio – Hide quoted text — Show quoted text – I have decided, and I continue to use the Vioxx I have left since it is safer for me than any alternative.    Your decision, I hope it works well for you. Remember, the danger is to a small subset of a subset of the population.  It can adversely effect those w/ a heart condition, a group into which I do not fit, and of those, only 5% are negatively effected.    Can you post links to any scientific research to support this claim? I’ve been following this for personal reasons and what I found was that anyone on it (either a high dose or a low dose for a long time) was at risk.  Anyone, not just an "at risk" sub population. I would hardly call this widespread danger to the general population.  All of this, btw, based on a daily dosage of 50 mg or higher.    The studies I saw said 25 mg as the high dose not 50 mg.  IIRC one said even low doses (12.5 mg) caused the problem if it was used over a long time (1.5 years).    See: http://www.vioxx.com/rofecoxib/vioxx/consumer/index.jsp "The trial, which is being stopped, was designed to evaluate the efficacy of VIOXX 25 mg in preventing recurrence of colorectal polyps in patients with a history of colorectal adenomas. In this study, there was an increased relative risk for confirmed cardiovascular events, such as heart attack and stroke, beginning after 18 months of treatment in the patients taking VIOXX compared to those taking placebo."    And this is from Merck, others say the situation is worse.    A decent meta-analysis can be found at The Lancet: "Risk of cardiovascular events and rofecoxib: cumulative meta-analysis" (require a "free" registration but you can use bugmenot.com)  PDF: http://pdf.thelancet.com/pdfdownload?uid=llan.364.9450.primary_resear… (you can use the search tool at The Lancet.com to get the HTML version).  The summary is at the end of this post. The dosage used for me has always been the lowest possible, 12.5 mg daily.  At other times, I’ve taken the drug once or twice a month using a 25 mg dosage.  None of this puts me, or anyone like me, in any danger.    Er… No known risk, not no risk. From what I’ve read you’re correct, low dose with  infrequent use hasn’t shown any problem yet. I am angry that I will have no alternative when my supply runs out.  There is no reason my doctor and I should not be able to evaluate the benefits and dangers to make a choice.    There are reasons, you just don’t like them. Merck would not take a money making drug off the market, take a hit on their stock price and expose themselves to lawsuits just for a lark. Instead, some overconcerned yahoos have made no choice possible.  How much are you willing to bet they can take NASIDS or sulfur drugs?    In my case I am concerned as my wife used Vioxx regularly. I can’t take NSAIDS and Celebrex did not work for me either (no sulfa reaction just made me sicker like Vioxx).  You lose your bet. — Luke Summary (Risk of cardiovascular events and rofecoxib: cumulative meta-analysis) Background The cyclo-oxygenase 2 inhibitor rofecoxib was recently withdrawn because of cardiovascular adverse effects. An increased risk of myocardial infarction had been observed in 2000 in the Vioxx Gastrointestinal Outcomes Research study (VIGOR), but was attributed to cardioprotection of naproxen rather than a cardiotoxic effect of rofecoxib. We used standard and cumulative random-effects meta-analyses of randomised controlled trials and observational studies to establish whether robust evidence on the adverse effects of rofecoxib was available before September, 2004. Methods We searched bibliographic databases and relevant files of the US Food and Drug Administration. We included all randomised controlled trials in patients with chronic musculoskeletal disorders that compared rofecoxib with other non-steroidal anti-inflammatory drugs (NSAIDs) or placebo, and cohort and case-control studies of cardiovascular risk and naproxen. Myocardial infarction was the primary endpoint. Findings We identified 18 randomised controlled trials and 11 observational studies. By the end of 2000 (52 myocardial infarctions, 20742 patients) the relative risk from randomised controlled trials was 2

Would love to hear your opinion on this…

Question:

I don’t think so! they knew way in advance that these drugs had potential hazards and that kept it a secret. I think millions of Americans are being over prescribed of meds, instead of trying to fix the medical problems with natural treatments and diet, but it is easier to prescribe the medicine than do that.   "Amelia Yaussy" <am…@blackmule.com

wrote in message news:JvudnXKUD-KIMm7cRVn-tw@wideopenwest.com…

  I just read my husband the headline and he said, "I’m sure Pfizer and Merck did all they could to make sure it was prescribed correctly, didn’t they?"   Vioxx, Celebrex Were Overprescribed, Study Says   CHICAGO (Reuters) – The two popular painkillers Vioxx and Celebrex, heavily marketed as "super-aspirin," were prescribed for millions of patients who did not need them or should not have taken them, researchers said on Friday.   http://tinyurl.com/3mern

Response:

On Mon, 24 Jan 2005 15:21:28 GMT, "Dave Wilcher" <dwil…@woh.rr.com

wrote:

Amelia Yaussy wrote: "Natural treatments" are pretty lucrative, too.  Ever see all the MLMs pushing herbals and vitamins?  How about those Enzyte and other ads on TV that rival the big pharmaceutical company commercials? I’m sure that’s true! I almost never watch TV, so I haven’t seen that ad. Oh, wait – is that the one where the woman is smiling like an idiot because her husband is taking this stuff and turned into a grinning phallic symbol? I guess I have seen that. ;-) dave

Are you referring to Smiling Bob? Yes, that’s his name. What really makes me laugh is when they tell you that if ‘it’ lasts more than four hours to get medical help. Do I call a doctor or his nurse? 8-)

Response:

"Doris" <dreich…@toad.net

wrote in message

news:eb_Id.7$Uq1.4388@news.abs.net… I don’t think so! they knew way in advance that these drugs had potential hazards and that kept it a secret. I think millions of Americans are being over prescribed of meds, instead of trying to fix the medical problems with natural treatments and diet, but it is easier to prescribe the medicine than do that. Not to mention more profitable! dave — "Nothing in the world is more dangerous than sincere ignorance and conscientious stupidity." – Martin Luther King

Response:

El Lippo wrote:

Are you referring to Smiling Bob? Yes, that’s his name. What really makes me laugh is when they tell you that if ‘it’ lasts more than four hours to get medical help. Do I call a doctor or his nurse? 8-)

Whichever floats your boat, so to speak. ;-) dave — "Nothing in the world is more dangerous than sincere ignorance and conscientious stupidity." – Martin Luther King

Response:

I just read my husband the headline and he said, "I’m sure Pfizer and Merck did all they could to make sure it was prescribed correctly, didn’t they?" Vioxx, Celebrex Were Overprescribed, Study Says CHICAGO (Reuters) – The two popular painkillers Vioxx and Celebrex, heavily marketed as "super-aspirin," were prescribed for millions of patients who did not need them or should not have taken them, researchers said on Friday. http://tinyurl.com/3mern

Response:

Amelia Yaussy wrote:

"Natural treatments" are pretty lucrative, too.  Ever see all the MLMs pushing herbals and vitamins?  How about those Enzyte and other ads on TV that rival the big pharmaceutical company commercials?

I’m sure that’s true! I almost never watch TV, so I haven’t seen that ad. Oh, wait – is that the one where the woman is smiling like an idiot because her husband is taking this stuff and turned into a grinning phallic symbol? I guess I have seen that. ;-) dave — "Nothing in the world is more dangerous than sincere ignorance and conscientious stupidity." – Martin Luther King

Response:

"Natural treatments" are pretty lucrative, too.  Ever see all the MLMs pushing herbals and vitamins?  How about those Enzyte and other ads on TV that rival the big pharmaceutical company commercials? – Hide quoted text — Show quoted text -Dave Wilcher wrote:

"Doris" <dreich…@toad.net wrote in message news:eb_Id.7$Uq1.4388@news.abs.net… I don’t think so! they knew way in advance that these drugs had potential hazards and that kept it a secret. I think millions of Americans are being over prescribed of meds, instead of trying to fix the medical problems with natural treatments and diet, but it is easier to prescribe the medicine than do that. Not to mention more profitable! dave

Response:

Has anybody heard about the new n pain killer "Primalt"

Question:

Priault? Have heard very little about it.  So little, I do not even know how to spell it.  Is it even available yet? I can imagine a Rheumatologist can also prescribe it, as they can and do prescribe oxycontin.  Interesting. How much oxycontin were you on with the withdrawals.  I am on 60mgs a day. I also have Percocetts for the break thru pain. Always, ..

Alleve or Naproxen

Question:

What the heck are we supposed to take? I;ve taken Vioxx, Celebrex and Naprosyn over the years. All I can think of now is Prednisone and I’ve been trying to get off that. I’m down to 7mg/day now (I was taking 60 a year ago). The arthritis pain is back with such a vengence that I’m actually thinking of upping the Prednisone again. I’d give anything to get some of this weight off. I was 185 pounds (my normal weight) when they put me on Pred. 1 1/2 years ago after my lung biopsy. I’m almost 260 today and I can’t stand it. I’m not used to having a weight problem. I’d buy new clothes but the weight is mostly in my gut (a little in the face). I can’t find anything that feels right to wear. Do you get a size 46 waist pants then hold em up with ropes or do you get 40’s and have em fit under the "overhang." Beats me. I wesar these damn $6.00 sweat pants I bought at Target 2 years ago. I wore one pair through and the other 2….well, I can’t hardly go out in public they’re so ratty. I have a huge wordrobe if I could just get down to a 35 or 36 inch waist again. I keep waiting for the weight to fall now that the Pred is down but I was told this week that I was gonna have to lose the weight the same way as everbody else….diet and exercise. How the hell am I gonna do that when I can hardly walk out to the mailbox without my oxygon tank? Taking a shower is all the exercise I can handle. I’m discouraged. Michael "Beverley" <beverly.brow…@verizon.net

wrote in message

news:0QNxd.2371$_62.1001@trnddc01… – Hide quoted text — Show quoted text -

Is now in the news as being another drug on the hit list over possible

heart

problems. Hopefully we will hear more about this. Geez, the one thing I could take!! I’ll stick to my aspirin it has, I believe, over a 100 + year track record. As long as my tummy can tolerate it I’ll take it. Bev

Response:

- Hide quoted text — Show quoted text -Michael Roeper wrote:

What the heck are we supposed to take? I;ve taken Vioxx, Celebrex and Naprosyn over the years. All I can think of now is Prednisone and I’ve been trying to get off that. I’m down to 7mg/day now (I was taking 60 a year ago). The arthritis pain is back with such a vengence that I’m actually thinking of upping the Prednisone again. I’d give anything to get some of this weight off. I was 185 pounds (my normal weight) when they put me on Pred. 1 1/2 years ago after my lung biopsy. I’m almost 260 today and I can’t stand it. I’m not used to having a weight problem. I’d buy new clothes but the weight is mostly in my gut (a little in the face). I can’t find anything that feels right to wear. Do you get a size 46 waist pants then hold em up with ropes or do you get 40’s and have em fit under the "overhang." Beats me. I wesar these damn $6.00 sweat pants I bought at Target 2 years ago. I wore one pair through and the other 2….well, I can’t hardly go out in public they’re so ratty. I have a huge wordrobe if I could just get down to a 35 or 36 inch waist again. I keep waiting for the weight to fall now that the Pred is down but I was told this week that I was gonna have to lose the weight the same way as everbody else….diet and exercise. How the hell am I gonna do that when I can hardly walk out to the mailbox without my oxygon tank? Taking a shower is all the exercise I can handle. I’m discouraged. Michael "Beverley" <beverly.brow…@verizon.net wrote in message news:0QNxd.2371$_62.1001@trnddc01… Is now in the news as being another drug on the hit list over possible heart problems. Hopefully we will hear more about this. Geez, the one thing I could take!! I’ll stick to my aspirin it has, I believe, over a 100 + year track record. As long as my tummy can tolerate it I’ll take it. Bev

Response:

Michael Roeper wrote:

What the heck are we supposed to take? I;ve taken Vioxx, Celebrex and Naprosyn over the years. All I can think of now is Prednisone and I’ve been trying to get off that. I’m down to 7mg/day now (I was taking 60 a year ago). The arthritis pain is back with such a vengence that I’m actually thinking of upping the Prednisone again. [] I keep waiting for the weight to fall now that the Pred is down but I was told this week that I was gonna have to lose the weight the same way as everbody else….diet and exercise. How the hell am I gonna do that when I can hardly walk out to the mailbox without my oxygon tank? Taking a shower is all the exercise I can handle. I’m discouraged.

I understand. You’re in a jam. I’m very sorry, Michael. As to the question, this is the latest re Naproxen etc http://msnbc.msn.com/id/6742963/ Hugs J PS Sorry for my other post. I pushed the wrong button and "sent before" I typed anything.

Response:

I do not like nsaids for as my doc says and I am living proof, they pool fluids in the extremities. But all that jazz about drugs and their negative side-effects is all news sensationalism.  We no long have news that is good news if you have not noticed. And whatever you read, do not believe everything!! Whatever happened to unbiased journalism.  They do not even have good grammar these days! Always, ..

glomerulonephritis

Question:

Hi folks, I recently went to my doctor complaining of puffiness around the eyes. She found protein in my urine and suggested there may be something wrong with my kidneys. I have an appointment in a few days at the local renal clinic for a kidney biopsy.  From my own research, I think they are looking for some form of ‘glomerulonephritis’. But I was wondering if there was any alternative explanation for my symptoms. Could a simple infection cause the puffiness in my face and the protein in my urine? I actually feel fine right now, and Ive had the puffiness for 6 months. So I was surprised at all of this. If anyone has any information or guidance, I would appreciate it.. Thanks in advance, Will McGugan

Response:

Will, you might ask about autoimmune vasculitides that can cause kidney problems.  They are rare, but serious if left untreated. — Bruce – Hide quoted text — Show quoted text -Will McGugan wrote:

Hi folks, I recently went to my doctor complaining of puffiness around the eyes. She found protein in my urine and suggested there may be something wrong with my kidneys. I have an appointment in a few days at the local renal clinic for a kidney biopsy.  From my own research, I think they are looking for some form of ‘glomerulonephritis’. But I was wondering if there was any alternative explanation for my symptoms. Could a simple infection cause the puffiness in my face and the protein in my urine? I actually feel fine right now, and Ive had the puffiness for 6 months. So I was surprised at all of this. If anyone has any information or guidance, I would appreciate it.. Thanks in advance, Will McGugan

Response:

In article <41864f5c$0$27550$db0fe…@news.zen.co.uk

,

 Will McGugan <n…@NOwillmcguganSPAM.com

wrote: Hi folks, I recently went to my doctor complaining of puffiness around the eyes. She found protein in my urine and suggested there may be something wrong with my kidneys. I have an appointment in a few days at the local renal clinic for a kidney biopsy.  From my own research, I think they are looking for some form of ‘glomerulonephritis’. But I was wondering if there was any alternative explanation for my symptoms. Could a simple infection cause the puffiness in my face and the protein in my urine?

It’s unlikely that an infection would cause facial edema, proteinuria and leave you generally feeling fine. Sometimes a kidney or bladder infection can cause mild proteinuria, but both hurt like hell and cause general feelings of crappiness. The most common cause of proteinuria is glomerulonephritis, usually brought about by high blood pressue and/or diabetes. I have something called FSGS (focal segmental glomerulosclerosis) that also causes proteinuria; its cause is unknown but is more common in older black men with high blood pressure (I’m a young white woman with very low blood pressure, go figger). If you are excreting about 3 grams or more protein per day in your urine, your doctor may put you on ACE inhibitors or ARBs, even if your blood pressure is normal, as these drugs help protect the kidneys and help with proteinuria. You may also be put on a diuretic to help get the excess fluid out of your body. You should stop taking all non-steroidal anti-inflammatory  drugs (NSAIDs) like ibuprofen (Motrin), Aleve (naproxyn), Toradol, Vioxx, Celebrex, etc. These drugs can make the proteinuria much worse, and even cause complete kidney failure or death. Of course, ask your doctor – I’m merely a patient! I bet your doctor will back me on quitting NSAIDs, though, if you have significant proteinuria. Good luck! — "Did Father shoot him? I will eat Grandfather for dinner." – Helen Keller, on learning of the death of her grandfather

Response:

In article <5fdc6be2476738f7ba846fd692227…@localhost.talkaboutsupport.com

,

 "finnell" <memle…@hotmail.com

wrote: Good luck with your diagnosis….you have had some really informative responses, but I would like to add that you should restrict your sodium in the meantime.

It’s more than controlling sodium; renal patients often need to limit potassium and phosphorus as well. These restrictions are best left to a nephrologist – they’re not appropriate for all renal patients, and some patients need different or additional restrictions as well. Doing the restrictions improperly can be as harmful as not doing them at all. — "Did Father shoot him? I will eat Grandfather for dinner." – Helen Keller, on learning of the death of her grandfather

Response:

absolutely…potassium,phosphorus…etc.  Been there…watched her do this for most of my entire life. I am just suggesting that someone who has not been told they have ESRD yet and in the interim between this post and getting an accurate diagnosis…limiting sodium is something that can be done easily without researching what items have potassium/phosphorus, etc. In the time between medical appointments it would likely serve to help keep him more comfortable and less swollen. It would due a wide majority of people, kidney impairments aside, to cut down on sodium given the fact that much of what we eat is already rich in sodium without additional salt intake. I am not a physician…just contributing to the post. Glomerulonephritis was part of my vocabulary from the time I was 5 years old….dialysis diet, potassium, phosphorus, amyloidosis, polyperipheral neuropathy…no need to go on. I watched my mother die of this only a year ago. The reason she survived so many years, especially in the earlier days of hemodialysis is because BEFORE she was on dialysis…she began to limit her sodium intake.  Just thought I would pass on the advice of someone who was the longest surviving dialysis patient on record in the state of New York.  If anyone knew what they were talking about…it was her.

Response:

In article <3a0920e7487085a3a87eeaed87fe8…@localhost.talkaboutsupport.com

,

 "finnell" <memle…@hotmail.com

wrote: absolutely…potassium,phosphorus…etc.  Been there…watched her do this for most of my entire life.

Watching and doing, as you know, are very different things.

I am just suggesting that someone who has not been told they have ESRD yet and in the interim between this post and getting an accurate diagnosis…limiting sodium is something that can be done easily

But it’s not always necessary and can even be dangerous. Not a good idea to make serious dietary modifications without a doctor’s input. Most people know better than to take anonymous medical advice they get off the internet, but it’s always a good idea to remind everyone to ask a professional. Yes, *in general* most people get more than enough sodium. IN GENERAL. Neither of us know the specific person in question, or are doctors, know what condition this person has, or has even see the lab work. Making dietary recommendations without this this information is not a good idea. Making suggestions on what OP should ask a doctor about, on the other hand, is fine. — "Did Father shoot him? I will eat Grandfather for dinner." – Helen Keller, on learning of the death of her grandfather

Response:

Good luck with your diagnosis….you have had some really informative responses, but I would like to add that you should restrict your sodium in the meantime. My mother was able to control ESRD chronic glomerulonephritis for many years before going on dialysis. She was on dialysis for 32 years and the doctors said the reason she had been so healthy for so many years was her strict adherence to nutritional issues, diet, etc.

Response:

- Hide quoted text — Show quoted text -REP wrote:

In article <41864f5c$0$27550$db0fe…@news.zen.co.uk,  Will McGugan <n…@NOwillmcguganSPAM.com wrote: Hi folks, I recently went to my doctor complaining of puffiness around the eyes. She found protein in my urine and suggested there may be something wrong with my kidneys. I have an appointment in a few days at the local renal clinic for a kidney biopsy. From my own research, I think they are looking for some form of ‘glomerulonephritis’. But I was wondering if there was any alternative explanation for my symptoms. Could a simple infection cause the puffiness in my face and the protein in my urine? It’s unlikely that an infection would cause facial edema, proteinuria and leave you generally feeling fine. Sometimes a kidney or bladder infection can cause mild proteinuria, but both hurt like hell and cause general feelings of crappiness. The most common cause of proteinuria is glomerulonephritis, usually brought about by high blood pressue and/or diabetes. I have something called FSGS (focal segmental glomerulosclerosis) that also causes proteinuria; its cause is unknown but is more common in older black men with high blood pressure (I’m a young white woman with very low blood pressure, go figger). If you are excreting about 3 grams or more protein per day in your urine, your doctor may put you on ACE inhibitors or ARBs, even if your blood pressure is normal, as these drugs help protect the kidneys and help with proteinuria. You may also be put on a diuretic to help get the excess fluid out of your body. You should stop taking all non-steroidal anti-inflammatory  drugs (NSAIDs) like ibuprofen (Motrin), Aleve (naproxyn), Toradol, Vioxx, Celebrex, etc. These drugs can make the proteinuria much worse, and even cause complete kidney failure or death. Of course, ask your doctor – I’m merely a patient! I bet your doctor will back me on quitting NSAIDs, though, if you have significant proteinuria. Good luck!

Thanks for the info. You seem very well informed for a patient! I’ll take your advice regarding NSAIDs. I do occasionally take ibuprofen for headaches. I dont have diabetes. But my doctor did say my blood pressure was a little high – that surprised me as well since Im 30, and I exercise regularly. Oh well, I’ll try not worry about it till I get the biopsy (ow!). Thanks again.. Will

Response:

update medication side effects

Question:

Paula – So sorry you’re having so many problems with your gi, but can totally relate.  Others have given some great suggestions, so I won’t repeat them.  But, just wanted to say that when taking a diuretic, you may need to take a potassium supplement either through food/drink or in pill form. Also, when you think of questions you want answered or things you want clarified just write them down.  Then make a list of them to take with you to the doctor.  That way, you’ll have it all and not forget something once you’re there.  And definitely make sure you get copies of your lab results too.  Good luck! Christine CD

– Hide quoted text — Show quoted text – Well, I saw the doctor on thursday and told him about my eyes and knees, plus other side effects. He sits there very calmly and looking bored saying very nonchalantly that is just the prednisone. As if it is nothing to worry about. I barely made it in his office, holding onto the walls but it is nothing?? He claimed the eye sight problem is due to water retention behind the eye and I indeed look like hell and my eyes water constantly. I also had mentioned that in this 4 weeks I have gained over 20 LB and he tells me I should eat less and lose weight????? Can’t even wear my normally lose sandals as they are to tight, a ballooned face etc. and I need to lose weight? what about needing to lose the water for pete’s sake. Strangely he did tell me to reduce the pred. right away; from 2x a day 20 mg to 1x a day 30 mg in week 1, then every week 5 mg less. So maybe it is something to worry about anyway because he said my blood test was good. Although once I asked for a copy he did admit that 1 liver test was elevated and he talked over things and I never got the copy. Will have to go after that one. So, will see what happens with weaning off the pred. Qua eating stuff, well even on the pred I can hardly have anything so I guess maybe it never made any difference. He just had said that I needed to have pred in my body for the imuran to work. As I understood it from you guys that is not quite it; I thought to pick up here that since imuran takes a while to take effect giving pred might be to tie you over till that time. is that right?? maybe he knows his stuff just has a hard time with communicating things properly. Personally I think I was rightly concerned about my eyes and inability to walk, but his behaviour indicated in first instance that my concern and worry weren’t reasonable. so glad you all thought it was worry some also. Today my legs were much worse and I needed help a few time to do the 10 steps to the bathroom. Oh my that will be fun when home alone :-) maybe diaper time again, but now because of my legs?? hi paula yes…you stay on the pred long enough for the imuran to start working… re your eyes…i am surprised you werent put on a diuretic..and you should see an eye doctor just to check…pred CAN over long periods of time cause eye damage…and certainly it causes temporary problems..i dont even bother getting checked for new contacts while on pred cos the pred screws up my vision so badly..but it always straightens out.. the edema in your legs..feet…u need a diuretic…tho of course they ahve their side effects(i am allergic to sulfa and the one diuretic i can take really bothers my tummy..but i use it occasionally) your concerns and worries are of course reasonable..personally i believe that any concerns and worries around ibd or meds are reasonable and should be treated as such by the doctor…is it possible to get another doctor at this point? in the past 25years or so that i have been dx with ibd..i have found that the relationships with my doctors..especially the gi and internist are very important…i want to be able to ask questions..express my concern…have choices..be informed properly of test results etc…there is enough that is difficult with this illness….at least you need a doctor who doesnt add to the difficulties.. good luck..and get those eyes checked to be on the safe side.. annie

Response:

It took ages to diagnose but I only have myself to blame.  I’d had IBD since my mid teens but the intestine side of things didn’t really show up until I was nearly twenty.  I had a few flares and they went away so I didn’t bother saying anything to the professionals.  Then from 1999 to 2001 I was in one solid flare.  I finally went to a different GP and got a referral to a GI. 3 days before I was due up at the out patients I was admitted to the hospital as my normal GP thought I had rumbling appendix or appendicitis. and then they diagnosed me with CD.  My younger brother took ages to diagnose but that was partly to blame because of a stupid doctor (the one that thought I had appendicitis) and partly to blame for NZ’s lovely long waiting lists. The weight gain from the Pred is one of the major side effects that p’s me off (more than the Osteoporosis).  I was kinda biggish during my teens but by the time I went into hospital I had lost a bit of weight and was looking good.  And then the Pred kicked in and the weight starting piling on.

– Hide quoted text — Show quoted text – thanks Katrina Yes, and they are not even aware how they come over to their patients I am sure. Sadly I can’t change doctors, but how can one expect to lose weight when on pred and retaining tons of water?? I have been overweight since I was about 14 and have only been told to "eat less". Never any real help. Have to say the moment they take my BP and check cholesterol not a peep out of any doc. see, my BP is ( I think to) low, and my cholesterol the good one is just inside the normal range at the bottom, the bad one is below! the normal range ( bottom also). Even the triglycerides are below the middle of the range. they can’t make things stick qua normal channels so they stop!?? doesn’t make sense to me, fat is fat and I need to lose. Just curious, did you have a hard time getting dx with IBS?? Once this doc saw me he didn’t want to do any tests because I could not have anything serious, then only was going for ?? that short scope but since the colonoscopy was already booked I managed to let that stand. Turned out I have right sided crohn’s. For many years I have had problems and landed in hospital due to passing out from pain. always thinking it was my appendix. Nobody ever checked for IBS! Can’t help but think it was because of my weight. anytime I talk to people they are asking me if I am sure because crohn’s patients are skinny. BTW, with the present weight gain I am about 260 lb and only 5′ 3" in height. so I really really don’t need it :-(  Oh well, so is life. Yet another condescending GI.  I’ve got one of them too.  He keeps lecturing me about losing weight, but the side effects of the Prednisone make it so hard to exercise without pain. As the other ppl who have already replied to this post have said, if you’re not happy with your current GI please feel free to change (maybe I should take that advice as well). My understanding about immuno suppressants (Imuran, 6MP etc) is that they take a while to work, therefore they get you started on them before you get off the Prednisone so by the time you’ve weaned off the Pred, the immuno suppressant should’ve kicked in. Best of luck Katrina Well, I saw the doctor on thursday and told him about my eyes and knees, plus other side effects. He sits there very calmly and looking bored saying very nonchalantly that is just the prednisone. As if it is nothing to worry about. I barely made it in his office, holding onto the walls but it is nothing?? He claimed the eye sight problem is due to water retention behind the eye and I indeed look like hell and my eyes water constantly. I also had mentioned that in this 4 weeks I have gained over 20 LB and he tells me I should eat less and lose weight????? Can’t even wear my normally lose sandals as they are to tight, a ballooned face etc. and I need to lose weight? what about needing to lose the water for pete’s sake. Strangely he did tell me to reduce the pred. right away; from 2x a day 20 mg to 1x a day 30 mg in week 1, then every week 5 mg less. So maybe it is something to worry about anyway because he said my blood test was good. Although once I asked for a copy he did admit that 1 liver test was elevated and he talked over things and I never got the copy. Will have to go after that one. So, will see what happens with weaning off the pred. Qua eating stuff, well even on the pred I can hardly have anything so I guess maybe it never made any difference. He just had said that I needed to have pred in my body for the imuran to work. As I understood it from you guys that is not quite it; I thought to pick up here that since imuran takes a while to take effect giving pred might be to tie you over till that time. is that right?? maybe he knows his stuff just has a hard time with communicating things properly. Personally I think I was rightly concerned about my eyes and inability to walk, but his behaviour indicated in first instance that my concern and worry weren’t reasonable. so glad you all thought it was worry some also. Today my legs were much worse and I needed help a few time to do the 10 steps to the bathroom. Oh my that will be fun when home alone :-) maybe diaper time again, but now because of my legs??

Response:

- Hide quoted text — Show quoted text – Well, I saw the doctor on thursday and told him about my eyes and knees, plus other side effects. He sits there very calmly and looking bored saying very nonchalantly that is just the prednisone. As if it is nothing to worry about. I barely made it in his office, holding onto the walls but it is nothing??  He claimed the eye sight problem is due to water retention behind the eye and I indeed look like hell and my eyes water constantly. I also had mentioned that in this 4 weeks I have gained over 20 LB and he tells me I should eat less and lose weight????? Can’t even wear my normally lose sandals as they are to tight, a ballooned face etc. and I need to lose weight? what about needing to lose the water for pete’s sake. Strangely he did tell me to reduce the pred. right away; from 2x a day 20 mg to 1x a day 30 mg in week 1, then every week 5 mg less. So maybe it is something to worry about anyway because he said my blood test was good. Although once I asked for a copy he did admit that 1 liver test was elevated and he talked over things and I never got the copy. Will have to go after that one. So, will see what happens with weaning off the pred. Qua eating stuff, well even on the pred I can hardly have anything so I guess maybe it never made any difference. He just had said that I needed to have pred in my body for the imuran to work. As I understood it from you guys that is not quite it; I thought to pick up here that since imuran takes a while to take effect giving pred might be to tie you over till that time. is that right?? maybe he knows his stuff just has a hard time with communicating things properly. Personally I think I was rightly concerned about my eyes and inability to walk, but his behaviour indicated in first instance that my concern and worry weren’t reasonable. so glad you all thought it was worry some also. Today my legs were much worse and I needed help a few time to do the 10 steps to the bathroom. Oh my that will be fun when home alone :-) maybe diaper time again, but now because of my legs??

hi paula yes…you stay on the pred long enough for the imuran to start working… re your eyes…i am surprised you werent put on a diuretic..and you should see an eye doctor just to check…pred CAN over long periods of time cause eye damage…and certainly it causes temporary problems..i dont even bother getting checked for new contacts while on pred cos the pred screws up my vision so badly..but it always straightens out.. the edema in your legs..feet…u need a diuretic…tho of course they ahve their side effects(i am allergic to sulfa and the one diuretic i can take really bothers my tummy..but i use it occasionally) your concerns and worries are of course reasonable..personally i believe that any concerns and worries around ibd or meds are reasonable and should be treated as such by the doctor…is it possible to get another doctor at this point? in the past 25years or so that i have been dx with ibd..i have found that the relationships with my doctors..especially the gi and internist are very important…i want to be able to ask questions..express my concern…have choices..be informed properly of test results etc…there is enough that is difficult with this illness….at least you need a doctor who doesnt add to the difficulties.. good luck..and get those eyes checked to be on the safe side.. annie

Response:

This is a little stronger than that which you are using.  That stopped working for me too as the edema worsened.  It’s called Torsemide 5mg tab.  I don’t remember the details from the reader anymore as I have only had to go on this twice for about week each time and I was fine.  Pick up your water intake too.  For the ankles and to take it down from the head to the kidney and bladder prop both your head and ankles up just higher than the heart. This does help ‘drain’ you better though when you get vertical for a while it does show back.  Have you seen a dr to check your kidneys?  I did that also a urologist (stones can cause this if you have them) also some of the meds (both otc and rx can cause water retentions (Nsaids, aspirin, Vioxx, Celebrex, Pred you get the idea.)  This way you can see also if it is induce orally with meds by checking all you put in.  Cut your salt off too in everything while bloated.  If I can help let me know as I have had my vascular disease under control now since our vacation cruise (last flare up) in July ‘03.  UM MOM Susan

– Hide quoted text — Show quoted text – Hi Susan Like you I have fought water retention for a while, also before the medication. Once on entocort it became really bad and he indeed gave me some pills; just 1 a day called triamterene/ hydrochtzide 25 mg. I have told him on 2 occasions before they don’t seem to do much at all but he didn’t let me take more, at least not given plain permission and I do not know much about that medication. I will see my regular eye doctor on thursday and hopefully he will send me through to a specialist. It is one problem I have with socialist health care, you just can’t go to someone yourself even if you would pay ( there just aren’t any who take private). Upon the "strong advice" of the GI I had quit all herbal medication/ preparation I took and which over a couple of years improved my health to the point I was no longer confined to bed but out of bed most of the day. So I hated doing so but went to a natural drug store and they advised me a specific tissue salt ( suppose to work in the cells) and it works a bit better then the medication; I take both now and still have huge ankles/ legs etc. but I pass water now a bit more then before. Just hope and prey it will do the trick. Part of the problem with the communication is that I am to ill to really ask questions and be on top of things in his office. Afterwards when I think about what he said or answered I see it is half baked answers or non at all or that he talked over my questions. So, it is hard to make sure he does answer. Thanks for the response. We hope for the best. Paula, you need to get the fluid out, esp. behind the eyes.  Didn’t he give you a diuretic or something to help lose the excess water?  What about the talk of an eye dr too to make sure the fluid hasn’t injured the eye?  I have problems with acute edema and have water pills to take when it acts up because it can be so dangerous.  You can even get edema internally which I didn’t know until I got sent to get my kidneys to checked, then circulation and a eye dr.  I wasn’t on pred so that is not the cause of my situation but it still is dangerous with it being a medication doing it.  You can’t keep all that fluid and not have it do damage in time, how much time I don’t know because I never waited too long, though I do now how low vascular disease. Please pursue this quickly and don’t wait.  If your dr has communication problems with you then you need to make him talk until you understand or he does.  Good luck.  UM MOM Susan Well, I saw the doctor on thursday and told him about my eyes and knees, plus other side effects. He sits there very calmly and looking bored saying very nonchalantly that is just the prednisone. As if it is nothing to worry about. I barely made it in his office, holding onto the walls but it is nothing?? He claimed the eye sight problem is due to water retention behind the eye and I indeed look like hell and my eyes water constantly. I also had mentioned that in this 4 weeks I have gained over 20 LB and he tells me I should eat less and lose weight????? Can’t even wear my normally lose sandals as they are to tight, a ballooned face etc. and I need to lose weight? what about needing to lose the water for pete’s sake. Strangely he did tell me to reduce the pred. right away; from 2x a day 20 mg to 1x a day 30 mg in week 1, then every week 5 mg less. So maybe it is something to worry about anyway because he said my blood test was good. Although once I asked for a copy he did admit that 1 liver test was elevated and he talked over things and I never got the copy. Will have to go after that one. So, will see what happens with weaning off the pred. Qua eating stuff, well even on the pred I can hardly have anything so I guess maybe it never made any difference. He just had said that I needed to have pred in my body for the imuran to work. As I understood it from you guys that is not quite it; I thought to pick up here that since imuran takes a while to take effect giving pred might be to tie you over till that time. is that right?? maybe he knows his stuff just has a hard time with communicating things properly. Personally I think I was rightly concerned about my eyes and inability to walk, but his behaviour indicated in first instance that my concern and worry weren’t reasonable. so glad you all thought it was worry some also. Today my legs were much worse and I needed help a few time to do the 10 steps to the bathroom. Oh my that will be fun when home alone :-) maybe diaper time again, but now because of my legs??

Response:

thanks Katrina Yes, and they are not even aware how they come over to their patients I am sure. Sadly I can’t change doctors, but how can one expect to lose weight when on pred and retaining tons of water?? I have been overweight since I was about 14 and have only been told to "eat less". Never any real help. Have to say the moment they take my BP and check cholesterol not a peep out of any doc. see, my BP is ( I think to) low, and my cholesterol the good one is just inside the normal range at the bottom, the bad one is below! the normal range ( bottom also). Even the triglycerides are below the middle of the range. they can’t make things stick qua normal channels so they stop!?? doesn’t make sense to me, fat is fat and I need to lose. Just curious, did you have a hard time getting dx with IBS?? Once this doc saw me he didn’t want to do any tests because I could not have anything serious, then only was going for ?? that short scope but since the colonoscopy was already booked I managed to let that stand. Turned out I have right sided crohn’s. For many years I have had problems and landed in hospital due to passing out from pain. always thinking it was my appendix. Nobody ever checked for IBS! Can’t help but think it was because of my weight. anytime I talk to people they are asking me if I am sure because crohn’s patients are skinny. BTW, with the present weight gain I am about 260 lb and only 5′ 3" in height. so I really really don’t need it :-(  Oh well, so is life. – Hide quoted text — Show quoted text – Yet another condescending GI.  I’ve got one of them too.  He keeps lecturing me about losing weight, but the side effects of the Prednisone make it so hard to exercise without pain. As the other ppl who have already replied to this post have said, if you’re not happy with your current GI please feel free to change (maybe I should take that advice as well). My understanding about immuno suppressants (Imuran, 6MP etc) is that they take a while to work, therefore they get you started on them before you get off the Prednisone so by the time you’ve weaned off the Pred, the immuno suppressant should’ve kicked in. Best of luck Katrina Well, I saw the doctor on thursday and told him about my eyes and knees, plus other side effects. He sits there very calmly and looking bored saying very nonchalantly that is just the prednisone. As if it is nothing to worry about. I barely made it in his office, holding onto the walls but it is nothing?? He claimed the eye sight problem is due to water retention behind the eye and I indeed look like hell and my eyes water constantly. I also had mentioned that in this 4 weeks I have gained over 20 LB and he tells me I should eat less and lose weight????? Can’t even wear my normally lose sandals as they are to tight, a ballooned face etc. and I need to lose weight? what about needing to lose the water for pete’s sake. Strangely he did tell me to reduce the pred. right away; from 2x a day 20 mg to 1x a day 30 mg in week 1, then every week 5 mg less. So maybe it is something to worry about anyway because he said my blood test was good. Although once I asked for a copy he did admit that 1 liver test was elevated and he talked over things and I never got the copy. Will have to go after that one. So, will see what happens with weaning off the pred. Qua eating stuff, well even on the pred I can hardly have anything so I guess maybe it never made any difference. He just had said that I needed to have pred in my body for the imuran to work. As I understood it from you guys that is not quite it; I thought to pick up here that since imuran takes a while to take effect giving pred might be to tie you over till that time. is that right?? maybe he knows his stuff just has a hard time with communicating things properly. Personally I think I was rightly concerned about my eyes and inability to walk, but his behaviour indicated in first instance that my concern and worry weren’t reasonable. so glad you all thought it was worry some also. Today my legs were much worse and I needed help a few time to do the 10 steps to the bathroom. Oh my that will be fun when home alone :-) maybe diaper time again, but now because of my legs??

Response:

Jeff, as I mentioned to Susan, I do take one but it has no real effect. Actually another name for it would be apo-triazide. I will take the name of yours and if the tissue salt I obtained from the natural food/ herbal store is not doing enough either, I just might go to my PCP and ask about that one. thanks for the name. Have to admit, one side effect of the pred is the absence of my huge huge terribly itchy hives. so, not all bad :-) Really starting to feel like a whiner so just had to put that in. – Hide quoted text — Show quoted text – a dieretic would help you a lot.  i take one that works really great and also reduces the risk of other nasty things that can happen to us ibd’ers, it is called aldactazide/hydrochlorot/spironolacto. 24mg/day. long name…lol, but it works great. jeff Well, I saw the doctor on thursday and told him about my eyes and knees, plus other side effects. He sits there very calmly and looking bored saying very nonchalantly that is just the prednisone. As if it is nothing to worry about. I barely made it in his office, holding onto the walls but it is nothing?? He claimed the eye sight problem is due to water retention behind the eye and I indeed look like hell and my eyes water constantly. I also had mentioned that in this 4 weeks I have gained over 20 LB and he tells me I should eat less and lose weight????? Can’t even wear my normally lose sandals as they are to tight, a ballooned face etc. and I need to lose weight? what about needing to lose the water for pete’s sake. Strangely he did tell me to reduce the pred. right away; from 2x a day 20 mg to 1x a day 30 mg in week 1, then every week 5 mg less. So maybe it is something to worry about anyway because he said my blood test was good. Although once I asked for a copy he did admit that 1 liver test was elevated and he talked over things and I never got the copy. Will have to go after that one. So, will see what happens with weaning off the pred. Qua eating stuff, well even on the pred I can hardly have anything so I guess maybe it never made any difference. He just had said that I needed to have pred in my body for the imuran to work. As I understood it from you guys that is not quite it; I thought to pick up here that since imuran takes a while to take effect giving pred might be to tie you over till that time. is that right?? maybe he knows his stuff just has a hard time with communicating things properly. Personally I think I was rightly concerned about my eyes and inability to walk, but his behaviour indicated in first instance that my concern and worry weren’t reasonable. so glad you all thought it was worry some also. Today my legs were much worse and I needed help a few time to do the 10 steps to the bathroom. Oh my that will be fun when home alone :-) maybe diaper time again, but now because of my legs??

Response:

Thanks Lesley somehow I think he doesn’t even realize what he is doing to patients. I can see when you hear the same complaints about side effects a few time daily for years you are bored with it, but to a real person, unprepared, when it is your life, it is worry some. wish they put themselves out a letter type paper their staff can print up with possible side effects and by which ones they want you to call right way and which ones they want to know about next visit. The rest just are "normal" so they don’t get bothered by common stuff.  Being prepared is half the  battle. Sadly can’t get another GI. Already tried via my PCP but he said no. It is taking at this time about 8 months to get into a GI’s office which is probably why my PCP said no. And it seems regardless of what he says/ implies etc. he does take the right action and that is what others will see. stuck in Canada :-)

Response:

Hi Dwight I understand your distrust of doctors. Like you I have stories I can tell. However, I also have found some very good ones at times. Actually those like to be questioned and the fact one is informed about stuff. I certainly will try to get my lab work but don’t hold my breath. From the start he seemed like one who will not give a copy so what I did before going to the lab was mark on my tests that my PCP was to get a copy. Nobody seems to question that and my PCP will print me a copy no problems. These tests however I have a card because of the every 2 week thing. The first went to my PCP but now they only have the specialist name on the requisition. Oh well, will need to call tuesday; tomorrow is a holiday; all is closed. – Hide quoted text — Show quoted text – Remember, your doctor works for you and is therefore accountable to you.   You have every right to see your lab work and to question him until you are comfortable with your understanding of his answers.  While I was on Prednisone, they also had me on Lasix(diuretic not eye surgery) to help with edema.  If your doctor is not willing to work with you, I would suggest finding another who will.  It’s your life, not his, and you have to live with the consequences.  If you haven’t guessed, this is a sore subject with me.  Three and a half years ago I had a doctor almost kill me with his ineptness, and I don’t know if I will ever trust one fully again. Dwight Well, I saw the doctor on thursday and told him about my eyes and knees, plus other side effects. He sits there very calmly and looking bored saying very nonchalantly that is just the prednisone. As if it is nothing to worry about. I barely made it in his office, holding onto the walls but it is nothing??  He claimed the eye sight problem is due to water retention behind the eye and I indeed look like hell and my eyes water constantly. I also had mentioned that in this 4 weeks I have gained over 20 LB and he tells me I should eat less and lose weight????? Can’t even wear my normally lose sandals as they are to tight, a ballooned face etc. and I need to lose weight? what about needing to lose the water for pete’s sake. Strangely he did tell me to reduce the pred. right away; from 2x a day 20 mg to 1x a day 30 mg in week 1, then every week 5 mg less. So maybe it is something to worry about anyway because he said my blood test was good. Although once I asked for a copy he did admit that 1 liver test was elevated and he talked over things and I never got the copy. Will have to go after that one. So, will see what happens with weaning off the pred. Qua eating stuff, well even on the pred I can hardly have anything so I guess maybe it never made any difference. He just had said that I needed to have pred in my body for the imuran to work. As I understood it from you guys that is not quite it; I thought to pick up here that since imuran takes a while to take effect giving pred might be to tie you over till that time. is that right?? maybe he knows his stuff just has a hard time with communicating things properly. Personally I think I was rightly concerned about my eyes and inability to walk, but his behaviour indicated in first instance that my concern and worry weren’t reasonable. so glad you all thought it was worry some also. Today my legs were much worse and I needed help a few time to do the 10 steps to the bathroom. Oh my that will be fun when home alone :-) maybe diaper time again, but now because of my legs??

Response:

Hi Susan Like you I have fought water retention for a while, also before the medication. Once on entocort it became really bad and he indeed gave me some pills; just 1 a day called triamterene/ hydrochtzide 25 mg. I have told him on 2 occasions before they don’t seem to do much at all but he didn’t let me take more, at least not given plain permission and I do not know much about that medication. I will see my regular eye doctor on thursday and hopefully he will send me through to a specialist. It is one problem I have with socialist health care, you just can’t go to someone yourself even if you would pay ( there just aren’t any who take private). Upon the "strong advice" of the GI I had quit all herbal medication/ preparation I took and which over a couple of years improved my health to the point I was no longer confined to bed but out of bed most of the day. So I hated doing so but went to a natural drug store and they advised me a specific tissue salt ( suppose to work in the cells) and it works a bit better then the medication; I take both now and still have huge ankles/ legs etc. but I pass water now a bit more then before. Just hope and prey it will do the trick. Part of the problem with the communication is that I am to ill to really ask questions and be on top of things in his office. Afterwards when I think about what he said or answered I see it is half baked answers or non at all or that he talked over my questions. So, it is hard to make sure he does answer. Thanks for the response. We hope for the best. – Hide quoted text — Show quoted text – Paula, you need to get the fluid out, esp. behind the eyes.  Didn’t he give you a diuretic or something to help lose the excess water?  What about the talk of an eye dr too to make sure the fluid hasn’t injured the eye?  I have problems with acute edema and have water pills to take when it acts up because it can be so dangerous.  You can even get edema internally which I didn’t know until I got sent to get my kidneys to checked, then circulation and a eye dr.  I wasn’t on pred so that is not the cause of my situation but it still is dangerous with it being a medication doing it.  You can’t keep all that fluid and not have it do damage in time, how much time I don’t know because I never waited too long, though I do now how low vascular disease. Please pursue this quickly and don’t wait.  If your dr has communication problems with you then you need to make him talk until you understand or he does.  Good luck.  UM MOM Susan Well, I saw the doctor on thursday and told him about my eyes and knees, plus other side effects. He sits there very calmly and looking bored saying very nonchalantly that is just the prednisone. As if it is nothing to worry about. I barely made it in his office, holding onto the walls but it is nothing?? He claimed the eye sight problem is due to water retention behind the eye and I indeed look like hell and my eyes water constantly. I also had mentioned that in this 4 weeks I have gained over 20 LB and he tells me I should eat less and lose weight????? Can’t even wear my normally lose sandals as they are to tight, a ballooned face etc. and I need to lose weight? what about needing to lose the water for pete’s sake. Strangely he did tell me to reduce the pred. right away; from 2x a day 20 mg to 1x a day 30 mg in week 1, then every week 5 mg less. So maybe it is something to worry about anyway because he said my blood test was good. Although once I asked for a copy he did admit that 1 liver test was elevated and he talked over things and I never got the copy. Will have to go after that one. So, will see what happens with weaning off the pred. Qua eating stuff, well even on the pred I can hardly have anything so I guess maybe it never made any difference. He just had said that I needed to have pred in my body for the imuran to work. As I understood it from you guys that is not quite it; I thought to pick up here that since imuran takes a while to take effect giving pred might be to tie you over till that time. is that right?? maybe he knows his stuff just has a hard time with communicating things properly. Personally I think I was rightly concerned about my eyes and inability to walk, but his behaviour indicated in first instance that my concern and worry weren’t reasonable. so glad you all thought it was worry some also. Today my legs were much worse and I needed help a few time to do the 10 steps to the bathroom. Oh my that will be fun when home alone :-) maybe diaper time again, but now because of my legs??

Response:

Yet another condescending GI.  I’ve got one of them too.  He keeps lecturing me about losing weight, but the side effects of the Prednisone make it so hard to exercise without pain. As the other ppl who have already replied to this post have said, if you’re not happy with your current GI please feel free to change (maybe I should take that advice as well). My understanding about immuno suppressants (Imuran, 6MP etc) is that they take a while to work, therefore they get you started on them before you get off the Prednisone so by the time you’ve weaned off the Pred, the immuno suppressant should’ve kicked in. Best of luck Katrina

– Hide quoted text — Show quoted text – Well, I saw the doctor on thursday and told him about my eyes and knees, plus other side effects. He sits there very calmly and looking bored saying very nonchalantly that is just the prednisone. As if it is nothing to worry about. I barely made it in his office, holding onto the walls but it is nothing?? He claimed the eye sight problem is due to water retention behind the eye and I indeed look like hell and my eyes water constantly. I also had mentioned that in this 4 weeks I have gained over 20 LB and he tells me I should eat less and lose weight????? Can’t even wear my normally lose sandals as they are to tight, a ballooned face etc. and I need to lose weight? what about needing to lose the water for pete’s sake. Strangely he did tell me to reduce the pred. right away; from 2x a day 20 mg to 1x a day 30 mg in week 1, then every week 5 mg less. So maybe it is something to worry about anyway because he said my blood test was good. Although once I asked for a copy he did admit that 1 liver test was elevated and he talked over things and I never got the copy. Will have to go after that one. So, will see what happens with weaning off the pred. Qua eating stuff, well even on the pred I can hardly have anything so I guess maybe it never made any difference. He just had said that I needed to have pred in my body for the imuran to work. As I understood it from you guys that is not quite it; I thought to pick up here that since imuran takes a while to take effect giving pred might be to tie you over till that time. is that right?? maybe he knows his stuff just has a hard time with communicating things properly. Personally I think I was rightly concerned about my eyes and inability to walk, but his behaviour indicated in first instance that my concern and worry weren’t reasonable. so glad you all thought it was worry some also. Today my legs were much worse and I needed help a few time to do the 10 steps to the bathroom. Oh my that will be fun when home alone :-) maybe diaper time again, but now because of my legs??

Response:

a dieretic would help you a lot.  i take one that works really great and also reduces the risk of other nasty things that can happen to us ibd’ers, it is called aldactazide/hydrochlorot/spironolacto. 24mg/day. long name…lol, but it works great. jeff

– Hide quoted text — Show quoted text – Well, I saw the doctor on thursday and told him about my eyes and knees, plus other side effects. He sits there very calmly and looking bored saying very nonchalantly that is just the prednisone. As if it is nothing to worry about. I barely made it in his office, holding onto the walls but it is nothing?? He claimed the eye sight problem is due to water retention behind the eye and I indeed look like hell and my eyes water constantly. I also had mentioned that in this 4 weeks I have gained over 20 LB and he tells me I should eat less and lose weight????? Can’t even wear my normally lose sandals as they are to tight, a ballooned face etc. and I need to lose weight? what about needing to lose the water for pete’s sake. Strangely he did tell me to reduce the pred. right away; from 2x a day 20 mg to 1x a day 30 mg in week 1, then every week 5 mg less. So maybe it is something to worry about anyway because he said my blood test was good. Although once I asked for a copy he did admit that 1 liver test was elevated and he talked over things and I never got the copy. Will have to go after that one. So, will see what happens with weaning off the pred. Qua eating stuff, well even on the pred I can hardly have anything so I guess maybe it never made any difference. He just had said that I needed to have pred in my body for the imuran to work. As I understood it from you guys that is not quite it; I thought to pick up here that since imuran takes a while to take effect giving pred might be to tie you over till that time. is that right?? maybe he knows his stuff just has a hard time with communicating things properly. Personally I think I was rightly concerned about my eyes and inability to walk, but his behaviour indicated in first instance that my concern and worry weren’t reasonable. so glad you all thought it was worry some also. Today my legs were much worse and I needed help a few time to do the 10 steps to the bathroom. Oh my that will be fun when home alone :-) maybe diaper time again, but now because of my legs??

Response:

That is appalling treatment from your Doctor and I can empathise as I have had similar from my private specialist. I am so disillusioned by the so called medical experts.  If you are able to get another Doctor I would surely think about it.  You are certainly not fussing and are right to be concerned.  Good luck getting better advice and support. Lesley stuck in NZ   Well, I saw the doctor on thursday and told him about my eyes and knees, plus   other side effects. He sits there very calmly and looking bored saying very   nonchalantly that is just the prednisone. As if it is nothing to worry about. I   barely made it in his office, holding onto the walls but it is nothing??  He   claimed the eye sight problem is due to water retention behind the eye and I   indeed look like hell and my eyes water constantly. I also had mentioned that in   this 4 weeks I have gained over 20 LB and he tells me I should eat less and lose   weight????? Can’t even wear my normally lose sandals as they are to tight, a   ballooned face etc. and I need to lose weight? what about needing to lose the   water for pete’s sake.   Strangely he did tell me to reduce the pred. right away; from 2x a day 20 mg to   1x a day 30 mg in week 1, then every week 5 mg less. So maybe it is something to   worry about anyway because he said my blood test was good. Although once I asked   for a copy he did admit that 1 liver test was elevated and he talked over things   and I never got the copy. Will have to go after that one. So, will see what   happens with weaning off the pred. Qua eating stuff, well even on the pred I can   hardly have anything so I guess maybe it never made any difference. He just had   said that I needed to have pred in my body for the imuran to work. As I   understood it from you guys that is not quite it; I thought to pick up here that   since imuran takes a while to take effect giving pred might be to tie you over   till that time. is that right?? maybe he knows his stuff just has a hard time   with communicating things properly. Personally I think I was rightly concerned   about my eyes and inability to walk, but his behaviour indicated in first   instance that my concern and worry weren’t reasonable. so glad you all thought   it was worry some also.   Today my legs were much worse and I needed help a few time to do the 10 steps to   the bathroom. Oh my that will be fun when home alone :-) maybe diaper time   again, but now because of my legs??

Response:

Remember, your doctor works for you and is therefore accountable to you.   You have every right to see your lab work and to question him until you are comfortable with your understanding of his answers.  While I was on Prednisone, they also had me on Lasix(diuretic not eye surgery) to help with edema.  If your doctor is not willing to work with you, I would suggest finding another who will.  It’s your life, not his, and you have to live with the consequences.  If you haven’t guessed, this is a sore subject with me.  Three and a half years ago I had a doctor almost kill me with his ineptness, and I don’t know if I will ever trust one fully again. Dwight – Hide quoted text — Show quoted text – Well, I saw the doctor on thursday and told him about my eyes and knees, plus other side effects. He sits there very calmly and looking bored saying very nonchalantly that is just the prednisone. As if it is nothing to worry about. I barely made it in his office, holding onto the walls but it is nothing??  He claimed the eye sight problem is due to water retention behind the eye and I indeed look like hell and my eyes water constantly. I also had mentioned that in this 4 weeks I have gained over 20 LB and he tells me I should eat less and lose weight????? Can’t even wear my normally lose sandals as they are to tight, a ballooned face etc. and I need to lose weight? what about needing to lose the water for pete’s sake. Strangely he did tell me to reduce the pred. right away; from 2x a day 20 mg to 1x a day 30 mg in week 1, then every week 5 mg less. So maybe it is something to worry about anyway because he said my blood test was good. Although once I asked for a copy he did admit that 1 liver test was elevated and he talked over things and I never got the copy. Will have to go after that one. So, will see what happens with weaning off the pred. Qua eating stuff, well even on the pred I can hardly have anything so I guess maybe it never made any difference. He just had said that I needed to have pred in my body for the imuran to work. As I understood it from you guys that is not quite it; I thought to pick up here that since imuran takes a while to take effect giving pred might be to tie you over till that time. is that right?? maybe he knows his stuff just has a hard time with communicating things properly. Personally I think I was rightly concerned about my eyes and inability to walk, but his behaviour indicated in first instance that my concern and worry weren’t reasonable. so glad you all thought it was worry some also. Today my legs were much worse and I needed help a few time to do the 10 steps to the bathroom. Oh my that will be fun when home alone :-) maybe diaper time again, but now because of my legs??

Response:

Well, I saw the doctor on thursday and told him about my eyes and knees, plus other side effects. He sits there very calmly and looking bored saying very nonchalantly that is just the prednisone. As if it is nothing to worry about. I barely made it in his office, holding onto the walls but it is nothing??  He claimed the eye sight problem is due to water retention behind the eye and I indeed look like hell and my eyes water constantly. I also had mentioned that in this 4 weeks I have gained over 20 LB and he tells me I should eat less and lose weight????? Can’t even wear my normally lose sandals as they are to tight, a ballooned face etc. and I need to lose weight? what about needing to lose the water for pete’s sake. Strangely he did tell me to reduce the pred. right away; from 2x a day 20 mg to 1x a day 30 mg in week 1, then every week 5 mg less. So maybe it is something to worry about anyway because he said my blood test was good. Although once I asked for a copy he did admit that 1 liver test was elevated and he talked over things and I never got the copy. Will have to go after that one. So, will see what happens with weaning off the pred. Qua eating stuff, well even on the pred I can hardly have anything so I guess maybe it never made any difference. He just had said that I needed to have pred in my body for the imuran to work. As I understood it from you guys that is not quite it; I thought to pick up here that since imuran takes a while to take effect giving pred might be to tie you over till that time. is that right?? maybe he knows his stuff just has a hard time with communicating things properly. Personally I think I was rightly concerned about my eyes and inability to walk, but his behaviour indicated in first instance that my concern and worry weren’t reasonable. so glad you all thought it was worry some also. Today my legs were much worse and I needed help a few time to do the 10 steps to the bathroom. Oh my that will be fun when home alone :-) maybe diaper time again, but now because of my legs??

Response:

Paula, you need to get the fluid out, esp. behind the eyes.  Didn’t he give you a diuretic or something to help lose the excess water?  What about the talk of an eye dr too to make sure the fluid hasn’t injured the eye?  I have problems with acute edema and have water pills to take when it acts up because it can be so dangerous.  You can even get edema internally which I didn’t know until I got sent to get my kidneys to checked, then circulation and a eye dr.  I wasn’t on pred so that is not the cause of my situation but it still is dangerous with it being a medication doing it.  You can’t keep all that fluid and not have it do damage in time, how much time I don’t know because I never waited too long, though I do now how low vascular disease. Please pursue this quickly and don’t wait.  If your dr has communication problems with you then you need to make him talk until you understand or he does.  Good luck.  UM MOM Susan

– Hide quoted text — Show quoted text – Well, I saw the doctor on thursday and told him about my eyes and knees, plus other side effects. He sits there very calmly and looking bored saying very nonchalantly that is just the prednisone. As if it is nothing to worry about. I barely made it in his office, holding onto the walls but it is nothing?? He claimed the eye sight problem is due to water retention behind the eye and I indeed look like hell and my eyes water constantly. I also had mentioned that in this 4 weeks I have gained over 20 LB and he tells me I should eat less and lose weight????? Can’t even wear my normally lose sandals as they are to tight, a ballooned face etc. and I need to lose weight? what about needing to lose the water for pete’s sake. Strangely he did tell me to reduce the pred. right away; from 2x a day 20 mg to 1x a day 30 mg in week 1, then every week 5 mg less. So maybe it is something to worry about anyway because he said my blood test was good. Although once I asked for a copy he did admit that 1 liver test was elevated and he talked over things and I never got the copy. Will have to go after that one. So, will see what happens with weaning off the pred. Qua eating stuff, well even on the pred I can hardly have anything so I guess maybe it never made any difference. He just had said that I needed to have pred in my body for the imuran to work. As I understood it from you guys that is not quite it; I thought to pick up here that since imuran takes a while to take effect giving pred might be to tie you over till that time. is that right?? maybe he knows his stuff just has a hard time with communicating things properly. Personally I think I was rightly concerned about my eyes and inability to walk, but his behaviour indicated in first instance that my concern and worry weren’t reasonable. so glad you all thought it was worry some also. Today my legs were much worse and I needed help a few time to do the 10 steps to the bathroom. Oh my that will be fun when home alone :-) maybe diaper time again, but now because of my legs??

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Rheumatoid Arthritis…PLEASE HELP

Question:

I have a lady friend who is 50 yrs old and is suffering from symtoms similar to arthritis / rheumatoid arthritis.  As she is unable to access the Net, I am trying to help her find a solution through your newsgroup. Her symtoms: 1.  Her pain became very unbearable whenever she wake up from sleep, even after a short nap.  She will feel her bones stiffen up 2.  During her waking hours, she still have her pain but bearable. 3.  The pain is more pronounced in her hands and she has difficulties holding a scissor to cut 4.  She has not have her period for the last 2-3 months and could be entering her menopause. Some questions: 6. Is there such a thing as Menopausal arthritis? 7. Is there any herbal cure? 8. What is the best medicine to such problems?  Doctors have provided her with medications and diagnosed as POSSIBLE rheumatoid arthritis / Menopausal arthritis. 9. She is worried about having deformity should her problem prolong. Hope someone will help ease her pain or hopefully a cure.

Response:

Have never heard of menopausal arthritis but I am not a doctor. :) Where are you located? .my does not ring any bells. The medicines we have available to us in USA are not only different in some cases but even if they are the same, the name is different in different countries. What medicine did the doctors put your friend on? NSAIDS [non-steroidal anti inflammatory drugs] like aspirin, advil, vioxx, celebrex,…. will help to control pain but do nothing to halt the progression of the disease. DMARDS [disease modifying, anti rheumatic drugs] help to control the disease and keep deformities from developing. The most common of these is MTX [methotrexate]. The new biologicals are Enbrel, Remicade, and the newest is Humira [which before FDA approval in USA was referred to as D2E7]. You did not say what kind of doctor your friend is seeing but she needs to be refereed to a rheumatologist {RD} as soon as possible. Here are two web sites with accurate material: http://www.arthritisinsight.com/ http://www.arthritis.co.za/ Hope that helps a bit. BTW, you are a good friend to help her find information. We call ourselves Gimps here as a friendly distinguisher and it is with pride that we welcome all non gimp friends and family. You are very special. Duckie – Hide quoted text — Show quoted text – I have a lady friend who is 50 yrs old and is suffering from symtoms similar to arthritis / rheumatoid arthritis.  As she is unable to access the Net, I am trying to help her find a solution through your newsgroup. Her symtoms: 1.  Her pain became very unbearable whenever she wake up from sleep, even after a short nap.  She will feel her bones stiffen up 2.  During her waking hours, she still have her pain but bearable. 3.  The pain is more pronounced in her hands and she has difficulties holding a scissor to cut 4.  She has not have her period for the last 2-3 months and could be entering her menopause. Some questions: 6. Is there such a thing as Menopausal arthritis? 7. Is there any herbal cure? 8. What is the best medicine to such problems?  Doctors have provided her with medications and diagnosed as POSSIBLE rheumatoid arthritis / Menopausal arthritis. 9. She is worried about having deformity should her problem prolong. Hope someone will help ease her pain or hopefully a cure.

Response:

Gliburide and Vioxx, any reaction?

Question:

He’s a Dr of few words.

I just have to jump on this (which was from the original poster). It’s your body, it’s your health, you have to live with the consequences of what happens to you.  You’re paying your doctor, not the other way around. If he says something you don’t understand, ask!  If he recommends something that doesn’t make sense to you, ask!  It’s his job to explain, not just to hand down directions from on high. Treating diabetes is a team effort.  Your doctor is one member of the team, you’re another.  You have to be able to work together on this. — remove "spamtrap" for e-mail

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He’s a Dr of few words. I just have to jump on this (which was from the original poster). It’s your body, it’s your health, you have to live with the consequences of what happens to you.  You’re paying your doctor, not the other way around. If he says something you don’t understand, ask!  If he recommends something that doesn’t make sense to you, ask!  It’s his job to explain, not just to hand down directions from on high. Treating diabetes is a team effort.  Your doctor is one member of the team, you’re another.  You have to be able to work together on this.

It could be that NSAID’s (Vioxx) can increase the risk of hypoglycemia when used with glyburide.  But your Dr. should of told you why.  If he/she did not then ask! Ken

Response:

It could be that NSAID’s (Vioxx) can increase the risk of hypoglycemia when used with glyburide.  But your Dr. should of told you why.  If he/she did not then ask!

Vioxx acts on COX 2 to inhibit the production of prostaglandins and leukotrienes, things Omega 6 and it’s derivatives tend to produce. Some of the prostaglandins cause inflammation and constrict the arteries. While the following can be said for some NSAIDs, I am not to sure it could be said about COX 2 inhibitors. Certain NSAIDs act as ligands/agonist on/or with the PPARs in a manner similar to Actos or Advandia, but not nearly as strongly. Fish oil also acts to inhibit the same prostaglandins by competing with the same enzymes (elongase and delta 5 and 6 desaturase). Ibuprophen (sp) inhibits both COX 1 and COX 2. Prostacyclin is something you don’t want inhibited since it is a vascular dialator. Frank Roy

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Does anyone know of a reaction between Vioxx and Glyburide? My Dr (internist) just put me on Glyburide 5 mg. Also said stop Vioxx. Co-incidence or a reason? He’s a Dr of few words. Thanks— Ron

Response:

hmmmm…… i don’t know off hand www.rxlist.com is a good site to look up meds and their contraindications good luck…. hope this helps k

– Hide quoted text — Show quoted text – Does anyone know of a reaction between Vioxx and Glyburide? My Dr (internist) just put me on Glyburide 5 mg. Also said stop Vioxx. Co-incidence or a reason? He’s a Dr of few words. Thanks— Ron

Response:

Does anyone know of a reaction between Vioxx and Glyburide? My Dr (internist) just put me on Glyburide 5 mg. Also said stop Vioxx. Co-incidence or a reason? He’s a Dr of few words. Thanks— Ron

I did a bit of a look around using Google, and found out a little about Vioxx. It’s safety is in question.  I could only think of some possible reasons for your doctor discontinuing it’s use, based on the following. 1.  He’s just being cautious, generally. See: http://www.vioxx-celebrex-side-effects.com/ "A recent study out of the Cleveland Clinic noted an increase in the development of myocardial infractions, or heart attacks, in people treated with Vioxx, when compared with those treated with naproxen (a standard NSAID or following a link on that page: http://www.cnn.com/HEALTH/9904/20/celebrex.deaths.03/ 2.  He’s being cautious because you have diabetes, and this increases your risks, espec in the area of possible cardiovascular disease anyway. 3. He’s being cautious because you already have some indication of a cardiovascular disorder or other health disorder. See: http://www.fda.gov/medwatch/SAFETY/2002/safety02.htm#vioxx You may want to search out further info about this med’s safety. Personally,  I LIKE cautious doctors. And it doesn’t matter what his motivation is – whether just purely self interest and protection from the possiblility of a law suit, or just concern for his patient, ( or both – mixed feelings). Gliburide is a sulphonylurea, and I could not find any info regarding a possible interaction with Vioxx – there may not be any. But I’m no expert, just a digger. Annette

Response:

Anyone watch TV drug program last night?(Vioxx/Celebrex etc)???

Question:

Any thoughts on the Peter Jennings program??? Thought what they discussed about Vioxx/Celebrex was interesting! Aggie

Response:

Any thoughts on the Peter Jennings program??? Thought what they discussed about Vioxx/Celebrex was interesting! Aggie

i have to say i was seething as i watched this. celebrex is the first nsaid i have been able to tolerate. i don’t care what the studies say, it works for me and has not (yet) wrecked my stomach. all other nsaids lasted only a few days for me before the gut pain started. i really resented the whole tenor of the piece. grrr. diane

Response:

Any thoughts on the Peter Jennings program??? Thought what they discussed about Vioxx/Celebrex was interesting! Aggie

I only saw bits and pieces because we were watching the Celtics lose on NBC.   But what I saw sounded very one sided.  I sure didn’t hear them state any of the valid reasons WE know exist for prescribing COX2s over other NSAIDs. — Nann cut the Gator cheer to email me I like nonsense; it wakes up the brain cells. – Dr Seuss

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